1. Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer.
- Author
-
Maya, Sravannthi, Chittem, Mahati, Chawak, Shweta, Parker, Patricia A., and Banerjee, Smita C.
- Subjects
- *
FAMILIES & psychology , *QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *CONTENT analysis , *CANCER patients , *DECISION making , *JUDGMENT sampling , *REFLECTION (Philosophy) , *SOUND recordings , *THEMATIC analysis , *RESEARCH methodology , *RESEARCH , *TUMORS , *PSYCHOLOGY of caregivers , *PHENOMENOLOGY , *FAMILY support , *DISCLOSURE - Abstract
Caregiving in the South Asian context is often assumed by family automatically for the person with cancer (PWC). In this paper, we applied the disclosure decision-making model (DD-MM) to understand the motives behind cancer prognosis disclosure (or not) by caregivers to the PWC. Fifty caregivers participated in semi-structured interviews; and data were analyzed using Framework Approach. For the disclosing caregivers, some of the themes that emerged were consistent with the DD-MM framework while others were not. In particular, the theme "recipient assessment" was part of the DD-MM framework, while others such as unmet communication needs, caregiver self-reflection, and family support were outside of the framework. In contrast, for the non-disclosing caregivers, the reasons for nondisclosure fit very concisely into the DD-MM framework, particularly with information assessment, recipient assessment, and (non) disclosure efficacy. This study has significant implications for development of communication skills trainings around holding family meetings in India. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF