6 results on '"Latinka Basara"'
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2. Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Croatia
- Author
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Ana Hećimović, Alice Heaney, Stephen P. McKenna, Latinka Basara, Marko Jakopović, Andrea Vukić Dugac, Gzim Redžepi, Cecilija Rotim, Miroslav Samaržija, Nataša Jokić-Begić, Sanja Popović-Grle, Ana Hećimović, Alice Heaney, Stephen P. McKenna, Latinka Basara, Marko Jakopović, Andrea Vukić Dugac, Gzim Redžepi, Cecilija Rotim, Miroslav Samaržija, Nataša Jokić-Begić, and Sanja Popović-Grle
- Abstract
Pulmonary hypertension (PH) is a chronic disease which severely impairs quality of life (QoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is the first disease-specific tool to assess patient-reported symptoms, functioning and QoL in PH patients. The aim of this study was to adapt and validate the CAMPHOR for use in Croatia. The adaptation process involved three stages: translation (bilingual and lay panel), cognitive debriefing interviews with patients and psychometric validation. For the latter stage, a postal survey was conducted with 50 patients to examine the reliability and validity of the adapted scale. All three scales of the Croatian CAMPHOR demonstrated excellent internal consistency (Symptoms = 0.93; Activity limitations = 0.94; QoL = 0.92) and test-retest reliability correlations (Symptoms = 0.90; Activity limitations = 0.95; QoL = 0.90). Predicted correlations with the SF-36 scales provided evidence for construct validity of the CAMPHOR scales. Evidence for known group validity was shown by the ability of the scales to distinguish between participants based on patient-perceived general health and disease severity. The Croatian version of the CAMPHOR is a valid and reliable tool for use in clinical routine and clinical research., Plućna hipertenzija je kronična bolest koja značajno narušava kvalitetu života. The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) je prvi upitnik specifičan za ovu bolest kojim bolesnici s plućnom hipertenzijom samoprocjenjuju simptome, funkcionalni status i kvalitetu života. Cilj ove studije bio je prilagoditi i vrednovati CAMPHOR za uporabu u Republici Hrvatskoj. Prilagodba je postupak koji uključuje tri koraka: prijevod (dvojezični panel i panel laika), kognitivno ispitivanje i psihometrijsko vrednovanje. U daljnjem tijeku ispitivanje je provedeno na 50 bolesnika kako bi se ispitala pouzdanost i valjanost adaptiranih ljestvica. Sve tri ljestvice hrvatske verzije CAMPHOR-a pokazale su izvrsnu unutarnju konzistenciju (Simptomi = 0,93; Aktivnosti = 0,95; Kvaliteta života = 0,92) i ponovljivost (Simptomi = 0,90; Aktivnosti = 0,95; Kvaliteta života = 0,92). Korelacija s česticama SF-36 potvrdila je strukturnu valjanost ljestvica CAMPHOR-a. Prema rezultatima ljestvica moguće je razlikovati ispitanike grupirane prema samoprocijenjenom općem zdravstvenom stanju i težini bolesti, čime je dokazana valjanost upitnika za definirane skupine. Hrvatska inačica CAMPHOR-a je valjan i pouzdan upitnik za primjenu u svakodnevnom kliničkom radu i kliničkim ispitivanjima.
- Published
- 2019
3. DYSPNEA FROM NEUROPSYCHYATRIC PERSPECTIVE: A NARRATIVE REVIEW
- Author
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Latinka Basara, Nataša Jokić Begić, Sanja Popović Grle, Marko Jakopović, Miroslav Samaržija, Latinka Basara, Nataša Jokić Begić, Sanja Popović Grle, Marko Jakopović, and Miroslav Samaržija
- Abstract
Dyspnea or breathlessness is a term primarily used in respiratory medicine. Nevertheless, in the last fifteen years, studies from other fields focus on the affective component of this complex phenomenon due to the frequent observation that psychological states can cause or be caused by dyspnea. Research so far shows that besides the biological component, dyspnea has a strong emotional and psychosocial determinant. This means that apart from its biological factors, dyspnea and its intensity are affected by emotions, personality, anxiety and depression, etc. Individuals with psychiatric disorders, in the same conditions, will evaluate their dyspnea as more intense and disturbing compared to individuals without psychiatric comorbidity. Emotional states in healthy individuals can amplify the sense of dyspnea which is of extreme importance for clinical practice in order to consider the whole person and not just the symptom which is being presented. Also, dyspnea seems to be frequent complaint in some groups of patients with psychiatric disorders (e.g.panic disorder), where the fear of suffocation is presented as clinical symptom. Further research of dyspnea as a complex, multicomponent phenomenon, can contribute to better treatment options and better differential diagnosis concerning possible psychiatric background of physical symptoms.
- Published
- 2018
4. The role of pulmonary rehabilitation before and after lung transplantation
- Author
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Tajana Jalušić Glunčić, Latinka Basara, Feđa Džubur, Matjaž Turel, Miroslav Samaržija, Tajana Jalušić Glunčić, Latinka Basara, Feđa Džubur, Matjaž Turel, and Miroslav Samaržija
- Abstract
Pulmonary rehabilitation is the key component in treating patients with chronic respiratory diseases. In lung transplantation program it plays an important role as an individualized program for every patient before and after surgery. In these patients reduced ability to exercise is an important predictor of outcome and survival after surgery so feature of pulmonary rehabilitation is immenesely important. The intensity of exercise and training regimen depend on the underlying disease. Pretransplant rehabilitation helps optimize and maintain patient’s functional status and supplies important interdisciplinary information about the following surgery. It also includes psychosocial support to patients and their caregivers with the goal to reduce stress and improve adjustment while waiting for operation. Posttransplantation rehabilitation starts in the first 24-48 hours after surgery and it is oriented to optimal lung expansion, airway hygene, efficient breathing, extremity activation and walking. Educational component of the posttransplantation rehabilitation includes teaching recipients about desired health behaviors, risks, adequate medical regimen and healthy diet. Psychosocial support after transplantation involves: helping recipients to recover lost social and family roles, counseling, adapting to new organ and ongoing medical necessities, long-term moderation of their expectations and careing about their psychological wellbeing., Plućna rehabilitacija ključna je komponenta u liječenju osoba s kroničnim bolestima dišnog sustava, a u programu transplantacije pluća igra važnu ulogu u smislu individulanog programa za svakog bolesnika prije i nakon transplantacije. Kod ovih je pacijenata nemogućnost vježbanja snažan predskazatelj ishoda operacije i preživljenja, stoga je baš ovo obilježje plućne rehabilitacije od iznimne važnosti. Intenzitet i režim vježbanja određen je karakteristikama bolesti od koje je pacijent bolovao prije transplantacije. Pretransplantacijska plućna rehabilitacija bolesnicima pomaže u optimiziranju i održavanju funkcionalnog statusa prije operacije uz pružanje interdisciplinarnih informacija važnih za predstojeću operaciju i oporavak. Također uključuje psihosocijalnu potporu za pacijenta i članove obitelji radi umanjivanja stresa i povećanja prilagodbe u periodu čekanja transplantacije. Posttransplantacijska rehabilitacija započinje u prvih 24-48 sati nakon operacije i usmjerena je na optimalno širenje pluća i toaletu dišnih putova, učinkovito disanje, aktivaciju ekstremiteta i hod. Edukacijska komponenta posttransplantacijske rehabilitacije uključuje poučavanje o željenom zdravstvenom ponašanju, rizicima, adekvatnom režimu uzimanja lijekova i zdravoj prehrani. Psihosocijalna potpora odnosi se na pomoć u ponovnom preuzimanju izgubljenih socijalnih i obiteljskih životnih uloga, savjetovanje, prilagodbu na novi organ i daljnje medicinske potrebe, dugoročno moderiranje očekivanja te brigu o psihičkoj dobrobiti pacijenta.
- Published
- 2015
5. Uloga programa plućne rehabilitacije kod kroničnih opstruktivnih plućnih bolesti (astma, KOPB): prikaz rezultata kod 122-je bolesnika
- Author
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Tajana Jalušić Glunčić, Latinka Basara Toromanović, Olivera Maletić, Tajana Jalušić Glunčić, Latinka Basara Toromanović, and Olivera Maletić
- Abstract
CILJ: Pokazati kako je interdisciplinarni program plućne rehabilitacije provođen u našoj ustanovi utjecao na stupanj izraženosti simptoma, parametre plućne funkcije, toleranciju napora, dužinu hodne pruge i kvalitetu života smanjenjem varijabla psihološkog distresa. ISPITANICI I METODE: U istraživanje je bilo uključeno 122-je bolesnika s kroničnom opstruktivnom plućnom bolesti (astmom i KOPB-om), koji su unatoč redovitu uzimanju preporučene terapije imali slabu toleranciju napora i brzo zamaranje. Svi su provodili isti program četiri tjedna, uz nastavak uzimanja svoje medikamentne terapije. REZULTATI: Pokazano je statistički značajno poboljšanje (p<0,05) ovih vrijednosti: forsirani ekspiratorni volumen u prvoj sekundi (FEV1), inspiratorni kapacitet (IC), šestominutni test hoda (6MWT), test kontrole astme (ACT), test procjene kronične opstruktivne plućne bolesti (CAT) i kvalitete života (QOL) uz smanjenje simptoma depresivnosti, anksioznosti, stresa. ZAKLJUČAK: Plućna rehabilitacija očito utječe na poboljšanje kvalitete života. Povećao se subjektivni osjećaj kontrole bolesti, uz objektivno smanjenje stupnja depresivnosti i anksioznosti. Bolesnici su postigli bolju toleranciju napora uz dužu hodnu prugu nakon rehabilitacije. U parametrima plućne funkcije došlo je do poboljšanja FEV1 i IC, dok forsirani vitalni kapacitet (FVC) i vršni ekspiratorni protok zraka (PEF) nisu pokazali značajne promjene., AIM: To show how the interdisciplinary programme of pulmonary rehabilitation implemented in our institution aff ected the severity of disease symptoms, lung function, exercise capacity, walking distance length and quality of life by decreasing psychological distress variables. PATIENTS AND METHODS: The study included 122 patients with chronic obstructive lung disease (asthma, COPD), who despite regular use of the recommended therapy experienced reduced tolerance to exertion and rapid fatigue. All patients went through the same four-week programme. RESULTS: There was a statistically significant improvement in the following values: Forced Expiratory Volume in the fi rst second (FEV1), Inspiratory Capacity (IC), Six Minute Walk Test (6MWT), Asthma Control Test (ACT), COPD Assessment Test (CAT) and Quality of Life (QOL)with the reduction of depression, anxiety and stress symptoms. CONCLUSION: Pulmonary rehabilitation obviously contributes to improvement in the quality of life by increasing subjective control of the disease and by alleviating depression, anxiety and stress symptoms. Patients achieved better exercise capacity and longer walking distance. Among the parameters of lung function, FEV1 and IC improved signifi cantly while forced vital capacity (FVC) and peak expiratory fl ow (PEF) showed no significant changes.
- Published
- 2013
6. Uloga programa plućne rehabilitacije kod kroničnih opstruktivnih plućnih bolesti (astma, KOPB): prikaz rezultata kod 122-je bolesnika
- Author
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Tajana Jalušić Glunčić, Latinka Basara Toromanović, Olivera Maletić, Tajana Jalušić Glunčić, Latinka Basara Toromanović, and Olivera Maletić
- Abstract
CILJ: Pokazati kako je interdisciplinarni program plućne rehabilitacije provođen u našoj ustanovi utjecao na stupanj izraženosti simptoma, parametre plućne funkcije, toleranciju napora, dužinu hodne pruge i kvalitetu života smanjenjem varijabla psihološkog distresa. ISPITANICI I METODE: U istraživanje je bilo uključeno 122-je bolesnika s kroničnom opstruktivnom plućnom bolesti (astmom i KOPB-om), koji su unatoč redovitu uzimanju preporučene terapije imali slabu toleranciju napora i brzo zamaranje. Svi su provodili isti program četiri tjedna, uz nastavak uzimanja svoje medikamentne terapije. REZULTATI: Pokazano je statistički značajno poboljšanje (p<0,05) ovih vrijednosti: forsirani ekspiratorni volumen u prvoj sekundi (FEV1), inspiratorni kapacitet (IC), šestominutni test hoda (6MWT), test kontrole astme (ACT), test procjene kronične opstruktivne plućne bolesti (CAT) i kvalitete života (QOL) uz smanjenje simptoma depresivnosti, anksioznosti, stresa. ZAKLJUČAK: Plućna rehabilitacija očito utječe na poboljšanje kvalitete života. Povećao se subjektivni osjećaj kontrole bolesti, uz objektivno smanjenje stupnja depresivnosti i anksioznosti. Bolesnici su postigli bolju toleranciju napora uz dužu hodnu prugu nakon rehabilitacije. U parametrima plućne funkcije došlo je do poboljšanja FEV1 i IC, dok forsirani vitalni kapacitet (FVC) i vršni ekspiratorni protok zraka (PEF) nisu pokazali značajne promjene., AIM: To show how the interdisciplinary programme of pulmonary rehabilitation implemented in our institution aff ected the severity of disease symptoms, lung function, exercise capacity, walking distance length and quality of life by decreasing psychological distress variables. PATIENTS AND METHODS: The study included 122 patients with chronic obstructive lung disease (asthma, COPD), who despite regular use of the recommended therapy experienced reduced tolerance to exertion and rapid fatigue. All patients went through the same four-week programme. RESULTS: There was a statistically significant improvement in the following values: Forced Expiratory Volume in the fi rst second (FEV1), Inspiratory Capacity (IC), Six Minute Walk Test (6MWT), Asthma Control Test (ACT), COPD Assessment Test (CAT) and Quality of Life (QOL)with the reduction of depression, anxiety and stress symptoms. CONCLUSION: Pulmonary rehabilitation obviously contributes to improvement in the quality of life by increasing subjective control of the disease and by alleviating depression, anxiety and stress symptoms. Patients achieved better exercise capacity and longer walking distance. Among the parameters of lung function, FEV1 and IC improved signifi cantly while forced vital capacity (FVC) and peak expiratory fl ow (PEF) showed no significant changes.
- Published
- 2013
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