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1. A roadmap to develop dementia research capacity and capability in Pakistan: A model for low- and middle-income countries

Author

Abbasi, Yasser, Eitesam, Sadaf, Jafri, Mohammed, Khaliq, Aysha, Karim, Raheel, Nafis, Saima, Wasay, Mohammad, Leroi, Iracema, Chaudhry, Nasim, Daniel, Anna, Dunne, Ross, Eman, Saima, Farina, Nicolas, Haidry, Sana-e-Zehra, Husain, Nusrat, Jafri, Hussain, Karim, Salman, Kiran, Tayyeba, Khan, Murad, Khan, Quratulain, Malik, Shakil Jehangir, Memon, Rakhshi, Rana, Mowadat Hussain, Sathish, Ambily, Sheikh, Saima, Tamizudin, Asad, Tofique, Sehrish, and Zadeh, Zainab

Published
2019
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2. A roadmap to develop dementia research capacity and capability in Pakistan: a model for low- and middle-income countries

Author

Ross Dunne, Ambily Sathish, Anna Daniel, Nicolas Farina, Sana-E-Zehra Haidry, Tayyeba Kiran, Murad Khan, Sehrish Tofique, Saima Sheikh, Mowadat Hussain Rana, Asad Tamizudin, Quratulain Khan, Nasim Chaudhry, Iracema Leroi, Salman Karim, Hussain Jafri, Nusrat Husain, Shakil Jehangir Malik, Rakhshi Memon, Saima Eman, and Zainab F. Zadeh

Subjects
0301 basic medicine, Research roadmap, South Asia, 03 medical and health sciences, Lower and middle-income country (LMIC), 0302 clinical medicine, Resource (project management), Quality of life (healthcare), Political science, mental disorders, medicine, Dementia, Pakistan, Capacity and capability building, Older adult, Research question, Strategic planning, business.industry, Opinion leadership, Theory of change, Public relations, medicine.disease, Research question prioritization, Mental health, 3. Good health, Psychiatry and Mental health, 030104 developmental biology, Perspective, Neurology (clinical), Alzheimer disease, business, RA, 030217 neurology & neurosurgery
Abstract

Objective\ud To produce a strategic roadmap for supporting the development of dementia research in Pakistan.\ud \ud Background\ud While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.\ud \ud Methods\ud We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders.\ud \ud Results\ud We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.\ud \ud Conclusion\ud This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.

Published
2019

3. A roadmap to develop dementia research capacity and capability in Pakistan: a model for low‐ and middle‐income countries

Author

Leroi, I., Chaudhry, N., Daniel, A., Dunne, R., Eman, S., Farina, N., Haidry, S., Husain, N., Jafri, H., Karim, S., Kiran, T., Khan, M., Khan, Q., Malik, S.J., Memon, R., Rana, M.H., Sathish, A., Sheikh, S., Tamizudin, A., Tofique, S., Zadeh, Z., Abbasi, Y., Eitesam, S., Jafri, M., Khaliq, A., Karim, R., Nafis, S., and Wasay, M.

Abstract

Objective\ud \ud To produce a strategic roadmap for supporting the development of dementia research in Pakistan.\ud \ud \ud \ud Background\ud \ud While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.\ud \ud \ud \ud Methods\ud \ud We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders.\ud \ud \ud \ud Results\ud \ud We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.\ud \ud \ud \ud Conclusion\ud \ud This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.

Published
2019

4. A roadmap to develop dementia research capacity and capability in Pakistan: A model for low- and middle-income countries.

Author

Leroi I, Chaudhry N, Daniel A, Dunne R, Eman S, Farina N, Haidry SE, Husain N, Jafri H, Karim S, Kiran T, Khan M, Khan Q, Malik SJ, Memon R, Rana MH, Sathish A, Sheikh S, Tamizudin A, Tofique S, and Zadeh Z

Abstract

Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan., Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan., Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a "research question" priority survey, and consultations with Key Opinion Leaders., Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life., Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures., (© 2019 The Authors.)

Published
2019
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