Search

Your search keyword '"Leong Ming Chern"' showing total 12 results
Start Over Author "Leong Ming Chern" Publication Type Electronic Resources
12 results on '"Leong Ming Chern"'

1. Management of patent foramen ovale in embolic stroke of undetermined source patients: Malaysian experts' consensus

Author

Albart, Stephenie Ann, Yusof Khan, Abdul Hanif Khan, Wan Zaidi, Wan Asyraf, Muthuppalaniappan, Annamalar Muthu, Kandavello, Geetha, Koh, Ghee Tiong, Leong, Ming Chern, Liew, Houng Bang, Ong, Beng Hooi, Viswanathan, Shanthi, Fan Kee, Hoo, Looi, Irene, Yap, Yee Guan, Law, Wan Chung, Albart, Stephenie Ann, Yusof Khan, Abdul Hanif Khan, Wan Zaidi, Wan Asyraf, Muthuppalaniappan, Annamalar Muthu, Kandavello, Geetha, Koh, Ghee Tiong, Leong, Ming Chern, Liew, Houng Bang, Ong, Beng Hooi, Viswanathan, Shanthi, Fan Kee, Hoo, Looi, Irene, Yap, Yee Guan, and Law, Wan Chung

Abstract

Introduction: About 20 to 40 of ischaemic stroke causes are cryptogenic. Embolic stroke of undetermined source (ESUS) is a subtype of cryptogenic stroke which is diagnosed based on specific criteria. Even though patent foramen ovale (PFO) is linked with the risk of stroke, it is found in about 25 of the general population, so it might be an innocent bystander. The best way to treat ESUS patients with PFO is still up for discussion. Materials and Methods: Therefore, based on current evidence and expert opinion, Malaysian expert panels from various disciplines have gathered to discuss the management of ESUS patients with PFO. This consensus sought to educate Malaysian healthcare professionals to diagnose and manage PFO in ESUS patients based on local resources and facilities. Results: Based on consensus, the Malaysian expert recommended PFO closure for embolic stroke patients who were younger than 60, had high RoPE scores and did not require long-term anticoagulation. However, the decision should be made after other mechanisms of stroke have been ruled out via thorough investigation and multidisciplinary evaluation. The PFO screening should be made using readily available imaging modalities, ideally contrasttransthoracic echocardiogram (c-TTE) or contrasttranscranial Doppler (c-TCD). The contrast-transesophageal echocardiogram (c-TEE) should be used for the confirmation of PFO diagnosis. The experts advised closing PFO as early as possible because there is limited evidence for late closure. For the post-closure follow-up management, dual antiplatelet therapy (DAPT) for one to three months, followed by single antiplatelet therapy (APT) for six months, is advised. Nonetheless, with joint care from a cardiologist and a neurologist, the multidisciplinary team will decide on the continuation of therapy.

Published
2023

2. Management of patent foramen ovale in embolic stroke of undetermined source patients: Malaysian experts' consensus

Author

Albart, Stephenie Ann, Yusof Khan, Abdul Hanif Khan, Wan Zaidi, Wan Asyraf, Muthuppalaniappan, Annamalar Muthu, Kandavello, Geetha, Koh, Ghee Tiong, Leong, Ming Chern, Liew, Houng Bang, Ong, Beng Hooi, Viswanathan, Shanthi, Fan Kee, Hoo, Looi, Irene, Yap, Yee Guan, Law, Wan Chung, Albart, Stephenie Ann, Yusof Khan, Abdul Hanif Khan, Wan Zaidi, Wan Asyraf, Muthuppalaniappan, Annamalar Muthu, Kandavello, Geetha, Koh, Ghee Tiong, Leong, Ming Chern, Liew, Houng Bang, Ong, Beng Hooi, Viswanathan, Shanthi, Fan Kee, Hoo, Looi, Irene, Yap, Yee Guan, and Law, Wan Chung

Abstract

Introduction: About 20 to 40 of ischaemic stroke causes are cryptogenic. Embolic stroke of undetermined source (ESUS) is a subtype of cryptogenic stroke which is diagnosed based on specific criteria. Even though patent foramen ovale (PFO) is linked with the risk of stroke, it is found in about 25 of the general population, so it might be an innocent bystander. The best way to treat ESUS patients with PFO is still up for discussion. Materials and Methods: Therefore, based on current evidence and expert opinion, Malaysian expert panels from various disciplines have gathered to discuss the management of ESUS patients with PFO. This consensus sought to educate Malaysian healthcare professionals to diagnose and manage PFO in ESUS patients based on local resources and facilities. Results: Based on consensus, the Malaysian expert recommended PFO closure for embolic stroke patients who were younger than 60, had high RoPE scores and did not require long-term anticoagulation. However, the decision should be made after other mechanisms of stroke have been ruled out via thorough investigation and multidisciplinary evaluation. The PFO screening should be made using readily available imaging modalities, ideally contrasttransthoracic echocardiogram (c-TTE) or contrasttranscranial Doppler (c-TCD). The contrast-transesophageal echocardiogram (c-TEE) should be used for the confirmation of PFO diagnosis. The experts advised closing PFO as early as possible because there is limited evidence for late closure. For the post-closure follow-up management, dual antiplatelet therapy (DAPT) for one to three months, followed by single antiplatelet therapy (APT) for six months, is advised. Nonetheless, with joint care from a cardiologist and a neurologist, the multidisciplinary team will decide on the continuation of therapy.

Published
2023

3. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardio-vascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments.Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

4. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardio-vascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments.Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

5. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II. Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments. Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

6. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II. Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments. Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

7. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardio-vascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments.Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

8. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II. Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments. Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

9. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardio-vascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments.Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

10. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoit, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michele, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Reyes, Fernando Baraona, Areias, Maria Emilia, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardio-vascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments.Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

11. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II. Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments. Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

12. Rationale, design and methodology of APPROACH-IS II : International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Author

Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, Moons, Philip, Van Bulck, Liesbet, Kovacs, Adrienne H., Goossens, Eva, Luyckx, Koen, Zaidi, Ali, Wang, Jou-Kou, Yadeta, Dejuma, Windram, Jonathan, Van De Bruaene, Alexander, Thomet, Corina, Thambo, Jean-Benoît, Taunton, Marshall, Sasikumar, Navaneetha, Sandberg, Camilla, Saidi, Arwa, Rutz, Tobias, Ortiz, Lucia, Mwita, Julius Chacha, Moon, Ju Ryoung, Menahem, Samuel, Mattsson, Eva, Mandalenakis, Zacharias, Mahadevan, Vaikom S., Lykkeberg, Birgitte, Leye, Mohamed, Leong, Ming Chern, Ladouceur, Magalie, Ladak, Laila Akbar, Kim, Yuli, Khairy, Paul, Kaneva, Anna, Johansson, Bengt, Jackson, Jamie L., Giannakoulas, George, Gabriel, Harald, Fernandes, Susan M., Enomoto, Junko, Demir, Fatma, de Hosson, Michèle, Constantine, Andrew, Coats, Louise, Christersson, Christina, Cedars, Ari, Caruana, Maryanne, Callus, Edward, Brainard, Sarah, Bouchardy, Judith, Boer, Anna, Baraona Reyes, Fernando, Areias, Maria Emília, Araujo, John Jairo, Andresen, Brith, Amedro, Pascal, Ambassa, Jean-Claude, Amaral, Fernando, Alday, Luis, and Moons, Philip

Abstract

Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II. Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments. Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.

Published
2022
Full Text
View/download PDF

Catalog

Books, media, physical & digital resources
See catalog results