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1. The ERA Registry Annual Report 2021: a summary

Author

Boerstra, Brittany A, primary, Boenink, Rianne, additional, Astley, Megan E, additional, Bonthuis, Marjolein, additional, Abd ElHafeez, Samar, additional, Arribas Monzón, Federico, additional, Åsberg, Anders, additional, Beckerman, Pazit, additional, Bell, Samira, additional, Cases Amenós, Aleix, additional, Castro de la Nuez, Pablo, additional, ten Dam, Marc A G J, additional, Debska-Slizien, Alicja, additional, Gjorgjievski, Nikola, additional, Giudotti, Rebecca, additional, Helve, Jaakko, additional, Hommel, Kristine, additional, Idrizi, Alma, additional, Indriðason, Ólafur S, additional, Jarraya, Faiçal, additional, Kerschbaum, Julia, additional, Komissarov, Kirill S, additional, Kozliuk, Nadiia, additional, Kravljaca, Milica, additional, Lassalle, Mathilde, additional, De Meester, Johan M, additional, Ots-Rosenberg, Mai, additional, Plummer, Zoe, additional, Radunovic, Danilo, additional, Razvazhaieva, Olena, additional, Resic, Halima, additional, Rodríguez Arévalo, Olga Lucía, additional, Santiuste de Pablos, Carmen, additional, Seyahi, Nurhan, additional, Slon-Roblero, María Fernanda, additional, Stendahl, Maria, additional, Tolaj-Avdiu, Miloreta, additional, Trujillo-Alemán, Sara, additional, Ziedina, Ieva, additional, Ziginskiene, Edita, additional, Ortiz, Alberto, additional, Jager, Kitty J, additional, Stel, Vianda S, additional, and Kramer, Anneke, additional

Published
2023
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2. The ERA Registry Annual Report 2021: a summary.

Author

Boerstra, Brittany A, Boenink, Rianne, Astley, Megan E, Bonthuis, Marjolein, ElHafeez, Samar Abd, Monzón, Federico Arribas, Åsberg, Anders, Beckerman, Pazit, Bell, Samira, Amenós, Aleix Cases, Nuez, Pablo Castro de la, Dam, Marc A G J ten, Debska-Slizien, Alicja, Gjorgjievski, Nikola, Giudotti, Rebecca, Helve, Jaakko, Hommel, Kristine, Idrizi, Alma, Indriðason, Ólafur S, and Jarraya, Faiçal

Subjects
CORPORATION reports, RENAL replacement therapy, CHRONIC kidney failure, KIDNEY transplantation, PERITONEAL dialysis, IGA glomerulonephritis
Abstract

Background The European Renal Association (ERA) Registry collects data on kidney replacement therapy (KRT) in patients with end-stage kidney disease (ESKD). This paper is a summary of the ERA Registry Annual Report 2021, including a comparison across treatment modalities. Methods Data was collected from 54 national and regional registries from 36 countries, of which 35 registries from 18 countries contributed individual patient data and 19 registries from 19 countries contributed aggregated data. Using this data, incidence and prevalence of KRT, kidney transplantation rates, survival probabilities and expected remaining lifetimes were calculated. Result In 2021, 533.2 million people in the general population were covered by the ERA Registry. The incidence of KRT was 145 per million population (pmp). In incident patients, 55% were 65 years or older, 64% were male, and the most common primary renal disease (PRD) was diabetes (22%). The prevalence of KRT was 1040 pmp. In prevalent patients, 47% were 65 years or older, 62% were male, and the most common PRDs were diabetes and glomerulonephritis/sclerosis (both 16%). On 31 December 2021, 56% of patients received haemodialysis, 5% received peritoneal dialysis, and 39% were living with a functioning graft. The kidney transplantation rate in 2021 was 37 pmp, a majority coming from deceased donors (66%). For patients initiating KRT between 2012–2016, 5-year survival probability was 52%. Compared to the general population, life expectancy was 65% and 68% shorter for males and females receiving dialysis, and 40% and 43% shorter for males and females living with a functioning graft. [ABSTRACT FROM AUTHOR]

Published
2024
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3. European chronic kidney disease registries for children not on kidney replacement therapy: tools for improving health systems and patient-centred outcomes

Author

Bakkaloğlu, Sevcan A, primary, Vidal, Enrico, additional, Bonthuis, Marjolein, additional, Neto, Gisela, additional, Paripović, Dušan, additional, Åsberg, Anders, additional, Hijosa, Marta Melgosa, additional, Vondrak, Karel, additional, Jankauskiene, Augustina, additional, Roussinov, Dimitar, additional, Awan, Atif, additional, and Jager, Kitty J, additional

Published
2023
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4. The ERA Registry Annual Report 2020: a summary

Author

Astley, Megan E, primary, Boenink, Rianne, additional, ElHafeez, Samar Abd, additional, Trujillo-Alemán, Sara, additional, Arribas, F, additional, Åsberg, Anders, additional, Beckerman, Pazit, additional, Bell, Samira, additional, Bouzas-Caamaño, María Encarnación, additional, Farnés, Jordi Comas, additional, Galvão, Ana Amélia, additional, Gjorgjievski, Nikola, additional, Kelmendi, Vjollca Godanci, additional, Guidotti, Rebecca, additional, Helve, Jaakko, additional, Idrizi, Alma, additional, Indriðason, Ólafur S, additional, Ioannou, Kyriakos, additional, Kerschbaum, Julia, additional, Komissarov, Kirill, additional, Castro de la Nuez, Pablo, additional, Lassalle, Mathilde, additional, Nordio, Maurizio, additional, Arévalo, Olga Lucía Rodríguez, additional, Santiuste, Carmen, additional, Seyahi, Nurhan, additional, Roblero, María Fernanda Slon, additional, Steenkamp, Retha, additional, ten Dam, Marc A G J, additional, Zakharova, Elena V, additional, Ziginskiene, Edita, additional, Bonthuis, Marjolein, additional, Stel, Vianda S, additional, Ortiz, Alberto, additional, Jager, Kitty J, additional, and Kramer, Anneke, additional

Published
2023
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5. The ERA Registry Annual Report 2019: summary and age comparisons

Author

Boenink, Rianne, primary, Astley, Megan E, additional, Huijben, Jilske A, additional, Stel, Vianda S, additional, Kerschbaum, Julia, additional, Ots-Rosenberg, Mai, additional, Åsberg, Anders A, additional, Lopot, Frantisek, additional, Golan, Eliezer, additional, Castro de la Nuez, Pablo, additional, Rodríguez Camblor, Marta, additional, Trujillo-Alemán, Sara, additional, Ruiz San Millan, Juan Carlos, additional, Ucio Mingo, Pablo, additional, Díaz, Juan Manuel, additional, Bouzas-Caamaño, M Encarnación, additional, Artamendi, Marta, additional, Aparicio Madre, Manuel I, additional, Santiuste de Pablos, Carmen, additional, Slon Roblero, María Fernanda, additional, Zurriaga, Oscar, additional, Stendahl, Maria E, additional, Bell, Samira, additional, Idrizi, Alma, additional, Ioannou, Kyriakos, additional, Debska-Slizien, Alicja, additional, Galvão, Ana A, additional, De Meester, Johan M, additional, Resić, Halima, additional, Hommel, Kristine, additional, Radunovic, Danilo, additional, Pálsson, Runolfur, additional, Lassalle, Mathilde, additional, Finne, Patrik, additional, De los Ángeles-Garcia Bazaga, María, additional, Gjorgjievski, Nikola, additional, Seyahi, Nurhan, additional, Bonthuis, Marjolein, additional, Ortiz, Alberto, additional, Jager, Kitty J, additional, and Kramer, Anneke, additional

Published
2021
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6. ERA Registry Annual Report 2019: summary and age comparisons.

Author

Boenink, Rianne, Astley, Megan E, Huijben, Jilske A, Stel, Vianda S, Kerschbaum, Julia, Ots-Rosenberg, Mai, Åsberg, Anders A, Lopot, Frantisek, Golan, Eliezer, Nuez, Pablo Castro de la, Camblor, Marta Rodríguez, Trujillo-Alemán, Sara, Millan, Juan Carlos Ruiz San, Mingo, Pablo Ucio, Díaz, Juan Manuel, Bouzas-Caamaño, M Encarnación, Artamendi, Marta, Madre, Manuel I Aparicio, Pablos, Carmen Santiuste de, and Roblero, María Fernanda Slon

Subjects
CORPORATION reports, RENAL replacement therapy, CHRONIC kidney failure, KIDNEY transplantation, PERITONEAL dialysis
Abstract

Background Data on renal replacement therapy (RRT) for end-stage renal disease were collected by the European Renal Association (ERA) Registry via national and regional renal registries in Europe and countries bordering the Mediterranean Sea. This article provides a summary of the 2019 ERA Registry Annual Report, including data from 34 countries and additional age comparisons. Methods Individual patient data for 2019 were provided by 35 registries and aggregated data by 17 registries. Using these data, the incidence and prevalence of RRT, the kidney transplantation activity and the survival probabilities were calculated. Results In 2019, a general population of 680.8 million people was covered by the ERA Registry. Overall, the incidence of RRT was 132 per million population (p.m.p.). Of these patients, 62% were men, 54% were ≥65 years of age and 21% had diabetes mellitus as primary renal disease (PRD), and 84% had haemodialysis (HD), 11% had peritoneal dialysis (PD) and 5% had pre-emptive kidney transplantation as an initial treatment modality. The overall prevalence of RRT on 31 December 2019 was 893 p.m.p. with 58% of patients on HD, 5% on PD and 37% living with a kidney transplant. The overall kidney transplant rate was 35 p.m.p. and 29% of the kidney grafts were from a living donor. The unadjusted 5-year survival probability was 42.3% for patients commencing dialysis, 86.6% for recipients of deceased donor grafts and 94.4% for recipients of living donor grafts in the period 2010–14. When comparing age categories, there were substantial differences in the distribution of PRD, treatment modality and kidney donor type, and in the survival probabilities. [ABSTRACT FROM AUTHOR]

Published
2022
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7. The ERA-EDTA Registry Annual Report 2018: a summary

Author

Kramer, Anneke, primary, Boenink, Rianne, additional, Stel, Vianda S, additional, Santiuste de Pablos, Carmen, additional, Tomović, Filip, additional, Golan, Eliezer, additional, Kerschbaum, Julia, additional, Seyahi, Nurhan, additional, Ioanou, Kyriakos, additional, Beltrán, Palma, additional, Zurriaga, Oscar, additional, Magaz, Ángela, additional, Slon Roblero, María F, additional, Gjorgjievski, Nikola, additional, Garneata, Liliana, additional, Arribas, Federico, additional, Galvão, Ana A, additional, Bell, Samira, additional, Ots-Rosenberg, Mai, additional, Muñoz-Terol, José M, additional, Winzeler, Rebecca, additional, Hommel, Kristine, additional, Åsberg, Anders, additional, Spustova, Viera, additional, Palencia García, María Ángeles, additional, Vazelov, Evgueniy, additional, Finne, Patrik, additional, ten Dam, Marc A G J, additional, Lopot, František, additional, Trujillo-Alemán, Sara, additional, Lassalle, Mathilde, additional, Kolesnyk, Mykola O, additional, Santhakumaran, Shalini, additional, Idrizi, Alma, additional, Andrusev, Anton, additional, Comas Farnés, Jordi, additional, Komissarov, Kirill, additional, Resić, Halima, additional, Palsson, Runolfur, additional, Kuzema, Viktorija, additional, Garcia Bazaga, Maria Angeles, additional, Ziginskiene, Edita, additional, Stendahl, Maria, additional, Bonthuis, Marjolein, additional, Massy, Ziad A, additional, and Jager, Kitty J, additional

Published
2020
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9. The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2016: a summary

Author

Kramer, Anneke, primary, Pippias, Maria, additional, Noordzij, Marlies, additional, Stel, Vianda S, additional, Andrusev, Anton M, additional, Aparicio-Madre, Manuel I, additional, Arribas Monzón, Federico E, additional, Åsberg, Anders, additional, Barbullushi, Myftar, additional, Beltrán, Palma, additional, Bonthuis, Marjolein, additional, Caskey, Fergus J, additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, De Meester, Johan, additional, Finne, Patrik, additional, Golan, Eliezer, additional, Heaf, James G, additional, Hemmelder, Marc H, additional, Ioannou, Kyriakos, additional, Kantaria, Nino, additional, Komissarov, Kirill, additional, Korejwo, Grzegorz, additional, Kramar, Reinhard, additional, Lassalle, Mathilde, additional, Lopot, František, additional, Macário, Fernando, additional, Mackinnon, Bruce, additional, Pálsson, Runólfur, additional, Pechter, Ülle, additional, Piñera, Vicente C, additional, Santiuste de Pablos, Carmen, additional, Segarra-Medrano, Alfons, additional, Seyahi, Nurhan, additional, Slon Roblero, Maria F, additional, Stojceva-Taneva, Olivera, additional, Vazelov, Evgueniy, additional, Winzeler, Rebecca, additional, Ziginskiene, Edita, additional, Massy, Ziad, additional, and Jager, Kitty J, additional

Published
2019
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10. Changes in clinical indicators related to the transition from dialysis to kidney transplantation—data from the ERA-EDTA Registry.

Author

Tantiyavarong, Pichaya, Kramer, Anneke, Heaf, James G, Finne, Patrik, Åsberg, Anders, Cases, Aleix, Caskey, Fergus J, Massy, Ziad A, Jager, Kitty J, and Noordzij, Marlies

Subjects
KIDNEY transplantation, HEMODIALYSIS, GLOMERULAR filtration rate, HIGH density lipoproteins, C-reactive protein
Abstract

Background Kidney transplantation should improve abnormalities that are common during dialysis treatment, like anaemia and mineral and bone disorder. However, its impact is incompletely understood. We therefore aimed to assess changes in clinical indicators after the transition from chronic dialysis to kidney transplantation. Methods We used European Renal Association–European Dialysis and Transplant Association Registry data and included adult dialysis patients for whom data on clinical indicators before and after transplantation (2005–15) were available. Linear mixed models were used to quantify the effect of transplantation and of time after transplantation for each indicator. Results In total, 16 312 patients were included. The mean age at transplantation was 50.1 (standard deviation 14.2) years, 62.9% were male and 70.2% were on haemodialysis before transplantation. Total, low-density lipoprotein (LDL) and high-density lipoprotein (HDL) cholesterol and triglycerides increased right after transplantation but decreased thereafter. All other indicators normalized or approached the target range soon after transplantation and these improvements were sustained for the first 4 years of follow-up. In patients with higher estimated glomerular filtration rate (eGFR) levels (30–60 and >60 mL/min/1.73 m2), the improvement of haemoglobin, ferritin, ionized calcium, phosphate, parathyroid hormone, HDL cholesterol, triglycerides, albumin and C-reactive protein levels was more pronounced than in patients with a lower eGFR (<30 mL/min/1.73 m2). Conclusions Except for total cholesterol, LDL cholesterol and triglycerides, all clinical indicators improved after transplantation. These improvements were related to eGFR. Nevertheless, values remained out of range in a considerable proportion of patients and anaemia and hyperparathyroidism were still common problems. Further research is needed to understand the complex relationship between eGFR and the different clinical indicators. [ABSTRACT FROM AUTHOR]

Published
2020
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11. The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2015: a summary

Author

Kramer, Anneke, primary, Pippias, Maria, additional, Noordzij, Marlies, additional, Stel, Vianda S, additional, Afentakis, Nikolaos, additional, Ambühl, Patrice M, additional, Andrusev, Anton M, additional, Fuster, Emma Arcos, additional, Arribas Monzón, Federico E, additional, Åsberg, Anders, additional, Barbullushi, Myftar, additional, Bonthuis, Marjolein, additional, Caskey, Fergus J, additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, des Grottes, Jean-Marin, additional, Garneata, Liliana, additional, Golan, Eliezer, additional, Hemmelder, Marc H, additional, Ioannou, Kyriakos, additional, Jarraya, Faical, additional, Kolesnyk, Mykola, additional, Komissarov, Kirill, additional, Lassalle, Mathilde, additional, Macario, Fernando, additional, Mahillo-Duran, Beatriz, additional, Martín de Francisco, Angel L, additional, Palsson, Runolfur, additional, Pechter, Ülle, additional, Resic, Halima, additional, Rutkowski, Boleslaw, additional, Santiuste de Pablos, Carmen, additional, Seyahi, Nurhan, additional, Simic Ogrizovic, Sanja, additional, Slon Roblero, María F, additional, Spustova, Viera, additional, Stojceva-Taneva, Olivera, additional, Traynor, Jamie, additional, Massy, Ziad A, additional, and Jager, Kitty J, additional

Published
2018
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12. The European Renal Association – European Dialysis and Transplant Association Registry Annual Report 2014: a summary

Author

Pippias, Maria, primary, Kramer, Anneke, additional, Noordzij, Marlies, additional, Afentakis, Nikolaos, additional, Alonso de la Torre, Ramón, additional, Ambühl, Patrice M., additional, Aparicio Madre, Manuel I., additional, Arribas Monzón, Felipe, additional, Åsberg, Anders, additional, Bonthuis, Marjolein, additional, Bouzas Caamaño, Encarnación, additional, Bubic, Ivan, additional, Caskey, Fergus J., additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, de los Ángeles Garcia Bazaga, Maria, additional, des Grottes, Jean-Marin, additional, Fernández González, Raquel, additional, Ferrer-Alamar, Manuel, additional, Finne, Patrik, additional, Garneata, Liliana, additional, Golan, Eliezer, additional, Heaf, James G., additional, Hemmelder, Marc H., additional, Idrizi, Alma, additional, Ioannou, Kyriakos, additional, Jarraya, Faical, additional, Kantaria, Nino, additional, Kolesnyk, Mykola, additional, Kramar, Reinhard, additional, Lassalle, Mathilde, additional, Lezaic, Visnja V., additional, Lopot, Frantisek, additional, Macario, Fernando, additional, Magaz, Ángela, additional, Martín de Francisco, Angel L., additional, Martín Escobar, Eduardo, additional, Martínez Castelao, Alberto, additional, Metcalfe, Wendy, additional, Moreno Alia, Inmaculada, additional, Nordio, Maurizio, additional, Ots-Rosenberg, Mai, additional, Palsson, Runolfur, additional, Ratkovic, Marina, additional, Resic, Halima, additional, Rutkowski, Boleslaw, additional, Santiuste de Pablos, Carmen, additional, Seyahi, Nurhan, additional, Fernanda Slon Roblero, María, additional, Spustova, Viera, additional, Stas, Koenraad J.F., additional, Stendahl, María E., additional, Stojceva-Taneva, Olivera, additional, Vazelov, Evgueniy, additional, Ziginskiene, Edita, additional, Massy, Ziad, additional, Jager, Kitty J., additional, and Stel, Vianda S., additional

Published
2017
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