1. Level of agreement between patient self-report and observer ratings of health-related quality of life communication in oncology
- Author
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Paul H. Kloeg, Symone B. Detmar, Doranne L. Hilarius, Neil K. Aaronson, and Martin J. Muller
- Subjects
Adult ,Male ,medicine.medical_specialty ,Attitude of Health Personnel ,Nursing assessment ,Antineoplastic Agents ,Hospitals, Community ,Nursing Methodology Research ,Nursing Staff, Hospital ,Medical Oncology ,Ambulatory care ,Quality of life ,Neoplasms ,medicine ,Ambulatory Care ,Humans ,Psychiatry ,Nursing Assessment ,Aged ,Netherlands ,Sleep disorder ,business.industry ,Communication ,Data Collection ,Oncology Nursing ,General Medicine ,Middle Aged ,medicine.disease ,Checklist ,Nursing Evaluation Research ,Sample size determination ,Physical therapy ,Quality of Life ,Observational study ,Female ,business ,Nurse-Patient Relations ,Attitude to Health ,Kappa - Abstract
Objective: To determine the level of agreement between patients and observers regarding the frequency with which health-related quality of life topics are discussed during outpatient clinical oncology visits. Methods: The sample (n = 50) consisted of a consecutive series of cancer patients undergoing chemotherapy. Both the patients and observers used a checklist to report which HRQL topics had been discussed during the consultation. Percentage of agreement, kappa and adjust-kappa statistics were calculated. Results: The percentage agreement between patients' and observers' ratings was generally high, ranging from 74% for fatigue to 96% for sleep problems and cognitive functioning. The average percentage of agreement over the 13 HRQL topics rated was 86%. Cohen's kappa varied between 0.41 (for pain) and 0.78 (for sleep problems). Prevalence-adjusted kappa's were generally higher, ranging from 0.48 (for fatigue) to 0.92 (for sleep problems and social functioning). The average Cohen's kappa and prevalence-adjusted kappa over the 13 HRQL topics were 0.56 and 0.71, respectively. Level of agreement was not found to vary significantly as a function of patients' background characteristics. Conclusion: Oncology patients' self-reports of the HRQL-related topics discussed during outpatient chemotherapy visits are in reasonably close agreement with those provided by observers. Practice implications: Our results indicate that the patient is a legitimate source of information about the HRQL-related content of medical encounters, and thus can be used in communication studies where the collection of observational data (e.g., via audio- or videotaping) is either too costly or logistically impractical. © 2006 Elsevier Ireland Ltd. All rights reserved. Chemicals / CAS: Antineoplastic Agents
- Published
- 2005