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Living with Motor Neurone Disease: A complete guide is designed to guide the reader through this complex progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means that messages gradually stop reaching the muscles, which leads to weakness and wasting. Motor Neurone Disease can affect the everyday things that we take for granted. A diagnosis of MND which is also known as ALS can be frightening and overwhelming. Good quality information and support from people who understand MND is vital at this time. This is a step-by-step guide for everyone which explains: what MND is? How it is diagnosed? How does it affect the individual and the family? What are the psychological dimensions of the condition? The caregiver experience; Living with the condition and facing the future; How do you talk to children and adolescents? How do you tell family and friends? How do adapt working conditions and home life? How do you find supports; medical, psychological technological and practical to cope with the daily impact of living with MND? In summary, it is an invaluable resource to inform, educate prepare and signpost people toward practical everyday supports and clinical expertise. Living with Motor Neurone Disease: A complete guide is a must-read for professionals; for doctors, nurses, educationalists, for psychologists, systemic family therapists and psychotherapists, those working in human resources and everyone who needs to understand the condition when they encounter it.

An international bestselling memoir about an Irishman who chose to live life to the fullest after his diagnosis of ALS.In 2008, Simon Fitzmaurice was diagnosed with Lou Gehrig's disease. He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity he was not ready to die. Against all prevailing medical opinion, he chose life. Despite the loss of almost all motor function, thanks to miraculous technology, he continued to work, raise his five children, and write this astonishing memoir. It's Not Yet Dark is a journey into a life that, though brutally compromised, was lived more fully than most, revealing the potent power of love, of art, and of the human spirit. Written using an eye-gaze computer, this is an unforgettable book about relationships and family, about what connects and separates us as people, and, ultimately, about what it means to be alive.International Bestseller A Barnes & Noble Discover Pick A Barnes & Noble Best Biography of the Year An iBooks Best Book of the MonthAn Amazon Best Memoir of the Month“A fiercely eloquent testament to making the most out of every moment we're given.”—People, Book of the Week “Vibrant.”—Minneapolis Star Tribune“Beautifully written. Utterly life-affirming.”—Alan Rickman “A beautiful love story—in its essence that's what this is. Survival stories are not about surviving, they're inherently about what makes a survivor push through. A desire to remain in the light of all creation, even as a darkening is taking place. A darkening which happens to us all.”—Colin Farrell

This Essentials guide is packed full of information about motor neurone disease (MND) and how to deal with it. It provides up-to-date information on a range of topics from diagnosis and treatment to adapting to life with MND, including mobility, feelings, relationships and much more. It addresses the physical and emotional upheaval for the person with MND and for the whole family, offering positive help and advice and providing: Medically accurate information about living with MND; Advice on finding the right care and treatment throughout the progression of the disease; Detailed advice about activities of daily living, including difficulties with bladder and bowel function; Practical information about employment, benefits, how to adapt the home and the care services that are available.

ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.

Motor neuron disease (MND) is a common but devastating disability that has a profound impact on people's lives. This book provides an easily-accessible guide to the disease for patients with motor neuron disease and their carers. The authors have organised it around a series of the commonest questions asked in their clinic, emphasising the variation in the course of MND and the individual nature of the patient journey through the disease. After an initial description of the symptoms for MND and how neurologists make the diagnosis the authors describe what is known about the causes and how scientists are trying to understand the disease. The book also looks at how a team of specialists can provide support and symptom control for the patient.