1. Overcoming tensions between family-centered care and fidelity within Early Intervention implementation research
- Author
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Pickard, Katherine, Wainer, Allison, Broder-Fingert, Sarabeth, Sheldrick, R Christopher, and Stahmer, Aubyn C
- Subjects
Biomedical and Clinical Sciences ,Psychology ,Mental Health ,Autism ,Pediatric ,Intellectual and Developmental Disabilities (IDD) ,Health Services ,Clinical Research ,Behavioral and Social Science ,Brain Disorders ,8.1 Organisation and delivery of services ,Management of diseases and conditions ,Health and social care services research ,7.1 Individual care needs ,Good Health and Well Being ,Child ,Humans ,Child ,Preschool ,Autism Spectrum Disorder ,Early Intervention ,Educational ,Autistic Disorder ,Patient-Centered Care ,autism spectrum disorders ,early intervention ,family-centered care ,family functioning and support ,fidelity ,interventions-psychosocial ,behavioral ,interventions—psychosocial/behavioral ,Specialist Studies in Education ,Cognitive Sciences ,Developmental & Child Psychology ,Biomedical and clinical sciences - Abstract
Lay abstractEarly Intervention systems provide therapeutic services to families of young children birth to 3 years with developmental delays and are considered a natural access point to services for young children and their families. Research studies in the autism field have been interested in training providers to deliver evidence-based practices in Early Intervention systems to increase access to services for young children with an increased likelihood of being autistic. However, research has often overlooked that Early Intervention systems prioritize family-centered care, an approach to working with families that honors and respects their values and choices and that provides supports to strengthen family functioning. This commentary points out that family-centered care deserves greater attention in research being done in Early Intervention systems. We describe how family-centered care may shape how interventions are delivered, and discuss directions for future research to evaluate the impact of family-centered care alongside intervention delivery.
- Published
- 2023