1. Design and Implementation of the All of Us Research Program COVID-19 Participant Experience (COPE) Survey.
- Author
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Schulkey, Claire E, Litwin, Tamara R, Ellsworth, Genevieve, Sansbury, Heather, Ahmedani, Brian K, Choi, Karmel W, Cronin, Robert M, Kloth, Yasmin, Ashbeck, Alan W, Sutherland, Scott, Mapes, Brandy M, Begale, Mark, Bhat, Geeta, King, Paula, Marginean, Kayla, Wolfe, Keri Ann, Kouame, Aymone, Raquel, Carmina, Ratsimbazafy, Francis, and Bornemeier, Zach
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COVID-19 , *SOCIAL determinants of health , *SUBSTANCE abuse , *COVID-19 vaccines , *MENTAL health , *PUBLIC health , *CULTURAL pluralism , *EXPERIENCE , *SURVEYS , *PHYSICAL activity , *HUMAN services programs , *LONELINESS , *COVID-19 testing , *COVID-19 pandemic - Abstract
In response to the rapidly evolving coronavirus disease 2019 (COVID-19) pandemic, the All of Us Research Program longitudinal cohort study developed the COVID-19 Participant Experience (COPE) survey to better understand the pandemic experiences and health impacts of COVID-19 on diverse populations within the United States. Six survey versions were deployed between May 2020 and March 2021, covering mental health, loneliness, activity, substance use, and discrimination, as well as COVID-19 symptoms, testing, treatment, and vaccination. A total of 104,910 All of Us Research Program participants, of whom over 73% were from communities traditionally underrepresented in biomedical research, completed 275,201 surveys; 9,693 completed all 6 surveys. Response rates varied widely among demographic groups and were lower among participants from certain racial and ethnic minority populations, participants with low income or educational attainment, and participants with a Spanish language preference. Survey modifications improved participant response rates between the first and last surveys (13.9% to 16.1%, P < 0.001). This paper describes a data set with longitudinal COVID-19 survey data in a large, diverse population that will enable researchers to address important questions related to the pandemic, a data set that is of additional scientific value when combined with the program's other data sources. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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