101. Priorities for Patient-Centered Outcomes Research: The Views of Minority and Underserved Communities.
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Goold, Susan Dorr, Myers, C. Daniel, Szymecko, Lisa, Cunningham Collins, Carla, Martinez, Sal, Ledón, Charo, Campbell, Terrance R., Danis, Marion, Cargill, Stephanie Solomon, Kim, Hyungjin Myra, and Rowe, Zachary
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PATIENT-centered care , *MEDICAL care of minorities , *MEDICALLY underserved areas , *QUALITY of life , *MEDICAL partnership , *FOCUS groups , *HEALTH attitudes , *HEALTH services accessibility , *INTERVIEWING , *MEDICAL needs assessment , *MEDICAL care research , *MINORITIES , *HEALTH outcome assessment , *PHYSICIAN-patient relations , *RESEARCH , *AT-risk people , *STANDARDS - Abstract
Objective: To learn how minority and underserved communities would set priorities for patient-centered outcomes research (PCOR).Data Sources: Sixteen groups (n = 183) from minority and underserved communities in two states deliberated about PCOR priorities using the simulation exercise CHoosing All Together (CHAT). Most participants were minority, one-third reported income <$10,000, and one-fourth reported fair/poor health.Design: Academic-community partnerships adapted CHAT for PCOR priority setting using existing research agendas and interviews with community leaders, clinicians, and key informants.Data Collection: Tablet-based CHAT collected demographic information, individual priorities before and after group deliberation, and groups' priorities.Principal Findings: Individuals and groups prioritized research on Quality of Life, Patient-Doctor, Access, Special Needs, and (by total resources spent) Compare Approaches. Those with less than a high school education were less likely to prioritize New Approaches, Patient-Doctor, Quality of Life, and Families/Caregivers. Blacks were less likely to prioritize research on Causes of Disease, New Approaches, and Compare Approaches than whites. Compare Approaches, Special Needs, Access, and Families/Caregivers were significantly more likely to be selected by individuals after compared to before deliberation.Conclusions: Members of underserved communities, in informed deliberations, prioritized research on Quality of Life, Patient-Doctor, Special Needs, Access, and Compare Approaches. [ABSTRACT FROM AUTHOR]- Published
- 2017
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