89 results
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2. Trans depathologisation and gender identity disorder in Japan: A critical discourse analysis of medical literature, 2010–2022.
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Konishi, Yuumi
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HEALTH services accessibility , *GENDER identity , *TRANSGENDER people , *MENTAL illness , *SOCIAL factors , *DECISION making , *DIAGNOSIS , *DISCOURSE analysis , *GENDER dysphoria , *PSYCHOSOCIAL factors - Abstract
Since the depathologisation movement in 2007 to challenge the pathologisation of trans identities in Western psychiatry, significant developments have occurred, including revisions to Standards of Care and diagnostic criteria such as ICD-11's gender incongruence and DSM-5's gender dysphoria, acknowledging gender diversity as an expected part of human development. This paper argues that Japanese medical models reflect global issues but also have unique aspects shaped by cultural and linguistic nuances. Using critical discourse analysis, this paper examines how depathologisation discourses are perceived in the Japanese medical community, focusing on the term seidouitsusei-syōgai (gender identity disorder), presenting three ways in which seidouitsusei-syōgai is used: psychiatric disorder, syōgai / sikkan (impairment/disability/disorder), and diagnostic category. These uses are influenced by legal and social reforms, healthcare access and alignment with international classifications, while the medical profession's authority remains unexamined. Reflecting the structural challenges of diagnostic models in trans medicine, the interpretation of seidouitsusei-syōgai differs from the English phrase 'gender identity disorder' due to the specific connotations of syōgai in the Japanese context. By examining Japan's approach to depathologisation and medicalisation, this paper enriches the understanding of trans medicine and the impact of depathologisation discourse in Japan. • Japanese medical views on trans depathologisation through critical discourse analysis. • Focusing interpretations of seidouitsusei-syōgai(=gender identity disorder). • 3 usages, psychiatric, syōgai/sikkan and diagnostic, are influenced by social factors. • The authoritative role of the medical profession remains unexamined. • Japan sharing structural problems of diagnostic model but has specific connotations. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Therapeutic management in the low-wage workplace.
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Ruppel, Emily H.
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NONPROFIT organizations , *WORK environment , *DISEASE management , *REHABILITATION of people with mental illness , *INTERVIEWING , *MINDFULNESS , *WAGES , *ETHNOLOGY , *FIELD research , *SOCIOLOGY , *PEOPLE with disabilities - Abstract
Medicalization represents an increasingly significant form of social control. Emergent evidence suggests that workplace managers take up medicalized practices and discourses to produce a compliant labor force, but this phenomenon has received limited sociological attention. This paper extends prior theories of medicalization to investigate therapeutic management in the low-wage workplace. I draw upon eight months of ethnographic fieldwork in Disability Works, a nonprofit job training program for people with mental illnesses, and interviews with other providers and advocates within this field. Disability Works harnesses therapy, psychiatry, and "softer" therapeutic practices such as mindfulness meditation, sleep hygiene, and positive affirmations to produce its workforce. This paper identifies two dimensions of therapeutic management: (1) it aims to inculcate work norms at the level of client-workers' embodied dispositions, and (2) it aims to transform structural problems into individual ones. Findings illuminate therapeutic management as an emergent workplace regime and may guide future research on its effects. • "Therapeutic management" is an emergent managerial style. • Ethnographic fieldwork and interviews illustrate practices of therapeutic management. • This style draws on therapy, psychiatry, and pseudo-therapeutic practices. • Therapeutic management aims to inculcate work norms at the dispositional level. • Therapeutic management aims to transform structural problems into individual ones. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Rank, stress, and risk: A conjecture.
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Stark, Oded and Wlodarczyk, Julia
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RISK-taking behavior , *HYDROCORTISONE , *SOCIAL perception , *SOCIAL status , *PSYCHOLOGICAL stress , *SOCIAL skills , *SOCIAL classes - Abstract
A perception at the core of studies that consider the link between social rank and stress (typically measured by the so-called stress hormone cortisol) is that the link is direct. Examples of such studies are Bartolomucci (2007) , Beery and Kaufer (2015) , and Koolhaas et al. (2017). A recent and stark representation of this body of work is a study by Smith-Osborne et al. (2023) , who state that "social hierarchies directly influence stress status" (Smith-Osborne et al. p. 1537, italics added). In the present paper, we reflect on this "direct" perspective. We conjecture that the link between social rank and stress involves an intervening variable: an indirect relationship arises when the loss of rank triggers a behavioral response in the form of risk taking aimed at regaining rank, and it is the engagement in risk-taking behavior that is the cause of an elevated level of cortisol. Smith-Osborne et al., as well as others whose papers are cited by Smith-Osborne et al. and who, like Creel (2001) and Avitsur et al. (2006) , conducted comprehensive research on the association between rank (social standing) and stress, do not refer to risk taking at all. We present four strands of research that lend support to our conjecture: evidence that in response to losing rank, individuals are stressed; evidence that in response to losing rank, individuals resort to risk-taking behavior aimed at regaining their lost rank; evidence that there exists a link between engagement in risky activities or exposure to risk and elevated levels of cortisol; and an analytical perspective on incidence and intensity, namely a perspective that shows how the willingness to take risks responds to a change in rank, specifically, how a loss of rank triggers a greater willingness to take risks and how this trigger is stronger for individuals whose rank is higher. • The link between social rank and stress involves an intervening variable. • Loss of rank triggers a behavioral response in the form of risk taking. • This response is aimed at regaining rank. • Risk-taking behavior is the cause of an elevated level of cortisol. [ABSTRACT FROM AUTHOR]
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- 2024
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5. 'Kindling the fire' of NHS patient data exploitations: The care.data controversy in news media discourses.
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Vezyridis, Paraskevas
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NATIONAL health services , *SOCIAL media , *SOCIAL security , *LEADERSHIP , *PRIMARY health care , *COMMITMENT (Psychology) - Abstract
This paper explores news media discourse about care.data: an NHS England programme of work for amalgamating and sharing patient data from primary care for planning and research. It was scrapped in 2016 after three years of public outcry, delays and around 1.5 million opt-outs. I examine UK news media coverage of this programme through the 'fire object' metaphor, focusing upon the visions of purpose and value it inspired, the abrupt discontinuities, juxtapositions and transformations it performed, and the matters of concern that went unheeded. Findings suggest that, in care.data's pursuit of a societal consensus on NHS patient data exploitations, various visions for new and fluid data flows brought to presence narratives of transforming the NHS, saving lives, and growing the economy. Other realities and concerns that mattered for certain stakeholders, such as data ownership and commercialisation, public engagement and informed consent, commitment and leadership, operational capabilities, and NHS privatisation agendas, remained absent or unsettled. False dichotomies kept the controversy alive, sealing its fate. I conclude by arguing that such failed programmes can turn into phantom-like objects , haunting future patient data schemes of similar aspirations. The paper highlights the role news media can have in understanding such energetic public controversies. • Care.data was an NHS England's programme for extracting and analysing primary care data. • Care.data was scrapped in 2016 after public outcries and more than 1.5 million opt-outs. • I analyse UK news media to examine discourses around care.data's discontinuities and shifts. • Ethical concerns and design flaws empowered multiple visions to develop and compete. • Care.data arrived at an inevitable antagonistic deadlock that was hard to resolve. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Using simulation modelling to transform hospital planning and management to address health inequalities.
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Demir, Eren, Yakutcan, Usame, and Page, Stephen
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MEDICAL care , *DECISION making , *PROBLEM solving , *SIMULATION methods in education , *HEALTH equity , *MANAGEMENT ,HOSPITAL planning - Abstract
Health inequalities are a perennial concern for policymakers and in service delivery to ensure fair and equitable access and outcomes. As health inequalities are socially influenced by employment, income, and education, this impacts healthcare services among socio-economically disadvantaged groups, making it a pertinent area for investigation in seeking to promote equitable access. Researchers widely acknowledge that health equity is a multi-faceted problem requiring approaches to understand the complexity and interconnections in hospital planning as a precursor to healthcare delivery. Operations research offers the potential to develop analytical models and frameworks to aid in complex decision-making that has both a strategic and operational function in problem-solving. This paper develops a simulation-based modelling framework (SimulEQUITY) to model the complexities in addressing health inequalities at a hospital level. The model encompasses an entire hospital operation (including inpatient, outpatient, and emergency department services) using the discrete-event simulation method to simulate the behaviour and performance of real-world systems, processes, or organisations. The paper makes a sustained contribution to knowledge by challenging the existing population-level planning approaches in healthcare that often overlook individual patient needs, especially within disadvantaged groups. By holistically modelling an entire hospital, socio-economic variations in patients' pathways are developed by incorporating individual patient attributes and variables. This innovative framework facilitates the exploration of diverse scenarios, from processes to resources and environmental factors, enabling key decision-makers to evaluate what intervention strategies to adopt as well as the likely scenarios for future patterns of healthcare inequality. The paper outlines the decision-support toolkit developed and the practical application of the SimulEQUITY model through to implementation within a hospital in the UK. This moves hospital management and strategic planning to a more dynamic position where a software-based approach, incorporating complexity, is implicit in the modelling rather than simplification and generalisation arising from the use of population-based models. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Stigma power in practice: Exploring the contribution of Bourdieu's theory to stigma, discrimination and health research.
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Guise, Andy
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MEDICAL care research , *HEALTH attitudes , *PROFESSIONAL practice , *VIOLENCE , *SCHOLARLY method , *SOCIAL services , *SOCIAL status , *SOCIAL skills , *CONCEPTUAL structures , *DISCRIMINATION (Sociology) , *HEALTH promotion , *SOCIAL stigma - Abstract
Stigma and discrimination are increasingly understood as shaping health, and in turn conceptualised as social processes shaped by power and structural inequities. A challenge to analysis and implementing interventions is developing theory that can integrate analysis of structure, agency and power. One theoretical framework already promoted by prominent scholars as supporting this need is Bourdieu's social practice theory. This paper explores the application to date of Bourdieu's theory on stigma, discrimination and health. The paper describes how existing health literature has used concepts of symbolic violence, fields, capitals and habitus to develop insight into stigma power. The discussion explores how this theoretical framework is though underutilised and there has been little consideration of new programmatic approaches based on this theory. Directions for future research include the need for integrated approaches to analysis, especially using habitus to explore stigma power, and addressing processes of change. Directions for conceptualising interventions address how a mismatch of field and habitus could foster change and then the role for prophets in fostering symbolic revolutions. All these potential directions must in turn be integrated within the vast scholarship on stigma. In conclusion, further application and development of Bourdieu's social practice theory could help address the theoretical challenges facing the field of stigma, discrimination and health research. • Bourdieu's theory has been widely promoted to support stigma, discrimination and health research. • Exploration of existing literature shows wide application and development. • Aspects of the theory, notably habitus, are little used. • The theory is little used in interventions; directions for future development are described. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Smoothness as a quality of care: An STS approach to transnational healthcare mediation.
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Hartmann, Sarah
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MEDICAL quality control , *HUMAN services programs , *SCIENCE , *MEDICAL tourism , *TRANSITIONAL care , *COMMUNICATION , *TECHNOLOGY , *FACTOR analysis - Abstract
Medical travel and transnational healthcare involve various difficulties such as the distance and disconnect between patients and healthcare providers, language barriers or logistical challenges of moving ill bodies across space. Medical travel facilitation steps in with some sort of brokerage service that contributes to overcoming or managing these difficulties and, as this paper suggests, acts to create a quality of 'smoothness'. By unpacking three salient facilitation practices, namely connecting, communicating, and coordinating, this paper conceptualises the empirically derived category of 'smoothness'. This as a disposition, outcome, and spatio-temporal manoeuvre of medical travel facilitation. Based on the way in which such practices of mediation act to create smoothness, namely in an attentive, persistent, and collective tinkering manner, this paper suggests that some practices of medical travel facilitation are productively thought not just about setting up the possibility of care transnationally, but that they are key forms of care in itself. Based on these findings, smoothness is considered to be a central but also contested quality of medical travel facilitation and brokerage in a broader sense, but as proposed here, also for care. This conclusion potentially has implications not just for the study of transnational healthcare and mediation activities, but also that of care and transnational mobilities more generally. • Medical travel facilitation creates smoothness in mediating transnational healthcare. • Conceptualising smoothness as a disposition, outcome and spatio-temporal manoeuvre. • Brokerage and an STS-take on medical travel facilitation and care. • Smoothness as a quality of medical travel facilitation, brokerage and possibly care. • Medical travel facilitation between Oman and India. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Follow the citations: Tracing pathways of "race as biology" assumptions in medical algorithms in eGFR and spirometry.
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Fuentes, Agustín, Espinoza, Ulises J., and Cobbs, Virginia
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SPIROMETRY , *AFRICAN Americans , *CITATION analysis , *WHITE people , *RACE , *MEDICAL research , *EPIDERMAL growth factor receptors , *ALGORITHMS , *FRAUD in science - Abstract
Despite overwhelming evidence to the contrary, the concept of 'race' as a biological unit continues to persist in various scientific disciplines, notably in the field of medicine. This paper explores the persistence of 'race as biology' in medical research via examining select citational practices that have perpetuated this problematic concept. Citations serve as a cornerstone in scientific literature, signifying reliability and expert affirmation. By analyzing citation threads and historical patterns, we aim to shed light on the creation and perpetuation of false scientific truths and their impact on medical research, training, and practice. We focus on two prominent examples, eGFR and Spirometry, and trace key articles' citational histories, highlighting the flawed evidence in support of racial corrections in medical assessments. The eGFR equation incorporates 'race' as a factor based on the erroneous belief that Black individuals have higher muscle mass than white individuals. Our analysis reveals that key cited sources for this belief lack robust and well-developed datasets. Similarly, Spirometry measurements incorporate racial correction factors, relying on questionable evidence dating back to the Civil War era. Citations serve as a cornerstone in scientific literature, signifying reliability and expert affirmation. They play a crucial role in shaping theoretical positions and validating data and assumed knowledge. Evaluating citation threads and key articles consistently referenced over time can reveal how falsehoods and erroneous assertions are constructed and maintained in scientific fields. This study underscores the need for critical examination of citational practices in medical research and urges a shift toward a more cautious approach when citing sources that support 'race as biology.' The paper calls for a reevaluation of pedagogical approaches and assigned readings in medical education to prioritize an anti-racist perspective in future research endeavors. • Algorithms in contemporary medicine often involve "race" as a biological variable. • We offer a review of the citation threads in eGFR and Spirometry algorithms. • Support for race as variable relies on faulty, weak, and unsupportive citations. • Medical training must attend to and use caution around "truths" about racialized bodies. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Health emergencies, science contrarianism and populism: A scoping review.
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Schenkel, Marina
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GOVERNMENT policy , *PUBLIC opinion , *CITIZENSHIP , *POPULATION geography , *SYSTEMATIC reviews , *LITERATURE reviews , *RESEARCH methodology , *PRACTICAL politics , *PUBLIC health , *COVID-19 pandemic - Abstract
Populism has emerged as a central explanation employed by both media outlets and scholars for the mishandling of the COVID-19 crisis. Nonetheless, the relationship between public health and populism extends before and beyond the pandemic. This paper offers a comprehensive overview of existing evidence and theoretical conceptualisations on the intersection of populism, health emergencies, and contrarian scientific positions, drawing from a diverse range of disciplines. I conducted a scoping review of 283 original studies, analysing their analytical framework, geographic focuses, and methodological approaches. Employing quantitative text analysis, I summarised the research field into 18 common topics, organised into five coherent categories: citizen's perspective, political elites, political communication, pandemic consequences, and non-COVID-related issues. While the scholarly interest in this area has surged since the onset of the pandemic, it has predominantly concentrated on specific cases, such as Brazil and the US, often conflating different policy types. The evidence summary elucidates that populism assumes varying roles within distinct contexts, and there is no linear relationship between political populism and specific approaches to health crises and science. I further compare definitions of populism within the context of health and scientific positions. I propose that future research should employ a policy typology for health emergency responses, assessing political positions based on policy arenas. This paper contributes to the understanding of the complex interplay between political populism, contrarian scientific perspectives, and public health. • Descriptive summary of multiple disciplines and theoretical frameworks. • Research interest in this theme surged after the COVID-19 pandemic. • Geographic focus and generalisation of specific cases such as Brazil and the US. • Lack of linear and universal association between populism and health emergencies. • Adoption of a common policy typology to guide future research. [ABSTRACT FROM AUTHOR]
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- 2024
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11. "If I knew you were a travesti, I wouldn't have touched you":Iatrogenic violence and trans necropolitics in Turkey.
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Atuk, Tankut
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IMMUNIZATION , *VIOLENCE , *MEDICAL care , *HIV-positive persons , *PRACTICAL politics - Abstract
Since 2007, the number of HIV diagnoses in Turkey has increased more than 600% and the AIDS-related deaths have more than doubled. Despite trans community being severely impacted by the growing epidemic, there exists a conspicuous absence of epidemiological data regarding the HIV burden of trans people. This paper examines the medical experiences of HIV-positive trans women who engage in sex work and the harmful violence they encounter at the hands of health providers. The paper emphasizes the urgent need for comprehensive interventions to address the intersecting issues of HIV risk, structural violence, and discrimination faced by HIV-positive trans sex workers, one of the most marginalized communities worldwide. To interpret better how transphobia and HIVphobia become deeply entangled in Turkish medical settings, the paper draws from the concepts of iatrogenesis , necropolitics, and immunity. By bringing together these conceptual tools with long-term ethnographic data and in-depth interviews, this paper demonstrates that trans women are treated by healthcare providers as though they are always-already infectious. The paper contends that aggressive immunitarian boundaries, erected between healthcare personnel and individuals deemed "contagious others," are central to doctors' denial of medical care and reluctance to touch, examine, or even admit trans patients, particularly when they are HIV-positive. • Social immunization lies at the core of doctors' refusal of care for trans patients. • Social immunization is central to the operation of necropolitics and iatrogenesis. • Doctors establish violent boundaries in an attempt to "protect" themselves. • Trans women are assumed to be inherently contagious by healthcare providers. • Trans communities are slowly debilitated through denial of healthcare services. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Explaining depression in the language of burnout: Normative reasons for depression in place of deterministic causes.
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Shimizu, Hiroto
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DIAGNOSIS of mental depression , *PSYCHOLOGICAL burnout , *WORK environment , *CULTURE , *SOCIAL norms , *MENTAL depression , *EMPLOYEES' workload , *PSYCHOSOCIAL factors - Abstract
In recent years, there has been renewed interest in diversifying the understanding and discussion about the causes of depression to move beyond biomedical determinism—a view that biomedical factors are the ultimate cause of an individual's depression. There is increasing emphasis on diversity in how people seek to articulate the causes of depression to incorporate non-biomedical dimensions. Furthermore, the biomedical understanding of depression has been increasingly questioned due especially to emerging limitations in pharmacotherapy. These shifts encourage social analyses that explore what narratives as to the causes of depression are constructed and presented with relative plausibility in different contexts and why and how. By analysing published memoirs of individuals diagnosed with depression in Japan, this study aims to provide fresh insights into narratives around the causes of depression. It illustrates how memoirs portray depression and its perceived causes in characteristic ways in a nation that adopts Western diagnostic systems, biomedical therapeutics and other relevant technologies. I will show that 'burnout' is the dominant theme in the Japanese data, diverging from the predominantly biomedical narrative in Western societies. This burnout narrative depicts depression as the somewhat unfortunate but unsurprising result of overwork arising from individual active adaptations to structural features of the Japanese work culture. I argue that reasons, rather than causes, articulate the making of the burnout narrative by revealing the interplay between the structural and individual and ultimately enrich the understanding of depression. The paper concludes with a call for exploring the shifting relationship between illness and normalcy that the burnout narrative implies. I suggest that further studies could explore how the boundaries between normalcy and illness are enacted and re-enacted and to what avail through public discourse and through shifting diagnostic schemata in the context of different national norms and practices. • There are international differences in how depression is experienced and represented. • Biomedical explanations of depression are frequently documented in the literature. • This paper shows ways in which depression is explained in the language of burnout. • Burnout emphasises the interaction between the individual and the structural. • Distinguishing reasons from causes helps better understand burnout and depression. [ABSTRACT FROM AUTHOR]
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- 2024
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13. A bridge too far? Social network structure as a determinant of depression in later life.
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Qu, Tianyao
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SOCIAL determinants of health , *HEALTH status indicators , *MENTAL health , *SOCIAL networks , *AGING , *QUALITY of life , *LIFE course approach , *INTERPERSONAL relations , *SOCIAL support , *MENTAL depression , *SOCIALIZATION - Abstract
Existing research has documented various determinants of mental health related to individuals' social connections, but less is known about the role of the structural features of interpersonal networks. This is especially true in the case of bridging , which refers to ties to people who are otherwise disconnected from each other. By intersecting theories of social networks and gerontology, this study employs within- and between-person analysis with data from the National Social Life, Health, and Aging Project (NSHAP) to examine the association between social network bridging and depression in later life. The study finds that bridging, particularly between kin and non-kin members in the network, is associated with increased depressive symptoms in later life. This association is contingent on social support and strain respondents experienced, and it exhibits variations within individuals over time, especially among older adults in the youngest age cohort (57–64 years old included in NSHAP in 2005). In closing, the paper discusses the extent to which heterogeneous network structures may be one mechanism that shapes mental health trajectories in the context of later life-course experiences. • The paper discusses how bridging disparate network members produces strain that elevates depression risks in later life. • Older adults' bridging potential in personal networks is classified into three distinct types. • The association between bridging and elevated depressive symptoms is unique to bridging unconnected kin and non-kin. • The effect of bridging is more so for the youngest age cohort than older cohorts. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Vigilance in infectious disease emergencies: Expanding the concept.
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Williams, Jane, Mayes, Christopher, Flint-Peterson, Eamon, and Degeling, Chris
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PREVENTION of infectious disease transmission , *PREVENTION of communicable diseases , *PUBLIC health surveillance , *MEDICAL emergencies , *COVID-19 pandemic , *CONCEPTS - Abstract
In their 2010 book, Lorna Weir and Eric Mykhalovskiy conceptualised the role of vigilance in unknown and emerging infectious disease threats. Theirs is a macro-level account which draws on empirical data to describe vigilance as a set of technical and political arrangements that govern collection, analysis, interpretation and communication of data as it pertains to unknown threats. In this paper we expand their work to detail a conceptual analysis of the role of vigilance at the micro-level during periods of high infectious disease threat. Our data are daily press conferences and associated non-discursive tools in New South Wales (NSW), Australia during times of heightened COVID-19 risk. This paper is a conceptual analysis that draws on theories of vigilance and related concepts to show how a key aspect of vigilance is making previously unseen threats visible or present. Communications formulated and encouraged three types of vigilance as a set of governing relations: institutional or authority-based; individual outward-facing; and individual inward-facing. We also describe the relationship between vigilance and related concepts that are used in response to anticipated public threats. Authority based vigilance involved contact tracing and policing of movement and behaviours. In individual outward facing vigilance people were asked to be alert to, analyse, and react to risk in their immediate environment. Inward facing vigilance required people to gather and react to information about their own behaviours and within their own bodies. There was a relationship between different types of vigilance; as risk increased and authority-based vigilance was less successful in containing the spread of infection, individual vigilance had a stronger role to play. This extension of vigilance at the micro-level sees some of the same unintended consequences as Weir and Mykhalovskiy describe at the global level, particularly in how burdens are inequitably distributed and experienced. • Citizens became an arm of vigilance apparatus during COVID-19 pandemic in Australia. • Vigilance was authority-based; individual outward facing; individual inward facing. • Disadvantaged populations carried higher vigilance burden. • Earlier conceptions of vigilance in infectious disease emergencies are extended. [ABSTRACT FROM AUTHOR]
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- 2024
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15. 'My doctor just called me a good girl and I died a bit inside': From everyday misogyny to obstetric violence in UK fertility and maternity services.
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von Benzon, Nadia, Hickman-Dunne, Jo, and Whittle, Rebecca
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MATERNAL health services , *CHILDBIRTH , *VIOLENCE , *FERTILITY - Abstract
This paper begins with the common phrase 'good girl' as a lens through which to explore the insidious nature of patronising and paternalistic language on women's agency in obstetric care. Here we see how misogynistic language is both violence against women in its own right, and serves to create a context in which more extreme obstetric violence can be precipitated. Based on thematic analysis of discussion on Mumsnet, and on contributions to a research-focused Facebook group, this paper illustrates the complexity of recognising and refuting misogyny as a female patient as well as the damage that can occur from a cultural context in which this language is normalised. Here, words both boast a materiality through the environments they reify, and become transient and slippery, with semiotic uncertainty. • Use of misogynistic language in obstetric and fertility care is widespread. • This language may be difficult to identify and address. • Language that positions women as incompetent creates a context in which violence may occur during childbirth. • Experiences of obstetric violence are common even in the UK, amongst well-educated women. [ABSTRACT FROM AUTHOR]
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- 2024
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16. A matter of (good) faith? Understanding the interplay of power and the moral agency of managers in healthcare service reconfiguration.
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Smith, Chris Q., Williams, Iestyn, and Leggett, Will
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ETHICS , *CONFIDENCE , *HEALTH facilities , *MEDICAL care , *INTERVIEWING , *NATIONAL health services , *QUALITATIVE research , *COMMITMENT (Psychology) , *PATIENT care , *POWER (Social sciences) , *TRUST - Abstract
Previous studies of service reconfiguration in healthcare have explored the influence of power on processes and outcomes. However, in these accounts the moral agency of managers is often underemphasised. This paper draws on the theoretical tools provided by the sociology of morality to help deepen understanding of the interaction between power and moral agency in service reconfiguration in healthcare. It presents results from a qualitative study of a pan-organisational service reconfiguration in the NHS in England, involving nineteen in-depth interviews with those leading the change and the analysis of twelve programme documents. We combine concepts of the moral background and epistemic governance to interpret participants' conviction that the service change was 'the right thing to do'. The paper shows how epistemic work carried out by service change regulations shaped the moral background within which participants worked. This, in turn, channelled their moral agency – specifically their commitment to patient care – in a way that also reflected central priorities. The paper adds to sociological understandings of service reconfiguration through considering the interaction of structure, agency and power, while also developing the concept of the moral background to show how power relations can influence moral beliefs. • Managers can show strong faith in uncertain evidence for healthcare service change. • The moral background explains this in a way which considers power and moral agency. • Confidence in evidence depends on background assumption of future as predictable. • Confidence also depends on premise that finances are not open to moral evaluation. • Service change regulations carry out epistemic work on background assumptions. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Ethical, legal, and social implications (ELSI) of virtual agents and virtual reality in healthcare.
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Rudschies, Catharina and Schneider, Ingrid
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HEALTH services accessibility , *VIRTUAL reality , *PHYSICIAN-patient relations , *ARTIFICIAL intelligence , *LEGAL liability , *DATA security , *SOCIAL case work - Abstract
Virtual agents (VAs) and immersive virtual reality (VR) applications broaden the opportunities for accessing healthcare by transposing certain processes from the analogue world into a virtual realm. While these innovations offer a number of advantages including improved access for individuals in diverse geographic locations and novel therapeutic options, their implementation raises significant ethical, social, and legal implications. Key considerations pertain to the doctor-patient relationship, privacy and data protection, justice, fairness, and equal access as well as to issues of accountability, liability, and safety. This paper conducts a comprehensive review of the existing literature to analyse the ethical, social, and legal ramifications of employing VAs and VR applications in healthcare. It examines the recommended strategies to mitigate potential adverse effects and addresses current research gaps in this domain. • Virtual agents (VA) and immersive virtual reality (VR) are explored in the healthcare sector. • The paper investigates their ethical, legal, and social implications (ELSI) on basis of a literature review. • Key considerations pertain to the doctor-patient relationship, data protection, equal access, liability, and safety. • The paper gives an overview of the recommendations made to mitigate risks. [ABSTRACT FROM AUTHOR]
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- 2024
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18. "Whatever is bad goes back to the woman": The gendered blame game of sickle cell disease in Malawi and Uganda.
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Svege, Sarah, Rujumba, Joseph, Robberstad, Bjarne, and Lange, Siri
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PARENTS , *SICKLE cell anemia , *FOCUS groups , *HEALTH status indicators , *SEX distribution , *CAREGIVERS , *PSYCHOLOGY of mothers , *FATHERS , *GENETIC mutation , *GENETICS - Abstract
Mothers are commonly blamed for the ill-health of their children, and this is well documented in research. However, few studies have considered gendered patterns of blame for hereditary conditions caused by mutations from both parents through dual, shared genetic inheritance. This paper explores the 'gendering' of blame in the context of an inherited blood disorder known as sickle cell disease. The findings are drawn from 18 focus group discussions with 117 caregivers of children with sickle cell disease in Malawi and Uganda. Although one mutation from each parent is required for the disease to develop, low awareness about their status as healthy carriers of a sickle cell trait complicated the caregivers' recognition and acceptance of their genetic link to the child's condition. This study demonstrates how fathers and other members of the paternal side of the child's family would deflect blame from their own lineage by directing sole 'genetic responsibility' for the child's disease towards mothers. We discuss the implications of gendered blame on household dynamics and healthcare-seeking for children with sickle cell disease in this setting. • Sickle cell disease develops if the child inherits one mutation from each parent. • Low awareness about sickle cell disease led to gendered blame-shifting. • Mothers were attributed sole genetic responsibility for the child's condition. • Invisible inheritance through healthy carriers may cause gendered patterns of blame. [ABSTRACT FROM AUTHOR]
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- 2024
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19. "It's All Just F*cking Impossible:" The influence of Taylor Swift on fans' body image, disordered eating, and rejection of diet culture.
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Pope, Lizzy and Rose, Kelsey L.
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SOCIAL media , *QUALITATIVE research , *PREJUDICES , *BODY weight , *BODY image , *EATING disorders , *THEMATIC analysis , *FOOD habits , *ROLE models , *IMPLICIT bias , *ATTITUDES toward obesity , *DIET , *SOCIAL stigma - Abstract
Taylor Swift is arguably one of the most popular and influential celebrities. Of particular interest is her power as a role model for millions of fans across the world. Swift has spoken openly about different cultural issues, including her struggles with disordered eating and diet culture. Thus, the purpose of this paper was to explore whether Swift's disclosures of her own eating and body image struggles influenced her fans. Over 200 TikTok and Reddit posts related to Swift and eating disorders or body image, as well as their associated comments, were qualitatively coded to examine relevant themes. Key themes included: 1) Swift as a role model for disordered eating recovery; 2) use of or identification with specific Swift songs to illustrate struggles with eating or body image; 3) continued objectification of Swift's body; and 4) conflicted reaction to a scene in Swift's video for 'Anti-Hero' that depicted the word 'fat' on a scale. Overall, Swift's disclosures of her own eating/body image struggles positively influenced her fans' relationships with their eating behaviors and body image. This analysis illustrates the positive influence celebrities can have while also highlighting the limitations of personal disclosures to impact understanding of systemic issues like anti-fat bias. • Taylor Swift is a positive role model for users. • Swift content positively impacted fans' disordered relationships to food and body. • Swift content can reduce stigma of eating disorders and contribute to recovery. • In contrast, themes of objectification and anti-fat bias were present. [ABSTRACT FROM AUTHOR]
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- 2024
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20. A relational approach to youth healthcare: Examining young people's, parents' and clinicians' experiences in the context of variations in sex characteristics.
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Roen, Katrina, Lundberg, Tove, and Joy, Eileen
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HEALTH services accessibility , *PATIENTS' families , *MEDICAL personnel , *TRANSGENDER people , *INTERVIEWING , *PARENT-child relationships , *PARENT attitudes , *ATTITUDES of medical personnel , *RESEARCH methodology , *PATIENT-professional relations , *PSYCHOSOCIAL factors , *DEPENDENCY (Psychology) , *PATIENTS' attitudes , *PATIENT participation - Abstract
According to popular understandings, children grow from a state of dependence to eventually become independent adults. Interdependence helps to disrupt the in/dependence binary and is a useful concept for making sense of the experiences young people with variations in sex characteristics in relation to healthcare. This study used semi-structured interviews with 32 health professionals, 33 caregivers and 12 young people recruited in the UK and Sweden. The analysis is guided by the questions: (1) how do young people, carers and health professionals position themselves in the adult/young person relationship in the context of healthcare? (2) how is the (in/ter)dependence of young people imagined when young people, carers and health professionals talk about healthcare? Our analysis shows how carers and health professionals might support dominant understandings about young people growing towards independence while providing little opportunity for young people's agency and voice. Interviews with young people gave clear examples of their negotiating relational ways of being, seeking agency in the context of healthcare and not simply becoming independent of adults. This analysis also draws attention to the ways young people might be silenced within healthcare contexts. The present paper is based on secondary analysis of data from the SENS. It works with concepts of relationality and interdependence to draw out the possibilities of voice and agency for young people with variations in sex characteristics in healthcare contexts. • Youth with variations in sex characteristics are sometimes silenced in the clinic. • There is sometimes too little room for youth agency in healthcare. • A relational approach could improve the healthcare experiences of young people. • Working towards interdependence, not simply independence, can support youth. • It is important to value knowledge that is based on intersex lived experience. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Addressing health workforce shortages as a precursor to attaining universal health coverage: A comparative policy analysis of Nigeria and Ghana.
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Chukwu, Otuto Amarauche and Essue, Beverley
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- *
MEDICAL personnel , *INCOME , *AUTONOMY (Psychology) , *HEALTH policy , *SOCIOECONOMIC factors , *POPULATION geography , *LABOR demand , *UNIVERSAL healthcare , *QUALITY assurance , *ECONOMIC aspects of diseases , *VOCATIONAL guidance - Abstract
There is a critical shortage of health professionals globally which is affecting the possibility of attaining universal health coverage. Developing countries in sub-Saharan Africa such as Ghana and Nigeria are disproportionately affected and the shortfall in health professionals is envisaged to worsen over the next decade. Countries have responded differently in addressing this shortage. To understand the differing response to the same policy issue in two countries that share similar characteristics in terms of geolocation, socioeconomic indices and disease burden, this paper offers a comparative policy analysis of the two countries using the 3-I framework and punctuated equilibrium theory as comparative policy analysis tools. The analysis identified the ideas, interests, and institutions at play and how they have led to different policy outcomes in both countries. The analysis also shows the interaction between subsystems, policy images and policy venues and how this interaction led to policy change, in the case of Ghana and lag in the case of Nigeria. Our findings show four critical areas in addressing health workforce shortages in both countries – a general approach to addressing the issue, welfare and remuneration, workforce autonomy and career progression, and financing for workforce improvement. For Ghana, there has been significant policy change including implementing strategies for increasing the production of health professionals and addressing remuneration and welfare issues. For Nigeria, there has been seems to be a lag in policy change. While the findings show that Ghana's approach has seemingly put them on a good path toward universal health coverage, applying any lessons should, however, be contextual, considering other country-level and health systems factors that are relevant to addressing health workforce shortages. • African countries bear the disproportionate burden of global health worker shortage. • Different countries in the region have had different policy responses to the issue. • Ghana's response has been strategic, positive, and leading them towards UHC. • Nigeria has witnessed policy stagnancy, encumbered by health systems politics. • To achieve UHC, health worker shortages need strategic context-based policy solutions. [ABSTRACT FROM AUTHOR]
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- 2024
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22. On the ability of the SF-6D to capture the consequences of chronic illnesses on subjective well-being: Evidence from France.
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Tessier, Philippe and Wolff, François-Charles
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CHRONIC diseases & psychology , *CROSS-sectional method , *MENTAL health , *QUESTIONNAIRES , *MENTAL illness , *ANXIETY , *DESCRIPTIVE statistics , *CHRONIC diseases , *SURVEYS , *QUALITY of life , *HAPPINESS , *FACTOR analysis , *WELL-being , *MENTAL depression , *EVALUATION - Abstract
Using cross-sectional data from a representative sample of the French population (the 2008 Disability Health survey), this paper examines whether the SF-6D, a widely used preference-based measure of health-related quality of life in economic evaluations, fully captures the variation in subjective well-being (SWB) due to chronic illnesses. We conduct a mediation analysis to disentangle the direct and indirect, through the SF-6D, effects of various chronic conditions on SWB (happiness). Our results show that the SF-6D reflects changes in happiness due to most illnesses except mental illness. Changes in SWB mediated by the SF-6D account for 74% of the total effect. The variation unexplained by the SF-6D is significant and increases substantially in the presence of multimorbidity when a chronic illness is combined with anxiety or depression. Overall, our results suggest that the SF-6D incompletely captures the subjective experience of chronically ill patients, especially those with comorbid conditions. • 74% of the effect of chronic illness on happiness is captured by the SF-6D. • The SF-6D does not fully capture the effect of mental illness on happiness. • The effect not captured by the SF-6D increases significantly with multimorbidity. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Disparity by caste and tribe: Understanding women's empowerment and health outcomes in India.
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Mal, Piyasa and Saikia, Nandita
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ANEMIA prevention , *STATISTICAL models , *SELF-efficacy , *DELIVERY (Obstetrics) , *AUTONOMY (Psychology) , *MULTIPLE regression analysis , *QUESTIONNAIRES , *HYGIENE , *DECISION making , *RACE , *SOCIAL attitudes , *INTERSECTIONALITY , *WOMEN'S health , *HEALTH equity , *NUTRITION services , *MENSTRUATION , *FACTOR analysis , *SOCIAL classes , *GENDER-based violence - Abstract
Women's empowerment status varies greatly in India according to caste, class, ethnicity and region. This paper aims to investigate the caste/tribe disparity in women's empowerment by region, the main correlates of each domain of empowerment, and the association of women's empowerment with nutritional and health care access outcomes, specifically anaemia, menstrual hygiene, and institutional delivery. Using National Family Health Survey-5 (2019–2021) data, we have created a modified survey-based women's empowerment index (SWPER) using principal component analysis with Oblique varimax rotation. The first four components are interpreted as an attitude to violence, freedom of movement, decision-making power and social independence. Several multivariate regression models were used to understand the factor associated with empowerment and the association of women's empowerment with different health outcomes. The results indicate that women from the forward castes are the most empowered in most domains except decision-making. However, after controlling other background variables, the forward castes women are found to be the most empowered in attitude to violence, whereas Scheduled Castes and Scheduled Tribes women were found to be the most empowered women in decision-making. With regards to social independence, deprived castes women are more empowered than the forward castes women. The likelihood of empowerment in social independence domain increases with increasing wealth. There are wide regional variations in empowerment level between different social groups. Caste/tribe identity plays a significant role in determining health outcomes in India. Among all empowerment domains, social independence emerges as the most significant associated factor with improved health across all caste/tribe groups. The path to women's empowerment in India must recognize the intersectionality of caste/tribe identities, and address regional disparities. Social independence emerges as a critical determinant across all caste/tribe groups for improving health. Measures should be taken to empower women through the underlying factors of social independence. • This study uses SWPER index to assess women empowerment within India's caste/tribe. • Forward caste women are most empowered in all domains except decision-making. • Scheduled Tribe women from Northeast India are most empowered in decision-making. • Social independence empowerment domain is crucial for improving women's health. [ABSTRACT FROM AUTHOR]
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- 2024
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24. Body mapping: A decolonial method towards intergenerational healing.
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Macal, Carla
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FEMINISM , *HIV-positive persons , *ETHNOLOGY , *WAR , *DECOLONIZATION , *EXPERIENCE , *HISTORICAL trauma , *MEMORY , *DIASPORA , *GENOCIDE - Abstract
In this paper, I examine the embodied transformative memory of GuateMaya feminist group, GuateMaya Mujeres Resistiendo-Los Angeles (GMR-LA). Through a decolonial feminist perspective and feminist ethnographic approach, I built an intimate relationship with the grassroot group in Los Angeles. GMR-LA comprises Guatemala's 36-year (1960–1996) war survivors and women in the diaspora who continue to amplify the cultural memory of the disappeared. The article will delve into the concept of healing cartographies and the ethnographic work I employed in Los Angeles from 2019 to 2023. A particular method I used was body mapping to examine the embodied transformative memory of the groups and women who seek justice. Body mapping has been used with HIV-positive patients and migrant children. Latin American feminist decolonial geographers (Cabnal, 2010; Zaragocin and Caretta 2020; GeoBrujas, 2021b) are using the method of body mapping as a decolonial, counter-cartographic perspective that highlights Indigenous peoples' lived experiences. I use the method to explore the relationships between the body, memory, and healing from intergenerational trauma. Informed by decolonial feminists, I aim to center the oral and embodied testimonios of the GuateMaya feminist group and be guided by a body-mind-spirit perspective to amplify the concerns, visions, and futures of GuateMaya feminist groups across the hemisphere. • GuateMaya feminist group in the diaspora. • Guatemalan women survivors of genocide. • Body mapping a feminist popular education method. • Embodied transformative memory. [ABSTRACT FROM AUTHOR]
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- 2024
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25. What happens when the tasks dry up? Exploring the impact of medical technology on workforce planning.
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Maynou, L., McGuire, A., and Serra-Sastre, V.
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CARDIOVASCULAR disease treatment , *MEDICAL technology , *TASK performance , *HUMAN services programs , *DOWNSIZING of organizations , *HOSPITAL medical staff , *LABOR supply , *CARDIOLOGISTS , *EMPLOYMENT - Abstract
Increasing evidence suggests that new technologies tend to substitute for low skilled labour and complement highly skilled labour. This paper considers the manner in which new technology impacts on two distinct groups of highly skilled health care labour, cardiologists and cardiac surgeons. We consider the diffusion impact of PCI as it replaces CABG in the treatment of cardiovascular disease in the English NHS, and explicitly estimate the degree to which the cardiac surgical workforce reacts to this newer technology. Using administrative data we trace the complementarity between CABG and PCI during the mature phase of technology adoption, mapped against an increasing employment of cardiologists as they replace cardiothoracic surgeons. Our findings show evidence of growing employment of cardiologists, as PCI is increasingly expanded to older and sicker patients. While in cardiothoracic surgery, surgeons compensate falling CABG rates in a manner consistent with undertaking replacement activity and redeployment. While for cardiologists this reflects the general findings in the literature, that new technology enhances rather than substitutes for skilled labour, for the surgeons the new technology leads to redeployment rather than a downsizing of their labour. [ABSTRACT FROM AUTHOR]
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- 2024
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26. How did the COVID-19 pandemic affect cancer patients in England who had hospital appointments cancelled?
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Lonsky, Jakub, Nicodemo, Catia, and Redding, Stuart
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HOSPITAL care , *MEDICAL appointments , *CANCER patient psychology , *TUMORS , *COVID-19 pandemic , *TIME - Abstract
• The paper examines appointment cancellations for English cancer patients during COVID-19. • Pandemic patients waited 19 more days for rescheduled appointments than pre-pandemic. • Pandemic cohort had 14% fewer outpatient, 32% fewer inpatient visits, 50% less hospitalized. • No mortality difference suggests hospitals prioritized acute cases despite fewer resources. • Later cancellations less disruptive; provider-initiated linked to higher survival rates. [ABSTRACT FROM AUTHOR]
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- 2024
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27. The embodiment of exclusionary displacement pressure: Intersections of housing insecurity and mental health in a Hispanic/Latinx immigrant neighborhood.
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Westbrook, Marisa
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IMMIGRANTS , *RESIDENTIAL segregation , *MENTAL health , *RESIDENTIAL patterns , *HISPANIC Americans , *PEOPLE of color , *POPULATION health , *COMMUNITIES , *EXPERIENCE , *HOUSING stability , *HEALTH equity , *POVERTY , *WELL-being , *PSYCHOLOGICAL vulnerability - Abstract
Gentrification, growing income inequality, urban development, and the affordable housing crisis necessitate understanding the impact of the concern of displacement on health — prior to or even in the absence of a displacement event. In this paper, I use the term "exclusionary displacement pressure" to unify the literature on exclusionary displacement and displacement pressure, highlighting the disproportionate and inequitable impacts of displacement pressure among communities of color. Through following 35 residents over 2.5-years (2019–2022) in one predominantly low-income Hispanic/Latinx immigrant neighborhood in Denver, Colorado, I examine how exclusionary displacement pressure shapes their health and wellbeing over time. Through paying attention to how participants' lived experience is shaped by structural vulnerability (e.g. lack of documentation status, inadequate work, limited access to safety net systems), I identify how exclusionary displacement pressure is constantly internalized and responded to as a unique embodied health experience, wearing on individuals over time and reproducing population health inequities. The framework of embodied health experiences captures the wide range of health-related impacts, from diagnosable health conditions to idioms of distress, using participant's own language of suffering to express how they were feeling , battling , and enduring the pressure. Theorizing on structural vulnerability within specific subpopulations with intersecting identities, such as low-income immigrant Hispanic/Latinx communities, provides a bottom-up refinement to existing theories of embodied health. Understanding the place-health experiences of individuals in changing neighborhoods over time is also critically important to define time points at which context-specific supports and interventions are appropriate. • Gentrification impacts health through exclusionary displacement pressure. • Embodied health experiences highlight residents' structural vulnerability. • Stabilizing interventions are needed in advance of physical displacement. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Horizontal and vertical equity and public subsidies for private health insurance in the U.S.
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Jacobs, Paul D. and Hill, Steven C.
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HEALTH services accessibility , *INSURANCE , *MEDICAL care , *HEALTH insurance , *PRIVATE sector , *HEALTH insurance exchanges , *GOVERNMENT aid , *EMPLOYER-sponsored health insurance , *MEDICAL care costs , *ECONOMICS - Abstract
The United States offers two markedly different subsidy structures for private health insurance. When covered through employer-based plans, employees and their dependents benefit from the exclusion from taxable income of the premiums. Individuals without access to employer coverage may obtain subsidies for Marketplace coverage. This paper seeks to understand how the public subsidies embedded in the privately financed portion of the U.S. healthcare system impact the payments families are required to make under both ESI and Marketplace coverage, and the implications for finance equity. Using the Household Component of the Medical Expenditure Panel Survey (MEPS-HC) and Marketplace premium data, we assess horizontal and vertical equity by calculating public subsidies for and expected family spending under each coverage source and using Lorenz curves and Gini and concentration coefficients. Our study pooled the 2018 and 2019 MEPS-HC to achieve a sample size of 10,593 observations. Our simulations showed a marked horizontal inequity for lower-income families with access to employer coverage who cannot obtain Marketplace subsidies. Relative to both the financing of employer coverage and earlier Marketplace tax credits, the more generous Marketplace premium subsidies, first made available in 2021 under the American Rescue Plan Act, substantially increased the vertical equity of Marketplace financing. While Marketplace subsidies have clearly improved equity within the United States, we conclude with a comparison to other OECD countries highlighting the persistence of inequities in the U.S. stemming from its noteworthy reliance on employer-based private health insurance. • United States uses employer and individual private health insurance coverage. • No recent investigations of horizontal and vertical equity of U.S. private coverage. • Analysis of Gini coefficients and Lorenz curves suggests regressivity. • Public policies including insurance subsidies can reduce inequities. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Climate vulnerability and child health outcomes in developing countries: Do women's political empowerment and female education make the difference?
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Foudjo, Suzie Imelda and Keneck-Massil, Joseph
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CHILDREN'S health , *POLICY sciences , *WOMEN , *SELF-efficacy , *CLIMATE change , *SOCIOECONOMIC factors , *EVALUATION of medical care , *DECISION making , *VACCINATION coverage , *PRACTICAL politics , *PSYCHOLOGICAL vulnerability , *EDUCATIONAL attainment , *SOCIAL classes ,DEVELOPING countries - Abstract
Health as a common good is of paramount importance for the world, especially in developing countries. This paper contributes to the literature by analysing the effect of climate vulnerability on child health outcomes in a sample of 107 developing countries over the period 2000–2020. We also analyse the mediating role of women's political empowerment and women's education in the relationship between climate vulnerability and child health outcomes. Using the method of generalised moments in a two-stage system and linear regression absorbing several levels of fixed effects, we found robust evidence that climate vulnerability worsens child health outcomes. We also found that women's political empowerment (WPE) and women's education mitigate the negative effect of climate vulnerability on child health outcomes. These results remain robust against several alternative tests and therefore highlight the need to better examine how the health consequences of climate vulnerability are structured by gender in developing countries. Given the importance of women as agents of change, it would be more beneficial for policymakers to include them in the decision-making process. • We use a dataset covering 107 developing countries over 21 years. • Child health outcomes: IMR, NMR, under-5 mortality rate, and vaccination coverage. • Linear regression absorbing multi-levels of fixed effects, and S-GMM are used. • Climate vulnerability leads to worse child health outcomes. • WPE and female education mitigate the effects of vulnerability on child health. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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30. Signs and symptoms: Adverse events associated with a sterilization device.
- Author
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Leiter, Valerie
- Subjects
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DATABASES , *REPRODUCTIVE health , *WOMEN , *TUBAL sterilization , *RESEARCH methodology , *MEDICAL coding , *QUALITY of life , *PAIN , *ADVERSE health care events , *CONTRACEPTION , *HEMORRHAGE - Abstract
Sterilization is now the most common contraceptive method used by women of in the U.S., and sterilization devices have played an important role in its increased popularity. This mixed methods study examines a random sample of 2500 U.S. Food and Drug Administration (FDA) adverse event reports made between 2006 and 2017 about Essure, a sterilization device. Quantitative coding was used to examine patient problems; pain and bleeding were reported most frequently. Qualitative coding analyzed impacts of symptoms on patients' everyday lives and patients' healthcare experiences, including intimate relationships, mothering, and paid employment. Findings suggest that some patients struggled when their reported "subjective" symptoms didn't result in "objective" clinical signs of problems, and when physicians dismissed or deflected their concerns in diagnostic encounters. This paper raises important issues regarding the symptoms patients associated with Essure, the diagnosis of device-driven disease and injury, and the FDA's regulation of medical devices. • Essure patients organized to report their problems to the FDA. • Patients reported pain, bleeding, and other problems. • Providers sometimes dismissed patients complaints. • Providers who investigated patients' complaints faced difficulties in diagnosis. • Patients reported regretting having the device implanted. [ABSTRACT FROM AUTHOR]
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- 2024
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31. Capitalism and the 'commercial determinants of health': A more-than-human micropolitics.
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Fox, Nick J.
- Subjects
- *
SOCIAL determinants of health , *FOOD consumption , *SOCIOECONOMIC factors , *CONSUMER attitudes , *HEALTH behavior , *PRACTICAL politics , *ONTOLOGIES (Information retrieval) , *FOOD preferences , *FOOD supply - Abstract
This paper argues that studies of the 'commercial determinants of health' (CDoH) need to acknowledge fully the part the capitalist mode of commodity production and exchange plays in producing negative health outcomes. This proposition is supported by recourse to a recent development in political economy that has established a more-than-human, relational and monist (or 'flat') ontology of capitalism, in place of the more conventional neo-Marxist perspective. This ontology reveals a dynamic to capitalism that operates beyond human intentionality, driven by the supply of, and demand for the capacities of commodities. This dynamic determines the production and consumption of all commodities, some among which (such as tobacco, alcohol and processed foods) contribute to ill-health. A case study of food consumption reveals how these supply and demand affects drive 'unhealthy' food choices by consumers. Ways to undermine this more-than-human dynamic are offered as an innovative approach to addressing the effects of commerce and capitalism upon health. • Shows how capitalism underpins the 'commercial determinants of health'. • Applies a post-anthropocentric and relational analysis of data on food consumption. • More-than-human forces in capitalism increase unhealthy foodstuff consumption. • Supply and demand operate independently of both producers' and consumers' intentions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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32. The hidden work of general practitioners: An ethnography.
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Barnard, Rachel, Spooner, Sharon, Hubmann, Michaela, Checkland, Kath, Campbell, John, and Swinglehurst, Deborah
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OCCUPATIONAL roles , *OCCUPATIONAL achievement , *ETHNOLOGY research , *INTERVIEWING , *PRIMARY health care , *UNCERTAINTY , *DESCRIPTIVE statistics , *PATIENT care , *CLINICAL pathology , *ADULT education workshops , *PHYSICIANS , *EMPLOYEES' workload , *MEDICAL referrals - Abstract
High quality primary care is a foundational element of effective health services. Internationally, primary care physicians (general practitioners (GPs), family doctors) are experiencing significant workload pressures. How non-patient-facing work contributes to these pressures and what constitutes this work is poorly understood and often unrecognised and undervalued by patients, policy makers, and even clinicians engaged in it. This paper examines non-patient-facing work ethnographically, informed by practice theory, the Listening Guide, and empirical ethics. Ethnographic observations (104 h), in-depth interviews (n = 16; 8 with GPs and 8 with other primary care staff) and reflexive workshops were conducted in two general practices in England. Our analysis shows that 'hidden work' was integral to direct patient care, involving diverse clinical practices such as: interpreting test results; crafting referrals; and accepting interruptions from clinical colleagues. We suggest the term 'hidden care work' more accurately reflects the care-ful nature of this work, which was laden with ambiguity and clinical uncertainty. Completing hidden care work outside of expected working hours was normalised, creating feelings of inefficiency, and exacerbating workload pressure. Pushing tasks forward into an imagined future (when conditions might allow its completion) commonly led to overspill into GPs' own time. GPs experienced tension between their desire to provide safe, continuous, 'caring' care and the desire to work a manageable day, in a context of increasing demand and burgeoning complexity. • The non-patient-facing work of general practitioners is often invisible or hidden. • Hidden work is associated with complexity and uncertainty. • Behind-the-scenes work is care work, just as direct work with patients is care work. • Doctors face tensions between completing tasks and working a manageable day. • Combining practice theory with the Listening Guide embraces multi-vocality. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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33. A typology of evaluative health platforms: Commercial interests and their implications for patient voice.
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Reilley, Jacob, Pflueger, Dane, and Huber, Christian
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HEALTH information services , *MOBILE apps , *WORLD Wide Web , *SELF-efficacy , *PATIENT psychology , *STRATEGIC planning , *BUSINESS , *ADVERTISING , *PATIENT decision making , *APPLICATION software , *ECONOMIC competition , *FRAUD , *MEDICINE information services , *PATIENTS' attitudes , *GOVERNMENT regulation - Abstract
Interactions in the healthcare system today involve an important new set of actors: evaluative health platforms (EHPs). These platforms are not neutral intermediaries, but active moderators of how patients express opinions, choose providers, and consume health-related information. This paper adds to our understanding of the varied and evolving commercial interests of EHPs and the implications these have for patient voice. We analyze 71 platforms in the USA, UK, and Germany and identify five ideal types: subscribers, analyzers, advertisers, regulators, and scammers. Each platform type enacts a unique competitive strategy through an evaluative infrastructure which constrains but also generates possibilities for patient voice. Based on our typology, we develop three contributions. First, we nuance universalizing claims about the consequences of platform capitalism by specifying the diverse strategies underpinning competition between EHPs in different countries, and showing how each strategy leads evaluative infrastructures to develop in ways that impact patient voice. Second, we show how patients can navigate the challenges of a complex EHP space by exercising their ability to choose between platforms. Finally, we outline the conditions platforms need to fulfil to become empowering. Overall, this study highlights the varied and complex relationship between platform business models and user voice, which exists not only in healthcare, but also in many other fields. • Typology of evaluative health platforms (EHPs) in the US, the UK, and Germany. • EHP business models and content moderation techniques vary considerably. • EHPs have a wide range of implications for patient voice. • More transparency and competition can help platforms increase patient empowerment. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
- View/download PDF
34. Clear as a bell? Policy stringency and elderly health during Covid-19.
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Dupuy, Jules, Barnay, Thomas, and Defebvre, Eric
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SELF-evaluation , *ELDER care , *HEALTH status indicators , *GOVERNMENT policy , *INFECTION control , *HEALTH policy , *VISITING the sick , *COVID-19 pandemic - Abstract
This paper investigates how restriction policies have impacted elderly self-assessed health (SAH) in Europe during the pandemic, and how the Covid-19 infection interacts with policy stringency to modulate the SAH deterioration. Using the Survey of Health, Aging and Retirement in Europe (SHARE) between October 2019 and August 2021, including 9,034 adults aged 50 years and above, alongside with a stringency index from the Oxford's Coronavirus Government Response Tracker (OxCGRT), we design both an adjusted probit model and a recursive bivariate probit model to test for endogeneity of Covid-19 infection. Estimations results show a bell curve between stringency and SAH degradation: a deleterious effect of restrictions at low levels of stringency up to a tipping point after which more stringent policies become protective. Covid-19 infection moderates this association. Depending on individuals' initial health, the effect of restrictions is uneven: highly stringent policies become damaging for individuals most likely to enter a vulnerabilization path, for whom the bell curve is thus inverted. Overall, this study shows clear patterns of association between policy stringency and perceived health among older Europeans, and highlights the potential trade-off between targeting as many people as possible, those in poor health or those on the edge of vulnerability. • The association between policy stringency and SAH degradation is a bell curve. • Strict restrictions only affect the SAH of people likely to become vulnerable. • Covid-19 infection moderates the deterioration of SAH caused by policy stringency. • The recursive bivariate probit model controls for endogeneity in infection. [ABSTRACT FROM AUTHOR]
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- 2024
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- View/download PDF
35. Access and triage in contemporary general practice: A novel theory of digital candidacy.
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Dakin, Francesca H., Rybczynska-Bunt, Sarah, Rosen, Rebecca, Clarke, Aileen, and Greenhalgh, Trisha
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HEALTH services accessibility , *DIGITAL technology , *FAMILY medicine , *QUALITATIVE research , *CONVERSATION , *MEDICAL care , *DECISION making , *MATHEMATICAL models , *CONCEPTUAL structures , *HEALTH equity , *THEORY , *SELF advocacy , *MEDICAL triage , *PATIENTS' attitudes , *ACCESS to information - Abstract
To access contemporary healthcare, patients must find and navigate a complex socio-technical network of human and digital actors linked in multi-modal pathways. Asynchronous, digitally-mediated triage decisions have largely replaced synchronous conversations between humans. In this paper, we draw on a large qualitative dataset from a multi-site study of remote and digital technologies in general practice to understand widening inequities of access. We theorise our data by bringing together traditional candidacy theory (in particular, concepts of self-assessment, help-seeking, adjudication and negotiation) and socio-technical and technology structuration theories (in particular, concepts of user configuration, articulation, distanciation, disembedding, and recursivity), thus producing a novel theory of digital candidacy. We propose that both human and technological actors (in different ways) embody social structures which affect how they 'act' in social situations. Digital technologies contain inbuilt assumptions about users' capabilities, needs, rights, and skills. Patients' ability to self-assess as sick, access digital platforms, self-advocate, and navigate multiple stages in the pathway, including adapting to and compensating for limitations in the technology, vary widely and are markedly patterned by disadvantage. Not every patient can craft an accurate digital facsimile on which the subsequent adjudication decision will be made; those who create incomplete, flawed or unpersuasive digital facsimiles may be deprioritised or misdirected. Staff who know about such patients may use articulation measures to ensure a personalised and appropriate access package, but they cannot identify or fully mitigate all such cases. The decisions and actions of human and technological agents at the time of an attempt to access care can significantly influence, disrupt, and reconstitute candidacy both immediately and recursively over time, and also recursively shape the system itself. These findings underscore the need for services to be (co-)designed with attention to the exclusionary tendencies of digital technologies and technology-supported processes and pathways. • Digital access and triage involves a network of technological and human agents. • Digitalised systems exacerbate existing inequities, and create new ones. • Technologies are encoded with assumptions, limiting their use and accessibility. • These assumptions lock out some users, recursively affecting health service usage. • Individual practices' digital options must depend on local staff and patient needs. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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36. Cross-disease spillover from research funding: Evidence from four diseases.
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Coburn, Josie, Yaqub, Ohid, Ràfols, Ismael, and Chataway, Joanna
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CROSS infection , *FUNDRAISING , *ENDOWMENT of research , *PRIORITY (Philosophy) , *NEGLECTED diseases ,RESEARCH evaluation - Abstract
There is widespread appreciation for the role of research in addressing health problems. However, there is limited evidence on the extent to which research can be targeted to specific diseases. Analyses highlighting a concentration of research funding towards certain diseases have prompted growing scrutiny over the allocation of research funding. In this paper, we show that research funding targeted to a disease often results in publications relating to other diseases. Using data from the world's largest biomedical research funders, we estimated the frequency and direction of this cross-disease spillover by examining 337,573 grant–publication pairs for four diseases. We found the majority of our grant–publication pairs were cross-disease spillovers. We also found some variation between "rich" and "poor" diseases, in terms of the frequency and direction of cross-disease spillover. These differences are likely to be related to characteristics of the diseases themselves, as well as features of the research environment. One implication of frequent cross-disease spillover is that although more investment in areas of research such as neglected diseases is necessary, it may not be sufficient to improve the alignment between research funding and health needs. • The organisation of medical research funding is increasingly disease-focused. • We explored whether such efforts contribute to non-focal diseases. • We mapped 337,573 publications from a sample of grants for 4 disease foci. • We found variation in frequency and direction of cross-disease spillovers. • Focusing on disease is one of way to improve health, but there are other ways too. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Profits over care? An analysis of the relationship between corporate capitalism in the healthcare industry and cancer mortality in the United States.
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Perry, Teresa and Bernasek, Alexandra
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MEDICAL care , *EQUALITY , *CLIMATE change , *HEALTH insurance , *CAUSES of death , *BUSINESS , *PHARMACEUTICAL industry , *FINANCIAL management , *PUBLIC health , *HEALTH care industry , *TUMORS , *MEDICAID , *POVERTY - Abstract
The characteristic features of 21st-century corporate capitalism – monopoly and financialization – are increasingly being recognized by public health scholars as undermining the foundations of human health. While the "vectors" through which this is occurring are well known – poverty, inequality, climate change among others – locating the root cause of this process in the nature and institutions of contemporary capitalism is relatively new. Researchers have been somewhat slow to study the relationship between contemporary capitalism and human health. In this paper, we focus on one of the leading causes of death in the United States; cancer, and empirically estimate the relationship between various measures of financialization and monopoly in the US healthcare system and cancer mortality. The measures we focus on are for the hospital industry, the health insurance industry, and the pharmaceutical industry. Using a fixed effects model with different specifications and control variables, our analysis is at the state level for the years 2012–2019. These variables include data on population demographic controls, social and economic factors, and health behavior and clinical care. We compare Medicaid expansion states with non-Medicaid expansion states to investigate variations in state-level funded health insurance coverage. The results show a statistically significant positive correlation between the HHI index in the individual healthcare market and cancer mortality and the opioid dispensing rate and cancer mortality. • We analyze how corporate capitalism is related to cancer mortality. • Recently, corporate capitalism has become more common in the healthcare industry. • We find a correlation between hospital net revenue, profit, and cancer mortality. • There is a link between the HHI index in insurance markets and cancer mortality. [ABSTRACT FROM AUTHOR]
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- 2024
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38. Discursive trends in New York Times coverage of Evusheld access: A case study in the social production of ignorance.
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Goggins, Sydney
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THERAPEUTIC use of monoclonal antibodies , *HEALTH services accessibility , *MIDDLE-income countries , *GOVERNMENT policy , *IMMUNOCOMPROMISED patients , *NEWSPAPERS , *PRE-exposure prophylaxis , *DISCOURSE analysis , *PUBLIC health , *COVID-19 , *COVID-19 pandemic , *LOW-income countries - Abstract
English-language reporting on the continuing difficulties in accessing Evusheld reflects the marginalization of immunocompromised people in discussions about the public policy response to Covid-19. Moreover, the lack of available data on global Evusheld access, particularly in low-income countries, has emerged as a key form of nonknowledge that must be redressed within public health research. Through examining how knowledge about domestic and global barriers to Evusheld access circulates, and does not circulate, within The New York Times , this paper identifies a case study of the social production of ignorance related to a key issue in the Covid-19 pandemic. Drawing on science and technology studies, the history of science and media studies, I situate these trends in the context of longer explanatory histories of nonknowledge. First, through a critical discourse analysis of the New York Times' reporting on Evusheld access in the U.S., I trace the individualizing framework evident in many articles to longstanding trends in reporting on health and illness, and to the structural marginalization of immunocompromised people in U.S. Secondly, I argue that the near-total absence of reporting on Evusheld access in low-income countries is consistent with the longstanding structural neglect of health crises in the global south. • New York Times coverage of preventative treatment Evusheld rarely discusses access barriers. • Access barriers discussed are largely logistical rather than structural. • The perspectives of immunocompromised people are rarely included in Times articles on Evusheld. • Failure to include voices from impacted communities contributes to agnogenesis. • Centering the perspectives of constituencies most impacted by a health crisis will advance health equity. [ABSTRACT FROM AUTHOR]
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- 2024
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39. Cognitive function following early life war-time stress exposure in a cohort of Vietnamese older adults.
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Korinek, Kim, Zimmer, Zachary, Teerawichitchainan, Bussarawan, Young, Yvette, Cao Manh, Long, and Toan, Tran Khanh
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RISK of violence , *COGNITION disorders treatment , *COGNITION disorder risk factors , *MIDDLE-income countries , *POST-traumatic stress disorder , *PSYCHOLOGICAL resilience , *COGNITIVE testing , *ALZHEIMER'S disease , *ECOLOGY , *STATISTICAL sampling , *QUESTIONNAIRES , *WAR , *CAUSES of death , *HUNGER , *CARDIOVASCULAR diseases risk factors , *PSYCHOLOGICAL stress , *MILITARY service , *HEALTH behavior , *COGNITION disorders , *VETERANS , *LOW-income countries , *TRANSITION to adulthood , *REGRESSION analysis , *ADVERSE childhood experiences , *OLD age - Abstract
Although Alzheimer's Disease is a leading cause of death in Vietnam and other post-conflict, low- and middle-income countries, aside from studies of veterans in western populations, research on war-related violence and deprivation as risk factors for cognitive disorders remains sparse. Using data from the Vietnam Health and Aging Study, which relied upon a multistage probability sample of 2447 older adults residing in districts of northern Vietnam differentially exposed to wartime bombing and numerous war-related stressors, this paper investigates associations between early-life war-related stressors and later-life cognitive function in a cohort whose transition to adulthood took place during the American-Vietnam War. Relationships among experiences of severe childhood hunger, war-related violence and environmental hardships, military service, and cognitive function in an analytical sample of 2162 Vietnamese older adults are estimated using quantile regression. Cognitive function is assessed by a modified Mini-Mental State Examination (MMSE) score. Analyses also address posttraumatic stress disorder (PTSD), cardiovascular health, and health behaviors as potential mediators between early life war-related stressors and current cognitive function. Results indicate that experiences of severe hunger in childhood and environmental hardships are associated with poorer cognitive function in older adulthood. PTSD, cardiovascular risk (i.e., hypertension) and disease (i.e., stroke), each of which is heightened by exposure to wartime stressors, are associated with lower cognitive scores. Results suggest that certain war exposures, like involvement in combat duties, are associated with higher cognitive function scores, suggesting that military service either positively selects for cognitive function, or certain forms of service may impart cognitive resilience. Following recent calls to incorporate population-specific stressors to advance explanatory models of cognitive function, these findings suggest that it is critical to assess the enduring scars and resilience of armed conflict in global efforts to understand, prevent, and treat cognitive impairment, Alzheimer's Disease, and related dementias. • Early life exposure to war-related stressors is associated with poorer cognitive function in late life. • PTSD mediates the association between early life war-related stress exposure and late life cognitive function. • Northern Vietnamese veterans demonstrate lower risk for late life cognitive impairment than nonveteran counterparts. [ABSTRACT FROM AUTHOR]
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- 2024
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40. Do tougher drinking policies affect men's smoking behavior - Evidence from China.
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Zhang, Zili, Hu, Xiao, Zhang, Xuanxuan, and Zheng, Rong
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DRUGGED driving laws , *SMOKING prevention , *DRUNK driving laws , *GOVERNMENT policy , *HEALTH policy , *MEN'S health , *HEALTH behavior , *ALCOHOL drinking , *PRACTICAL politics , *EDUCATIONAL attainment , *EMPLOYMENT - Abstract
In 2011, China implemented tougher driving-under-the-influence laws, which criminalized driving under the influence of alcohol for the first time and increased penalties. This paper provides the first comprehensive analysis of the effects of stricter drinking policies on men's smoking behavior by using data from the 2010 and 2012 waves of the China Family Panel Studies. The results show that stricter drinking policies reduced smoking initiation and the number of cigarettes smoked per day among men by reducing the frequency and quantity of alcohol consumption. Heterogeneity analyses show that the impact of the policy is more pronounced not only for men aged 41–55, but also for men who have higher educational qualifications, who are employed, or who are not members of the Communist Party. • Tougher driving-under-the-influence laws subject offenders to more severe penalties. • Stricter drinking policy affects men's smoking behavior. • Stricter drinking policy reduces frequency and quantity of alcohol consumption of men. • Policy effect is stronger for men aged 41–55, educated, employed, or party-affiliated. [ABSTRACT FROM AUTHOR]
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- 2024
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41. Access Denied: A qualitative Study on transgender health policy in Egypt.
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Noralla, Nora
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HEALTH services accessibility , *POLICY sciences , *PSYCHOLOGICAL resilience , *COMMUNITY support , *QUALITATIVE research , *TRANSPHOBIA , *MEDICAL personnel , *TRANSGENDER people , *GENDER affirming care , *HEALTH policy , *LEGAL liability , *FAMILY relations , *CREATIVE ability , *HORMONE therapy , *ECONOMIC impact , *QUALITY assurance , *HEALTH facilities , *PSYCHOSOCIAL factors , *PATIENTS' attitudes , *SOCIAL stigma - Abstract
For this paper, I conducted an interdisciplinary qualitative study to investigate transgender experiences accessing gender-affirming healthcare (GAH) in Egypt. I outline how the current health policy on GAH was developed and its negative impact, celebrating the resilience of transgender people in navigating the hostile anti-transgender environment, and conclude by offering some health policy recommendations to improve the GAH situation. Since 2003, Egypt has introduced an Islamic Sharia-influenced policy that banned accessing GAH for transgender people, placing professional and legal liability on healthcare providers. The policy created an anti-transgender medical environment, forcing transgender people to rely on Do-It-Yourself GAH or underground, risky, ill-equipped, and overpriced medical facilities. Other non-medical factors also impacted transgender people's ability to access GAH: social stigma, family rejection, state persecution, and economic insecurity. Despite this multilayered anti-transgender environment, transgender people proved to be innovative and resilient, creating ways to overcome these challenges and continue to exist. Transgender people created communal spaces online to guide each other in navigating the challenges of accessing GAH and used various means to challenge bans on GAH. Egypt, Gender-Affirming Health Care, Islam, Policy, DIY, Transgender, Law. • Egypt's current health policy bans gender-affirming health care for transgender people. • The health policy pushed transgender people into do-it-yourself hormone therapy and underground medical clinics. • Some challenges accessing GAH include financial instability, social stigma, state prosecution, and lack of GAH services. • Transgender people proved innovative and resilient as they mitigated these challenges by relying on communal support. • New possible avenues for reforming the current policy, such as strategic litigation, are being explored. [ABSTRACT FROM AUTHOR]
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- 2024
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42. Getting it right with discrete choice experiments: Are we hot or cold?
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Ozdemir, Semra, Gonzalez, Juan Marcos, Bansal, Prateek, Huynh, Vinh Anh, Sng, Ban Leong, and Finkelstein, Eric
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EMPATHY , *DECISION making , *DESCRIPTIVE statistics , *SURVEYS , *PAIN management , *MEDICAL records , *PATIENTS' attitudes , *PREDICTIVE validity , *EPIDURAL anesthesia , *CHILDBIRTH - Abstract
Discrete Choice Experiments (DCEs) are widely employed survey-based methods to assess preferences for healthcare services and products. While they offer an experimental way to represent health-related decisions, the stylized representation of scenarios in DCEs may overlook contextual factors that could influence decision-making. The aim of this paper was to evaluate the predictive validity of preferences elicited through a DCE in decisions likely influenced by a hot-cold empathy gap, and compare it to another commonly used method, a direct-elicitation question. We focused on preferences for pain-relief modalities, especially for an epidural during childbirth - a context where direct-elicitation questions have shown a preference for or intention to have a natural birth (representing the "cold" state), yet individuals often opt for an epidural during labor (representing the "hot" state). Leveraging a unique dataset collected from 248 individuals, we incorporated both the stated preferences collected through a survey administered upon hospital admission for childbirth and the actual pain-relief modality usage data documented in medical records. The DCE allowed for the evaluation of scenarios outside of those expected by respondents to simulate decision-making during childbirth. When we compared the predicted epidural use with the actual epidural use during labor, we observed a choice concordance of 71-60%, depending on the model specification. The concordance rate between the predicted and actual choices increased to 77-76% when accounting for the initial use of other ineffective modalities. In contrast, the direct-elicitation choices, relying solely on respondents' baseline expectations, yielded a lower concordance rate of 58% with actual epidural use. These findings highlight the flexibility of the DCE method in simulating complex decision contexts, including those involving hot-cold empathy gaps. The DCE proves valuable in assessing nuanced preferences, providing a more accurate representation of the decision-making processes in healthcare scenarios. • The concordance between the predicted and actual epidural use was 71%-60. • Concordance increased to 77-76% when accounting for prior use of ineffective options. • Direct-elicitation choices resulted in a concordance of 58% with actual epidural use. • DCE proved to be more flexible in predicting decisions with hot-cold empathy gaps. [ABSTRACT FROM AUTHOR]
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- 2024
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43. A single dose for me, A wealth of protection for us: The public health cost of individualism in the rollout of COVID-19 vaccine.
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Fu, Wei, Wang, Li-San, and Chou, Shin-Yi
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IMMUNIZATION , *MEDICAL protocols , *VACCINATION , *COVID-19 vaccines , *SURVEYS , *ATTITUDE (Psychology) , *INDIVIDUALITY , *PUBLIC health , *COVID-19 , *MEDICAL care costs - Abstract
This study examines whether individualism weakens the effectiveness of the COVID-19 vaccine eligibility expansions in the United States in 2021, and assesses the associated social benefits or costs associated with individualism. We construct a county-level composite individualism index as a proxy of culture and the fraction of vaccine eligible population as a proxy of vaccination campaign (mean: 41.34%). We estimate whether the COVID-19 vaccine eligibility policy is less effective in promoting vaccine coverage, reducing in COVID-19 related hospitalization and death using a linear two-way fixed effect model in a sample of 2866 counties for the period between early December 2020 and July 1, 2021. We also test whether individualism shapes people's attitudes towards vaccine using a linear probability model in a sample of 625,308 individuals aged 18–65 (mean age: 43.3; 49% male; 59.1% non-Hispanic white, 19.1% Hispanic, 12% African American; 5.9% Asian) from the Household Pulse Survey. The effects of expanded vaccine eligibility are diminished in counties with greater individualism, as evidenced by lower effectiveness in increasing vaccination rates and reducing outpatient doctor visits primarily for COVID-related symptoms and COVID deaths. Moreover, our results show that this cultural influence on attitudes towards vaccine is more pronounced among the less educated, but unrelated to race. Assuming an average level of vaccine eligibility policies and an average intensity of individualism across the nation, we calculate that the average social cost associated with an individualistic culture amid the pandemic is approximately $50.044 billion, equivalent to 1.32% of the total U.S. health care spending in 2019. Our paper suggests that strategies to promote public policy compliance should be tailored to accommodate cultural and social contexts. • We examine whether individualism weakens effectiveness of COVID-19 vaccine policies. • The effects of vaccine policy are diminished in counties with greater individualism. • Individuals have less trust in COVID-19 vaccine in a more individualistic culture. • Strategies to promote policy compliance should be tailored to accommodate cultural contexts. [ABSTRACT FROM AUTHOR]
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- 2024
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44. Improving health and reducing health inequality: An innovation of digitalization?
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Zhong, Meirui, Qiang, Dan, Wang, Jinxian, and Sun, Weizeng
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DIGITAL technology , *SELF-evaluation , *POLICY sciences , *DIFFUSION of innovations , *HEALTH status indicators , *INTERNET , *HEALTH behavior , *HEALTH equity , *HEALTH promotion - Abstract
The association between digitalization and individual health has attracted increasing attention from both scholars and policymakers. Existing research, however, has not agreed on whether digitization can improve health or reduce health inequality. The purpose of this study is to clarify whether and how the development of digitalization may be related to health and health disparities. We rely on China Family Panel Studies (CFPS) surveys from 2012 to 2018 to obtain a sample of 82,471 observations to explore the impact of digitalization on self-rated health and health inequality and its transmission mechanisms. The hypotheses are tested by Ordinary Least Squares Modeling. As expected, digitalization is significantly and positively correlated with self-rated health. Furthermore, the development of digitalization has led to a notable decrease in health inequality. The influencing mechanisms of digitalization include income, healthcare consumption and health behaviors. Both dimensions of digitalization—internet development and digital finance—generate significant effects and the effects of internet development are greater. This study is the first to systematically investigate the impact of digitalization development on health and health inequality. Our findings provide evidence for the health promotion theory by clarifying the benefits of digitalization in improving residents' health and reducing health inequality. Therefore, utilizing the tools of digitalization efficiently could be a focus of policymakers aiming to accomplish the SDGs' health targets. • This paper contributes to assess the health outcomes of digitalization in China. • Developing digitalization has greatly improved self-rated health of residents. • Also, digitalization has reduced health inequality between residents. • Digitalization can affect health through income, health consumption and behaviors. • Digitalization is a useful tool for policymakers to reach the SDGs' health goals. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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45. The gender of PrEP: Transgender men negotiating legitimacy in France.
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Pignedoli, Clark and Rivest, Paul
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HIV prevention , *TRANS men , *QUALITATIVE research , *NEGOTIATION , *TRANSGENDER people , *INTERVIEWING , *ATTITUDES toward sex , *PRE-exposure prophylaxis , *CONCEPTUAL structures , *CISGENDER people , *RESEARCH methodology , *PSYCHOSOCIAL factors - Abstract
Transmasculine people (TM) constitute an invisibilized group within the transgender population. Little is known about their relationship to sexuality in transgender medicine. Their presence and needs are still unacknowledged within HIV prevention research and services. Pre-exposure prophylaxis (or PrEP) is an oral medication that prevents HIV in HIV-negative individuals at risk of infection with the virus. This paper proposes to bring TM back into the focus of PrEP research by questioning how they navigate and situate themselves in relation to existing PrEP categorization and services, and how they think about and (re)shape the meanings of PrEP. It is based on the "interpretative descriptive" method and a transfeminist theoretical framework applied to the analysis of ten semi-structured interviews with TM conducted in France between 2019 and 2023. Findings show that PrEP is gendered. We identify specific barriers to getting PrEP as well as to access healthcare and we show that a cisnormative and homonormative approach to prevention generates them. PrEP use and PrEP disclosure are embedded in structural and symbolic power relations between cisgender and transgender MSM that are reflected in the intimate sphere. TM use PrEP to prevent sexual assault and to alleviate the difficulty of condom negotiation. PrEP comes into play following major changes in TM's sexualities and is integrated post-exposure. • Transgender men are excluded from the MSM populations targeted by PrEP. • The uses and non-uses of PrEP by transgender men reveal that PrEP is gendered. • PrEP for HIV reveals unequal power relations between trans and cisgender MSM. • PrEP is embedded in unique temporalities inherent in transgender men's transitions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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46. A happiness approach to valuing health states for children.
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Huang, Li, Devlin, Nancy, Chen, Gang, and Dalziel, Kim
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CHILDREN'S health , *SELF-evaluation , *HEALTH status indicators , *ADOLESCENT health , *HAPPINESS in children , *LONGITUDINAL method , *SURVEYS , *PAIN , *MENTAL depression , *CHILDREN - Abstract
Preference weights are widely used to score generic health states into utility indexes for estimation of quality adjusted life years (QALYs) and to aid health care funding decisions. To date, health state utilities are predominantly derived using stated preference methods based on decision utility. This paper tests an alternative and generates preference weights using experienced utility for children based on the Child Health Utility 9D (CHU9D) descriptive system. We estimate the relative values of the CHU9D health states with regard to experienced utility, where experienced utility is approximated by self-reported happiness. A nationally-representative longitudinal survey was used including 6090 Australian children aged 12–17 years surveyed over 2014–2018. The derived weights were then applied to calculate the utility decrements for a few common child health conditions. We found that the estimated utility decrements are largely similar to those estimated using the published CHU9D Australian adolescent weights based on decision utility, except for pain and depression. A smaller utility decrement for pain and a larger utility decrement for depression were indicated by experienced utility. We contribute to the literature by showing that using experienced utility methods to generate preference weights for health states is possible, and we discuss some important methodological challenges for future studies such as the impracticability of anchoring to 'dead' when utilizing experienced utility. • Established methods of valuing health states rely on decision utility. • We use experienced utility to generate preference weights for children. • The estimated decrements for health conditions are similar to published weights. • We see smaller impact for pain, larger for depression compared to published weights. • Feasibility is demonstrated using child experienced utility for preference weights. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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47. Understanding the interplay of occupational, public health, and climate-related risks for informal workers: A new framework with findings from Zimbabwe and India.
- Author
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Sverdlik, Alice, Kothiwal, Kanupriya, Kadungure, Artwell, Agarwal, Siddharth, Machemedze, Rangarirai, Verma, Shabnam, and Loewenson, Rene
- Subjects
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RISK assessment , *SANITATION , *POLICY sciences , *QUALITATIVE research , *HEALTH status indicators , *CONTRACTING out , *CLIMATE change , *INTERVIEWING , *WORK environment , *QUANTITATIVE research , *HOME environment , *HYGIENE , *WASTE products , *GENDER inequality , *ACTION research , *METROPOLITAN areas , *WATER , *AGRICULTURAL laborers , *PUBLIC health , *INDUSTRIAL hygiene , *NATURAL disasters - Abstract
Globally, there are 2 billion 'informal' workers, who lack access to social protection while facing profound health risks and socioeconomic exclusions. The informal economy has generated most jobs in Low and Middle-Income Countries (LMICs), but few studies have explored informal workers' complex health vulnerabilities, including in the face of climate change. This paper will discuss recent action-research in Indore (India), Harare, and Masvingo (Zimbabwe) with informal workers like vendors, waste-pickers, and urban farmers. We conducted qualitative interviews (N = 110 in India), focus group discussions (N = 207 in Zimbabwe), and a quantitative survey (N = 418 in Zimbabwe). Many informal workers live in informal settlements ('slums'), and we highlight the interrelated health risks at their homes and workplaces. We explore how climate-related threats—including heatwaves, drought, and floods—negatively affect informal workers' health and livelihoods. These challenges often have gender-inequitable impacts. We also analyse workers' individual and collective responses. We propose a comprehensive framework to reveal the drivers of health in the informal economy, and we complement this holistic approach with a new research agenda. Our framework highlights the socioeconomic, environmental, and political determinants of informal workers' health. We argue that informal workers may face difficult trade-offs, due to competing priorities in the face of climate change and other risks. Future interventions will need to recognise informal workers' array of risks and co-develop multifaceted solutions, thereby helping to avoid such impossible choices. We recommend holistic initiatives to foster health and climate resilience, as well as participatory action-research partnerships and qualitative, intersectional data-collection with informal workers. • Climate change is exacerbating many risks to informal workers' health and livelihoods. • WASH access may foster gender equality and decent work, while tackling heat stress. • Policymakers can partner with informal workers to create inclusive, multi-pronged interventions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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48. "I'm just searching to get better": Constructions of treatment citizenship on injectable opioid agonist treatment.
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Mayer, Samara, Jenkins, Emily, Fairbairn, Nadia, Fowler, Al, and McNeil, Ryan
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SUBSTANCE abuse , *THERAPEUTICS , *HUMAN beings , *INTERVIEWING , *PSYCHOLOGY of drug abusers , *ATTITUDE (Psychology) , *FIELD research , *HOMELESSNESS , *HOUSING stability , *NARCOTIC antagonists , *PATIENTS' attitudes , *POVERTY - Abstract
As part of the response to Canada's worsening overdose crisis driven by a toxic, adulterated drug supply, there has been increased attention to and expansion of drug treatment, options, including injectable opioid agonist treatment (iOAT). iOAT typically involves the, witnessed daily injection of opioids under healthcare provider supervision. There is a robust, evidence base on iOAT; however, there has been less focus on how people engage with this; treatment outside of clinical trials. This paper examines how people engage with iOAT programs, in expanded treatment settings in Canada, focusing on how the broader socio-structural context, shapes patient subjectivities in treatment. This study draws on critical ethnographic and community-based research approaches, conducted with people accessing four iOAT programs in Vancouver's Downtown Eastside; neighbourhood from May 2018 to November 2019. Data included in-depth baseline and followup, interviews and approximately 50 h of observation fieldwork conducted in one iOAT, program and with a subsample of participants in the surrounding neighbourhood. Analysis, leveraged the concepts of biological citizenship and structural vulnerability. This analysis characterized three narrative frames— regular long-term engagers, pain, patients, and sporadic and short-term engagers —through in-depth case presentations of participants with distinct types of engagement with iOAT programs. Participants within these, narrative frames described a dominant form of iOAT citizenship, an autonomous patient who, regularly engages in treatment and avoids pleasure. However, structural vulnerabilities, including, homelessness and housing instability, entrenched poverty, criminal-legal system engagement, and unmanaged pain, shaped the ability of participants to make claims to this normative model of citizenship. This study examined how structural vulnerabilities impact people's construction and ability to make iOAT citizenship claims. Findings point to the need for changes within and outside of iOAT programs, such as lower threshold treatment models, improved social services (e.g., secure housing), and pain management support. • Biological citizenship used to examine how people engage with iOAT. • Narrative frames used to explore patterns of iOAT engagement. • These served as alternate to iOAT citizenship framed by treatment. • Unmanaged pain, housing instability, and poverty impacted treatment engagement. [ABSTRACT FROM AUTHOR]
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- 2024
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49. The urban political ecology of antimicrobial resistance: A critical lens on integrative governance.
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Aguiar, Raphael, Keil, Roger, and Wiktorowicz, Mary
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POLICY sciences , *ECOLOGY , *GOVERNMENT policy , *GREENHOUSE effect , *DRUG resistance in microorganisms , *ANTIMICROBIAL stewardship , *ETHNOLOGY , *WORLD health , *ENVIRONMENTAL exposure , *METROPOLITAN areas , *URBANIZATION , *HUMAN life cycle - Abstract
The objective of this paper is to integrate Urban Political Ecology (UPE) as a theory for identifying under-exposed urban dimensions of Antimicrobial Resistance (AMR). A UPE lens allows us to conceptualize urbanization as a ubiquitous socio-ecological process and an interpretive frame that could inform AMR governance strategies across related contexts by: a) situating AMR risks in relation to urbanization processes shaping social and political co-determinants of such systemic threats as climate change; b) aligning UPE scholarship with One Health (OH) approaches that address AMR to reveal the under-exposed link of AMR to environmental threats and broader structural dimensions that influence these threats; and c) identifying shared AMR and environmental governance pathways that inform the rationale for more equitable governance arrangements. We delineate a context in which the speed and scale of human activity in the larger context of urbanization, driven by global market integration strategies, impacts human-animal-environmental health threats such as AMR. We demonstrate how UPE scholarship can be leveraged to offer theoretical depth to approaches considering the interdependencies of AMR and climate change threats. We then propose a strategic approach focused on identifying shared governance pathways and intersectoral accountability frameworks to address upstream structural drivers of AM-Environmental threats. The co-benefits of a UPE-informed framework to human-animal-environmental health that leverages enabling policy environments to foster a more collaborative, equitable and sustainable approach to address systemic global health threats are clarified. Just as the concept of "health in all policies" emphasized taking health implications into account in all public policy development, the integration of UPE in AMR governance arrangements would emphasize the need to take other sectors into account through an intersectoral whole-of-government approach that fosters shared AMR - climate change governance pathways. • An Urban Political Ecology (UPE) lens informs the integration of Antimicrobial-Environmental stewardship measures. • UPE can be leveraged to consider the interdependencies of AMR and other OH threats. • Upstream enabling policy environments address drivers of Antimicrobial-Environmental threats. • UPE-informed frameworks foster more collaborative, equitable and sustainable governance approaches to AM stewardship. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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50. Inciting maintenance: Tiered institutional work during value-based payment reform in oncology.
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Reindersma, Thomas, Fabbricotti, Isabelle, Ahaus, Kees, Bangma, Chris, and Sülz, Sandra
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MEDICAL protocols , *MEDICAL quality control , *OCCUPATIONAL roles , *HEALTH insurance reimbursement , *CANCER patient medical care , *VALUE-based healthcare , *MEDICAL care , *INTERVIEWING , *PROSTATE tumors , *HEALTH care reform - Abstract
Value-based payment aims to shift the focus from traditional volume-driven arrangements to a system that rewards providers for the quality and value of care delivered. Previous research has shown that it is difficult for providers to change their medical and organizational practices to adopt value-based payment, but the role of actors in these reforms has remained underexposed. This paper unravels the motives of non-clinical and clinical professionals to maintain institutionalized payment practices when faced with value-based payment. To illuminate these motives, a case study was conducted in a Dutch hospital alliance that aimed to implement value-based payment to incentivize the transition to novel interventions in a prostate cancer care pathway. Data collection consisted of observations and interviews with actors on multiple levels in the hospital (sales departments, medical specialist enterprises (MSEs) and physicians). On each actor level, motives for maintaining currently prevailing institutional practices were present. Regulative maintenance motives were more common for sales managers whereas cultural-cognitive and normative motives seemed to play an important role for physicians. An overarching motive was that desired transitions to novel interventions proved possible under the currently prevailing institutional logic, dismissing an urgent need for payment reform. Our analysis further revealed that actors engage in diverse institutional maintenance work, and that some actor groups' institutional work carries more weight than others because of the dependency relationships that exist between hospitals, MSEs and physicians. Physicians depend on MSEs and sales departments, who act as gatekeepers and buffers, to decide whether the value-based payment reform is either adopted or abandoned. • Physicians depend on other hospital actors for pursuing value-based payment reform. • Payment reform prompts actors to assess flaws of current payment practices. • Current payment practices persist due to perceived lack of payment reform necessity. • It is important to look beyond the insurer–provider nexus during payment reform. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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