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Wikipedia is the most commonly accessed source of health information by both healthcare professionals and the lay public worldwide. We aimed to evaluate information-seeking behavior of Internet users searching the Italian Wikipedia for articles related to epilepsy and its treatment. Using Pageviews Analysis, we assessed the total and mean monthly views of articles from the Italian Wikipedia devoted to epilepsy, epileptic syndromes, seizure type, and antiepileptic drugs (AEDs) from January 1, 2015 to October 31, 2017. We compared the views of the article on epilepsy with those of articles focusing on Alzheimer's disease, migraine, multiple sclerosis, syncope, and stroke and adjusted all results for crude disease prevalence. With the only exception of the article on multiple sclerosis, the adjusted views for the Italian Wikipedia article on epilepsy were higher than those for the other neurological disorders. The most viewed articles on seizure type were devoted to tonic–clonic seizure, typical absence seizure, tonic convulsive seizures, and clonic convulsive seizures. The most frequently accessed articles on epilepsy syndromes were about temporal lobe epilepsy and Lennox–Gastaut syndrome. The most frequently viewed articles on AEDs were devoted to valproic acid, carbamazepine, and levetiracetam. Wikipedia searches seem to mirror patients' fears and worries about epilepsy more than its actual epidemiology. The ultimate reasons for searching online remain unknown. Epileptologists and epilepsy scientific societies should make greater efforts to work jointly with Wikipedia to convey more accurate and up-to-date information about epilepsy. [ABSTRACT FROM AUTHOR]

People increasingly use Google looking for health-related information. We previously demonstrated that in English-speaking countries most people use this search engine to obtain information on status epilepticus (SE) definition, types/subtypes, and treatment. Now, we aimed at providing a quantitative analysis of SE-related web queries. This analysis represents an advancement, with respect to what was already previously discussed, in that the Google Trends (GT) algorithm has been further refined and correlational analyses have been carried out to validate the GT-based query volumes. Google Trends-based SE-related query volumes were well correlated with information concerning causes and pharmacological and nonpharmacological treatments. Google Trends can provide both researchers and clinicians with data on realities and contexts that are generally overlooked and underexplored by classic epidemiology. In this way, GT can foster new epidemiological studies in the field and can complement traditional epidemiological tools. [ABSTRACT FROM AUTHOR]

Background Millions of people surf the Internet every day as a source of health-care information looking for materials about symptoms, diagnosis, treatments and their possible adverse effects, or diagnostic procedures. Google is the most popular search engine and is used by patients and physicians to search for online health-related information. This study aimed to evaluate changes in Google search behavior occurring in English-speaking countries over time for the term “status epilepticus” (SE). Methods Using Google Trends, data on global search queries for the term SE between the 1st of January 2004 and 31st of December 2014 were analyzed. Search volume numbers over time (downloaded as CSV datasets) were analyzed by applying the “health” category filter. Results The research trends for the term SE remained fairly constant over time. The greatest search volume for the term SE was reported in the United States, followed by India, Australia, the United Kingdom, Canada, the Netherlands, Thailand, and Germany. Most terms associated with the search queries were related to SE definition, symptoms, subtypes, and treatment. The volume of searches for some queries (nonconvulsive, focal, and refractory SE; SE definition; SE guidelines; SE symptoms; SE management; SE treatment) was enormously increased over time (search popularity has exceeded a 5000% growth since 2004). Conclusions Most people use search engines to look for the term SE to obtain information on its definition, subtypes, and management. The greatest search volume occurred not only in developed countries but also in developing countries where raising awareness about SE still remains a challenging task and where there is reduced public knowledge of epilepsy. Health information seeking (the extent to which people search for health information online) reflects the health-related information needs of Internet users for a specific disease. Google Trends shows that Internet users have a great demand for information concerning some aspects of SE (definition, subtypes, symptoms, treatment, and guidelines). Policy makers and neurological scientific societies have the responsibility to try to meet these information needs and to better target public information campaigns on SE to the general population. This article is part of a Special Issue entitled “Status Epilepticus”. [ABSTRACT FROM AUTHOR]

• There is an increase in online search behavior on autoimmune encephalitis over time. • There is an increasing tendency to search online for autoimmune seizures over time. • There is an increase in online search interest for autoimmune epilepsy over time. • The uptrend in search volumes may reflect increased awareness of these conditions. • Online search behavior may be explored using search volumes from Google Trends. Patients and their caregivers, including clinicians and educators, use web-based search engines to access healthcare-related information from the internet. Online search behavior analysis has been used to obtain insights on health information demand. We aimed to describe the online search behavior for autoimmune encephalitis, autoimmune seizures, and autoimmune encephalitis (AE) worldwide over time through the analysis of search volumes made on Google. In this infodemiological study, we retrieved search volume indices for the keyword "autoimmune encephalitis (search term)", "autoimmune seizures (search term)", and "autoimmune encephalitis (search term)" based on worldwide search data from January 01, 2004 to October 31, 2021, using Google Trends. We performed a descriptive analysis of search volume patterns, including related topics and queries. There was a progressive increase in search volume numbers over time for the keyword "autoimmune encephalitis", "autoimmune seizures", and "autoimmune epilepsy" with no annual seasonal variation. Peak search volumes for these keywords were recorded in July 2018, February 2005, December 2012, respectively. The greatest search volume for "autoimmune encephalitis" was recorded in Singapore, followed by Australia, the United States of America, the Philippines, and New Zealand, whereas it was highest in the United States for "autoimmune seizures" and "autoimmune epilepsy". The most searched topics were related to definition, causes, symptoms, diagnosis, and treatment. All related topics and queries increased in volume by more than 5000-fold over time. This study showed an uptrend in the online search interest on autoimmune encephalitis, autoimmune seizures, and autoimmune epilepsy over time, which may reflect the increased awareness of the condition by the public and the medical community. Information on online health information-seeking behavior may be obtained from Google Trends data despite its limitations. [ABSTRACT FROM AUTHOR]

Abstract: Millions of people worldwide use the Internet daily as a source of health information. Google is the most popular search engine and is used by patients and physicians to search for online health-related information. This study aimed to evaluate changes in web search behavior occurring in English-speaking countries over time for terms related to epilepsy and epileptic seizures. Using Google Trends, data on global search queries for the terms “epilepsy”, “seizure”, and “seizures” between January 2004 and September 2013 were analyzed. The reduction over time in search queries for the term “epilepsy” (and, to a lesser extent, “seizures”) was counterbalanced by an increased trend in searches for the term “seizure”. Most terms associated with the search queries were related to symptoms of seizures, especially tonic–clonic seizures, and to seizures occurring in children. Three peaks in search volume over the period studied corresponded to news of celebrities having seizures. The volume of searches for the term “epilepsy SUDEP” was found to be enormously increased over time. Most people appear to use search engines to look for terms related to epilepsy to obtain information on seizure symptoms, possibly to aid initial self-diagnosis. Fears and worries about epileptic seizures and news on celebrities with epilepsy seem to be major factors that influence online search behavior. [Copyright &y& Elsevier]

• There is an increase in online search behavior for seizure terms in the Philippines. • Such searches centered on seizure definition, symptoms, causes, types, and treatment. • Seasonal and psychosocial factors may influence Philippine online search behavior. • Rising Philippine online interest in seizures may hint at growing epilepsy awareness. The internet has been established as a rich source of health information that is well utilized by the public. Online health information-seeking behavior may reflect public awareness in particular health-related topics, including epilepsy and seizures. This study aimed to describe online search behavior for epilepsy and seizures in the Philippines through the examination of trends of Philippine-based Google search queries for epilepsy and seizure-related terms. The search volume indices (SVIs) for the keywords "epilepsy (disorder)" and "seizure (disease)" based on Philippine-based Google searches from January 2004 to July 2021 were generated using Google Trends. Descriptive analysis of search volume patterns, including related topics and queries, was performed. There was a recent relative increase in Philippine-based searches related to the term "seizure" with a concurrent relative decline in searches related to the term "epilepsy" over time. The Philippines had the fifth-highest SVI for "seizure" based on worldwide trends. Most searches centered on the definition, symptomatology, etiologies, classification, and treatment of seizures and epilepsy. Queries containing seizure-related terms rose in volume by more than 5000% during the seventeen-year period. Search volume tended to peak during the National Epilepsy Awareness Week in September but slumped during holiday months. Online search behavior in the Philippines for seizure-related terms appears to be on the rise and may reflect increasing public awareness in epilepsy. Factors including fears surrounding epileptic seizures, the stigma surrounding the term "epilepsy", and seasonal events including a regularly held epilepsy awareness week may influence online search behavior. [ABSTRACT FROM AUTHOR]

Epilepsy surgery is an effective treatment for drug-resistant epilepsy. Some centers have noticed changes in referral patterns. The aim of this study was to determine if online infodemiological data related to epilepsy surgery reflect reported changes in referrals to surgical centers. Google Trends and Pageview analysis of temporal trends of searches conducted in Google and Wikipedia for epilepsy surgery, using key search terms such as "epilepsy surgery" and terms related to pathology, operation type, and investigative practice. Over the 15-year time period studied by Google trend analysis, when the initial three-year epoch and final three-year epoch are compared, a 56.1% decline in search volume for "epilepsy surgery" was observed. Vagus nerve stimulation and laser ablation are increasingly searched items. Pageview analysis shows that temporal lobe epilepsy remains the most commonly searched subtype of epilepsy and hippocampal sclerosis was searched for more than focal cortical dysplasia. This study suggests a lower search interest over time in epilepsy surgery, and various associated terms, with increased interest in vagus nerve stimulation and laser ablation procedures over time. There is no clear indication from these data regarding the apparent shift from mesial temporal cases to an increase in extratemporal case workload. • Google trend analysis reveals over a 15-year time period a 56.1% decline in search volume for "epilepsy surgery". • Vagus nerve stimulation and laser ablation are increasingly searched items on Google. • On Wikipedia-Pageview analysis, temporal lobe epilepsy is the most searched lobar subtype of epilepsy. • On Wikipedia-Pageview analysis, hippocampal sclerosis was searched for more frequently than focal cortical dysplasia. [ABSTRACT FROM AUTHOR]