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Start Over Author "Gerlach, Christina" Journal bmc palliative care
6 results on '"Gerlach, Christina"'

2. Correction to: An online international comparison of thresholds for triggering a negative response to the “Surprise Question”: a study protocol

Author

White, Nicola, Oostendorp, Linda, Vickerstaff, Victoria, Gerlach, Christina, Engels, Yvonne, Maessen, Maud, Tomlinson, Christopher, Wens, Johan, Leysen, Bert, Biasco, Guido, Zambrano, Sofia, Eychmüller, Steffen, Avgerinou, Christina, Chattat, Rabih, Ottoboni, Giovanni, Veldhoven, Carel, and Stone, Patrick

Published
2020
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4. Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway.

Author

Hansen, Marit Irene Tuen, Haugen, Dagny Faksvåg, Sigurdardottir, Katrin Ruth, Kvikstad, Anne, Mayland, Catriona R., Schaufel, Margrethe Aase, on behalf of the ERANet-LAC CODE project group, Hufthammer, Karl Ove, Leppert, Wojciech, Wolszczak, Katarzyna, Yanneo, Eduardo Garcia, Tripodoro, Vilma, Goldraij, Gabriel, Weber, Martin, Gerlach, Christina, Zambon, Lair, Passarini, Juliana Nalin, Saad, Ivete Bredda, Ellershaw, John, and Ting, Grace

Subjects
PSYCHOLOGICAL adaptation, BEREAVEMENT, CANCER patients, PALLIATIVE treatment, PATIENT safety, QUALITY assurance, QUESTIONNAIRES, PSYCHOLOGY of Spouses, SURVEYS, UNCERTAINTY, QUALITATIVE research, EXTENDED families, JOB performance, PSYCHOSOCIAL factors, SOCIAL support
Abstract

Background: The ERANet-LAC CODE (Care Of the Dying Evaluation) international survey assessed quality of care for dying cancer patients in seven countries, by use of the i-CODE questionnaire completed by bereaved relatives. The aim of this sub study was to explore which factors improve or reduce quality of end-of-life (EOL) care from Norwegian relatives' point of view, as expressed in free text comments. Methods: 194 relatives of cancer patients dying in seven Norwegian hospitals completed the i-CODE questionnaire 6–8 weeks after bereavement; recruitment period 14 months; response rate 58%. Responders were similar to non-responders in terms of demographic details.104 participants (58% spouse/partner) added free text comments, which were analyzed by systematic text condensation. Results: Of the 104 comments, 45% contained negative descriptions, 27% positive and 23% mixed. 78% described previous experiences, whereas 22% alluded to the last 2 days of life. 64% of the comments represented medical/surgical/oncological wards and 36% palliative care units. Four main categories were developed from the free text comments: 1) Participants described how attentive care towards the practical needs of patients and relatives promoted dignity at the end of life, which could easily be lost when this awareness was missing. 2) They experienced that lack of staff, care continuity, professional competence or healthcare service coordination caused uncertainty and poor symptom alleviation. 3) Inadequate information to patient and family members generated unpredictable and distressing final illness trajectories. 4) Availability and professional support from healthcare providers created safety and enhanced coping in a difficult situation. Conclusions: Our findings suggest that hospitals caring for cancer patients at the end of life and their relatives, should systematically identify and attend to practical needs, as well as address important organizational issues. Education of staff members ought to emphasize how professional conduct and communication fundamentally affect patient care and relatives' coping. [ABSTRACT FROM AUTHOR]

Published
2020
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6. An online international comparison of thresholds for triggering a negative response to the 'Surprise Question': a study protocol

Author

Yvonne Engels, Johan Wens, Linda J. M. Oostendorp, Maud Maessen, Patrick Stone, Christina Gerlach, Bert Leysen, Nicola White, Carel Veldhoven, Christina Avgerinou, Guido Biasco, Steffen Eychmüller, Rabih Chattat, Giovanni Ottoboni, Christopher Tomlinson, Sofia C. Zambrano, Victoria Vickerstaff, White, Nicola, Oostendorp, Linda, Vickerstaff, Victoria, Gerlach, Christina, Engels, Yvonne, Maessen, Maud, Tomlinson, Christopher, Wens, Johan, Leysen, Bert, Biasco, Guido, Zambrano, Sofia, Eychmüller, Steffen, Avgerinou, Christina, Chattat, Rabih, Ottoboni, Giovanni, Veldhoven, Carel, and Stone, Patrick

Subjects
Palliative care, Survival, Study Protocol, 0302 clinical medicine, Belgium, Germany, Surveys and Questionnaires, 610 Medicine & health, Netherlands, Multiple choice, media_common, lcsh:RC952-1245, General Medicine, Prognosis, Death, Surprise, Italy, Negative response, 030220 oncology & carcinogenesis, 0305 other medical science, Psychology, Switzerland, medicine.medical_specialty, Attitude to Death, Attitude of Health Personnel, Prognosi, media_common.quotation_subject, education, lcsh:Special situations and conditions, 1117 Public Health and Health Services, Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18], 03 medical and health sciences, Surprise question, All institutes and research themes of the Radboud University Medical Center, General Practitioners, 030502 gerontology, medicine, Humans, National level, Protocol (science), Internet, Correction, Certificate, United Kingdom, Vignette, Family medicine, Human medicine, Gerontology
Abstract

Background The Surprise Question (SQ) “would I be surprised if this patient were to die in the next 12 months?” has been suggested to help clinicians, and especially General Practitioners (GPs), identify people who might benefit from palliative care. The prognostic accuracy of this approach is unclear and little is known about how GPs use this tool in practice. Are GPs consistent, individually and as a group? Are there international differences in the use of the tool? Does including the alternative Surprise Question (“Would I be surprised if the patient were still alive after 12 months?”) alter the response? What is the impact on the treatment plan in response to the SQ? This study aims to address these questions. Methods An online study will be completed by 600 (100 per country) registered GPs. They will be asked to review 20 hypothetical patient vignettes. For each vignette they will be asked to provide a response to the following four questions: (1) the SQ [Yes/No]; (2) the alternative SQ [Yes/No]; (3) the percentage probability of dying [0% no chance – 100% certain death]; and (4) the proposed treatment plan [multiple choice]. A “surprise threshold” for each participant will be calculated by comparing the responses to the SQ with the probability estimates of death. We will use linear regression to explore any differences in thresholds between countries and other clinician-related factors, such as years of experience. We will describe the actions taken by the clinicians and explore the differences between groups. We will also investigate the relationship between the alternative SQ and the other responses. Participants will receive a certificate of completion and the option to receive feedback on their performance. Discussion This study explores the extent to which the SQ is consistently used at an individual, group, and national level. The findings of this study will help to understand the clinical value of using the SQ in routine practice. Trial registration Clinicaltrials.gov NCT03697213 (05/10/2018). Prospectively registered. Electronic supplementary material The online version of this article (10.1186/s12904-019-0413-x) contains supplementary material, which is available to authorized users.

Published
2019

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