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This open access book analyzes how sound choices can be made in Dutch health care policies, and shows why they are necessary, urgent, and even inevitable. Analyzing the current functioning and funding of the Dutch health care system, this book shows how three dimensions of sustainability – financial, staffing and societal – are under increasing pressure. This study explores priority setting in health care and calls for well-informed, clear and sometimes uncompromising choices in the allocation of means and personnel. This is necessary in order to maintain accessible and high-quality care for all, and to improve public health. Making balanced choices in health care is of particular importance to vulnerable groups whose voices may not be heard as readily or effectively in the public debate, and whose interests are more easily crowded out. Prioritizing in the domain of public health care is first and foremost a political responsibility, but also one for health care providers across the system and ultimately also for citizens. While this work focuses on the Netherlands, similar processes are at play across the developed economies, making it broadly relevant to policy makers, health care professionals and health care (policy) researchers grappling with the questions surrounding the sustainability of public health care.

This comprehensive book addresses the acute emergencies in neuromuscular disease from a novel perspective, focusing on clinical management and treatment of these disorders rather than the more traditional neuropathology, neurogenetics, and neurophysiology approaches. The book fills the gap in guidelines by providing an evidence-based guidance for the clinical adult or pediatric neurologist confronted by an acutely ill patient in a potentially life-threatening situation. The book is structured according to pathophysiological principles, but each chapter is strictly organised around case vignettes that emphasize clinical relevance allowing the non-specialist to access complex scientific backgrounds. The electronic supplementary material and multimedia are provided as an integral tool to facilitate accessibility and understanding of a notoriously difficult field of neurology. Finally, the role of patients, who are increasingly involved in many management decisions, is highlighted in a chapter on ethical issues discussing withholding or withdrawing life-sustaining therapy, patient end-of-life values, wishes and preferences, and on advanced directives. The publication is aimed equally at the non-specialist neurologist in frontline clinical practice confronted by a rare disorder needing immediate management decisions, at the clinical specialist referring for guidance in specific management aspects, and at the specialist researcher keen to maintain clinic relevance.

There are over 600 neuromuscular disorders and the variability of these syndromes can leave clinicians feeling as if they are lost in a maze as they seek to diagnose and manage patients. This book addresses this problem by using the case-history and symptom manifestation as a starting point for the diagnostic process in adult patients, mimicking the situation in the consultation room. For each case, diagnostic tools, disease pathogenesis, prognosis and treatment options are discussed, along with rare manifestations and differential diagnoses. Symptoms, signs and syndromes are cross-linked to help the reader navigate the variety of disorders. Accompanying tables give a broader picture of the manifestations of a particular disease within the landscape of neuromuscular disorders. This highly-illustrated book, with accompanying videos, will aid neurologists at all levels, internists, geneticists, rehabilitation physicians and researchers in the field, as they seek to familiarize themselves with this complex range of disorders.