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Supplemental Material, sj-pdf-3-chc-10.1177_13674935211029124 for Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review by Laurie Cave, Linda J Milnes and Gretl A McHugh in Journal of Child Health Care

Additional file 3. Data items. Data items extracted for outcomes studies (Supplementary Table 2) and views studies (Supplementary Table 3).

Additional file 5. Views studies’ characteristics and findings. Characteristics and findings of the included views studies (Supplementary Table 5).

Additional file 1. PRISMA checklist. Completed PRISMA checklist (Supplementary Table 1).

Additional file 4. Outcomes studies’ characteristics and results. Characteristics and results of the included outcomes studies (Supplementary Table 4).

Supplemental Material, sj-pdf-4-chc-10.1177_13674935211029124 for Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review by Laurie Cave, Linda J Milnes and Gretl A McHugh in Journal of Child Health Care

Supplemental Material, sj-pdf-1-chc-10.1177_13674935211029124 for Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review by Laurie Cave, Linda J Milnes and Gretl A McHugh in Journal of Child Health Care

Additional file 2. Database search strategies. Search strategies employed for all electronic databases searched.

Supplemental Material, sj-pdf-2-chc-10.1177_13674935211029124 for Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review by Laurie Cave, Linda J Milnes and Gretl A McHugh in Journal of Child Health Care

Supplemental Material, sj-pdf-4-chc-10.1177_13674935211029124 for Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review by Laurie Cave, Linda J Milnes and Gretl A McHugh in Journal of Child Health Care

Supplemental Material, sj-pdf-3-chc-10.1177_13674935211029124 for Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review by Laurie Cave, Linda J Milnes and Gretl A McHugh in Journal of Child Health Care

Additional file 9: Detailed importance ratings results. Detailed importance rating results for Round 1 (Supplementary Tables 6–10), Round 2 (Supplementary Tables 11–15) and Round 3 (Supplementary Tables 16–20).

Additional file 3: Formative categorisation matrix. Formative categorisation matrix developed from the Round 1 survey (Supplementary Table 2).

Additional file 2. Round 1 survey. Round 1 survey administered during the study.

Additional file 4: Recruitment flow charts. Patient recruitment flow chart (Supplementary Fig. 1) and professional recruitment flow chart (Supplementary Fig. 2).

Additional file 7: Round 2 new items. New items generated from panellists’ Round 1 free-text responses and included in the Round 2 survey (Supplementary Table 5).

Additional file 6: Inductively generated main category. Inductively generated main category developed during the content analysis of panellists’ Round 1 free-text responses (Supplementary Table 4).

Additional file 8. Final list of recommendations. Final list of recommendations developed from the Round 3 results.

Additional file 1: Sampling strategy. Sampling strategy used to select panellists for inclusion in the study (Supplementary Table 1).

Additional file 10: Prioritised list of recommendations. Prioritised list of recommendations developed from the Round 3 results (Supplementary Tables 21–25).

The different patient scenarios used in the training. (DOCX 11Â kb)

Pre training questionnaire. (DOC 492Â kb)

Final practice nurse training outline. (DOCX 25Â kb)

Introduction: Osteoarthritis (OA), a degenerative musculoskeletal disease affecting joints, is characterised by pain and poor physical functioning, resulting in poor health related quality of life (HRQoL), emotional well-being and quality of sleep. There are few studies in this area in Taiwan.Aim and objectives: The aim of the study was to investigate how quality of sleep impacts on quality of life in individuals with OA in Taiwan. Specific objectives were to measure quality of sleep; to measure pain, physical function, emotional health and quality of life, and investigate their associations with quality of sleep; to investigate predictors of quality of sleep; and to investigate the association between subjective sleep perceptions and objective sleep outcomes.Methods: In a cross-sectional study, 192 OA patients aged over 40, diagnosed by radiology, fluent in Mandarin or Taiwanese, and residing in the community were recruited from musculoskeletal or rehabilitation outpatient departments in a university hospital in Taiwan from October 2010 to March 2011. A supervised self-completion questionnaire was used to collect data. Four validated Mandarin Chinese versions of questionnaires were used: the Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) to measure pain and physical functioning; the Short Form-36 Health Survey (SF-36) to measure HRQoL; the Hospital Anxiety and Depression Scale (HADS) to measure emotional health; and the Pittsburgh Sleep Quality Index (PSQI) to measure subjective quality of sleep. A sub-sample of 30 individuals was recruited to measure objective sleep quality using an Actigraph wrist monitor. Data were encoded, entered onto computer and analysed with SPSS 16.0 software.Results: Most participants had poor subjective quality of sleep (70.3%), but only 19.8% were taking sleep medication. Global quality of sleep was poorer in participants who were older, female, had a low educational level and had more severe OA. Pain was mild-to-moderate but 47.4% and 25.5% of participants reported no or poor self-management of OA symptoms respectively, and 66.7% never used a walking aid. Poor quality of sleep was associated with pain, poor physical function, anxiety, depression and low scores on the physical and mental components of HRQoL (Pearson correlations 0.27 to 0.87), although most participants did not present problems with anxiety or depression. Regression showed that taking sleep medication, SF-36 role physical and social functioning, high HADS anxiety, a lack of secondary education, high WOMAC pain and taking analgesics significantly contributed to poor global quality of sleep. Path analysis identified four components potentially causing poor quality of sleep: an OA component (pain and physical function), a sleep medication component, a psychological component (anxiety) and a sociodemographic component (low education and poor social functioning), where being female was causally related to the last two. From the objective measurements, participants overestimated the actual time to fall asleep and underestimated their sleep duration and efficiency. Those with poor subjective quality of sleep were woken more often during the night and awake for longer during the night (both p < 0.027).Conclusion: Global quality of sleep was poor in individuals with OA in Taiwan; pain, physical function and emotional health negatively influenced quality of sleep and HRQoL. A hypothesised causal model for quality of sleep had components related not only to OA but also to psychological distress, socio-demographics and taking sleep medication. Objective measurements indicated that sleep disturbance was associated with poor perceived quality of sleep. The study suggests that better support and guidance on self-management of OA in Taiwan is required to allow patients more control over their health, well being and quality of sleep. NA. NA

Pain is a significant health issue in the paediatric oncology population. No study to date exists documenting the experience and characteristics of pain in Lebanese children with cancer. The primary aim of this research study is to identify the characteristics of the painful experience of paediatric cancer pain in Lebanese children and how pain is managed from the child’s own perspectives. A secondary aim is to assess the cross-cultural context of the Adolescent Paediatric Pain Tool (APPT) and the Functional Disability Inventory (FDI). The specific objectives that will be addressed are:1. To describe the demographic and clinical characteristics of Lebanese children experiencing cancer pain at the CCCL including: type of cancer, time since diagnosis, metastasis, and current treatment in outpatients and inpatients.2. To describe the characteristics of pain including: intensity, frequency, duration, location, and quality in Lebanese children with cancer at the CCCL. 3. To identify the major sources of pain (cancer-related, treatment-related, or procedure-related) in Lebanese children with cancer at the CCCL.4. To examine the impact of pain on activities of daily living in Lebanese children with cancer at the CCCL. 5. To determine the factors associated with the intensity of pain in Lebanese children with cancer at the CCCL. 6. To determine how pain is managed in Lebanese children with cancer at the CCCL from their own perspective. To meet the above aims and objectives a cross-sectional correlational design was used. A consecutive sample (n=62) was recruited from the Children Cancer Centre of Lebanon at the American University of Beirut Medical Centre (CCCL-AUBMC). Data was collected through face-to-face interviews using a structured questionnaire. The mean age of participants was 12.3 (SD 2.9). The mother was the primary caregiver in the majority of cases (69.4%). The overall mean intensity rating was 5.06 (SD 1.87) on a 10 cm Word Graphic Rating Scale. The majority (57.4%) of children reported a frequency of “sometimes”. The median duration of pain was two hours per pain episode. The most frequent locations were: the forehead, the abdomen, and lower back. Sensory words were most often used to qualify pain. The functional disability levels were moderate as measured by the FDI. Factors associated with overall pain intensity were: frequency, duration, location, affective words, and treatment-related pain. Time since diagnosis, treatment, surgery in the past, radiotherapy, pain duration and frequency of pain predicted pain intensity in the sample. Children reported receiving pharmacological help from nurses, and non-pharmacological measures from their mothers. The main self-initiated coping strategies used by children were behavioural avoidance and behavioural distraction. The most suggested coping strategy was stressor modification. The majority (56/62) did not expect to experience that much pain from cancer and treatment modalities.Pain assessment and management in Lebanese children with cancer are of concern. Health care professionals, policy makers, and institution stakeholders are urged to take action. None