1. Bereaved Parents' Perspectives on Pediatric Palliative Care
- Author
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Donna S. Zhukovsky, Shirley M. Morrison, Guadalupe R. Palos, Riza V. Mauricio, Katherine Ramsey Gilmore, and Rhonda Robert
- Subjects
Adult ,Male ,Parents ,Attitude to Death ,Health (social science) ,Palliative care ,Adolescent ,Psychological intervention ,MEDLINE ,Interpersonal communication ,Intensive Care Units, Pediatric ,Pediatrics ,Social support ,Nursing ,Professional-Family Relations ,Neoplasms ,Humans ,Medicine ,Parent-Child Relations ,Child ,Life-span and Life-course Studies ,Patient Care Team ,Terminal Care ,Social work ,business.industry ,Palliative Care ,Social Support ,Focus Groups ,Middle Aged ,Focus group ,Pediatric cancer ,Female ,business ,Bereavement - Abstract
This study's goal was to describe and begin to understand the experience of bereaved parents whose deceased child had received pediatric oncology services at a tertiary comprehensive cancer center. Focus groups were conducted with parents whose children were age 10 years and older at the time of death. Potential participants were contacted by mail and telephone. Sessions were audiotaped and transcribed verbatim. The ATLAS.ti qualitative software program was used to identify and analyze dominant themes. Fourteen parents identified four major themes: standards of care, emotional care, communication, and social support. Bereaved parents discussed the challenges associated with institutional procedures and interpersonal aspects of care in anticipation of and following their child's death. The results of these personal narratives may be used to guide care plans and deliver pediatric palliative and end-of-life interventions.
- Published
- 2012
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