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2. Descriptions, Definitions and Directions: special needs occasional paper No. 7.
- Author
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Coles, Jonathan
- Subjects
- *
EDUCATION policy , *LEGISLATIVE bills , *ORGANIZATIONAL structure , *ADULT education , *OPEN learning - Abstract
John Fish's paper "Descriptions, Definitions and Directions: Special Needs Occasional Paper No. 7" provides a detailed examination of many key issues facing further and adult education providers offering courses for students with special educational needs. In describing developments in this field over the past two decades, he argues that legislation has failed to provide adult learners who have special educational needs with a clear entitlement to education. While recognizing the need for effective collaboration between government departments and agencies, the paper draws attention to the problematic nature of this process. The major agencies of health, social services and education use different definitions to describe adults with special educational needs.
- Published
- 1990
- Full Text
- View/download PDF
3. Consumer Participation: the voluntary sector and the concept of power.
- Author
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Drake, Robert F.
- Subjects
CONSUMERS ,PARTICIPATION ,ASSOCIATIONS, institutions, etc. ,PEOPLE with disabilities ,SOCIAL reality ,EMPIRICAL research - Abstract
The relationship between voluntary agencies and their consumers has been the subject of very little, if any, empirical research. The burden of this paper is to highlight questions appropriate for investigation. It explores the idea of a `power' relationship between voluntary agencies and consumers, and makes particular reference to the theory of a social construction of disability. Questions are raised about the meaning of `consumer participation' and the rote of the disability movement. Consumer participation depends upon the exercise of power; which itself requires the fulfilment of three re-conditions. Successful implementation hinges on more than just structural and operational change. Participation must be seen as a process of re-definition: a reconstruction of the social reality in which voluntary groups exist. Such a process fundamentally alters the relationship between voluntary agencies and consumers; and so transforms the ethos and nature of voluntary action itself [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
4. Confessions of a Jobbing Researcher.
- Author
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Parker, Gillian and Baldwin, Sally
- Subjects
PUBLIC welfare ,GOVERNMENT policy ,SOCIAL policy ,WELFARE economics ,SEMINARS ,SOCIAL goals - Abstract
The relationship between research and policy making is complex and not always direct. This paper describes disability-related research for policy makers which is carried out at the Social Policy Research Unit (SPRU), University of York. A distinction between the ways in which research is formed and the ways in which it is informed is made. The informing of research influences how it is carried out; the research questions themselves, the choice of design and methods, the form of analysis, and the pattern of dissemination. The seminar series has helped SPRU reappraise its disability-related research. Disabled people must be able to influence the framing and elaboration of research questions more directly; there must be an increased commitment to employing and to training disabled researchers; dissemination must be wider; `crucial gateways' to policy makers and practitioners have to be identified, and the debate on informal care must be moved further on. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
5. Race and Disability: just a double oppression?
- Author
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Stuart, O. W.
- Subjects
DECISION making ,PEOPLE with disabilities ,DISABILITIES ,NUTRITION ,MINORITIES ,COMMUNITIES - Abstract
This paper questions the notion that being a black disabled person is to experience a `double oppression'. On the contrary, this paper suggests that black disabled people have a singular experience. The sum of a number of experiences helps to shape the general outlook of this group. Rather than double oppression, these experiences occur simultaneously; this is a more appropriate description. The image of black disabled people has been ascribed from without. This is based upon a comparison with the experience of white people. For example, certain ailments experienced by black people are seen in terms of a failure on their part to follow `a healthy Western diet': This paper suggests that decision making by those who allocate finite state resources assume a similar norm. The immigration debate stigmatises black people as interlopers in Britain. Both bizarre health practices and the fear of interlopers isolate black disabled people. Finally, this paper looks at the impact of this form of marginalisation on the ethnic minority community. However, the identities constructed by these various communities in response to ascription impacts upon their disabled peers. This is because of wide acceptance of the medical model of disability. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
6. On the Road to Damascus: first steps towards changing the relations of disability research production.
- Author
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Zarb, Gerry
- Subjects
RESEARCH ,ORGANIZATION ,SOCIOLOGY ,CONSULTATION-liaison psychiatry ,PEOPLE with disabilities ,SOCIAL systems - Abstract
This paper distinguishes between participatory and emancipatory research, and discusses how both differ from other research practice. A further distinction is made between material and social relations of disability research production. It is argued that, although there are significant constraints imposed by the material relations of research production, genuine progress can still be made in changing the social relations of disability research. Based on the experience of doing research commissioned by organisations of disabled people and other work carried out within a framework of `user's perspectives' on services and policy, the discussion focuses on the lessons we have learnt-and those we still need to learn-about how to change the relations of research production. Consultation between researchers and disabled people, subjecting research to critical scrutiny, and making researchers accountable to disabled people are suggested as key issues in the development of participatory research. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
7. New Disability Services: the critical role of staff in a consumer-directed empowerment model of service for physically disabled people.
- Author
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Brown, Christopher and Ringma, Charles
- Subjects
SERVICES for people with disabilities ,CHARITABLE uses, trusts, & foundations ,CUSTOMER services ,EMPLOYEES ,SELF-efficacy - Abstract
Australian disability services have undergone a major review. Initiated by the government and now enshrined in new legislation, this review has significant implications for non-government social welfare organisations as major service providers in that it demands a significant service delivery reorientation. This paper describes one demonstration project involving four physically disabled persons, one female and three male; located in one domiciliary unit which signposts this new service direction and identifies it as a consumer- directed and empowering model. This is contrasted with previous institutional and care models of service It identifies the staff role as important in this client-empowering model of service and raises a range of critical issues in the consumer-staff interface which enhances such empowerment. The paper suggests that where these staffing features and empowerment processes are lacking deinstitutionalisation may well have occurred without consumer empowerment being achieved. [ABSTRACT FROM AUTHOR]
- Published
- 1989
- Full Text
- View/download PDF
8. Interdisciplinary and Interorganizational Concerns in the Development of Technology for Physically Disabled Persons.
- Author
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Shalinsky, William
- Subjects
PEOPLE with disabilities ,ASSISTIVE technology ,ACCESSIBLE design ,TECHNOLOGY ,SOCIAL psychology - Abstract
This paper focuses on interdisciplinary and interorganizational concerns which are involved in the development of technology which will be of use to physically disabled persons. The paper is divided into five parts: (1) The concepts, interdisciplinary' and `interorganizational' are described and defined. (2) Then, a number of concerns and problems involved in interdisciplinary and interorganizational work are identified. (3) From parts 1 and 2, an interdisciplinary/interorganizational framework is developed. (4) This framework is then used to analyze some problems and to examine possible solutions, focusing on the development of technology for physically disabled persons. (5) The paper ends with conclusions and recommendations, [ABSTRACT FROM AUTHOR]
- Published
- 1989
- Full Text
- View/download PDF
9. Mental Retardation: social construction or clinical reality?
- Author
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Lea, Susan J.
- Subjects
INTELLECTUAL disabilities ,SOCIAL constructionism ,DISCUSSION ,PEOPLE with intellectual disabilities ,AWARENESS ,CONSTRUCTIVISM (Psychology) - Abstract
In this paper issues relating to the social construction of mental retardation are raised. The writings of a group of six people, diagnosed as moderately mentally retarded, are used to highlight several areas of debate. It is argued that labeling people as mentally retarded, particularly those deemed mildly or moderately retarded, is not necessarily of benefit to those individuals. Furthermore, this process establishes and perpetuates the notion that people so-called are incapable of acting in their own best interests. The work of the six people used in this paper challenges these notions, and suggests that many people who are labeled as mentally retarded are aware of their needs and are able to express these coherently. [ABSTRACT FROM AUTHOR]
- Published
- 1988
- Full Text
- View/download PDF
10. A Vocational Special College: preparing students for a participatory democracy?
- Author
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Swain, John
- Subjects
CITIZENSHIP ,ETHNOLOGY ,TEACHERS ,POLITICIANS ,EDUCATION ,STUDENTS ,PARTICIPATION ,VOCATIONAL education ,UNIVERSITIES & colleges - Abstract
This paper is based on an ethnographic type study of the say that young people have in the decisions which shape their education and their lives. Such student participation in decision-making is not only a challenge to an essentially authoritarian system in which education is controlled by teachers, politicians and others, it is the foundation of citizenship. The research was undertaken in a newly established, supposedly unique, vocational college for 14-18 year-olds. The analysis of data was structured in a framework of participative democracy: freedom, equality and fraternity. Using this framework, the paper examines the development of power structures, power relations and ideologies which maintain status quo, and define and determine the say young people have in decision-making. It addresses the denial of any foundation for active participatory citizenship in a segregated educational setting. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
11. Erasing Mothers with Disabilities through Canadian Family-related Policy.
- Author
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Blackford, Karen A.
- Subjects
PEOPLE with disabilities ,MOTHERS ,DISCRIMINATION (Sociology) ,FAMILIES ,EQUALITY ,GOVERNMENT policy - Abstract
Through public policy the Canadian state claims to empower disadvantaged groups such as disabled mothers and their families. Equality means accommodation of difference and a fair share of society's resources according to the principles of Section 15 in the Charter of Rights and Freedoms. Through an examination of family-related policy, procedures and financing this paper shows how women with disabilities have been disadvantaged in regard to mothering. The author argues that where disabled mothers have experienced discrimination, they have been restricted in their rights as Canadian citizens. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
12. Vunerable Victims? A current awareness of the victimisation of people with learning disabilities.
- Author
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Williams, Christopher
- Subjects
LEARNING disabilities ,COGNITION disorders ,CRIME victims ,CRIME victim surveys ,SOCIAL science research ,LITERATURE - Abstract
The general victimization of adults with learning disabilities has received little significant attention. This position paper outlines relevant literature, and a current awareness of the nature of victimization, police and reporting, and court procedures. It aims to provide a basis for research or other actions, which can contribute to minimizing victimization and maximizing the means of support and redress for victims. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
13. A Shared Presentation: two disabled women on video.
- Author
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Corbett, Jenny, Jones, Elaine, and Ralph, Sue
- Subjects
TELEVISION broadcasting ,PEOPLE with disabilities ,EDUCATIONAL technology ,FUNDRAISING ,AUDIOVISUAL materials ,SOCIAL science research - Abstract
In this paper we share our collaborative experience of making a video in which disabled women present their lives as they wish to portray them. We undertook what we hope will be perceived as emancipatory research, in which disabled and non-disabled women work together to create audio-visual teaching materials. We include a preliminary discussion about the representation of disability on British television broadcasts between October 1991 and March 1992. We look at negative imagery, charity fund raising, and positive images. The paper uses comments by disabled broadcasters and disabled academics, and reflects on their work. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
14. The Life Cycle and Support Networks of Families with a Person with a Learning Difficulty.
- Author
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McGrath, Morag and Grant, Gordon
- Subjects
LEARNING disabilities ,CHILDREN ,OLDER people ,TEENAGERS ,HUMAN life cycle ,SOCIAL networks ,FAMILIES - Abstract
This paper presents data from semi-structured interviews with 190 families enabling comparisons across the life cycle of problems faced by carers of children and adults with learning difficulties, the informal support received and support from the statutory services. The size of the kin support network described was inversely related to the number of marked behaviour problems. Age, social class and degree of handicap were all found to be associated with different expectations about services and services received. Frequency of professional visits appeared to relate more to dependency levels and age than to numbers of behavioural problems. One implication of these trends was a marked service deficit for carers of adults with either high levels of dependency or challenging behaviour. Two groups of carers were particularly vulnerable-carers of adolescents and carers of individuals aged 40 years or over. The implications for professional practice are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
15. Simulation Exercises in Disability Awareness Training: a critique.
- Author
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French, Sally
- Subjects
PEOPLE with disabilities ,AWARENESS ,ATTITUDE (Psychology) ,DISABILITIES ,TRAINING ,ABILITY - Abstract
Families This paper takes a critical look at simulation exercises. Little evidence exists that these exercises have a positive effect on either attitudes or behaviour but, despite this, they are used extensively in disability awareness training, both for children and adults. It is argued in this paper that by individualising and medicalising disability, and by focusing excessively on problems and difficulties, simulation exercises provide false and misleading information, and inculcate negative, rather than positive, attitudes towards disabled people. It is suggested that simulation exercises fail to simulate impairment correctly, and address neither the coping strategies and skills disabled people develop in living with impairment nor the cumulative social and psychological effect of encountering social and physical barriers over a lifetime. Rather than using simulation as a means of attempting to understand the experience of disability, the paper concludes by advocating the use of disability equality training, which is devised and run by disabled people themselves. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
16. Clothing Workshops: shaping services to individual needs.
- Author
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Guthrie, Sally
- Subjects
ADULT education workshops ,CLOTHING & dress ,PEOPLE with disabilities ,FINANCIAL security ,SELF-esteem ,BUREAUCRACY ,NONPROFIT organizations - Abstract
The government's community care proposals give importance to the role of voluntary and not-for-profit organisations in meeting the needs of elderly and disabled people, and underline the need for local authorities to foster their development. To do this, they must ensure their financial security. This paper reports the decline of the specialist clothing workshops which, because of changes in government funding, have dwindled from more than 20 in 1988 to five at resent. The importance of this service to disabled people is discussed. Although many value skilled advice and sympathetic personal attention, for a few there is no other alternative than specially made or adapted clothing. It enhances self-esteem, independence and participation, as well as practical benefits. However it is an expensive service, so that subsidy is essential. Recommendations for the future of the service are outlined. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
17. Does She Boil Eggs? Towards a Feminist Model of Disability.
- Author
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Lloyd, Margaret
- Subjects
PEOPLE with disabilities ,WOMEN ,FEMINISM ,DISCRIMINATION (Sociology) ,GENDER ,SOCIAL services - Abstract
The Social Model of Disability is increasingly recognised as the theoretical and ideological underpinning for the collectivisation and politicisation of disabled people. This paper examines the Social Model from the perspective of disabled women. It then considers the position of disabled women in relation to both the women's movement and the disability movement. It argues that the former is oriented towards non-disabled women and the latter towards disabled men, with a consequent further marginalisation and disempowering of disabled women. Drawing on the history of black feminism, the author (who is a white non- disabled woman, and who teaches anti-discriminatory social work practice based on an integrated theoretical model) concludes by offering to disabled women a reframing of the analysis in which to explore their simultaneous experiencing of their gender and disability. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
18. Cultural Differences: Deaf and hearing researchers working together.
- Author
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Jones, Lesley and Pullen, Gloria
- Subjects
HEARING impaired ,CULTURE conflict ,CULTURE ,SIGN language ,LANGUAGE & languages ,SIGNS & symbols - Abstract
This article is based on several years of research done by the two authors, one of whom is Deaf and the other hearing. The paper discusses research done within the Deaf community using sign language. This is an estimated 50,000 people-the same number as those whose first language is Welsh. The Deaf community sees itself as a linguistic and cultural minority and as such is quite distinct from people with an acquired hearing loss, or those who are hard of hearing and who usually rely on written and spoken English through lipreading or writing things down. The paper sets this research in the context of cross-cultural research and looks at its connections with emancipatory research. The central discussion is in the form of a dialogue between the Deaf and hearing researchers and their personal responses to cultural differences. in the past Deaf people have been denied the opportunity of making their opinions known because research has used written or spoken language. Our research, using video- cameras to record sign language and Deaf research using sign language to interview, provides a means of interviewing more suited to Deaf people than to hearing researchers. However, as the hearing culture is likely to be perceived as the dominant culture, there are bound to be differences when a hearing and Deaf researcher are working together within the Deaf community. These are the issues which we discuss within Deaf research. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
19. Disability Simulations: logical methodological and ethical issues.
- Author
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Kiger, Gary
- Subjects
PEOPLE with disabilities ,DISABILITY studies ,ETHICS ,SOCIOLOGY ,HUMAN behavior ,ATTITUDE change (Psychology) - Abstract
This paper examines issues of theory, methods and ethics in the use of disability simulations. Much of the educational, rehabilitation and counseling literature encourages teachers and counselors to use simulations to reduce prejudice toward persons with disabilities. However, the disability simulation literature reveals that: (a) there is typically a failure to consider the relationship between social/behavioral science theory and simulation design; (b) there are methodological weaknesses in most of the studies that render them virtually worthless to evaluate attitude change; and (c) there is little discussion of ethical concerns in disability simulations. A research agenda is proposed that focuses on logical, methodological and ethical issues in disability simulations. It is argued that simulations can be effective if: (a) certain ethical precautions are taken; (b) activities are well designed and evaluated; and (c) the simulation exercises are closely linked to social/behavioral science theory. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
20. Towards a Sociological Critique of the Normalisation Principle.
- Author
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Chappell, Anne Louise
- Subjects
LEARNING disabilities ,CAREER development ,METHODOLOGY ,PARENTS of children with disabilities ,HEALTH planning ,COGNITION disorders - Abstract
The normalisation principle is the dominant paradigm in the field of learning difficulty research and service development. This paper attempts a sociological examination of the normalisation principle. It argues that the location of learning difficulty as a practice-oriented issue and its absence from a sociological agenda have rendered normalisation theoretically weak. The critique discusses the following points. The concerns of the normalisation principle reflect those of professionals rather than of people with learning difficulties. Normalisation lacks an exploration of the power relationship between (able-bodied) professionals and (disabled) service users. Finally, it encompasses no analysis of the material and ideological factors which socially construct learning difficulty and disempower and (literally) impoverish people with learning difficulties. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
21. Cultures in Contact: deaf and hearing people.
- Author
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Kyle, J. G. and Pullen, G.
- Subjects
DEAF people ,SOCIAL services ,SOCIAL influence ,EDUCATION ,PROFESSIONALISM ,MINORITIES ,SELF-perception ,SOCIAL history - Abstract
Despite their relative invisibility, deaf people have a well established position in our special education and social services. They are a group to be cared for. Yet they have not always been like that nor do we believe they should be seen only in this light. This paper examines how social pressures have acted on deafness in work, in education, in the professionalisation of services, have impinged on deaf people themselves, and have created a misunderstood and under-estimated minority. We consider the current situation of deaf people in terms of their lack of power, the new emergence of their language and culture and the use of signing in education. All of these aspects highlight the need to reconsider our treatment of deaf people and the paper encourages some self-examination of professional roles. [ABSTRACT FROM AUTHOR]
- Published
- 1988
- Full Text
- View/download PDF
22. A Comparison of Federal Laws Toward Disabled and Racial/Ethnic Groups in the USA.
- Author
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Barnartt, Sharon N. and Seelman, Katherine
- Subjects
DISABILITY laws ,FEDERAL government ,ETHNIC groups ,RACISM ,DISCRIMINATION (Sociology) - Abstract
This paper asks if federal legislation for disabled people differs from that for racial/ethnic groups in the United States. It compares the history and content of federal legislation which affects each group, and it compares the ways existing laws for each group handle the issues of employment discrimination, integration in education, access, and equal protection under the law. It shows that there are clear differences in content and coverage for each group in types of discrimination permitted under existing federal laws. [ABSTRACT FROM AUTHOR]
- Published
- 1988
- Full Text
- View/download PDF
23. From Communities to Neighbourhoods - I.
- Author
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Baldwin, Steve
- Subjects
NEIGHBORHOODS ,HEALTH care industry ,MANAGED care programs ,HUMAN services ,PUBLIC health ,PUBLIC welfare - Abstract
Increasing confusion and dissatisfaction with so-called `care in the community' and `community care' initiatives has prompted a search for greater clarity and accuracy in human services. An attempt has been made to specify some of the means and ends required to establish local comprehensive services for a range of client groups. The first of two papers describes some of the skills required by workers for successful involvement and examines methods of developing individual neighbourhoods. Tensions between clients, users, residents, planners and workers are examined within the context of integrative neighbourhood services. A subsequent paper describes the means by which this transition to local neighbourhood services is planned, recorded and evaluated. [ABSTRACT FROM AUTHOR]
- Published
- 1987
- Full Text
- View/download PDF
24. Social Policy and Disability: some theoretical issues.
- Author
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Oliver, Mike
- Subjects
PEOPLE with disabilities ,SOCIAL policy ,SOCIAL history ,SOCIAL theory ,SOCIOLOGY ,SOCIAL sciences - Abstract
This paper suggests that current ways of thinking about disability are inadequate, both theoretically. and as a basis for social policy. The main reason for this is that most writers have remained locked within a 'personal tragedy theory of disability' and have failed to examine the concept of disability critically. Even those writers who have attempted to take disability seriously have failed to move beyond a traditional framework and have subsequently produced sterile accounts. The final section of the paper begins to suggest what a social theory of disability might look like. [ABSTRACT FROM AUTHOR]
- Published
- 1986
- Full Text
- View/download PDF
25. Personal Responses to Traumatic Brain Injury: a qualitative study.
- Author
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Crisp, Ross
- Subjects
BRAIN injuries ,DATA analysis ,ETHNOLOGY ,PEOPLE with disabilities ,SOCIAL networks ,EXPERIMENTAL design - Abstract
This paper reports the findings of a qualitative study of ten persons with traumatic brain injury (TBI) based upon a series of in-depth interviews conducted over a period of 12 months. Data was analysed with procedures similar to those utilised by rounded theory and ethnographic researchers, and resulted in a typology that reflected different experiences of living with TBJ as well as different meanings it had for persons with TBI. A thematic analysis of the data yielded information about self, disability and handicap, and involvement in social networks; and, reflected the participants' sense of personal well-being. This analysis provided an alternative to the data yielded by traditional quantitative research designs. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
26. Sex Education Programmes for Students with Severe Learning Difficulties in Further Education and the Problem of Evaluation.
- Author
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Lawrence, Paul and Swain, John
- Subjects
SEX education ,STUDENTS ,LEARNING ,METHODOLOGY ,SELF-confidence ,EDUCATIONAL evaluation - Abstract
This paper is based on a qualitative study of the evaluation of sex education programmes for young people with severe learning difficulties. In an area so fraught with dilemmas and controversies, any such research will be problematic and tentative. The approach to evaluation described here is one which attempts to realise the right of people with learning difficulties to make informed choices. The course aims both to provide students with information which has traditionally been denied to them and to pro mote greater self-confidence. The evaluation methodology which has been developed embodies principles which seek to empower young people with learning difficulties. The questions which arise reach not only into the lives, feelings and values of individuals, but also confront the oppression of people with learning difficulties in our society. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
27. Accentuate the Positive: a personal profile of a parent with learning difficulties.
- Author
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Booth, Wendy and Booth, Tim
- Subjects
LEARNING ,PARENTS ,PLANNING ,MATURATION (Psychology) ,EDUCATION ,DEVELOPMENTAL psychology - Abstract
This paper uses case material from a research study of parents with learning difficulties to show why parental competence can only be assessed in the context of people's lives and upbringing. Drawing on the ideas of futures planning, a distinction is made between a `deficiency perspective' and a `capacity perspective' on persona! development. These two perspectives are applied to the analysis of the personal profile of a parent with learning difficulties. The results present a challenge to the presumption of incompetence that often informs the professional response to parenting by people with learning difficulties. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
28. Who Shall Decide? The Relevance of Theory and Research to Decision-making by People with an Intellectual Disability.
- Author
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Jenkinson, Josephine C.
- Subjects
PEOPLE with disabilities ,DECISION making ,INTELLECTUALS ,SENSORY perception ,PSYCHOLOGY ,HUMAN behavior - Abstract
In the context of normalisation and rights recognition, capacity for decision-making by people with an intellectual disability has emerged as an important but potentially contentious issue. Although increased community integration has opened up many new options, opportunities for greater autonomy are still unnecessarily constrained. Perceptions of limited competence, the issue of who has control over choices, and organisational structures are some of the factors which influence the extent to which clients are able to make decisions. This paper argues that, in order to resolve these issues, decision-making by people with an intellectual disability should be studied within the broader context of psychological theories of decision-making and human behaviour. Theoretical findings are reviewed and areas identified in which decision-making behaviour may break down. The relevance of theoretical research to issues of competence and empowerment, and to the small body of research on decision-making and choice by people with an intellectual disability is discussed. It is concluded that future research should focus on contextual variables, including the nature of the decision to be made, which affect decision-making competence in people with an intellectual disability. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
29. The Politics of Integration--new sites for old practices?
- Author
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Slee, Roger
- Subjects
EDUCATION ,STUDENTS ,DEBATE ,EDUCATION policy ,SCHOOLS - Abstract
Public education authorities throughout the Australian States and Territories have moved towards the development of policies and programmes to integrate students considered disabled into regular classrooms. The implementation of policy frequently is reduced to disputation over resources which, it is argued, will facilitate integration. This paper contends that such debates sustain the flawed notion that integration is simply a technical issue to be achieved through deployment of special equipment and personnel to regular schools, recommending a further consideration of the contribution of pedagogy, curriculum and school organisation to disabling or enabling educational programmes. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
30. An Open Letter to the Powers that Be.
- Author
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Barton, Len
- Subjects
DISCRIMINATION (Sociology) ,DEAF people ,OPPRESSION ,PEOPLE with disabilities ,EDUCATION ,HUMANITY ,CITIZENSHIP - Abstract
This paper examines a case of discrimination against a deaf person at senior management level in education to illuminate the mechanism of discrimination and how, even when challenged, it can become a full-blown and deliberate victimisation and oppression. It questions the status of non-disabled 'experts' who mislead disabled people by encouraging them to adhere to unrealistic role concepts and expectations in pursuit of the perfect role model of the skilled disabled professional who can function in the absence of appropriate support, by isolating them from their own context, self-image and sense of humanity as disabled people. It further attempts to show the nature and extent of language abuse, institutional cultural monopoly and double standards which relegate disabled people to third class citizenship within diseased institutional frameworks, and suppress the possibility of a diversity of knowledge, skills, understanding and learning which makes for a more health)' 'affective climate' in education and society at large. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
31. The Struggle for Citizenship: the case of disabled people.
- Author
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Barton, Len
- Subjects
CITIZENSHIP ,PEOPLE with disabilities ,DISCRIMINATION (Sociology) ,HUMAN rights ,RESPONSIBILITY ,COMMITMENT (Psychology) ,FEDERAL government - Abstract
The notion of `citizenship' has become a popular slogan of governments who espouse a commitment to democratic ideals. Such discourse tends to emphasis responsibilities with little serious significance being given to the quarrel of rights. In this paper we explore the continual discrimination which disabled people experience and which militates against the realisation of meaningful citizenship. struggle for citizenship is viewed as an affirmation of the value of choice, independent and control which disabled people conceive in terms of human rights. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
32. Integration of Students with Disabilities into Regular Schools: policy in use.
- Author
-
Mousley, Judith A., Rice, Mary, and Tregenza, Karen
- Subjects
SCHOOL integration ,STUDENTS with disabilities ,SCHOOLS ,GOVERNMENT policy ,HIGH school teachers ,PRIMARY school teachers ,SPECIAL education - Abstract
In the state of Victoria, Australia, the right of all children to be educated in a regular school has been Ministerial policy since 1984. However, the issue of integration of students with disabilities into mainstream schools is problematical because of the ways that practitioners interpret this policy. This paper summarises research on the attitudes of 194 primary and secondary school teachers to integration and discusses how these are impacting on the implementation process. It is argued that it is difficult to develop policies which define 'what will be' without careful consideration of 'what is' in terms of history, beliefs and attitudes. The researchers found that ideas arising from the practices of 'special' education are being imposed on the integration process, limiting teachers' visions of educational opportunity for all. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
33. A Curriculum Model for a Community Development Approach to Community-based Rehabilitation.
- Author
-
Twible, Robyn L. and Henley, Elizabeth C.
- Subjects
REHABILITATION ,COMMUNITY development ,CURRICULUM ,ADULT learning ,DEVELOPING countries - Abstract
Community-based rehabilitation (CBR) is not a new concept but has become the focus for groups such as the World Health Organisation and other international aid agencies in facilitating the availability of rehabilitation services in developing countries throughout the world. Although much of the literature debates institutional versus community-based services and auxiliary versus fully trained personnel little information is available to address the curriculum issues relating to training personnel to undertake CBR activities. The purpose of this paper is to present a curriculum model for preparing and implementing short programme workshops to encourage the development of CBR in different cultural settings. The curriculum model has foundations which are firmly rooted in curriculum and educational theory and concepts. it provides a flexible adult learning approach to introduce the broad concepts of CBR, providing the participants with culturally relevant, concrete, practical tools to allow the implementation of CBR activities. The workshop model has been used successfully with participants from diverse or homogeneous backgrounds. [ABSTRACT FROM AUTHOR]
- Published
- 1993
- Full Text
- View/download PDF
34. A Review of Fathers' Accounts of their Experiences of Parenting Children with Disabilities.
- Author
-
Hornby, Garry
- Subjects
CHILDREN with disabilities ,CARE of children with disabilities ,PARENTING ,FATHERS ,PARENT-child relationships ,SIBLINGS - Abstract
Research on the effects on families of having a child with a disability has focused mainly on mothers or siblings with little attention being paid to fathers. While there is now a rowing number of research studies and reviews regarding such fathers it is also important to assess fathers' own perceptions of their experiences. One source of fathers' perspectives are the published accounts by fathers of their experiences of parenting children with disabilities. This paper contents of a review of all eight such accounts which were located in the literature. Common themes which emerge from the review are discussed in the light of existing literature on the effects on family members. Finally the limitations of this review are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
35. Listening To Hidden Voices: power, domination, resistance and pleasure within Huronia Regional Centre.
- Author
-
Jones, Kathy
- Subjects
INSTITUTIONALIZED persons ,LEARNING disabilities ,INDIVIDUALIZED instruction ,IDENTITY (Psychology) - Abstract
A great deal of material has been written regarding the effects of institutional living on people with learning difficulties. Much of this literature focuses on the negative aspects of institutionalization and views the individual as `products' of these experiences. This paper argues that adults with learning difficulties are active participants in creating their own sense of cultural identity and community. Stories of four adults with learning difficulties, who have grown up in an institution in Ontario are used to explore how they envision a sense of their community through their shared experiences. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
36. A 'Simple' Farmer Accused of Murder: community acceptance and the meaning of deviance.
- Author
-
Bogdan, Robert
- Subjects
DAIRY farmers ,DEVIANT behavior ,MURDER ,PEOPLE with intellectual disabilities ,COMMUNITIES ,PSYCHOLOGICAL research - Abstract
For all of their adult years the Ward brothers have been subsistence dairy farmers in a small rural community in central New York. In the spring of 1990 one of them was found dead and his brother, Delbert., was charged with murder and subsequently tried. A psychologist who testified for the defense put Delbert through a range of standard diagnostic procedures and declared he was "mentally retarded." Townfolks reacted to the events with a tremendous outpouring of untitled support for Delbert and his brothers. Their reaction was so emphatic and so pronounced it attracted regional and national media attention. Paralleling current interest in the integration of people with various disabilities into the community, this paper discusses this family's natural acceptance in the community and the nature of community support. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
37. Concepts of Mental Retardation in Pakistan: toward cross-cultural and historical perspectives.
- Author
-
Miles, M.
- Subjects
INTELLECTUAL disabilities ,HEGEMONY ,CHILDREN with disabilities ,TEACHER training ,CROSS-cultural studies ,FAMILY counseling - Abstract
This paper reviews concepts of mental retardation in Pakistan against an historical Asian and Islamic background, and discusses some hazards of Western cultural hegemony in this field. Evidence is presented from official document; attitude surveys, a service development project and experiences in teacher training and family counselling. Families presenting their 'different' child usually offer comments on appearance, behaviour, capacity to learn, developmental progress and etiology. Since most family relationships and structures in Pakistan differ substantially from norms in Western countries, Western notions of 'independent living' and 'self-advocacy' are of questionable relevance. The socio-cultural construction of mental retardation is considered in the light of Pakistan's high national rate of non-literacy. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
38. Counting Us Out: a discussion of the OPCS disability surveys.
- Author
-
Abberley, Paul
- Subjects
PEOPLE with disabilities ,METHODOLOGY ,THEORY of knowledge ,SURVEYS ,SOCIAL systems ,POVERTY - Abstract
This paper provides a summary of the main findings of the first two OPCS reports on disability and a critique of the methodology employed. Whilst the first report highlights the systematic underestimation of the prevalence of disability which was enshrined in previous government research, it should by no means be interpreted as providing the 'true' figure. Such a project is an impossible one, since `disability' is a social construct, and definitions dependent upon the interest; intentions and presuppositions of those with the power to define. As far as the severity scales are concerned; a wholly spurious `objectivity' is identified. The second report, on financial circumstances, does implicitly provide official recognition that disability causes poverty. Because of the research methods employed; however, ft fails even to approach an adequate quantification of the financial disadvantages experienced by disabled people. A critical understanding of the deficiencies of the OPCS surveys, in terms both of overall approach and of method, can provide a salutary example of how not to research issues of disability. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
39. Personal and Political: a feminist perspective on researching physical disability.
- Author
-
Morris, Jenny
- Subjects
FEMINISM ,METHODOLOGY ,SOCIAL movements ,PEOPLE with disabilities ,DISABILITIES ,SOCIETIES - Abstract
Feminist theory and methodology have much to offer in understanding how disability research has been experienced as alienated research by disabled people- However, feminist research has failed to apply its principles to disability and disabled women's subjective reality has found no place in mainstream feminist work. The paper identifies the challenges for feminism in addressing the interests and reality of disabled women, asserting that it is not helpful to focus on `double disadvantage. Disability research itself has much to learn from feminist methodology, in particular the principle of making the personal political. The role of non-disabled researchers as allies of disabled people is discussed, and the importance of research which turns the spotlight on the way in which non-disabled society oppresses disabled people. Finally, it is asserted that disability research and politics are of genera! relevance because the experience of disability is an integral part of a society characterised by fundamental inequalities and ideologies which divide people against each other. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
40. Qualitative Research: valuable or irrelevant?
- Author
-
Barnes, Colin
- Subjects
QUALITATIVE research ,RESEARCH ,INFORMATION services ,YOUNG adults ,METHODOLOGY ,PARADIGM (Theory of knowledge) - Abstract
This paper evaluates qualitative research methods in relation to the emancipatory research model. It identifies the main reasons why researchers opt for qualitative research, describes the principal data collection techniques used by them, and discusses some of the problems associated with these procedures. Drawing on insights gained from doing qualitative research in day centres for disabled young adults, I argue that these methodologies are fundamental to the emancipatory research paradigm; but their relevance can only be determined by researchers' willingness to challenge the institutions which control disability research production. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
41. Changing the Social Relations of Research Production?
- Author
-
Oliver, Mike
- Subjects
RESEARCH ,PEOPLE with disabilities ,DISABILITIES ,SOCIAL alienation ,SOCIAL psychology ,SOCIAL sciences - Abstract
This paper will argue that research on disability has had little influence on policy and made no contribution to improving the lives of disabled people. In fact, up to now the process of research production has been alienating both for disabled people and for researchers themselves. Neither positivist nor interpretive paradigms are immune from the characterisation of research as alienation, and hence it is suggested that the only way to produce unalienazed research is to change the social relations of research production, This change will require the development of an emancipatory research paradigm and both the development of and agenda for such a paradigm are briefly considered. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
42. Observing the Delivery of a Domiciliary Support Service.
- Author
-
Evans, Gerry, Felce, David, De Paiva, Siobhan, and Todd, Stuart
- Subjects
CAREER development ,LEARNING ,METHODOLOGY ,PARENTS of children with disabilities ,CHILD care ,HEALTH planning - Abstract
This paper describes a study of the work of domiciliary support services which have been developed under the All- Wales Strategy for services to people with learning difficulties. The study employed direct observation methodology to describe the pattern of activities of domiciliary support workers and their clients. Twenty-eight sessions were observed with the work of the domiciliary support worker with each client being observed twice. The pattern of work observed broadly fell into four categories: physical care in the family home, sitting-in; support for skill development and support in community activities. The results revealed that while support workers worked with skill and sensitivity in the family home they require further guidance and support if they are to assist successfully in skill development and community integration activities. [ABSTRACT FROM AUTHOR]
- Published
- 1992
- Full Text
- View/download PDF
43. Self-concept Formation and Physical Handicap: some educational implications for integration.
- Author
-
Lawrence, B.
- Subjects
SELF-perception ,DISABILITIES ,DEVELOPMENTAL psychology ,SELF-esteem ,BODY image ,SOCIAL interaction - Abstract
The self-concept is an image which an individual has of themselves (Bums, 1982). It is formed by a conceptualization process (Kelly, 1955) which requires experiences for information. Much of the psychological development of a person is bound up with the emerging sense of self but in spite of its importance, the phenomenon of the self is one of the most difficult to explain. Physical ability could be said to be crucial to the way an individual becomes conscious of and develops a unique separate identity. It facilitates conceptualization fry receiving stimuli, interpreting information and enabling response. it is also of paramount importance in the area of general mobility, maintaining body functions, and enhancing the whole early learning processes of social interaction, the building of self-esteem and the achievement of life goals. Other people's perception of an individual and that individual's perception of themselves will be greatly affected by physical appearance as well as mental achievement. Therefore, because the physical component is such an important factor in the development of the individual (Cohen, 1977) it could be argued that physical. handicap probably affects self-concept formation most profoundly. This paper outlines relevant theories of self-concept and discusses the relationship between self-esteem and body image The possible impact of physical handicap on self-concept formation will then be examined. Finally, educational implications and conclusions will be draw; especially in the light of the policies and initiatives now afoot to include physically handicapped pupils into mainstream school. [ABSTRACT FROM AUTHOR]
- Published
- 1991
- Full Text
- View/download PDF
44. An Ecological Model of Social Interaction between Deaf and Hearing Students within a Postsecondary Educational Setting.
- Subjects
STUDENTS with disabilities ,POSTSECONDARY education ,SOCIAL integration ,INTERPERSONAL relations ,MATHEMATICAL models - Abstract
Deaf Students are enrolling in postsecondary educational institutions in the United States in greater numbers than ever before. However, attrition rates remain high. Models for explaining persistence in college link success to student integration within the informal and social fabric of their institution. The research reported in this paper is the result of a study of social integration of deaf and hearing students within a residence hall on the campus of Rochester Institute of Technology. It was found that characteristics of both the individual and of the postsecondary environment are important in explaining interaction levels. An ecological model is proposed as a framework for describing and analyzing student integration within informal and social dimensions of college life. [ABSTRACT FROM AUTHOR]
- Published
- 1991
- Full Text
- View/download PDF
45. The Social Basis of Conflict between Blind People and Agents of Rehabilitation.
- Subjects
SERVICES for blind people ,SUPPORT groups ,CUSTOMER services ,PROFESSIONAL employees ,ASSOCIATIONS, institutions, etc. ,ATTITUDE (Psychology) - Abstract
This paper analyzes the sources of conflict between professionals and organizations providing services and consumer-oriented self-help organizations of blind people. It reviews major developments within this profession and the rejection of the resulting professional ideologies by a new social movement. We demonstrate that there is not a unify of interest between agencies and the recipients of rehabilitation efforts. Professional and organizational self-interests are opposed to consumer efforts to redefine the nature of blindness. As consumer political effectiveness continues to grow, the threat to the funding and public legitimacy of existing programs may result in a change in attitudes toward consumer participation and definitions of blindness. [ABSTRACT FROM AUTHOR]
- Published
- 1991
- Full Text
- View/download PDF
46. Against Pain as a Tool in Professional Work on People with Severe Disabilities.
- Author
-
O'Brien, John
- Subjects
PEOPLE with disabilities ,PAIN ,PROFESSIONALISM ,SOCIAL history ,ETHICS ,ATTITUDES toward work - Abstract
This paper discusses the ethics of professional use of pain as a means of changing people with severe disabilities. It states principles for selecting responses to a person who injures self or other; distinguishes the professional application of pain from other occasions of pain, examines the limits of dealing with the ethics of inflicting pain from within the perspectives of professionalism and due process, and identifies some social conditions necessary to reduce the occurrence of pain. [ABSTRACT FROM AUTHOR]
- Published
- 1991
- Full Text
- View/download PDF
47. The Politics of Disability: a new approach.
- Author
-
Oliver, Mike and Zarb, Gerry
- Subjects
PEOPLE with disabilities ,QUALITY of life ,PRESSURE groups ,SOCIAL movements ,SOCIAL history ,ASSOCIATIONS, institutions, etc. - Abstract
This paper will argue that the politics of disability has, so far, been narrowly conceived as pan of the processes of parry and pressure group activity. These approaches will be examined critically and it will be suggested that they are unlikely to produce substantial political gains in terms of ensuring the till participation of disabled people in society or contribute significantly to improving the quality of their lives. Finally, it will be argued that the politics of disability can only be properly understood as pan of the newly emergent social movements of all kinds and it is only within this context that their real significance can be grasped. [ABSTRACT FROM AUTHOR]
- Published
- 1989
- Full Text
- View/download PDF
48. Losing Ground: social policy and disabled people in Great Britain, 1980-90.
- Author
-
Glendinning, Caroline
- Subjects
SOCIAL policy ,SOCIAL security ,INCOME ,PEOPLE with disabilities ,PUBLIC welfare ,MEDICAL care - Abstract
This paper reviews some of the major themes of social policy in Britain over the past decade and examines in detail the impact on disabled people in three major areas: employment income and social security provision; and the organisation and delivery of health and social welfare services. It will be argued that, despite some superficial similarities between the demands of disabled people and the rhetoric of the New Right for reductions in dependency and control by the state, the dominant policy themes of free market force; privatisation and reductions in the scope of welfare state services have not served disabled people's interests welt Moreover, attempts to "protect" disabled people within a much reduced welfare state have not been effective and have in any case had the unwelcome consequence of increasing the scrutiny and control exercised by professionals and others. This stands in contrast to the alternative policy agenda articulated by disabled people themselves, which stresses autonomy, integration, an end to discrimination, and rights -- to equal chances in employment, to an adequate level of income, and to services which enhance personal choice and facilitate independent living. [ABSTRACT FROM AUTHOR]
- Published
- 1991
- Full Text
- View/download PDF
49. The Performance of Blind Israelis at Work.
- Author
-
Deshen, Shlomo
- Subjects
EMPLOYMENT of people with disabilities ,OCCUPATIONAL roles ,BLIND people ,TECHNOLOGY ,EMPLOYEES - Abstract
Blind people in Israel are occupied mainly as telephone switchboard operators and as assemblers in sheltered workshops. The question addressed is how workers maintain their application to work that is repetitive and mentally undemanding. The following practices cover the development of an emphatic labor ethos, and the practice of workers engaging in matters additional to their delimited menial positions at work. Particular differences of practice between individuals and between occupations are linked to organizational features of social situations and job role; rather than to idiosyncrasies of individuals. The findings are linked to the theme of alienation in the sociology of Jabot, and to the effect of technology (specifically the telephone) on social life. The paper is based on observation during 17 months of fieldwork in a population of blind people in Tel-Aviv. [ABSTRACT FROM AUTHOR]
- Published
- 1990
- Full Text
- View/download PDF
50. Special Education and the Explanation of Pupil Performance.
- Author
-
Carrier, James G.
- Subjects
EDUCATION ,EDUCATIONAL psychology ,OUTCOME-based education ,CHILDREN ,SOCIOLOGY ,SCHOOLS - Abstract
Among those who study education systems there has been a general concern with schooling outcomes, which has encouraged a focus on the main classroom and general education. This deflects attention from another important issue, the ways that schools understand differences in pupil performance and identify pupils in terms of that understanding. Concern with this issue encourages a focus on educational psychology and special education, where such understandings are developed overtly and such identifications are made explicitly. The purpose of this paper is to present some of the work in the sociology of special education that bears on this neglected issue. It does so by describing three main themes within the field. These are: cultural understandings of ability and disability, the soda! processes by which children are identified as disabled, and extra-school influences affecting the development and operation of special education. [ABSTRACT FROM AUTHOR]
- Published
- 1990
- Full Text
- View/download PDF
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