1. Youth and Parent Appraisals of Participation in a Study of Spontaneous and Induced Pediatric Clinical Pain.
- Author
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Hawley, Kara, Huang, Jeannie S, Goodwin, Matthew, Diaz, Damaris, de Sa, Virginia R, Birnie, Kathryn A, Chambers, Christine T, and Craig, Kenneth D
- Subjects
Ethics ,acceptability ,adolescents ,children ,experimental pain ,induced pain ,Pain Research ,Chronic Pain ,Pediatric ,ethics ,Psychology ,Applied Ethics - Abstract
The current study examined youths' and their parents' perceptions concerning participation in an investigation of spontaneous and induced pain during recovery from laparoscopic appendectomy. Youth (age range 5-17 years) and their parents independently completed surveys about their study participation. On a 0 (very negative) -to-10 (very positive) scale, both parents 9.4(1.3) [mean(SD)] and youth 7.9(2.4) rated their experience as positive. Among youth, experience ratings did not differ by pain severity and survey responses did not differ by age. Most youth (83%) reported they would tell another youth to participate. Ethical issues regarding instigation of pain in youth for research purposes are examined.
- Published
- 2019