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Intersecting gender and other social inequalities are pertinent to women's mental health across the life course. Gendered violence and other forms of gender inequality in particular play a key role in the higher burden of psychological distress carried by young women. However, the context of gendered violence is often minimised or overlooked entirely when young women seek help or advice around mental health concerns. This is especially the case for young women under the age of 30 years. This paper reports on a research study exploring how young women in Australia understand their mental health, and the scope for new approaches to support that better address their needs. A qualitative survey undertaken with 52 Australian young women was used to explore the nature of their mental health experiences, sought to learn about the strategies they used when experiencing poor mental health and the scope for mental health peer support as an alternative approach to intervention. Responses from a diverse group of young women demonstrated that they understood the role that gendered violence and gender inequality played in their mental health. Findings point to the risk of slippage between young women's understandings of their lived experience and those of traditional service providers, demonstrating the risks associated with minimising or ignoring of the gendered nature of young women's mental health problems. [ABSTRACT FROM AUTHOR]

Reducing the prevalence of acute kidney injury (AKI) is an important patient safety objective set forth by the National Quality Forum. Despite international guidelines to prevent AKI, there continues to be an inconsistent uptake of these interventions by cardiac teams across practice settings. The IMPROVE-AKI study was designed to test the effectiveness and implementation of AKI preventive strategies delivered through team-based coaching activities. Qualitative methods were used to identify factors that shaped sites' implementation of AKI prevention strategies. Semi-structured interviews were conducted with staff in a range of roles within the cardiac catheterization laboratories, including nurses, laboratory managers, and interventional cardiologists (N = 50) at multiple time points over the course of the study. Interview transcripts were qualitatively coded, and aggregated code reports were reviewed to construct main themes through memoing. In this paper, we report insights from semi-structured interviews regarding workflow, organizational culture, and leadership factors that impacted implementation of AKI prevention strategies. [ABSTRACT FROM AUTHOR]

Communication and literacy development of young children is shaped by the nature of social and cultural relationships in everyday situations. Few studies, however, have explored early story experiences encountered by infants and toddlers in naturalistic settings. We argue that personal stories about everyday lived experiences are a vital context for considering how toddlers develop communicative competencies as they participate in these stories within their families and communities. The paper presents selected findings from a qualitative study underpinned by a broad theoretical view of story embedded in a sociocultural, participatory framework. We contend that stories are collaborative, social endeavours in which intersubjectivity is accomplished collectively and multimodally. Evidence is offered of the communicative process enacted by 1-year-old Lexie, her parent, teacher and peers, as they shared meaning together in a personal story about eating lunch. Lexie and her family were participants in a wider study of the story experiences of 1-year-old toddlers, within and across their family home and early childhood settings, in a culturally diverse community of Aotearoa New Zealand. Drawing on multimodal ethnography and video data, findings illustrate how Lexie and her family, teacher and peers actively participated together in the weaving of a shared personal story using verbal, visual and kinaesthetic forms of communication. The study contributes to the field of early childhood literacy by providing unique insights into the potential of everyday personal stories as a valuable context for exploring ways children's communicative competencies are developed through relationships in family and community settings. [ABSTRACT FROM AUTHOR]

Premature closure of analysis refers to finishing data analysis too early, leading to underdeveloped qualitative findings. It is a critical issue in qualitative research affecting the rigor and trustworthiness of qualitative findings. While much has been written about how to conduct rigorous data analysis across a range of qualitative approaches, there has been no discussion of the features of premature closure of analysis and strategies for addressing it. The purpose of this paper is to outline how to spot premature closure of analysis and to describe strategies to mitigate this issue. Three identifying features of premature analysis are: providing thin descriptions with loaded participant quotes, presenting conventional concepts as themes, and using topic summaries as themes. Using a First Approach to qualitative analysis, working in segments to generate a wholistic thematic output, and critical reflection and examination before finalizing the thematic output can be useful strategies to mitigate premature closure of analysis. Themes and patterns that are too vague and meaningless to provide a comprehensive account of the studied phenomenon are a threat to the validity of the study and a waste of researchers' effort and time. Premature closure of analysis is one of the most common problems affecting the quality of thematic outputs in quality studies. Therefore, researchers should be mindful and critical in their analytical decision-making to prevent this problem. [ABSTRACT FROM AUTHOR]

As researchers in communication sciences and related disciplines continue to embrace qualitative research methodologies, there will be a corresponding need for innovative methods and strategies for data collection and generation, reflexivity and knowledge translation to make qualitative research methods more inclusive. Historically, those who communicate differently from the status quo have been excluded from or spoken for in qualitative research. The resulting omission of these perspectives in the literature constitutes a critical research-to-practice gap as clinicians seek to deliver client-focused communication care. Arts-Based Research (ABR) offers researchers a means of augmenting potentially linguistically and cognitively demanding verbal interviews while inviting participants to share a window into their daily lives with researchers and knowledge users. Additionally, ABR offers participants alternative forms of expression and creates avenues for researcher reflexivity and participant-researcher reflexive dialogue. To illustrate how ABR can enhance communication research, we present reflections on a study that incorporated multi-media artistic materials in a reflexive arts-based collective case study design. Working with young people experiencing post-concussion communication changes, we used arts-based materials collected and created by participants to support and enhance data collection. These materials were analyzed as part of each case, across cases, and played a central role in sharing our findings. Additionally, arts-based materials facilitated participant-researcher reflexive dialogue and researcher reflexivity. The goals of this paper are to: 1) provide a brief overview of ABR as a method for researchers interested in communication; 2) discuss four ways to incorporate ABR in the research process; 3) provide a case example illustrating different types of creative works to illustrate the four ways ABR can enhance communication research; and 4) discuss benefits, considerations and implications of using ABR to support inclusive research design. [ABSTRACT FROM AUTHOR]

Public health qualitative research has largely failed to achieve full inclusion of people with disabilities and Black people and Latinx/as. Although there is a small, but growing, community of academic researchers from each of these communities, there has been limited involvement of non-academic community members in research. While Community-Based Participatory Research (CBPR) has informed the inclusion of marginalized groups in research for decades, instances of full inclusion of disabled Black people and Latinx/as in public health research have been minimal. One way to ensure the inclusion of Black/Latinx community members with disabilities is to involve them as peer researchers. As part of a qualitative study examining pregnancy experiences of individuals with physical disabilities from Black/Latinx communities, academic researchers trained four peer researchers to conduct interviews and analyze the data. This paper describes our approach, which may serve as a model for training peer researchers in qualitative research methodology for future studies. All peer researchers were women who identified as Black or Latina parents with physical disabilities. This approach was chosen due to the study's focus on the intersections of disability, race, ethnicity, and pregnancy, and applied a disability justice lens. Although CBPR offers important principles for research existing literature suggests CBPR is not always inclusive and power sharing. Therefore, we developed a research training model which places a unique and timely focus on the intersections of CBPR, racial and disability justice, the importance of building the capacity of Black and Latina disabled peer researchers, and its importance to building community relationships and trust. [ABSTRACT FROM AUTHOR]

Background: Advance care planning has been defined in an international consensus paper, supported by the European Association for Palliative Care. There are concerns that this definition may not apply to dementia. Moreover, it is not informed by input from people with dementia. Aim: To gather the perspective of the European Working Group of People with Dementia and their supporters on how advance care planning is defined and develop recommendations for changes to the definition. Design: An in-depth qualitative study was conducted, analysing online focus groups and interviews using thematic analysis. Setting/participants: We included 12 people with dementia and 9 supporters. Results: Participants suggested several changes to the current advance care planning definition: mentioning people with decreasing decisional capacity; better reflecting the role of family and/or trust-based relationships; reducing focus on end-of-life/medical decisions; strengthening focus on social aspects of care. Elements of the current definition that participants suggested keeping and highlighting include the framing of advance care planning as a continuous process, that is also optional; mention of communication next to documentation of decisions; and the importance of proxy decision makers. Based on this input, we developed three overarching and 16 specific recommendations for a modified definition of advance care planning that is inclusive of people with dementia. Conclusions: The perspectives of the European Working Group of People with Dementia and their supporters highlighted the need for a person-centred and dementia-inclusive advance care planning definition. We provide tangible recommendations for future adaptations of the definition that reflect these perspectives. [ABSTRACT FROM AUTHOR]

Little is known about the lived experience of the dyad following a fetal death and the impact on relationships. The purpose of this paper is to explore the dyadic relationship between partners, with health care providers, and with the baby's memory after birth. This qualitative study utilized hermeneutic phenomenology. The sample included 10 heterosexual dyads from the United States and Canada. All experienced a fetal death between 6 months and 7 years prior to their interviews. The data revealed three themes: (a) The Dyad Relationship: Moving Through the Experience Together; (b) Keeping the Memory Alive: Memorializing the Baby; and (c) Relationships With Health Care Providers: A Spectrum of Caring. The findings from this study provide the beginning knowledge needed to improve the care of dyads who have experienced a fetal death and for future studies to improve care delivery for dyads as their relationships change after fetal death. [ABSTRACT FROM AUTHOR]

The concept of saturation in qualitative research is a widely debated topic. Saturation refers to the point at which no new data or themes are emerging from the data set, which indicates that the data have been fully explored. It is considered an important concept as it helps to ensure that the findings are robust and that the data are being used to their full potential to achieve the research aim. Saturation, or the point at which further observation of data will not lead to the discovery of more information related to the research questions, is an important aspect of qualitative research. However, there is some mystification and semantic debate surrounding the term saturation, and it is not always clear how many rounds of research are needed to reach saturation or what criteria are used to make that determination during the thematic analysis process. This paper focuses on the actualisation of saturation in the context of thematic analysis and develops a systematic approach to using data to justify the contribution of research. Consequently, we introduce a distinct model to help researchers reach saturation through refining or expanding existing quotations, codes, themes and concepts as necessary. [ABSTRACT FROM AUTHOR]

Holistic nursing practice requires an understanding of the constraints of poverty as one of the social determinants of health. Future nurses need to be change agents for social justice. A descriptive, qualitative study was conducted to explore students' experience of the Missouri Association for Community Action Poverty Simulation© (CAPS) and its impact on empathy and social justice awareness among a purposive sample of 56 sophomore baccalaureate nursing students at a public university in the Northeastern United States. Inductive thematic analysis was applied to data collected from a postparticipation reflection paper. Five themes emerged: (a) emotions, (b) personal history of poverty, (c) empathy, (d) rising advocacy, and (e) lessons learned. The results support that the CAPS simulation provides an experiential opportunity which impacts empathy and foundational attitudes to be a change agent for social justice. Recommendations include structured education about social determinants of health prior to the CAPS simulation, continued education throughout nursing curricula, and experiential opportunities to apply social justice skills before graduation. [ABSTRACT FROM AUTHOR]

Campus sexual violence is prevalent and consequential. After a climate survey at our university revealed high rates of sexual violence, a semester-long academic course was designed as a curricular intervention for first-year students. This study examines an assignment completed at the beginning and end of the course. Students were asked: "What are the root causes of sexual violence?" Thematic analysis of papers revealed that many students altered or expanded their thinking to more complex, structural factors compared to their initial perceptions. An academic course may broaden students' understanding of the determinants of sexual violence. [ABSTRACT FROM AUTHOR]

While bystander intervention education has demonstrated promise as a strategy to reduce dating and sexual violence (DSV) on campus, little is known about whether survivors on whose behalf the interventions take place find these helpful. This paper uses qualitative, in-depth interviews with 33 DSV survivors to explore their perspectives on bystander intervention. Results indicate that while some interventions were identified as helpful, especially those that provided support to the survivor, many were not helpful enough or even harmful. Further work is needed to understand the consequences of bystander action. [ABSTRACT FROM AUTHOR]

Despite increasing scholarly and media attention on sexual violence in public spaces, including those associated with the night-time economy and licensed venues, music festivals have been largely absent from research and policy. This paper presents the findings from the first UK study of sexual violence at music festivals, drawing on data from interviews with 13 women who have experienced some form of sexual harassment or assault at a festival. Analysis reveals that sexual violence at festivals occurs on a continuum and represents an extension of rape culture through which sexual violence is culturally condoned and normalized, enabled through a number of environmental and culture features that are unique to festivals. [ABSTRACT FROM AUTHOR]

This article introduces the Rug Methodology to enhance participation in the qualitative research process. The idea of using rugs to facilitate narratives and expression, and to build reciprocity and activate reflexivity and meaning-making, grew out of a peer-to-peer debate between the authors of this paper on a qualitative research approach for weaving rugs, inventive methods for community action, and drawing as a reflective practice. The article describes the procedure of drawing rugs to encourage people participation. Rugs are everyday objects but they can become a qualitative tool that can be used with in-depth interviews, amplifying the opportunity of collecting participants' lived experiences, emotions, reflections, and desires. The paper aims to define a framework which connects "to-do activities" with dialogical practices in research and to describe strengths and limitations of drawings rugs in a qualitative research design. Drawings, life events, and stories from the field are described and discussed, showing how everyday objects such as rugs can support expression, participation, reflexivity, and how drawing rugs is suitable for various and vulnerable targets and settings in qualitative studies. Finally, the paper describes the challenges of analysing data from drawings to illustrate lived experiences related to people who stay in rural areas and how they learnt to generate their quality of life. [ABSTRACT FROM AUTHOR]

Qualitative social science research has an obligation to resist replicating or reinforcing social harms. This paper explores how researchers can adopt strategies to develop inclusive, safe, and reflexive research spaces with queer participants. Reflecting on a research study that explored the impact of queer representation in young adult literature on young readers, the paper explores the concepts of building queer connections and fostering inclusion as methods to support qualitative research design. Through this reflexive process, it has been found that intentionally using strategies to establish queer connections between participants and promoting inclusion through empathetic listening can significantly enhance participant experiences, primarily in terms of safety, support, and openness to vulnerability. These deliberate strategies also play a crucial role in reinforcing participant engagement and retention. Further, these findings indicate that these methods have additional benefits for research that transitions from face-to-face methods to online and digital formats. We argue that qualitative social science researchers who work with the queer community have an obligation to create inclusive and safe spaces for participants – not only to resist replicating stigmatising social structures, but to move beyond a pedagogy of pathologization in queer research. [ABSTRACT FROM AUTHOR]

Within qualitative research, much can be learned from the influence of researcher positionality on the research process. Reflecting upon ethnographic fieldwork undertaken for a doctoral study, this paper explores how researcher positionality not only shapes research motivations but also situates the researcher and the 'researched', impacting how data is created and interpreted. There is a long history of engaging with positionality in qualitative research, however, oftentimes this engagement is purely descriptive, providing a 'shopping list' of characteristics and stating if these are shared or not with participants. It is important for engagement with reflexivity to go beyond providing a 'shopping list' of positionality statements to develop deeper discussions about the fluidity of positionality across the research process. Using the previously established concept of 'kitchen table reflexivity', I reflect on how talk allows researchers to outline shifts and adaptability in positionality as research progresses. I expand this concept to argue that kitchen table reflexivity can occur in conversations during fieldwork with participants, utilising a range of in/visible tools at the researcher's disposal. For example, the spaces between fieldwork encounters, the 'waiting field', is often where observations and informal discussions with participants take place. Using fieldnotes and interview data, this paper outlines how positionality fluctuates and interweaves with the theoretical, methodological, and analytical approach taken. The paper concludes by restating the importance of meaningful engagement with positionality throughout qualitative research, in order to avoid static and hollow positionality statements. [ABSTRACT FROM AUTHOR]

This paper contributes to the contemporary focus on literacy and digital stories in early childhood education and care (ECEC) institutions. When a group of young children create an animated story together, they might collaborate, both with their peers and with their teacher. By drawing on social semiotic multimodal perspectives as the theoretical framework, the purpose of this paper is to describe and explore how different modalities and narrative devices contribute to the development of an animated story created by six children (aged 4-5 years) and a teacher in collaboration. The study is a qualitative case study, focusing on contemporary events in a Norwegian kindergarten. The empirical material consists of video-recorded field observations of the process as well as the final product. Through an inductive exploration of the development of verbal narrative, three analytical strands are identified: i) verbal narrative in the final product, ii) multimodal narrative in the final product, and iii) narrative devices applied by the children during the process. The findings demonstrate the importance of including and considering the process, the product, narrative devices and all the modalities—in particular the kineikonic mode—when creating an animated story with young children. An implication of these findings is for ECE teachers and researchers to acknowledge and integrate all the various aspects that contribute to the final product when young children create animated stories. [ABSTRACT FROM AUTHOR]

This paper examined the recent immortalization project of Hon. Dr. Nnamdi Azikiwe at Enugu. Historicizing his achievements and legacies, the paper studied the roles he played in ensuring that independent Africa is attained and why he continues to be remembered even after his death. The research method is qualitative and descriptive. Secondary data such as newspapers, books, journals and online materials are used to enrich the work. The result shows that the inauguration of the Nnamdi Azikiwe Centre and other previous projects that immortalized him were as a result of his outstanding and selfless services to Africa and Nigeria in particular. The paper discovered that the new Nnamdi Azikiwe Centre was his renovated residential lodge which richly embodies his political history and career years, thoughts, ideology, and philosophy. The findings of this research will help government officials, historians, tourists, and students in making decisions on good governance, consulting material in education, and tourism development. [ABSTRACT FROM AUTHOR]

This paper explores the possibilities of drawing as a method of researching social representations. The theory of social representations focuses on studying the forms, contents, and functions of socially shared common knowledge. In this paper, we (1) present the central premises of social representations theory, (2) elaborate drawing as a visual research method, and (3) synthesize how the drawing method may promote and diversify our understanding of social representations. We suggest that the drawing method is especially fruitful in the analysis of objectification process (how something abstract is made tangible); cognitive polyphasia (the idea of the simultaneous existence of diverse and contradicting social representations); and the different levels of analysis in which social representations become observable: ontogenesis (individual level), microgenesis (social interaction level), and sociogenesis (societal level). Through these insights, this paper advances the current understanding of the drawing method in qualitative social representations research. [ABSTRACT FROM AUTHOR]

International labor migration impacts gender relations between migrant workers and their families. Social workers need a more nuanced understanding of the gendered aspects of international migration for developing ethical social work practices and research. This article discusses morphing gender relations of power within the family context. The data presented in this paper originated from conversational interviews that were conducted in Tajikistan and Russia. Using social constructivism and intersectionality as the main theoretical approaches, this paper illustrates how male–male, male–female, and female–female gender relations are constantly negotiated and renegotiated within the family in the midst of labor mobility. This distinct understanding is critical for social workers who work with migrant workers and their families both locally and globally. [ABSTRACT FROM AUTHOR]

This brief article sets the stage for the three articles about causality and qualitative research by Maxwell, Donmoyer, and Anderson & Scott (as well as Erickson’s critique of these articles) that follow by placing the debate about causality in qualitative research in an historical context. This article notes that the use of qualitative methods historically often was justified by claims that qualitative methods represented a new and radically different paradigm, a paradigm that, among other things, rejected the notion that social phenomena could be described or explained in cause and effect terms. This article suggests that the paradigm talk of the past should not be dismissed cavalierly since all empirical research is framed and, therefore, influenced by the a priori assumptions of the researcher (and the particular research community that has socialized the researcher). However, the article also suggests that earlier thinking about paradigms and qualitative methods—and, more specifically, thinking that unequivocally dismisses the possibility of causal explanations in qualitative research—needs to be reconsidered. This reconsideration, of course, is what the papers that follow do, albeit in quite different ways. [ABSTRACT FROM PUBLISHER]

Vulnerability has typically been addressed in the context of research ethics from the point of view of participants, with a focus on how to prevent the potential or exacerbation of existing harm caused by the power and role asymmetries between researchers and participants. However, more recent approaches to research ethics question whether researchers are, by definition, located in a privileged position during the research process and safe from any kind of vulnerability. In line with this, we reflect on the dimensions of researcher vulnerability specific to studies using a qualitative methodology in health research. Our argument is that participants and researchers should be on the receiving end of efforts to implement ethical procedures and protection from harm. Based on the autoethnographic analysis of our experiences as qualitative health researchers, this paper aims to identify dimensions of researcher vulnerability, and draw out relevant recommendations for practice. The reflections upon which this paper is based emerged during a spring school focusing on research ethics in qualitative health research, during which we discussed situations from our own research experience which left us feeling vulnerable. We identify four dimensions related to the experience of vulnerability (reciprocity; emotional labor; application of ethical standards; reversed power asymmetries) and five crosscutting aspects relating to these dimensions (researching sensitive topics; researching in contexts of vulnerability, poverty and structural violence; being a novice; lacking adequate support; insufficient time and space for ethical reflexivity). Our recommendations address particular challenges for these dimensions, and center on the role of reflexivity, as one of the cornerstones for enabling ethical qualitative research practice, requiring us to acknowledge and address our own vulnerability and positionality. Autoethnographic exercises are particularly useful for zooming in on ethically important moments in research related to researcher vulnerability and fruitful for identifying resources to respond to such challenges in the future. [ABSTRACT FROM AUTHOR]

Background: Doctors with a history of mental health or substance use challenges face barriers accessing treatment and are difficult to recruit for research. This makes understanding their experiences challenging, yet essential. Overcoming barriers to research participation among unwell doctors is critical to advancing their overall health and wellbeing. Methods: A qualitative interview study of 21 allegedly impaired doctors in Australia and Aotearoa New Zealand who were subject to regulatory processes relating to their health. Based in an interpretative phenomenological paradigm, this paper examines participants' motivations for participation in this study and their reactions to participating. It highlights wider implications for sensitive research involving doctors and marginalised groups. Results: Participants were strongly motivated to participate in our research for their own benefit (desire to be heard, catharsis, and empowerment) and to benefit others (to change the system, and to avoid other doctors experiencing what they experienced). Careful planning and communication of unique legal risks fostered a trusting researcher-participant relationship. To assist other researchers undertaking sensitive qualitative research with vulnerable participants, we describe our research protocol, challenges, and successes in detail. Conclusions: Despite ethical concerns about research risk, researchers can and should pursue qualitative research into the experiences of under-represented groups, including allegedly impaired doctors. Without involving them in research that examines issues directly impacting on them, we may be inadvertently perpetuating the barriers and stigma that also hinder them from accessing treatment and support. This also deprives us of knowledge that can be used to improve doctors' health. This paper has broader relevance for anyone doing research with doctors, people in vulnerable positions, people disempowered by institutional or social systems, people who are stigmatised or shamed, and people who have experienced trauma. [ABSTRACT FROM AUTHOR]

In the wake of the Covid-19 pandemic, many research projects were forced to adapt their design and conduct interviews online. This paper discusses the benefits and challenges of using online focus groups with participants representing different generations and cultural and social backgrounds. Based on the researchers' experiences and field notes from a three-country comparative project, aiming at analysing the extent to which previous experience of state surveillance impacted attitudes to commercial monitoring and tracking of online behaviour among two generational cohorts, the paper identifies seven aspects where the move from offline to online interviewing interfered with the original research design. The paper suggests that most of these interferences resulted in a need to adjust the methodology to better fit the online setting. We reflect critically upon the issues of technological preconditions and digital skills, recruitment, group size, degrees of previous acquaintance, the role of the interviewer, participants' household status and media environment, and ethical considerations concerning privacy and data management. Based on these methodological insights, we conclude that future online focus group research would benefit from using smaller groups and adjusted moderation, flexibility in interviewing tools and channels, and new, online-specific ethical considerations when planning, executing, and analysing interviews. The paper advocates the complementarity between in-person and online focus groups as two modalities of data collection and argues for the normalization of hybrid methods. [ABSTRACT FROM AUTHOR]

Examinable physical education (i.e. physical education as a certificate subject in a high-stakes environment) has distinctive forms of practical and theoretical knowledge, and the concept of 'integration' has been identified as a means to bridge such forms of knowledge. This paper explores how teachers interpret, translate, and enact curriculum policy, particularly the notion of 'integrated learning experiences', and how students respond to 'integrated learning experiences' in the Irish examinable physical education curriculum. Figurational sociology was used to locate the teachers and students in a web of interdependent relationships and conceptualise them as 'policy actors'. Through analysing a year-long data set of teacher and student qualitative data, this paper sheds light on how teachers and students 'do' policy work which we explicitly argue is influenced by the independencies within their figurations in the multi-layered policy enactment context. This paper contributes to our understanding of the policy enactment process and how teachers and students engage (or not) with the enactment of curriculum policy. [ABSTRACT FROM AUTHOR]

This paper concerns parenting assessments which are integral to child-safeguarding professional processes in England, and which involve Deaf parents whose primary language is British Sign Language (BSL). In an under-researched area of social work, the research aim was to contribute to the existing literature by eliciting the practice wisdom of specialist professionals. Specifically, it draws upon their linguistic and cultural knowledge of the Deaf community when they are involved in parenting assessments with Deaf parents who are subject to safeguarding concerns. Data about these professionals' actual experiences of navigating Deaf cultural-competency in contemporary child protection practices were collected through seven video-recorded, semi-structured interviews conducted in BSL. Using interpretive phenomenological analysis, data were analysed in their source language (BSL). This article focusses on one key theme, termed 'Professional Recognition', which incorporates a) the identification of specialist roles and b) the impact of referral processes and protocols on assessment outcomes. The findings highlight participants' perspectives on the benefits and disadvantages of their specialist role in this context. Although their brokerage skills, cultural competence, linguistic fluency and specialist knowledge of the Deaf community are highly regarded and valued by some colleagues, there is insufficient recognition of their existence by the majority. Secondly, participants are concerned by the inefficiency and inconsistency of the referral processes and protocols which they consider have adverse effects on assessment outcomes, and consequently the parents involved. [ABSTRACT FROM AUTHOR]

There exist ongoing calls among social work scholars and practitioners to cultivate applied knowledge of critical and emancipatory practice. In this paper, I explore the utility of text-based vignettes as instruments that can be used to elicit insight from marginalized service users on critical social work practice. To do this work, I draw on data from interviews with 20 transgender and gender diverse (TGD) social service users, along with 10 social workers, whose responses to a text-based vignette were originally used to build an understanding of the constituents of equitable social work practice with TGD people. Incorporating critical pragmatism as a conceptual framework and constructivist grounded theory as a methodological orientation, I analyze data from this study as an exemplar that substantiates the promise of using text-based vignettes in qualitative social work research to generate knowledge of critical social work practice. Specifically, I demonstrate how text-based vignettes in this study (1) contextualized the meaning, significance, and impact of oppression for service users, (2) built insight on practice that reflects solidarity and allyship, and (3) identified opportunities for social workers' reflexive use of professional power to effect change. Accounting for the tensions between empiricism and critical praxis in social work, I consider the promise of incorporating text-based vignettes to develop empirical social work literature that is rooted in the voices of marginalized service users. [ABSTRACT FROM AUTHOR]

Background: Empirical studies suggest that gratitude positively influence the quality of life of palliative patients and relatives. However, the literature is marked by a lack of conceptual clarity about what gratitude is and whether it can bring about individual and social benefits. Aim: This paper explores how palliative care patients and relatives understand gratitude, how discursive representations of gratitude may affect their positions, perceptions and relations, and how to conceptualise gratitude in the palliative context. Design: We examine 33 gratitude letters written by patients and relatives and 25 semi-structured interviews conducted as part of a pilot gratitude intervention study. We use a qualitative approach, thematic analysis, within a conceptual framework of discourse analysis. Settings/participants: Data were collected from 23 patients and 13 relatives recruited through three hospital palliative care services in French-speaking Switzerland. Results: Participants articulate gratitude in five ways: (1) appreciating others; (2) love; (3) need to reciprocate; (4) appreciating the little things; (5) solace amid serious illness. While some of these representations are sources of positive emotions and outlook, wellbeing and hope, others may confirm self-perceptions of powerlessness and burden. These results support a tridimensional conceptualisation of gratitude in palliative care as source of individual benefits, valuing closest relationships and moral obligation. Conclusion: Our study suggests that gratitude is a key to a good (end of) life, whilst highlighting potential negative effects. It could help healthcare professionals to better understand what gratitude means to patients and relatives, which may facilitate awareness and fostering of gratitude in palliative care. [ABSTRACT FROM AUTHOR]

Context: The majority of people with serious health-related suffering in low- and middle-income countries lack access to palliative care (PC). Increased access to PC education is greatly needed. Objectives: This paper describes the process to adapt an advanced PC training course for a Chilean context. Methods: A joint team of intercultural PC educators from the US and Chile conducted a series of key informant interviews and a target audience survey to iteratively design a PC training course in Chile. Results: Eight key informant interviews identified a strong need for formal PC education pathways, confirmed the five central learning domains, and helped to identify potential course sub-topics. A target audience survey of 59 PC providers from across Chile confirmed a strong desire to participate in such a course. Conclusion: Our team of intercultural PC educators adapted an advanced PC course to the unique context of Chilean providers. [ABSTRACT FROM AUTHOR]

Background: Semi-structured interviews allow progressive interview refinements to gain an in-depth understanding of a research question, but interview refinements affect the stopping point. This paper aims to describe a method that provides transparency in interview refinements and helps researchers decide on a stopping point. Methods: We established systematic and practical methods to document interview refinements and visualize novel and duplicate interview codes. We illustrated the methods using a case study called the Mass Atrial Fibrillation Screening Study, a real-world clinical trial. Interviews were audio recorded and transcribed progressively. Two researchers established the initial coding into a predefined framework with reference to the Medical Research Council Guidance of Process Evaluation. Final codes were reached by discussion and consensus. NVivo v12 software was utilized to manage the qualitative data. Results: We developed an open-access software package for the 'R' statistical programming language called 'novelqualcodes' and a video demonstrating the application. Our package converts NVivo coding matrices into graphs of the trends of novel and duplicate codes. Our package also enables users to document interview refinements as fieldnotes, providing a visual guide to help researchers decide on a stopping point. In the case study, one researcher (KCW) conducted 48 one-to-one in-depth semi-structured interviews with participants from September 2021 to July 2022. Interview refinements were identified and reported to provide transparency to the readers. The novel code graphs and examination of the code sufficiency in the predefined framework demonstrated the stopping point at which we were satisfied with the richness and insights of the interviews in answering our research question. Conclusions: We illustrated a new paradigm of systematic and practical methods and shared an open-access software package and a video to describe, document and visualize the path to the stopping point. This approach can be applied in other qualitative research using different predefined frameworks. [ABSTRACT FROM AUTHOR]

Photovoice is a qualitative, participatory research method with great potential for increased use across settings and disciplines in sub-Saharan Africa. The method originated over 30 years ago with two women researchers in reproductive health and has since been used across disciplines in diverse settings globally. Despite its origin within the social and cultural contexts of China in 1992, the method has been used predominantly in settings in the global North and West. There is ample opportunity to employ the method in sub-Saharan African contexts as a powerful, versatile research method. This paper highlights the current use of the photovoice research method in sub-Saharan Africa, with a specific focus on Uganda. We aim to demystify photovoice and advocate for more use of the method as a participatory approach in tackling major current transdisciplinary challenges across the globe. We introduce the method, describe the historical and philosophical underpinnings, illustrate use of the method through two examples of our photovoice research in Uganda, and discuss its challenges and benefits. [ABSTRACT FROM AUTHOR]

During the COVID 19 pandemic, Online Asynchronous Focus Groups (OAFG) through WhatsApp were conducted to explore women's experiences in the context of Congenital Syphilis prevention in Colombia. This paper discusses issues raised by the OAFGs (not least in relation to face-to-face focus groups). After a review of the literature on online and offline focus groups, there is a consideration of some key features of our OAFGs. In particular, we note how silence, presence, attention, continuity and multiplicity manifested in our OAFGs. We suggest that rather than regarding OAFGs as inferior to the 'gold standard' of face-to-face focus groups, our OAFGs raise important questions about our assumptions about focus group methodology. For instance, what counts as participant engagement, what comprises 'useful' social data, and what constitute the boundaries of a focus group all emerge as critical issues. We go on to reflect on some of the implications of these issues for the fruitfulness of OAFG methods. [ABSTRACT FROM AUTHOR]

Background: Hospice-at-home aims to enable patients approaching end-of-life to die at home and support their carers. A wide range of different service models exists but synthesised evidence on how best to support family carers to provide sustainable end-of-life care at home is limited. Aim: To explore what works best to promote family carers' experiences of hospice-at-home. Design: Realist evaluation with mixed methods. This paper focuses on qualitative interviews with carers (to gain their perspective and as proxy for patients) and service providers from 12 case study sites in England. Interviews were coded and programme theories were refined by the research team including two public members. Setting/participants: Interviews with carers (involved daily) of patients admitted to hospice-at-home services (n = 58) and hospice-at-home staff (n = 78). Results: Post bereavement, 76.4% of carers thought that they had received as much help and support as they needed and most carers (75.8%) rated the help and support as excellent or outstanding. Of six final programme theories capturing key factors relevant to providing optimum services, those directly relevant to carer experiences were: integration and co-ordination of services; knowledge, skills and ethos of hospice staff; volunteer roles; support directed at the patient–carer dyad. Conclusions: Carers in hospice-at-home services identified care to be of a higher quality than generic community services. Hospice staff were perceived as having 'time to care', communicated well and were comfortable with dying and death. Hands-on care was particularly valued in the period close to death. [ABSTRACT FROM AUTHOR]

Undocumented monolingual Spanish-speaking immigrants are one of the most vulnerable and marginalized groups to experience intimate partner violence (IPV) in the United States. This paper explores the barriers that prevent IPV disclosure in healthcare settings. Qualitative interviews (n = 14) were conducted with previously undocumented Spanish-speaking legal clients of a community domestic violence agency. The major barriers expressed by the interviewees regarding IPV screening and disclosure include limited opportunities for IPV screening, misinformation about legal rights from abusers, fear of deportation and separation from children, and lack of knowledge about resources. [ABSTRACT FROM AUTHOR]

Aim: To critically explore the value and challenges of combining a traditional methodology (constructivist grounded theory) with a newer approach (Patient-Oriented Research) in nursing research. Overview of the Issue: Researchers need to examine novel approaches to research which incorporate the thoughts and ideas of patients and stakeholders in order to ensure that the research is important to end users. However, it is essential to maintain the rigour of traditional methodologies. Therefore, there is a need to explore combining traditional methodologies with new approaches. Results: We combined a rigorous methodology with a modern approach to health promotion research that has not been described in the literature. There are numerous synergies between constructivist grounded theory and Patient-Oriented Research. However, tensions exist including pre-conceived knowledge, patients as researchers, and flexibility in research direction. Discussion: Constructivist grounded theory with a Patient-Oriented Research approach for use in health promotion research requires thought and intentionality. Consideration of the time and money needed to build relationships and include patient partners as full team members is critical to successful research. Additionally, points of synergy and tension between constructivist grounded theory and Patient-Oriented Research must be navigated with each study. Conclusion: Our findings indicate that constructivist grounded theory can be enhanced with a Patient-Oriented Research approach and may lead to increased depth in the development of the substantive grounded theory while also giving voice to the patient-partners. Implications for Profession: There is a need for researchers to actively engage patients and stakeholders in a Patient-Oriented Research process while retaining the core of traditional methodologies. Impact: This paper will provide researchers with an exemplar to incorporate patients as team members while conducting constructivist grounded theory research. [ABSTRACT FROM AUTHOR]

Internationally, lead agencies and consumer movements emphasise the need for high-level research participation in mental health. However, evidence suggests that people with lived experience tend to be recruited as subjects rather than as active agents in research, or are consulted in tokenistic ways. Although participatory research has the potential to rectify epistemic disparities, few studies have grappled with how to move from exclusion and tokenism to high-level research participation. This paper describes a qualitative co-evaluation of a co-produced model of research partnership, Raising the Bar, which involved deliberate establishment and facilitation of six participatory research teams, comprising 28 lived experience and 'conventional' mental health researchers. Findings indicate that the theoretical elements of the model set the bar high from the outset, supporting research teams to address inconsistencies in knowledge about participation. It also provided researchers with the competencies and resources to undertake participatory research in egalitarian team structures, and to negotiate new forms of non-traditional research outputs - thereby challenging whom research might be for and how it might be made accessible. Finally, the model shifted collective meanings about research, lending credibility to participatory practices, which came to be seen as essential for meeting the needs of affected communities. Nonetheless, systemic barriers to participatory research remain, and need to be recognised and acted upon to promote a culture that supports high-level research participation. [ABSTRACT FROM AUTHOR]

This paper explores the use of chemical control by perpetrators as part of coercive controlling intimate partner violence and abuse, defined as the nonconsenting use of prescribed and nonprescribed medication (including vaccines), and/or other substances to coerce or control, reducing the victim-survivor's capacity for independence, freedom, and health. Based on testimonies of 37 victims-survivors and nine domestic abuse practitioners in the UK we identify varying tactics used to chemically coerce and control, deepening our understanding about the continually changing forms of domestic violence and abuse and enhancing the potential for a more robust response through better informed policy and practice. [ABSTRACT FROM AUTHOR]

What are participants and researchers agreeing to when they consent to having data archived and what do they imagine the future life of their data to be? In this paper, we reflect on a project that deliberately started rather than ended with the archive. The Everyday Childhoods project invited children and their families to take part in the creation of an open access public archive documenting everyday childhoods using a range of multimedia data. Families and researchers were invited into the archive, encouraged to imagine different kinds of secondary use and to speak directly to future user of their data through short films and postcards. This paper raises questions concerning the place of the archive in different disciplinary traditions; the roles of researcher and archivist in safekeeping, gatekeeping and caring for data collections; and the place of qualitative longitudinal research as a site of innovation within a new data landscape. [ABSTRACT FROM AUTHOR]

This discussion paper aimed to reflect on the development of relational connections in the context of a web-based, tailored, asynchronous nursing intervention (VIH-TAVIETM) aimed at empowering people living with HIV in taking their antiretroviral treatment. Our reflection culminates in the Relational Virtual Nursing Practice Model. This paper builds on nurse-researchers and people living with HIV's experiences, nursing theories, and cross-disciplinary work on relational engagement. The model shows the disciplinary principles underpinning VIH-TAVIETM, engagement processes used to create humanistic and supportive relational environment and people's relational experiences and it contributes to the development of conceptual nursing knowledge on how generating meaningful relational nursing care in virtual environments. [ABSTRACT FROM AUTHOR]

The website Reddit has been noted as a fertile space for researchers due to its large user base and collection of distinctive communities. Reddit communities may be encouraging areas for specialized participant recruitment, though there is currently a lack of literature integrating Reddit into qualitative research participant identification and recruitment. This paper examines unique challenges and opportunities associated with using Reddit for sampling in-depth, qualitative research designs. Using a case example of a qualitative study which recruited from Reddit, the paper offers insight into what social scientists may expect to experience if attempting this form of recruitment. Reddit can potentially offer contact with hard-to-reach populations, and using it for recruitment may broaden the quality of qualitative data if sourced in ways which are ethical and conform to the tolerated standards of the specific communities being sampled. [ABSTRACT FROM AUTHOR]

Research that 'grows apart' from its original design and proposal is not uncommon, especially when involving participatory and creative methods. However, the disconnect between research intentions and research realization is seldom probed for the insights offered; this paper addresses this gap. Taking up the conceptual lens of research imaginaries, this paper dives into the tensions and discoveries experienced in between the design and the practice of a multi-site participatory research project. The study involved two groups of young people, in two cities in two countries, with a focus on digital lives. In a commitment to collaboration with artists, senior researchers, research assistants, and young people in community spaces, a complex project emerged. This paper describes the tensions and possibilities of an emergent methodology and in doing so argues for increased attention to the movement of research designs; rather than the adherence to them. [ABSTRACT FROM AUTHOR]

Fieldwork encounters are not only contingent to biographical subjectivities, but are mediated by a confluence of identity, place and embodiment. This paper offers reflexive accounts of researchers with various socio-cultural and disciplinary backgrounds, who collaborated as a team to examine the varied funerary experiences and needs of established minorities and recent migrants in England and Wales. Focusing on the researchers' varied personal experiences with death and bereavement and on their performances of minority and majority ethnic and migrant identities, the paper highlights the mediated and embodied nature of fieldwork. It argues that reflection on the various aspects of intersectional researcher identity is necessary for a rigorous fieldwork practice that takes transparency and politics into account. This facilitates a deeper understanding of the positionality of both researchers and interlocutors, and the situated co-production of knowledge. In doing so, the paper illustrates that conducting research with a diverse team of researchers contributes to better understanding the complexity and multifacetedness of social phenomena. [ABSTRACT FROM AUTHOR]

Debates on positionality and partisanship in the research process are long-standing, complex and often highly contentious. Engaging with, and contributing to, both these key debates, this paper introduces the concept of victim-as-researcher. This draws from the author's experiences of undertaking research in Trinidad and Tobago with a group of offenders who had committed similar offences to that which the researcher was herself a victim. There is a paucity of literature which speaks to the experiences of victims of serious, violent crime who subsequently engage in qualitative research with offenders who have been convicted of offences similar to the ones experienced by the researcher and which, therefore, can elicit trauma whilst in the field and through analysis. This paper aims to extend the methodological literature on positionality and victimology by foregrounding the victim-as-researcher as an important category in reflexive sociological and criminological research. [ABSTRACT FROM AUTHOR]

Our study compared the quantitative and qualitative outcomes associated with course evaluations collected over the Internet with those collected using a paper-and-pencil method. We randomly assigned students to 1 of the 2 different formats. There was no significant difference in quantitative student responses based on administration method, but students who completed evaluations over the Internet were more likely to give qualitative feedback compared to students who completed their evaluations in the classroom. Moreover, students in the Web-based condition provided longer qualitative comments than students in the paper-and-pencil group. We discuss the implications of these findings. [ABSTRACT FROM AUTHOR]

In this research note, we present a critical moment we had as a research team in our work preparing qualitative data for its analysis in which an unanticipated social justice issue was triggered. The moment was related to determining the best ways to anonymize the information—in particular, how to replace what were perceived as "male" and "female" gendered names, family relationships, and roles with the labels of "she/her/mother/daughter" or "he/his/father/son". The paper begins with a review of the main "do's and don'ts" of data preparation, followed by our reflections of the social justice issue. Through our differently positioned reflections, we complicate the task of data preparation by revealing the ways in which cis-dominance is upheld by cis-normativity, cis-genderism, and heteronormativity. We end with recommendations for practices that uphold the values and goals of social justice by resisting cis-dominance and challenging the erasures of peoples with fluid genders and identities. [ABSTRACT FROM AUTHOR]

Objective: The following research paper seeks to explore how post-occupancy evaluations (POEs) are undertaken in the nine health jurisdictions across Australia and Aotearoa New Zealand and investigate if the process can be strengthened to better inform healthcare design and investment. Background: Healthcare expenditure in both nations is increasing, and the rigorous evaluation of healthcare facilities can provide evidence to improve their return on investment. A POE is a research method used to undertake this analysis, usually 12 months after a facility has been occupied. There is limited information available about how POEs are undertaken in each jurisdiction, and there has never been research conducted to understand these processes across the region. Methods: Focus groups were conducted with participants from the government health organization in each jurisdiction to collect qualitative data regarding various aspects of POE processes and barriers to undertaking POEs. Results: Only five of the nine jurisdictions undertake POEs on healthcare facilities (with varied frequencies), and there is no standardized framework in use. However, every jurisdiction does undertake a "benefits realization" process. There is limited involvement of external consultants in POEs or benefits realization processes. POE benchmarks should be established at project commencement, and POE results should then inform future projects. Top-down support is required for POEs to occur. Conclusions: The primary conclusion is that strengthening any evaluation process requires a nuanced approach in each jurisdiction to account for their unique context and challenges. Regular rigorous evaluations are required to feed results into the Australasian Health Facility Guidelines and encourage innovative facility design. [ABSTRACT FROM AUTHOR]

Research studies of shopping with companions, or "co-shopping," have investigated different "types of companion" (e.g., children, spouses, parents, friends) and the nature of their influence on shoppers' retail experience. By means of a systematic literature review guided by the standard review protocol PRISMA and qualitative content analysis, this paper offers a state-of-the-art overview of 66 studies and their findings, through the middle of 2023. It finds that sparse attention has been paid to shopping companions' behaviors and personalities and that it is so far impossible to attribute their impacts on shoppers specifically to one or more types of companion. It also finds that the various factors that could facilitate understanding of how companions' influences work in practice remain largely unexplored. In short, too little is known about how companions exert their influence and how shoppers process it and there remains much to be investigated about the interplay between shoppers, their companions, and an interacting salesperson. Our detailed findings and their implications could therefore usefully shape the agenda for future research into accompanied shopping. Plain Language Summary: A systematic study of retail shopping companions and their various effects The purpose of this article is to explore the current state of research on the phenomenon of shoppers who visit retail environments with a designated companion. Through a systematic literature review following a standard review protocol (PRISMA) and subsequent qualitative content analysis, we summarize the findings of previous research on how companion shoppers have been studied and the effects of companions on the person they accompany. It becomes clear that while the general effects of companions on shoppers are well understood, there is a lack of understanding of how they generate their influence on shoppers and how shoppers go about the process of translating their influence into emotions and behaviors. Awareness of these processes can help retailers and their frontline employees better understand their customers and their companions, and thus shape the way they deliver their services at the point of sale. [ABSTRACT FROM AUTHOR]

This study examines the visual emotive meanings involved in three films, that is, Mulan (1998), Mulan (2009), and Mulan (2020), which are adapted from The Ballad of Mulan. By adopting the theoretical framework of visual affect, this research conducts quantitative and qualitative analyses on the emotional episodes of Mulan in the three films. The study reveals that these films construct Mulan as a personality rich in emotions. However, there are distinctively different distributions of visual affect. In Mulan (1998), Mulan is built as a tomboy disrupting the masculine tradition, while in Mulan (2009) and Mulan (2020), Mulan is constructed as a filial and dutiful woman and an inherent legendary heroine respectively. The identity development revealed in this paper could be seen as a crucial way to transforming traditional figures in adapted films, contributing to the field of adaptation study from a semiotic perspective. [ABSTRACT FROM AUTHOR]

This study analyses, firstly, the achievement of local governments' reform based on their Performance Accountability System (SAKIP) as part of the national administrative reform program in Indonesia. Secondly, this paper examines factors that have been affecting reform output. The study uses a mixed method perspective by analyzing the whole population of local governments from SAKIP data (2016–2019; quantitative) and applies the qualitative method of in-depth interviews with key informants. The study finds that, although there were improvements in the performance accountability system, the improvement processes have been slow and dominated by formalism at provincial and regency/city levels. Several determining factors affected the implementation of the local government performance accountability system, that is, the regulations' arrangements, the norms, the cognitive culture, and management problems. Thus, this study confirms the theory of institutional change that considers cultural factors, political commitment, and organizational aspects that influence the dynamic of bureaucratic reform implementation. [ABSTRACT FROM AUTHOR]

Background: People with diagnoses of intellectual disability or serious mental illness have higher mortality rates due to physical comorbidities; better understanding is needed to guide best practice in provision of palliative care for these populations. Aims: To identify multivoiced perspectives, drawn from lived experience of: what works, and what does not, in palliative care for people with intellectual disability or serious mental illness; challenges in, and opportunities to improve, palliative care. Design: A systematically constructed qualitative meta-ethnography. Protocol published (PROSPERO: CRD42021236616). Data sources: MEDLINE, PsychINFO, CINAHL PLUS and Embase used without date limitations. Papers published in English, containing qualitative data on palliative care provision for people with a diagnosis of intellectual disability or serious mental illness were included. Global five-point strength score applied for relevance/quality appraisal. Results: Familiarity (of location, people and/or things) is important for good palliative care. Assumptions and misunderstandings about the role of mental capacity assessment to appropriately involve the patient in decision-making are common. Adapting training for palliative care staff to address concerns and beliefs about mental illness is one of the methods that helps avoid diagnostic overshadowing. Proactive identification of service arrangements to meet needs of persons with personality, psychotic, delusional and bipolar affective disorders will help optimise care. Conclusions: Evidence, including the voices of people with intellectual disability or serious mental illness is urgently needed to guide efforts to improve their access to and experience of palliative care. More evidence is especially needed to understand, develop and implement best practice for people with psychosis, bipolar affective disorder, mania and personality disorder. [ABSTRACT FROM AUTHOR]