1. Interdisciplinary psychosocial care for families with inherited cardiovascular diseases
- Author
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Caleshu, C, Kasparian, NA, Edwards, KS, Yeates, L, Semsarian, C, Perez, M, Ashley, E, Turner, CJ, Knowles, JW, Ingles, J, Caleshu, C, Kasparian, NA, Edwards, KS, Yeates, L, Semsarian, C, Perez, M, Ashley, E, Turner, CJ, Knowles, JW, and Ingles, J
- Abstract
Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with life-long cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family members. Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting.
- Published
- 2016