1. Functioning in adult patients with idiopathic inflammatory myopathy: Exploring the role of environmental factors using focus groups
- Author
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Armadans Tremolosa, Immaculada, Guilera, G., Las Heras, M., Castrechini Trotta, Angela Armenia, Selva O'Callaghan, Albert, Universitat Autònoma de Barcelona, Institut Català de la Salut, [Armadans-Tremolosa I, Las Heras M, Castrechini A] Department of Social Psychology and Quantitative Psychology, PsicoSAO-Research Group in Social, Environmental, and Organizational Psychology, Universitat de Barcelona, Barcelona, Spain. [Guilera G] Department of Social Psychology and Quantitative Psychology, Universitat de Barcelona, Barcelona, Spain. Institute of Neurosciences, Universitat de Barcelona, Barcelona, Spain. [Selva-O'Callaghan A] Unitat de Malalties Autoimmunes Sistèmiques, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Departament de Medicina, Universitat Autònoma de Barcelona, Bellaterra, Spain, and Vall d'Hebron Barcelona Hospital Campus
- Subjects
Gerontology ,Male ,Other subheadings::Other subheadings::/physiopathology [Other subheadings] ,Psychological intervention ,Global Health ,Patient advocacy ,Cohort Studies ,030207 dermatology & venereal diseases ,Disability Evaluation ,0302 clinical medicine ,Medical Conditions ,International Classification of Functioning, Disability and Health ,Salut ambiental ,Environmental Health::Science::Environmental Quality::Quality of Life [PUBLIC HEALTH] ,ambiente y salud pública::ambiente [ATENCIÓN DE SALUD] ,Surveys and Questionnaires ,Activities of Daily Living ,Medicine and Health Sciences ,Medicine ,Public and Occupational Health ,Environment and Public Health::Environment [HEALTH CARE] ,Immune Response ,enfermedades musculoesqueléticas::enfermedades musculares::miositis [ENFERMEDADES] ,Conservation Science ,Multidisciplinary ,Focus Groups ,Middle Aged ,Qualitat de vida ,salud ambiental::ciencia::calidad ambiental::calidad de vida [SALUD PÚBLICA] ,Cohort ,Female ,Behavioral and Social Aspects of Health ,Research Article ,Adult ,Otros calificadores::Otros calificadores::/fisiopatología [Otros calificadores] ,Patients ,Inflammatory Diseases ,Science ,Immunology ,Environment ,Immediate family ,Autoimmune Diseases ,Inflammatory myopathy ,03 medical and health sciences ,Quality of life (healthcare) ,Signs and Symptoms ,Rheumatology ,Humans ,Aged ,030203 arthritis & rheumatology ,Inflammation ,Health Care Policy ,Myositis ,business.industry ,Músculs - Malalties - Fisiologia patològica ,Ecology and Environmental Sciences ,Biology and Life Sciences ,medicine.disease ,Musculoskeletal Diseases::Muscular Diseases::Myositis [DISEASES] ,Focus group ,Health Care ,Spain ,Quality of Life ,Clinical Immunology ,Clinical Medicine ,business - Abstract
Objective Health-related quality of life is impaired in idiopathic inflammatory myopathies. This study aimed to identify the main areas of the health-related quality of life environment domain that are affected in patients with myositis. Methods A qualitative study was performed using focus groups and applying the International Classification of Functioning, Disability, and Health. Participants were recruited from a cohort of 323 adult inflammatory myopathy patients consulting at a reference center for idiopathic inflammatory myopathy in Spain, selected by the maximum variation strategy, and placed in focus groups with 5 to 7 patients per group. The number of focus groups required was determined by data saturation. Results Twenty-five patients distributed in 4 focus groups were interviewed. The verbatim provided 54 categories directly related with environmental factors. Those associated with products or substances for personal consumption (e110), health professionals (e355), health services, systems and policies (e580), products and technology for personal use in daily living (e115), and immediate family (e310) were the ones most frequently reported. Conclusion The results of this study led to identification of several environmental factors that affect the health-related quality of life of patients with myositis. Remedial interventions should be designed to address some of these factors.
- Published
- 2021