12 results
Search Results
2. Understanding digital health: Productive tensions at the intersection of sociology of health and science and technology studies.
- Author
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Henwood, Flis and Marent, Benjamin
- Subjects
TREATMENT of diabetes ,ALGORITHMS ,MEDICAL technology ,MEDICAL practice ,MENTAL health ,PRIMARY health care ,SERIAL publications ,SOCIOLOGY ,PSYCHOLOGICAL stress ,TELEMEDICINE ,TEXTILES ,DECISION making in clinical medicine ,REPRODUCTIVE health ,MOBILE apps - Abstract
In this editorial introduction, we explore how digital health is being explored at the intersection of sociology of health and science and technology studies (STS). We suggest that socio‐material approaches and practice theories provide a shared space within which productive tensions between sociology of health and STS can continue. These tensions emerge around the long‐standing challenges of avoiding technological determinism while maintaining a clear focus on the materiality and agency of technologies and recognising enduring sets of relations that emerge in new digital health practices while avoiding social determinism. The papers in this Special Issue explore diverse fields of healthcare (e.g. reproductive health, primary care, diabetes management, mental health) within which heterogenous technologies (e.g. health apps, mobile platforms, smart textiles, time‐lapse imaging) are becoming increasingly embedded. By synthesising the main arguments and contributions in each paper, we elaborate on four key dimensions within which digital technologies create ambivalence and (re)configure health practices. First, promissory digital health highlights contradictory virtues within discourses that configure digital health. Second, (re)configuring knowledge outlines ambivalences of navigating new information environments and handling quantified data. Third, (re)configuring connectivity explores the relationships that evolve through digital networks. Fourth, (re)configuring control explores how new forms of power are inscribed and handled within algorithmic decision‐making in health. We argue that these dimensions offer fruitful perspectives along which digital health can be explored across a range of technologies and health practices. We conclude by highlighting applications, methods and dimensions of digital health that require further research. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
3. Platform encounters: A study of digitised patient follow‐up in HIV care.
- Author
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Marent, Benjamin and Henwood, Flis
- Subjects
HIV infections ,SOCIOLOGY ,PHYSICIAN-patient relations ,INTERVIEWING ,PATIENTS ,CONCEPTUAL structures ,RESEARCH funding ,PHYSICIANS ,SOCIAL skills ,TELEMEDICINE - Abstract
Digital technologies are increasingly embedded in clinical encounters, reconfiguring the basis on which health care is delivered. Thereby, the delivery of care shifts from territorial locations in clinics and temporal modes of co‐presence towards digital platforms. Drawing on a sociotechnical evaluation of digitised patient follow‐up in HIV care, this paper argues that the forms of interactivity practised in platform encounters cannot be adequately understood through traditional interaction frameworks such as Erving Goffman's interaction order. To conceptualise the new informational space and temporal mode of 'response presence' within which platform encounters are conducted, the paper draws on theoretical advances made by Karin Knorr Cetina who further developed Goffman's interaction order to describe interactions augmented by 'scopic media'. A comprehensive framework is presented to elaborate the distinct qualities of interactions occurring in face‐to‐face, tele‐interaction and platform encounters and to analyse their affordances based on doctor and patient experiences. This framework is intended to stimulate further research on how new interactional forms between doctors and patients will reconfigure roles and responsibilities as well as wider structures of digital society. Furthermore, it can also support practical guidance of when and how different forms of clinical encounters may be integrated in care pathways. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
4. Digital health: A sociomaterial approach.
- Author
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Marent, Benjamin and Henwood, Flis
- Subjects
HEALTH care reform ,SOCIOLOGY ,DIGITAL technology ,DIGITAL health ,ARTIFICIAL intelligence ,ENHANCEMENT medicine ,MEDICAL education ,HEALTH promotion ,ALGORITHMS ,DIFFUSION of innovations ,INFORMATION technology ,TELEMEDICINE - Abstract
The notion of digital health often remains an empty signifier, employed strategically for a vast array of demands to attract investments and legitimise reforms. Rather scarce are attempts to develop digital health towards an analytic notion that provides avenues for understanding the ongoing transformations in health care. This article develops a sociomaterial approach to understanding digital health, showing how digitalisation affords practices of health and medicine to cope with and utilise the combined and interrelated challenges of increases in quantification (data‐intensive medicine), varieties of connectivity (telemedicine), and unprecedented modes of instantaneous calculation (algorithmic medicine). This enables an engagement with questions about what forms of knowledge, relationships and control are produced through different manifestations of digital health. The paper then sets out, in detail, three innovative strategies that can guide explorations and negotiations into the type of care we want to achieve through digital transformation. These strategies embed Karen Barad's concept of agential cuts suggesting that responsible cuts towards the materialisation of digital health require participatory efforts that recognise the affordances and the generativity of technology developments. Through the sociomaterial approach presented in this article, we aim to lay the foundations to reorient and sensitise innovation and care processes in order to create new possibilities and value‐centric approaches for promoting health in digital societies as opposed to promoting digital health per se. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
5. 'You're only there on the phone'? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app.
- Author
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Janssen, Ricky, Engel, Nora, Pant Pai, Nitika, Esmail, Aliasgar, Dheda, Keertan, Thomas, Réjean, and Krumeich, Anja
- Subjects
DIAGNOSIS of HIV infections ,MOBILE apps ,INTERVIEWING ,QUALITATIVE research ,TELEMEDICINE ,PATIENT self-monitoring - Abstract
Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self‐monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self‐testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app‐based self‐test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app‐based self‐testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
6. The remarkable invisibility of NHS 111 online.
- Author
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Pope, Catherine, MacLellan, Jennifer, Prichard, Jane, and Turnbull, Joanne
- Subjects
HEALTH services accessibility ,OUTPATIENT medical care ,INTERNET ,RESEARCH methodology ,DIGITAL technology ,MEDICAL care ,INTERVIEWING ,NATIONAL health services ,QUALITATIVE research ,PRIMARY health care ,RESEARCH funding ,EMERGENCY medical services - Abstract
In 2017, the NHS 111 telephone service was augmented by an online service. This is an exemplar of 'digital‐first', the push to enrol digital technologies to deliver services, and is viewed by policymakers as an important vehicle for managing demand for overburdened health services. This article reports the qualitative component of a larger multi‐method study of NHS 111 online. Qualitative telephone interviews with 80 staff and stakeholders implicated in primary, urgent and emergency care service delivery explored the impact of NHS 111 online on health‐care work. The analysis presented here draws on Susie Scott's work on the 'sociology of nothing' and theories of the marked and unmarked, which we reached for when confronted by the remarkable invisibility of this seemingly core NHS service in the wider landscape of health care. Despite the apparently high use by patients and the public (30 million visits over 6 months in the 2020 pandemic), we were surprised to find very low awareness among our interviewees. Confusion about nomenclature, an exceedingly crowded digital field (littered with alternative technologies and ways of accessing care) and constant change in service provision provide some cogent reasons for this invisibility, and sociology helps explain our data about this digital technology. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
7. A glimpse behind the organisational curtain: A dramaturgical analysis exploring the ways healthcare staff engage with online patient feedback 'front' and 'backstage' at three hospital Trusts in England.
- Author
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Ramsey, Lauren, O'Hara, Jane, Lawton, Rebecca, and Sheard, Laura
- Subjects
MEDICAL quality control ,PATIENT participation ,INTERNET ,ATTITUDES of medical personnel ,PATIENT satisfaction ,DIGITAL health ,NATIONAL health services ,PATIENTS' attitudes ,ETHNOLOGY research ,QUALITY assurance ,ACCESS to information ,COMMUNICATION ,AUTONOMY (Psychology) ,ORGANIZATIONAL effectiveness ,RESEARCH funding ,PATIENT-professional relations ,CORPORATE culture ,PATIENT safety - Abstract
Healthcare staff are encouraged to use feedback from their patients to inform service and quality improvement. Receiving patient feedback via online channels is a relatively new phenomenon that has rarely been conceptualised. Further, the implications of a wide, varied and unknown(able) audience being able to view and interact with online patient feedback are yet to be understood. We applied a theoretical lens of dramaturgy to a large ethnographic dataset, collected across three NHS Trusts during 2019/2020. We found that organisations demonstrated varying levels of 'preparedness to perform' online, from invisibility through to engaging in public conversation with patients within a wider mission for transparency. Restrictive 'cast lists' of staff able to respond to patients was the hallmark of one organisation, whereas another devolved responding responsibility amongst a wide array of multidisciplinary staff. The visibility of patient‐staff interactions had the potential to be culturally disruptive, dichotomously invoking either apprehensions of reputational threat or providing windows of opportunity. We surmise that a transparent and conversational feedback response frontstage aligns with the ability to better prioritise backstage improvement. Legitimising the autonomous frontstage activity of diverse staff groups may help shift organisational culture, and gradually ripple outwards a shared responsibility for transparent improvement. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
8. Turning the gaze: Digital patient feedback and the silent pathology of the NHS.
- Author
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Montgomery, Catherine M., Powell, John, Mahtani, Kamal, and Boylan, Anne‐Marie
- Subjects
PATHOLOGY ,DIGITAL health - Abstract
Online review and rating sites, where patients can leave feedback on their experience of the health‐care encounter, are becoming an increasing feature of primary care in the NHS. Previous research has analysed how digital surveillance is re‐shaping the clinical gaze, as health‐care professionals are subject to increased public monitoring. Here, we draw on an empirical study of 41 GP practice staff to show how the gaze is turning, not simply from the patient to the health‐care provider, but additionally to the body politic of the NHS. Drawing on focus group and interview data conducted in five UK practices, we show how discourses of online reviews and ratings are producing new professional subjectivities among health‐care professionals and the extent to which the gaze extends not only to individual health‐care interactions but to the health‐care service writ large. We identify three counter‐discourses characterising the evolving ways in which online reviews and ratings are creating new subjects in primary care practices: victimhood, prosumption versus traditional values and taking control. We show how the ways in which staff speak about online feedback are patterned by the social environment in which they work and the constraints of the NHS they encounter on a day‐to‐day basis. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
9. The work and relatedness of ties mediated online in supporting long‐term condition self‐management.
- Author
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Allen, Chris, Vassilev, Ivaylo, Kennedy, Anne, and Rogers, Anne
- Subjects
CHRONIC disease treatment ,CONVERSATION ,EGO (Psychology) ,INTERNET ,SELF-management (Psychology) ,SOCIAL networks ,TELEMEDICINE ,QUALITATIVE research ,SOCIAL support ,PATIENTS' attitudes - Abstract
The 'care transition' is characterised by reduced state involvement in chronic illness management in response to socio‐political movements aimed at meeting the challenges presented by an increased prevalence of chronic illness. Amongst these changes has been online communities' rising importance in everyday interactions and attention is being increasingly paid towards the ways online contacts might contribute to self‐management. Whilst research has illuminated the relevance of personal networks in long‐term condition management, it is relevant to extend this work to consider the place of ties mediated online in this bricolage of support, including better understanding the work drawn from them and the strategies involved in eliciting it. This study examined the work and relatedness of 30 participants, who used online communities. Participants were asked about the role of on and offline ties and ego network mapping was used to frame conversations about the nature of this support. The context of engagement followed three main themes. Participants drew from online communities in response to deficits in offline support, they used online ties to leverage support or action from offline ties and they used online ties to substitute offline support, with less intimate online ties. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
10. 'Keeping It Real': women's Enactments of Lay Health Knowledges and Expertise on Facebook.
- Author
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Maslen, Sarah and Lupton, Deborah
- Subjects
AFFECT (Psychology) ,HEALTH ,INTERPERSONAL relations ,INTIMACY (Psychology) ,MEDICAL ethics ,PRIVACY ,SOCIAL participation ,TELEMEDICINE ,THOUGHT & thinking ,WOMEN ,WOMEN'S health ,INFORMATION resources ,QUALITATIVE research ,HEALTH literacy - Abstract
This article presents findings from a qualitative study concerning Australian women's use of Facebook for health and medical information and support and the implications for understanding modes of lay knowledge and expertise. Thinking with feminist new materialism theory, we identify the relational connections, affective forces and agential capacities described by participants as technological affordances came together with human bodily affordances. Affective forces were a dominant feature in users' accounts. Women were able to make relational connections with peers based on how valid or relevant they found other group members' expertise and experiences, how supportive other members were, how strong they wanted their personal connection to be and how much privacy they wanted to preserve. We identified three modes of engagement: 1) expertise claims based on appropriation and distribution of biomedical knowledge and experience; 2) sharing experiential knowledge without claiming expertise and 3) evaluation and use of knowledge presented by others principally through observing. We conclude that an 'expert patient' is someone who is familiar with the rules of engagement on sites such as Facebook and is able to negotiate and understand the affects and levels of disclosure and intimacy that such engagement demands. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
11. 'You're only there on the phone'? A qualitative exploration of community, affect and agential capacity in HIV self-testing using a smartphone app
- Author
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Anja Krumeich, Réjean Thomas, Ricky Janssen, Nora Engel, Nitika Pant Pai, Aliasgar Esmail, Keertan Dheda, Metamedica, and RS: CAPHRI - R4 - Health Inequities and Societal Participation
- Subjects
Health (social science) ,Applied psychology ,digital health ,HIV Infections ,Context (language use) ,hiv ,Affect (psychology) ,South Africa ,03 medical and health sciences ,0302 clinical medicine ,Phone ,Humans ,030212 general & internal medicine ,care ,mHealth ,030505 public health ,Health Policy ,Australia ,Public Health, Environmental and Occupational Health ,Original Articles ,Mobile Applications ,Digital health ,Focus group ,Telemedicine ,mhealth ,3. Good health ,Therapeutic relationship ,Self-Testing ,affect ,Original Article ,Health education ,Smartphone ,0305 other medical science ,Psychology - Abstract
Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self‐monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self‐testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app‐based self‐test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app‐based self‐testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care.
- Published
- 2021
12. Digital health and technological promise: A sociological enquiry.
- Subjects
DATABASES ,SOCIOLOGY ,DIGITAL health ,MEDICAL care costs ,COMMUNICATION ,AUTOMATION ,TECHNOLOGY ,COVID-19 pandemic - Published
- 2022
- Full Text
- View/download PDF
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