1. Artificial nutrition and hydration for children and young people towards end of life: consensus guidelines across four specialist paediatric palliative care centres
- Author
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Maggie Breen, Lizzie Bendle, Anna-Karenia Anderson, Kimberley Burke, Renee McCulloch, and Michelle Koh
- Subjects
Male ,Consensus ,Palliative care ,Adolescent ,media_common.quotation_subject ,Clinical Decision-Making ,Medicine (miscellaneous) ,Artificial nutrition ,Multidisciplinary team ,Pediatrics ,03 medical and health sciences ,0302 clinical medicine ,Nursing ,Surveys and Questionnaires ,030225 pediatrics ,Humans ,030212 general & internal medicine ,Child ,media_common ,Terminal Care ,Nutritional Support ,Oncology (nursing) ,Palliative Care ,General Medicine ,Deliberation ,Medical–Surgical Nursing ,Practice Guidelines as Topic ,Fluid Therapy ,Female ,Psychology ,End-of-life care ,Young person - Abstract
There is a paucity of evidence on the role, use, benefit and challenges of artificial nutrition and hydration (ANH) in children at end of life. Parents express the difficulty they face with making the decision to withdraw ANH. Decision-making on the role of ANH in an individual child requires careful multidisciplinary team deliberation and clear goals of care with children and families. Four paediatric palliative care specialist centres reviewed the current literature and developed consensus guidelines on ANH at end of life. These guidelines seek to provide a practical approach to clinical decision-making on the role of ANH in a child or young person entering the end-of-life phase.
- Published
- 2019
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