90 results on '"Margaret V. McDonald"'
Search Results
2. Measuring Palliative Care-Related Knowledge, Attitudes, and Confidence in Home Health Care Clinicians, Patients, and Caregivers: A Systematic Review
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Komal Patel Murali, Jung A. Kang, David Bronstein, Margaret V. McDonald, Lori King, Ashley M. Chastain, and Jingjing Shang
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Adult ,Health Knowledge, Attitudes, Practice ,Anesthesiology and Pain Medicine ,Caregivers ,Palliative Care ,Quality of Life ,Humans ,General Medicine ,Home Care Services ,General Nursing - Abstract
biBackground:/i/bIntegrating palliative care services in the home health care (HHC) setting is an important strategy to provide care for seriously ill adults and improve symptom burden, quality of life, and caregiver burden. Routine palliative care in HHC is only possible if clinicians who provide this care are prepared and patients and caregivers are well equipped with the knowledge to receive this care. A key first step in integrating palliative care services within HHC is to measure preparedness of clinicians and readiness of patients and caregivers to receive it.biObjective:/i/bThe objective of this systematic review was to review existing literature related to the measurement of palliative care-related knowledge, attitudes, and confidence among HHC clinicians, patients, and caregivers.biMethods:/i/bWe searched PubMed, CINAHL, Web of Science, and Cochrane for relevant articles between 2000 and 2021. Articles were included in the final analysis if they (1) reported specifically on palliative care knowledge, attitudes, or confidence, (2) presented measurement tools, instruments, scales, or questionnaires, (3) were conducted in the HHC setting, (4) and included HHC clinicians, patients, or caregivers.biResults:/i/bSeventeen articles were included. While knowledge, attitudes, and confidence have been studied in HHC clinicians, patients, and caregivers, results varied significantly across countries and health care systems. No study captured knowledge, attitudes, and confidence of the full HHC workforce; notably, home health aides were not included in the studies.biConclusion:/i/bExisting instruments did not comprehensively contain elements of the eight domains of palliative care outlined by the National Consensus Project (NCP) for Quality Palliative Care. A comprehensive psychometrically tested instrument to measure palliative care-related knowledge, attitudes, and confidence in the HHC setting is needed.
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- 2023
3. The identification of clusters of risk factors and their association with hospitalizations or emergency department visits in home health care
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Jiyoun Song, Sena Chae, Kathryn H. Bowles, Margaret V. McDonald, Yolanda Barrón, Kenrick Cato, Sarah Collins Rossetti, Mollie Hobensack, Sridevi Sridharan, Lauren Evans, Anahita Davoudi, and Maxim Topaz
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Article ,General Nursing - Abstract
AIMS: To identify clusters of risk factors in home health care and determine if the clusters are associated with hospitalizations or emergency department visits. DESIGN: A retrospective cohort study. METHODS: This study included 61,454 patients pertaining to 79,079 episodes receiving home health care between 2015 and 2017 from one of the largest home health care organizations in the United States. Potential risk factors were extracted from structured data and unstructured clinical notes analysed by natural language processing. A K-means cluster analysis was conducted. Kaplan–Meier analysis was conducted to identify the association between clusters and hospitalizations or emergency department visits during home health care. RESULTS: A total of 11.6% of home health episodes resulted in hospitalizations or emergency department visits. Risk factors formed three clusters. Cluster 1 is characterized by a combination of risk factors related to “impaired physical comfort with pain,” defined as situations where patients may experience increased pain. Cluster 2 is characterized by “high comorbidity burden” defined as multiple comorbidities or other risks for hospitalization (e.g., prior falls). Cluster 3 is characterized by “impaired cognitive/psychological and skin integrity” including dementia or skin ulcer. Compared to Cluster 1, the risk of hospitalizations or emergency department visits increased by 1.95 times for Cluster 2 and by 2.12 times for Cluster 3 (all p < .001). CONCLUSION: Risk factors were clustered into three types describing distinct characteristics for hospitalizations or emergency department visits. Different combinations of risk factors affected the likelihood of these negative outcomes. IMPACT: Cluster-based risk prediction models could be integrated into early warning systems to identify patients at risk for hospitalizations or emergency department visits leading to more timely, patient-centred care, ultimately preventing these events. PATIENT OR PUBLIC CONTRIBUTION: There was no involvement of patients in developing the research question, determining the outcome measures, or implementing the study.
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- 2022
4. A Qualitative Study of Home Health Aides’ Perspectives towards COVID-19 Vaccination
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David Russell, Nicole Onorato, Alexis Stern, Sasha Vergez, Mia Oberlink, Matthew Luebke, Penny H. Feldman, Margaret V. McDonald, and Madeline R. Sterling
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Geriatrics and Gerontology ,Gerontology - Abstract
Home health aides provide care to homebound older adults and those with chronic conditions. Aides were less likely to receive COVID-19 vaccines when they became available. We examined aides’ perspectives towards COVID-19 vaccination. Qualitative interviews were conducted with 56 home health aides at a large not-for-profit home care agency in New York City. Results suggested that aides’ vaccination decisions were shaped by (1) information sources, beliefs, their health, and experiences providing care during COVID-19; (2) perceived susceptibility and severity of COVID-19; (3) perceived benefits of vaccination including protection from COVID-19, respect from colleagues and patients, and fulfillment of work-related requirements; (4) perceived barriers to vaccination including concerns about safety, efficacy, and side effects; and (5) cues to action including access to vaccination sites/appointments, vaccination mandates, question and answer sessions from trusted sources, and testimonials. Providing tailored information with support to address vaccination barriers could lead to improved vaccine uptake.
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- 2022
5. Factors associated with poor self-management documented in home health care narrative notes for patients with heart failure
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Sena Chae, Jiyoun Song, Marietta Ojo, Kathryn H. Bowles, Margaret V. McDonald, Yolanda Barrón, Mollie Hobensack, Erin Kennedy, Sridevi Sridharan, Lauren Evans, and Maxim Topaz
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Heart Failure ,Pulmonary and Respiratory Medicine ,Self-Management ,Electronic Health Records ,Humans ,Cardiology and Cardiovascular Medicine ,Critical Care and Intensive Care Medicine ,Home Care Services ,Natural Language Processing - Abstract
Patients with heart failure (HF) who actively engage in their own self-management have better outcomes. Extracting data through natural language processing (NLP) holds great promise for identifying patients with or at risk of poor self-management.To identify home health care (HHC) patients with HF who have poor self-management using NLP of narrative notes, and to examine patient factors associated with poor self-management.An NLP algorithm was applied to extract poor self-management documentation using 353,718 HHC narrative notes of 9,710 patients with HF. Sociodemographic and structured clinical data were incorporated into multivariate logistic regression models to identify factors associated with poor self-management.There were 758 (7.8%) patients in this sample identified as having notes with language describing poor HF self-management. Younger age (OR 0.982, 95% CI 0.976-0.987, p .001), longer length of stay in HHC (OR 1.036, 95% CI 1.029- 1.043, p .001), diagnosis of diabetes (OR 1.47, 95% CI 1.3-1.67, p .001) and depression (OR 1.36, 95% CI 1.09-1.68, p .01), impaired decision-making (OR 1.64, 95% CI 1.37-1.95, p .001), smoking (OR 1.7, 95% CI 1.4-2.04, p .001), and shortness of breath with exertion (OR 1.25, 95% CI 1.1-1.42, p .01) were associated with poor self-management.Patients with HF who have poor self-management can be identified from the narrative notes in HHC using novel NLP methods. Meaningful information about the self-management of patients with HF can support HHC clinicians in developing individualized care plans to improve self-management and clinical outcomes.
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- 2022
6. Detecting Language Associated With Home Healthcare Patient's Risk for Hospitalization and Emergency Department Visit
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Jiyoun Song, Marietta Ojo, Kathryn H. Bowles, Margaret V. McDonald, Kenrick Cato, Sarah Collins Rossetti, Victoria Adams, Sena Chae, Mollie Hobensack, Erin Kennedy, Aluem Tark, Min-Jeoung Kang, Kyungmi Woo, Yolanda Barrón, Sridevi Sridharan, and Maxim Topaz
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Hospitalization ,Humans ,Emergency Service, Hospital ,Delivery of Health Care ,Home Care Services ,General Nursing ,Article ,Natural Language Processing - Abstract
BACKGROUND: About one in five patients receiving home health care (HHC) services are hospitalized or visit an emergency department (ED) during a home care episode. Early identification of patients at risk can prevent these negative outcomes. However, risk indicators, including language in clinical notes that indicate a concern about a patient, are often hidden in narrative documentation throughout their HHC episode. OBJECTIVE: To develop an automated natural language processing (NLP) algorithm to identify concerning language indicative of HHC patient risk of hospitalizations or ED visits. METHODS: This study used the Omaha System—a standardized nursing terminology that describes problems/signs/symptoms that can occur in the community setting. First, five HHC experts iteratively reviewed the Omaha System and identified concerning concepts indicative of HHC patient risk of hospitalizations or ED visits. Next, we developed and tested an NLP algorithm to identify these concerning concepts in HHC clinical notes automatically. The resulting NLP algorithm was applied on a large subset of narrative notes (2.3 million notes) documented for 66,317 unique patients (n = 87,966 HHC episodes) admitted to one large HHC agency in the Northeast United States between 2015 and 2017. RESULTS: A total of 160 Omaha System signs/symptoms were identified as concerning concepts for hospitalizations or ED visits in HHC. These signs/symptoms belong to 31 of the 42 available Omaha System problems. Overall, the NLP algorithm showed good performance in identifying concerning concepts in clinical notes. More than 18% of clinical notes were detected as having at least one concerning concept, and more than 90% of HHC episodes included at least one Omaha System problem. The most frequently documented concerning concepts were pain, followed by issues related to neuro-musculoskeletal function, circulation, mental health, and communicable/infectious conditions. CONCLUSION: Our findings suggest that concerning problems or symptoms that could increase the risk of hospitalization or ED visit were frequently documented in narrative clinical notes. NLP can automatically extract information from narrative clinical notes to improve our understanding of care needs in HHC. Next steps are to evaluate which concerning concepts identified in clinical notes predict hospitalization or ED visit.
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- 2023
7. Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study
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Ritchell Dignam, Holly G. Prigerson, Margaret V. McDonald, Natalie Morgan, David Russell, Bilal Chughtai, Michelina D. Stoddard, and Kathryn H. Bowles
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business.industry ,Hospices ,Urinary incontinence ,General Medicine ,Psychiatric Rehabilitation ,Hospice Care ,Urinary Incontinence ,Anesthesiology and Pain Medicine ,Caregivers ,Nursing ,medicine ,Humans ,medicine.symptom ,business ,Psychosocial ,Home Hospice ,Qualitative Research ,Qualitative research - Abstract
Background: Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers. Aim: This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and the strategies that nurses employ to maximize patient and family comfort. Design: Qualitative descriptive study using semi-structured interviews. Setting/participants: Nurses employed at a large not-for-profit hospice agency in New York City. Results: Analyses of 32 interviews revealed three primary themes. First, nurses considered urinary incontinence to be associated with multiple psychosocial issues including embarrassment for patients and caregiver burden. Second, nurses described urinary incontinence as a threat to patient dignity and took steps to preserve their continence function. Third, nurses assisted patients and their families to cope with urinary incontinence through normalization, reframing incontinence as part of the disease process, mobilizing caregiving assistance, and encouraging use of continence supplies such as diapers and liners. Conclusion: Urinary incontinence influences the psychosocial care of patients receiving home hospice and nurses employ strategies to maximize patient and family comfort. Additional research is needed to examine the psychosocial benefits of facilitated discussions with patients and family members about incontinence, provision of caregiving support, and distribution of comprehensive incontinence supplies to patients with fewer resources.
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- 2021
8. Nurse Perspectives on Urinary Incontinence in the Home Hospice Setting
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Kathryn H. Bowles, David Russell, Margaret V. McDonald, Bilal Chughtai, Michelina D. Stoddard, Holly G. Prigerson, and Ritchell Dignam
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Geriatrics ,medicine.medical_specialty ,business.industry ,Qualitative descriptive ,Urinary incontinence ,Context (language use) ,03 medical and health sciences ,0302 clinical medicine ,Anesthesiology and Pain Medicine ,Quality of life (healthcare) ,Nursing ,030220 oncology & carcinogenesis ,Medicine ,030212 general & internal medicine ,Neurology (clinical) ,medicine.symptom ,business ,Adverse effect ,Home Hospice ,General Nursing - Abstract
Context To date, no studies have characterized the impacts of urinary incontinence (UI) at the end of life in the home hospice (HH) setting. UI is highly prevalent at the end of life and adversely affects quality of life. Objectives To characterize HH nurses’ perspectives on UI in HH patients. Methods We conducted a qualitative descriptive study of interviews between HH nurses and the study investigator. Thirty-two interviews with HH nurses were transcribed and analyzed. Nurses were mostly female, college-educated, and had several years of experience in HH nursing. Results We identified findings in four major themes: 1) HH nurses' definition and identification of UI, 2) the absence of formal guidelines for diagnosing UI in HH patients, 3) UI's adverse effect on HH patients and their families, and 4) the lack of standardized guidelines for the management of UI in the HH setting. We found that there was a general lack of clarity on the subtypes of UI and no standardized guidelines for management of UI in the HH setting. Nurses reported that UI was bothersome to HH patients and their caregivers, citing patient discomfort, loss of dignity, and additional labor burden as reasons for this. Management strategies for UI lacked standardization. Conclusion UI is a prevalent and debilitating condition in HH patients. There is a need for studies to further characterize the impacts of UI on HH patients and their caregivers. Formal training on UI subtypes and management is needed to facilitate proper documentation, research, and improve patient outcomes.
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- 2021
9. Infection prevention and control practices in the home environment: Examining enablers and barriers to adherence among home health care nurses
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Dawn Dowding, David S. Russell, Victoria Adams, Marietta Ojo, Margaret V. McDonald, Jingjing Shang, and Jiyoun Song
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Dirty environment ,Epidemiology ,Control (management) ,Nurses ,Article ,03 medical and health sciences ,0302 clinical medicine ,Nursing ,Home health ,parasitic diseases ,Humans ,Medicine ,Infection control ,In patient ,cardiovascular diseases ,030212 general & internal medicine ,Personal Protective Equipment ,Personal protective equipment ,Infection Control ,0303 health sciences ,Home environment ,030306 microbiology ,business.industry ,Health Policy ,Public Health, Environmental and Occupational Health ,Home Care Services ,Infectious Diseases ,Home Care Agency ,business - Abstract
Background Infection Prevention and Control (IPC) practices have been established in home health care. Adherence to IPC practices has been suboptimal with limited available evidence. The study aim was to examine the impact of individual, home environment, and organizational factors on IPC practices using human factors model. Methods Three hundred and fifty-three nurses were surveyed across two large home care agencies to examine the relationship between IPC adherence and individual, home environment, and organizational factors. Results Nurses reported multiple barriers to IPC practices in patients’ homes (mean = 4.34, standard deviation = 2.53). Frequent barriers included clutter (reported by 74.5% of nurses) and a dirty environment (70.3%). Nurses also reported limited availability of some IPC supplies (mean = 7.76, standard deviation = 2.44), including personal protective equipment. Home environment factors were significant barriers, and availability of IPC supplies were significant enablers of IPC adherence. Agency-provided training and decision-making resources were not significant factors for IPC adherence in the presence of home environment barriers and IPC supplies. Conclusions This study findings suggest that IPC adherence strategies point to addressing barriers in the home environment and increasing availability of IPC supplies. The relationship between the patient's home environment, organizational factors, and IPC practices among home health care nurses warrants further study.
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- 2021
10. Surviving COVID-19 After Hospital Discharge: Symptom, Functional, and Adverse Outcomes of Home Health Recipients
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Melissa O'Connor, Kathryn H. Bowles, Margaret V. McDonald, Erin Kennedy, Mark E. Mikkelsen, and Yolanda Barrón
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Male ,medicine.medical_specialty ,Patient Readmission ,01 natural sciences ,03 medical and health sciences ,0302 clinical medicine ,Risk Factors ,Internal medicine ,Diabetes mellitus ,Outcome Assessment, Health Care ,Internal Medicine ,medicine ,Humans ,030212 general & internal medicine ,0101 mathematics ,Adverse effect ,Original Research ,Aged ,Proportional Hazards Models ,Retrospective Studies ,Aged, 80 and over ,SARS-CoV-2 ,business.industry ,Proportional hazards model ,010102 general mathematics ,Hazard ratio ,Age Factors ,COVID-19 ,Retrospective cohort study ,General Medicine ,Emergency department ,Middle Aged ,medicine.disease ,Home Care Services ,Patient Discharge ,Treatment Outcome ,Heart failure ,Cohort ,Female ,New York City ,business - Abstract
Information does not yet exist on the characteristics and outcomes of patients hospitalized with coronavirus disease 2019 (COVID-19) who are discharged to the home setting. Using rich data from home health care (HHC), the authors describe characteristics of COVID-19 survivors upon admission to HHC, the home visits they received, and the extent of recovery among those discharged from HHC. They also profile the risk factors associated with rehospitalization and death., Background: Little is known about recovery from coronavirus disease 2019 (COVID-19) after hospital discharge. Objective: To describe the home health recovery of patients with COVID-19 and risk factors associated with rehospitalization or death. Design: Retrospective observational cohort. Setting: New York City. Participants: 1409 patients with COVID-19 admitted to home health care (HHC) between 1 April and 15 June 2020 after hospitalization. Measurements: Covariates and outcomes were obtained from the mandated OASIS (Outcome and Assessment Information Set). Cox proportional hazard models were used to estimate the hazard ratio (HR) of risk factors associated with rehospitalization or death. Results: After an average of 32 days in HHC, 94% of patients were discharged and most achieved statistically significant improvements in symptoms and function. Activity-of-daily-living dependencies decreased from an average of 6 (95% CI, 5.9 to 6.1) to 1.2 (CI, 1.1 to 1.3). Risk for rehospitalization or death was higher for male patients (HR, 1.45 [CI, 1.04 to 2.03]); White patients (HR, 1.74 [CI, 1.22 to 2.47]); and patients with heart failure (HR, 2.12 [CI, 1.41 to 3.19]), diabetes with complications (HR, 1.71 [CI, 1.17 to 2.52]), 2 or more emergency department visits in the past 6 months (HR, 1.78 [CI, 1.21 to 2.62]), pain daily or all the time (HR, 1.46 [CI, 1.05 to 2.05]), cognitive impairment (HR, 1.49 [CI, 1.04 to 2.13]), or functional dependencies (HR, 1.09 [CI, 1.00 to 1.20]). Eleven patients (1%) died, 137 (10%) were rehospitalized, and 23 (2%) remain on service. Limitations: Care was provided by 1 home health agency. Information on rehospitalization and death after HHC discharge is not available. Conclusion: Symptom burden and functional dependence were common at the time of HHC admission but improved for most patients. Comorbid conditions of heart failure and diabetes, as well as characteristics present at admission, identified patients at greatest risk for an adverse event. Primary Funding Source: No direct funding.
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- 2021
11. Development and Testing of the Palliative Care-Related Knowledge, Attitudes, & Confidence (PC-KAC) Questionnaires for Home Healthcare Clinicians, Patients, and Caregivers in the United States. (Sch423)
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Ashley M. Chastain, Margaret V. McDonald, Komal P. Murali, Jung A. Kang, Lori King, Charity Ogunlusi, and Jingjing Shang
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Anesthesiology and Pain Medicine ,Neurology (clinical) ,General Nursing - Published
- 2023
12. Individual, social, and environmental factors for infection risk among home healthcare patients: A multi‐method study
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Marietta Ojo, Margaret V. McDonald, Marygrace Trifilio, Dawn Dowding, David Russell, Jingjing Shang, Jiyoun Song, Eun K. Perry, and Victoria Adams
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Infection risk ,medicine.medical_specialty ,observation ,Sociology and Political Science ,media_common.quotation_subject ,Psychological intervention ,Article ,03 medical and health sciences ,0302 clinical medicine ,nursing ,Hygiene ,Health care ,medicine ,Humans ,Infection control ,030212 general & internal medicine ,media_common ,Receipt ,Home environment ,business.industry ,030503 health policy & services ,Health Policy ,Public Health, Environmental and Occupational Health ,home environment ,Home Care Services ,infection ,Hospitalization ,home healthcare ,Family medicine ,qualitative ,Multi method ,0305 other medical science ,business ,Delivery of Health Care ,Social Sciences (miscellaneous) - Abstract
There has been limited research into the individual, social, and environmental factors for infection risk among patients in the home healthcare (HHC) setting, where the infection is a leading cause of hospitalisation. The aims of this study were to (1) explore nurse perceptions of individual, social, and environmental factors for infection risk among HHC patients; and (2) identify the frequency of environmental barriers to infection prevention and control in HHC. Data were collected in 2017-2018 and included qualitative interviews with HHC nurses (n = 50) and structured observations of nurse visits to patients' homes (n = 400). Thematic analyses of interviews with nurses suggested they perceived infection risk among patients as being influenced by knowledge of and attitudes towards infection prevention and engagement in hygiene practices, receipt of support from informal caregivers and nurse interventions aimed at cultivating infection control knowledge and practices, and the home environment. Statistical analyses of observation checklists revealed nurses encountered an average of 1.7 environmental barriers upon each home visit. Frequent environmental barriers observed during visits to HHC patients included clutter (39.5%), poor lighting (38.8%), dirtiness (28.5%), and pets (17.2%). Additional research is needed to clarify inter-relationships among these factors and identify strategies for addressing each as part of a comprehensive infection control program in HHC.
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- 2021
13. 'A catalyst for action': Factors for implementing clinical risk prediction models of infection in home care settings
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Carlin Brickner, Jingjing Shang, Jiyoun Song, Marygrace Trifilio, Dawn Dowding, Margaret V. McDonald, and David Russell
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Operationalization ,Psychological intervention ,Health Informatics ,Context (language use) ,Nurses, Community Health ,Infections ,Research and Applications ,Home Care Services ,Risk Assessment ,Decision Support Techniques ,Workflow ,Nursing ,Risk Factors ,Intervention (counseling) ,Humans ,Infection control ,Thematic analysis ,Psychology ,Qualitative research - Abstract
Objective The study sought to outline how a clinical risk prediction model for identifying patients at risk of infection is perceived by home care nurses, and to inform how the output of the model could be integrated into a clinical workflow. Materials and Methods This was a qualitative study using semi-structured interviews with 50 home care nurses. Interviews explored nurses’ perceptions of clinical risk prediction models, their experiences using them in practice, and what elements are important for the implementation of a clinical risk prediction model focusing on infection. Interviews were audio-taped and transcribed, with data evaluated using thematic analysis. Results Two themes were derived from the data: (1) informing nursing practice, which outlined how a clinical risk prediction model could inform nurse clinical judgment and be used to modify their care plan interventions, and (2) operationalizing the score, which summarized how the clinical risk prediction model could be incorporated in home care settings. Discussion The findings indicate that home care nurses would find a clinical risk prediction model for infection useful, as long as it provided both context around the reasons why a patient was deemed to be at high risk and provided some guidance for action. Conclusions It is important to evaluate the potential feasibility and acceptability of a clinical risk prediction model, to inform the intervention design and implementation strategy. The results of this study can provide guidance for the development of the clinical risk prediction tool as an intervention for integration in home care settings.
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- 2020
14. Do nurses document all discussions of patient problems and nursing interventions in the electronic health record? A pilot study in home healthcare
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Jiyoun Song, Maryam Zolnoori, Danielle Scharp, Sasha Vergez, Margaret V McDonald, Sridevi Sridharan, Zoran Kostic, and Maxim Topaz
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Health Informatics - Abstract
Objective To assess the overlap of information between electronic health record (EHR) and patient–nurse verbal communication in home healthcare (HHC). Methods Patient–nurse verbal communications during home visits were recorded between February 16, 2021 and September 2, 2021 with patients being served in an organization located in the Northeast United States. Twenty-two audio recordings for 15 patients were transcribed. To compare overlap of information, manual annotations of problems and interventions were made on transcriptions as well as information from EHR including structured data and clinical notes corresponding to HHC visits. Results About 30% (1534/5118) of utterances (ie, spoken language preceding/following silence or a change of speaker) were identified as including problems or interventions. A total of 216 problems and 492 interventions were identified through verbal communication among all the patients in the study. Approximately 50.5% of the problems and 20.8% of the interventions discussed during the verbal communication were not documented in the EHR. Preliminary results showed that statistical differences between racial groups were observed in a comparison of problems and interventions. Discussion This study was the first to investigate the extent that problems and interventions were mentioned in patient–nurse verbal communication during HHC visits and whether this information was documented in EHR. Our analysis identified gaps in information overlap and possible racial disparities. Conclusion Our results highlight the value of analyzing communications between HHC patients and nurses. Future studies should explore ways to capture information in verbal communication using automated speech recognition.
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- 2022
15. A Predictive Risk Model for Infection-Related Hospitalization Among Home Healthcare Patients
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Elaine Larson, Sridevi Sridharan, David Russell, Carlin Brickner, Margaret V. McDonald, Jingjing Shang, Christopher M. Murtaugh, Jianfang Liu, and Dawn Dowding
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Adult ,Male ,Emergency Medical Services ,medicine.medical_specialty ,home health care ,MEDLINE ,Infections ,Risk Assessment ,Article ,03 medical and health sciences ,Risk model ,0302 clinical medicine ,Surveys and Questionnaires ,Intervention (counseling) ,Health care ,medicine ,Humans ,Infection control ,030212 general & internal medicine ,Aged ,Aged, 80 and over ,OASIS ,business.industry ,030503 health policy & services ,Health Policy ,Risk of infection ,Public Health, Environmental and Occupational Health ,risk modeling ,Emergency department ,Middle Aged ,Stepwise regression ,Home Care Services ,United States ,Hospitalization ,Logistic Models ,Emergency medicine ,Female ,Infection ,0305 other medical science ,business - Abstract
Infection prevention is a high priority for home healthcare (HHC) but tools are lacking to identify patients at highest risk for developing infections. The purpose of this study was to develop and test a predictive risk model to identify HHC patients at risk of an infection-related hospitalization or emergency department visit. A non-experimental study using secondary data was conducted. The Outcome and Assessment Information Set linked with relevant clinical data from 112,788 HHC admissions in 2014 were used for model development (70% of data) and testing (30%). A total of 1,908 patients (1.69%) were hospitalized or received emergency care associated with infection. Stepwise logistic regression models discriminated between individuals with and without infections. Our final model, when classified by highest risk of infection, identified a high portion of those who were hospitalized or received emergent care for an infection while also correctly categorizing 90.5% of patients without infection. The risk model can be used by clinicians to inform care planning. This is the first study to develop a tool for predicting infection risk that can be used to inform how to direct additional infection control intervention resources on high-risk patients, potentially reducing infection related hospitalizations, emergency department visits, and costs.
- Published
- 2020
16. Audio Recording Patient-Nurse Verbal Communications in Home Health Care Settings: Pilot Feasibility and Usability Study (Preprint)
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Maryam Zolnoori, Sasha Vergez, Zoran Kostic, Siddhartha Reddy Jonnalagadda, Margaret V McDonald, Kathryn K H Bowles, and Maxim Topaz
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BACKGROUND Patients’ spontaneous speech can act as a biomarker for identifying pathological entities, such as mental illness. Despite this potential, audio recording patients’ spontaneous speech is not part of clinical workflows, and health care organizations often do not have dedicated policies regarding the audio recording of clinical encounters. No previous studies have investigated the best practical approach for integrating audio recording of patient-clinician encounters into clinical workflows, particularly in the home health care (HHC) setting. OBJECTIVE This study aimed to evaluate the functionality and usability of several audio-recording devices for the audio recording of patient-nurse verbal communications in the HHC settings and elicit HHC stakeholder (patients and nurses) perspectives about the facilitators of and barriers to integrating audio recordings into clinical workflows. METHODS This study was conducted at a large urban HHC agency located in New York, United States. We evaluated the usability and functionality of 7 audio-recording devices in a laboratory (controlled) setting. A total of 3 devices—Saramonic Blink500, Sony ICD-TX6, and Black Vox 365—were further evaluated in a clinical setting (patients’ homes) by HHC nurses who completed the System Usability Scale questionnaire and participated in a short, structured interview to elicit feedback about each device. We also evaluated the accuracy of the automatic transcription of audio-recorded encounters for the 3 devices using the Amazon Web Service Transcribe. Word error rate was used to measure the accuracy of automated speech transcription. To understand the facilitators of and barriers to integrating audio recording of encounters into clinical workflows, we conducted semistructured interviews with 3 HHC nurses and 10 HHC patients. Thematic analysis was used to analyze the transcribed interviews. RESULTS Saramonic Blink500 received the best overall evaluation score. The System Usability Scale score and word error rate for Saramonic Blink500 were 65% and 26%, respectively, and nurses found it easier to approach patients using this device than with the other 2 devices. Overall, patients found the process of audio recording to be satisfactory and convenient, with minimal impact on their communication with nurses. Although, in general, nurses also found the process easy to learn and satisfactory, they suggested that the audio recording of HHC encounters can affect their communication patterns. In addition, nurses were not aware of the potential to use audio-recorded encounters to improve health care services. Nurses also indicated that they would need to involve their managers to determine how audio recordings could be integrated into their clinical workflows and for any ongoing use of audio recordings during patient care management. CONCLUSIONS This study established the feasibility of audio recording HHC patient-nurse encounters. Training HHC nurses about the importance of the audio-recording process and the support of clinical managers are essential factors for successful implementation.
- Published
- 2021
17. Risk of Rehospitalization or Emergency Department Visit is Significantly Higher for Patients who Receive Their First Home Health Care Nursing Visit Later than 2 Days After Hospital Discharge
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Maxim Topaz, Yolanda Barrón, Jiyoun Song, Nicole Onorato, Paulina Sockolow, Maryam Zolnoori, Kenrick Cato, Sridevi Sridharan, Kathryn H. Bowles, and Margaret V. McDonald
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Cross-Sectional Studies ,Home Health Nursing ,Health Policy ,Humans ,General Medicine ,Geriatrics and Gerontology ,Emergency Service, Hospital ,Patient Readmission ,General Nursing ,Hospitals ,Patient Discharge ,United States ,Retrospective Studies - Abstract
This study explored the association between the timing of the first home health care nursing visits (start-of-care visit) and 30-day rehospitalization or emergency department (ED) visits among patients discharged from hospitals.Our cross-sectional study used data from 1 large, urban home health care agency in the northeastern United States.We analyzed data for 49,141 home health care episodes pertaining to 45,390 unique patients who were admitted to the agency following hospital discharge during 2019.We conducted multivariate logistic regression analyses to examine the association between start-of-care delays and 30-day hospitalizations and ED visits, adjusting for patients' age, race/ethnicity, gender, insurance type, and clinical and functional status. We defined delays in start-of-care as a first nursing home health care visit that occurred more than 2 full days after the hospital discharge date.During the study period, we identified 16,251 start-of-care delays (34% of home health care episodes), with 14% of episodes resulting in 30-day rehospitalization and ED visits. Delayed episodes had 12% higher odds of rehospitalization or ED visit (OR 1.12; 95% CI: 1.06-1.18) compared with episodes with timely care.The findings suggest that timely start-of-care home health care nursing visit is associated with reduced rehospitalization and ED use among patients discharged from hospitals. With more than 6 million patients who receive home health care services across the United States, there are significant opportunities to improve timely care delivery to patients and improve clinical outcomes.
- Published
- 2021
18. Clinical notes: An untapped opportunity for improving risk prediction for hospitalization and emergency department visit during home health care
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Jiyoun Song, Mollie Hobensack, Kathryn H. Bowles, Margaret V. McDonald, Kenrick Cato, Sarah Collins Rossetti, Sena Chae, Erin Kennedy, Yolanda Barrón, Sridevi Sridharan, and Maxim Topaz
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Hospitalization ,Machine Learning ,Humans ,Health Informatics ,Bayes Theorem ,Emergency Service, Hospital ,Home Care Services ,Article ,Computer Science Applications - Abstract
BACKGROUND/OBJECTIVE: Between 10 and 25% patients are hospitalized or visit emergency department (ED) during home healthcare (HHC). Given that up to 40% of these negative clinical outcomes are preventable, early and accurate prediction of hospitalization risk can be one strategy to prevent them. In recent years, machine learning-based predictive modeling has become widely used for building risk models. This study aimed to compare the predictive performance of four risk models built with various data sources for hospitalization and ED visits in HHC. METHODS: Four risk models were built using different variables from two data sources: structured data (i.e., Outcome and Assessment Information Set (OASIS) and other assessment items from the electronic health record (EHR)) and unstructured narrative-free text clinical notes for patients who received HHC services from the largest non-profit HHC organization in New York between 2015 and 2017. Then, five machine learning algorithms (logistic regression, Random Forest, Bayesian network, support vector machine (SVM), and Naïve Bayes) were used on each risk model. Risk model performance was evaluated using the F-score and Precision-Recall Curve (PRC) area metrics. RESULTS: During the study period, 8373/86,823 (9.6%) HHC episodes resulted in hospitalization or ED visits. Among five machine learning algorithms on each model, the SVM showed the highest F-score (0.82), while the Random Forest showed the highest PRC area (0.864). Adding information extracted from clinical notes significantly improved the risk prediction ability by up to 16.6% in F-score and 17.8% in PRC. CONCLUSION: All models showed relatively good hospitalization or ED visit risk predictive performance in HHC. Information from clinical notes integrated with the structured data improved the ability to identify patients at risk for these emergent care events.
- Published
- 2021
19. Continuity of Nursing Care in Home Health: Impact on Rehospitalization Among Older Adults With Dementia
- Author
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Chenjuan Ma, Simon Jones, Allison Squires, Margaret V. McDonald, Penny H. Feldman, and Sarah Miner
- Subjects
Research design ,Male ,medicine.medical_specialty ,MEDLINE ,Logistic regression ,Patient Readmission ,Article ,Nursing care ,Home Health Nursing ,Medicine ,Dementia ,Humans ,Aged ,Retrospective Studies ,Aged, 80 and over ,business.industry ,Public Health, Environmental and Occupational Health ,Retrospective cohort study ,Odds ratio ,Continuity of Patient Care ,medicine.disease ,Confidence interval ,Logistic Models ,Family medicine ,Female ,business - Abstract
Background Home health care (HHC) is a leading form of home and community-based services for persons with dementia (PWD). Nurses are the primary providers of HHC; however, little is known of nursing care delivery and quality. Objective The objective of this study was to examine the association between continuity of nursing care in HHC and rehospitalization among PWD. Research design This is a retrospective cohort study using multiple years (2010-2015) of HHC assessment, administrative, and human resources data from a large urban not-for-profit home health agency. Subjects This study included 23,886 PWD receiving HHC following a hospitalization. Measures Continuity of nursing care was calculated using the Bice and Boxerman method, which considered the number of total visits, nurses, and visits from each nurse during an HHC episode. The outcome was all-cause rehospitalization during HHC. Risk-adjusted logistic regression was used for analysis. Results Approximately 24% of PWD were rehospitalized. The mean continuity of nursing care score was 0.56 (SD=0.33). Eight percent of PWD received each nursing visit from a different nurse (no continuity), and 26% received all visits from one nurse during an HHC episode (full continuity). Compared with those receiving high continuity of nursing care (third tertile), PWD receiving low (first tertile) or moderate (second tertile) continuity of nursing care had an adjusted odds ratio of 1.33 (95% confidence interval: 1.25-1.46) and 1.30 (95% confidence interval: 1.22-1.43), respectively, for being rehospitalized. Conclusions Wide variations exist in continuity of nursing care to PWD. Consistency in nurse staff when providing HHC visits to PWD is critical for preventing rehospitalizations.
- Published
- 2021
20. Effect of Nurse Practitioner Interventions on Hospitalizations in the Community Transitions Intervention Trial
- Author
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Margaret V. McDonald, Penny H. Feldman, Zainab Toteh Osakwe, and Yolanda Barrón
- Subjects
Male ,Patient Transfer ,medicine.medical_specialty ,Nurse practitioners ,Psychological intervention ,MEDLINE ,Black People ,Article ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,Randomized controlled trial ,law ,Intervention (counseling) ,Post-hoc analysis ,Medicine ,Humans ,Transitional care ,Nurse Practitioners ,030212 general & internal medicine ,Intervention trial ,General Nursing ,Aged ,030504 nursing ,business.industry ,Hispanic or Latino ,Community Health Nursing ,Hospitalization ,Family medicine ,Hypertension ,Female ,0305 other medical science ,business - Abstract
Background Despite improvements in hypertension treatment in the United States, Black and Hispanic individuals experience poor blood pressure control and have worse hypertension-related outcomes compared to Whites. Objective The aim of the study was to determine the effect on hospitalization of supplementing usual home care (UHC) with two hypertension-focused transitional care interventions-one deploying nurse practitioners (NPs) and the other NPs plus health coaches. Methods We examined post hoc the effect of two hypertension-focused NP interventions on hospitalizations in the Community Transitions Intervention trial-a three-arm, randomized controlled trial comparing the effectiveness of (a) UHC with (b) UHC plus a 30-day NP transitional care intervention or (c) UHC plus NP plus 60-day health coach intervention. Results The study comprised 495 participants: mean age = 66 years; 57% female; 70% Black, non-Hispanic; 30% Hispanic. At the 3- and 12-month follow-up, all three groups showed a significant decrease in the average number of hospitalizations compared to baseline. The interventions were not significantly different from UHC. Conclusion The results of this post hoc analysis show that, during the study period, decreases in hospitalizations in the intervention groups were comparable to those in UHC, and deploying NPs provided no detectable value added. Future research should focus on testing ways to optimize UHC services.
- Published
- 2021
21. Exploring Reasons for Delayed Start-of-Care Nursing Visits in Home Health Care: Algorithm Development and Data Science Study (Preprint)
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Maryam Zolnoori, Jiyoun Song, Margaret V McDonald, Yolanda Barrón, Kenrick Cato, Paulina Sockolow, Sridevi Sridharan, Nicole Onorato, Kathryn H Bowles, and Maxim Topaz
- Abstract
BACKGROUND Delayed start-of-care nursing visits in home health care (HHC) can result in negative outcomes, such as hospitalization. No previous studies have investigated why start-of-care HHC nursing visits are delayed, in part because most reasons for delayed visits are documented in free-text HHC nursing notes. OBJECTIVE The aims of this study were to (1) develop and test a natural language processing (NLP) algorithm that automatically identifies reasons for delayed visits in HHC free-text clinical notes and (2) describe reasons for delayed visits in a large patient sample. METHODS This study was conducted at the Visiting Nurse Service of New York (VNSNY). We examined data available at the VNSNY on all new episodes of care started in 2019 (N=48,497). An NLP algorithm was developed and tested to automatically identify and classify reasons for delayed visits. RESULTS The performance of the NLP algorithm was 0.8, 0.75, and 0.77 for precision, recall, and F-score, respectively. A total of one-third of HHC episodes (n=16,244) had delayed start-of-care HHC nursing visits. The most prevalent identified category of reasons for delayed start-of-care nursing visits was no answer at the door or phone (3728/8051, 46.3%), followed by patient/family request to postpone or refuse some HHC services (n=2858, 35.5%), and administrative or scheduling issues (n=1465, 18.2%). In 40% (n=16,244) of HHC episodes, 2 or more reasons were documented. CONCLUSIONS To avoid critical delays in start-of-care nursing visits, HHC organizations might examine and improve ways to effectively address the reasons for delayed visits, using effective interventions, such as educating patients or caregivers on the importance of a timely nursing visit and improving patients’ intake procedures.
- Published
- 2021
22. Detecting Disparities in Medication Management Among Limited English Proficient and English Proficient Home Health Patients
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Allison Squires, Simon Jones, Chenjuan Ma, Margaret V. McDonald, and Sarah Miner
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Community and Home Care ,education.field_of_study ,medicine.medical_specialty ,030504 nursing ,Leadership and Management ,Population ,Public Health, Environmental and Occupational Health ,Health literacy ,Census ,Health equity ,03 medical and health sciences ,0302 clinical medicine ,Family medicine ,Home health ,Limited English proficiency ,medicine ,030212 general & internal medicine ,0305 other medical science ,education ,Psychology - Abstract
According to the U.S. census Bureau, close to 20% of the U.S. population speaks a language other than English at home. Home health care (HHC) patients who speak English less than very well or have limited English proficiency (LEP) are at an increased risk for medication mismanagement and serious health consequences. The purpose of this study was to examine if there were differences in medication management between English-speaking patients and patients with LEP receiving HHC services. Data for this cross-sectional observation study were collected from 2010 to 2014. Medication management was measured by two items in the Centers for Medicare and Medicaid Services–mandated Outcomes Assessment Information Set (OASIS). All patients in the database who were taking medications and had a valid admission and discharge assessment from HHC were included in the analysis. Inverse probability of treatment weighting (IPTW) with a marginal structural model was used to address potential imbalances in observed patient characteristics when estimating the effect of having LEP or being an English-speaking HHC patient on changes in medication management over the course of a HHC episode. Estimates from marginal structural model with inverse probability weighting indicate that being LEP was associated with less improvement in medication management and increased likelihood of getting worse over the course of a HHC episode. This study is one of the first to demonstrate that patients with LEP experience disparities in medication management when compared to English-speaking patients in HHC.
- Published
- 2019
23. Implications of a US study on infection prevention and control in community settings in the UK
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Jingjing Shang, Margaret V. McDonald, and Dawn Dowding
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Male ,media_common.quotation_subject ,Control (management) ,Aftercare ,Nurses, Community Health ,Article ,Interview data ,Care setting ,Nursing ,Hygiene ,Medicine ,Infection control ,Humans ,media_common ,Community and Home Care ,Cross Infection ,Infection Control ,business.industry ,General Medicine ,United Kingdom ,Work (electrical) ,Home Care Agency ,Community setting ,Female ,Clinical Competence ,Guideline Adherence ,business - Abstract
Healthcare-associated infections are a significant reason for readmission to hospital post-discharge to the community. In this paper, the authors describe some of the key findings from a programme of work conducted in a home care agency (community care organisation) in the US. A survey was conducted to explore home care nurses' knowledge, attitudes and beliefs around infection control (n=415); 400 nurse-patient visits were observed, and 50 nurses were interviewed about their infection control practices. Nurses reported high compliance with infection control practices. However, the overall average adherence rate to observed hand hygiene practices was 45.6%. Interview data provided valuable insights into specific challenges faced by nurses in a home care setting. This study provides insights that can be used to enhance infection control practice in community care in the UK.
- Published
- 2020
24. Audio Recording Patient-Nurse Verbal Communications in Home Health Care Settings: Pilot Feasibility and Usability Study
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Maryam Zolnoori, Sasha Vergez, Zoran Kostic, Siddhartha Reddy Jonnalagadda, Margaret V McDonald, Kathryn K H Bowles, and Maxim Topaz
- Subjects
Health Informatics ,Human Factors and Ergonomics - Abstract
Background Patients’ spontaneous speech can act as a biomarker for identifying pathological entities, such as mental illness. Despite this potential, audio recording patients’ spontaneous speech is not part of clinical workflows, and health care organizations often do not have dedicated policies regarding the audio recording of clinical encounters. No previous studies have investigated the best practical approach for integrating audio recording of patient-clinician encounters into clinical workflows, particularly in the home health care (HHC) setting. Objective This study aimed to evaluate the functionality and usability of several audio-recording devices for the audio recording of patient-nurse verbal communications in the HHC settings and elicit HHC stakeholder (patients and nurses) perspectives about the facilitators of and barriers to integrating audio recordings into clinical workflows. Methods This study was conducted at a large urban HHC agency located in New York, United States. We evaluated the usability and functionality of 7 audio-recording devices in a laboratory (controlled) setting. A total of 3 devices—Saramonic Blink500, Sony ICD-TX6, and Black Vox 365—were further evaluated in a clinical setting (patients’ homes) by HHC nurses who completed the System Usability Scale questionnaire and participated in a short, structured interview to elicit feedback about each device. We also evaluated the accuracy of the automatic transcription of audio-recorded encounters for the 3 devices using the Amazon Web Service Transcribe. Word error rate was used to measure the accuracy of automated speech transcription. To understand the facilitators of and barriers to integrating audio recording of encounters into clinical workflows, we conducted semistructured interviews with 3 HHC nurses and 10 HHC patients. Thematic analysis was used to analyze the transcribed interviews. Results Saramonic Blink500 received the best overall evaluation score. The System Usability Scale score and word error rate for Saramonic Blink500 were 65% and 26%, respectively, and nurses found it easier to approach patients using this device than with the other 2 devices. Overall, patients found the process of audio recording to be satisfactory and convenient, with minimal impact on their communication with nurses. Although, in general, nurses also found the process easy to learn and satisfactory, they suggested that the audio recording of HHC encounters can affect their communication patterns. In addition, nurses were not aware of the potential to use audio-recorded encounters to improve health care services. Nurses also indicated that they would need to involve their managers to determine how audio recordings could be integrated into their clinical workflows and for any ongoing use of audio recordings during patient care management. Conclusions This study established the feasibility of audio recording HHC patient-nurse encounters. Training HHC nurses about the importance of the audio-recording process and the support of clinical managers are essential factors for successful implementation.
- Published
- 2022
25. Risk Factors for Urinary Tract Infection (UTI) Among Home Health Care Patients: Analysis Using Routinely Collected Clinical Data
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Kyungmi Woo, Jiyoun Song, Margaret V. McDonald, Maxim Topaz, and Jingjing Shang
- Abstract
Background: Urinary tract infection (UTI) is a complication often experienced during a home health care (HHC) episode, yet related hospitalization risk factors are unclear. Objectives: This study use multiple data sources to identify risk factors for UTI related hospitalization or emergency department (ED) visits among HHC patients.Method: We performed a multivariable logistic regression to identify risk factors for UTI-related hospitalization or ED visits using merged data from the Outcome and Assessment Information Set, electronic health record from a large HHC agency, and Center for Medicare and Medicaid claims. Results: Of 48,336 cases, 1,689 patients (3.5%) had a UTI-related hospitalization/ED visits. Being a female (OR = 1.31; 95% CI: 1.16–1.46), the presence of a urinary catheter (OR = 5.7; 95% CI: 4.54–7.14), treatment with general antibacterial and antiseptics (OR = 2.75; 95% CI: 1.02–7.38), dependency in instrumental activities of daily living (e.g., meal preparation [OR=1.72; 95% CI: 1.25-2.37]), and no available caregivers (OR = 1.79; 95% CI: 1.2–2.68) increased the odds of a UTI related event among HHC patients. Discussion/conclusion: We identified notable risk factors for UTI related hospitalization/ER visit, filling a knowledge gap on the currently understudied HHC population. Risk factors identified in this study can be used to proactively identify HHC patients at risk for UTI related hospitalization and target them for preventive interventions. Further research is needed in HHC to develop tailored interventions for at-risk patients.
- Published
- 2020
26. Improving Patient Prioritization During Hospital-Homecare Transition: Protocol for a Mixed Methods Study of a Clinical Decision Support Tool Implementation (Preprint)
- Author
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Maryam Zolnoori, Margaret V McDonald, Yolanda Barrón, Kenrick Cato, Paulina Sockolow, Sridevi Sridharan, Nicole Onorato, Kathryn Bowles, and Maxim Topaz
- Abstract
BACKGROUND Homecare settings across the United States provide care to more than 5 million patients every year. About one in five homecare patients are rehospitalized during the homecare episode, with up to two-thirds of these rehospitalizations occurring within the first 2 weeks of services. Timely allocation of homecare services might prevent a significant portion of these rehospitalizations. The first homecare nursing visit is one of the most critical steps of the homecare episode. This visit includes an assessment of the patient’s capacity for self-care, medication reconciliation, an examination of the home environment, and a discussion regarding whether a caregiver is present. Hence, appropriate timing of the first visit is crucial, especially for patients with urgent health care needs. However, nurses often have limited and inaccurate information about incoming patients, and patient priority decisions vary significantly between nurses. We developed an innovative decision support tool called Priority for the First Nursing Visit Tool (PREVENT) to assist nurses in prioritizing patients in need of immediate first homecare nursing visits. OBJECTIVE This study aims to evaluate the effectiveness of the PREVENT tool on process and patient outcomes and to examine the reach, adoption, and implementation of PREVENT. METHODS Employing a pre-post design, survival analysis, and logistic regression with propensity score matching analysis, we will test the following hypotheses: compared with not using the tool in the preintervention phase, when homecare clinicians use the PREVENT tool, high-risk patients in the intervention phase will (1) receive more timely first homecare visits and (2) have decreased incidence of rehospitalization and have decreased emergency department use within 60 days. Reach, adoption, and implementation will be assessed using mixed methods including homecare admission staff interviews, think-aloud observations, and analysis of staffing and other relevant data. RESULTS The study research protocol was approved by the institutional review board in October 2019. PREVENT is currently being integrated into the electronic health records at the participating study sites. Data collection is planned to start in early 2021. CONCLUSIONS Mixed methods will enable us to gain an in-depth understanding of the complex socio-technological aspects of the hospital to homecare transition. The results have the potential to (1) influence the standardization and individualization of nurse decision making through the use of cutting-edge technology and (2) improve patient outcomes in the understudied homecare setting. CLINICALTRIAL ClinicalTrials.gov NCT04136951; https://clinicaltrials.gov/ct2/show/NCT04136951 INTERNATIONAL REGISTERED REPORT PRR1-10.2196/20184
- Published
- 2020
27. Home care nurses' identification of patients at risk of infection and their risk mitigation strategies: A qualitative interview study
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David Russell, Margaret V. McDonald, Marygrace Trifilio, Dawn Dowding, and Jingjing Shang
- Subjects
Adult ,Male ,medicine.medical_specialty ,Psychological intervention ,New York ,Nurses ,Home health nursing ,clinical decision making ,Infections ,Risk Assessment ,Interviews as Topic ,03 medical and health sciences ,0302 clinical medicine ,Infection prevention ,Qualitative research ,Acute care ,medicine ,Infection control ,Humans ,030212 general & internal medicine ,Risk Assessment/methods ,General Nursing ,Risk management ,Qualitative Research ,Infection Control ,030504 nursing ,business.industry ,Interviews as Topic/methods ,Risk of infection ,Home care services ,Infections/nursing ,Middle Aged ,Home Care Services ,Nurses/psychology ,Judgement ,Family medicine ,Home Care Services/organization & administration ,Female ,Thematic analysis ,0305 other medical science ,business ,Risk assessment ,Risk Reduction Behavior - Abstract
BackgroundThere is an increase in the number of individuals who receive care at home. A significant proportion of these patients acquire infections during their care episode. Whilst there has been significant focus on strategies for infection prevention and control in acute care environments, there is a lack of research into infection prevention in a home care setting.ObjectivesTo understand 1) if and how home care nurses identify patients at high risk of infection and 2) the strategies they use to mitigate that risk.DesignA qualitative descriptive study, using semi-structured interviews.SettingA large not for profit home care agency located in the New York region of the United States.ParticipantsFifty nurses with a range of experience in home care nursing.MethodsPurposive and snowball sampling was used to recruit nurses from across the home care agency with varied years of work experience. Interviews were audio recorded andtranscribed. The interviews explored how home care nurses evaluate their patients’ risk of developing an infection and if/how they modify the plan of care based on that risk. Data were analysed using thematic analysis.ResultsThree themes were derived from the data; assessing a patient’s risk of infection, the risk assessment process, and strategies for mitigating infection risk. Factors identified by nurses as putting a patient at higher risk of infection included being older, having diabetes, inadequate nutrition; along with inadequate clinical information available at start of care. The patient’s knowledge and understanding of infection prevention, and the availability and knowledge of caregivers were also important, as was the cleanliness of the home environment. Given the context of home care, where nurses have little control over the environment and care processes in-between visits, the main strategy for infection prevention was patient and caregiver education. Nurses also discussed the importance of their own infection prevention behaviours, and the ability to adjust a patient’s plan of care according to their infection risk.ConclusionsThe study highlights the complexity of the risk assessment process in relation to infection. Existing guidelines for infection prevention and control do not adequately cover the home care environment and more research needs to determine which interventions (such as patient/caregiver education) would be most effective to prevent infections in the home care setting.
- Published
- 2019
28. Real-World Analysis of Dispensed IUs of Coagulation Factor IX and Resultant Expenditures in Hemophilia B Patients Receiving Standard Half-Life Versus Extended Half-Life Products and Those Switching from Standard Half-Life to Extended Half-Life Products
- Author
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Margaret V. McDonald, Dean Spurden, Andreas M. Pleil, Patrick F. Fogarty, Bartholomew J Tortella, A Chhabra, and Jose Alvir
- Subjects
Adult ,Male ,Pediatrics ,medicine.medical_specialty ,Adolescent ,Recombinant Fusion Proteins ,Pharmaceutical Science ,Pharmacy ,030204 cardiovascular system & hematology ,Hemophilia B ,Factor IX ,Young Adult ,03 medical and health sciences ,0302 clinical medicine ,Claims data ,medicine ,Eftrenonacog alfa ,Humans ,Claims database ,Child ,Retrospective Studies ,Bleeding episodes ,Drug Substitution ,business.industry ,Health Policy ,Retrospective cohort study ,Middle Aged ,Coagulation Factor IX ,Blood Coagulation Factors ,Immunoglobulin Fc Fragments ,Child, Preschool ,030220 oncology & carcinogenesis ,Specialty pharmacy ,Health Expenditures ,business ,Administrative Claims, Healthcare ,Half-Life ,medicine.drug - Abstract
Hemophilia B requires replacement therapy with factor IX (FIX) coagulation products to treat and prevent bleeding episodes. A recently introduced extended half-life (EHL) recombinant FIX replacement product provided the opportunity to compare the amount of dispensed factor and expenditures for EHL treatment compared with a standard half-life (SHL) product.To determine factor international units (IUs) dispensed and expenditures associated with switching from nonacog alfa, the most commonly used SHL replacement product, to eftrenonacog alfa, an EHL FIX replacement product.Two U.S. claims databases were analyzed. A large national specialty pharmacy dispensation claims database was used to identify the number of IUs dispensed and monthly charges for all patients with hemophilia B from April 2015 to June 2016. Truven Health MarketScan Research Databases (January 2010-July 2016) were used to identify IUs and expenditures for patients with claims data for at least 3 months before and after switching from the SHL to the EHL product. Medians for IUs and expenditures are presented to accommodate for skewness of data distribution.The national specialty pharmacy database analysis included 296 patients with moderate or severe hemophilia B (233 on SHL; 94 on EHL). Median monthly factor dispensed was 11% lower (2,142 IU) in the EHL versus SHL cohort over the study period, while individual monthly reductions ranged from 32% to 47% (9,838 IU to 16,514 IU). Using the wholesale acquisition cost, the median per-patient monthly factor expenditures over the 15-month study period were 94% higher ($23,005) for the EHL than for the SHL product. Individual median monthly expenditure differences ranged from 15% ($6,562) to 49% ($19,624). In the Truven database, 14 patients switched from the SHL to the EHL product. The amount of factor dispensed was variable; in the 1-year period before and after the switch from the SHL to the EHL product, mean IUs dispensed decreased by 3,005 IU, while median IUs dispensed increased by 4,775 IU. Factor replacement expenditures were higher after switching from the SHL to the EHL product in each of the 3-month periods examined before versus after the switch.This analysis of real-world data showed that switching from the SHL to the EHL product was associated with higher expenditures. Increased expenditures noted in the first 3 months after switching may be related to initial stocking up of the EHL product, but expenditures were sustained throughout the 1-year period of data analysis. Further analysis of these findings with larger numbers of patients should be explored.This study was sponsored by Pfizer. Pfizer employees were involved in the study design; the collection, analysis, and interpretation of data; the review of the manuscript; and the decision to submit for publication. All authors are employees of Pfizer. No author received an honorarium or other form of payment related to the development of this manuscript. All authors participated in the study design, data interpretation, and manuscript review and revisions and granted approval for the submission of the manuscript. Alvir, McDonald, and Tortella also participated in data analysis. Data from this paper were presented in part at the European Association for Haemophilia and Allied Disorders Annual Meeting, February 1-3, 2017, Paris, France; at the International Society for Pharmacoeconomics and Outcomes Research Annual Meeting, May 20-24, 2017, Boston, MA; and at the International Society on Thrombosis and Haemostasis Congress, July 8-13, 2017, Berlin, Germany.
- Published
- 2018
29. Geriatric Interdisciplinary Team Training 2.0: A collaborative team-based approach to delivering care
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Tara Cortes, Margaret V. McDonald, Maryanne M Giuliante, Sherry A. Greenberg, Ronnie J. Moore, and Allison Squires
- Subjects
Quality management ,Attitude of Health Personnel ,Interprofessional Relations ,Pharmacy ,Interdisciplinary Studies ,03 medical and health sciences ,0302 clinical medicine ,Health care ,Humans ,030212 general & internal medicine ,Cooperative Behavior ,Aged ,Aged, 80 and over ,Patient Care Team ,Medical education ,030504 nursing ,Social work ,business.industry ,Cornerstone ,General Medicine ,Focus Groups ,Interprofessional education ,Focus group ,Geriatrics ,Feasibility Studies ,Clinical Competence ,0305 other medical science ,business ,Psychology ,Team training - Abstract
Interprofessional collaborative education and practice has become a cornerstone of optimal person-centered management in the current complex health care climate. This is especially important when working with older adults, many with multiple chronic conditions and challenging health care needs. This paper describes a feasibility study of the Geriatric Interdisciplinary Team Training 2.0 (GITT 2.0) program focused on providing interprofessional care to complex and frail older adults with multiple chronic conditions. A concurrent triangulation mixed-methods design facilitated program implementation and evaluation. Over three years (2013-2016), 65 graduate students from nursing, midwifery, social work, and pharmacy participated along with 25 preceptors. Participants were surveyed on their attitudes toward interprofessional collaboration pre and post-intervention and participated in focus groups. While attitudes toward interprofessional collaboration did not change quantitatively, focus groups revealed changes in language and enhanced perspectives of participants. Based on the evaluation data, the GITT 2.0 Toolkit was refined for use in interprofessional education and practice activities related to quality initiatives.
- Published
- 2018
30. Reducing Hypertension in a Poststroke Black and Hispanic Home Care Population: Results of a Pragmatic Randomized Controlled Trial
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Penny H. Feldman, Margaret V. McDonald, Nicole Onorato, Jeanne A. Teresi, Marygrace Trifilio, Melissa Trachtenberg, Joseph P. Eimicke, Sridevi Sridharan, and Stephanie Silver
- Subjects
Male ,medicine.medical_specialty ,Time Factors ,Home Nursing ,Population ,Psychological intervention ,Blood Pressure ,law.invention ,Stroke risk ,Randomized controlled trial ,law ,Internal Medicine ,Medicine ,Humans ,Transitional care ,Nurse Practitioners ,education ,Stroke ,Aged ,education.field_of_study ,business.industry ,Hispanic or Latino ,Middle Aged ,medicine.disease ,Clinical trial ,Black or African American ,Self Care ,Blood pressure ,Treatment Outcome ,Hypertension ,Physical therapy ,Female ,business - Abstract
BACKGROUND Uncontrolled hypertension (HTN) is a leading modifiable stroke risk factor contributing to global stroke disparities. This study is unique in testing a transitional care model aimed at controlling HTN in black and Hispanic poststroke, home health patients, an understudied group. METHODS A 3-arm randomized controlled trial design compared (i) usual home care (UHC), with (ii) UHC plus a 30-day nurse practitioner transitional care program, or (iii) UHC plus nurse practitioner plus a 60-day health coach program. The trial enrolled 495 black and Hispanic, English- and Spanish- speaking adults with uncontrolled systolic blood pressure (SBP ≥ 140 mm Hg) who had experienced a first-time or recurrent stroke or transient ischemic attack. The primary outcome was change in SBP from baseline to 3 and 12 months. RESULTS Mean participant age was 67; 57.0% were female; 69.7% were black, non-Hispanic; and 30.3% were Hispanic. Three-month follow-up retention was 87%; 12-month retention was 81%. SBP declined 9–10 mm Hg from baseline to 12 months across all groups; the greatest decrease occurred between baseline and 3 months. The interventions demonstrated no relative advantage compared to UHC. CONCLUSION The significant across-the-board SBP decreases suggest that UHC nurse/patient/physician interactions were the central component of SBP reduction and that additional efforts to lower recurrent stroke risk should test incremental improvements in usual care, not resource-intensive transitional care interventions. They also suggest the potential value of pragmatic home care programs as part of a broader strategy to overcome HTN treatment barriers and improve secondary stroke prevention globally. CLINICAL TRIALS REGISTRATION Trial Number NCT01918891.
- Published
- 2019
31. SAT-439 Impact on Health Care Resources: A Comparison of Costs Following Treatment with Pegvisomant and Somatostatin Analogues Using Optum Claims Database
- Author
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Nicky Kelepouris, Margaret V. McDonald, Emily Rubinstein, Jane Loftus, Birol Emir, and Donna King
- Subjects
medicine.medical_specialty ,Neuroendocrinology and Pituitary ,Somatostatin ,business.industry ,Endocrinology, Diabetes and Metabolism ,Health care ,Pegvisomant ,Medicine ,Claims database ,business ,Intensive care medicine ,medicine.drug - Abstract
OBJECTIVES: To estimate the health care resource use (HCRU) and costs for patients diagnosed with acromegaly, following treatment with either pegvisomant, a growth hormone receptor antagonist (GHRA); or a somatostatin analogue (SSA). METHODS: De-identified data from Optum’s ClinformaticsTM Data Mart (CDM), a US claims database, were used to retrospectively identify patients with acromegaly from January 2011 - June 2018 who were treated with the GHRA or an SSA. Propensity score matching (PSM) was used to address the small sample size of acromegaly patients and to ensure a direct comparison between the two treatment groups. PSM was fitted using a logistic regression model that included age, gender, total cost and Charlson Comorbidity Index (CCMI) score at index¹. Follow up (FU), HCRU (including Emergency Room [ER] costs, outpatient and inpatient costs) were compared. Average differences in change from baseline costs between the GHRA and SSA from the matched groups are shown with p-values obtained from a t-test. All costs are average across visits. RESULTS: Following PSM 91 patients were treated with GHRA and 269 patients were treated with SSAs. Mean ER costs were higher in the SSA vs GHRA group ($63 vs -$19, p=0.5646). On average outpatient visits were higher in the SSA vs GHRA group (2.88 and 2.82 respectively, p=0.8583); associated costs were higher ($1181 and $789 respectively p=0.3832). Regarding office visits and associated costs, these were also higher in the SSA group (Visit: 0.77 vs 0.74 and Cost: $1 vs -$7). The number of inpatient visits was equal (average =0.03) for both groups, with slightly higher costs in the GHRA group ($131 vs $161, p=0.9644). The drug cost and overall total cost of SSAs vs GHRA were significantly different ($2630 vs $6933, p
- Published
- 2019
32. Provider Perspectives of Medication Complexity in Home Health Care: A Qualitative Secondary Data Analysis
- Author
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Sherry A. Greenberg, Tara Cortes, Margaret V. McDonald, Laura Jean Ridge, Sarah Miner, and Allison Squires
- Subjects
Program evaluation ,Service (business) ,Data Analysis ,030503 health policy & services ,Health Policy ,Communication ,Secondary data ,Interprofessional education ,Home Care Services ,03 medical and health sciences ,0302 clinical medicine ,Nursing ,Summative assessment ,Content analysis ,Home health ,Humans ,030212 general & internal medicine ,0305 other medical science ,Psychology ,Adverse effect ,Qualitative Research - Abstract
A primary service provided by home care is medication management. Issues with medication management at home place older adults at high risk for hospital admission, readmission, and adverse events. This study sought to understand medication management challenges from the home care provider perspective. A qualitative secondary data analysis approach was used to analyze program evaluation interview data from an interprofessional educational intervention study designed to decrease medication complexity in older urban adults receiving home care. Directed and summative content analysis approaches were used to analyze data from 90 clinician and student participants. Medication safety issues along with provider–provider communication problems were central themes with medication complexity. Fragmented care coordination contributed to medication management complexity. Patient-, provider-, and system-level factors influencing medication complexity and management were identified as contributing to both communication and coordination challenges.
- Published
- 2019
33. Improving Patient Prioritization During Hospital-Homecare Transition: Protocol for a Mixed Methods Study of a Clinical Decision Support Tool Implementation
- Author
-
Paulina S. Sockolow, Maryam Zolnoori, Yolanda Barrón, Nicole Onorato, Maxim Topaz, Margaret V. McDonald, Sridevi Sridharan, Kathryn H. Bowles, and Kenrick Cato
- Subjects
rehospitalization ,Decision support system ,Computer applications to medicine. Medical informatics ,R858-859.7 ,Staffing ,Clinical decision support system ,03 medical and health sciences ,0302 clinical medicine ,RE-AIM framework ,effective implementation ,Health care ,Protocol ,Medicine ,030212 general & internal medicine ,030504 nursing ,business.industry ,PREVENT ,General Medicine ,Emergency department ,homecare agencies ,Institutional review board ,medicine.disease ,Clinical trial ,clinical decision support system ,Propensity score matching ,Medical emergency ,0305 other medical science ,business - Abstract
Background Homecare settings across the United States provide care to more than 5 million patients every year. About one in five homecare patients are rehospitalized during the homecare episode, with up to two-thirds of these rehospitalizations occurring within the first 2 weeks of services. Timely allocation of homecare services might prevent a significant portion of these rehospitalizations. The first homecare nursing visit is one of the most critical steps of the homecare episode. This visit includes an assessment of the patient’s capacity for self-care, medication reconciliation, an examination of the home environment, and a discussion regarding whether a caregiver is present. Hence, appropriate timing of the first visit is crucial, especially for patients with urgent health care needs. However, nurses often have limited and inaccurate information about incoming patients, and patient priority decisions vary significantly between nurses. We developed an innovative decision support tool called Priority for the First Nursing Visit Tool (PREVENT) to assist nurses in prioritizing patients in need of immediate first homecare nursing visits. Objective This study aims to evaluate the effectiveness of the PREVENT tool on process and patient outcomes and to examine the reach, adoption, and implementation of PREVENT. Methods Employing a pre-post design, survival analysis, and logistic regression with propensity score matching analysis, we will test the following hypotheses: compared with not using the tool in the preintervention phase, when homecare clinicians use the PREVENT tool, high-risk patients in the intervention phase will (1) receive more timely first homecare visits and (2) have decreased incidence of rehospitalization and have decreased emergency department use within 60 days. Reach, adoption, and implementation will be assessed using mixed methods including homecare admission staff interviews, think-aloud observations, and analysis of staffing and other relevant data. Results The study research protocol was approved by the institutional review board in October 2019. PREVENT is currently being integrated into the electronic health records at the participating study sites. Data collection is planned to start in early 2021. Conclusions Mixed methods will enable us to gain an in-depth understanding of the complex socio-technological aspects of the hospital to homecare transition. The results have the potential to (1) influence the standardization and individualization of nurse decision making through the use of cutting-edge technology and (2) improve patient outcomes in the understudied homecare setting. Trial Registration ClinicalTrials.gov NCT04136951; https://clinicaltrials.gov/ct2/show/NCT04136951 International Registered Report Identifier (IRRID) PRR1-10.2196/20184
- Published
- 2021
34. Home-based interventions for black patients with uncontrolled hypertension: a cluster randomized controlled trial
- Author
-
Yolanda Barrón, Linda M. Gerber, Timothy R. Peng, Margaret V. McDonald, and Penny H. Feldman
- Subjects
Male ,Comparative Effectiveness Research ,Pediatrics ,medicine.medical_specialty ,New York ,Psychological intervention ,030204 cardiovascular system & hematology ,Disease cluster ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,Millimeter of mercury ,Randomized controlled trial ,law ,Cluster Analysis ,Humans ,Medicine ,Prospective Studies ,030212 general & internal medicine ,Cluster randomised controlled trial ,Antihypertensive Agents ,Aged ,business.industry ,Home based interventions ,Health Policy ,Middle Aged ,Home Care Services ,Black or African American ,Self Care ,Blood pressure ,Hypertension ,Usual care ,Female ,business ,Follow-Up Studies ,Research Article - Abstract
Aim: Assess the comparative effectiveness of two blood pressure (BP) control interventions for black patients with uncontrolled hypertension. Patients & methods: A total of 845 patients were enrolled in a three-arm cluster randomized trial. On admission of an eligible patient, field nurses were randomized to usual care, a basic or augmented intervention. Results: Across study arms there were no significant 12 months differences in BP control rates (primary outcome) (25% usual care, 26% basic intervention, 22% augmented intervention); systolic BP (143.8 millimeters of mercury [mmHg], 146.9 mmHG, 143.9 mmHG, respectively); medication intensification (47, 43, 54%, respectively); or self-management score (18.7, 18.7, 17.9, respectively). Adjusted systolic BP dropped more than 10 mmHg from baseline to 12 months (155.5–145.4 mmHg) among all study participants. Conclusion: Neither the augmented nor basic intervention was more effective than usual care in improving BP control, systolic BP, medication intensification or patient self-management. Usual home care yielded substantial improvements, creating a high comparative effectiveness threshold. Clinical Trial Registration: NCT00139490.
- Published
- 2016
35. Testing a Model of Self-Management of Fluid Intake in Community-Residing Long-term Indwelling Urinary Catheter Users
- Author
-
Shivani Shah, Wan Tang, James M. McMahon, Margaret V. McDonald, Eileen Fairbanks, Feng-Feng Zhang, Mary H. Wilde, Hugh F. Crean, and Judith Brasch
- Subjects
Adult ,Male ,Urinary system ,medicine.medical_treatment ,Drinking Behavior ,Urinary Catheters ,Article ,Urinary catheterization ,Cohort Studies ,Young Adult ,03 medical and health sciences ,Fluid intake ,Catheters, Indwelling ,0302 clinical medicine ,Residence Characteristics ,Humans ,Medicine ,030212 general & internal medicine ,Young adult ,Urinary catheter ,General Nursing ,Aged ,Aged, 80 and over ,030504 nursing ,business.industry ,Middle Aged ,Indwelling urinary catheter ,Self Efficacy ,Self Care ,Catheter ,Catheter-Related Infections ,Anesthesia ,Urinary Tract Infections ,Female ,Urinary Catheterization ,0305 other medical science ,business ,Cohort study - Abstract
Background: Urinary tract infection and blockage are serious and recurrent challenges for people with long-term indwelling catheters, and these catheter problems cause worry and anxiety when they disrupt normal daily activities. Objective: The goal was to determine whether urinary catheter-related self-management behaviors focusing on fluid intake would mediate fluid intake-related self-efficacy toward decreasing catheter-associated urinary tract infection (CAUTI) and/or catheter blockage. Methods: The sample involved data collected from 180 adult community-living, long-term indwelling urinary catheter users. The authors tested a model of fluid intake self-management related to fluid intake self-efficacy for key outcomes of CAUTI and blockage. To account for the large number of zeros in both outcomes, a zero-inflated negative binomial (ZINB) structural equation model was tested. Results: Structurally, fluid intake self-efficacy was positively associated with fluid intake self-management, suggesting that higher fluid intake self-efficacy predicts more (higher) fluid intake self-management; however, fluid intake self-management was not associated with either the frequency of CAUTIs or the presence or absence of CAUTI. Fluid intake self-efficacy was positively related to fluid intake self-management, and fluid intake self-management predicted less frequency of catheter blockage, but neither fluid intake self-efficacy nor fluid intake self-management predicted the presence or absence of blockage. Discussion: Further research is needed to better understand determinants of CAUTI in long-term catheter users and factors which might influence or prevent its occurrence. Increased confidence (self-efficacy) and self-management behaviors to promote fluid intake could be of value to long-term urinary catheter users to decrease catheter blockage.
- Published
- 2016
36. Medication Literacy and Somali Older Adults Receiving Home Care
- Author
-
Sarah Miner, Allison Squires, and Margaret V. McDonald
- Subjects
Adult ,Male ,media_common.quotation_subject ,Somalia ,Qualitative property ,Social issues ,Somali ,Literacy ,03 medical and health sciences ,0302 clinical medicine ,Nursing ,Drug Therapy ,Patient Education as Topic ,Medication information ,Health care ,Humans ,Family ,030212 general & internal medicine ,Qualitative Research ,media_common ,Aged ,Aged, 80 and over ,030504 nursing ,business.industry ,General Medicine ,Research needs ,Middle Aged ,Home Care Services ,language.human_language ,Health Literacy ,Caregivers ,language ,Female ,0305 other medical science ,business ,Psychology ,Qualitative research - Abstract
Medication literacy is the ability of individuals to access and understand medication information and then use that information to act and take their medication in a safe and appropriate way. The purpose of this study was to explore medication literacy in a group of Somali older adults and their families using qualitative secondary analysis. We conducted an analytic expansion of an existing qualitative study that explored the home healthcare perceptions of Somali older adults and their families. Qualitative data collected from 14 Somali families about home healthcare were reviewed and analyzed for material related to medication literacy. Data analysis revealed a number of important findings related to medication literacy and resulted in the discovery of four themes: Medication literacy is needed among Somali older adults and their families, Using home healthcare (HHC) to improve medication literacy, Better communication is essential to improving medication literacy, and Medication literacy is an intersecting family and social issue. The results of this study indicate that HHC has a role to play in improving the health and medication literacy of these families. They also highlight the need to further explore what techniques, tools, and/or supports HHC professionals need to care for non-English speaking populations. Future research needs to address how to meet the needs of diverse and vulnerable patients like Somali older adults, and how best to prepare HHC providers to do this.
- Published
- 2018
37. Black/Hispanic Disparities in a Vulnerable Post-Stroke Home Care Population
- Author
-
Penny H. Feldman, Joseph P. Eimicke, Margaret V. McDonald, and Jeanne A. Teresi
- Subjects
Male ,medicine.medical_specialty ,Health (social science) ,Sociology and Political Science ,media_common.quotation_subject ,Population ,Psychological intervention ,Health literacy ,Vulnerable Populations ,Article ,03 medical and health sciences ,0302 clinical medicine ,Quality of life ,Risk Factors ,Epidemiology ,medicine ,Humans ,030212 general & internal medicine ,cardiovascular diseases ,Healthcare Disparities ,education ,Stroke ,media_common ,Aged ,education.field_of_study ,030505 public health ,business.industry ,Health Policy ,Public Health, Environmental and Occupational Health ,Stroke Rehabilitation ,Hispanic or Latino ,Abstinence ,medicine.disease ,Home Care Services ,Health equity ,United States ,Black or African American ,Cross-Sectional Studies ,Anthropology ,Female ,0305 other medical science ,business ,Demography - Abstract
Significant racial and ethnic disparities in stroke risk factors, occurrence and outcomes persist in the United States. This article examines socio-economic and health disparities in a diverse, hypertensive sample of 495 post-stroke Black, non-Hispanic and Hispanic home health patients at risk of a recurrent stroke due to elevated systolic blood pressure (SBP), defined as SBP ≥ 140 mmHg. The article, which analyzes cross-sectional data, focuses on correlates of patients’ SBP – the leading modifiable cause of stroke – and physical function – a key stroke sequela and indicator of post-stroke quality of life. Of the 495 participants, 69.7% were Black, non-Hispanic, and 30.3% Hispanic. Black participants had significantly higher mean SBP than Hispanics. After controlling for multiple potential confounders/predictors, being Black was associated with a 3.55 mmHg elevation in SBP relative to being Hispanic. There were no significant Black/Hispanic differences in physical function measures. Seven independent variables significantly predicted better physical function: being male, younger, having fewer comorbidities, lower BMI, fewer depressive symptoms, higher health literacy and current alcohol drinking (vs abstinence). Our data provide a unique comparison of homebound Black and Hispanic stroke survivors at heightened risk of recurrent stroke absent targeted intervention. The finding of a significant Black/Hispanic disparity in SBP is striking in this narrowly defined home health care population all of whom are at risk for recurrent stroke. Priority should be given to culturally tailored interventions designed to link vulnerable home care patients to continuous, responsive hypertension care.
- Published
- 2018
38. Mining fall-related information in clinical notes: Comparison of rule-based and novel word embedding-based machine learning approaches
- Author
-
Ofrit Bar-Bachar, Margaret V. McDonald, Maxim Topaz, Katherine M. Gaddis, Kathryn H. Bowles, Yoav Goldberg, and Ludmila Murga
- Subjects
Word embedding ,Computer science ,Health Informatics ,Machine learning ,computer.software_genre ,Health informatics ,Machine Learning ,03 medical and health sciences ,0302 clinical medicine ,Resource (project management) ,Data Mining ,Electronic Health Records ,Humans ,030212 general & internal medicine ,030304 developmental biology ,Natural Language Processing ,0303 health sciences ,business.industry ,Rule-based system ,Allied health professions ,Computer Science Applications ,Classified information ,Systems architecture ,Accidental Falls ,Artificial intelligence ,User interface ,business ,computer - Abstract
Background Natural language processing (NLP) of health-related data is still an expertise demanding, and resource expensive process. We created a novel, open source rapid clinical text mining system called NimbleMiner. NimbleMiner combines several machine learning techniques (word embedding models and positive only labels learning) to facilitate the process in which a human rapidly performs text mining of clinical narratives, while being aided by the machine learning components. Objective This manuscript describes the general system architecture and user Interface and presents results of a case study aimed at classifying fall-related information (including fall history, fall prevention interventions, and fall risk) in homecare visit notes. Methods We extracted a corpus of homecare visit notes (n = 1,149,586) for 89,459 patients from a large US-based homecare agency. We used a gold standard testing dataset of 750 notes annotated by two human reviewers to compare the NimbleMiner’s ability to classify documents regarding whether they contain fall-related information with a previously developed rule-based NLP system. Results NimbleMiner outperformed the rule-based system in almost all domains. The overall F- score was 85.8% compared to 81% by the rule based-system with the best performance for identifying general fall history (F = 89% vs. F = 85.1% rule-based), followed by fall risk (F = 87% vs. F = 78.7% rule-based), fall prevention interventions (F = 88.1% vs. F = 78.2% rule-based) and fall within 2 days of the note date (F = 83.1% vs. F = 80.6% rule-based). The rule-based system achieved slightly better performance for fall within 2 weeks of the note date (F = 81.9% vs. F = 84% rule-based). Discussion & conclusions NimbleMiner outperformed other systems aimed at fall information classification, including our previously developed rule-based approach. These promising results indicate that clinical text mining can be implemented without the need for large labeled datasets necessary for other types of machine learning. This is critical for domains with little NLP developments, like nursing or allied health professions.
- Published
- 2018
39. Self-care management questionnaire for long-term indwelling urinary catheter users
- Author
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Wan Tang, Mary H. Wilde, Margaret V. McDonald, Shivani Shah, James M. McMahon, Eileen Fairbanks, and Judith Brasch
- Subjects
medicine.medical_specialty ,030504 nursing ,Psychometrics ,business.industry ,Urology ,medicine.medical_treatment ,030232 urology & nephrology ,Construct validity ,Confirmatory factor analysis ,Exploratory factor analysis ,Urinary catheterization ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,Randomized controlled trial ,Cronbach's alpha ,law ,Physical therapy ,Self-monitoring ,Medicine ,Neurology (clinical) ,0305 other medical science ,business - Abstract
Aims Self-management is believed to be an important behavioral capacity in people with chronic illness, and self-efficacy is an important component contributing to self-management. Two new and related measures for urinary catheter self-efficacy (C-SE) and self-management (C-SMG) were developed based on existing tools and tested for psychometrics for use in a randomized clinical trial (RCT) teaching urinary catheter self-management. Methods The instruments were evaluated at baseline (intake face to face interview) with 202 persons and with 158 of the same individuals 6 months later by telephone interviews. Exploratory factor analysis was conducted in an iterative process related to items’ theoretical and statistical appropriateness. To assess construct validity and goodness of fit for model testing, confirmatory factor analysis was conducted with the samples at intake and 6 months. Also, bivariate analyses were conducted of the measures in relation to each other. Results Both scales were modified reducing the items to 13 in each, with four factors in C-SE and three factors in C-SMG. Reliability testing (Cronbach's alpha) was viewed as satisfactory for both scales, though some of the subscale (factors) reliabilities were lower in the self-management measure. Confirmatory factor analysis was adequate. Correlation of the two instruments (r = 0.25, P
- Published
- 2015
40. Successful recruitment methods in the community for a two-site clinical trial
- Author
-
Judith Brasch, Eileen Fairbanks, James M. McMahon, Shivani Shah, Margaret V. McDonald, and Mary H. Wilde
- Subjects
Clinical Trials as Topic ,medicine.medical_specialty ,education.field_of_study ,business.industry ,Patient Selection ,Population ,Alternative medicine ,Article ,law.invention ,Clinical trial ,Creative problem-solving ,Nursing ,Randomized controlled trial ,law ,medicine ,Community setting ,Recruitment methods ,education ,business ,General Nursing - Abstract
Effective screening and recruitment are essential to the success of randomized clinical trials. This report is to describe key screening and recruitment strategies in a two site randomized clinical trial (RCT) conducted in community settings with a vulnerable chronically ill population and to suggest valuable approaches when planning trials. Differences between sites in a complex study with two considerably different environments (academic versus home care) and their participant pools presented challenges which required different screening and recruitment methods. A high level of communication between sites, creative problem solving and the ability to be flexible when problems were encountered were needed for successful screening and recruitment.
- Published
- 2014
41. Perceived Value of a Urinary Catheter Self-Management Program in the Home
- Author
-
Eileen Fairbanks, Shivani Shah, Feng Zhang, Mary H. Wilde, Margaret V. McDonald, and Judith Brasch
- Subjects
Adult ,Male ,Value (ethics) ,medicine.medical_specialty ,Health (social science) ,MEDLINE ,Article ,law.invention ,Catheters, Indwelling ,Patient Education as Topic ,Randomized controlled trial ,Nursing ,law ,Intervention (counseling) ,Health care ,Humans ,Medicine ,Self management program ,Urinary catheter ,Advanced and Specialized Nursing ,Community and Home Care ,business.industry ,General Medicine ,Community Health Nursing ,Self Care ,Catheter ,Physical therapy ,Female ,Urinary Catheterization ,business ,Goals - Abstract
A long-term indwelling urinary catheter intervention was tested in a randomized trial that is described in this article. The perceived value of the intervention to the catheter users, one of the study’s specific aims, was assessed at the end of their 12-month participation and is reported here. Study participants’ responses, our findings, and implications for home healthcare are discussed.
- Published
- 2013
42. Can the Care Transitions Measure Predict Rehospitalization Risk or Home Health Nursing Use of Home Healthcare Patients?
- Author
-
Miriam Ryvicker, Sridevi Sridharan, Margaret V. McDonald, Timothy R. Peng, Penny H. Feldman, and Melissa Trachtenberg
- Subjects
Male ,Patient Transfer ,media_common.quotation_subject ,Home health nursing ,Patient Readmission ,Risk Assessment ,Nursing ,Agency (sociology) ,Health care ,Humans ,Medicine ,Transitional care ,Quality (business) ,Performance measurement ,Qualitative Research ,Aged ,media_common ,Service (business) ,business.industry ,Health Policy ,Public Health, Environmental and Occupational Health ,Emergency department ,medicine.disease ,Home Care Services ,United States ,Logistic Models ,Female ,Medical emergency ,business - Abstract
The Care Transitions Measure (CTM) was designed to assess the quality of patient transitions from the hospital. Many hospitals are using the measure to inform their efforts to improve transitional care. We sought to determine if the measure would have utility for home healthcare providers by predicting newly admitted patients at heightened risk for emergency department use, rehospitalization, or increased home health nursing visits. The CTM was administered to 495 home healthcare patients shortly after hospital discharge and home healthcare admission. Follow-up interviews were completed 30 and 60 days post hospital discharge. Interview data were supplemented with agency assessment and service use data. We did not find evidence that the CTM could predict home healthcare patients having an elevated risk for emergent care, rehospitalization, or higher home health nursing use. Because Medicare/Medicaid-certified home healthcare providers already use a comprehensive, mandated start of care assessment, the CTM may not provide them additional crucial information. Process and outcome measurement is increasingly becoming part of usual care. Selection of measures appropriate for each service setting requires thorough site-specific evaluation. In light of our findings, we cannot recommend the CTM as an additional measure in the home healthcare setting.
- Published
- 2013
43. Long-term urinary catheter users self-care practices and problems
- Author
-
Judith Brasch, Wan Tang, Shivani Shah, Eileen Fairbanks, Mary H. Wilde, Eileen Scheid, Margaret V. McDonald, and James M. McMahon
- Subjects
Adult ,Male ,medicine.medical_specialty ,Adolescent ,Demographics ,medicine.medical_treatment ,MEDLINE ,Article ,Urinary catheterization ,Young Adult ,Nursing ,medicine ,Humans ,Intensive care medicine ,Urinary catheter ,General Nursing ,Aged ,Aged, 80 and over ,business.industry ,Urinary retention ,General Medicine ,Middle Aged ,Indwelling urinary catheter ,Self Care ,Catheter ,Cross-Sectional Studies ,Self care ,Female ,medicine.symptom ,Urinary Catheterization ,business - Abstract
To characterise a sample of 202 adult community-living long-term indwelling urinary catheter users, to describe self-care practices and catheter problems, and to explore relationships among demographics, catheter practices and problems.Long-term urinary catheter users have not been well studied, and persons using the device indefinitely for persistent urinary retention are likely to have different patterns of catheter practices and problems.The study was a cross-sectional descriptive and exploratory analysis.Home interviews were conducted with catheter users who provided information by self-reported recall over the previous two months. Data were analysed by descriptive statistics and tests of association between demographics, catheter practices and catheter problems.The sample was widely diverse in age (19-96 years), race and medical diagnosis. Urethral catheters were used slightly more often (56%) than suprapubic (44%), for a mean of six years (SD 7 years). Many persons were highly disabled, with 60% having difficulty in bathing, dressing, toileting and getting out of the bed; 19% also required assistance in eating. A high percentage of catheter problems were reported with: 43% experiencing leakage (bypassing of urine), 31% having had a urinary tract infection, 24% blockage of the catheter, 23% catheter-associated pain and 12% accidental dislodgment of the catheter. Treatments of catheter-related problems contributed to additional health care utilisation, including extra nurse or clinic visits, trips to the emergency department or hospitalisation. Symptoms of catheter-associated urinary tract infections were most often related to changes in the colour or character of urine or generalised symptoms.Catheter-related problems contribute to excess morbidity and health care utilisation and costs.More research is needed in how to minimise catheter-associated problems in long-term catheter users. Information from this study could help inform the development of interventions in this population.
- Published
- 2013
44. Recent Research on Medication Management
- Author
-
Margaret V. McDonald and Frances Dooley
- Subjects
Text mining ,business.industry ,MEDLINE ,Medicine ,General Medicine ,Medical emergency ,business ,medicine.disease - Published
- 2016
45. The Impact of COPD on Quality of Life, Productivity Loss, and Resource Use among the Elderly United States Workforce
- Author
-
Jan-Samuel Wagner, Hemal Shah, Margaret V. McDonald, Marco DiBonaventura, Jun Su, Ryne Paulose-Ram, and Kelly H. Zou
- Subjects
Employment ,Male ,Pulmonary and Respiratory Medicine ,Gerontology ,Activities of daily living ,Office Visits ,Cross-sectional study ,Population ,Black People ,Comorbidity ,Efficiency, Organizational ,Pulmonary Disease, Chronic Obstructive ,Quality of life (healthcare) ,Absenteeism ,Health care ,Humans ,Medicine ,education ,Aged ,Aged, 80 and over ,education.field_of_study ,COPD ,business.industry ,medicine.disease ,Health Surveys ,United States ,Hospitalization ,Cross-Sectional Studies ,Case-Control Studies ,Multivariate Analysis ,Presenteeism ,Quality of Life ,Female ,Emergency Service, Hospital ,business - Abstract
To address the gap in knowledge about the impact of chronic obstructive pulmonary disease (COPD) on older working adults, this study examined quality of life, worker productivity, and healthcare resource utilization among employed adults aged 65 and older with and without COPD. Among 2009 National Health and Wellness Survey (a cross-sectional, internet-based survey representative of the US adult population) respondents, employed adults aged 65 years and older, with COPD (n = 297) and without COPD (n = 3061), were included in analyses. Impact of self-reported COPD diagnosis on mean quality of life (using health utilities and mental, MCS, and physical, PCS, component summary scores from SF-12v2), work productivity and activity impairment (using the WPAI questionnaire), and resource use were examined. Adjusting for demographic and health characteristics such as co-morbidities (weighted to project to the US population) in regression models (linear, negative binomial, or logistic, as appropriate given the outcome measure), older workers with COPD reported significantly lower MCS (52.1 vs. 53.4, p < .05), PCS (40.3 vs. 47.2, p < .05), and health utilities (0.72 vs. 0.79, p < .05) than those without COPD, and significantly greater percentages of impairment while at work (presenteeism) (12.6% vs. 8.7%, p < .0001), overall work impairment (absenteeism and presenteeism combined) (19.3% vs. 10.0%, p < .05), and impairment in daily activities (23.9% vs. 13.7%, p < .05). There were no significant differences in absenteeism or healthcare use. Quality of life and work productivity suffered among employed adults aged 65 years and older with COPD, emphasizing the need for disease management in this population.
- Published
- 2012
46. Medication Management
- Author
-
Penny H. Feldman, Janice B. Foust, Ellen T. Kurtzman, Margaret V. McDonald, Dhara Naik, Beth Costello, and Annette M Totten
- Subjects
Advanced and Specialized Nursing ,Community and Home Care ,Geriatrics ,medicine.medical_specialty ,Health (social science) ,Total quality management ,Best practice ,media_common.quotation_subject ,MEDLINE ,Foundation (evidence) ,General Medicine ,Evidence-based medicine ,Quality of life (healthcare) ,Nursing ,Excellence ,medicine ,Psychology ,media_common - Abstract
The Medication Management Evidence Brief included in this issue is part of a National Framework for Geriatric Home Care Excellence to benefit older patients through practice improvement efforts. The Center for Home Care Policy & Research, Visiting Nurse Service of New York, spearheaded this initiative with funding from the John A. Hartford Foundation. A National Advisory Council of experts in geriatrics and home care guided development of the Framework by building on the foundation of what older adults want from home care (eg, quality of life, choices, and optimal function). They identified cross-cutting principles of high quality care (eg, relationship-centered, interdisciplinary, evidence-based, individualized, focused on communication, and care over the long-term) and strategies for implementing best practices, which are summarized in an Initiative Overview Brief. In addition to Medication Management, Evidence Briefs were produced on five other key practice areas for geriatric home care. The Framework recommendations and all the briefs are available at http://champ-program.org/framework/.
- Published
- 2009
47. Prevalence, Awareness, and Management of Hypertension, Dyslipidemia, and Diabetes Among United States Adults Aged 65 and Older
- Author
-
Margaret V. McDonald, Alan N. Unger, Michael B. Lustik, and Robin P. Hertz
- Subjects
Male ,Gerontology ,Health Knowledge, Attitudes, Practice ,Aging ,medicine.medical_specialty ,National Health and Nutrition Examination Survey ,Cross-sectional study ,Population ,Severity of Illness Index ,Age Distribution ,Prevalance ,Predictive Value of Tests ,Risk Factors ,Epidemiology ,Odds Ratio ,Prevalence ,medicine ,Humans ,Sex Distribution ,Disease management (health) ,education ,Geriatric Assessment ,Aged ,Dyslipidemias ,Aged, 80 and over ,education.field_of_study ,business.industry ,Diabetes ,Articles ,Odds ratio ,Awareness ,Prognosis ,medicine.disease ,Health Surveys ,Journal of Gerontology: Medical Sciences ,United States ,Cross-Sectional Studies ,Logistic Models ,High cholestrol ,Diabetes Mellitus, Type 2 ,Older adults ,Hypertension ,Female ,Geriatrics and Gerontology ,business ,Attitude to Health ,Medicaid ,Dyslipidemia - Abstract
HYPERTENSION, dyslipidemia, and diabetes are established risk factors for cardiovascular disease (CVD) morbidity and mortality (1). Adults aged 65 and older are disproportionately affected by these factors, and although they make up only 12% of the total United States (U.S.) population, they incur 62% of national health care expenses for heart conditions (2,3). CVD risk reduction strategies among older adults can lead to a decline in premature CVD morbidity and mortality (4–7). However, the past decade has shown a general increase in CVD risk factors in this population along with suboptimal control rates. CVD mortality remains the number one cause of death among adults aged 65 and older, accounting for 31% of all deaths in this age group in 2003 (8–11). The prevalence and management (treatment and control) of cardiovascular risk factors among elderly people aged 65 and older has not been well described, yet this population will nearly double from 37 million in 2005 to 72 million in 2030 (2,12) presenting challenges to the Centers for Medicare and Medicaid Services, which provides the primary health insurance program, Medicare, to most of these adults. Knowledge of the current magnitude of hypertension, dyslipidemia, and diabetes in this population is important for health care resource allocation, disease management, and education (13,14). The National Health and Nutrition Examination Survey (NHANES) is a nationally representative survey of noninstitutionalized adults providing data on a wide variety of health conditions through in-person interviews at home, followed by clinical examinations and laboratory tests in a mobile examination center (15). This study presents national-level data from the NHANES 1999–2004 to estimate the prevalence, awareness, pharmacologic treatment, and control of hypertension, dyslipidemia, and diabetes among adults 65 years of age and older. A number of publications have used the NHANES 2003–2004 data to report on aspects of hypertension, high cholesterol, or diabetes in selected subpopulations; however, these have not specifically addressed awareness, treatment, and control in adults aged 65 and older (8,9,16–19). Our study updates the current literature with analyses of these three cardiovascular risk factors, combining the NHANES 2003–2004 with the NHANES 1999–2002 data in order to present a more robust sample. Prevalence estimates in this study are based on clinical examination rather than self-reported data; therefore, prevalence rates for each condition include diagnosed and undiagnosed disease. We also present predictors of awareness, treatment, and control for these three CVD risk factors.
- Published
- 2009
48. Exploring Diabetic Care Deficiencies and Adverse Events in Home Healthcare
- Author
-
Margaret V. McDonald, Marcia Moodie, Penny H. Feldman, and Lori J. King
- Subjects
Male ,Medical Audit ,business.industry ,Event (computing) ,Health Policy ,Public Health, Environmental and Occupational Health ,MEDLINE ,Retrospective cohort study ,medicine.disease ,Home Care Services ,Centers for Medicare and Medicaid Services, U.S ,United States ,Diabetes Complications ,Diabetic care ,Health care ,Humans ,Medicine ,Female ,Medical emergency ,business ,Adverse effect ,Medicaid ,Reporting system ,Aged ,Retrospective Studies - Abstract
Little information is available about the strength of the relationship between home healthcare practices and the potential adverse events the Centers for Medicare and Medicaid Services tracks through its uniform reporting system. We examined charts of patients who experienced a hyperglycemic or hypoglycemic emergent event to learn more about how home healthcare processes may contribute to an adverse event and to explore other factors that may contribute to a patient's health outcome. Implicit peer review, informed by an explicit review process, determined that 10% of the emergent care events were probably avoidable if home care had been optimal, 56% were potentially avoidable, and 34% were unavoidable.
- Published
- 2008
49. Research on Reducing Avoidable Hospitalizations
- Author
-
Judith C, James-Borga, Natalie, Carey, and Margaret V, McDonald
- Subjects
Hospitalization ,Advanced and Specialized Nursing ,Community and Home Care ,Health (social science) ,Research ,Nursing Services ,Humans ,General Medicine ,Home Care Services ,Patient Readmission - Published
- 2008
50. Finding Success in Medication Management
- Author
-
Margaret V. McDonald and Laura E. Peterson
- Subjects
Community and Home Care ,Geriatrics ,medicine.medical_specialty ,Quality management ,Leadership and Management ,business.industry ,Public Health, Environmental and Occupational Health ,Target audience ,Coaching ,Patient safety ,Nursing ,Home health ,Online course ,Medicine ,business ,Curriculum - Abstract
This article outlines the incidence and risk of medication errors in older home health care patients and reasons why improving medication management has become a national priority. The article also describes an initiative that was developed to improve geriatric medication management. The Visiting Nurse Associations of America (VNAA) Curricula for Homecare Advances in Management and Practice (CHAMP) program offers a multimodal, geriatric care, quality improvement educational approach that includes an online course, coaching calls, in-person workshops, and a faculty-moderated peer-to-peer support listserv. The target audience is home care frontline nurse and therapy managers. Course topics include mastering medication assessment and reconciliation, monitoring for complications, and improving patient adherence. In addition, the course includes strategies to help embed the capacity for continuous practice improvement within agencies.
- Published
- 2008
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