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This paper reports on findings from two studies focused broadly on the health information practices of queer persons in the American South. The first study consists of semi-structured interviews and focus groups with 65 queer community leaders and members, focusing on their responses to identifying ICT-related barriers to health information. The second study is a participatory design project in which queer individuals received Community Health Worker (CHW) training and certification. As part of their coursework, these CHWs collaborated with health sciences librarians to create an informational resource focused on an issue facing the queer community. By combining the two studies, we offer additional evidence of the cisnormative and heteronormative biases entrenched within ICTs in health contexts and illuminate how communities radically repurpose, or queer, ICTs to uplift and center themselves for health promotion. Findings inform a framework for queer-centered design addressing the importance of affective value within ICTs for development. [ABSTRACT FROM AUTHOR]

Navigating healthcare infrastructures is particularly challenging for queer-identifying individuals, with significant barriers emerging around stigma and practitioner ignorance. Further intersecting, historically marginalised identities such as one's race, age or ability exacerbate such engagement with healthcare, particularly the access to and use of reliable and appropriate health information. We explore the salience of one's queer identity relative to other embodied identities when navigating health information and care for themselves and their communities. Thirty semi-structured interviews with queer community leaders from South Carolina inform our discussion of the role one's queer visibility plays relational to the visibility of other identities. We find that leaders and their communities navigate these intersectional visibilities through unique and iterative approaches to health information seeking, sharing and use predicated upon anti-queer, racist, ableist and misogynistic sentiments. Findings can inform queer-inclusive, intersectionally informed interventions by health and information professionals such as non-profit advocacy organisations and medical librarians. [ABSTRACT FROM AUTHOR]

This conceptual paper identifies future directions for information practices theoretical discourses addressing marginality, community, and embodiment. We extend arguments from critical research identifying how existing discourses fail to capture the nuanced, lived experiences of people and communities confronting marginalization, predominantly via their reinforcement of deficit narratives. We then connect a series of qualitative projects examining the information practices of lesbian, gay, bisexual, transgender, queer, intersex, and asexual communities in the American South with relevant Library and Information Science (LIS) research to examine how marginality, community, and embodiment shape these practices. Specifically, we introduce a conceptual model that describes marginality by framing information practices as tactical and agentic responses to and refutations of social and structural barriers and risks. While some of the information practices of participants and communities appear to be uninformed or unsafe, they represent the products of community sharing and vetting. Embodied navigations further inform participant practices as they navigate information worlds produced and informed by their intersectional identities. These arguments coincide with key categories established within our model that describe information practices: defensive and protective, and community and self. Based on these insights, we offer directions for future research and theory to reorient existing discourses in ways that inspire middle‐range theory building that fully captures people's lived experiences. [ABSTRACT FROM AUTHOR]

Objective: This qualitative research examines how transgender and gender nonbinary (T/GNB) persons from South Carolina navigate informational barriers within healthcare systems. This navigation can be described through the lens of information practices, or how T/GNB participants create, seek, use, and share information to achieve desired healthcare outcomes. Special focus is given to the roles of Information and Communication Technologies (ICTs) in shaping these practices.Materials and Methods: The research utilizes participant data from semistructured interviews and focus groups conducted with 26 T/GNB individuals focusing on their health information practices. Data analysis utilized emic/etic coding and the constant comparative method to identify themes describing transexclusionary information barriers and respondent ICT-led information practices.Results: Findings note healthcare systems producing cisnormativity by design resulting in T/GNB individuals viewing healthcare spaces as exclusionary. Exclusionary barriers included over reliance on medical, expert authority ignoring T/GNB embodiment, and a lack of contextual perspective to identities. In response, T/GNB seek, create, use, and share information via ICTs to challenge exclusionary practices.Discussion: T/GNB ICT use addresses systemic barriers within healthcare systems suggesting a need to reframe healthcare systems through the lens of design justice, one that values T/GNB agency in understanding and producing health knowledge.Conclusion: While many healthcare providers are not intentionally being transexclusionary, the design of healthcare information systems rely on cisnormative values, thus excluding many T/GNB from accessing healthcare in comfortable and safe ways. Shifting toward the values and practices of T/GNB as informed by ICT use will afford healthcare providers ways to undo barriers to care. [ABSTRACT FROM AUTHOR]

While there are calls for new paradigms within the profession, there are also existing subgenres that fit this bill if they would be fully acknowledged. This essay argues that underrepresented and otherwise marginalized scholars have already produced significant work within social, cultural, and community‐oriented paradigms; social justice and advocacy; and, diversity, equity, and inclusion. This work has not been sufficiently valued or promoted. Furthermore, the surrounding structural conditions have resulted in the dismissal, violently reviewed and rejected, and erased work of underrepresented scholars, and the stigmatization and delegitimization of their work. These scholars are "outsiders‐within‐LIS." By identifying the outsiders‐within‐LIS through the frame of standpoint theories, the authors are suggesting that a new paradigm does not need to be created; rather, an existing paradigm needs to be recognized and reprioritized. This reprioritized paradigm of critical sociocultural work has and will continue to creatively enrich and expand the field and decolonize LIS curricula. [ABSTRACT FROM AUTHOR]

Queer communities experience challenges when accessing accurate and comprehensive health information. These challenges span across media and information environments and threaten queer health promotion. This paper explored how 11 queer community health workers (CHW s) in a Southeastern US state respond to, subvert, and resist these challenges when creating digital health information resources for their queer communities. This longitudinal action research occurred over two years and included multiple qualitative data types. We analyzed these data using qualitative coding, following deductive and inductive strategies. Findings demonstrate how queer CHW s: 1) identified risks and barriers to health promotion their communities experienced; 2) created health information resources that proactively guarded against risks and reactively resisted barriers; 3) borrowed content, format, and logic from other digital media sources, remixing and repurposing them in ways relevant to their communities. Findings denote implications for decentering deficit-based approaches to framing the health and media literacies of queer populations. [ABSTRACT FROM AUTHOR]

For librarians to continually demonstrate superior and high-quality service, they must meet the needs of current and potential users. One way that librarians have met the needs of users is by expanding their service offerings online via virtual reference services (VRS). This expansion is particularly critical in the current time of COVID-19. To provide high-quality VRS service, librarians can learn from social question-answering (SQA) sites, whose popularity reflect changing user expectations, motivations, use, and assessment of information. Informed by interviews with 51 users and potential users of both platforms this research examines how strengths from SQA can be leveraged in VRS, and what can be learned from SQA practices to reach potential library users. This study represents one of the few comparisons between VRS and SQA that exist in the literature. [ABSTRACT FROM AUTHOR]

This chapter addresses the shortcomings of current self-efficacy models describing the health information practices of lesbian, gay, bisexual, transgender, queer, intersex, and asexual (LGBTQIA+) communities. Informed by semistructured interviews with 30 LGBTQIA+ community leaders from South Carolina, findings demonstrate how their self-efficacy operates beyond HIV/AIDS research while complicating traditional models that isolate an individual's health information practices from their abundant communal experiences. Findings also suggest that participants engage with health information and resources in ways deemed unhealthy or harmful by healthcare providers. However, such practices are nuanced, and participants carefully navigate them, balancing concerns for community safety and well-being over traditional engagements with healthcare infrastructures. These findings have implications for public and health librarianship when providing LGBTQIA+ communities with health information. Practitioners must comprehend how the collective meanings, values, and lived experiences of LGBTQIA+ communities inform how they create, seek, share, and use health information to engage in successful informational interventions for community health promotion. Otherwise, practitioners risk embracing approaches that apply decontextualized, deficit-based understandings of these health information practices, and lack community relevance. [ABSTRACT FROM AUTHOR]