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2. Additional file 1 of International severe asthma registry (ISAR): protocol for a global registry

Author

J. Mark FitzGerald, Tran, Trung N., Alacqua, Marianna, Altraja, Alan, Backer, Vibeke, Bjermer, Leif, Bjornsdottir, Unnur, Bourdin, Arnaud, Brusselle, Guy, Lakmini Bulathsinhala, Busby, John, Canonica, Giorgio W., Carter, Victoria, Isha Chaudhry, Cho, You Sook, Christoff, George, Cosio, Borja G., Costello, Richard W., Eleangovan, Neva, Gibson, Peter G., Heaney, Liam G., Heffler, Enrico, Hew, Mark, Naeimeh Hosseini, Iwanaga, Takashi, Jackson, David J., Jones, Rupert, Koh, Mariko S., Le, Thao, Lehtimäki, Lauri, Ludviksdottir, Dora, Zee, Anke H. Maitland-Van Der, Menzies-Gow, Andrew, Murray, Ruth B., Papadopoulos, Nikolaos G., Perez-De-Llano, Luis, Peters, Matthew, Pfeffer, Paul E., Popov, Todor A., Porsbjerg, Celeste M., Price, Chris A., Rhee, Chin K., Sadatsafavi, Mohsen, Tohda, Yuji, Wang, Eileen, Wechsler, Michael E., Zangrilli, James, and Price, David B.

Subjects
surgical procedures, operative, education, macromolecular substances, digestive system, digestive system diseases
Abstract

Additional file 1: Appendix. International Severe Asthma Registry study group.

Published
2020
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3. Additional file 3 of International severe asthma registry (ISAR): protocol for a global registry

Author

J. Mark FitzGerald, Tran, Trung N., Alacqua, Marianna, Altraja, Alan, Backer, Vibeke, Bjermer, Leif, Bjornsdottir, Unnur, Bourdin, Arnaud, Brusselle, Guy, Lakmini Bulathsinhala, Busby, John, Canonica, Giorgio W., Carter, Victoria, Isha Chaudhry, Cho, You Sook, Christoff, George, Cosio, Borja G., Costello, Richard W., Eleangovan, Neva, Gibson, Peter G., Heaney, Liam G., Heffler, Enrico, Hew, Mark, Naeimeh Hosseini, Iwanaga, Takashi, Jackson, David J., Jones, Rupert, Koh, Mariko S., Le, Thao, Lehtimäki, Lauri, Ludviksdottir, Dora, Zee, Anke H. Maitland-Van Der, Menzies-Gow, Andrew, Murray, Ruth B., Papadopoulos, Nikolaos G., Perez-De-Llano, Luis, Peters, Matthew, Pfeffer, Paul E., Popov, Todor A., Porsbjerg, Celeste M., Price, Chris A., Rhee, Chin K., Sadatsafavi, Mohsen, Tohda, Yuji, Wang, Eileen, Wechsler, Michael E., Zangrilli, James, and Price, David B.

Subjects
nervous system, education, macromolecular substances, health care economics and organizations, respiratory tract diseases
Abstract

Additional file 3: Table S2. International Severe Asthma Registry bolt-on variables.

Published
2020
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4. Additional file 4 of International severe asthma registry (ISAR): protocol for a global registry

Author

J. Mark FitzGerald, Tran, Trung N., Alacqua, Marianna, Altraja, Alan, Backer, Vibeke, Bjermer, Leif, Bjornsdottir, Unnur, Bourdin, Arnaud, Brusselle, Guy, Lakmini Bulathsinhala, Busby, John, Canonica, Giorgio W., Carter, Victoria, Isha Chaudhry, Cho, You Sook, Christoff, George, Cosio, Borja G., Costello, Richard W., Eleangovan, Neva, Gibson, Peter G., Heaney, Liam G., Heffler, Enrico, Hew, Mark, Naeimeh Hosseini, Iwanaga, Takashi, Jackson, David J., Jones, Rupert, Koh, Mariko S., Le, Thao, Lehtimäki, Lauri, Ludviksdottir, Dora, Zee, Anke H. Maitland-Van Der, Menzies-Gow, Andrew, Murray, Ruth B., Papadopoulos, Nikolaos G., Perez-De-Llano, Luis, Peters, Matthew, Pfeffer, Paul E., Popov, Todor A., Porsbjerg, Celeste M., Price, Chris A., Rhee, Chin K., Sadatsafavi, Mohsen, Tohda, Yuji, Wang, Eileen, Wechsler, Michael E., Zangrilli, James, and Price, David B.

Subjects
education, macromolecular substances, health care economics and organizations, respiratory tract diseases
Abstract

Additional file 4: Table S3. International Severe Asthma Registry optional additional research variables.

Published
2020
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5. Additional file 2 of International severe asthma registry (ISAR): protocol for a global registry

Author

J. Mark FitzGerald, Tran, Trung N., Alacqua, Marianna, Altraja, Alan, Backer, Vibeke, Bjermer, Leif, Bjornsdottir, Unnur, Bourdin, Arnaud, Brusselle, Guy, Lakmini Bulathsinhala, Busby, John, Canonica, Giorgio W., Carter, Victoria, Isha Chaudhry, Cho, You Sook, Christoff, George, Cosio, Borja G., Costello, Richard W., Eleangovan, Neva, Gibson, Peter G., Heaney, Liam G., Heffler, Enrico, Hew, Mark, Naeimeh Hosseini, Iwanaga, Takashi, Jackson, David J., Jones, Rupert, Koh, Mariko S., Le, Thao, Lehtimäki, Lauri, Ludviksdottir, Dora, Zee, Anke H. Maitland-Van Der, Menzies-Gow, Andrew, Murray, Ruth B., Papadopoulos, Nikolaos G., Perez-De-Llano, Luis, Peters, Matthew, Pfeffer, Paul E., Popov, Todor A., Porsbjerg, Celeste M., Price, Chris A., Rhee, Chin K., Sadatsafavi, Mohsen, Tohda, Yuji, Wang, Eileen, Wechsler, Michael E., Zangrilli, James, and Price, David B.

Abstract

Additional file 2: Table S1. Full list of ISAR 95 core variables.

Published
2020
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6. [MASK (Mobile Airways Sentinel Network). ARIA's comprehensive solution for mobile app for the multimorbidity of allergic rhinitis and asthma]

Author

Larenas-Linnemann, Désirée, Mullol, Joaquim, Ivancevich, Juan Carlos, Antó, Josep, Cardona, Victoria, Dedeu, Toni, Rodriguez-González, Mónica, Huerta, Yunuen, Neffen, Hugo, Fuentes-Pérez, José Miguel, Rodriguez-Zagal, Eréndira, Valero, Antonio, Zernotti, Mario, Bartra, Joan, Alobid, Isam, Castillo-Vizuete, José Antonio, Dordal, Teresa, Hijano, Rafael, Picado, César, Sastre, Joaquin, Blua, Ariel Eduardo, Jares, Edgardo, Lavrut, Alberto Jorge, Máspero, Jorge, Bedolla-Barajas, Martin, Burguete, Maria, Costa, Maria Del Carmen, Dominguez-Silva, Margarita, Espinoza-Contreras, Jesús Guillermo, Gálvez-Romero, José Luis, Garcia-Cobas, Cecilia Yvonne, Garcia-Cruz, Maria de la Luz Hortensia, Hernández-Velázquez, Luiana, Luna-Pech, Jorge, Matta, Juan José, Mogica-Martinez, Maria Dolores, Rivero-Yeverino, Daniela, Ruiz-Segura, Lucy Tania, Del Rio-Navarro, Blanca, Gómez, Javier, Macias-Weinmann, Alejandra, Murray, Ruth, Onorato, Gabrielle, Laune, Daniel, Bedbrook, Anna, Bousquet, Jean, Centro de Investigación Biomédica en Red Enfermedades Respiratorias (CIBERES), Institut d'Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS), Universitat de Barcelona (UB), Vall d'Hebron University Hospital [Barcelona], IMIM-Hospital del Mar, Generalitat de Catalunya, Contre les MAladies Chroniques pour un VIeillissement Actif en Languedoc-Roussillon (MACVIA-LR), Université Montpellier 1 (UM1)-Centre Hospitalier Régional Universitaire [Montpellier] (CHRU Montpellier)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Centre Hospitalier Universitaire de Nîmes (CHU Nîmes)-Université de Montpellier (UM)-Centre National de la Recherche Scientifique (CNRS)-European Innovation Partnership on Active and Healthy Ageing Reference Site (EIP on AHA), Commission Européenne-Commission Européenne-Organisation Mondiale de la Santé / World Health Organization Office (OMS / WHO), and Centre Hospitalier Régional Universitaire [Montpellier] (CHRU Montpellier)

Subjects
lcsh:Immunologic diseases. Allergy, app móvil, m-salud, conjuntivitis alérgica, ARIA, [SDV]Life Sciences [q-bio], m-Health, Mobil App, Multimorbidity, Self Medication, MASK-AIR, Allergic conjunctivitis, Mobile Applications, Rhinitis, Allergic, Allergic rhinitis, Asthma, asma, mask-aria, Humans, lcsh:RC581-607, rinitis alérgica, Conjunctivitis, Allergic
Abstract

International audience; The vast majority of patients with allergic rhinitis (AR) do not receive the proper management which is recommended by the guidelines, but they frequently self-medicate. MASK (Mobile Airways Sentinel Network) is an integral part of a project that is supported by the European Union againstchronic diseases and focused on active and healthy aging. MASK represents the third phase of ARIA (Allergic Rhinitis and its Impact on Asthma), in which, by using a mobile application in a smart device, the objective is to guide the patient in the control of his/her multi-morbidity, AR and/or allergic conjunctivitis (AC) and/or asthma. The mobile app Allergy Diary by MACVIA-ARIA is free and it is available for both Android and iOS platforms. After it is downloaded to the patient’s cell phone, it fi rst requests some information about the patient’s profi le, allergic pathologies and medication; afterwards, through a visual analog scale, the patient is invited to determine the degree of affectation in the nose, eyes, and bronchi, and its influence on their productivity at work / school. After analyzing the data generated by fi lling the Allergy Diary, it became clear there is a new clinical entity: allergic rhinitis+ allergic conjunctivitis +asthma, with greater effect; in addition to a high level of self-medication: in general, the patient takes medication on days when symptoms are present. The app has already been deployed in 23 countries, including several Spanish-speaking countries.; La mayor\'ia de los pacientes con rinitis alérgica no recibe el manejo idóneo, sino que se automedica. MASK (Mobile Airways Sentinel Network) forma parte integral de un proyecto apoyado por la Unión Europea contra las enfermedades crónicas y enfocado al envejecimiento activo y saludable. Constituye la tercera fase de ARIA (Allergic Rhinitis and its Impact on Asthma), en la cual mediante una aplicación móvil en un dispositivo inteligente se intenta guiar al paciente en el control de su multimorbilidad, rinitis o conjuntivitis alérgicas o asma. La aplicación Diario de Alergia por MACVIA-ARIA es gratuita y está disponible para Android e iOS. Al descargarla al celular del paciente, a este se le piden datos de su perfil, patolog\'ias alérgicas y medicación; posteriormente, mediante una escala visual analógica se le invita a determinar el grado de afectación en nariz, ojos y bronquios y su influencia sobre su productividad laboral/escolar. Con los datos del Diario de Alergia se observa que existe un nuevo patrón de presentación: rinitis alérgica + conjuntivitis alérgica + asma, con mayor afectación, as\'i como un alto nivel de automedicación: en general, el paciente toma medicación cuando presenta s\'intomas. La app se ha desplegado en 23 pa\'ises, incluyendo varios pa\'ises hispanohablantes.

Published
2019
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7. MOESM1 of Next-generation ARIA care pathways for rhinitis and asthma: a model for multimorbid chronic diseases

Author

J. Bousquet, Schünemann, Holger, Togias, Alkis, Erhola, Marina, Hellings, Peter, Zuberbier, Torsten, Agache, Ioana, Ansotegui, Ignacio, Anto, Josep, Bachert, Claus, Becker, Sven, Bedolla-Barajas, Martin, Bewick, Michael, Sinthia Bosnic-Anticevich, Bosse, Isabelle, Boulet, Louis, Bourrez, Jean, Brusselle, Guy, Chavannes, Niels, Elisio Costa, Cruz, Alvaro, Wienczyslawa Czarlewski, Fokkens, Wytske, Joao Fonseca, Gaga, Mina, Tari Haahtela, Illario, Maddalena, Klimek, Ludger, Kuna, Piotr, Kvedariene, Violeta, L. Le, Larenas-Linnemann, Desiree, Laune, Daniel, LourençO, Olga, Menditto, Enrica, Joaquin Mullol, Yashitaka Okamoto, Papadopoulos, Nikos, NhâN Pham-Thi, Picard, Robert, Pinnock, Hilary, Roche, Nicolas, Roller-Wirnsberger, Regina, Rolland, Christine, Boleslaw Samolinski, Sheikh, Aziz, Toppila-Salmi, Sanna, Tsiligianni, Ioanna, Arunas Valiulis, Valovirta, Erkka, Vasankari, Tuula, Maria-Teresa Ventura, Walker, Samantha, Williams, Sian, Akdis, Cezmi, Annesi-Maesano, Isabella, Arnavielhe, Sylvie, Basagana, Xavier, Bateman, Eric, Bedbrook, Anna, K. Bennoor, Benveniste, Samuel, Bergmann, Karl, Slawomir Bialek, Billo, Nils, Bindslev-Jensen, Carsten, Bjermer, Leif, Blain, Hubert, Bonini, Mateo, Bonniaud, Philippe, Bouchard, Jacques, Briedis, Vitalis, Brightling, Christofer, Brozek, Jan, Buhl, Roland, Buonaiuto, Roland, Giorgo Canonica, Cardona, Victoria, Carriazo, Ana, Carr, Warner, Cartier, Christine, Casale, Thomas, Cecchi, Lorenzo, Sarabia, Alfonso Cepeda, Chkhartishvili, Eka, Chu, Derek, Cingi, Cemal, Colgan, Elaine, Sousa, Jaime, Courbis, Anne, Custovic, Adnan, Cvetkosvki, Biljana, D’Amato, Gennaro, Silva, Jane, Dantas, Carina, Dejand Dokic, Dauvilliers, Yves, Dedeu, Antoni, Feo, Giulia, Devillier, Philippe, Capua, Stefania, Dykewickz, Marc, Dubakiene, Ruta, Ebisawa, Motohiro, Yaya El-Gamal, Eller, Esben, Emuzyte, Regina, Farrell, John, Antjie Fink-Wagner, Fiocchi, Alessandro, Fontaine, Jean, Bilun GemicioğLu, Schmid-Grendelmeir, Peter, Gamkrelidze, Amiran, Garcia-Aymerich, Judith, Gomez, Maximiliano, Diaz, Sandra González, Gotua, Maia, Guldemond, Nick, Maria-Antonieta Guzmán, Hajjam, Jawad, Hourihane, John O’B, Humbert, Marc, Iaccarino, Guido, Despo Ierodiakonou, Ivancevich, Juan, Joos, Guy, Ki-Suck Jung, Jutel, Marek, Kaidashev, Igor, Kalayci, Omer, Przemyslaw Kardas, Keil, Thomas, Mussa Khaitov, Khaltaev, Nikolai, Kleine-Tebbe, Jorg, Kowalski, Marek, Kritikos, Vicky, Kull, Inger, Leonardini, Lisa, Lieberman, Philip, Lipworth, Brian, Carlsen, Karin Lodrup, Loureiro, Claudia, Louis, Renaud, Alpana Mair, Marien, Gert, Mahboub, Bassam, Joao Malva, Manning, Patrick, Keenoy, Esteban Manuel, Gailen Marshall, Masjedi, Mohamed, Maspero, Jorge, Mathieu-Dupas, Eve, Poalo Matricardi, Melén, Eric, Melo-Gomes, Elisabete, Meltzer, Eli, Mercier, Jacques, Miculinic, Neven, Mihaltan, Florin, Milenkovic, Branislava, Moda, Giuliana, Maria-Dolores Mogica-Martinez, Yousser Mohammad, Montefort, Steve, Monti, Ricardo, Morais-Almeida, Mario, Mösges, Ralf, Münter, Lars, Muraro, Antonella, Murray, Ruth, Naclerio, Robert, Napoli, Luigi, Namazova-Baranova, Leila, Neffen, Hugo, Kristoff Nekam, Neou, Angelo, Novellino, Enrico, Dieudonné Nyembue, O’Hehir, Robin, Ohta, Ken, Okubo, Kimi, Onorato, Gabrielle, Ouedraogo, Solange, Pali-Schöll, Isabella, Palkonen, Susanna, Panzner, Peter, Hae-Sim Park, Jean-Louis Pépin, Ana-Maria Pereira, Pfaar, Oliver, Paulino, Ema, Phillips, Jim, Plavec, Davor, Popov, Ted, Portejoie, Fabienne, Price, David, Prokopakis, Emmanuel, Benoit Pugin, Raciborski, Filip, Rojin Rajabian-Söderlund, Reitsma, Sietze, Rodo, Xavier, Romano, Antonino, Rosario, Nelson, Menahenm Rottem, Ryan, Dermot, SalimäKi, Johanna, Sanchez-Borges, Mario, Juan-Carlos Sisul, Dirceu Solé, Somekh, David, Talant Sooronbaev, Sova, Milan, Spranger, Otto, Stellato, Cristina, Stelmach, Rafael, Ulrik, Charlotte Suppli, Thibaudon, Michel, To, Teresa, Todo-Bom, Ana, Tomazic, Peter, Valero, Antonio, Valenta, Rudolph, Valentin-Rostan, Marylin, Kleij, Rianne, Vandenplas, Olivier, Vezzani, Giorgio, Frédéric Viart, Viegi, Giovanni, Wallace, Dana, Wagenmann, Martin, Wang, De, Waserman, Susan, Wickman, Magnus, Williams, Dennis, Wong, Gary, Wroczynski, Piotr, Yiallouros, Panayiotis, Yorgancioglu, Arzu, Yusuf, Osman, Heahter Zar, Stéphane Zeng, Zernotti, Mario, Zhang, Luo, Zhong, Nan, and Zidarn, Mihaela

Abstract

Additional file 1. The MASK Study Group.

Published
2019
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8. MOESM1 of A common language to assess allergic rhinitis control: results from a survey conducted during EAACI 2013 Congress

Author

Hellings, Peter, Muraro, Antonella, Fokkens, Wytske, Mullol, Joaquim, Bachert, Claus, G. Canonica, Price, David, Papadopoulos, Nikos, Glenis Scadding, Rasp, Gerd, Demoly, Pascal, Murray, Ruth, and Bousquet, Jean

Abstract

Additional file 1. Survey questions. The questions asked in a quantitative, digital survey carried out during the 32nd EAACI Congress (Milan, Italy) from 22nd to 26th June 2013.The survey was designed to collect views of physicians who treat AR routinely in clinical practice. It includes a representation of a VAS with maker slider that was shown to delegates when considering their response to question 9 of the survey.

Published
2015
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