1. 'We're taught green is good': Perspectives on time in range and time in tight range from youth with type 1 diabetes, and parents of youth with type 1 diabetes.
- Author
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Tanenbaum, Molly L., Pang, Erica, Tam, Rachel, Bishop, Franziska K., Prahalad, Priya, Zaharieva, Dessi P., Addala, Ananta, Wong, Jessie J., Naranjo, Diana, Hood, Korey K., and Maahs, David M.
- Subjects
TYPE 1 diabetes ,RISK assessment ,PEOPLE with diabetes ,RESEARCH funding ,FOCUS groups ,FAMILY conflict ,INTERVIEWING ,CONTENT analysis ,PARENT attitudes ,DESCRIPTIVE statistics ,SOUND recordings ,CONTINUOUS glucose monitoring ,RESEARCH methodology ,PSYCHOLOGICAL stress ,PSYCHOLOGY of parents ,PSYCHOSOCIAL factors ,PATIENTS' attitudes ,HYPOGLYCEMIA ,DISEASE risk factors ,ADOLESCENCE - Abstract
Aims: Continuous glucose monitoring (CGM) systems are standard of care for youth with type 1 diabetes with the goal of spending >70% time in range (TIR; 70–180 mg/dL, 3.9–10 mmol/L). We aimed to understand paediatric CGM user experiences with TIR metrics considering recent discussion of shifting to time in tight range (TITR; >50% time between 70 and 140 mg/dL, 3.9 and 7.8 mmol/L). Methods: Semi‐structured interviews and focus groups with adolescents with type 1 diabetes and parents of youth with type 1 diabetes focused on experiences with TIR goals and reactions to TITR. Groups and interviews were audio‐recorded, transcribed and analysed using content analysis. Results: Thirty participants (N = 19 parents: age 43.6 ± 5.3 years, 79% female, 47% non‐Hispanic White, 20 ± 5 months since child's diagnosis; N = 11 adolescents: age 15.3 ± 2 years, 55% female, 55% non‐Hispanic White, 16 ± 3 months since diagnosis) attended. Participants had varying levels of understanding of TIR. Some developed personally preferred glucose ranges. Parents often aimed to surpass 70% TIR. Many described feelings of stress and disappointment when they did not meet a TIR goal. Concerns about TITR included increased stress and burden; risk of hypoglycaemia; and family conflict. Some participants said TITR would not change their daily lives; others said it would improve their diabetes management. Families requested care team support and a clear scientific rationale for TITR. Conclusions: The wealth of CGM data creates frequent opportunities for assessing diabetes management and carries implications for management burden. Input from people with type 1 diabetes and their families will be critical in considering a shift in glycaemic goals and targets. [ABSTRACT FROM AUTHOR] more...
- Published
- 2024
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