1. A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism
- Author
-
Ellen Bishop, Anne Wheeler, Amanda Wylie, Melissa Raspa, Donald B. Bailey, and Vitor Franco
- Subjects
Adult ,Male ,030506 rehabilitation ,Activities of daily living ,Adolescent ,education ,Psychological intervention ,Transportation ,Comorbidity ,behavioral disciplines and activities ,Developmental psychology ,03 medical and health sciences ,Survey methodology ,Young Adult ,Intellectual disability ,Academic Performance ,Activities of Daily Living ,Adaptation, Psychological ,Developmental and Educational Psychology ,medicine ,Humans ,0501 psychology and cognitive sciences ,Cooking ,Autistic Disorder ,Child ,Daily living skills ,Aged ,Laundering ,05 social sciences ,Hygiene ,Middle Aged ,medicine.disease ,Fragile X syndrome ,Clinical Psychology ,Household Work ,Cross-Sectional Studies ,Reading ,Case-Control Studies ,Child, Preschool ,Fragile X Syndrome ,Respondent ,Functional academic skills ,Autism ,Safety ,0305 other medical science ,Psychology ,Independent living ,050104 developmental & child psychology - Abstract
Background Adaptive behaviors, such as functional academic and daily living skills, are critical for independence in adults with intellectual and developmental disabilities. However, little is known about these skills in fragile X syndrome (FXS), the most common form of inherited intellectual disability. Aims The purposes of this study were to describe the functional academic and daily living skills of males diagnosed with FXS across different age groups and compare skill attainment by autism status and other common co-occurring conditions. Methods and procedures We used survey methods to assess parent-reported functional academic and daily living skills in 534 males with FXS. Functional academic skills included time and schedules, money, math, reading, and writing skills. Daily living skills included hygiene, cooking, laundry and housekeeping, transportation, and safety skills. Outcomes and results Analyses examined functional academic and daily living skills in a cross-sectional sample of males between ages 5 and 67. Differences in skill attainment were found by child age, co-morbid autism status, total number of co-occurring conditions, and respondent education. Functional academic and daily living skills were predictive of community employment and independent living. Conclusions and implications These data provide important information on the mastery of both foundational and more complex adaptive skills in males with FXS. Both functional academic and daily living skills were predictive of measures of independence above and beyond other child and family characteristics. These findings point to the need to focus interventions to support the attainment of independence in males with FXS.
- Published
- 2018