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17 results on '"Kars, MC"'

1. Experiences with a national team-based learning program for advance care planning in pediatric palliative care

Author

Palliatieve Zorg, Intensive care patientenzorg, Expertisecentrum Alg., Cancer, Child Health, Engel, Marijanne, Fahner, Jurrianne C., Hennus, Marije P., Brounen, Marie-José, van Capelle, Carine, de Groot, Marinka A.R., Hermans-Peters, Marion, Hofman, Suzanne C., Joosen, Cindy, Lalbahadoersing-Jharap, Sarmila, Maebe, Sofie, Michiels, Erna M.C., Miedema, Suzanna, Raphael, Martine F, Schieving, Jolanda H., de Weerd, Willemien, Kars, MC, Palliatieve Zorg, Intensive care patientenzorg, Expertisecentrum Alg., Cancer, Child Health, Engel, Marijanne, Fahner, Jurrianne C., Hennus, Marije P., Brounen, Marie-José, van Capelle, Carine, de Groot, Marinka A.R., Hermans-Peters, Marion, Hofman, Suzanne C., Joosen, Cindy, Lalbahadoersing-Jharap, Sarmila, Maebe, Sofie, Michiels, Erna M.C., Miedema, Suzanna, Raphael, Martine F, Schieving, Jolanda H., de Weerd, Willemien, and Kars, MC

Published
2024

5. The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review

Author

Palliatieve Zorg, Cancer, JC onderzoeksprogramma Kanker, Child Health, Engel, Marijanne, Brouwer, Marije A., Jansen, Nienke, Leget, Carlo, Teunissen, Saskia C.C.M., Kars, MC, Palliatieve Zorg, Cancer, JC onderzoeksprogramma Kanker, Child Health, Engel, Marijanne, Brouwer, Marije A., Jansen, Nienke, Leget, Carlo, Teunissen, Saskia C.C.M., and Kars, MC

Published
2023

6. Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

Author

Korfage, I.J. (Ida), Carreras, G., Arnfeldt Christensen, C.M., Billekens, P, Bramley, L., Briggs, L., Bulli, F, Caswell, G, Červ, B., Delden, J.J.M., Deliens, L. (Luc), Dunleavy, L, Eecloo, K., Gorini, G, Groenvold, M. (M.), Hammes, B., Ingravallo, F, Jabbarian, L.J. (Lea), Kars, MC, Kodba-Čeh, H., Lunder, U, Miccinesi, G. (Guido), Mimić, A., Ozbič, P., Seymour, J. (Jane), Simonič, A., Johnsen, AT, Toccafondi, A., Payne, SA, Polinder, S. (Suzanne), Pollock, K, Preston, NJ, Verkissen, MN, Wilcock, A, Zwakman, M, van derHeide, A., Rietjens, J.A.C. (Judith), Korfage, I.J. (Ida), Carreras, G., Arnfeldt Christensen, C.M., Billekens, P, Bramley, L., Briggs, L., Bulli, F, Caswell, G, Červ, B., Delden, J.J.M., Deliens, L. (Luc), Dunleavy, L, Eecloo, K., Gorini, G, Groenvold, M. (M.), Hammes, B., Ingravallo, F, Jabbarian, L.J. (Lea), Kars, MC, Kodba-Čeh, H., Lunder, U, Miccinesi, G. (Guido), Mimić, A., Ozbič, P., Seymour, J. (Jane), Simonič, A., Johnsen, AT, Toccafondi, A., Payne, SA, Polinder, S. (Suzanne), Pollock, K, Preston, NJ, Verkissen, MN, Wilcock, A, Zwakman, M, van derHeide, A., and Rietjens, J.A.C. (Judith)

Abstract

Background Advance care planning (ACP) supports individuals to define, discuss, and record goals and preferences for future medical treatment and care. Despite being internationally recommended, randomised clinical trials of ACP in patients with advanced cancer are scarce. Methods and findings To test the implementation of ACP in patients with advanced cancer, we conducted a cluster-randomised trial in 23 hospitals across Belgium, Denmark, Italy, Netherlands, Slovenia, and United Kingdom in 2015–2018. Patients with advanced lung (stage III/IV) or colorectal (stage IV) cancer, WHO performance status 0–3, and at least 3 months lif

Published
2020
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7. The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study

Author

Hoefnagels,JW, Kars,MC, Fischer,K, Schutgens,REG, Schrijvers,LH, Hoefnagels,JW, Kars,MC, Fischer,K, Schutgens,REG, and Schrijvers,LH

Abstract

JW Hoefnagels,1 MC Kars,2 K Fischer,1 REG Schutgens,1 LH Schrijvers1,3 1Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands; 2Department of General Practice, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, the Netherlands; 3Institute of Nursing Studies, University of Applied Sciences, Utrecht, the NetherlandsCorrespondence: JW HoefnagelsVan Creveldkliniek, Division Internal Medicine and Dermatology, University Medical Center Utrecht, Room C01.409, PO Box 85500, Utrecht 3508, GA, the NetherlandsTel +31 88 75 584 50Fax +31 88755438Email j.w.hoefnagels@umcutrecht.nlPurpose: Adolescents and young adults (AYAs) with severe hemophilia use prophylaxis that requires a high level of adherence. The present study aimed to explore the underlying reason for adherence and non-adherence to prophylaxis in hemophilia from the perspective of AYAs.Patients and Methods: A qualitative study in Dutch AYAs with hemophilia (14– 25 years) using prophylaxis was executed. Focus group interviews and individual interviews were recorded, transcribed, coded and analyzed using an iterative process. Member checking in three respondents was used to validate the potential model.Results: A total of 21 interviews were performed. Parental support decreased when AYAs gained more treatment responsibilities, which resulted in a higher risk for non-adherence. AYAs were weighing their potential bleeding risk per activity based on the wish to do what they prefer while also wanting to simultaneously feel safe. When bleeding with low impact on their daily life occurred, or when bleeding remained absent, AYAs felt safe and the perceived need for prophylaxis decreased.Conclusion: The level of treatment responsibility per AYA and estimated risks per activity were the two main underlying reasons for (non-)adherence.Clinical implications: We suggest using a conversation technique to discuss adherence, especially during bleeding ass

Published
2020

10. Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial

Author

Zwakman, M, van Delden, JJ, Caswell, G, Deliens, L, Ingravallo, F, Jabbarian, Lea, Johnsen, AT, Korfage, Ida, Mimic, A, Arnfeldt, CAM, Preston, NJ, Kars, MC, Zwakman, M, van Delden, JJ, Caswell, G, Deliens, L, Ingravallo, F, Jabbarian, Lea, Johnsen, AT, Korfage, Ida, Mimic, A, Arnfeldt, CAM, Preston, NJ, and Kars, MC

Published
2020

11. Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

Author

Korfage, Ida, Carreras, G, Arnfeldt Christensen, CM, Billekens, P, Bramley, L, Briggs, L, Bulli, F, Caswell, G, ?erv, B, Delden, JJM, Deliens, L, Dunleavy, L, Eecloo, K, Gorini, G, Groenvold, M, Hammes, B, Ingravallo, F, Jabbarian, Lea, Kars, MC, Kodba-?eh, H, Lunder, U, Miccinesi, G, Mimi?, A, Ozbi?, P, Seymour, J, Simoni?, A, Johnsen, AT, Toccafondi, A, Payne, SA, Polinder, Suzanne, Pollock, K, Preston, NJ, Verkissen, MN, Wilcock, A, Zwakman, M, van der Heide, Agnes, Rietjens, Judith, Korfage, Ida, Carreras, G, Arnfeldt Christensen, CM, Billekens, P, Bramley, L, Briggs, L, Bulli, F, Caswell, G, ?erv, B, Delden, JJM, Deliens, L, Dunleavy, L, Eecloo, K, Gorini, G, Groenvold, M, Hammes, B, Ingravallo, F, Jabbarian, Lea, Kars, MC, Kodba-?eh, H, Lunder, U, Miccinesi, G, Mimi?, A, Ozbi?, P, Seymour, J, Simoni?, A, Johnsen, AT, Toccafondi, A, Payne, SA, Polinder, Suzanne, Pollock, K, Preston, NJ, Verkissen, MN, Wilcock, A, Zwakman, M, van der Heide, Agnes, and Rietjens, Judith

Published
2020

12. When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories

Author

Cancer, Palliatieve Zorg, Geboortecentrum Zorg, Arts-assistenten Kinderen, JC onderzoeksprogramma Cancer, MS Neonatologie, Child Health, Infection & Immunity, Brain, ZL Kinder Ner en Nec Medisch, Kochen, Eline, Jenken, F, Boelen, Paul A, Deben, Laura M A, Fahner, Jurriana, van den Hoogen, A, Teunissen, Saskia C.C.M., Geleijns, Karin, Kars, MC, Cancer, Palliatieve Zorg, Geboortecentrum Zorg, Arts-assistenten Kinderen, JC onderzoeksprogramma Cancer, MS Neonatologie, Child Health, Infection & Immunity, Brain, ZL Kinder Ner en Nec Medisch, Kochen, Eline, Jenken, F, Boelen, Paul A, Deben, Laura M A, Fahner, Jurriana, van den Hoogen, A, Teunissen, Saskia C.C.M., Geleijns, Karin, and Kars, MC

Published
2020

14. Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

Author

Zwakman, M, Pollock, K, Bulli, F, Caswell, G, Cerv, B, van Delden, JJ, Deliens, L, van der Heide, Agnes, Jabbarian, Lea, Koba-Ceh, H, Lunder, U, Miccinesi, G, Arnfeldt, CAM, Seymour, J, Toccafondi, A, Verkissen, MN, Kars, MC, Zwakman, M, Pollock, K, Bulli, F, Caswell, G, Cerv, B, van Delden, JJ, Deliens, L, van der Heide, Agnes, Jabbarian, Lea, Koba-Ceh, H, Lunder, U, Miccinesi, G, Arnfeldt, CAM, Seymour, J, Toccafondi, A, Verkissen, MN, and Kars, MC

Published
2019

16. The value of case management in paediatric palliative care

Author

JC onderzoeksprogramma Kanker, Medical Humanities Onderzoek Team 1, Circulatory Health, van Delden, Hans, Grootenhuis, M.A., Kars, MC, Bosman, D.K., Verberne, L.M., JC onderzoeksprogramma Kanker, Medical Humanities Onderzoek Team 1, Circulatory Health, van Delden, Hans, Grootenhuis, M.A., Kars, MC, Bosman, D.K., and Verberne, L.M.

Published
2017

17. Advance care planning - a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study

Author

Rietjens, Judith, Korfage, Ida, Dunleavy, L, Preston, NJ, Jabbarian, Lea, Christensen, CA, de Brito, M, Bulli, F, Caswell, G, Cerv, B, van Delden, J, Deliens, L, Gorini, G, Groenvold, M, Houttekier, D, Ingravallo, F, Kars, MC, Lunder, U, Miccinesi, G, Mimic, A, Paci, E, Payne, S, Polinder, Suzanne, Pollock, K, Seymour, J, Simonic, A, Johnsen, AT, Verkissen, MN, Vries, Esther, Wilcock, A, Zwakman, M, van der Heide, Agnes, Rietjens, Judith, Korfage, Ida, Dunleavy, L, Preston, NJ, Jabbarian, Lea, Christensen, CA, de Brito, M, Bulli, F, Caswell, G, Cerv, B, van Delden, J, Deliens, L, Gorini, G, Groenvold, M, Houttekier, D, Ingravallo, F, Kars, MC, Lunder, U, Miccinesi, G, Mimic, A, Paci, E, Payne, S, Polinder, Suzanne, Pollock, K, Seymour, J, Simonic, A, Johnsen, AT, Verkissen, MN, Vries, Esther, Wilcock, A, Zwakman, M, and van der Heide, Agnes

Abstract

Background: Awareness of preferences regarding medical care should be a central component of the care of patients with advanced cancer. Open communication can facilitate this but can occur in an ad hoc or variable manner. Advance care planning (ACP) is a formalized process of communication between patients, relatives and professional caregivers about patients' values and care preferences. It raises awareness of the need to anticipate possible future deterioration of health. ACP has the potential to improve current and future healthcare decision-making, provide patients with a sense of control, and improve their quality of life. Methods/Design: We will study the effects of the ACP program Respecting Choices on the quality of life of patients with advanced lung or colorectal cancer. In a phase III multicenter cluster randomised controlled trial, 22 hospitals in 6 countries will be randomised. In the intervention sites, patients will be offered interviews with a trained facilitator. In the control sites, patients will receive care as usual. In total, 1360 patients will be included. All participating patients will be asked to complete questionnaires at inclusion, and again after 2.5 and 4.5 months. If a patient dies within a year after inclusion, a relative will be asked to complete a questionnaire on end-of-life care. Use of medical care will be assessed by checking medical files. The primary endpoint is patients' quality of life at 2.5 months post-inclusion. Secondary endpoints are the extent to which care as received is aligned with patients' preferences, patients' evaluation of decision-making processes, quality of end-of-life care and cost-effectiveness of the intervention. A complementary qualitative study will be carried out to explore the lived experience of engagement with the Respecting Choices program from the perspectives of patients, their Personal Representatives, healthcare providers and facilitators. Discussion: Transferring the concept of ACP from care

Published
2016

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