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3. Index

Author

Lillie, Robin M. and Mack, Jennifer E.

Published
2015

6. Contents

Author

Lillie, Robin M. and Mack, Jennifer E.

Published
2015

15. Acknowledgments

Author

Lillie, Robin M. and Mack, Jennifer E.

Published
2015

21. Notes

Author

Lillie, Robin M. and Mack, Jennifer E.

Published
2015

25. Impact of the COVID-19 pandemic on pediatric faculty: a report from nine academic institutions

Author

O’Connor, Teresia M., Guaman, Milenka Cuevas, Randell, Kimberly A., Keenan, Heather T., Snowden, Jessica, Mack, Jennifer W., Camp, Elizabeth A., Perez, Oriana, Chang, Michael L., Myers, Angela L., Nigrovic, Lise E., O’Toole, Jennifer, Reed, Jennifer L., Reese, Jennifer, Rosenberg, Abby R., Slater, Anne C., Wootton, Susan H., Ziniel, Sonja I., Yost, H. Joseph, Murray, Kristy O., Shekerdemian, Lara, and Chumpitazi, Corrie E.

Published
2024
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29. Evaluating the Cost-Effectiveness of Pediatric Concurrent Versus Standard Hospice Care

Author

Lindley, Lisa C., Cozad, Melanie J., Svynarenko, Radion, Keim-Malpass, Jessica, Mack, Jennifer W., and Hinds, Pamela S.

Subjects
Pediatric nursing -- Economic aspects -- Statistics, Medical care, Cost of -- Evaluation, Hospice care -- Economic aspects -- Statistics, Health
Abstract

Using a sample of 18,152 pediatric hospice patients, this study assessed the cost-effectiveness of concurrent care over standard hospice care. Analysis of incremental cost-effectiveness ratios with bootstrapping simulations showed concurrent care was more effective but at a higher cost., The 2010 Patient Protection and Affordable Care Act (ACA) fundamentally altered the delivery of pediatric end-of-life care. Section 2302 of the ACA enabled pediatric Medicaid beneficiaries under age 21 years [...]

Published
2022

33. Functions of patient- and family-centered pediatric cancer communication in Pakistan.

Author

Graetz, Dylan E., Ahmad, Alia, Raza, Muhammad Rafie, Hameed, Ambreen, Naheed, Asma, Najmi, Atoofa, Quanita, Afia tul, Munir, Shabnam, Ahmad, Safwan, Ferrara, Gia, Staples, Courtney, Galindo, Carlos Rodriguez, Hamid, Syed Ahmer, Jeha, Sima, and Mack, Jennifer W.

Subjects
FAMILY-centered care, COMMUNICATION models, PEDIATRIC oncology, CHILDHOOD cancer, TRUST
Abstract

Background: Communication is an essential aspect of high-quality patient- and family-centered care. A model for pediatric cancer communication developed in the United States defined eight communication functions. The purpose of this study was to explore the relevance of these functions in Pakistan as part of an effort to understand the role of culture in communication. Materials and methods: Semi-structured interviews were conducted with 20 clinicians and 18 caregivers of children with cancer at two major cancer centers. Interviews were conducted in Urdu or English and transcribed and translated as necessary. Two independent coders used a priori codes related to the communication model as well as novel codes derived inductively. Thematic analysis focused on operationalization of the functional communication model. Results: Clinicians and caregivers in Pakistan discussed the importance of all eight communication functions previously identified including: information exchange, decision-making, managing uncertainty, enabling family selfmanagement, responding to emotions, supporting hope, providing validation, and building relationships. The operationalization of these functions was influenced by Pakistani cultural context. For example, information-exchange included the importance of addressing preconceptions and community myths, while managing uncertainty included strong references to religion and faithbased coping. Essential to all eight functions was trust between the family and the medical team. Discussion: These findings support the use of this functional communication model in diverse pediatric oncology settings and emphasize the importance of trust. Culturally sensitive operationalization of these functions could inform the adaptation of tools to measure communication and interventions aimed at supporting the needs of parents of children with cancer. [ABSTRACT FROM AUTHOR]

Published
2024
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45. Social Media Enters the Mainstream: Report on the Use of Social Media in Advancement, 2014. [Fifth Annual Survey of Social in Advancement]

Author

Council for Advancement and Support of Education, Huron Consulting Group Inc., mStoner, Inc., Mack, Jennifer, and Stoner, Michael

Abstract

This white paper reports on findings from the fifth survey of social media in advancement, conducted by CASE, Huron Education and mStoner. Nearly 2,000 respondents provided feedback on the tools they are using, how they use them, which are most successful, and how to measure return on investment. This year the authors focused on three key questions: (1) How much, and in what ways, have leaders established a presence on social media? (2) What channels are most commonly used--and most successful--for meeting advancement goals? and (3) How are institutions using social media in fundraising and stewardship? In this report, they review their findings and explore some characteristics of institutions that are particularly successful in their use of social media for advancement. Three appendices are included: (1) Process, Demographics, and Other Survey Details; (2) Hail to the Tweeps: College and University Presidents Take to Social Media (Michael Stoner); and (3) Profiles of Social CEOs. [For the fourth annual survey report, see ED571321.]

Published
2014

47. Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer

Author

Odejide, Oreofe O., Fisher, Lauren, Kushi, Lawrence H., Chao, Chun R., Vega, Brenda, Rodrigues, Gilda, Josephs, Isabel, Brock, Katharine E., Buchanan, Susan, Casperson, Mallory, Cooper, Robert M., Fasciano, Karen M., Kolevska, Tatjana, Lakin, Joshua R., Lefebvre, Anna, Schwartz, Corey M., Shalman, Dov M., Wall, Catherine B., Wiener, Lori, Altschuler, Andrea, and Mack, Jennifer W.

Published
2022
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50. Listening to self-advocacy scripts produced by speakers with Broca’s aphasia and apraxia of speech: thoughts and emotions reported by unfamiliar communication partners.

Author

Mack, Jennifer E., Grossman, Margaret, Ward, Colleen B., Bondar, Megan, and Ciulla, Amanda E.

Subjects
*SPEECH apraxia, *APRAXIA, *SELF advocacy, *APHASIA, *SCRIPTS, *EMOTIONS, *LISTENING
Abstract

BackgroundAimsMethods & ProceduresOutcomes & ResultsConclusionsSelf-advocacy scripts are brief, scripted narratives that people with aphasia (PWA) use to self-disclose their aphasia, explain what it is, and request supportive communicative behaviors from communication partners (CPs). In previous research, PWA have reported that self-advocacy statements, including self-advocacy scripts, facilitate their interactions with unfamiliar CPs. To understand the benefits of self-advocacy scripts, it is important to directly investigate how unfamiliar CPs respond to them.The aim of this study was to characterize the thoughts and emotions reported by unfamiliar adults after listening to self-advocacy scripts produced by speakers with Broca’s aphasia and apraxia of speech.This experimental study included 238 adult research participants without aphasia. Each participant was randomly assigned to listen to one script produced by a speaker with Broca’s aphasia and apraxia of speech: either a self-advocacy script or a control script about the weather that does not mention the speaker’s aphasia. Then, they answered one open-ended question (analyzed using a codebook approach) and eight rating scale questions (analyzed using Bayesian linear regression) about the thoughts and emotions they experienced while listening to the speaker.Compared to the control script, the self-advocacy script improved listeners’ knowledge about the speakers’ condition, their perception of the speakers’ intelligence, and their patience and empathy for the speakers.Aphasia self-advocacy scripts can have powerful, positive effects on unfamiliar listeners. The present results highlight the importance of providing support in clinical practice for collaborative development of self-advocacy scripts between people with aphasia and their clinicians. [ABSTRACT FROM AUTHOR]

Published
2024
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