1. Perspectives of Patients in Identifying Their Values‐Based Health Priorities
- Author
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Darce Costello, Lauren Vo, Mary Geda, Caroline Blaum, Shelli Feder, Aanand D. Naik, Kizzy Hernandez-Bigos, Lilian Dindo, Mary E. Tinetti, and Eliza Kiwak
- Subjects
Male ,medicine.medical_specialty ,Disease ,Primary care ,Article ,Interviews as Topic ,03 medical and health sciences ,Social support ,0302 clinical medicine ,Health care ,medicine ,Humans ,Multiple Chronic Conditions ,030212 general & internal medicine ,Qualitative Research ,Aged, 80 and over ,Health Priorities ,business.industry ,030503 health policy & services ,Facilitator ,Family medicine ,Female ,Patient Participation ,Geriatrics and Gerontology ,Thematic analysis ,0305 other medical science ,business ,Goals ,Inclusion (education) ,Qualitative research - Abstract
Objectives Patient Health Priorities Identification (PHPI) is a values-based process in which trained facilitators assist older adults with multiple chronic conditions identify their health priorities. The purpose of this study was to evaluate patients' perceptions of PHPI. Design Qualitative study using thematic analysis. Setting In-depth semistructured telephone and in-person interviews. Participants Twenty-two older adults who participated in the PHPI process. Measurements Open-ended questions about patient perceptions of the PHPI process, perceived benefits of the process, enablers and barriers to PHPI, and recommendations for process enhancement. Results Patient interviews ranged from 9 to 63 minutes (median = 20 min; interquartile range = 15-26). The mean age was 80 years (standard deviation = 7.96), 64% were female, and all patients identified themselves as white. Of the sample, 73% reported no caregiver involvement in their healthcare; 36% lived alone. Most patients felt able to complete the PHPI process with ease. Perceived benefits included increased knowledge and insight into disease processes and treatment options, patient activation, and enhanced communication with family and clinicians. Patients identified several factors that were both enablers and barriers to PHPI including facilitator characteristics, patient demographic and clinical characteristics, social support, relationships between the patient and their primary care provider, and the changing health priorities of the patient. Recommendations for process enhancement included more frequent and flexible facilitator contacts, selection of patients for participation based on specific patient characteristics, clarification of process aims and expectations, involvement of family, written reminders of established health priorities, short duration between facilitation and primary care provider follow-up, and the inclusion of health-related tasks in facilitation visits. Conclusions Patients found the PHPI process valuable in identifying actionable health priorities and healthcare goals leading to enhanced knowledge, activation, and communication regarding their treatment options and preferences. PHPI may be useful for aligning the healthcare that patients receive with their values-based priorities.
- Published
- 2019