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Across disciplines, qualitative researchers have documented epistemological and practical tensions in the ethical review of community-based and participatory research, with many arguing that ethics committees' decisions perpetuate the exclusion of marginalised communities from research engagement. In the existing literature, the research team and the ethics committee are often characterised as staunch opponents. Conversely, in our recent qualitative research addressing communication about sexuality with young people with cerebral palsy who use communication methods other than speech (augmentative and alternative communication), we found that constructive collaboration between researchers and committee members yielded novel insights. Co-authored by a multi-disciplinary research team and the former chair of a Human Research Ethics Committee, this reflexive case study identified three key tensions which arose in the ethical review of research involving this purportedly marginalised population, which reflected the wider importance of trust. We propose a series of practical recommendations to support productive collaboration in the pursuit of safe, inclusive and community-driven research. Plain language summary: Introduction: In Australia, researchers follow rules and policies to make sure their research is safe, fair, and correct. Before a research project starts, a group of experts called an ethics committee checks the researchers' plan, to make sure it is safe. Sometimes, ethics committees are worried that people with a disability could be hurt or upset by a research project. To protect people with a disability, ethics committees may say: • that the research activities need to change, or • that children with disability or people with intellectual disability can't participate in the research, or • that other people (e.g., a parent or guardian) should always give their permission for the person with a disability to participate. Sometimes these changes are sensible and safe. But sometimes they make research unfair or hard to access for people with a disability. This is frustrating when a research plan has been designed by people with a disability, or by people who know them well. What We Did: We did research with young people who have cerebral palsy who use methods other than speech to communicate (like gestures, communication books, or communication devices). Our research was about private topics like relationships and sex. When we applied to do our research, the ethics committee had lots of concerns. They asked us to change a lot of things. They even asked us to change some of the things that people with disability told us they wanted or needed. It was a long and frustrating process. We talked with the leader of the ethics committee and decided to write this article together. We wanted to help other researchers, ethics committees, and people with disabilities to work better together. What We Found: It is important that people with a disability be included in research that is fair and safe. Ethics committees have a big responsibility to keep people safe, but the experts who work on an ethics committee may not know a lot about disability. Stories and videos of people with disabilities participating in research can help the ethics committee to understand what is possible. Ethics committees can also talk to people with a disability, to learn more about their research needs and experiences. All research participants with a disability are unique. Every person will have different risks and different needs. Some people will have more than one accessibility need. For example, a young person with physical disability like cerebral palsy may also have difficulty reading and may not use speech to communicate. When ethics paperwork asks about each need separately, it can be hard to explain how a person with a lot of access needs will be supported. When research participants have complex needs, ethics committees can feel confused and worried. If this happens, they should have a conversation with the researchers about it, instead of saying "no" to the research. Sometimes researchers want to use special or creative research methods to involve people with disabilities. These need to be explained clearly, so the ethics committee can trust that they are safe. Researchers and ethics committees can also use research rules and resources that are created for, and by, people with a disability. These are written by large organisations like the International Association for the Scientific Study of Intellectual and Developmental Disabilities (https://iassidd.org/). By following these steps, we think that research can be safer and more inclusive for everyone. Contact: If you want more information about this article, you can email Megan Walsh at mcwalsh@deakin.edu.au. [ABSTRACT FROM AUTHOR]

Objective: This work focuses on understanding quality of life and evaluating a brief quality of life measure in an outpatient emerging adult (17-25 years of age) substance use program. Method: Mixed methods were used including: (a) psychometric evaluation of the adapted MyLifeTracker (MLT) based on assessments completed four times throughout treatment (n = 100) and (b) qualitative interviews with 12 emerging adults in the program. The study was codesigned, cofacilitated, and cointerpreted with emerging adults with lived experience. Results: At intake, emerging adults reported quality of life scores of 3.7/10 on average and significantly improved (change M = 2.1 points, d = 0.86, p < .001) at the ∼12-week follow-up demonstrating program effects and sensitivity to change. Factor analysis suggested unidimensionality of the measure and internal consistency was high (ω = 0.81). MLT scores correlated in expected directions with other measures of quality of life, functioning, and mental health symptoms and demonstrated incremental validity in explaining variability in these measures over and above World Health Organization quality of life items. Emerging adults thought the five items (i.e., general well-being, day-to-day activities, relationships with friends, relationships with family, coping) generally captured the most important aspects of quality of life to them and had positive impressions regarding the use of this measure for measurement-based care. Other important aspects of quality of life included feeling a sense of meaning, purpose, motivation, and independence. Conclusion: Overall, the MLT demonstrated evidence of psychometric and content validity among emerging adults in substance use treatment. Public Health Significance Statement This study demonstrates the relevance and validity of the MyLifeTracker (MLT) as a brief measure of quality of life among emerging adults who use substances. This study also highlights the clinical utility of the MLT and the importance of including measures of quality of life as part of measurement-based care for emerging adults with substance use concerns. [ABSTRACT FROM AUTHOR]

High rates of substance misuse during emerging adulthood (~17-25 years of age, also referred to as young adulthood) require developmentally appropriate clinical programs. This article outlines: 1) the development of an evidence-informed young adult outpatient substance use program that takes a biopsychosocial patient-centred approach to care; 2) a quality improvement process and protocol; and 3) the patient characteristics of an initial cohort. Literature reviews, program reviews, environmental scans, and consultations with interested parties (including individuals with lived expertise) were used to develop the program. A 12-week measurement-based care program was developed comprising: 1) individual measurement-based care and motivational enhancement therapy sessions; 2) group programming focused on cognitive behavioural therapy, mindfulness, distress tolerance, and emotional regulation; 3) clinical consultations for diagnostic clarification and/or medication review; and 4) an independent Community Reinforcement Approach Family Training (CRAFT) group for loved ones. A measurement system was concurrently created to collect clinical and program evaluation data at six time points. In the first 21 months of the program, 152 young adults enrolled in the program (mean age = 21 years old, 47% female gender) primarily reporting treatment targets of cannabis (68%) and alcohol (63%) and almost all presenting with co-occurring mental health concerns (95%). The initial cohort who completed the program showed symptom improvements. Collectively, the program demonstrates the feasibility of developing an evidence-informed young adult substance use program using measurement-based care, but also the need for flexibility and ongoing monitoring to meet local needs. [ABSTRACT FROM AUTHOR]

Drawing on long‐term ethnographic fieldwork with Seasonal Worker Programme (SWP) workers in south‐east Australia, I reflect in this paper on the experience of interminable temporariness and on its implications for the structural conditions underpinning contemporary horticultural labour in Australia. Although in many ways reflective of the specificities of a unique historical moment, the interminable temporariness experienced through the COVID‐19 pandemic also speaks to broader, enduring conditions produced within contemporary Australian agriculture. Here, the restructuring of the agri‐industry produces for many what Lauren Berlant describes as the "impasse" or "crisis ordinariness" of life under neoliberalism. At the same time, logics of development—including racialized imaginaries and border regimes—articulate with agricultural guest worker schemes in ways that seek to fix whole populations and regions in relations of suspended hope. In this context, I argue, the pandemic exposed and intensified structural vulnerabilities and unequal distributions of risk, which are encoded in the political economy of farm work in Australia, while also cleaving open new, if tentative, possibilities for agency and solidarity. [ABSTRACT FROM AUTHOR]

The COVID-19 pandemic highlighted the global horticultural sector's reliance on migrant workers. Within Australia, public attention was focused particularly on Pacific Islanders employed through the Seasonal Worker Programme (SWP) guestworker scheme. With national border closures resulting in significant labour shortages for the horticultural industry, special-purpose exemptions allowing limited groups of SWP workers to enter the country were celebrated as a source of reprieve for struggling farmers. For Pacific Islander workers and communities, however, the prospect of leaving Pacific countries (many of whom had at the time no, or very few, recorded cases of COVID-19) to labour for unspecified periods in a country experiencing much higher rates of infection, was fraught. In this paper, we examine the use of social media by Pacific Islanders to negotiate the costs and benefits of temporary labour migration amid the pandemic. For ni-Vanuatu workers, we argue, Facebook groups facilitated depictions and negotiations of guestwork that were significantly more complex and nuanced than the reductive and bifurcated terms of mainstream media discourse about the SWP scheme. We conclude by highlighting the necessity of foregrounding migrant workers' voices in evaluating guestworker schemes, and the value of social media as a dynamic space within which this might be done. [ABSTRACT FROM AUTHOR]

Although associations among borderline personality disorder (BPD), social rejection, and frontal EEG alpha asymmetry scores (FAA, a neural correlate of emotion regulation and approach-withdrawal motivations) have been explored in different studies, relatively little work has examined these relations during adolescence in the same study. We examined whether FAA moderated the relation between BPD features and rejection sensitivity following a validated social exclusion paradigm, Cyberball. A mixed, clinical-community sample of 64 adolescents (females = 62.5%; M age = 14.45 years; SD = 1.6; range = 11-17 years) completed psychodiagnostic interviews and a self-report measure of BPD (Time 1). Approximately two weeks later (Time 2), participants completed a resting EEG recording followed by Cyberball. FAA moderated the relation between BPD features and overall feelings of rejection following Cyberball: individuals with greater relative left FAA had the highest and lowest feelings of social rejection depending on whether they had high and low BPD feature scores, respectively. Results remained after controlling for age, sex, gender, depression, and BPD diagnosis. These results suggest that FAA may moderate the relation between BPD features and social rejection, and that left frontal brain activity at rest may be differentially associated with those feelings in BPD. Findings are discussed in terms of the link between left frontal brain activity in the regulation and dysregulation of social approach behaviors, characteristic of BPD. [ABSTRACT FROM AUTHOR]

The Kokoda Track, which spans Papua New Guinea's Oro and Central Provinces, has become a site of profound Australian national feeling. Each year, thousands of Australian trekkers travel to Papua New Guinea to "do" the 96‐km hiking trail, in remembrance of the battle waged along it during the Second World War. For Oro Province people, meanwhile, Kokoda—denoting both the track and the place where the track commences—is also a site of intense feeling, albeit in ways that are both less mythologized and less amenable to mythologization. Attending to these divergent affective experiences highlights affect as a domain of postcolonial encounter. Affect works to reproduce colonial relations and animate ongoing regimes of territorialization. It does so while deflecting Australians' attention away from the very colonial contexts within which affect is implicated. At the same time, uneven geographies of affect index complexities of Papua New Guinean feeling that exceed those sanctioned within the confines of the trekking industry itself. [ABSTRACT FROM AUTHOR]