1,275 results
Search Results
2. Medical and moral constructions of psychosomatic conditions: reflections on three papers
- Author
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Garrett, Catherine
- Published
- 1997
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3. 'And that was her choice': Dutch general practitioners' perceptions of the autonomy of patients with non-western migration backgrounds who experience domestic violence.
- Author
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Tack, Saartje and Saharso, Sawitri
- Subjects
- *
PATIENT autonomy , *IMMIGRANTS , *RESEARCH funding , *GENERAL practitioners , *INTERVIEWING , *DECISION making , *BIOETHICS , *DUTCH people , *ATTITUDES of medical personnel , *DOMESTIC violence , *RESEARCH methodology , *PSYCHOSOCIAL factors - Abstract
Women in the Netherlands with non-western migration backgrounds experience domestic violence at the intersection of culture and gender, and visit their general practitioners (GPs) with health concerns related to the violence. Drawing on semi-structured interviews with GPs, this paper illuminates how GPs navigate the process of decision-making around intervention in domestic violence, with particular attention to the role of autonomy. Patient autonomy is a core principle in Dutch general practice. The term refers to the principle that GPs must respect that competent adults can make autonomous decisions about the care they do and do not want, and that GPs must respect patients' views, choices, and ways of life. The interview data shows great variation in how GPs respond in situations of domestic violence against women with non-western migration backgrounds. Deploying 'somatechnics of perception', this paper explores how GPs' perceptions of their patients' autonomy are both the agent and effect of a complex and embodied negotiation of gender, race, culture, ethnicity, medical ethics, and morality. In highlighting how these patients' autonomy is rendered (un)intelligible and (il)legible in contextually specific ways, this paper sheds light on how GPs in the Netherlands can better assist women with non-western migration backgrounds who experience domestic violence. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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4. Doing peer work in mental health services: Unpacking different enactments of lived experiences.
- Author
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Kessing, Malene Lue
- Subjects
AFFINITY groups ,OCCUPATIONAL roles ,PROFESSIONAL practice ,HEALTH outcome assessment ,INTERVIEWING ,UNCERTAINTY ,EXPERIENCE ,EMPLOYMENT ,THEORY ,MENTAL health services ,GOAL (Psychology) - Abstract
Mental health services are increasingly employing peer workers (PWs), individuals who have lived experiences with mental health problems, to support patients and be part of mental health care teams. While the employment of PWs continues to increase, little is known about how the function unfolds in practice. This paper explores the broader context in which the PWs navigate and the concrete outcomes and everyday issues that exist at the individual level. Methodologically, the paper draws on 22 interviews with PWs employed in the mental health services in Denmark. Theoretically, it combines Lipsky's (1980) theory on street-level bureaucrats with sociological discussions concerning the lay-expert divide. The analysis shows that PWs experience both role ambiguity and goal uncertainty and that they use substantial discretion in determining the nature, amount and quality of their peer practices. This – combined with the PWs' diverse lived experiences – calls for a heterogeneous understanding of peer work and therefore the analysis presents three categories of peer workers: PWs as (1) a representative of patients' lifeworld, (2) an interdisciplinary professional and (3) an 'expert by experience'. These categories display PWs different enactments of their lived experiences and reveal ambiguities tied to the lay-expert divide. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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5. The good pain patient: a critical evaluation of patients’ self-presentations in specialist pain clinics.
- Author
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Dudley, Morgan, Olson, Rebecca E., Mescouto, Karime, and Setchell, Jenny
- Abstract
Established research supports collaborative patient-clinician communication as a means of improving pain management and decreasing opioid use by patients with chronic pain. However, much of this scholarship emphasises clinicians’ capacities to shape and improve communication; limited research investigates patients’ roles in this process. Drawing on 40 ethnographic observations of patient-clinician interactions, clinical spaces and case conferences within one specialist pain clinic in Brisbane, Australia, this paper investigates how and why patients present themselves in particular ways within consultations. Our theoretical lens combines concepts from Goffman on patienthood and stigma with Foucauldian theories of pastoral and disciplinary power. Findings suggest that elements of the clinical environment – namely posters – usher patients towards presenting in what we conceptualise as the ‘good pain patient’ role. In this role, patients demonstrate that they are moral, responsible, and contributing members of society. Yet, such a role is problematic to opening communication, with the role constraining what is socially acceptable for patients with chronic pain to say, do, or feel. In recognising how clinical contexts facilitate problematic good pain patient presentations, this paper directs attention to the spatial and relational nature of implicit clinical expectations and constrained good pain patient presentations. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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6. Temporalities of peer support: the role of digital platforms in the 'living presents' of mental ill-health.
- Author
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Tucker, Ian
- Subjects
- *
MEDICAL care research , *MEDICAL care use , *DIGITAL technology , *MENTAL health services , *RESEARCH funding , *AFFINITY groups , *INTERVIEWING , *MEDICAL care , *INTERNET , *COMMUNICATION , *SOCIAL support , *TIME - Abstract
This paper considers matters of time in online mental health peer support. Significant evidence of the value of peer support exists, with new digital platforms emerging as part of the digitisation of mental health support. This paper draws from a project exploring the impact of digital platforms on peer support through interviews with users of a major UK-based online peer support platform. Drawing on Gilles Deleuze's concept of the 'living present', the paper highlights how notions of past, present and future operate as co-existing dimensions of the present. The analysis highlights how the immediacy of digital platforms elicits expectations of peer support being 'on tap', which creates challenges when support is not received synchronously. Unlike in-person support, digital platforms facilitate the archiving of support, which can (re)enter the present at any moment through asynchronous communication. Anticipations of the future feature as dimensions of the present in terms of feelings regarding when support may no longer be needed. The paper offers potential implications for social scientific understanding of digital peer support, which include valuable insight for mental health services designing and delivering digital peer support. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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7. Situational expectations and surveillance in families affected by dementia: organising uncertainties of ageing and cognition.
- Author
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Fletcher, James Rupert
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DEMENTIA risk factors ,PUBLIC health surveillance ,AGE distribution ,COGNITION ,INTERVIEWING ,DEMENTIA patients ,PATIENTS' attitudes ,FAMILY attitudes ,HEALTH literacy ,AGING ,DEMENTIA ,SYMPTOMS - Abstract
Recent political processes have rendered people with dementia an increasingly surveilled population. Surveillance is a contentious issue within dementia research, spanning technological monitoring, biomarker research and epidemiological data gathering. This paper explores surveillance in the relationships of people affected by dementia, how older relatives both with and without diagnoses are surveilled in everyday interactions, and the importance of expectations in guiding surveillance. This paper presents data from 41 in-depth interviews with people affected by dementia living in the community in the United Kingdom. Agedness was a key contributor to expectations that a person may have dementia, based on previous experiences, media accounts and wider awareness. Expectations provoked surveillance in interactions, with participants looking for signs of dementia when interacting with older relatives. Older people also enacted self-surveillance, monitoring their own behaviour. Various actions could be attributed to dementia because interpretation is malleable, partly vindicating expectations while leaving some uncertainties. Expectant surveillance transformed people's experiences because they organised their own actions, and interpreted those of others, in line with pre-existing meanings. The ability to interpret behaviours to fit expectations can bring coherence to uncertainties of ageing, cognition and dementia, but risks ascribing dementia to many older people who straddle those uncertainties. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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8. Selective adoption of therapeutic devices among people with type 1 diabetes.
- Author
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Ardissone, Alberto
- Subjects
INSULIN therapy ,GLYCEMIC control ,TYPE 1 diabetes ,WEARABLE technology ,MEDICAL technology ,PHENOMENOLOGY ,INSULIN pumps ,PSYCHOSOCIAL factors ,PEOPLE with diabetes - Abstract
This paper contributes to the debate regarding the adoption/rejection of technologies by focusing on the selective use of therapeutic devices among people with type 1 diabetes. I show that patients often refuse to use a device (either insulin pumps or sensors for glycaemic control), despite suggestions from diabetologists. The study was conducted in Italy in 2019. Theoretically, the paper relied on a perspective that amalgamates actor-network theory and postphenomenology around the key concept of multistability. I then detected the three main features of stabilities that explain device use/non-use: relation to embodied users, contextual embedment (within larger social assemblages), concrete tailoring. Findings helped to stress the relevance of not only focusing on the type of device and its technical functioning, but also unveiling the underlying ongoing and situated socio-technical processes. Selective adoption of devices should be investigated at the level of the whole patient-device assemblage in order to assess the diverse stabilities that may arise from such networks. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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9. Analysis of the social consequences and value implications of the Everyday Discrimination Scale (EDS): implications for measurement of discrimination in health research.
- Author
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Slemon, Allie, Susan Dahinten, V., Stones, Cheyanne, Bungay, Vicky, and Varcoe, Colleen
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RACISM ,DISCRIMINATION (Sociology) ,ACQUISITION of data ,PSYCHOMETRICS ,INTERSECTIONALITY ,MEDICAL research - Abstract
The Everyday Discrimination Scale (EDS) is one of the most widely used measures of discrimination in health research, and has been useful for capturing the impact of discrimination on health. However, psychometric analysis of this measure has been predominantly among Black Americans, with limited examination of its effectiveness in capturing discrimination against other social groups. This paper explores the theoretical and historical foundations of the EDS, and draws on the analytic framework of Messick's theory of unified validity to examine the effectiveness of the EDS in capturing diverse experiences of discrimination. Encompassing both social consequences and value implications, Messick's unified validity contends that psychometric evaluation alone is insufficient to justify instrument use or ensure social resonance of findings. We argue that despite the robust psychometric properties and utility in addressing anti-Black race-related discrimination, the theoretical foundations and research use of the EDS have yet to respond to current discrimination theory, particularly intersectionality. This paper concludes with guidance for researchers in using the EDS in health research across diverse populations, including in data collection, analysis, and presentation of findings. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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10. Health professionals' intervention in the context of domestic violence against women: exploring perceptions and experiences of providing healthcare.
- Author
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Franco, Solange and Augusto, Amélia
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WORK , *THERAPEUTICS , *PSYCHOLOGY of abused women , *PRIMARY health care , *ATTITUDE (Psychology) , *ATTITUDES of medical personnel , *DOMESTIC violence , *PUBLIC health , *COMPARATIVE studies , *EXPERIENTIAL learning , *PROFESSIONAL competence - Abstract
Domestic violence against women is a complex social phenomenon and a widely recognised issue of public health, which requires that all sectors of society, including the health sector, take the necessary action to prevent and address it. This paper aims to contribute to the discussion on the role of the primary health care in addressing domestic violence against women, by analysing health professionals' perceptions of their practice as well as the difficulties they experience in providing healthcare to victims. To fulfil this aim, a qualitative approach was chosen, using focus groups with health professionals working in the area of primary health care in an inland region of Portugal. The main findings point to the lack of a specific protocol and insufficient information and skills to respond to domestic violence situations, which hinders health professionals' confidence to intervene and tends to orientate them towards a more medical response. Resulting from these findings, implications for practice are discussed: the need for clear and specific orientations to guide health professionals' intervention; the need to offer training that enables them to provide appropriate healthcare to women experiencing domestic violence; and the need to position themselves in the context of an integrated, multi-sectoral intervention. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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11. Temporalities of emergency: the experiences of Indigenous women with traumatic brain injury from violence waiting for healthcare and service support in Australia.
- Author
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Fitts, Michelle and Soldatic, Karen
- Subjects
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BRAIN injury treatment , *HEALTH services accessibility , *RISK assessment , *COMMUNITY health services , *RESEARCH funding , *FOCUS groups , *INDIGENOUS women , *SEX distribution , *SOCIAL services , *INTERVIEWING , *HOSPITAL emergency services , *EXPERIENCE , *RACE , *DOMESTIC violence , *BRAIN injuries , *SOCIAL support , *SOCIODEMOGRAPHIC factors , *HEALTH equity , *DISEASE risk factors - Abstract
Globally, traumatic brain injury (TBI) has been recognised as a serious health issue not only because of the immediate impacts at the time the injury occurs but even more so due to the longstanding impacts. Even though TBI is a globally recognised condition, the research is disproportionately focused on its incidence in, and immediate and long-term effects on men. A growing body of research suggests that generally, women who experience family violence are at high risk of TBI and suffer its impacts in ways that reflect gendered differences in the patterns and frequency of violence. In Australia, the social and physical costs of TBI are multiplied for Indigenous women, whose experience of disability and access to healthcare lies at the intersection of gender and race in the historical context of settler colonialism. The present study addresses the need for research into the sociodemographic inequalities that affect access to culturally appropriate hospital care, timely response systems, and flexible, safe and engaged social services. This paper draws on data from interviews and focus groups with Indigenous women, hospital staff and community-based service providers and suggests potential pathways for further research in settler-colonial settings elsewhere in the world. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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12. Healthcare and legal systems responses to coercive control: an embodied performance of one woman's experience.
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Rose, Judy, McCallum, Toni, Tsantefski, Menka, and Rathus, Zoe
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CONTROL (Psychology) , *INTIMATE partner violence , *LEGAL procedure , *FEMINISM , *MEDICAL care , *DRAMA , *PSYCHOLOGY of women , *CONFERENCES & conventions , *DESCRIPTIVE statistics , *DOMESTIC violence , *LOVE , *INTENTION , *POLICE , *LABOR supply , *WRITTEN communication - Abstract
This paper uses a drama-based method to illustrate the responses of healthcare and legal systems to women experiencing coercive control. This approach involved writing a play using the first-person narrative voice of a victim-survivor. We presented the play at the Stop Domestic Violence Conference (Gold Coast, Australia) in 2021. The central character, 'Kate', provided an embodied performance that enabled the conference participants to see, feel and understand experiences of coercive control from a personal perspective. We followed the trajectory of coercive control from the beginning of an intimate relationship to the time of separation. We showed how the process of coercive control escalates from love bombing, reproductive coercion, isolation, and technology-facilitated abuse until a point of police intervention. As Kate told her story, the conference audience witnessed the barriers and challenges faced by survivors of coercive control, and the emotional, financial, and psychological impacts that are intensified in geographically remote environments. They watched Kate navigate health and other systems meant to help women experiencing domestic and family violence, but that ultimately failed to deliver. Finally, the drama-based approach allowed us to present a feminist embodiment of coercive control and an innovative method for communicating inter-disciplinary research findings on domestic abuse. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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13. Building a Nyoongar work practice model for Aboriginal youth mental health: prioritising trust, culture and spirit, and new ways of working.
- Author
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Culbong, Tiana, Crisp, Nikayla, Biedermann, Britta, Lin, Ashleigh, Pearson, Glenn, Eades, Anne-Marie, and Wright, Michael
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CONSENSUS (Social sciences) ,CULTURE ,HEALTH services accessibility ,COMMUNITIES ,MENTAL health ,MEDICAL care research ,CONCEPTUAL structures ,ABORIGINAL Australians ,SOCIAL skills ,STATISTICAL models ,MEDICAL care of indigenous peoples ,MENTAL health services ,DIFFUSION of innovations ,TRUST ,SPIRITUAL care (Medical care) - Abstract
Mainstream youth mental health services struggle to comprehend the connection between colonisation and service provision for Aboriginal young people. This is the consensus agreed by Aboriginal Elders from Perth, Western Australia and young Aboriginal leaders within their communities (Wright, Culbong, Crisp, Biedermann, & Lin (2019). 1–7). What is required is a more nuanced, culturally relevant approach to both an understanding of the impact of colonisation on mental health and help-seeking behaviour if they are to provide equitable access for Aboriginal young people. In this paper, we report on a three-year participatory action research (PAR) project conducted on Whadjuk Nyoongar country in Perth, Western Australia. An innovative model of care framework developed from the project and described in this paper, focuses on key components that both inform and assist service providers in improving service provision to Aboriginal young people. The model, depicted as a tree, symbolises strength and growth, with the 'roots' of the tree, holding trust, culture and spirit. This paper details a culturally-safe co-design process that was held and directed with Elders, in partnership with young people, youth mental health service staff and youth policy staff. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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14. Broadening the evidence base of mental health policy and practice.
- Author
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Brophy, Lisa and Savy, Pauline
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EVALUATION research ,MEDICAL care ,POLICY sciences -- Methodology ,ATTITUDE (Psychology) ,MEDICAL personnel ,HEALTH policy ,MENTAL health personnel ,MENTAL health services ,PHILOSOPHY ,SERIAL publications ,UNCERTAINTY ,EVIDENCE-based medicine ,PROFESSIONAL practice - Abstract
This concluding paper draws together the dominant themes across the papers published in this issue. The majority of the papers clearly point to disparities between the aims of policy-makers and mental health workers. Using a variety of perspectives and methods, the authors of these insightful papers argue that modernist, rational approaches to structuring and evaluating services are at odds with the professional needs of mental health workers. At one level this critique is self-evident given the messiness and uncertainties inherent in working with service users whose individual problems require flexible approaches tailored from a broad and evolving practice-base. For some authors, the focus is epistemological and methodological; they offer much needed examples of analysing policy construction, interpreting statistics and the concurrent application of the widely used concepts of medicalisation and structural inequality. Together, the papers indicate that the progress of mental health reform in many western countries remains inconsistent and, in some cases, obstructive to effective professional practice. [ABSTRACT FROM AUTHOR]
- Published
- 2011
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15. The final frontier: The UK’s new coalition government turns the English National Health Service over to the global health care market
- Author
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David Price and Allyson M Pollock
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Health (social science) ,Sociology and Political Science ,media_common.quotation_subject ,Equity (finance) ,Public administration ,Domestic market ,White paper ,Coalition government ,New public management ,Order (exchange) ,Economics ,Global health ,Bureaucracy ,media_common - Abstract
The authors describe the incremental approach to the marketisation of the English National Health Service (NHS) since the introduction of an ‘internal market’ in 1990 until the 2010 White Paper, ‘Equity and Excellence: Liberating the NHS’, and the subsequent Health and Social Care Bill published in January 2011. The introduction of a competitive market for a universal, tax-financed health system requires fundamental changes in regulation in order that market bureaucracy can be substituted for direct management. The components of reform are insufficiently captured by the framework of hierarchies and networks in new public management theories of decentralisation.
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- 2011
16. 'It's a cultural thing': excuses used by health professionals on providing inclusive care.
- Author
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Mohamed Shaburdin, Zubaidah, Bourke, Lisa, Mitchell, Olivia, and Newman, Trudie
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CULTURE ,RACISM ,INDIGENOUS Australians ,HEALTH services accessibility ,RURAL health services ,ATTITUDES of medical personnel ,SOCIAL constructionism ,RESEARCH methodology ,PSYCHOLOGY of refugees ,HEALTH status indicators ,TRANSCULTURAL medical care ,LANGUAGE & languages ,INTERVIEWING ,RESPONSIBILITY ,COMMUNICATION ,DISCOURSE analysis ,PATIENT-professional relations ,MICROAGGRESSIONS ,PSYCHOLOGY of immigrants - Abstract
Although health services in Australia have an aim to provide inclusive care for their patients/clients, this study highlights how barriers to care can lie at the centre of patient-provider interactions. Racial microaggression is a subtle form of racism that can occur in health settings, leading to further exclusion for First Nations Australians, immigrants and refugees. This paper is guided by Derrida's approach to deconstructionism by unpacking how language is used by health professionals – as holders of organisational power – and how they construct 'truths' or discourses about clients that historically have been marginalised by health services and system. Data comprise 21 interviews with staff from two rural health services. It identified three racial microaggressions were used to justify the challenges of providing care to people from First Nations, immigrant and refugee backgrounds: (1) Participants problematised culture(s) of service users; (2) participants implied cultural superiority in their conceptualisation of 'other' cultures; and (3) participants shared stories of inactions, discomfort and relegating of responsibility. The findings identified these discourses as forms of racial microaggression that can potentially lead to further exclusion of people seeking services and support. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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17. In praise of the prescription: The symbolic and boundary object value of the traditional prescription in the electronic age.
- Author
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Cooper, Richard
- Subjects
CONCEPTS ,DRUGS ,INTERPROFESSIONAL relations ,SYMBOLISM (Psychology) ,MEDICAL protocols ,HISTORY of medicine ,PATIENT compliance ,PHARMACISTS ,PHYSICIAN-patient relations ,PRIMARY health care ,RITES & ceremonies ,SOCIAL change ,THERAPEUTICS ,NURSE prescribing ,ORDER entry - Abstract
This paper explores the symbolic and boundary object value of the traditional paper prescription in the context of the planned move to the wider use of electronic prescribing in primary care in the UK and many other countries. It is argued that the traditional paper prescription possesses symbolic value and has been occasionally recognised but more often ignored in favour of the ultimate social object that is the medicine. This paper argues that considering the physical prescription as a boundary object within Star and Griesemer's typology as a 'standardised form' recognises its significance for a range of actors, including not just doctors and patients, but also pharmacists and other stakeholders, in areas such as professional authority, the ceremony of the medical consultation, patient autonomy, surveillance, financial income, as well as medicine supply. The paper goes on to reflect on this boundary object interpretation in the context of the current move to the electronic transfer of prescriptions and it is argued that this may threaten the existing boundary object and its associated value. It also raises broader concerns as to what happens when boundary objects are modified or replaced. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
18. Domestic violence, coercive control and mental health in a pandemic: disenthralling the ecology of the domestic.
- Author
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McCallum, Toni and Rose, Judy
- Subjects
DOMESTIC violence ,MENTAL health ,ECOLOGY ,PUBLIC health ,CONTROL (Psychology) ,COVID-19 pandemic - Abstract
Domestic and family violence is a social and public health issue typically positioned in policy frameworks as a consequence of gendered social and economic structures. In this paper, we deploy an approach that draws on Hörl's neo-ecological thinking to propose that the home, as a site of domestic violence, can be usefully framed as an ecology of the domestic, a posthumanist hybrid matrix of bodies, spaces and objects in which various practices enact the smooth running of the domestic together with practices of domestic and family violence, including coercive control. Our interest is in coercive control and in the impact that the COVID-19 pandemic had on practices which enact this aspect of domestic violence. Our exploration of the practices that enact coercive control draws on the work of Law and others. We examine how practices, which are not compatible, or that do not cohere, are able to coexist in a domestic ecology and what occurs when there is a disruption as occurred with the pandemic. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
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19. Medical innovations can reduce social inequalities in health: an analysis of blood pressure and medication in the HUNT study.
- Author
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Rydland, Håvard T.
- Subjects
HYPERTENSION ,ANTIHYPERTENSIVE agents ,CARDIOVASCULAR diseases risk factors ,SOCIAL determinants of health ,HEALTH services accessibility ,REGRESSION analysis ,SOCIOECONOMIC factors ,INCOME ,DRUGS ,BLOOD pressure measurement ,DIFFUSION of innovations ,EDUCATIONAL attainment - Abstract
This paper examines whether the use of blood pressure medication has an influence on social inequalities in blood pressure levels. In Norway, cardiovascular disease has for decades been associated with high mortality and social inequalities. High blood pressure is an important risk factor in this aspect, and prescription drugs have been established as a standard treatment of hypertension. We have seen population blood pressure levels fall, blood pressure inequality levels remaining stabile, and medication use increase. The paper uses panel data from the Nord-Trøndelag Health Study linked with registry data on education and income. Results from fixed effects regression analyses indicate that blood pressure medication overall has a levelling effect. The traditional social gradient is mainly found among non-users of medication. With blood pressure medication being plausibly at a late stage of its diffusion, these findings give some support to the hierarchical diffusion model, while they also imply the need for equal access to sufficient blood pressure treatment. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
20. Communicating the complex lives of families that include a child with Down syndrome.
- Author
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Cooke, Emma, Coles, Laetitia, Staton, Sally, Thorpe, Karen, and Chawla, Jasneek
- Subjects
SOCIOLOGY ,DOWN syndrome ,ATTITUDES of medical personnel ,FAMILY support ,FAMILY attitudes ,HEALTH literacy ,WRITTEN communication ,MEDICAL research ,REFLECTION (Philosophy) - Abstract
Families of children with Down syndrome experience complex lives and needs, yet the few existing studies on these families are written in conventional academic prose that is not optimal for knowledge translation beyond academia, particularly for busy healthcare professionals. In this paper, we Depart Radically in Academic Writing (DRAW) (Mackinlay, 2022) and present data poetry and two case studies that draw upon semi-structured interviews with mothers, fathers, and siblings, who were interviewed separately about their experiences of having a child/sibling with Down syndrome. We introduce our interdisciplinary team that includes academics and clinicians to contextualise our focus on research translation. We demonstrate that writing with creative criticality (i.e. 'DRAWing') contributes an embodied and affective understanding of research participants' stories, which is largely lacking in the academic literature on families of children with Down syndrome and the sociology of health and illness field more broadly. Moreover, DRAWing can impact audiences emotionally as well as intellectually (Richardson, 2003, p. 924), which has important knowledge translation implications for both healthcare professionals and these families. DRAWing can capture healthcare professionals' attention, prompting them to critically reflect on their practices and opportunities for improving care and treatment for these families. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
21. Schools of sociology? The structuring of sociological knowledge in the sociology of health and medicine since 1960.
- Author
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Collyer, Fran
- Subjects
AUTHORSHIP ,PUBLISHING ,SERIAL publications ,UNIVERSITIES & colleges ,BUSINESS networks ,CHI-squared test ,CONTENT analysis ,FACTOR analysis ,SCHOLARLY method ,RESEARCH methodology ,MEDICAL care ,MEDICINE ,OCCUPATIONAL prestige ,KNOWLEDGE management ,EMPIRICAL research ,LABELING theory ,RETROSPECTIVE studies ,EVALUATION - Abstract
The production of sociological knowledge in Australian universities is explored through an empirical study of research papers published in a selection of academic outlets between 1960 and 2011. Drawing on theories concerning scholarly practices, institutional formation and the sociology of knowledge, questions are posed about the factors that shape and structure the production of sociological knowledge about health and medicine. The concept of intellectual schools is examined, with evidence sought for the presence of these 'knowledge networks' in the Australian context. The study suggests the formation and maintenance of schools are subject to structural factors within the university sector, specifically the relative wealth and prestige of the university and the dictates of the higher education market. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
- View/download PDF
22. Leaky bodies, vaccination and three layers of memory: bio-immune, social-collective and lived experience.
- Author
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Divíšek, Tereza and Numerato, Dino
- Subjects
- *
IMMUNIZATION , *RESEARCH funding , *QUALITATIVE research , *INTERVIEWING , *ETHNOLOGY research , *EXPERIENCE , *MEMORY , *VACCINE hesitancy - Abstract
This paper focuses on the omnipresent yet analytically almost invisible role of memory and bodily experiences in childhood vaccination. Previous scholarship on the sociocultural aspects of vaccination has primarily focused on the individual and sociodemographic factors underpinning vaccine hesitancy, the role of healthcare professionals and the politicisation or mediatisation of vaccination. Social practices considering vaccination were primarily explored as a matter of the present. Only little consideration was given to the past, individual biographies and sociohistorical temporalities. To complement this body of work, we focus on cognitively-based, embodied and emotionally-experienced memory related to vaccination. Based on a qualitative study of childhood vaccination conducted in Czechia between 2017 and 2019 consisting of ethnographic observations, in-depth interviews and a document review, we identified three interconnected forms of vaccination memory: bio-immune, social-collective and lived experience. Bio-immune memory refers to the body's physical memory, gained to protect itself from diseases. Social-collective memory focuses on socially shared narratives about diseases and vaccination in the past. The memory of lived experience refers to feelings, embodied knowledge and pain. Our findings may inspire further analysis of childhood vaccination in other geographical contexts and amidst the reconfiguration of attitudes and newly established memories following the COVID-19 pandemic. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
23. 'The night is for sleeping': how nurses care for conflicting temporal orders in older person care.
- Author
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van Pijkeren, Nienke, Schuurmans, Jitse, Wallenburg, Iris, and Bal, Roland
- Subjects
- *
ELDER care , *MEDICAL protocols , *THERAPEUTICS , *OCCUPATIONAL roles , *PATIENT care , *NURSING , *CAREGIVERS , *SLEEP deprivation , *LABOR demand , *SHIFT systems , *PSYCHOLOGY of nurses - Abstract
This paper examines the conflicting temporal orders of the regional nurse, a role which has been introduced to deal with the increasing demands of aged care and workforce shortages in regional settings. We build on ethnographic research in the Netherlands, in which we examine regional district nurses as a new professional role that attends to (sub)acute care needs, connecting and coordinating different places of care during out of office hours. We use the concept of 'temporal regional order' to reflect on the different ways caring practices are temporally structured by management and care practitioners, in close interaction with patients and informal care givers. In the results three types of disruptions of the regional temporal order are distinguished: interfering bodily rhythms and needs; (un)expected workings of technologies; and disrupting acts of patient and relatives. It was region nurses' prime responsibility to stabilise these interferences and prevent or soften a disruption of the regional order. In accomplishing this, we show how nurses craft their professional role in between various care settings, without getting involved too much in patient care, to be mobile as 'temporal caregivers'. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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24. Editorial.
- Author
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Edwards, Jane and Riggs, Damien W
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GENDER identity ,LESBIAN community - Abstract
The article discusses several reports published in the issue including one on the effects homosexuality on the adoption of children and another on the influence of community on lesbian and bisexual women.
- Published
- 2008
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- View/download PDF
25. Conceptualising the continuum of female genital fashioning practices.
- Author
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James, Alexandra, Power, Jennifer, and Waling, Andrea
- Subjects
ATTITUDE (Psychology) ,FOCUS groups ,FEMALE reproductive organs ,INTERVIEWING ,RESEARCH methodology ,PLASTIC surgery ,VULVA ,FEMININITY ,QUANTITATIVE research ,THEMATIC analysis - Abstract
Genital fashioning practices, such as Brazilian waxing and female genital cosmetic surgery, have become increasingly prevalent within contemporary western societies. This paper explores the role of genital fashioning in the construction of contemporary femininity. It uses in-depth interviews and focus groups with Australian women aged 18–30 to investigate female genitalia as a site of alteration. Drawing on broader understandings of the body as socially mediated, this paper contends that multiple modification practices are employed to produce genital appearance. It departs from previous investigations which consider genital fashioning practices in isolation. In identifying the scope of genital fashioning, this research reveals a continuum of genital fashioning practices, both physically and discursively mobilised by women to negotiate their identity, sexuality, and femininity. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
26. Dating apps as public health 'problems': cautionary tales and vernacular pedagogies in news media.
- Author
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Albury, Kath, McCosker, Anthony, Pym, Tinonee, and Byron, Paul
- Subjects
CONTENT analysis ,DATING (Social customs) ,DISCUSSION ,HEALTH ,HEALTH promotion ,SEXUAL health ,INTERNET ,MASS media ,MEDICAL consultation ,PLEASURE ,PRESS ,PUBLIC health ,RISK-taking behavior ,SAFETY ,SOCIAL problems ,TELEMEDICINE ,WELL-being ,THEMATIC analysis ,LIFESTYLES ,SOCIAL media ,MOBILE apps - Abstract
In this paper we examine how popular media reporting positions dating and hookup app use as a 'social problem' that impacts on health and wellbeing. The paper adopts a mixed-methods media studies approach to create and analyse a dataset of over 6,000 international news articles published within a 12-month period, drawing on thematic content analysis and inductive and deductive techniques. These analyses are framed in relation to online consultations with Australian sexual health professionals and app users. Applying Briggs and Hallin's theory of biocommunicability (2007) – which proposes that contemporary health professionals' scientific framing of public health problems are, in part, shaped by popular media discourses – we identify a significant category of supportive discussions of safer app use within social news and lifestyle reporting. This discursive space features what we have termed 'vernacular pedagogies' of app use, revealing app users' safety strategies, and their experiences of pleasure and playfulness. We argue that an analysis of popular media can provide valuable insights into how everyday experiences of safety, risk and wellbeing are being shaped and contested with dating and hookup app use, and that these insights can be used to develop meaningful health promotion strategies. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
27. Editorial.
- Author
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Shoebridge, Jane and Willis, Eileen
- Published
- 2001
28. Healing journeys: experiences of young Aboriginal people in an urban Australian therapeutic community drug and alcohol program.
- Author
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Hill, Brittany, Williams, Megan, Woolfenden, Susan, Martin, Bianca, Palmer, Kieran, and Nathan, Sally
- Subjects
CULTURAL identity ,TREATMENT programs ,SUBSTANCE abuse treatment ,RESEARCH methodology ,TRANSCULTURAL medical care ,INTERVIEWING ,PATIENTS' attitudes ,EXPERIENCE ,QUALITATIVE research ,REHABILITATION of people with alcoholism ,SOUND recordings ,ABORIGINAL Australians ,METROPOLITAN areas ,THEMATIC analysis - Abstract
Disproportionately high numbers of Aboriginal young people access residential alcohol and other drug programs in Australia. While demand is high, these programs often have low numbers of Aboriginal staff. Residential programs, however, generally offer supports that reflect features of Aboriginal health care – holistic, group-based, connected to local communities, and addressing determinants of health. The qualitative research outlined in this paper was a collaboration between a mainstream residential therapeutic community program and two Aboriginal community-controlled organisations, and Aboriginal young people and researchers, with Aboriginal research leadership. It used an Aboriginal healing framework to understand the experiences of 12 young Aboriginal people in the program, triangulated with 19 key informant interviews. This provided an opportunity to understand how Indigenous knowledge about healing related to mainstream programs and the experiences of Aboriginal young people. This moves beyond individualist and deficit-focused conceptions of youth alcohol and drug use and centres Aboriginal cultures as healing. Findings point to the need for critically self-reflective mainstream organisations, a larger Aboriginal workforce with leadership roles, partnerships with Aboriginal Elders and organisations, and an investment in Aboriginal community-controlled alcohol and other drug services. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
29. Focus upon the sociology of health and illness in the UK.
- Author
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Ward, Paul R. and Bissell, Paul
- Subjects
SOCIOLOGY ,AGING ,HUMAN body ,DISEASES ,HEALTH ,MEDICAL practice ,MENTAL health ,SERIAL publications ,SOCIAL justice ,PROFESSIONALISM - Abstract
An introduction to the articles within the issue of the journal on topics including need post-structuralist concerns of Deleuze and Guattari, sociological commentary on new developments in drugs and historical perspective on the development of anorexia nervosa, is presented.
- Published
- 2011
- Full Text
- View/download PDF
30. Professional identity and epistemic stress: complementary medicine in the academy.
- Author
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Brosnan, Caragh and Cribb, Alan
- Subjects
ACADEMIC medical centers ,ALTERNATIVE medicine ,ATTITUDE (Psychology) ,CHIROPRACTIC education ,INTERVIEWING ,THEORY of knowledge ,RESEARCH methodology ,MEDICAL personnel ,CHINESE medicine ,OSTEOPATHIC medicine ,PROFESSIONS ,PSYCHOLOGICAL stress ,PROFESSIONAL identity ,PROFESSIONALISM - Abstract
Complementary and alternative medicine (CAM) degrees in Australian and British universities have come under attack from sceptics who argue that such courses teach only 'pseudoscience'. Moreover, CAM academics have themselves been publicly labelled 'quacks'. Comparatively little is known about this group of health professionals who span the two worlds of CAM practice and academia. How do they navigate between these domains, and how are their collective and individual professional identities constructed? Drawing on 47 semi-structured interviews, this paper explores the professional identities of academics working in three university-based CAM disciplines in Australia and the UK: osteopathy, chiropractic and Chinese medicine. By analysing these individuals' accounts, and building on prior research on health professions in the academy, the paper contributes to understanding how contests about professionalism and professional knowledge take place against the academic-practice divide. By focussing on a domain where knowledge claims are conspicuously contested, it highlights the salience of navigating 'epistemic stress' for both group and individual professional identity. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
31. How do people drink alcohol at a low-risk level?
- Author
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Mugavin, Janette, Room, Robin, Callinan, Sarah, and MacLean, Sarah
- Subjects
- *
SOCIAL theory , *AGE distribution , *SELF-perception , *SELF-control , *ALCOHOLIC intoxication , *SEX distribution , *SELF-efficacy , *ALCOHOL drinking , *QUESTIONNAIRES , *DRINKING behavior , *STATISTICAL sampling , *SOCIAL skills , *HEALTH promotion - Abstract
Reducing the risks associated with drinking is an ongoing public health goal. Approximately two-fifths of Australian adults consume alcohol within low-risk guidelines, yet little is known about their drinking patterns or practices. In this paper, we use social practice theory to consider low-risk drinking at home as a routinised social practice with material, meaning and competence dimensions. We analysed open-text survey responses from 252 Australian adults (30–65, 89% female) who were considered low-risk drinkers. A low-risk drinking occasion was typically closely linked to other practices such as eating dinner or connecting with family or friends. Drinking alcohol, even in small amounts, was associated with enjoyment. Being attuned to bodily sensations and applying some self-imposed rules were competencies that allowed low-risk drinkers to avoid intoxication. Low-risk drinking practices entail some elements that can inform health promotion, including encouraging efforts to limit drinking to times of the day (e.g. during meals) and to attend to bodily feelings of sufficiency. The study also shows how low-risk drinking is entangled with gendered and age-related norms about drinking, and facilitated by rarely being in 'intoxigenic' environments. These factors are imbricated with individual decisions in our respondents' capacity to consume alcohol moderately. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
32. Men, bodywork, health and the potentiality of performance and image-enhancing drugs.
- Author
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Dowsett, Gary W., Duncan, Duane, Waling, Andrea, Angelides, Steven, and Nourse, Gemma
- Subjects
- *
MASCULINITY , *PERSONAL beauty , *CULTURE , *ERGOGENIC aids , *BODYBUILDING , *HUMAN sexuality , *PHYSICAL fitness centers , *SOCIAL norms , *EXPERIENCE , *QUALITATIVE research , *HEALTH attitudes , *INTERPERSONAL relations , *BODY image - Abstract
In a qualitative study on masculinity, embodiment and sexuality, we interviewed men who were recreational gym-goers about their bodywork practices in Melbourne, Australia. We also asked whether the men had used performance and image-enhancing drugs (PIEDs) as an adjunct to their bodywork practices. While none had used PIEDs, all were considering, or had considered, using them. We found that participants held varying opinions on PIED use and those who used them. The literature on PIEDs noted men's concerns with body appearance and health and focused largely on individual problematic use, but non-users were not mentioned. A second issue in the literature focused on social influences on PIED use, but again with no mention of non-users. Discussion on risk reduction as a public health response did not mention non-users either. This paper, therefore, reports on non-users' thoughts on, regular exposure to, and considerations of PIEDs and other men who use them. We propose that PIEDs might more usefully be understood as an everyday, if contradictory, consideration within most men's bodywork and health practices. We argue that PIEDs constitute a discursive practice exposing a potentiality that engages non-users also and this requires new health promotion approaches. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
33. Professionalism and person-centredness: developing a practice-based approach to leadership within NHS maternity services in the UK.
- Author
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Deery, Ruth and Fisher, Pamela
- Subjects
ATTITUDE (Psychology) ,CORPORATE culture ,INTERVIEWING ,LEADERSHIP ,MEDICAL quality control ,MEDICAL personnel ,ORGANIZATIONAL change ,QUALITY assurance ,MIDWIFERY ,PATIENT-centered care - Abstract
This paper, based on data taken from in-depth interviews with senior midwives and obstetricians and conducted as part of a critical ethnographic study, argues for a greater appreciation of person-centred, value-led midwifery practice. The paper begins with a discussion of the way midwifery practice is shaped by encoded and embodied knowledge. The paper subsequently focuses on an emergent practice-based leadership using an adapted Aristotelian conceptual framework derived from MacIntyre [(2007). After virtue (3rd ed.). London: Duckworth]. Professional dissonance is highlighted as a difficulty experienced by repositioned managers who are also expected to be leaders in their field. Using data gathered from indepth interviews it is contended that establishing person-centred care might be better achieved through the development of practice-based leadership (rather than solely by adherence to organisational requirements). This type of leadership could potentially nurture a professional environment that promotes qualities such as agency, commitment and high levels of competence among midwives. Such leadership is central to UK government priorities and is applicable to a global practice development agenda. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
34. Interprofessional role boundaries in diabetes education in Australia.
- Author
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King, Olivia, Nancarrow, Susan, Grace, Sandra, and Borthwick, Alan
- Subjects
ALLIED health personnel ,DIABETES ,INTERPROFESSIONAL relations ,INTERVIEWING ,NURSES' attitudes ,PATIENT education ,PROFESSIONAL ethics ,STEREOTYPES ,JOB qualifications ,DATA analysis ,LABELING theory ,OCCUPATIONAL roles ,PROFESSIONAL identity ,HEALTH occupations school faculty ,COLLEGE teacher attitudes ,MEDICATION therapy management - Abstract
Diabetes presents a challenge to healthcare services worldwide. Diabetes educators work with individuals and communities to reduce the impact of diabetes. In Australia, diabetes educators derive from one of several primary qualifications including nursing, medicine or a specified allied health background, and have an accredited postgraduate qualification in diabetes education. The peak professional body, the Australian Diabetes Educators Association (ADEA), promotes equivalence of all diabetes educators in terms of their scope of practice. However, in practice, there is evidence of inequities, particularly between those from nursing and allied health backgrounds. This paper uses a neo-Weberian lens to explore the interprofessional role dynamics of a 'postprofessional' group of practitioners, who adopt a common role and title to create a professional identity at post-qualifying level. Data were collected via individual interviews with 19 stakeholders and analysed using an abductive template approach. Differential role boundaries between nurse and allied health diabetes educators were established and reinforced in several ways. Diabetes education is considered a sub-specialty of nursing only; access to education and credentialing has been restricted for allied health; reinforcement of professional stereotypes and perceived professional values; and perceived legislative differences in access to medication management for nurse and allied health diabetes educators. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
35. The vulnerable-empowered mother of academic food discourses: a qualitative meta-synthesis of studies of low-income mothers and food provisioning.
- Author
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Jovanovski, Natalie and Cook, Kay
- Subjects
FOOD ,ARTIFICIAL feeding ,CHILDREN'S health ,FOOD preferences ,HEALTH promotion ,PSYCHOLOGY of mothers ,SELF-efficacy ,SOCIOECONOMIC factors ,WELL-being ,FOOD security ,META-synthesis ,ECONOMICS - Abstract
The nutritional health and wellbeing of children, and by extension their weight, is a heated topic in contemporary discussions of food and health, particularly for low-income populations. Despite contrary understandings, there remains a dominant societal framing that parents – in particular low-income mothers – are solely responsible for the status of their children's health and wellbeing. In this paper, we examine how low-income mothers are positioned within the academic literature to reveal where responsibility for children's health and well-being is positioned. We present a meta-synthesis of 18 qualitative studies to identify how mothers' food choices and feeding are positioned, and the recommendations that researchers identify for promoting child health within this discursive terrain. We found that low-income mothers faced multiple challenges relating to cost, convenience, concerns about health and wellbeing. However, many of the recommendations made by researchers focused extensively on behavioural interventions aimed at the vulnerable mother rather than structural interventions to support mothers' feeding practices. We argue that discourses of low-income motherhood must recommend structural, and not just individual, change to counteract dominant constructions of the 'vulnerable-empowered mother'. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
36. Resignation, goal orientation or cultural essentialism? Health care practitioners’ approaches to interventions on childhood obesity.
- Author
-
Ditlevsen, Kia
- Subjects
PREVENTION of childhood obesity ,TREATMENT of childhood obesity ,BEHAVIOR modification ,CULTURE ,ETHNIC groups ,FAMILIES ,HABIT ,HEALTH behavior ,HEALTH promotion ,MEDICAL personnel ,MINORITIES ,PESSIMISM ,SOCIOLOGY ,QUALITATIVE research ,PATIENTS' families - Abstract
This qualitative study investigates health care practitioners’ approaches to early childhood obesity in Denmark and their view on their own ability to initiate processes of change in affected families, and it asks the overall question of whether perceived barriers become real through practitioners’ reluctance to intervene in families labelled as ´problematic’. The paper identifies three approaches in the practitioners’ narratives: the socially oriented, the individually oriented, and the mixed. The individually oriented approach was based on a logic resembling individualistic explanatory models of behaviour change, and was related to a positive perspective on their own ability to move families towards healthier habits by health care practitioners. The socially oriented approach borrowed elements from a sociological perspective, which seemed to lead to resigned pessimism in the face of the complexity of the problem of childhood overweight and a reluctance to address early childhood overweight in some families. In practitioners of all three types, widespread cultural essentialism was found. Non-western, ethnic minority background was seen as determining family habits and making preventive action especially difficult. Based on this, the current paper discusses whether individual actions and choices are being ascribed too much explanatory power, and the health system's biased perceptions too little. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
37. Uncritical reverence in CM reporting: Assessing the scientific quality of Australian news media reports.
- Author
-
Lewis, Monique, Orrock, Paul, and Myers, Stephen
- Subjects
ALTERNATIVE medicine ,AUSTRALIAN newspapers ,RESEARCH ,METHODOLOGY - Abstract
Objectives: The study is an exploratory study of a media event in Australia based on the publication of two separate systematic analyses of complementary medicine (CM) therapies. The objective of the study was to measure the scientific quality of Australian newspaper media reports about two international peer-reviewed research papers reporting results on complementary medicines published in biomedical journals during Feb/March 2007. For purposes of clarity, we refer to the papers as the ‘Antioxidant Study’ (Bjelakovic et al 2007) and the ‘Prenatal Multivitamin Study’ (Goh et al 2007). Methods: We sourced articles that were published about the two research papers in mainstream metropolitan and national Australian newspapers during February and March 2007. We then applied a model of analysis called the Index of Scientific Quality (ISQ) to measure the scientific quality of the news reports. Results: We identified 14 newspaper articles and one newswire article about the Antioxidant Study and two newspaper articles about the Prenatal Multivitamin Study. Of the seven ISQ criteria, ‘validity’ and ‘precision’ were rated the least adequate, ‘important consequences’ of the research were reported partially in the Antioxidant Study and wholly in the Prenatal Multivitamin Study, and ‘opinion from fact’ was adequate in the majority of articles. Conclusion: This exploratory study conveyed an overall inadequacy in the scientific quality of the newspaper reporting about the two CM studies in major metropolitan and national Australian newspapers. Whilst we found that journalists were careful to attribute opinions to their sources, their reports conveyed a very limited understanding of biomedical research methodologies and a subsequent incapacity to scrutinise these methodologies with rigour. [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
38. Becoming posthuman: hepatitis C, the race to elimination and the politics of remaking the subject.
- Author
-
Seear, Kate and Lenton, Emily
- Subjects
HEPATITIS C prevention ,HEALTH policy ,HEPATITIS C ,COGNITION ,COST effectiveness - Abstract
Hepatitis C has long been a public health problem in Australia. 'Revolutionary' new drugs with the potential to cure hepatitis C have now emerged. The Australian government has invested heavily in them, and has an ambitious goal to eliminate hepatitis C by 2030. Numerous shifts in policy and practice are required if the elimination agenda is to be realised. This paper explores the significance of these shifts. We ask: what is the race to elimination doing with the subject? We argue that the race to elimination can be understood, simultaneously, as a product of posthuman forces, capable of being analysed using the theoretical tools made available via the posthuman turn; producing an intervention in what it means to be human; and generating a dilemma for people who use (or used) drugs, people with hepatitis C, and posthuman scholarship. In drawing out these issues, we aim to: trace the significant developments underway in hepatitis C medicine and raise awareness of them; encourage reflection on the consequences of these developments; and invite reflections on what might be lost when the human is remade by hepatitis C medicine. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
39. A posthuman decentring of person-centred care.
- Author
-
Gibson, Barbara E., Fadyl, Joanna K., Terry, Gareth, Waterworth, Kate, Mosleh, Donya, and Kayes, Nicola M.
- Subjects
PATIENT-centered care ,BODY dysmorphic disorder ,PEOPLE with disabilities - Abstract
In this paper, we examine person-centred care through a Deleuzian posthuman lens with the aim of exploring what becomes possible when the concepts of both person and care are de-centred. We do so through a consideration of the sets of relations that produce 'the client' in health care contexts. Our analysis maps particular entangled material-semiotic forces producing 'M/michael', a young man with a diagnosis of Duchenne muscular dystrophy, within a rehabilitation clinic. Drawing on Deleuzian notions of assemblage, affect, and becoming we explore 'person-care' as an active production that dynamically enacts persons-as-clients through clinical arrangements. Persons are thus reconceptualised in terms of locally produced subject positions and their care relations, rather than pre-existing beings who can be 'centred' within health services. Paradoxically, by de-centring persons and care, we work to conjure ways to strengthen the aspirations of person centredness to humanise health practices. In doing so, we consider different possibilities for re-imagining clinical work and contribute to debates regarding how healthcare conceptualises and addresses disability, health, and wellbeing. We suggest that such posthuman analyses can open up new ways of understanding and re/forming healthcare. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
40. Epistemic cultures in complementary medicine: knowledge-making in university departments of osteopathy and Chinese medicine.
- Author
-
Brosnan, Caragh
- Subjects
EVALUATION of teaching ,TEACHING methods ,ALTERNATIVE medicine ,ATTITUDE (Psychology) ,INTERVIEWING ,RESEARCH methodology ,MEDICAL personnel ,MEDICINE ,PHILOSOPHY of medicine ,MEDICAL research ,STUDY & teaching of medicine ,CHINESE medicine ,OSTEOPATHIC medicine ,RESEARCH funding ,EVIDENCE-based medicine ,KNOWLEDGE base ,RANDOMIZED controlled trials ,COLLEGE teacher attitudes - Abstract
There is increasing pressure on complementary and alternative medicine (CAM) to follow the evidence-based approach promoted in allied health and medicine, in which the randomised control trial represents the evidence gold standard. However, many CAM advocates see these methods as undermining the holism of CAM practice. This paper explores how such tensions are managed in CAM university departments – settings in which particular forms of knowledge and evidence are given 'official' imprimatur by CAM educators and researchers. By comparing two types of CAM, the paper also unpacks differences within this broad category, asking whether CAM academic disciplines comprise different 'epistemic cultures' (Knorr-Cetina, K. (1999). Epistemic cultures: How the sciences make knowledge. Cambridge, MA: Harvard University Press). Interviews were conducted with 20 lecturers in Chinese medicine and osteopathy, across five Australian universities, and augmented with observation in two degree programs. Findings reveal contrasting ontological and epistemological perspectives between the two academic fields. Chinese medicine lecturers had largely adopted bioscientific models of research, typically conducting laboratory work and trials, although teaching included traditional theories. Osteopathy academics were more critical of dominant approaches and were focused on reframing notions of evidence to account for experiences, with some advocating qualitative research. The study illustrates CAM's 'epistemic disunity' while also highlighting the particular challenges facing academic CAM. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
41. Public and private families: a comparative thematic analysis of the intersections of social norms and scrutiny.
- Author
-
Riggs, Damien W., Bartholomaeus, Clare, and Due, Clemence
- Subjects
POLICY sciences ,ADOPTION ,ATTITUDE (Psychology) ,CHANGE ,FAMILIES ,FOSTER parents ,HETEROSEXUALS ,INTERVIEWING ,RESEARCH methodology ,RESEARCH funding ,STATISTICAL sampling ,SOCIAL norms ,LGBTQ+ people ,SOCIAL attitudes ,THEMATIC analysis ,FAMILY attitudes ,PSYCHOLOGY - Abstract
Despite the increased diversification of Australian families, the nuclear family formed through reproductive heterosex continues to be treated as the norm. This paper argues that this norm impacts negatively upon families formed in other ways, by exposing them to increased scrutiny. Drawing on interviews with 60 participants from four cohorts (families formed through reproductive heterosex, intercountry adoption, long-term foster care, or surrogacy), a comparative thematic analysis is presented in which two key themes are elaborated: (1) the impact of government policies and practices, and (2) the degree to which families are treated as public property. Findings suggest that families formed through reproductive heterosex were the least regulated and scrutinised; families formed through either adoption or surrogacy received a considerable degree of regulation and scrutiny; and foster families were the most scrutinised and negatively impacted by government policies. The paper concludes by considering what is required to engender more inclusive and supportive responses to all families. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
42. New theory and new understandings.
- Author
-
Willis, Eileen
- Subjects
CAREGIVERS ,CRITICISM ,HEALTH services accessibility ,MEDICAL practice ,POWER (Social sciences) ,SERIAL publications ,GOVERNMENT regulation ,LABELING theory ,CONSUMER activism - Abstract
An introduction is presented in which the author discusses papers in the issue on topics including Portuguese medical profession's approach to two complementary therapies namely acupuncture and homeopathy, sociology of medicine theme and the 'positive aging' movement.
- Published
- 2012
- Full Text
- View/download PDF
43. Gut feelings and lived experiences: a qualitative study of ‘anti-diet’ dietitians’ and psychologists’ motivations and experiences regarding the weight-neutral approach.
- Author
-
Jovanovski, Natalie, Jaeger, Tess, McDougall, Rosalind, and Keogh, Louise
- Abstract
This paper examines whether the motivations and experiences of ‘anti-diet’ dietitians and psychologists represent a paradigm shift in healthcare. We conducted four 2-hour, discipline-specific focus groups with a total of 16 female participants residing in Australia. Our reflexive thematic analysis generated four themes that we consider to be stages of a weight-neutral paradigm shift: (1) a recognition of a mismatch between one’s weight-centred training and one’s lived experience of diet culture, which subsequently informs (2) gut feelings that influence their decision to reject the weight-centric paradigm, thereby leading to (3) exploring the anti-diet knowledge base and then subsequently (4) promoting or advocating for the weight neutral paradigm. Our findings represent a four-stage paradigm shift in action; emphasising the significance of lived experience in the weight-neutral turn, as well as differences in symbolic power between health professionals. Future research should focus on potential ruptures or conflicts within the weight-neutral paradigm itself, and look more deeply into the experiences of other health professionals who are critical of the weight-centred approach. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
44. New technologies are changing sex, intimacy and health.
- Author
-
Power, Jennifer and Waling, Andrea
- Subjects
HEALTH status indicators ,SEXUAL health ,INTIMACY (Psychology) ,SERIAL publications ,TECHNOLOGY - Abstract
An editorial is presented on the rapid advances in biomedical, biomechanical and bio digital technologies have inspired scholarship that seeks to understand the ways in which practices of sex and intimacy are being transformed by such technologies and the implications this has for health. It mentions that the production of media discourses that uncritically position dating apps as a social problem through analysis of the relationship between media reporting and research.
- Published
- 2020
- Full Text
- View/download PDF
45. Social class, teachers, and medicalisation lag: a qualitative investigation of teachers' discussions of ADHD with parents and the effect of neighbourhood-level social class.
- Author
-
Simoni, Zachary
- Subjects
DISCUSSION ,GROUNDED theory ,RESEARCH methodology ,COMMUNITIES ,INTERVIEWING ,ATTENTION-deficit hyperactivity disorder ,QUALITATIVE research ,TEACHERS ,COMMUNICATION ,SOCIAL classes ,ELEMENTARY schools ,DATA analysis ,THEMATIC analysis ,PARENTS - Abstract
While medical sociologists have explored how teachers aid the medicalisation process of Attention Deficit Hyperactivity Disorder (ADHD), there is a paucity of work investigating the role of neighbourhood-level social class. This paper has two main aims. First, to explore how teachers discuss ADHD with parents, and second, to understand how these discussions differ based upon neighbourhood-level social class. To achieve these aims, I utilise grounded theory and interviews with thirty-four elementary school teachers. Emergent themes describe the following process: (a) reifying biological causation of ADHD, (b) evidence gathering, and (c) furtive diagnosis. Findings suggest teachers in upper-class areas skipped steps in the process or easily managed each step while discussing ADHD with parents. Teachers in lower-class areas were met with barriers that affected the likelihood of children receiving a furtive diagnosis from teachers, thus reducing the likelihood of meeting with a medical professional and receiving medical intervention. Findings explain disparities in medication use for ADHD by neighbourhood-level social class and help to explain the social reproduction of social class. By building on the literature regarding cultural capital and mental health literacy, I conceptualise 'medicalisation lag' as integral to the medicalisation process and to the social reproduction of social class. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
46. Men and masculinities in qualitative research on vasectomy: perpetuation or progress?
- Author
-
Nicholas, Lucy, Newman, Christy E., Botfield, Jessica R., Terry, Gareth, Bateson, Deborah, and Aggleton, Peter
- Subjects
MASCULINITY ,CONTRACEPTION ,PSYCHOLOGY of men ,SYSTEMATIC reviews ,QUALITATIVE research ,VASECTOMY ,LITERATURE reviews ,HEALTH promotion - Abstract
Although vasectomy is a safe and highly effective method of contraception, uptake is variable globally, with scope for increased engagement in high income nations. Very little qualitative research has been published in recent years to explore men's perspectives on vasectomy, which represents a key opportunity to better understand and strengthen men's contribution to reproductive and contraception equality. This paper takes a scoping review approach to identify key findings from the small but important body of qualitative literature. Recent masculinities research argues that, despite some expansion in ways of being masculine, an underpinning ethos of masculinist dominance remains. Extant research on men's attitudes to vasectomy supports this ambivalent picture, indicating that while there are extending repertoires of masculinity for men to draw on in making sense of vasectomy, many remain underpinned by masculinist narratives. There remains scope for education and health promotion ensuring vasectomy is viewed as a suitable and safe option by more men of reproductive age. Increased uptake of vasectomy may also help shift the longstanding social expectation that women take primary responsibility for contraceptive practices, challenging gender discourses on contraception. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
47. Making sense of the abortion pill: a sociotechnical analysis of RU486 in Canada.
- Author
-
Campbell, Patricia
- Subjects
ABORTION ,HUMAN reproductive technology ,MIFEPRISTONE ,SOCIOLOGY - Abstract
In January 2017, the 'abortion pill' was finally used legally in Canada. This paper provides a sociotechnical analysis of the controversy surrounding RU486 in Canada, focusing on its entry into public discourse, 1990-1995. The case study draws primarily on statements made about the pill, both in Canadian media and in various actors' print communications. Using approaches from science and technology studies, the analysis identifies the multiple human and nonhuman actors, their discursive mobilizations of RU486 and each other, and their contingent alliances, illustrating how RU486 mediates and shapes the communication that attempts to define it. Unpacking the network's complexity illuminates how these sense-making practices established the early setting of the technology's path, a first step in understanding why Canada has been a laggard in making the pill available. The discussion illustrates the tensions, instabilities, and reversals in the network that have hindered RU486's movement from development to diffusion. Finally, the paper suggests a framework for future sociological research on controversial reproductive technologies in their shift from discursive to material diffusion, one that recognises the integral role of women as users. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
48. Conflicted hope: social egg freezing and clinical conflicts of interest.
- Author
-
Mayes, Christopher, Williams, Jane, and Lipworth, Wendy
- Subjects
CRYOPRESERVATION of organs, tissues, etc. ,CONFLICT of interests ,CORPORATIONS ,ETHICISTS ,FERTILITY ,MEDICAL care ,OVUM ,SELF-efficacy ,VOCATIONAL guidance ,PATIENT autonomy ,ETHICS - Abstract
Over the past decade ‘social egg freezing’ has emerged as a technology of hope that purports to empower women by enabling them to continue their careers or find the right partner without the fear of jeopardising their fertility. This technology has been promoted and celebrated by fertility companies, bioethicists, clinicians, and multi-national corporations such as Apple and Facebook. While critical questions have been raised, they tend to focus on ethical and legal issues, such as informed consent and patient autonomy. This paper uses Foucault’s notion ofdispositifas analytic lens to examine the entanglement of the commercial arrangements of fertility companies, the discursive use of hope in promoting these services, and effects on professional medical care. Drawing on socio-political analyses of hope, this paper examines the potential financial conflicts of interest facing clinicians and the way discourses of hope might mask problematic financial relations and lack of evidence of effectiveness. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
49. Negotiating trust and struggling for control: everyday narratives of unwanted disclosure of HIV status among people with HIV in Australia.
- Author
-
Bell, Stephen, Aggleton, Peter, and Slavin, Sean
- Subjects
EXPERIENCE ,HEALTH ,HIV ,PSYCHOLOGY of HIV-positive persons ,INTERVIEWING ,METROPOLITAN areas ,NEGOTIATION ,TRUST ,WORK ,DISCLOSURE ,SOCIAL responsibility - Abstract
Despite the frequent occurrence of unwanted disclosure of HIV status in Australia, there is little understanding of its determinants and consequences. This paper offers an analysis of lived experiences of unwanted disclosure amongst 28 people with HIV in urban settings in Australia. Of the 28 individuals interviewed, 17 men and 8 women had experienced unwanted disclosure of their HIV status by other people in work, health, social and other settings. Through the lenses provided by the concepts of habitus and agentic practice, this paper focuses on unintentional and deliberate practices of unwanted disclosure, and the consequences that may arise from this. Findings reveal how unwanted disclosure may lead to reflexive and agentic action among people with HIV as they struggle to reclaim control over their lives and how they are perceived. Despite what is sometimes assumed, the negative social responses the HIV epidemic has given rise to persist in Australia. Some 30 years into the epidemic, findings highlight the need to establish a social climate that is intolerant of unwanted disclosure, and which recognises the damage it may cause. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
50. Relational approaches to fostering health equity for Indigenous children through early childhood intervention.
- Author
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Gerlach, Alison J., Browne, Annette J., and Suto, Melinda J.
- Subjects
FAMILIES & psychology ,INDIGENOUS children ,CHILD development ,HEALTH services accessibility ,SERVICES for caregivers ,RACISM ,QUALITATIVE research ,HEALTH of indigenous peoples ,EARLY intervention (Education) ,SOCIAL support ,WELL-being - Abstract
This paper reports on key findings of a critical qualitative inquiry undertaken with an Indigenous early child development (ECD) program in Canada, known as the Aboriginal Infant Development Program (AIDP). In depth, semi-structured interviews were used to obtain the perspectives of: Indigenous caregivers and Elders, AIDP workers, and administrative leaders. The findings centre on: (1) a relational perspective of family wellbeing that emphasises the inseparability between child health inequities and the impact of structural social factors on families’ lives, and (2) how AIDP workers’ enact relational accountability to families by: (a) fostering cultural connections; (b) creating networks of belonging and support; (c) responding to caregivers’ self-identified priorities; (d) mitigating racism in healthcare encounters, and (e) deferring an ‘ECD agenda’. Rather than a one-size-fits-all model, these findings illustrate relational approaches to early intervention, characterised by a broader and socially responsive scope of practice and the deferral of a normative ‘ECD agenda’. This study has relevance in a variety of international contexts and to a broad range of disciplines and programs that serve families and children impacted by structural inequities. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
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