16 results on '"Tetlow, Hilary"'
Search Results
2. End of life care in UK care homes during the COVID-19 pandemic: a qualitative study
- Author
-
Hanna, Kerry, Cannon, Jacqueline, Gabbay, Mark, Marlow, Paul, Mason, Stephen, Rajagopal, Manoj, Shenton, Justine, Tetlow, Hilary, and Giebel, Clarissa
- Published
- 2022
- Full Text
- View/download PDF
3. A qualitative 5-country comparison of the perceived impacts of COVID-19 on people living with dementia and unpaid carers
- Author
-
Giebel, Clarissa, Lion, Katarzyna, Mackowiak, Maria, Chattat, Rabih, Kumar, P. N. Suresh, Cations, Monica, Gabbay, Mark, Moyle, Wendy, Ottoboni, Giovanni, Rymaszewska, Joanna, Senczyszyn, Adrianna, Szczesniak, Dorota, Tetlow, Hilary, Trypka, Elzbieta, Valente, Marco, and Chirico, Ilaria
- Published
- 2022
- Full Text
- View/download PDF
4. Co‐producing a board game to learn and engage about dementia inequalities: First impacts on knowledge in the general population.
- Author
-
Giebel, Clarissa, Hanna, Kerry, Tetlow, Hilary, Gabbay, Mark, and Cannon, Jacqui
- Subjects
DIAGNOSIS of dementia ,TREATMENT of dementia ,PATIENT participation ,STAKEHOLDER analysis ,GAMES ,PUBLIC health ,HEALTH literacy ,DESCRIPTIVE statistics ,HEALTH ,INFORMATION resources ,RESEARCH funding ,HEALTH equity ,ADULT education workshops - Abstract
Background: Receiving and accessing care after a diagnosis of dementia, both for the person and their carer, are fraught with inequalities. The aim of this public engagement activity was to co‐produce a board game about dementia inequalities to facilitate learning, dialogue and educate about different barriers, and facilitators, to diagnosis and care and to test the game's impact on dementia knowledge with the general public. Methods: Two virtual and two face‐to‐face workshops with people with dementia, unpaid carers, health and social care professionals and Third Sector representatives were held between October 2022 and June 2023. Virtual workshops involved discussions of inequalities and how a board game may feature inequalities. The first face‐to‐face workshop was split into the same activities, aided by outcomes from workshops 1 and 2. Workshop 4 attendees tested the prototype. The impact of the game on knowledge about dementia and inequalities was tested at a game play workshop in October 2023. Results: Forty stakeholders attended four workshops. Workshops provided step‐by‐step thoughts on how the game could be designed or modified. The final game, prototype tested in workshop 4, consists of a one‐sided, two‐half board depicting the prediagnosis process (left half) and postdiagnosis process (right half). Fifty‐two members of the general public participated in the game play workshop, which led to significant improvements in knowledge about dementia (p <.001) and inequalities (p <.001). Discussion: The game can be used to improve knowledge about dementia inequalities for health and social care professionals, carers, people living with dementia, decision makers and the general public. Patient or Public Contribution: This engagement activity fully involved people with dementia, unpaid carers, health and social care professionals and Third Sector representatives throughout, with two unpaid carers as public advisers on the team. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
5. “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities
- Author
-
Giebel, Clarissa, Hanna, Kerry, Tetlow, Hilary, Ward, Kym, Shenton, Justine, Cannon, Jacqueline, Butchard, Sarah, Komuravelli, Aravind, Gaughan, Anna, Eley, Ruth, Rogers, Carol, Rajagopal, Manoj, Limbert, Stan, Callaghan, Steve, Whittington, Rosie, Shaw, Lisa, and Gabbay, Mark
- Published
- 2021
- Full Text
- View/download PDF
6. The potential dangers of not understanding COVID-19 public health restrictions in dementia: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk”
- Author
-
Giebel, Clarissa, Hanna, Kerry, Rajagopal, Manoj, Komuravelli, Aravind, Cannon, Jacqueline, Shenton, Justine, Eley, Ruth, Gaughan, Anna, Callaghan, Steve, Tetlow, Hilary, Limbert, Stan, Whittington, Rosie, Rogers, Carol, Ward, Kym, Shaw, Lisa, Butchard, Sarah, and Gabbay, Mark
- Published
- 2021
- Full Text
- View/download PDF
7. Decision-making for receiving paid home care for dementia in the time of COVID-19: a qualitative study
- Author
-
Giebel, Clarissa, Hanna, Kerry, Cannon, Jacqueline, Eley, Ruth, Tetlow, Hilary, Gaughan, Anna, Komuravelli, Aravind, Shenton, Justine, Rogers, Carol, Butchard, Sarah, Callaghan, Steve, Limbert, Stan, Rajagopal, Manoj, Ward, Kym, Shaw, Lisa, Whittington, Rosie, Hughes, Mishca, and Gabbay, Mark
- Published
- 2020
- Full Text
- View/download PDF
8. A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum.
- Author
-
Giebel, Clarissa, Tetlow, Hilary, Faulkner, Thomas, and Eley, Ruth
- Subjects
- *
TREATMENT of dementia , *RESEARCH methodology , *CONFERENCES & conventions , *COMMUNITIES of practice , *AGING , *DEMENTIA , *INTERPROFESSIONAL relations , *WEBINARS , *DESCRIPTIVE statistics , *DATA analysis software , *DEMOGRAPHY , *MEDICAL research - Abstract
Background: Too often, dementia research is conducted in research silos without thorough integration and the involvement of people with lived experiences, care professionals and the Third Sector. Research can also get lost in academic publications, without reaching those benefiting most from the evidence. The aim of this methods and evaluation paper was to outline the aims, components and evaluation of the public‐facing and ‐engaging Liverpool Dementia & Ageing Research Forum, to provide a blueprint for setting up similar communities of practice. Methods: The Forum was set up in 2019 with the aim to (a) connect different stakeholders in dementia and ageing and co‐produce research and to (b) inform and educate. This paper provides an account of the Forum model and evaluates the following key elements: (1) engagement; (2) experiences of the Forum and its impact (via an online evaluation survey and three reflections). All Forum members and attendees were asked to complete a brief evaluation survey about their experiences from October to November 2022. Three regular Forum attendees provided a case study about their involvement and its impact. Findings: The Forum has reached out to diverse stakeholders and the general public, generating growing interest and engagement since its initiation. Forty‐four members and attendees completed the survey. Most attendees completing the evaluation survey have so far engaged in between 5 and 20 activities (47.8%), and 91% felt the aims of the Forum have been met. Engaging in the Forum has produced various benefits for attendees, including increased research capacity and knowledge, as well as improved connectivity with other stakeholders. Eleven percent of respondents, 39% of lived experts, stated they experienced improved access to postdiagnostic care. Conclusions: This is the first reported multistakeholder Community of Practice (CoP) on dementia and ageing. We make key recommendations for setting up and running similar dementia CoP, as they provide a noninterventional format for raising awareness, capacity and access to dementia care. Patient and Public Involvement: This paper reports on the involvement and engagement of people with dementia, unpaid carers, health and social care providers and Third Sector organisations in a CoP. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
9. Social support services for dementia during the COVID‐19 pandemic: A longitudinal survey exploring service adaptations in the United Kingdom.
- Author
-
Caprioli, Thaïs, Giebel, Clarissa, Reilly, Siobhan, Tetlow, Hilary, Limbert, Stan, and Lloyd‐Williams, Mari
- Subjects
STATISTICS ,RESEARCH ,SOCIAL support ,PATIENT satisfaction ,DEMENTIA patients ,SUPPORT groups ,RESEARCH funding ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,ONLINE social networks ,STATISTICAL sampling ,DATA analysis software ,DATA analysis ,COVID-19 pandemic ,LONGITUDINAL method - Abstract
Objectives: To understand how the delivery of dementia‐related social support services across the UK adapted during the pandemic. Methods: We devised a two‐part online and telephone longitudinal survey. Providers participated between March and June 2021, and again 3 months later. Information relating to services delivered and delivery methods employed was collected before and during the pandemic at two timepoints (T1 and T2). Results: A total of 75 participants completed the survey at T1, with 58 participants completing the survey at both timepoints. Thirty‐six participants had complete data at T1. Day care centres and support groups were the most delivered primary services. During the pandemic, services shifted from in‐person to remote or hybrid. While in‐person services started to resume at T2, most services remained hybrid. At T2, the frequency of service delivery increased, however, a decreasing trend in usage was observed across survey timepoints. The telephone was the most employed format to deliver remote and hybrid services, however, reliance on videoconferencing software significantly increased at T1. Videoconferencing software was often used alongside the telephone and emails to remotely deliver services. Conclusions: Services were able to adapt and provide support to some service recipients. Complementing novel approaches to service delivery with more traditional formats may facilitate access to service recipients with limited digital literacy. Following the easing of public health measures, many service recipients may be reluctant to engage with in‐person services. Thus, the provision of in‐person and remote services needs to be carefully balanced amidst the current hybrid landscape. Patient or Public Contribution: Two public advisors (a former unpaid carer and a person living with dementia) were involved in designing and piloting the tool, interpreting the results and disseminating the findings. Both public advisors have experience in delivering dementia‐related social support services before and or during the pandemic in the United Kingdom. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
10. Taking the 'care' out of care homes: The moral dilemma of institutional long‐term care provision during COVID‐19.
- Author
-
Giebel, Clarissa, Hanna, Kerry, Cannon, Jacqueline, Shenton, Justine, Mason, Stephen, Tetlow, Hilary, Marlow, Paul, Rajagopal, Manoj, and Gabbay, Mark
- Subjects
CAREGIVER attitudes ,VISITING the sick ,ETHICS ,NURSING care facility administration ,SOCIAL support ,ATTITUDES of medical personnel ,RESEARCH methodology ,TELEPHONES ,COMMUNICATION barriers ,GOVERNMENT regulation ,MEDICAL care ,INTERVIEWING ,MEDICAL care costs ,FAMILY attitudes ,QUALITATIVE research ,DEMENTIA patients ,DESCRIPTIVE statistics ,CLINICAL competence ,MEDICAL appointments ,STATISTICAL sampling ,THEMATIC analysis ,HEALTH equity ,STAY-at-home orders ,COVID-19 pandemic ,LONG-term health care - Abstract
Little is known on how the pandemic has changed care home care delivery. The aim of this study was to explore the impact of COVID‐19 on care provision and visits in care homes from staff and family members' perspectives. For this purpose, we conducted a telephone‐ and zoom‐based qualitative semi‐structured interview study. Care home staff and family carers of people living with dementia (PLWD) across the UK were recruited via convenience sampling and participated via telephone or online. Participants took part in a semi‐structured remote interview. Data were collected between October and November 2020. Anonymised transcripts were analysed separately by two research team members using thematic analysis, with codes discussed and themes generated jointly, supported by research team input. 42 participants (26 family carers and 16 care home staff) took part. Five themes were generated: (a) Care home reputation and financial implications; (b) Lack of care; (c) Communication or lack thereof; (d) Visiting rights/changes based on residents' needs; (e) Deterioration of residents. With a lack of clear guidance throughout the pandemic, care homes delivered care differently with disparities in the levels and types of visiting allowed for family members. Lack of communication between care homes and family members, but also government and care homes, led to family carers feeling excluded and concerned about the well‐being of their relative. Improved communication and clear guidance for care homes and the public are required to negate the potentially damaging effects of COVID‐19 restrictions upon residents, their families and the carers who support them. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
11. Developing a Meaningful Garden Space in a Care Home with Staff and Family Members: A Qualitative Study.
- Author
-
Giebel, Clarissa, de Boer, Bram, Gabbay, Mark, Watkins, Caroline, Wilson, Neil, Tetlow, Hilary, and Verbeek, Hilde
- Published
- 2022
- Full Text
- View/download PDF
12. A UK survey of COVID‐19 related social support closures and their effects on older people, people with dementia, and carers
- Author
-
Giebel, Clarissa, Lord, Kathryn, Cooper, Claudia, Shenton, Justine, Cannon, Jacqueline, Pulford, Daniel, Shaw, Lisa, Gaughan, Anna, Tetlow, Hilary, Watkins, Caroline Leigh, and Et, Al
- Subjects
L710 ,L720 - Abstract
\ud Objectives\ud The aim of this national survey was to explore the impact of COVID‐19 public health measures on access to social support services and the effects of closures of services on the mental well‐being of older people and those affected by dementia.\ud \ud Methods\ud A UK‐wide online and telephone survey was conducted with older adults, people with dementia, and carers between April and May 2020.The survey captured demographic and postcode data, social support service usage before and after COVID‐19 public health measures, current quality of life, depression, and anxiety. Multiple linear regression analysis was used to explore the relationship between social support service variations and anxiety and well‐being.\ud \ud Results\ud 569 participants completed the survey (61 people with dementia, 285 unpaid carers, and 223 older adults). Paired samples t‐tests and X2‐tests showed that the mean hour of weekly social support service usage and the number of people having accessed various services was significantly reduced post COVID‐19. Multiple regression analyses showed that higher variations in social support service hours significantly predicted increased levels of anxiety in people with dementia and older adults, and lower levels of mental well‐being in unpaid carers and older adults.\ud \ud Conclusions\ud Being unable to access social support services due to COVID contributed to worse quality of life and anxiety in those affected by dementia and older adults across the UK. Social support services need to be enabled to continue providing support in adapted formats, especially in light of continued public health restrictions for the foreseeable future.\ud \ud This article is protected by copyright. All rights reserved.
- Published
- 2020
13. Are we allowed to visit now? Concerns and issues surrounding vaccination and infection risks in UK care homes during COVID-19.
- Author
-
Giebel, Clarissa, Hanna, Kerry, Cannon, Jacqueline, Marlow, Paul, Tetlow, Hilary, Mason, Stephen, Shenton, Justine, Rajagopal, Manoj, and Gabbay, Mark
- Subjects
VISITING the sick ,COVID-19 ,COVID-19 vaccines ,HOME care services ,RESEARCH methodology ,INTERVIEWING ,QUALITATIVE research ,DEMENTIA ,THEMATIC analysis ,DATA analysis ,LONGITUDINAL method - Abstract
Background vaccination uptake in the UK and increased care home testing are likely affecting care home visitation. With scant scientific evidence to date, the aim of this longitudinal qualitative study was to explore the impact of both (vaccination and testing) on the conduct and experiences of care home visits. Methods family carers of care home residents with dementia and care home staff from across the UK took part in baseline (October/November 2020) and follow-up interviews (March 2021). Public advisers were involved in all elements of the research. Data were analysed using thematic analysis. Results across 62 baseline and follow-up interviews with family carers (n = 26; 11) and care home staff (n = 16; 9), five core themes were developed: delayed and inconsistent offers of face-to-face visits; procedures and facilitation of visits; variable uptake of the COVID-19 vaccine; misinformation, education and free choice; frustration and anger among family carers. The variable uptake in staff, compared to family carers, was a key factor seemingly influencing visitation, with a lack of clear guidance leading care homes to implement infection control measures and visitation rights differently. Conclusions we make five recommendations in this paper to enable improved care home visitation in the ongoing, and in future, pandemics. Visits need to be enabled and any changes to visiting rights must be used as a last resort, reviewed regularly in consultation with residents and carers and restored as soon as possible as a top priority, whilst more education needs to be provided surrounding vaccination for care home staff. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
14. Dementia care navigation: A systematic review on different models and their prevalence.
- Author
-
Giebel, Clarissa, Reilly, Siobhan, Gabbay, Mark, Dickinson, Julie, Tetlow, Hilary, Hogan, Hayley, Griffiths, Alys Wyn, and Cooper, Claudia
- Published
- 2023
- Full Text
- View/download PDF
15. A qualitative 5-country comparison of the perceived impacts of COVID-19 on people living with dementia and unpaid carers
- Author
-
Clarissa Giebel, Wendy Moyle, PN Suresh Kumar, Ilaria Chirico, Mark Gabbay, Elzbieta Trypka, Giovanni Ottoboni, Monica Cations, Rabih Chattat, Maria Mackowiak, Hilary Tetlow, Marco Valente, Joanna Rymaszewska, D. Szczesniak, Katarzyna Lion, Adrianna Senczyszyn, Giebel, Clarissa, Lion, Katarzyna, Mackowiak, Maria, Chattat, Rabih, Kumar, P. N. Suresh, Cations, Monica, Gabbay, Mark, Moyle, Wendy, Ottoboni, Giovanni, Rymaszewska, Joanna, Senczyszyn, Adrianna, Szczesniak, Dorota, Tetlow, Hilary, Trypka, Elzbieta, Valente, Marco, and Chirico, Ilaria
- Subjects
Gerontology ,Coronavirus disease 2019 (COVID-19) ,SARS-CoV-2 ,Social care ,Global health ,RC952-954.6 ,COVID-19 ,Dementia, Care, COVID-19, Global health, LMIC, Social care ,Care ,medicine.disease ,LMIC ,Caregivers ,Geriatrics ,medicine ,Humans ,Dementia ,Geriatrics and Gerontology ,Psychology ,Pandemics - Abstract
Background Emerging evidence shows an impact of the COVID-19 pandemic on people living with dementia and informal carers, without any evidence-based global comparison to date. The aim of this international study was to explore and compare the perceived impact of COVID-19 and associated public health restrictions on the lives of people living with dementia and informal carers and access to dementia care across five countries. Methods Informal carers and people living with dementia who were residing in the community in the UK, Australia, Italy, India, and Poland were interviewed remotely between April and December 2020. Participants were asked about their experiences of the pandemic and how restrictions have impacted on their lives and care. Transcripts were analysed by researchers in each country using inductive thematic analysis. Results Fifteen people living with dementia and 111 informal carers participated across the five countries. Four themes emerged: (1) Limited access and support; (2) Technology and issues accessing remote support; (3) Emotional impact; and (4) Decline of cognitive and physical health reported by carers. Whilst variations were noted, the pandemic has indirectly affected people with dementia and carers across all five countries. The pandemic removed access to social support services and thus increased carer burden. Remote services were not always provided and were very limited in benefit and usability for those with dementia. As a result, carers appeared to notice reduced cognitive and physical health in people with dementia. Particular differences were noted between India and Poland vs. the UK, Italy, and Australia, with less impact on care provision in the former due to limited uptake of support services pre-pandemic based on cultural settings. Conclusions The pandemic has amplified dementia as a global public health problem, and people affected by the condition need support to better access vital support services to live well.
- Published
- 2022
16. COVID-19-related social support service closures and mental well-being in older adults and those affected by dementia: a UK longitudinal survey.
- Author
-
Giebel C, Pulford D, Cooper C, Lord K, Shenton J, Cannon J, Shaw L, Tetlow H, Limbert S, Callaghan S, Whittington R, Rogers C, Komuravelli A, Rajagopal M, Eley R, Downs M, Reilly S, Ward K, Gaughan A, Butchard S, Beresford J, Watkins C, Bennett K, and Gabbay M
- Subjects
- Adult, Aged, Aged, 80 and over, Anxiety epidemiology, COVID-19 prevention & control, Depression epidemiology, Female, Humans, Longitudinal Studies, Male, Mental Health, Middle Aged, Social Support, United Kingdom epidemiology, Young Adult, COVID-19 psychology, Caregivers psychology, Dementia psychology, Health Facility Closure, Social Work
- Abstract
Background: The COVID-19 pandemic has had a major impact on delivery of social support services. This might be expected to particularly affect older adults and people living with dementia (PLWD), and to reduce their well-being., Aims: To explore how social support service use by older adults, carers and PLWD, and their mental well-being changed over the first 3 months since the pandemic outbreak., Methods: Unpaid dementia carers, PLWD and older adults took part in a longitudinal online or telephone survey collected between April and May 2020, and at two subsequent timepoints 6 and 12 weeks after baseline. Participants were asked about their social support service usage in a typical week prior to the pandemic (at baseline), and in the past week at each of the three timepoints. They also completed measures of levels of depression, anxiety and mental well-being., Results: 377 participants had complete data at all three timepoints. Social support service usage dropped shortly after lockdown measures were imposed at timepoint 1 (T1), to then increase again by T3. The access to paid care was least affected by COVID-19. Cases of anxiety dropped significantly across the study period, while cases of depression rose. Well-being increased significantly for older adults and PLWD from T1 to T3., Conclusions: Access to social support services has been significantly affected by the pandemic, which is starting to recover slowly. With mental well-being differently affected across groups, support needs to be put in place to maintain better well-being across those vulnerable groups during the ongoing pandemic., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY. Published by BMJ.)
- Published
- 2021
- Full Text
- View/download PDF
Catalog
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.