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1. The ERA Registry Annual Report 2021: a summary

Author

Boerstra, Brittany A, primary, Boenink, Rianne, additional, Astley, Megan E, additional, Bonthuis, Marjolein, additional, Abd ElHafeez, Samar, additional, Arribas Monzón, Federico, additional, Åsberg, Anders, additional, Beckerman, Pazit, additional, Bell, Samira, additional, Cases Amenós, Aleix, additional, Castro de la Nuez, Pablo, additional, ten Dam, Marc A G J, additional, Debska-Slizien, Alicja, additional, Gjorgjievski, Nikola, additional, Giudotti, Rebecca, additional, Helve, Jaakko, additional, Hommel, Kristine, additional, Idrizi, Alma, additional, Indriðason, Ólafur S, additional, Jarraya, Faiçal, additional, Kerschbaum, Julia, additional, Komissarov, Kirill S, additional, Kozliuk, Nadiia, additional, Kravljaca, Milica, additional, Lassalle, Mathilde, additional, De Meester, Johan M, additional, Ots-Rosenberg, Mai, additional, Plummer, Zoe, additional, Radunovic, Danilo, additional, Razvazhaieva, Olena, additional, Resic, Halima, additional, Rodríguez Arévalo, Olga Lucía, additional, Santiuste de Pablos, Carmen, additional, Seyahi, Nurhan, additional, Slon-Roblero, María Fernanda, additional, Stendahl, Maria, additional, Tolaj-Avdiu, Miloreta, additional, Trujillo-Alemán, Sara, additional, Ziedina, Ieva, additional, Ziginskiene, Edita, additional, Ortiz, Alberto, additional, Jager, Kitty J, additional, Stel, Vianda S, additional, and Kramer, Anneke, additional

Published
2023
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2. The ERA Registry Annual Report 2021: a summary.

Author

Boerstra, Brittany A, Boenink, Rianne, Astley, Megan E, Bonthuis, Marjolein, ElHafeez, Samar Abd, Monzón, Federico Arribas, Åsberg, Anders, Beckerman, Pazit, Bell, Samira, Amenós, Aleix Cases, Nuez, Pablo Castro de la, Dam, Marc A G J ten, Debska-Slizien, Alicja, Gjorgjievski, Nikola, Giudotti, Rebecca, Helve, Jaakko, Hommel, Kristine, Idrizi, Alma, Indriðason, Ólafur S, and Jarraya, Faiçal

Subjects
CORPORATION reports, RENAL replacement therapy, CHRONIC kidney failure, KIDNEY transplantation, PERITONEAL dialysis, IGA glomerulonephritis
Abstract

Background The European Renal Association (ERA) Registry collects data on kidney replacement therapy (KRT) in patients with end-stage kidney disease (ESKD). This paper is a summary of the ERA Registry Annual Report 2021, including a comparison across treatment modalities. Methods Data was collected from 54 national and regional registries from 36 countries, of which 35 registries from 18 countries contributed individual patient data and 19 registries from 19 countries contributed aggregated data. Using this data, incidence and prevalence of KRT, kidney transplantation rates, survival probabilities and expected remaining lifetimes were calculated. Result In 2021, 533.2 million people in the general population were covered by the ERA Registry. The incidence of KRT was 145 per million population (pmp). In incident patients, 55% were 65 years or older, 64% were male, and the most common primary renal disease (PRD) was diabetes (22%). The prevalence of KRT was 1040 pmp. In prevalent patients, 47% were 65 years or older, 62% were male, and the most common PRDs were diabetes and glomerulonephritis/sclerosis (both 16%). On 31 December 2021, 56% of patients received haemodialysis, 5% received peritoneal dialysis, and 39% were living with a functioning graft. The kidney transplantation rate in 2021 was 37 pmp, a majority coming from deceased donors (66%). For patients initiating KRT between 2012–2016, 5-year survival probability was 52%. Compared to the general population, life expectancy was 65% and 68% shorter for males and females receiving dialysis, and 40% and 43% shorter for males and females living with a functioning graft. [ABSTRACT FROM AUTHOR]

Published
2024
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3. European chronic kidney disease registries for children not on kidney replacement therapy: tools for improving health systems and patient-centred outcomes

Author

Bakkaloğlu, Sevcan A, primary, Vidal, Enrico, additional, Bonthuis, Marjolein, additional, Neto, Gisela, additional, Paripović, Dušan, additional, Åsberg, Anders, additional, Hijosa, Marta Melgosa, additional, Vondrak, Karel, additional, Jankauskiene, Augustina, additional, Roussinov, Dimitar, additional, Awan, Atif, additional, and Jager, Kitty J, additional

Published
2023
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4. The ERA Registry Annual Report 2020: a summary

Author

Astley, Megan E, primary, Boenink, Rianne, additional, ElHafeez, Samar Abd, additional, Trujillo-Alemán, Sara, additional, Arribas, F, additional, Åsberg, Anders, additional, Beckerman, Pazit, additional, Bell, Samira, additional, Bouzas-Caamaño, María Encarnación, additional, Farnés, Jordi Comas, additional, Galvão, Ana Amélia, additional, Gjorgjievski, Nikola, additional, Kelmendi, Vjollca Godanci, additional, Guidotti, Rebecca, additional, Helve, Jaakko, additional, Idrizi, Alma, additional, Indriðason, Ólafur S, additional, Ioannou, Kyriakos, additional, Kerschbaum, Julia, additional, Komissarov, Kirill, additional, Castro de la Nuez, Pablo, additional, Lassalle, Mathilde, additional, Nordio, Maurizio, additional, Arévalo, Olga Lucía Rodríguez, additional, Santiuste, Carmen, additional, Seyahi, Nurhan, additional, Roblero, María Fernanda Slon, additional, Steenkamp, Retha, additional, ten Dam, Marc A G J, additional, Zakharova, Elena V, additional, Ziginskiene, Edita, additional, Bonthuis, Marjolein, additional, Stel, Vianda S, additional, Ortiz, Alberto, additional, Jager, Kitty J, additional, and Kramer, Anneke, additional

Published
2023
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5. Disparities in treatment and outcome of kidney replacement therapy in children with comorbidities: an ESPN/ERA Registry study

Author

Schild, Raphael, primary, Dupont, Simeon, additional, Harambat, Jérôme, additional, Vidal, Enrico, additional, Balat, Ayşe, additional, Bereczki, Csaba, additional, Bieniaś, Beata, additional, Brandström, Per, additional, Broux, Francoise, additional, Consolo, Silvia, additional, Gojkovic, Ivana, additional, Groothoff, Jaap W, additional, Hommel, Kristine, additional, Hubmann, Holger, additional, Braddon, Fiona E M, additional, Pankratenko, Tatiana E, additional, Papachristou, Fotios, additional, Plumb, Lucy A, additional, Podracka, Ludmila, additional, Prokurat, Sylwester, additional, Bjerre, Anna, additional, Cordinhã, Carolina, additional, Tainio, Juuso, additional, Shkurti, Enkelejda, additional, Spartà, Giuseppina, additional, Vondrak, Karel, additional, Jager, Kitty J, additional, Oh, Jun, additional, and Bonthuis, Marjolein, additional

Published
2023
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6. The ERA Registry Annual Report 2019: summary and age comparisons

Author

Boenink, Rianne, primary, Astley, Megan E, additional, Huijben, Jilske A, additional, Stel, Vianda S, additional, Kerschbaum, Julia, additional, Ots-Rosenberg, Mai, additional, Åsberg, Anders A, additional, Lopot, Frantisek, additional, Golan, Eliezer, additional, Castro de la Nuez, Pablo, additional, Rodríguez Camblor, Marta, additional, Trujillo-Alemán, Sara, additional, Ruiz San Millan, Juan Carlos, additional, Ucio Mingo, Pablo, additional, Díaz, Juan Manuel, additional, Bouzas-Caamaño, M Encarnación, additional, Artamendi, Marta, additional, Aparicio Madre, Manuel I, additional, Santiuste de Pablos, Carmen, additional, Slon Roblero, María Fernanda, additional, Zurriaga, Oscar, additional, Stendahl, Maria E, additional, Bell, Samira, additional, Idrizi, Alma, additional, Ioannou, Kyriakos, additional, Debska-Slizien, Alicja, additional, Galvão, Ana A, additional, De Meester, Johan M, additional, Resić, Halima, additional, Hommel, Kristine, additional, Radunovic, Danilo, additional, Pálsson, Runolfur, additional, Lassalle, Mathilde, additional, Finne, Patrik, additional, De los Ángeles-Garcia Bazaga, María, additional, Gjorgjievski, Nikola, additional, Seyahi, Nurhan, additional, Bonthuis, Marjolein, additional, Ortiz, Alberto, additional, Jager, Kitty J, additional, and Kramer, Anneke, additional

Published
2021
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7. The ERA-EDTA Registry Annual Report 2018: a summary

Author

Kramer, Anneke, primary, Boenink, Rianne, additional, Stel, Vianda S, additional, Santiuste de Pablos, Carmen, additional, Tomović, Filip, additional, Golan, Eliezer, additional, Kerschbaum, Julia, additional, Seyahi, Nurhan, additional, Ioanou, Kyriakos, additional, Beltrán, Palma, additional, Zurriaga, Oscar, additional, Magaz, Ángela, additional, Slon Roblero, María F, additional, Gjorgjievski, Nikola, additional, Garneata, Liliana, additional, Arribas, Federico, additional, Galvão, Ana A, additional, Bell, Samira, additional, Ots-Rosenberg, Mai, additional, Muñoz-Terol, José M, additional, Winzeler, Rebecca, additional, Hommel, Kristine, additional, Åsberg, Anders, additional, Spustova, Viera, additional, Palencia García, María Ángeles, additional, Vazelov, Evgueniy, additional, Finne, Patrik, additional, ten Dam, Marc A G J, additional, Lopot, František, additional, Trujillo-Alemán, Sara, additional, Lassalle, Mathilde, additional, Kolesnyk, Mykola O, additional, Santhakumaran, Shalini, additional, Idrizi, Alma, additional, Andrusev, Anton, additional, Comas Farnés, Jordi, additional, Komissarov, Kirill, additional, Resić, Halima, additional, Palsson, Runolfur, additional, Kuzema, Viktorija, additional, Garcia Bazaga, Maria Angeles, additional, Ziginskiene, Edita, additional, Stendahl, Maria, additional, Bonthuis, Marjolein, additional, Massy, Ziad A, additional, and Jager, Kitty J, additional

Published
2020
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8. The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2016: a summary

Author

Kramer, Anneke, primary, Pippias, Maria, additional, Noordzij, Marlies, additional, Stel, Vianda S, additional, Andrusev, Anton M, additional, Aparicio-Madre, Manuel I, additional, Arribas Monzón, Federico E, additional, Åsberg, Anders, additional, Barbullushi, Myftar, additional, Beltrán, Palma, additional, Bonthuis, Marjolein, additional, Caskey, Fergus J, additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, De Meester, Johan, additional, Finne, Patrik, additional, Golan, Eliezer, additional, Heaf, James G, additional, Hemmelder, Marc H, additional, Ioannou, Kyriakos, additional, Kantaria, Nino, additional, Komissarov, Kirill, additional, Korejwo, Grzegorz, additional, Kramar, Reinhard, additional, Lassalle, Mathilde, additional, Lopot, František, additional, Macário, Fernando, additional, Mackinnon, Bruce, additional, Pálsson, Runólfur, additional, Pechter, Ülle, additional, Piñera, Vicente C, additional, Santiuste de Pablos, Carmen, additional, Segarra-Medrano, Alfons, additional, Seyahi, Nurhan, additional, Slon Roblero, Maria F, additional, Stojceva-Taneva, Olivera, additional, Vazelov, Evgueniy, additional, Winzeler, Rebecca, additional, Ziginskiene, Edita, additional, Massy, Ziad, additional, and Jager, Kitty J, additional

Published
2019
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9. The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2015: a summary

Author

Kramer, Anneke, primary, Pippias, Maria, additional, Noordzij, Marlies, additional, Stel, Vianda S, additional, Afentakis, Nikolaos, additional, Ambühl, Patrice M, additional, Andrusev, Anton M, additional, Fuster, Emma Arcos, additional, Arribas Monzón, Federico E, additional, Åsberg, Anders, additional, Barbullushi, Myftar, additional, Bonthuis, Marjolein, additional, Caskey, Fergus J, additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, des Grottes, Jean-Marin, additional, Garneata, Liliana, additional, Golan, Eliezer, additional, Hemmelder, Marc H, additional, Ioannou, Kyriakos, additional, Jarraya, Faical, additional, Kolesnyk, Mykola, additional, Komissarov, Kirill, additional, Lassalle, Mathilde, additional, Macario, Fernando, additional, Mahillo-Duran, Beatriz, additional, Martín de Francisco, Angel L, additional, Palsson, Runolfur, additional, Pechter, Ülle, additional, Resic, Halima, additional, Rutkowski, Boleslaw, additional, Santiuste de Pablos, Carmen, additional, Seyahi, Nurhan, additional, Simic Ogrizovic, Sanja, additional, Slon Roblero, María F, additional, Spustova, Viera, additional, Stojceva-Taneva, Olivera, additional, Traynor, Jamie, additional, Massy, Ziad A, additional, and Jager, Kitty J, additional

Published
2018
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10. The European Renal Association – European Dialysis and Transplant Association Registry Annual Report 2014: a summary

Author

Pippias, Maria, primary, Kramer, Anneke, additional, Noordzij, Marlies, additional, Afentakis, Nikolaos, additional, Alonso de la Torre, Ramón, additional, Ambühl, Patrice M., additional, Aparicio Madre, Manuel I., additional, Arribas Monzón, Felipe, additional, Åsberg, Anders, additional, Bonthuis, Marjolein, additional, Bouzas Caamaño, Encarnación, additional, Bubic, Ivan, additional, Caskey, Fergus J., additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, de los Ángeles Garcia Bazaga, Maria, additional, des Grottes, Jean-Marin, additional, Fernández González, Raquel, additional, Ferrer-Alamar, Manuel, additional, Finne, Patrik, additional, Garneata, Liliana, additional, Golan, Eliezer, additional, Heaf, James G., additional, Hemmelder, Marc H., additional, Idrizi, Alma, additional, Ioannou, Kyriakos, additional, Jarraya, Faical, additional, Kantaria, Nino, additional, Kolesnyk, Mykola, additional, Kramar, Reinhard, additional, Lassalle, Mathilde, additional, Lezaic, Visnja V., additional, Lopot, Frantisek, additional, Macario, Fernando, additional, Magaz, Ángela, additional, Martín de Francisco, Angel L., additional, Martín Escobar, Eduardo, additional, Martínez Castelao, Alberto, additional, Metcalfe, Wendy, additional, Moreno Alia, Inmaculada, additional, Nordio, Maurizio, additional, Ots-Rosenberg, Mai, additional, Palsson, Runolfur, additional, Ratkovic, Marina, additional, Resic, Halima, additional, Rutkowski, Boleslaw, additional, Santiuste de Pablos, Carmen, additional, Seyahi, Nurhan, additional, Fernanda Slon Roblero, María, additional, Spustova, Viera, additional, Stas, Koenraad J.F., additional, Stendahl, María E., additional, Stojceva-Taneva, Olivera, additional, Vazelov, Evgueniy, additional, Ziginskiene, Edita, additional, Massy, Ziad, additional, Jager, Kitty J., additional, and Stel, Vianda S., additional

Published
2017
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11. Renal replacement therapy in Europe: a summary of the 2013 ERA-EDTA Registry Annual Report with a focus on diabetes mellitus

Author

Kramer, Anneke, primary, Pippias, Maria, additional, Stel, Vianda S., additional, Bonthuis, Marjolein, additional, Abad Diez, José Maria, additional, Afentakis, Nikolaos, additional, Alonso de la Torre, Ramón, additional, Ambuhl, Patrice, additional, Bikbov, Boris, additional, Bouzas Caamaño, Encarnación, additional, Bubic, Ivan, additional, Buturovic-Ponikvar, Jadranka, additional, Caskey, Fergus J., additional, Castro de la Nuez, Pablo, additional, Cernevskis, Harijs, additional, Collart, Frederic, additional, Comas Farnés, Jordi, additional, Garcia Bazaga, Maria de los Ángeles, additional, De Meester, Johan, additional, Ferrer Alamar, Manuel, additional, Finne, Patrik, additional, Garneata, Liliana, additional, Golan, Eliezer, additional, G. Heaf, James, additional, Hemmelder, Marc, additional, Ioannou, Kyriakos, additional, Kantaria, Nino, additional, Kolesnyk, Mykola, additional, Kramar, Reinhard, additional, Lassalle, Mathilde, additional, Lezaic, Visnja, additional, Lopot, Frantisek, additional, Macário, Fernando, additional, Magaz, Angela, additional, Martín-Escobar, Eduardo, additional, Metcalfe, Wendy, additional, Ots-Rosenberg, Mai, additional, Palsson, Runolfur, additional, Piñera Celestino, Celestino, additional, Resić, Halima, additional, Rutkowski, Boleslaw, additional, Santiuste de Pablos, Carmen, additional, Spustová, Viera, additional, Stendahl, Maria, additional, Strakosha, Ariana, additional, Süleymanlar, Gültekin, additional, Torres Guinea, Marta, additional, Varberg Reisæter, Anna, additional, Vazelov, Evgueniy, additional, Ziginskiene, Edita, additional, Massy, Ziad A., additional, Wanner, Christoph, additional, Jager, Kitty J., additional, and Noordzij, Marlies, additional

Published
2016
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12. Renal replacement therapy in Europe: a summary of the 2011 ERA–EDTA Registry Annual Report.

Author

Noordzij, Marlies, Kramer, Anneke, Abad Diez, José M., Alonso de la Torre, Ramón, Arcos Fuster, Emma, Bikbov, Boris T., Bonthuis, Marjolein, Bouzas Caamaño, Encarnación, Čala, Svetlana, Caskey, Fergus J., Castro de la Nuez, Pablo, Cernevskis, Harijs, Collart, Frederic, Díaz Tejeiro, Rafael, Djukanovic, Ljubica, Ferrer-Alamar, Manuel, Finne, Patrik, García Bazaga, María de los Angelos, Garneata, Liliana, and Golan, Eliezer

Subjects
TREATMENT of chronic kidney failure, KIDNEY transplantation, DISEASE prevalence, KIDNEY diseases, PATIENTS
Abstract

Background This article provides a summary of the 2011 ERA–EDTA Registry Annual Report (available at www.era-edta-reg.org). Methods Data on renal replacement therapy (RRT) for end-stage renal disease (ESRD) from national and regional renal registries in 30 countries in Europe and bordering the Mediterranean Sea were used. From 27 registries, individual patient data were received, whereas 17 registries contributed data in aggregated form. We present the incidence and prevalence of RRT, and renal transplant rates in 2011. In addition, survival probabilities and expected remaining lifetimes were calculated for those registries providing individual patient data. Results The overall unadjusted incidence rate of RRT in 2011 among all registries reporting to the ERA–EDTA Registry was 117 per million population (pmp) (n = 71.631). Incidence rates varied from 24 pmp in Ukraine to 238 pmp in Turkey. The overall unadjusted prevalence of RRT for ESRD on 31 December 2011 was 692 pmp (n = 425 824). The highest prevalence was reported by Portugal (1662 pmp) and the lowest by Ukraine (131 pmp). Among all registries, a total of 22 814 renal transplantations were performed (37 pmp). The highest overall transplant rate was reported from Spain, Cantabria (81 pmp), whereas the highest rate of living donor transplants was reported from Turkey (39 pmp). For patients who started RRT between 2002 and 2006, the unadjusted 5-year patient survival on RRT was 46.8% [95% confidence interval (CI) 46.6–47.0], and on dialysis 39.3% (95% CI 39.2–39.4). The unadjusted 5-year patient survival after the first renal transplantation performed between 2002 and 2006 was 86.7% (95% CI 86.2–87.2) for kidneys from deceased donors and 94.3% (95% CI 93.6–95.0) for kidneys from living donors. [ABSTRACT FROM PUBLISHER]

Published
2014
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