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Individuals with mental disorders are known to be socially excluded so that improving social inclusion has become a major goal of healthcare provision. However, empirical research on specific determinants of social inclusion is rather scarce.A cross-sectional survey of adults with a severe mental illness (n =70) was conducted using a measure of participation and social inclusion for individuals with a chronic mental disorder (F-INK). Univariate and multivariate regression analyses were conducted to identify determinants of social participation and social inclusion.Social participation increased with the number of friends and was, independently thereof, higher in adults living independently than in adults living in supported housing arrangements. The level of social inclusion was higher in those cohabitating and increased with duration of illness.Findings on social participation indicate the need for a re-organization of community-based supported housing arrangements, and, with respect to existing settings, an amendment of present conditions. To promote social inclusion, measures to prime a feeling of ongoing social affiliation should be taken during the first years of psychiatric illness.

The number of asylum seekers in Germany has increased dramatically in 2015. Their medical care includes the officially recommended vaccinations; yet, no detailed information on this is yet available in Germany. In light of the rising number of asylum seekers, we have developed a concept to facilitate their vaccination. This concept includes the coordination of different partners, the supply of vaccines and other materials through the local health office, and the cooperation with the local physicians' association. To evaluate and accelerate progress, we compared the number of vaccinations conducted by physicians independently of the vaccination concept with those conducted within the new concept. For the period of investigation, 2,256 new asylum seekers were temporarily accommodated in the facilities. The vaccination concept was applied in only some of the facilities. Twenty-eight percent of all asylum seekers (642) were vaccinated at least once; 89 % of the vaccinees (571) were vaccinated within the newly developed concept. In the facilities that were not included in this concept, only 6 % of the refugees were vaccinated, whereas in the facilities that were included up to 58 % were vaccinated. Even though the new concept has started successfully, further innovations are required to reach sufficient vaccination coverage among asylum seekers. In view of the large number of new asylum seekers expected, the adjustment and expansion of the new concept requires professional planning and coordination. Furthermore, additional resources are required.

Migration and imported infections are changing the distribution of infectious diseases in Europe. However little is known about the extent of transmission of imported diseases within Europe. Asylum seekers are of increasing importance for infectious disease epidemiology and can be particularly vulnerable for infections and disease progression due to stressful conditions of migration and incomplete vaccination status.The aim is to analyse transmission of infectious diseases in centralized homes for asylum seekers in national infectious disease surveillance data to identify relevant infectious diseases and possible public health measures to reduce transmission.German national notification data was systematically analysed from 2004 to 2014 for outbreaks reported to have occurred within centralized homes for asylum seekers followed by descriptive analysis of outbreak- and case-characteristics.From 2004 to 2014 the number of outbreaks in centralized homes for asylum seekers per year increased, a total of 119 outbreaks with 615 cases were reported. Cases in these outbreaks were caused by chicken pox (30 %), measles (20 %), scabies (19 %), rota-virus-gastroenteritis (8 %) and others (each5 %). Of 119 outbreaks, two outbreaks of measles in centralized homes were connected to outbreaks outside the centralized homes. For 210 of 311 cases in 2014 the place of infection was reported, 87 % of those with known place of infection were infected in Germany.Infectious disease outbreaks in centralized homes for asylum seekers are reported increasingly often in Germany. Chicken pox, measles and scabies were the most frequent outbreak causing diseases. Spread of such outbreaks outside centralized homes for asylum seekers was rare and infectious diseases are mainly acquired in Germany. The majority of outbreaks in centralized homes for asylum seekers would be preventable with vaccinations at arrival and appropriate hygiene measures.

Malnutrition and weight loss are special challenges in the care of older people particularly with dementia. In Germany, shared-housing arrangements (SHA) for older care-dependent people evolved in the last years. SHA are an alternative to traditional nursing homes. Despite of the increase of SHA in number it remains unclear if this setting is especially beneficial in terms of (mal-)nutrition. Therefore the nutritional status of older people with and without dementia living in SHA and traditional nursing homes will be compared. From 2010 to 2011 data was collected in various SHA in Berlin and in a nursing home in Schkeuditz/Saxony using standardized face-to-face interviews with nurses. In addition to socio-demographic data the nutritional status using the Mini Nutritional Assessment (MNA) and the cognitive capacities usingthe Mini Mental State Examination (MMSE) were examined. In the secondary data analysis, data from 129 residents (60 residents from 29 SHA and 69 from a nursing home) were included in the analysis. The residents of both settings were mostly female (76.7%) and on average 80.4 years old and with a moderate to severe cognitive decline (MMSE: 13.2). The average MNA score of residents from both settings is 19.7, indicating a risk for malnutrition. Residents of SHA have a significantly higher (and therefore better) MNA score (21.2) on average than residents in the nursing home (18.3; t-Test p0.001). The present study shows that residents in SHA show a better nutritional status than residents in the nursing home even when taking into account differences concerning age, gender, care dependency, a medical diagnosis of dementia and the MMSE. Further studies should evaluate the concept of food intake in both settings and evaluate differences.

A main factor for the development of shared-housing arrangements (SHA) was the wish of more self-determination in old age. Since January 2013 SHA is government-funded through the "Pflege-Neuausrichtungs-Gesetz" (PNG). Yet, an overview of the situation of SHA in Germany is not available. Therefore, a systematic literature search (databases CareLit, CINAHL, GeroLit, PubMed) was conducted in order to identify publications regarding resident- and care-specific characteristics, resident-related health outcomes and setting-specific quality management systems. The currently available knowledge in these fields is not exhaustive and further research is needed. The results indicate that care in SHA is not more efficient regarding residents' quality of life than in institutional care settings. Valid studies regarding the quality of care provision in SHA and conceptual basics concerning quality assessment are widely lacking. Thus, the goal of expanding SHA within the framework of the PNG has to be accompanied by in-depth health services research.

The Centre of Psychiatry Suedwuerttemberg routinely records data on service use of in-patient units, day hospitals and out-patient services on a daily basis as well as data on the respective patients according to the German Basic Documentation (BADO). Other psychiatric services in the catchment area of the districts Ravensburg and Bodenseekreis such as services of sheltered living, residential homes and vocational services collect identical data per day of use. Aim of the study is to compare routinely recorded data of mental health service use and direct cost of service use with sample data. We compared analyses of mental health service use and direct cost of service use with routinely recorded data with analyses using sample data.Concerning the year 2008, we joined these different data sets, processing them in order to obtain pseudonymity and fulfil data protection requirements. This joint data set maps the total expenditures for psychiatric care utilisation in this region.Using a data set of this kind, analyses of health economy are possible which are comparable or even superior to those from sample data.Routinely recorded data are a cost-saving alternative to sample data.

Due to growing numbers of older care dependant persons shared-housing arrangements (SHA) were developed as a new approach, especially for those elderly People suffering from dementia. The involvement of family members and volunteers is a core component of the SHA concept. Besides the active involvement in meaningful activities, relatives also often act as legal representatives. Empirical data concerning how frequently family members and volunteers are involved as well as the tasks they pursue is lacking. The aim of the study is to describe and evaluate the involvement of family members and volunteers in SHA. Special Care Units (SCU) are observed in comparison. In january 2009, all identified SHA and SCU in the city of Berlin were included in a cross-sectional survey as part of the DeWeGE-study. The DeWeGE-study was the first one on SHA in the city of Berlin. Data was collected using a written, standardised questionnaire. We collected data related to the frequency and tasks of family members and volunteer involvement as well as to the residents characteristics. 963 residents of 105 SHA and 17 SCU were included. More persons suffer from dementia in SCU than in SHA. SHA offer events to inform relatives and volunteers about their possible involvement less often than SCU. Family members are involved in meaningful activities in around 50 percent of all SHA and SCU. The proportion of family members who are present in the unit at least once per week is significantly higher in SCU than in SHA. No statistically significant difference between SHA and SCU is found regarding the involvement of volunteers. In SHA, legal representatives are more often paid professionals than in SCU. The real involvement of family members and volunteers in SHA does not reflect the conceptual propositions of this care arrangement.

The aim of this study was to explore the connection between the nature of agitated behaviour and meaningful biographical experiences within two types of dementia in a moderate stadium. The two dementia types included Alzheimer Disease (SDAT) and Multi-infarction aphrenia (MID). Biographical narrative interviews with 26 nursing home residents suffering from dementia have been concluded. Topics were their first thirty years of life (based on a foreign anamnesis). The challenging behaviour has been observed systematically in nursing situations. The data has been evaluated with the comparative casuistics method (Jüttemann, 1990). The behaviour has been measured with the CMAI-scale before and also after having moved to a nursing home. Residents behaviour patterns can be divided into three biographical central characters: Life as finding, life as emotional disorder and life as struggle. Institutional characteristics: Loss of near rhythms of life, losing control over the personal area, experience of social isolation and certain characteristics from nurses: staff detractions and the exercise of nursing actions which appears threats contribute to the phenomena. A disparity is shown between the types of dementia in terms of patterns of demonstrated behaviour. In addition gender differences could be shown. The recognition of the phenomena by means of the CMAI-scale elucidate that the phenomena appears for the first time or is stronger after the resettlement to a nursing home. These findings can improve nurses' understanding of the phenomena within long-term care.

In this observational study indicators for the quality of psychiatric care in a psychiatric hostel will be examined for all residents over a period of 7 years.Data has been collected at an annual basis. Relationships among variables have been analysed by means of random effects regression analyses for longitudinal data.GAF score increases slightly. Number of psychopharmacological drugs and neuroleptics as well as inpatient costs remains stable. Psychiatric treatment costs are negatively related to the functional level, residents' age and the duration of stay in the residential facility. Even under control of several variables, variance of total costs was found to be mainly explained by the costs of inpatient and psychopharmacological treatment.Increase of the general functional level indicates a positive development of autonomy. Changes and the influence factors of psychopharmacological treatment may indicate a need-oriented drug therapy. Some findings may indicate an institutionalisation process and an increasing of medical conditions in chronically mentally ill people.

Shared-Housing Arrangements (SHA) for care-dependent older persons gain increasing importance as a setting for nursing care in Germany, both in terms of numbers and user preference. This article aims to answer the questions in which phases SHA have developed over time, what the initiator's objectives are, and what factors contributed to SHA proliferation. A systematic review of the literature was conducted that finally included 73 articles. As a result it can be demonstrated that SHA started from "individual user initiatives", became "developing novel services" and finally established themselves as "regular services" in the nursing setting. A typology of different models of SHA can be organised along two dimensions: Firstly the temporal dimension of care organisation and secondly the way care services are purchased. Objectives formulated by the initiators of SHA are: Establishment of a family - like environment, inclusion of relatives, community orientation, security of care provision and maintenance of self-determination. Tailor-made financial and legal regulations supported the spread of SHAs. In reflection of the available literature it becomes evident that no satisfactory consensus on those elements exist that are constitutive for SHAs. Furthermore, there is a dearth of research on whether postulated objectives and other health related goals are actually being met in SHAs. Open questions pertain also the level of self-determination achieved in practice and other outcomes attained.

The Trialog project offers patients with early-onset schizophrenia (EOS) a two-year programme of residential outpatient care following discharge from a clinic. The programme aims to support their further recovery and independence and encompasses interactive and psycho-educational multifamily care, coping with persistent symptoms, development of socio-emotional competence, independent house keeping, and support of school and vocational training.To evaluate psychopathology along with social and neuropsychological function for 12 participants over a period of 2 years. Their progress was compared with that of 12 EOS patients who did not attend Trialog following discharge.Participants showed a significantly greater decrease of positive and negative symptoms, as opposed to an increase in positive symptoms in the comparison group. Measures of social function, neuropsychological indicators of memory, (selective) attention, and psychomotor speed improved more than in the comparison subjects. Neither group showed changes in measures of intelligence or in the subjective quality of life.First analyses raise hope that monitoring participant performance in the programme of the "Trialog project" will improve the treatment and care of EOS-patients in the critical first years following the onset of schizophrenia.

Community based housing for people with dementia is gaining importance. In co-operation between the people concerned, their relatives, professionals and volunteers, person-centred care, nursing and guidance can be realised within small units. Questions regarding end of life, dying, grief and the role of palliative care form the basis of the exploratory qualitative study presented here. Coping with end of life, ethical decisions and the relevance of hospice and palliative care in the field are highlighted. The results of the study show that "shared flats for people with dementia" are good places for death and dying. Close relationships, good communication with relatives and highly motivated professionals can be regarded as powerful resources. So far only few co-operations between hospice and palliative care exist. Areas of improvement encompass clinical issues and coping with bereavement.

In the end of the deinstitutionalization of "old-long-term" hospitalised patients, restrictive psychiatric homes were created on the grounds of psychiatric hospitals exclusively to take in the remaining "difficult-to-place" patients. However, new chronic mentally ill persons have been accumulating in these institutions since then. This study analyses the characteristics of the "new long-stay" population.Interviews with all patients and their caring staff in eight hospital-hostels in one German federal state.Characteristics and reasons for admission as well as for previous exclusion from the established community care were found in a marked requirement for control and surveillance as well as need for help and high dependence in everyday life, markedly dissocial behaviour and low social functioning.Despite there are promising opportunities specific programs that are effective to prevent a subgroup of chronic mentally ill persons from inappropriate re-institutionalisation, exclusion or forensic psychiatry are not yet sufficiently provided by general psychiatric services.

In the last decades, long-time patients were systematically discharged from psychiatric hospitals in order to integrate this disadvantaged population into the community. This procedures where adequately evaluated and are regarded to be completed in the western world today. However, few evidence has been presented regarding the further course of integration following discharge from mental hospitals: was integration into community really successful or were patients permanently placed in sheltered housing staffed 24 hours 7 days a week. This review focuses on the question whether papers describing large de-institutionalisation projects mention the level of institutional support in the years following discharge from hospital. Furthermore we tried to find out which parameters are dealt with when describing successful community integration."Pubmed" was searched for studies on de-institutionalisation projects published between 1997 and 2007.The discharge from the mental hospital wards was in all studies described as successful, positive effects like an increased quality of life were found. However, studies describing the years following discharge mentioned that patients continuously stayed in sheltered housing with care offered 24 hours a day.Reviewing the available data about the level of support regarding accommodation of former long time patients, the danger of "trans-institutionalisation" has to be pointed out. Evidence is lacking concerning support models tailored to the individual needs of the patients. Similarly, possible side effects of long-term stays in sheltered housing staffed 24 hours a day have not yet been established. Therefore, we see a need for further evaluation of different models of supported housing for former long-term hospitalised patients, as well as for new chronic mentally ill patients.

Because only few data are available, inpatient care of patients with mental retardation was evaluated to get a valid data base concerning quality and quantity of care and to reveal their deficits.All patients with first admission to a psychiatric hospital between 1996 and 2002 were included in te cohort study (n=9727). The analyses were based on the psychiatric basis documentation system (DGPPN-BADO). 192 patients (2%) had the diagnosis of a mental retardation according to ICD-10.62% of patients suffered from a mild (F70), 26% from a moderate (F71) and 9% from a severe mental retardation (F72). The most frequent comorbid disorders were disruptive behaviour disorders, adjustment disorders, alcohol-related disorders, Schizophrenia and mood disorders. Mean length of stay was 34.8 days, rate of rehospitalisation within one year was 0.3. GAF improved on 11.8, CGI (improvement scale) was 3.4. Some predictors for these outcome criteria could be revealed.The data allow a depth insight into inpatient care of patients with mental retardation. They deliver important clues for quality improvement in psychiatric hospital and for collaboration with outpatient services.

Isolation and tranquillization are often said to be the main concerns of psychiatric nursing homes. However, little is known about nowadays daily practice. The aim of our study was to investigate the present mode of psychopharmacological treatment in nursing homes serviced by our psychiatric ambulance. For that purpose, a standardized questionnaire was applied. There was slight trend in favour of atypical antipsychotics (49 %) as opposed to conventional neuroleptics (46 %). In 18 % of the patients, a combination of both atypical and conventional antipsychotics was administered, while only in 5% two or more conventional neuroleptics were given at the same time. Taken together, we could assure a modern psychopharmacotherapy trying to optimize the individual level of cognitive and psychosocial functioning.

The study assessed the individual quality of life of people with schizophrenia who live in the supported group homes. Forty residents in seven group homes were interviewed using The Schedule for the Evaluation of Individual Quality of Life: A Direct Weighting Procedure Instrument (SEIQoL-DW). The SEIQoL-DW assesses the individualised QoL using semi-structured interview technique. The definition underpinning the SEIQoL-DW is that a person's QoL is what he or she determines it to be. The respondents defined the areas that are important to them, rated their current situation on each LQ-area as well as the relative importance of each area by using visual analogue scale (VAS 0-100). The mean QoL score was 64.71 (SD 19.05, range 6.81-93.49). A total of 18 QoL areas were formed of 200 individually nominated cues. The areas most frequently nominated by respondents were "human relations", "social life", "work", "leisure time", "finances and other material desires", "quality of living space", "autonomy" and "health". It showed clearly that nominated QoL-areas had for each respondent individual meaning as well as individual importance in his or her life. A positive correlation was found between length of stay in supported home and global quality of life. In addition, the respondents who had lived in supported home for a longer period rated their current situation higher with respect to autonomy, work and finding the meaning of life than respondents with shorter duration of stay. The individual nature of QoL was reflected in differences in QoL-areas defined, differences in levels of satisfaction, and differences in the relative importance of each LQ-area to individuals. The measures were generally acceptable, with all respondents showing great interest and being able of completing the SEIQoL-DW. This study showed also that instruments such as the SEIQoL-DW might have a therapeutic application for people with psychiatric disorders.

In Upper Austria, a total of 409 long-stay patients were discharged to various residential facilities between 1995 and 2000. This paper describes psychopathology and sociodemographic characteristics.A random sample of 116 former long-stay patients were followed for an average 42.9 months after discharge.Patients had spent an average 19.3 years in psychiatric wards. 47 patients (40.5 %) were placed in nursing homes, 16 patients (13.8 %) in old-age homes, 32 patients (27.6 %) in other institutions and only 15 patients (12.9 %) in group homes, and 6 patients (5.2 %) with families. ICD-10 diagnosis was schizophrenia in 56 patients (48.3 %) and mental retardation in 33 patients (28.4 %). Level of social and functional disabilities was high.Most long-stay patients were able to live outside psychiatric hospitals, but institutional care still plays an essential role.

This report is based upon a model project financially assisted by a grant from the German Federal Ministry for Families, Senior Citizens, Women and Youth, starting in 1999 and ending at the end of 2003. In cooperation with two disability care residential institutions, a conceptual approach and method to the questions of sexual self-determination and sexualized violence is being developed. Through qualitative methods of research e.g. focus groups, professional helpers of all hierarchies of the institution, including management, and the residents themselves, all had the chance to contribute their own opinions and experiences to the research topic. Specifically, to ensure their voice was heard, the people with mental retardation had an important impact on the questionnaire themselves. All aspects of sexuality were discussed--with notable difficulty arising in particular over the subject of sexual violence. It turned out that nonverbal communication and the interaction between the group members in the residents group were most indicative of their concerns. The staff at the nursing and living areas discussed the following topics: distance and closeness in the interaction between staff and residents, standards, reflections of their own professional attitudes, questions of legality as well as the tense topic of individual needs and tasks of the group. How those questioned described their solutions and ways of coping, and the impressions of the researchers forms the starting point for the compiled work. The initial ideas for the topics and the design of the concept are now laid out.

In Linz, capital of the province of Upper Austria, there is a considerable shortage of supported housing. Yet the rate of places available reaches 0.9/1000 inhabitants, thus already exceeding the recommended number.A comprehensive investigation was started concerning all persons living in supported housing facilities. Services for psychiatric patients (n = 190) were included as well as services for homeless persons (n = 159).Only 41 % of the psychiatric patients and 31 % of the homeless people actually belonged into the region. Also among those who have been living less than one year in the facility, 45 % of the psychiatric and 67 % of the homeless persons come from outside, thus indicating, that the migration of patients is still going on. Among the homeless 69 % were mentally ill. While in the psychiatric services schizophrenic and affective psychoses were predominant, addictive disorders prevailed in the services for the homeless.It is the aim of mental health services in Upper Austria to care for the patients within their home regions. All regions are providing a fair amount of places for supported housing. Despite this a considerable number of patients keeps coming to the provincial capital. The causes and consequences of this process are discussed.

In part IV of the Berlin Deinstitutionalisation Study, we reported a positive change in quality of life for 65 resettled patients one year after discharge. In this part, we investigated changes in a longer follow-up period.A group of 66 patients discharged into supported housing was assessed one and five years after baseline. Quality of life, needs for care, patients' assessment of treatment, re-hospitalisation and characteristics of care were studied in a control-group design.After five years, 61 % of the patients continued to live in highly staffed settings (mean staff-patient-ratio: 1 : 3.5). Eleven percent had moved on to independent living and 16 % had returned into an institutional setting. Standard mortality ratios were 4.4 (all causes of death) and 62.5 (2 suicides only of schizophrenic patients). After one year patients (n = 20) showed a significant increase in satisfaction with their living situation and more social contacts. Over the longer period of time, there were also favourable changes, which failed to reach statistical significance (n = 24). Average length of inpatient stay per year of the illness was decreased significantly at both follow-ups.Interpretation of the findings is difficult because of the small sample size and selection effects. Most of the former long-stay patients appear able to live in the community with a significant decrease of time spent in hospital. Whilst patients were particularly satisfied with their accommodation at one year follow-up, this did not lead to a generalised improvement in subjective quality of life and other subjective criteria in the long term. In line with other recent studies on community mental health care one may conclude that small case loads alone do not have major beneficial effects. Further research should evaluate more systematic and targeted models of mental health care in the community in general and of supported housing in particular.

The aim of the study is the evaluation of essential characteristics of patients who entered the sheltered group homes of the Psychosozialen Dienst (PSD) in the city of Vienna after the establishment of sectorized psychiatric out-patient care facilities.Eighty patients who lived in these group homes on the first key day, June 30th 1993, were investigated. Any change in their living situation and rate of hospitalization was ascertained at follow-up, 3.5 years after the first key day.The patients had an average period of hospitalization of 240.5 days per year before entry to a group home, which decreased to 12.4 days per year after entry to a sheltered group home. At follow-up more than half of all patients (65%) were still able to live in the community successfully. The number and the length of hospitalizations between the first key day and the follow-up were lowest for patients who had moved to private homes.Sheltered group homes play an essential role in the process of rehabilitation towards independent living within the community. The results demonstrate that rehabilitation in private apartments can be possible even after 5.7 years of residence in sheltered group homes.