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Patients with unmet needs will continue to increase as no viable nor adequate treatment exists. Meanwhile, healthcare systems are struggling to cope with the rise of patients with chronic diseases, the ageing population and the increasing cost of drugs. What if there is a faster and less expensive way to provide better care for patients using the right digital solutions and transforming the growing volumes of health data into insights? The increase of digital health has grown exponentially in the last few years. Why is there a slow uptake of these new digital solutions in the healthcare and pharmaceutical industries? One of the key reasons is that patients are often left out of the innovation process. Their data are used without their knowledge, solutions designed for them are developed without their input and healthcare professionals refuse their expertise. This book explores what it means to empower patients in a digital world and how this empowerment will bridge the gap between science, technology and patients. All these components need to co-exist to bring value not only to the patients themselves but to improve the healthcare ecosystem. Patients have taken matters into their own hands. Some are equipped with the latest wearables and applications, engaged in improving their health using data, empowered to make informed decisions and ultimately are experts in their disease(s). They are the e-patients. The other side of the spectrum are patients with minimal digital literacy but equally willing to donate their data for the purpose of research. Finding the right balance when using digital health solutions becomes as critical as the need to develop a disease-specific solution. For the first time, the authors look at healthcare and technologies through the lens of patients and physicians via surveys and interviews in order to understand their perspective on digital health, analyse the benefits for them, explore how they can actively engage in the innovation process, and identify the threats and opportunities the large volumes of data create by digitizing healthcare. Are patients truly ready to know everything about their health? What is the value of their data? How can other stakeholders join the patient empowerment movement? This unique perspective will help us re-design the future of healthcare - an industry in desperate need for a change.

Rheum for Improvement is a physician's account of how corporate medicine has transformed health care from a human interaction between a patient and their physician into a business transaction between a consumer and a provider. It is also a personal story of how frivolous legal action triggered that physician to become an outspoken advocate for health-care reform. It will be of interest to anyone who interacts with our health-care system, but especially physicians, who must navigate bureaucratic obstacles on a daily basis.

Recent surveys have found that the vast majority of the public believes that mental illness is real and treatable. And yet, fewer than half of people with diagnosable mental illnesses get treatment in any given year, and of those who do, only half adhere to it.What accounts for the disconnect? According to Daniel Morehead, M.D., unchecked critiques of psychiatry -- that it is impossible to define mental illness, that the neurobiology of major mental illnesses is unknown, that patients are overdiagnosed and overmedicated -- has led to a public perception that mental health treatment is profoundly flawed.In Science Over Stigma, Dr. Morehead argues that it is time for a full-throated defense of mental health treatment, and that it falls to everyone, from medical and mental health professionals to the general public, to advocate on its behalf.In accessible terms this book sets forth a definition of mental illness, candidly discussing what is known and what remains unknown, and then describes its prevalence, social and physical consequences, and a range of treatments. Each chapter includes advocacy tips that help readers translate the information they've learned into the means for constructive dialogue.By clearly laying out the science behind mental illness and its treatment and vividly illustrating how common it is -- affecting patients, their friends and family, and mental health professionals themselves -- this volume seeks to turn the recognition of psychiatric illness into practical behavior, destigmatizing both the illness itself and the search for treatment.

Overcoming fear, ambivalence, and inertia to act on behalf of self or others can be difficult even for mental health clinicians who are accustomed to helping patients overcome challenges. A Psychiatrist's Guide to Advocacy explores the diverse definitions of advocacy and helps to identify methods and opportunities for advocacy by mental health practitioners. The editors argue for a greater culture of advocacy among psychiatrists in order to effect broad and lasting systemic and structural change. A noteworthy example is the push for insurance coverage parity between mental health and other medical care. However, legislative advocacy is just one of the many types explored in the book; advocacy takes many forms, including patient-level advocacy, organizational advocacy, education and research as advocacy, and media-targeted advocacy. Also addressed are specific issues of advocacy for special populations, including children and families, older adults, LGBTQ patients, and veterans. Taken together, these chapters represent a practical toolkit for mental health advocacy in its myriad forms.In prose both compelling and accessible, the volume • Identifies five of the most pressing systemic problems in mental health care (lack of access to quality payer-covered, evidence-based mental health care; the psychiatry workforce shortage; lack of parity for mental health care compared with other forms of health care; the stigma against both consumers and providers of treatment for mental disorders, including substance use disorders; and high rates of physician burnout) and explains how advocacy at different levels can address these issues. • Describes the essential factors needed for effective advocacy, with emphasis on pathways to mentorship, providing examples of what integrating advocacy into the psychiatrist's career path looks like and identifying strategies to encourage lifelong advocacy• Delineates the advocacy needs of diverse patient populations, including children, families, and older adults; LGBTQ, non-native, and substance-using patients; veterans and military service members; and more• Includes four substantive interviews with advocacy role models who embody and embrace the advocate's mission, expressed in actions and on platforms that are diverse and illustrative• Includes learning objectives that tell readers what they can expect to master by the end of each chapter, allowing for focused reading and easy review A Psychiatrist's Guide to Advocacy is a call for action and a blueprint for change, providing clinicians with the foundation for recognizing their opportunities and embracing their roles as advocates.

Women's Health Advocacy brings together academic studies and personal narratives to demonstrate how women use a variety of arguments, forms of writing, and communication strategies to effect change in a health system that is not only often difficult to participate in, but which can be actively harmful. It explicates the concept of rhetorical ingenuity—the creation of rhetorical means for specific and technical, yet extremely personal, situations. At a time when women's health concerns are at the center of national debate, this rhetorical ingenuity provides means for women to uncover latent sources of oppression in women's health and medicine and to influence matters of research, funding, policy, and everyday access to healthcare in the face of exclusion and disenfranchisement. This accessible collection will be inspiring reading for academics and students in health communication, medical humanities, and women's studies, as well as for activists, patients, and professionals.

Visions: The Inspirational Journeys of Epilepsy Advocates contains the stories of 50 people who have answered the call to advocate on behalf of those with epilepsy. They are people with epilepsy or members of their community, motivated to make a positive impact through education and awareness, empowerment, fundraising, healthcare and research, and organizational advocacy. Shining a light on well-known issues as well as rare forms of epilepsy and SUDEP (Sudden Unexplained Death in Epilepsy), these advocates depict their journeys through both prose and photographs. Along with stories that depict the advocates'journeys, photographs show these advocates and their work in action. Visions: The Inspirational Journeys of Epilepsy Advocates empowers people affected by epilepsy and inspires continued advocacy for what has been a misunderstood and underfunded neurological disorder.

In the last decades, the importance of performance management in healthcare organizations has progressively increased. Patient organizations can play a strategic role by providing peer support and education, filling service provision gaps within public healthcare. As experts of their own pathologies, organized patients can aid research and development projects and provide the policymakers with input from the patients'perspectives. Despite these advantages, patient organizations still face criticalities including low political attention at a national and peripheral level, scarce management skills, planning, control, fundraising, and professionalism. Managing Patients'Organizations to Improve Healthcare: Emerging Research and Opportunities delivers emerging research that raises awareness about the contribution of patient organizations in the healthcare process within regulatory authorities, public, and healthcare managers and improves patients'managerial and healthcare professional skills for more efficient and effective processes of care. Featuring coverage on a broad range of topics such as organizational management, patient value, and quality healthcare, this book is ideally designed for policymakers, healthcare administrators, medical practitioners, researchers, academicians, students, and industry professionals seeking current research on public policy management and healthcare management.

Patient advocacy for all human beings is a fundamental ideal as it assures the patient their rights and their safety when admitted to a healthcare facility. Nursing as a healthcare profession is complicated by the fact that it is concerned with vulnerable human beings, and ethical principles which need to be considered when providing treatment, or care for the patient. The logic for this book is twofold, the first justification for authoring this text was to enlighten nurses and other healthcare professionals to reflect on a dilemma which affects patient care and safety. A quandary in the literature which has been named a “Theory-Practice-Ethics gap” (Mortell et al, 2013). Patient safety and high quality of care are fundamental facets related to all healthcare practices. When people are admitted to hospital, they just presume that they will receive safe, quality treatment from healthcare professionals who have a duty of care. Society does not expect to be put at risk or be harmed, since the principal goal of healthcare is to augment care, safety and wellbeing, and so optimize the quality of people's lives (Leape, 2015; Wilson et al, 2009). The second justification for authoring this book, was to present an important new theory and model for patient advocacy to the professional healthcare community. The generated theory, states that, if healthcare professionals incorporate their religious, cultural and family values into their humanitarian ideals, they will be effective as patient advocates. The advocacy model which was generated the following components of advocacy, “Vulnerable-acy”, which was advocacy for the vulnerable, “Familial-acy”, which was advocacy that a family member would provide to a loved one, “Cultural-acy” was linked to culture, such as ethnic awareness and sensitivity, “Religion-acy” was coupled with a Muslim's Islamic holy obligations, however, this concept can be adapted for any religion and religious beliefs and “Human-acy”, which identified a person's humanity and must be provided by any member of the human race. The theory and model is therefore relevant for all healthcare professionals and providers, as it has a neoteric Islamic perspective that will hopefully guide nurses and health care professionals to reflect as advocates for their patients and the care that they provide.

Diese explorative Studie ist ein Beitrag zur Erprobung einer ärztlichen Beratung im Sinne eines Advance Care Planning. Im Fokus der Untersuchung steht die Perspektive von geriatrischen Patienten mit fortgeschrittener Herzinsuffizienz. Herzinsuffizienz ist eine altersassoziierte, lebenslimitierende Erkrankung mit hoher Public Health-Relevanz. Die Analyse der Beratungsgespräche zur gesundheitlichen Vorausplanung sowie Interviews mit Patienten und Angehörigen geben Aufschluss über Wahrnehmung und Auswirkungen der Vorausplanungsgespräche. Förderliche und hinderliche Aspekte in der ärztlichen Beratung werden herausgearbeitet. Die Typenbildung verdeutlicht wie Beratungsgespräche als Impuls in der individuellen Vorausplanung wirken.

Documenting the success and result of patient navigation programs, this book represents the culmination of years of research and practical experience by scientific leaders in the field. A practical guide to creating, implementing, and evaluating successful programs, Patient Naviation - Overcoming Barriers to Care offers a step-by-step guide towards creating and implementing a patient navigation program within a healthcare system. Providing a formal structure for evaluation and quality improvement this book is an essential resource for facilities seeking patient navigation services accreditation.

As the healthcare market moves toward an era of patient engagement, population health and patient advocates, practitioners need a practical how-to guide that helps facilitate their teaching with patients and family members on not just writing down or accumulating a personal health record, but an interactive process that converts the personal health information into a data-driven decision-making process. Through numerous forms, templates and real life examples, the author provides the tools to help patients gather critical health information while minimizing their exposure to medical and financial errors.

This clear-sighted reference examines the public health dimensions of labor and sex trafficking in the United States, the scope of the crisis, and possibilities for solutions. Its ecological lifespan approach globally traces risk and protective factors associated with this exploitation, laying a roadmap towards its prevention. Diverse experts, including survivors, describe support and care interventions across domains and disciplines, from the law enforcement and judicial sectors to community health systems and NGOs, with a robust model for collaboration. By focusing on the humanity of trafficked persons, a public health paradigm broadens our understanding of and ability to address trafficking while adding critical direction and resources to the criminal justice and human rights structures currently in place. Among the topics covered:Children at Risk: Foster Care and Human TraffickingLGBTQ Youth and Vulnerability to Sex Trafficking

Too many Americans die each year as a result of preventable medical error—mistakes, complications, and misdiagnoses. And many more of us are not receiving the best care possible, even though it's readily available and we're entitled to it. The key is knowing how to access it. The Patient's Playbook is a call to action. It will change the way you manage your health and the health of your family, and it will show you how to choose the right doctor, coordinate the best care, and get to the No-Mistake Zone in medical decision making. Leslie D. Michelson has devoted his life's work to helping people achieve superior medical outcomes at every stage of their lives. Michelson presents real-life stories that impart lessons and illuminate his easy-to-follow strategies for navigating complex situations and cases. The Patient's Playbook is an essential guide to the most effective techniques for getting the best from a broken system: sourcing excellent physicians, selecting the right treatment protocols, researching with precision, and structuring the ideal support team. Along the way you will learn: Why having the right primary care physician will change your lifeThree things you can do right now to be better prepared when illness strikesThe ten must-ask questions at the end of a hospital stayHow to protect yourself from unnecessary and dangerous treatmentsWays to avoid the four most common mistakes in the first twenty-four hours of a medical emergency This book will enable you to become a smarter health care consumer—and to replace anxiety with confidence.

Advocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands'nothing about us, without us!'and promotes self-advocacy and self-reflection.Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.

In this'enlightening'(Jane Brody, New York Times) book, Harvard Medical School physician Angelo E. Volandes offers a solution to traumatic end-of-life care: talking, medicine's oldest tool.There is an unspoken dark side of American medicine--keeping patients alive at any price. Two thirds of Americans die in healthcare institutions, tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones.Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care. It might be the most important conversation you ever have.

Written by a leading healthcare academic and an accredited international business coach, this book takes a new approach to one of the most crucial issues in healthcare – how to care for patients appreciatively, responsively and compassionately. In the light of the findings of the Francis Report (2013), and at a time when healthcare services are under enormous pressure, there is a clear and urgent need for such a book. Despite the challenges of ill health, the authors demonstrate that the opportunity is there for any healthcare practitioner to draw out what the patient needs and desires, in line with the patient's own values, purposes and beliefs. This approach seeks to alleviate suffering and allows the patient to be more empowered and motivated to change, discovering choice and possibility in times of adversity. In this way, the practitioner can help the patient increase their own resilience and resourcefulness. At the same time, the practitioner discovers their own ability to self-care and self-manage. Aimed at healthcare students and practitioners at all levels, Appreciative Healthcare Practice will provide a valuable and supportive learning resource for a wide range of individuals involved in caring.

Clinical Oncology and Error Reduction fills a gap - the lack of a single volume on medical error in the vast field of cancer care - that has existed since a 1999 Institute of Medicine's report introduced the term ‘medical error'as a topic for doctors and patients alike. The volume, edited by Antonella Surbone, M.D., a clinical oncologist and Michael Rowe, Ph.D., a medical sociologist, includes chapters written by experts on the topic including physicians, nurses, patients, and advocates, and covers a wide range of topics essential to an understanding of the unique character, challenges, and needed responses to the risk, incidence, and aftermath of medical error in the diagnosis, treatment, and aftermath of treatment for cancer. Clinical Oncology and Error Reduction will serve as the standard for framing the discussion of error in the field for oncologists, epidemiologists, nurses, healthcare administrators, researchers, and scholars. An indispensable handbook for all clinical oncologists, their staff, nurses, and oncology residents and fellows, this book: Contains practical information for immediate clinical application Covers topics such as patient safety, error prevention, quality improvement, errors disclosure and apology, and the impact of errors on patients and doctors Each chapter contains special'take home'points that highlight issues of particular clinical relevance and application Prepared by an expert, multidisciplinary, international team of physicians, nurses, researchers, hospital administrators, bioethicists, patients and patient advocates Dr. Surbone shared with ASCO Connection her insights about patient safety and medical errors and offered a glimpse into the history that led to this new book:https://connection.asco.org/magazine/features/opening-dialogue-about-medical-errors

15 Keys to Fast Track Results and Emotional Fulfillment NOTICE: Be advised that reading this book can change your life. The authors take full responsibility for positive side-affects. The Event: The unthinkable has happened. We all have adversity, but this is different. It?s not a tap on your bumper; this is a head-on collision. The Event can be a diagnosis, medical error, natural disaster, childhood trauma, and so forth. The Need: You learned something critical that other people need to know, or that you feel compelled to act on. The rose colored glasses are off, offering a different viewpoint on family, health, security or even politics. The Call: Human reaction is to file trauma away in a drawer marked private?. Advocacy means that you will not only open that drawer, but you will relive the Event often for the benefit of others, a Humane reaction. It isn't easy. Healing is a gradual process. If we nurture our natural courage that sustains us, we can begin to transform even the most impossible of circumstances into survival. You can't change the Event, but you can make something good come out of it.

Der Europäische Gerichtshof hat mit seiner Rechtsprechung den Weg zur zahnärztlichen Behandlung gegen Kostenerstattung im europäischen Ausland geebnet. Jetzt hat der europäische Gesetzgeber die Patientenrichtlinie (2011/24/EU) erlassen, mit der er die grenzüberschreitende Gesundheitsversorgung regelt. Katja Brauße untersucht deren praktische Auswirkungen auf die Vertragszahnärzte. Daneben stellt sie die Frage, inwieweit die Patientenrichtlinie die Ablösung des – für die gesetzliche Krankenversicherung fundamentalen – Sachleistungsprinzips durch die Selbstzahlung des Patienten (ggf. mit späterer Kostenerstattung) begünstigt. Die Autorin widmet sich aber noch einem weiteren entscheidenden Problem. Denn die Richtlinie wirft die Frage nach der Legitimation europäischer gesundheitspolitischer Rechtsetzungskompetenz auf.

Patient organizations and social health movements offer one of the most important and illuminating examples of civil society engagement and participation in scientific research and research politics. Influencing the research agenda, and initiating, funding and accelerating the development of diagnostic tools, effective therapies and appropriate health-care for their area of interest, they may champion alternative, sometimes controversial, programs or critique dominant medical paradigms. Some movements and organizations advocate for medical recognition of contested illnesses, as with fibromyalgia orADHD, while some attempt to'de-medicalize'others, such as obesity or autism.Bringing together an international selection of leading scholars and representatives from patients'organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. It takes stock of the key findings of the research conducted in the field over the past two decades and addresses emerging problems and future challenges concerning the interrelations between health movements and patient organisations on the one hand, and biomedical research and research policies on the other hand. Combining empirical case studies with conceptual discussion, the book discusses how public participation can contribute to, as well as restrict, the democratization of scientific knowledge production.This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge, medical ethics or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.

Questioning Protocol is a healthcare solutions book from a mom's perspective. Now, everyone can use the same techniques to help cope with a health care crisis. Randi Redmond Oster shares the tips, tools and tactics from her corporate experience, engineering skills and compassion for her son to navigate the broken health care system. Learn how she maintains control when her healthcare crisis seems overwhelming. Discover how she creates a high performing healthcare team focused on her son. Understand how she manipulates the hierarchy of the healthcare system to help improve her son's care. See how she finds ways to feel grateful, even when her world seems upside down.

Patient Confidential will teach readers to be active players in their healthcare and to get the most out of the healthcare system with the least amount of risk. It prepares readers for medical office visits, surgeries, rehabilitation, insurance and more. Patient Confidential also functions as a handbook readers can consult before every encounter with the healthcare system.

Promising Care: How We Can Rescue Health Care by Improving It collects 16 speeches given over a period of 10 years by Donald M. Berwick, an internationally acclaimed champion of health care improvement throughout the course of his long and storied career as a physician, health care educator and policy expert, leader of the Institute for Healthcare Improvement (IHI), and administrator of the Centers for Medicare & Medicaid Services. These landmark speeches (including all of Berwick's speeches delivered at IHI's annual National Forum on Quality Improvement in Health Care from 2003 to 2012) clearly show why our medical systems don't reliably contribute to our overall health. As a remedy he offers a vision for making our systems better – safer, more effective, more efficient, and more humane. Each of Berwick's compelling speeches is preceded by a brief commentary by a prominent figure in health care, policy, or politics who has a unique connection to that particular speech. Contributors include such notables as Tom Daschle, Paul Batalden, and Lord Nigel Crisp. Their commentaries reflect on how it felt to hear the speech in the context in which it was delivered, and assess its relevance in today's health care environment. The introduction is by Maureen Bisognano, CEO of Institute for Healthcare Improvement, and author of Pursuing the Triple Aim. Praise for previous books by Don Berwick Curing Health Care:'The book is an easy and affirming read for anyone who is familiar with and has used the TQM teachings of Dr. Joseph M. Juran and Dr. W. Edwards Deming and would be a simple and informative introduction to the concepts for anyone who has been hearing about TQM but has no idea what it is all about and wants to know more.'—Permanent Fixes (blog)'Donald Berwick is the most clearly heard evangelist of applying industrial methods of continuous quality improvement in health care.'—Annals of Internal Medicine Escape Fire:'With an effective blend of common sense, real-life stories, persuasive metaphors, and out-of-the-box thinking, Dr. Berwick's presentations make for fascinating reading for anyone interested in improving America's $1.7 trillion health care system.'—Piper Report'Anyone interested in change in the healthcare system would enjoy this book. In degree programs, the various speeches would be useful for discussion in a health policy readings course.'—The Annals of Pharmacotherapy

Global Child Health Advocacy: On the Front Lines inspires and equips child health professionals to join together and work for positive change. This first-in-its-field resource brings you up-close accounts of successful initiatives straight from the front lines. If offers an inside look on the innovative strategies, tools, and techniques today's advocates use to promote health, deliver targeted care, and implement policies to improve children's lives. A multi-national editorial team assembles engaging stories chronicling the experiences of top-tier advocates in every corner of the globe:- Improving access to care in Nigeria- Creating a public child medical insurance system in China- Haemophilus influenzae vaccine advocacy in Guatemala- Implementing a national immunization program in the U.S.- Community partnerships for polio eradication in India- Malnutrition crisis intervention in Niger- HIV advocacy in South Africa- Reducing neonatal mortality in Chile- Campaigning against tobacco in the western Pacific- Preventing diarheal diseases in Peru- And much more!

This step-by-step guide helps people form and operate a support group for those who are undergoing treatment for cancer.

I Several years ago, when the Carter administration announced that it would support congressional action to end the public fund­ ing of abortions, the President was asked at a press conference whether he thought that such a policy was unfair; he responded,'Life is unfair.'His remarks provoked a storm of controversy. For other than those who, for principled reasons, opposed abor­ tion on any grounds, it seemed that the President's comments were cruel, violating what was thought to be an American com­ mitment to providing equal access to health services to all citi­ zens, regardless of their capacity to pay. Those sentiments had, in fact, been reflected in public opinion polls that had, for at least three decades, indicated that Americans supported the propo­ sition that the government should guarantee health care to all. Ultimately, those beliefs had been translated into the oft-ex­ 1 pressed political demand for a one-class system of health care. This commitment to equality is rather remarkable. American society evidences a striking willingness to tolerate vast inequal­ ities with regard to income and wealth. While it guarantees ed­ ucation to all children, there is not even a pretense that the children of the wealthy and the children of the poor ought to get precisely the same kind of schooling. While some commitment'Hazel Erskine.'The Polls: Health Insurance,'Public Opinion Quarterly, XXXIX (Spring, 1975), 128-143.

Taking an interprofessional focus to reflect modern practice, this book introduces the complexity of balancing rights and risks. It helps readers to understand and evaluate their own values, knowledge and power in order to provide safer, more effective care for those they work with, including vulnerable adults and children.

Become a Take-Charge Patient with insider information from 200 medical professionals. Award-winning author empowers you to be well informed and proactive in your own medical care. Prevent medication errors, find the right doctor, prepare for appointments, make the most of the precious minutes with your doctor, form a collaborative relationship with your doctor, get discounted medication and medical care, manage your health insurance, and more. When she developed debilitating, chronic pain, author Martine Ehrenclou used every strategy in her new book. She went from advocate for others to advocate for herself. After eleven doctors failed to diagnose correctly, Martine found her own diagnosis and the correct surgeon to treat her. She is now pain free.

This issue of Perioperative Nursing Clinics, Guest Edited by Terri Goodman, PhD, RN, CNOR, will focus on Nurse Advocacy, with article topics including: the Nurse advocate; Patient right to safety; Advocacy through public policy; Advocating for patient families; Advocating for Laryngectomy Patients; Advocating for cancer patients; and Advocating for the patient in industry.

The much-needed book for anyone with a loved one facing a serious illness. It is the book that's a bible for how to make the potentially life-or-death decisions that every medical advocate, and every patient, must grapple with—especially now, as health care becomes ever more complicated. It is the practical blueprint for how to be a successful medical advocate. When Gerri Monaghan's husband, Brian, then a fifty-nine-year-old lawyer at the top of his game, got the news that all of us dread—a diagnosis of brain tumors caused by Stage IV melanoma with a prognosis of three to six months to live—she knew that this was a challenge the two of them would fight together. Brian brought his enormous courage, attitude, and reserves of humor, and Gerri, with dogged determination, stood up again and again for what they needed—tirelessly researching options, reaching out to friends, family, and anyone who could help, resisting the status quo, and always thinking in terms of “we.”Together they tell their story, back and forth, punctuated throughout by Gerri's top 50 tips for how to be an advocate: #1 Trust your intuition. #6 Create a battle plan. #15 Get copies of records. #26 Make doctors speak in a language that you understand. #33 Don't schedule surgery during the holidays. #49 Remember, this is not a dress rehearsal.

The Chapter Leader's Guide to Patient Rights: Practical Insight on Joint Commission Standards Jean S. Clark, RHIA, CSHA Quick, concise standard explanations for patient rights chapter leaders The Chapter Leader's Guide to Patient Rights breaks down the Joint Commission's patient rights requirements into easy to understand solutions to meet the challenges of these complex standards. You get simplified explanations of the chapter's key components along with communication techniques to help foster a strong and successful partnership between survey coordinator and chapter leader. Plus, to make staff training easy, this guide includes a downloadable PowerPoint® presentation highlighting key compliance takeaways. Also, receive bonus tools which include: Rights and Responsibilities of the Individual and Key Player OutlineRights and Responsibilities of the Individual Tracer ToolPatient Rights Direct Impact Standards ListChapter Captain Checklist Benefits ofThe Chapter Leader's Guide to Patient Rights:Keys to creating a culture of providing patient care, treatment, and services in a way that is collaborative with the individual patientTips and suggestions for developing and implementing policies for selected elements of performanceGuidance on communication techniques to inform patients of their individual rights and responsibilitiesTools for proper delegation of roles and responsibilities to appropriate staffA responsibility checklist for chapter leaders to ensure compliance with patient rights standardsWhat's inside:Interpretation of the newly revised Joint Commission patient-centered communication standardSimplified explanation of the requirements under the patient rights chapterStrategies to help patients participate in their own care decisionsDescription of informed consent, who participates and how to gain it from patients in a compliant wayEasy-to-implement services your organization can provide for patients to inform them of their rightsTable of Contents Part I: Patient Rights in the Organization The Rights and Responsibilities of the IndividualHow Does this Chapter Affect the Organization as a Whole?What is Its Impact on Leadership and Administration?Who Owns the Requirements of this Chapter? Part II: Communication and Impact of Patient Rights Getting OrganizedDuties of the Chapter CaptainCommunication to Physicians and StaffCommunication to PatientsThe Impact of this ChapterPart III: Implementing Patient Rights Designing and Implementing PoliciesThe Patient HandbookThe Medical StaffOther Caregivers, Nurses, and StaffThe Board and Senior LeadershipTracers and Chart ReviewsImpact on Patient Care Who will benefit? CPHQ, CSHA, accreditation coordinators, accreditation specialists, survey coordinators, Joint Commission survey coordinators Earn Continuing Education Credits National Association for Healthcare Quality (NAHQ) This activity is pending approval by the National Association of Healthcare Quality for CE credits.

Pink ribbon paraphernalia saturate shopping malls, billboards, magazines, television, and other venues, all in the name of breast cancer awareness. In this compelling and provocative work, Gayle Sulik shows that though this'pink ribbon culture'has brought breast cancer advocacy much attention, it has not had the desired effect of improving women's health. It may, in fact, have done the opposite. Based on eight years of research, analysis of advertisements and breast cancer awareness campaigns, and hundreds of interviews with those affected by the disease, Pink Ribbon Blues highlights the hidden costs of the pink ribbon as an industry, one in which breast cancer has become merely a brand name with a pink logo. Indeed, while survivors and supporters walk, run, and purchase ribbons for a cure, cancer rates rise, the cancer industry thrives, corporations claim responsible citizenship while profiting from the disease, and breast cancer is stigmatized anew for those who reject the pink ribbon model. But Sulik also outlines alternative organizations that make a real difference, highlights what they do differently, and presents a new agenda for the future.

Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients'and consumers'roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.

This edited volume of original chapters brings together researchers from around the world who are exploring the facets of health care organization and delivery that are sometimes marginal to mainstream patient safety theories and methodologies but offer important insights into the socio-cultural and organizational context of patient safety. By examining these critical insights or perspectives and drawing upon theories and methodologies often neglected by mainstream safety researchers, this collection shows we can learn more about not only the barriers and drivers to implementing patient safety programmes, but also about the more fundamental issues that shape notions of safety, alternate strategies for enhancing safety, and the wider implications of the safety agenda on the future of health care delivery. In so doing, A Socio-cultural Perspective on Patient Safety challenges the taken-for-granted assumptions around fundamental philosophical and political issues upon which mainstream orthodoxy relies. The book draws upon a range of theoretical and empirical approaches from across the social sciences to investigate and question the patient safety movement. Each chapter takes as its focus and question a particular aspect of the patient safety reforms, from its policy context and theoretical foundations to its practical application and manifestation in clinical practice, whilst also considering the wider implications for the organization and delivery of health care services. Accordingly, the chapters each draw upon a distinct theoretical or methodological approach to critically explore specific dimensions of the patient safety agenda. Taken as a whole, the collection advances a strong, coherent argument that is much needed to counter some of the uncritical assumptions that need to be described and analyzed if patient safety is indeed to be achieved.

Despite a policy focus on involving patients in health care and increasing patient autonomy, much covert coercion of patients takes place in everyday healthcare. This book, by a leading patient activist, examines for the first time how the patient movement, which works to improve the quality of healthcare, can actually be considered an emancipation movement when led by its radical elements. In this highly original book the author argues that radical patient groups and individual activists who repeatedly challenge or oppose some standards in healthcare, can be seen as working in the direction of freeing patients from coercion and from its associated injustice and inequality. Combining new academic theory with rich empirical evidence, the book explains how looking at healthcare from an emancipatory perspective could improve its quality as patients experience it. It will appeal to health professionals, managers, patient activists, policy makers and others concerned with the quality of healthcare.

The reassuring bromides of'chicken soup for the soul'provide little solace for nurses—and the people they serve—in real-life hospitals, nursing homes, schools of nursing, and other settings. In the minefield of modern health care, there are myriad obstacles to quality patient care—including work overload, inadequate funds for nursing education and research, and poor communication between and within the professions, to name only a few. The seventy RNs whose stories are collected here by the award-winning journalist Suzanne Gordon know that effective advocacy isn't easy. It takes nurses willing to stand up for themselves, their coworkers, their patients, and the public.When Chicken Soup Isn't Enough brings together compelling personal narratives from a wide range of nurses from across the globe. The assembled profiles in professional courage provide new insight into the daily challenges that RNs face in North America and abroad—and how they overcome them with skill, ingenuity, persistence, and individual and collective advocacy at work and in the community. In this collection, we meet RNs working at the bedside, providing home care, managing hospital departments, teaching and doing research, lobbying for quality patient care, and campaigning for health care reform. Their stories are funny, sad, deeply moving, inspiring, and always revealing of the different ways that nurses make their voices heard in the service of their profession. The risks and rewards, joys and sorrows, of nursing have rarely been captured in such vivid first-person accounts. Gordon and the authors of the essays contained in this book have much to say about the strengths and shortcomings of health care today—and the role that nurses play as irreplaceable agents of change.

Therapy with Children is a vital resource for any practitioner navigating the legal minefield of working with children and young people. Prioritising the needs of the child as the client, the authors explore the legal and professional dimensions of working therapeutically with children. This long-awaited second edition responds to significant shifts in policy and the revised text additionally addresses: - the importance of confidentiality in establishing a working alliance and maintaining a secure environment for therapy with children - the conflicting pressures faced by therapists concerning issues of parental involvement and children at risk - changes in light of the Children Act 2004, Mental Health Act 2007, and the Axon case - changes in the organisation of child protection - increased provision of therapeutic services for children, particularly in school settings, and the growing numbers of counsellors working with children - the relevance of psychoanalysis in development of child-focused therapy, as well as reference to other therapeutic approaches to child therapy - the urgent case for developing ′confidential spaces′ within therapeutic services for children and young people. Illustrated with vivid case examples, Therapy with Children provides stimulating reading and is an excellent source of reference for all psychotherapists and counsellors working with children. The issues here will also be of direct relevance to youth workers, teachers, social workers and health professionals.

'THE guide for getting the best life possible for your child...invaluable.'-Dr. Phil McGraw As an individual rights attorney and parent of an autistic child herself, Areva Martin shares clear, step-by-step instructions on how parents can assert themselves-with doctors, teachers, school officials, neighbors, or even family members-and get the best results for their child. Practical and inspiring, with personal stories from other parents of autistic children, The Everyday Advocate offers real-world actions that work and teaches parents the skills to become better advocates for their children.

The primary purpose of this book is to empower readers and encourage them to become proactive consumer-patients. This book isn't an attempt to be politically correct, but is dedicated to providing tools that readers can put to use when they encounter challenges when making their best efforts to navigate their way into, through and out of the maze that has become our healthcare system. Americans are concerned more about healthcare than the mortgage crisis, credit card debt, rising food prices, or losing money in the stock market. Now is the time to get educated, find out what the future might hold, and get active in the decision-making that surrounds your healthcare. With physicians making misdiagnoses between fifteen and twenty percent of the time, the examination room treadmill speeding up, and emergency rooms stressed out and overcrowded, here is a wakeup call that encourages the adoption of a more responsible, proactive, energetic, and consumer oriented attitude when it comes to personal and family health - before it is too late.

The Power of Two has the power to change lives. This much-needed book combines an inspiring story of hope and survival with a compelling practical blueprint for how to be a loved one's advocate. And if ever there was a time when a chronically ill or disabled person needs an advocate, that time is now, with HMOs, the medical establishment, and patients in a chaotic free-for-all.Brian Monaghan, a fifty-nine-year-old lawyer at the top of his game, got the news that all of us dread—Stage IV melanoma had metastasized to his brain; he was given three to six months to live. That night Brian and his wife Gerri made a pact:'We are going to love and laugh and fight this. And we are going to win.'That was ten years ago. Between Brian's courage and attitude, and Gerri's determination to stand up for him—tirelessly researching options, reaching out to friends, family, and anyone who could help, resisting the status quo, and always thinking in terms of'we'—they did win. This book is the story of that journey, told back and forth between them. utterly riveting, inspiring, and uplifting, it is a road map for everyone facing a tough medical challenge, and for the people who love them.Along the way, Gerri lists her top 50 tips for how to be an advocate: #1 Trust your intuition. #6 Create a battle plan. #15 Get copies of records. #26 Make doctors speak in a language that you understand. #49 This is not a dress rehearsal.

Because health care works best when patients assume greater responsibility for their own health, community outreach and patient education have taken on increased importance. Building Healthy Communities through Medical-Religious Partnerships describes an innovative approach to the development of community-based health education and patient advocacy programs targeted at the prevention and management of disease. Partnerships between health systems and religious congregations, the authors show, can be remarkably successful at bringing appropriate care to people who are often difficult to serve. The book offers valuable guidance for religious and medical leaders interested in developing programs in their congregations and communities. It includes practical and accessible information for establishing health education programs, identifies additional resources that can be obtained from local and national organizations, and discusses a range of medical topics. It also outlines how to train volunteers to assist others in navigating our complex health system. This revised and expanded edition of Building Healthy Communities through Medical-Religious Partnerships includes several new chapters along with descriptions of five medical-religious partnership models. Special attention is given to the challenges and opportunities presented by our aging and increasingly diverse population.

Millions of Americans suffer from indifferent, outdated health care; an estimated 40,000 incidents of medical harm happen every day. The good news is that you can prevent this from happening to you or a family member. Better yet, you can find the very best care in the world. Patrick Malone's sensible advice and real-life anecdotes will inspire you to take charge of your own health care, make the best choices, and avoid serious harm. With the'Necessary Nine'-- the essential steps to finding the best medical care -- The Life You Save offers vital information such as: The single most important question you can ask your doctor When to know you have symptoms your doctor should not shrug off Checklists to help you get out of the hospital in one piece Where to locate the best surgeons and safest hospitals.

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Getting it Right for Children is the story of one pediatrician, determined to make a difference in the lives of children. Getting it Right for Children is the story of one pediatrician, determined to make a difference in the lives of children. The book follows the physician as he witness's inequities in the health care system, and involves the reader in his journey to enact legislation for better access to health care for children. Stephen Berman, MD, FAAP, is one pediatrician who made a difference and inspires others to do the same.

Medical Sociology is among the largest and first subdisciplines in Sociology. It is an area of ongoing work, advancing theory, method and our substantive understanding of social life. This series brings together the newest issues and most current concerns in Medical Sociology, in an ongoing collection of edited volumes. Each volume is edited by a medical sociologist with a particular expertise, bringing together contributions from sociologists working in different settings and nations, exploring one particular advance in Medical Sociology.

••Shortlisted for the BSA Sociology of Health and Illness Book Prize 2010••What is good care? In this innovative and compelling book, Annemarie Mol argues that good care has little to do with'patient choice'and, therefore, creating more opportunities for patient choice will not improve health care.Although it is possible to treat people who seek professional help as customers or citizens, Mol argues that this undermines ways of thinking and acting crucial to health care. Illustrating the discussion with examples from diabetes clinics and diabetes self care, the book presents the'logic of care'in a step by step contrast with the'logic of choice'. She concludes that good care is not a matter of making well argued individual choices but is something that grows out of collaborative and continuing attempts to attune knowledge and technologies to diseased bodies and complex lives.Mol does not criticise the practices she encountered in her field work as messy or ad hoc, but makes explicit what it is that motivates them: an intriguing combination of adaptability and perseverance. The Logic of Care: Health and the problem of patient choice is crucial reading for all those interested in the theory and practice of care, including sociologists, anthropologists and health care professionals. It will also speak to policymakers and become a valuable source of inspiration for patient activists.

The book is clearly written and is consistent in style and presentation. Advocacy draws attention to the need for the individual's views to be expressed, communicated and understood by those around them and that advocacy is not what other people think the individual wants. Tufail and Lyons clearly and consistently reinforce this message throughout the book and illustrate this through the use of well-devised case studies to which most people can relate.'- The Frontline of Learning Disability'The Four Books in this series;'Introducing Advocacy','Rules and Standards','Listen Up!'and'Advocacy in Action'are comprehensive, informative and quite simply a very good introduction for someone new to the world of advocacy.'- Practice Links in Social WorkAdvocacy for people with disabilities is widely practised, but what about self-advocacy? How often do parents or carers speak `for'you and prevent you being heard? Do you know your rights within advocacy law? The four books in the Speaking Up set were conceived and written specifically to promote self-advocacy to disabled individuals who want to learn how to speak up for themselves.This first book in the series introduces the concept of advocacy and explores appropriate advocacy models, for example peer group supportive models, and examines different forms of advocacy such as campaign advocacy, crisis or intervention advocacy, volunteer advocacy and health complaints advocacy.All four books are illustrated throughout with colour drawings and case studies showing the positive results of self-advocacy on the individuals themselves, as well as on their families and carers.This empowering training package encourages an equal partnership between the advocate and the user where the shared goal is to develop the life skills of the individual with learning difficulties. It is accessible to people with a wide range of literacy needs, including those with high learning needs and is designed for use in formal and informal learning situations, either unsupported or with a facilitator present.

Korleis kan ein vere'myndig'pasient når ein er sjuk og avhengig av sine hjelparar?. Kan den individretta meistringa og myndiggjeringa også bli skalkeskjul for offentleg ansvarsfråskriving? Eit viktig føremål med denne boka er å drøfte slike spørsmål og gi ei fleirfagleg innføring i kva meistring og myndiggjering inneber for fagfolks måte å tenkje og handle på.Meistring, myndiggjering og brukarmedverknad er ord som flittig blir brukte i helse- og sosialsektoren, både i politikken og blant fagfolk. Dei handlar om at pasientar, brukarar og pårørande skal kunne ta i bruk ressursane sine, og vere aktive deltakarar i eiga behandling, og ha medbestemming når det gjeld tenester og omsorg som vert ytt dei. Sjølv om ein legg større vekt på informasjon enn nokon gong, er mangel på informasjon framleis ein vesentleg klagegrunn. Den berande ideen er at dersom meistring og myndiggjering skal bli noko meir enn retorikk, må hjelpearbeidet i helse og sosialsektoren legge større vekt på ein kommunikativ praksis, og ikkje berre reindyrke ei tradisjonell instrumentell tilnærming.

Nearly twenty percent of Americans live today with some sort of disability, and this number will grow in coming decades as the population ages. Despite this, the U.S. health care system is not set up to provide care comfortably, safely, and efficiently to persons with disabilities. Individuals with disabilities can therefore face significant barriers to obtaining high quality health care. Some barriers result from obvious impediments, such as doors without automatic openers and examining tables that are too high. Other barriers arise from faulty communication between patients and health care professionals, including misconceptions among clinicians about the daily lives, preferences, values, and abilities of persons with disabilities. Yet additional barriers relate to health insurance limits on items and services essential to maximizing health and independence. This book examines the health care experiences of persons who are blind, deaf, hard of hearing, or who have difficulties using their legs, arms, or hands. The book then outlines strategies for overcoming or circumventing barriers to care, starting by just asking persons with disabilities about workable solutions. Creating safe and accessible health care for persons with disabilities will likely benefit everyone at some point. This book has three parts. The first part looks at the historical roots of healthcare access for persons with disabilities in the United States. The second part discusses the current situation and the special challenges for those with disabilities. The third part looks forward to discuss the ways in which healthcare quality and access can improve.

Speaking for Patients and Carers draws on original research and is based on a theoretical framework taken from sociology and politics. It examines health consumer groups in the context of specific conditions: Arthritis and related conditions, cancer, heart and circulatory disease, maternity and childbirth, and mental health. It also analyzes their interaction with government, health professionals and the media, and assesses their impact on policy.