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ABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family’s knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.

Hospitalization has its benefits when treating sick children, but it can also cause negative impacts. Although it is essential and beneficial to the child, parental presence in the hospital ward destabilizes the family routine and generates new needs. The objective of this study was to search for evidence in the literature and identify, gather, and synthetize the knowledge that has been produced about the needs of parents of hospitalized children via an integrative literature review. The article search was conducted in the PubMed, CINAHL, PsycINFO, Scopus, Web of Science, and LILACS databases between 2002 and 2014 and resulted in 17 articles that met the established criteria. The parental needs found in these studies were grouped into three categories: the needs related to parents themselves, needs related to the health team’s actions, and those related to organizational structure and resources. These needs were intimately interconnected, which means that accessing, assessing, and satisfying them must occur simultaneously, thus providing quality care to children and their families.

OBJECTIVE: to present the cultural adaptation of the questionnaire Costs of caring for children with cancer, offering a valid and reliable tool to assess the economic repercussions of childhood cancer for Brazilian families.METHOD: it is a methodological research with a cross-sectional design. The methodological framework to validate the questionnaire was a combined process that included seven steps: translation to Portuguese; first translated consensus version; evaluation by Expert Committee; consensus on the Expert Committee version; back-translation; consensus of back-translated versions; semantic validation. The study was conducted in two phases: phase one was the translation and back-translations process, with five expert committee members. Phase two was the semantic validation, with 24 participants, who answered an instrument about their impressions of the questionnaire and suggested modifications.RESULTS: in phase one, items were included, excluded, and replaced to make the content equivalent and valid for use with Brazilian context. In phase two, the majority of the participants were mothers, who made suggestions about the relevance and clarity of the items in the questionnaire.CONCLUSIONS: the authors discussed these recommendations and made adaptations, turning the questionnaire into a valid and reliable tool for application.

This study characterizes hospitalizations of children and adolescents with cancer, from 1998 to 2008, to describe the clientele in follow-up in the Regional Health Area of Ribeirão Preto, SP, Brazil. Morbidity was surveyed in Ribeirão Preto, SP, Brazil, using hospitalization data from the Unified Health System. The studied variables included: origin, residence, year when care was provided, deaths, age and gender of patients diagnosed with child and adolescent cancer according to the International Classification of Disease 10th edition, Chapter II. The results indicated 7,234 hospitalizations of individuals younger than 18 years old diagnosed with neoplasm, 95% of which were from Ribeirão Preto, SP, Brazil, and the remainder from cities located in all five of the Brazilian regions. Identifying the characteristics of patients contributes to the identification of information to broaden the sensitization of health professionals concerning the need for secondary preventive actions, such as early diagnosis.Este estudio tuvo por objetivo caracterizar las internaciones hospitalarias de niños y adolescentes con neoplasias, de 1998 a 2008, para conocer la clientela en seguimiento en la Regional de Salud de Ribeirao Preto, Sao Paulo, Brasil. Se realizó un levantamiento de la morbilidad en Ribeirao Preto, utilizando, como fuente de información, las internaciones hospitalarias por el Sistema Único de Salud. Las variables estudiadas fueron: procedencia, residencia, año de la atención, muertes, edad y sexo de los pacientes con diagnóstico de neoplasia infanto-juvenil, según el Capítulo II de la Clasificación Internacional de Enfermedades 10ª edición. Se constataron 7.234 internaciones de menores de 18 años con diagnóstico de neoplasias, de estas, 95% ocurrieron en Ribeirao Preto y las otras en municipios de procedencia pertenecientes a las cinco regiones del país. Conocer las características de la clientela atendida contribuye para identificar informaciones que pueden ampliar el proceso de sensibilización de los profesionales de salud para la necesidad de realizar acciones de prevención secundaria, como el diagnóstico precoz.Este estudo objetivou caracterizar as internações hospitalares de crianças e adolescentes com neoplasias, ocorridas de 1998 a 2008, para conhecer a clientela em seguimento na Regional de Saúde de Ribeirão Preto, SP, Brasil. Realizou-se levantamento da morbidade nesse município, utilizando-se, como fonte de informação, as internações hospitalares pelo Sistema Único de Saúde. As variáveis estudadas foram: procedência, residência, ano do atendimento, óbitos, idade e sexo dos pacientes com diagnóstico de neoplasia infantojuvenil, segundo o Capítulo II da Classificação Internacional de Doenças, 10ª edição. Evidenciaram-se 7.234 internações de menores de 18 anos com diagnóstico de neoplasias; dessas, 95% eram de Ribeirão Preto, SP, Brasil, e o restante procedentes de municípios das cinco regiões do país. Conhecer as características da clientela atendida contribui para a identificação de informações que podem ampliar o processo de sensibilização dos profissionais de saúde, para a necessidade de ações de prevenção secundária, como o diagnóstico precoce.