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Almost everyone who works in healthcare aims to create person-centered care. That is care which is accustomed to the needs and questions of the network that has to deal with a disease. But, in our day to day practices, it is hard to take time for reflection on what actually is the ‘person-centeredness’ in the care that we provide. This project aims to ‘see’ person-centered care, to ‘catch’ the person’s behind the person with Parkinson's and their care professional, and to capture the ‘essence’ of their relationship. Next to more conventional qualitative methods, we used an innovative approach: we worked together with an artist. A photographer. Whether we indeed ‘caught’ person-centered care, we leave to the viewer. In any case, our approach yielded a powerful combination of intimate words (quotes) and imagery (portraits) that describes and ascribes key elements of person-centered care: touch, diagnostics, support, activation, time, self-image, and so on. Next to academic output in the form of a book, and two papers, the unique combination of narratives and photographs is now also used in the education of care professionals and university students.

Additional File 1: Studies to implement guidelines at hospitals. The reviewed studies are listed with details on type of study, setting, target, number of patientes, intervention strategies and post study percentages on the primary outcome measure. (DOC 133 KB)