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This paper explores the Dementia Enquirers approach to dementia research, and the 10 local projects which have been funded in the first wave of the programme. The paper is written by six people with dementia with expertise by experience, supported by a traditional academic with expertise by research. This co-production enables the voices of people with dementia to be heard, and expands the field of disability studies. The authors discuss problems with traditional academic research, and the different ways that people with dementia go about research. Two examples of research projects led by people with dementia are discussed. The paper explores difficulties people with dementia have had with formal research ethics procedures and how they propose to do things differently. In conclusion, the authors challenge mainstream dementia research to do things differently, and to understand the potential contributions of people with dementia. People with dementia can conduct research People with dementia understand ethics and can come to considered judgements about capacity, consent and the risk of harm. People with dementia may sometimes enjoy advantages in their ways of working Mainstream research and research governance needs to adapt, if people with dementia are to be included. [ABSTRACT FROM AUTHOR]

The purpose of this paper is to raise awareness and to educate researchers about possibilities for inclusive research practices that address concerns faced by researchers with disabilities. In this paper, the authors document their experiences as they attempted to work as an inclusive research team involving one researcher who is hard of hearing and two researchers who are not hard of hearing. Using the participant-as-transcriptionist research project as an example, the authors illustrate how their interactions and learning experiences worked toward inclusion within the research team. Suggestions are provided for other researchers who are committed to building an inclusive research community. [ABSTRACT FROM AUTHOR]

The parenting of children with autism has traditionally been explored through its negative aspects, but researchers have started to look for different parental experiences focusing on the positive experiences, family resilience and strengths of children with autism. A cross-cultural analysis considers that cultural understanding of autism reflects the way different societies and parents understand it, the variation in meanings of health, illness and disability and not simply the amount of information about autism. In a small-scale exploratory study in Spain, 8 parents from different families were interviewed to explore how they experienced their children's autism and their perception of society's response to it. Findings suggested a general lack of information about autism, parents' trouble finding strengths of autism and a division of roles and responsibilities that seems to place a disproportionate load on the mothers. The way that a society understands autism affects how parents experience their sons' and daughters' autism. This paper examines the experiences of parents of children and young people with autism in Spain through semi-structured interviews. The participants of our study did not feel included in Spanish society since many people have misconceptions about autism, do not know how to help and stare at them and their children. The parents of our study seemed to share a medical view of their sons and daughters and only one of them could think of a positive trait of his son, besides being loving. Both fathers and mothers who took part in the study agreed that mothers bear all the responsibility for caring and deciding the therapeutic and educational measures adopted. [ABSTRACT FROM AUTHOR]

This article focuses on the research work of an advisory group. Representation of the feelings and interests of the wider community by the group. The process of developing the article also surfaced the emotional impact of recognizing that, whilst people may not share the same opinion or view, all views are valid. The paper provides important insights on the experience of contributing to the work of the group and the practices that support this. It was co-written using transcripts of discussion together with debate on symbol selection, to select key meanings to share with a wider audience.

The article offers information about the invitation to submit completed doctoral theses in the field of disability studies. The author mentioned that the theses submitted will be an important reading resources for research in the said field. It would also provide the names of the new colleagues who recently joined the discipline. The format of the information needed for submission like the name of the author and title of the thesis, name of the university which awarded the degree, and where to send the theses are also presented.

This paper explores disabled people's access to cross-border mobility within the context of refugee resettlement. The research presented in this paper stems from an ethnographic study involving in-depth interviews, focus groups and participant observations with 15 disabled Somali and Cambodian refugees resettled in the United States. The study combined ethnographic data with information obtained from key experts and interpretive analysis of refugee resettlement policies and guidelines. The findings revealed some shifts within refugee resettlement policies, both domestically within the United States and internationally within the Office of the United Nations High Commissioner for Refugees(UNHCR). Corresponding to these policy shifts, the two refugee groups in the study reported disparate resettlement experiences. While the Cambodian participants reported delays and complications with getting approved for resettlement, the Somali participants described a smooth and streamlined resettlement process. The implications of these findings are discussed within the larger scheme of cross-border mobility for people with disabilities. [ABSTRACT FROM AUTHOR]

This paper problematises the notion of research production within disability studies by comparing literature on emancipatory research with concepts of reflexivity, authority and empowerment employed within ethnographic research. It critically examines a number of proposals within disability studies on how researchers can stimulate or contribute to processes which improve their respondents life conditions. A variety of strategies for change are discussed within the context of how ethnographers do fieldwork, and write up and disseminate their findings. This discussion also questions the role of the researcher and respondent as 'expert', suggesting that ethnographers should not privilege their own perspectives over that of respondents. It is concluded that the variety of research strategies and roles outlined in this paper need not be mutually exclusive and therefore, that there are a number of different yet complementary ways in which researchers can contribute to the conditions within which self-emancipation flourishes. [ABSTRACT FROM AUTHOR]

In this paper we explore how our cultural contexts give rise to different kinds of knowledges of autism and examine how they are articulated, gain currency, and form the basis for policy, practice and political movements. We outline key tensions for the development of critical autism studies as an international, critical abilities approach. Our aim is not to offer a cross-cultural account of autism or to assume a coherence or universality of ‘autism’ as a singular diagnostic category/reality. Rather, we map the ways in which what is experienced and understood as autism, plays out in different cultural contexts, drawing on the notion of ‘epistemic communities’ to explore shifts in knowledge about autism, including concepts such as ‘neurodiversity’, and how these travel through cultural spaces. The paper explores two key epistemic tensions; the dominance of ‘neuro culture’ and dominant constructions of personhood and what it means to be human. [ABSTRACT FROM PUBLISHER]

This paper reports on an exploratory study of the role of solicitors acting for parents with intellectual disabilities (ID) in public law proceedings. The paper draws on in-depth interviews with 11 solicitors and a subsequent focus group in which the interview findings were presented and reflected on by six of the eleven participants. Two of the five themes that emerged will be discussed here. They are entitled ‘Attitudes and Influence’ and ‘Legal Processes’ and concern the attitudes and influence of those involved in assessing, supporting and representing parents with ID and the care proceedings processes encountered by parents with ID. [ABSTRACT FROM PUBLISHER]

Research in higher education, linked to national and international policy, suggests the need for educationalists to show greater understanding and awareness of the lived experiences of undergraduate students with disabilities. These sources argue that this knowledge should then be used to inform their understandings as tutors and facilitate inclusive and effective teaching strategies. This research had a primary focus on first-year students with disabilities’ learning experiences; their transitions from school or college to university and their feedback on positive and negative learning experiences at both levels. Rich, complex stories were uncovered taking the research beyond the lecture theatre and seminar room, into the students’ union bar and back to the Year 10 classroom. It is the intention of this paper to relay some of the stories shared, in particular drawing out findings related to effective learning practices and to note the significance of placing a socio-cultural lens on the question of inclusion in education. [ABSTRACT FROM AUTHOR]

Disability research is conducted within a highly politicised 'hotbed' of competing paradigms and principles. New researchers, who want to work within the social model, are soon faced with complex and challenging methodological and philosophical dilemmas. The social model advocates research agendas that are focused on the emancipation and empowerment of disabled people but, in reality, these are rarely achieved. To be successful researchers need to engage with innovative and creative methodologies and to share their experiences of these within environments that welcome challenge and debate. This paper focuses on Lifeworld and assesses its value as a tool for emancipatory research. Using examples from a study with parents, whose children were in the process of being labelled as having autism, the paper illustrates how the principles that 'underpin' the methodology offered a supportive framework for a novice researcher. [ABSTRACT FROM AUTHOR]

This paper provides a broad-based overview of the development of emancipatory disability research in the UK since its emergence in 1992. Drawing on personal experience in the field, the author responds to several important considerations that need to be addressed before considering adopting this controversial perspective. The paper is divided into two main sections. The first part provides a concise introduction to the thinking that underpins the concept of emancipatory disability research. The second section discusses key elements of this approach including the problem of accountability, the social model of disability, choice of methods and, enpowerment, dissemination and outcomes. The paper concludes by suggesting that whilst there has been considerable progress over the last decade the future of emancipatory disability research remains precarious. [ABSTRACT FROM AUTHOR]

Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England’s National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional ‘deliberating panels’ involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research. [ABSTRACT FROM AUTHOR]

This paper reports some of the findings of an exploratory study which sought to better understand the demographics of forced marriage of people with learning disabilities and the contexts in which such marriages may occur. It was found that forced marriages of people with and without learning disabilities showed broad similarities in relation to ethnicity, some differences in terms of age and substantial differences in terms of gender. Men and women with learning disabilities are equally likely to be victims of forced marriage. The reasons for people with learning disabilities being forced to marry are most often associated with a desire on the part of families to secure permanent care, but can also be associated with cultural (mis)understandings of the nature of disability. These findings are contextualised by considering the relationship between forced marriage, human rights and learning disability. [ABSTRACT FROM AUTHOR]

There has been comparatively little analysis of the ways in which pupils within special education describe themselves. This paper looks at the linguistic repertoires that leavers from special education in Central Scotland drew upon in order to account for their presence in what was seen by those around them as a stigmatising environment. Eighteen special education leavers were interviewed: first of all either before or around the time that they left school; and then, for a second time, between twelve and eighteen months later. This study suggests that these special education leavers drew upon at least four different linguistic repertoires to explain their presence within a segregated environment. Two points emerge from these accounts: first that these repertoires accounted for the lea vers' presence within special education without drawing upon notions of individual pathology; and secondly, that the accounts of these leavers changed according to the differing accounting tasks that the leavers were faced with. The implications of this research for those who work with teenagers and others who are forced to account for their presence in a stigmatising environment is discussed. [ABSTRACT FROM AUTHOR]

The qualitative study presented in this paper explored the perspectives of service-users, family members and staff about the impact of travel issues on the lives of mental health in-patients and carers. This topic was chosen because it was prioritised by members of Xplore, a service-user and carer research group, and has received little research attention. Travel problems were a significant issue for many service-users and carers, bound-up with mental health issues and the recovery experience. Travel facilitation through the funding of taxis and the provision of guides was appreciated. A few service-users and carers positively valued distancing from their previous home environment. The meaning of travel issues could only be understood in the context of individuals’ wider lives and relationships. The significance of the findings is discussed in relation to the social model of disability. [ABSTRACT FROM AUTHOR]

This paper reports findings from a 12-month Australian study exploring beliefs and experiences of disclosure and course success in post-compulsory education for 20 students with mental illness. Enrolled students with disclosed or non-disclosed mental illness, teaching and support staff, and institutional practices across four sites providing vocational education and training were the three cases selected for this collective case study. Students participated in two semi-structured interviews over the course of one academic year. Disclosure was not preferred by students, most fearing that it would negatively impact upon their capacity to obtain employment in the occupation for which they were training. Further research exploring the processes, timing and outcomes of disclosure, in a wide range of post-secondary settings and with larger numbers of students, would allow for a deeper exploration of issues raised by this small study. [ABSTRACT FROM AUTHOR]

This paper reports on exploratory, qualitative research conducted with eight people with experience of mental health treatment about their understanding of decision-making capacity. While acknowledging that there are times when mental or emotional distress can interfere with the capacity to make decisions, participants described how their capacity can be reduced by a set of social and environmental factors. These factors include the lack of treatment options available from which to choose, lack of trust of the information provider, inaccessible information, the effects of medication that literally 'stops your ability to think', lack of empathy with mental or emotional distress, and lack of time to process information. Participants highlighted the issue of power and powerlessness when describing how incapacity is determined within mental health services. Participants' articulations of capacity in relation to mental health are in accord with a social model of disability approach to capacity. [ABSTRACT FROM AUTHOR]

Research on disability issues in countries of the South is primarily dominated by a focus on generating large scale quantitative data sets. This paper discusses the many challenges, opportunities and dilemmas faced in designing and undertaking a qualitative research study in one district in India. The Disability, Education and Poverty Project (DEPP) aims at exploring the role of education in the lives of young people with disabilities living in poverty. A central focus of the research is to engage with the young people with disabilities themselves and to understand how they construed their lives and experiences. This paper discusses three issues which are of central concern to the project: identification of the sample group, appropriateness of the research methods and, finally, an examination of the assumptions underpinning the research process. [ABSTRACT FROM AUTHOR]

Goodley & Lawthom discussed the role of a community psychology approach in conducting emancipatory disability research. While their aims are entirely laudable, they portrayed mainstream psychology as 'pathologising, voyeuristic, individualising, [and] impairment-obsessed'. This paper presents a reply to Goodley and Lawthom's somewhat outdated arguments for the dismissal of mainstream psychology and argues that the focus on a single 'best' method of researching disability does not serve the best interests of disabled people within society. It is argued that to create a 'new' psychology distinct from the 'mainstream' is unnecessary, undesirable and counter-productive. Mainstream psychology has much to offer disabled people and to dismiss it is to throw the baby out with the bathwater. [ABSTRACT FROM AUTHOR]

1997 saw the introduction of the Community Care (Direct Payments) Act in the UK. This piece of legislation introduced a mechanism that enabled local authorities to make cash payments to disabled people aged between 18 and 64 in lieu of directly provided services. The years since 1997 have seen the introduction of additional legislation resulting in direct payments now being an option for many more groups of people, including the carers of disabled children. Following the changes in the legislation, government now wishes to see local authorities significantly increasing the numbers of families that receive direct payments. This paper will report on a research project carried out within one local authority in the north-west of England that has one of the largest numbers of carers of disabled children receiving direct payments in the UK. Using a variety of methods this paper explores how the local authority has made direct payments so widely available to carers and the effect that this has had on their own and their children's lives. [ABSTRACT FROM AUTHOR]

This paper aims to describe research that examined the views of people with physical disability, living in Australia, of their sexual well-being needs from their own perspective. We explored the impact their sexual well-being needs had on their relationships with professional carers. A social model of disability was used to understand how sexual well-being is facilitated or denied in community care. We also explored whether clients’ sexual well-being needs could be met without carers or clients ‘crossing the line’. Our findings indicate the multiple ways that ‘professional boundaries’ were negotiated between clients and professional carers. The data show that the location of the ‘line’ changed, depending on a range of personal, social, economic and environmental factors. The data also show a gap between the sexual well-being needs of people living with a physical disability and the level of support provided at the social and organisational levels. Suggestions are made for research and practice directions. [ABSTRACT FROM AUTHOR]

This paper describes and analyses the author's attempts to engage in a user-led design/research process. This was undertaken during an MA in Design Research for Disability. The first section of the study delineates the background and context of the process of inquiry. This involves examination of the common features within design participation and emancipatory research. The second section of the study uses six principles of emancipatory research, defined by Emma Stone and Mark Priestley (1996), as a framework for analysis of the author's own process of inquiry. [ABSTRACT FROM AUTHOR]

This paper describes the use of and reasons why reconstructed stories were used as a method of presenting and validating the findings from the interview data with visually impaired people obtained from Enfield Vision Research Project, into the needs of visually impaired people resident in the London Borough of Enfield. In order to present and validate the findings of the first 20 interviews the researchers organised a group respondent validation event. The researchers orally presented the findings in the form of reconstructed stories. These stories encompassed a number of themes and sub-themes that had emerged from the analysis. The attendees were separated into two groups to discuss the stories. Thirty-seven of the 90 visually impaired research participants attended the event. The research participants felt that the stories were an effective method in presenting and communicating the research findings. They also confirmed the credibility of the findings, and thereby dependability and confirmability were also achieved. The use of reconstructed stories is a novel, user friendly and effective method of presenting and validating qualitative research data, and is particularly suitable method when the respondents have visual difficulties. [ABSTRACT FROM AUTHOR]

In this article I set out to trace the influence of two major sets of ideas: normalisation/srv, and the social model of disability on inclusive research in learning disability. The argument is that normalisation set the agenda for learning disability research for two or more decades. Inclusive researchers continue to apply normalisation thinking to work with people with learning difficulties, particularly in assuming the role of advocate - offering people the opportunity to take on valued social roles and assuming responsibility for promoting positive images. Latterly, a number of researchers have tried to rise to the challenges posed by emancipatory research, particularly in attempting to find ways to put people with learning difficulties in control. This illustrates the influence of thinking emanating from disability studies. However, the paper shows that whilst some ideas from emancipatory research have been applied in learning disability, there are debates in the disability literature that have not been addressed in learning disability research to date. The result is that inclusive research in learning disability is in danger of being marginalised, both in the context of disability studies and in the context of the broad sweep of learning disability research. [ABSTRACT FROM AUTHOR]

Employment interview research displays a greater concern for refining employment interviews to benefit employers rather than prospective employees. The interviewee's perspective is often overlooked. Further, generally scant attention has been paid to the interview experiences of disabled interviewees. In this paper I present findings from a project that sought to understand disabled interviewees' experiences of employment interviews. My analysis suggests such experiences were dominated by feelings of anxiety and manipulation, particularly when contextualised within contemporary labour market conditions. In this context, I reflect on the need for ethical rather than technical concerns into employment interviews and how innovations in interview techniques may be having a negative affect on interviewees. I further stress the need to reject victim blaming ideologies when researching disabled interviewees' experiences of employment interviews to counter the over emphasis of past research into changing the disabled person rather than the disabling interview environment. [ABSTRACT FROM AUTHOR]

Within the field of disability studies there has been a concentration upon the representation of disabled people's experiences within a social context. However, research into non-disabled people's perspectives on disability and impairment has traditionally been based upon a psychologically-driven individualist model of disability which sees disabled people uncritically as 'the problem'. In this apparent epistemological divide, little work has been done on the exploration of non-disabled people's perspectives from a social model angle. This paper outlines a current study of the formation of such perspectives, and specifically explores the methodological conditioners of such an enquiry. [ABSTRACT FROM AUTHOR]

This paper analyses critically the scant literature which exists on the role of alcohol in the lives of people with learning difficulties. Though the research evidence is largely insecure, it does seem relatively clear that people with learning difficulties drink considerably less and abstain in higher numbers than the general population. In spite of this, the literature is predominantly characterised by a focus on the potential dangers of excessive alcohol consumption. In contrast, the possibility that a great many people with learning difficulties may have their access to alcohol debarred is not considered to be a problem requiring attention. It is argued that this is based on a failure to appreciate the cultural significance of alcohol for most people, and that the discourse on learning difficulties is being underpinned by a concern with physical, but not cultural access. [ABSTRACT FROM AUTHOR]

In this paper it is argued, on the basis of an analysis of data from interviews with practitioners, that the rhetoric of partnership and the 'holistic' approach employed by Occupational Therapists is to be understood as an ideology which serves the occupation's professionalising project. it functions to distinguish Occupational Therapy from other health and welfare specialisms, to perpetuate the notion that disability is an individual problem to which professional intervention can provide the solution, and to ascribe responsibility for any perceived failure in therapy to the client rather than the practitioner. [ABSTRACT FROM AUTHOR]

Disability Studies has begun to interrogate the aesthetics of disability, both in terms of artwork and sensuous apprehension more generally. The present paper is a contribution to this burgeoning literature. Here I seek to demonstrate what the aesthetics of Martin Heidegger offer to that project. I do so in three stages. I begin by reviewing some relevant disability studies literature, highlighting some general themes in Disability Studies’ recent engagement with ‘the aesthetic’, widely defined. Next, I turn to the phenomenology of Martin Heidegger, to add some further philosophical depth to this project. In third and final section, I apply Heidegger’s aesthetics to the recently unveiled thalidomide memorial, to demonstrate the empirical worth of his analysis of artwork. I conclude with suggestions for future Disability Studies. [ABSTRACT FROM AUTHOR]

This article is based on an empirical research study of deaf migration, using an intersectional lens. The study of migration and the lens of intersectionality are increasingly being deployed in academic circles but both are very recent when it comes to the study of deaf people. Our key reason for using the lens of intersectionality is twofold. Firstly, we believe that it enables us to highlight the experiences of people who tend to be neglected in the scholarly literature – in this article, our focus will a case study of two Black deaf African migrants. Secondly, we want to encourage the reader not merely to 'add' migration as an identity/experience of the lives of a community of deaf peoples but to examine and explore the interlocking relations of power that they experience. We believe intersectionality is an ideal lens through which to do so. In the literature on the study of disabled people when many identities are being examined it is not always clear if deaf migrants are included; in this article we do so. We studied interviews that had been held covering the life experience of two deaf migrants, which were undertaken within a larger research project. We found it useful to look at deaf migrants' different experiences within institutions such as education and the Home Office, in relation to their identities such as ethnicity, gender, sexuality, class or religion We found that while deaf migrants experience discrimination and racism from deaf and hearing people alike, they also find means of solidarity and support from different hearing and deaf people and groups. It is suggested that social policymakers and deaf communities can miss or neglect deaf migrants' wide range of life experiences – these need to be identified and included when forming policy. [ABSTRACT FROM AUTHOR]

Recently there has been discussion about the emergence of critical disability studies. In this paper I provide an inevitably partial and selective account of this trans-disciplinary space through reference to a number of emerging insights, including theorizing through materialism, bodies that matter, inter/trans-sectionality, global disability studies, and self and Other. I briefly disentangle these themes and suggest that while we may well start with disability, we often never end with it as we engage with other transformative arenas including feminist, critical race and queer theories. Yet critical disability studies reminds us of the centrality of disability when we consider the politics of life itself. In this sense, then, disability becomes entangled with other forms of oppression and revolutionary responses. [ABSTRACT FROM AUTHOR]

This paper analyses a series of representations of disability and rehabilitation taken from research and policy settings in Australia. The purpose of the analysis is to (a) identify the presence or absence of discourses of happiness and joy in the contexts analysed and (b) to analyse the various treatments and interpretations of happiness and joy that are present. Through this analysis we show that while official professional and public discourses on disability and rehabilitation exhibit predominantly negative discursive patterns and features (i.e. aspirations to achieve 'normality' and a negative lexicon, such as disability, coping, rehabilitation, burden, abnormality, etc.) there are many other potentially positive and empowering discursive and narrative patterns and features that remain hidden beneath negatively oriented ways of seeing, being, acting and describing in academic, policy and practice settings. We argue that policy-makers and academics alike need to be sensitive to the dynamics of discourse when constructing research and developing policy. [ABSTRACT FROM AUTHOR]

This paper outlines the ethical considerations when engaging in life story research with ex-prisoners with intellectual disability. Based on a study conducted in Queensland, Australia, the authors explore some of the challenges that have arisen through the lens of principle-based ethics. The significant disadvantage experienced by ex-prisoners with intellectual disability warrants further attention by social researchers, and care must be taken not to further harm this group through the research process. Issues pertaining to the broad ethical concepts of integrity, justice, respect for persons and beneficence are examined to identify the degree to which they can guide the actions of the life story researcher. Examples are given as to how the researcher responded to difficulties as they arose and the authors discuss ways forward from a principle-based approach. [ABSTRACT FROM AUTHOR]

This paper arises from research, funded by the Housing Corporation and the Thomas Pocklington Trust, which investigated the housing needs and priorities of visually impaired people of working age, a population that has received little public policy attention. We report on the housing circumstances and aspirations of 121 people living in London. In-depth study discovered that people of working age who have vision impairment can be disadvantaged by inflexible procedures that adversely affect their transition to independence, as well as their self-determination with respect to family issues. The study also learned that this population has particular needs in relation to domestic and outside space, home location and safety and security measures. Furthermore, the interviewees indicated that specialist supported housing may develop a stronger role if it diversifies and provides non-institutional stepping stones towards greater autonomy. [ABSTRACT FROM AUTHOR]

UK policy for adults with intellectual disabilities no longer supports state-provided building-based day care but promotes personalised care and support under individuals' control with choice of community-based opportunities. The research explored experiences of this new terrain and the informal learning involved. An initial scoping review was followed by interviews with key service providers in one urban and one rural area in England and one of each in Scotland. Next, ethnographic fieldwork with people with intellectual disabilities involved a flexible mix of observations, interviews, focus groups, and participant-generated visual data. Thematic analysis involved an iterative mix of deductive and inductive coding. Findings showed informal peer learning ranged from ad hoc to structurally supported. Though learning was often tacit, support was valued and agency developed. The availability of local supportive people and schemes and time spent in them to develop new skills and identities was vital to people self-building community lives. This research looked at the experiences of people with intellectual disabilities, as they and their friends and family respond to policy change bringing in more personalisation and individual choice. Often people with intellectual disabilities and those supporting them do not recognise their everyday learning. Learning outside schools/colleges gets little research attention. We looked at the learning involved in people managing their own daily lives in their communities. Staff and volunteers are helping people to learn from each other in organisations, and this can become more formal peer learning, peer mentoring and peer support programmes. Advocacy groups create a sense of belonging and shared purpose, encouraging peer learning through the sharing of knowledge, experiences and problem solving. When new projects start up or traditional day services change, the staff or volunteers may not involve people with intellectual disabilities in the planning. This means people with intellectual disabilities miss opportunities to learn. [ABSTRACT FROM AUTHOR]

This article sheds light on a group of children who are hardly visible within the body of research: intellectually disabled children living away from home in full-time institutional settings. The purpose of the study was to contribute to the extended knowledge of these children's everyday life and to inform researchers, authorities and service providers. Participant observations have been the main method of generating data, supported by interviews with professionals and parents. An interpretive analytical approach was employed. The results presented in this article show how institutional talk and practices can evolve within institutional systems, and how these factors affect the everyday lives of children. Taking care of a severely disabled child could put excessive stress on a family, and the family may need caring support. Small group homes are designed to care for such children, and they are a home for the child and a workplace for the professional staff. The staff provides care on behalf of the parents. Little is known about how these children experience life within such group homes. This study aimed to learn more about this area by observing everyday life in three group homes. The study found that the staff's talk and practices shifted continuously between close relationships with the children and more work-related tasks, such as discussing practical issues without involving the child. The study recommended professional staff in such homes to reflect on how such practices are experienced by the children, and how to improve their practices. [ABSTRACT FROM AUTHOR]

This article examines disability and employment policy in Turkey after the country's ratification of the United Nations Convention on the Rights of Persons with Disabilities in 2009 through the perspectives of disability non-governmental organisations (disability NGOs) and policy-makers. Drawing on an exploratory qualitative study, the article analyses how disability NGOs and key policy-makers perceive the impact of this development on disability and employment policy. The article shows disability NGO representatives and policy-makers find the employment policy's over-reliance on the quota method inadequate to put the human rights model into practice. They call for greater policy emphasis on accessibility and effective anti-discrimination enforcement to complement the quota method, which reflects the idea that the human rights model has gained wider acceptance among them. The article, however, also reveals that disability NGOs and policy-makers hold divergent views on what constitutes a human rights approach to disability employment, especially concerning segregation in employment. [ABSTRACT FROM AUTHOR]

The article describes the work of the first three authors, who are young adults with intellectual and developmental disabilities (IDD), on an 'inclusive research' project. For this project, these young adult activists worked together with university researchers and students, and with organizations serving disabled people as active members of the research team. Through this research project, 24 participants who were youths with IDD were interviewed about their important relationships and the activities they do in their communities. The research found that belonging really matters to the youths interviewed. These young adult activists talk about some of the activities they they did as research team members and some of their important contributions to the research. For example, they participated in writing the interview questions, recruiting study participants, and making a film about what the research found. [ABSTRACT FROM AUTHOR]

This article responds to the call for producing activist-oriented scholarship by engaging with theoretical and methodological approaches that explore the inclusion of women and girls with disabilities in Vietnam. We consider possibilities for connecting different forms of knowledge and activism by reflecting on research practices designed to foster social change. Specifically, we ask: how can critical disability studies be more reflexive about knowledge which privileges particular ways of knowing from the Global North? What alternative possibilities can exist to foster more inclusive and transformative knowledge that tackles systemic forms of oppressions in colonial and postcolonial contexts? Reflecting on an ongoing collaborative project in Vietnam, we argue that critical disability studies which engages with different forms of activism through critical reflections on our privileges can tackle exclusion by opening a new platform for debating social justice transnationally. [ABSTRACT FROM AUTHOR]

This article explores the decision-making process with a group of people with learning difficulties in an inclusive research project. The article explores the literature around people with learning difficulties and decision-making, drawing in particular on studies using conversation analysis. Three examples drawn from the research process and illustrated by transcripts of video data are then examined critically to unpick the author's claims of collaborative decision-making. [ABSTRACT FROM AUTHOR]

Through in-depth interviews with service providers from non-governmental organisations (n = 58), this article describes the intricacy of familial relationships for women with intellectual disabilities in South Africa who experience gender-based violence. The findings suggest that families navigate social stigma, limited resources and isolation, whilst trying to be vigilant against gender-based violence and disability-related violence, and respond to it as it happens. However, family members are also simultaneously implicated in violence perpetration. We suggest that a social relational model of disability could help account for these crucial intra-familial dynamics. [ABSTRACT FROM AUTHOR]

Article 19 of the UN Convention on the Rights of Persons with Disabilities requires states to provide personal assistance services. This article is based on qualitative research in Iceland, Norway and Sweden, carried out between 2012 and 2013. The overall study focused broadly on the implementation of Article 19. This article, however, reports findings based on a particular group of participants within the larger study: non-disabled parents who coordinate personal assistance schemes for their adult son or daughter. The article examines the various ways in which the parents, the majority of whom were mothers, negotiate principles of independence, choice and autonomy for their adult son or daughter who requires intensive support, including assistance with communicating. The aim is to explore, in the context of the Convention and the principles of the independent living movement, how to acknowledge and conceptualise personal assistance schemes that require another person to manage on behalf of the user. [ABSTRACT FROM PUBLISHER]

This article aims to compare and analyse the different models used to define and understand disability in the legislation on disability and social protection in five Latin American countries. Five countries with different structure and historical development of social protection systems were selected (Brazil, Chile, Colombia, Costa Rica and Mexico) and a thematic analysis of 75 legal documents was conducted. The results demonstrate a contradiction between definitions and perspectives used to understand and establish strategies to include disabled people. Indeed, the five countries have used an International Classification of Functionings, Health and Disability perspective in their legislation on disability, but an individual perspective for the social protection legislation. The article offers insight into the inherent tensions presented in such models given the legislative and policy framework around them and reflects on the impact this has for implementation. [ABSTRACT FROM AUTHOR]

Major shifts in funding, demography, personal expectations and the rise of a global disabled people’s movement require new and creative solutions to the choices and rights agenda into the twenty-first century. Direct payments and the individual employment of personal assistants is one clear and recognised path to independent living. However, there have been some reservations about the nature, process and impact of the broader personalisation agenda more generally within which direct payments and personal budgets are located. Some commentators point to the loss of the collective impulse in personalised approaches – ideas that were central to the development of the independent living movement and its founding principles. Some countries have seen the rise of collective responses to direct payment developments. This is explicable in terms of a suspicion of individualist underpinnings of personalisation coupled with a collective vision of social life. This article is based on an exploratory study of collective approaches in the field of direct payments where choice and social solidarity are being combined. Drawing on developments in Sweden, England and Wales, the article aims to inform possible future debates about direct payments and cooperative approaches and argues that greater user-control is not inimical to enhanced collective action. [ABSTRACT FROM AUTHOR]

Returning to classics on dirty work and stigma, I offer another perspective on the difficulties that disabled people experience in employment. I claim that disabled workers with multiple sclerosis (MS) feel like ‘dirty workers’ not because of the work that they do, but because of their MS. Secondary analysis of phenomenological interview data revealed workers with MS feeling physical, social and moral taints normally associated with being a ‘dirty worker’ – but because of their MS-related impairments and disabilities. Two respondent stories are shared to illustrate this association. [ABSTRACT FROM AUTHOR]

Supporting young disabled people at the transition to adulthood has long proved to be a challenging task. Young men with Duchenne muscular dystrophy (DMD) have until recently died before they reached adulthood. Now they are living longer but with a corresponding lack of forethought about how they should be supported in adulthood. This study investigated in three regions of England what was happening for young men with DMD and how they were being supported. Semi-structured interviews were conducted with 37 young men (aged 15+) with DMD and 58 other family members. The findings suggested that too many young men had finished education and training and were at home during the day without meaningful activity. In part, the complicated nature of shifting expectations across the life-course had made planning for an adult life with DMD very challenging. This could be exacerbated by problematic assumptions and stubborn barriers. [ABSTRACT FROM AUTHOR]

An exploratory teaching approach was inspired by the communicative experiences of d/Deaf students in tertiary education. ‘Theory of Mind’ has been used by some to describe the capacity to appreciate that views of others may be different from our own, a concept that could provide a different way for students and educators to understand the barriers identified. An adapted assessment highlighted challenges faced and a communication group provided opportunities for extending personal understandings of social settings. Emerging ideas to inform practice and potential implications for inclusion have relevance for other contexts. [ABSTRACT FROM AUTHOR]

This article explores two disabled people’s ‘Seven Needs’ to independent living, those of ‘housing’ and ‘transport’ issues, in relation to disabled international students in British universities. Firstly, students’ living arrangements, including issues related to the suitability of university accommodation to their disability-related needs, have been identified. Secondly, the choice and accessibility of transport used is examined. A range of barriers that this group of students encounter based on their double or multiple identities as ‘disabled’, ‘international’ and sometimes ‘mature’ or ‘postgraduate’ students has thus been identified and discussed. The article highlights the barriers that are reinforced and exacerbated by the interplay of students’ different identities, proposing ways of removing these difficulties. [ABSTRACT FROM AUTHOR]

Unemployment among persons with disabilities is high. The situation is worse for women with disabilities as they experience multiple disadvantages on account of gender and disability. The condition for women with disabilities in Ghana could be more complicated, given the intersection of disability, gender, poverty, cultural beliefs and practices. As employment provides not only income for women with disabilities but opportunities for social participation and increases psychological well-being as well as self-esteem, it is imperative to remove barriers that hinder their employment. The current study examines issues associted with the unemployment of women with physical disabilities in Tamale, Ghana, and makes recommendations to policy-makers and practitioners in order to improve the condition of persons with disabilities in general, and particularly women with disabilities. [ABSTRACT FROM AUTHOR]