76 results
Search Results
2. A Balancing Act When Children Are Young: Women's Experiences in Shared Parenting Arrangements as Survivors of Domestic Violence.
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Archer-Kuhn, Beth, Hughes, Judith, Saini, Michael, Tam, Dora, Beltrano, Natalie, and Still, Marni
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CHILD care , *RESEARCH methodology , *DOMESTIC violence , *INTERVIEWING , *EXPERIENCE , *PARENTING , *HEALTH literacy , *QUALITATIVE research , *DESCRIPTIVE statistics , *PARENT-child relationships , *THEMATIC analysis , *EMOTIONS , *SOCIAL services , *DIVORCE - Abstract
Purpose: The purpose of this paper is to add to the research literature and begin to fill the gap in knowledge about shared parenting arrangements for women with young children and who have experienced domestic violence (DV), in three Canadian provinces; Alberta, Manitoba and Ontario. Method: This paper reports on the qualitative findings from a mixed methods study on shared parenting from women with children ages 4 and under. Twenty women participated in one-on-one individual interviews through electronic platform utilizing Zoom. Thematic analysis is used to analyze the data. Results: Despite efforts to not exclusively recruit women who had experienced domestic violence (DV) from their former partner, all participants identified as survivors of DV and ongoing survivors of DV, specifically, coercive controlling behaviours. Five themes describe the women's experiences of shared parenting with young children: 1) walking a tight-rope; 2) navigating post-separation relationships; 3) emotional realities of shared parenting; 4) shared parenting outcomes; and, 5) structural challenges. Conclusions: This paper not only adds to the significant and longstanding gap in knowledge directly from women with children ages 4 and under in shared parenting relationships, and who have experienced DV, and also helps to inform social service and legal actors. It is timely with the amendments to the Divorce Act in Canada which now includes DV as a factor in determining the best interests of the child. [ABSTRACT FROM AUTHOR]
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- 2024
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3. 'It's overwhelming at the start': transitioning to public transit use as an older adult.
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Ravensbergen, Léa, Newbold, K. Bruce, and Ganann, Rebecca
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ACTIVE aging , *CONFIDENCE , *TRAVEL , *RESEARCH methodology , *INTERVIEWING , *SELF-efficacy , *QUALITATIVE research , *ABILITY , *TRAINING , *ACCESSIBLE design of public spaces , *PHYSICAL mobility , *RESEARCH funding , *SOCIAL attitudes , *PSYCHOLOGICAL adaptation , *DATA analysis software , *SOCIAL skills , *TRANSPORTATION , *OLD age - Abstract
Independent mobility is an important component of healthy ageing. Public transit may be an affordable way to achieve independent mobility, and yet little is known about older adults' transition to public transit. This paper addresses this research gap by providing an exploration of older adults' experiences transitioning to public transit use, and by comparing these experiences to those of older people who have always travelled using transit. Twenty-four older adults (65+) living in Hamilton, Canada, who use public transit completed semi-structured interviews during which they discussed their experiences when they first began to use transit. These experiences are framed herein with the concept self-efficacy, i.e. how one's belief in their ability to complete a task shapes their ability to complete said task. Results indicate that most older adults acquire skills to transition to public transit, such as trip planning, boarding, knowing where to sit and exiting the bus. These skills are developed through practice. As one gains experience, one becomes more confident in their ability to meet their daily travel needs using transit. Therefore, the transition to public transit as an older adult can be more challenging for those with little experience using public transit. This paper highlights the danger of assuming all older adults will effortlessly take up transit and stresses the importance of older adults gaining experience using public transit. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Humor: A Grief Trigger and Also a Way to Manage or Live With Your Grief.
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Wilson, Donna M., Knox, Michelle, Banamwana, Gilbert, Brown, Cary A., and Errasti-Ibarrondo, Begoña
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WIT & humor , *QUALITATIVE research , *DEATH , *INTERVIEWING , *PSYCHOLOGICAL adaptation , *JUDGMENT sampling , *FAMILY relations , *BEREAVEMENT , *RESEARCH methodology , *GRIEF - Abstract
In 2020–2021, a qualitative study was undertaken using an interpretive description methodology to identify what triggers grief in the first 2 years following the death of a beloved family member, and to gain other helpful insights about grief triggers from bereaved Canadian adult volunteers. In that study, a purposive sampling method was used to select 10 bereaved Canadian adult volunteers for in-depth, semi-structured interviews. This paper reports on the humor findings, as revealed to be a particularly complex grief trigger for many participants, as well as a periodic way for most to manage or live with their grief. Participant quotes and an extended discussion are included to illustrate the importance of these humor findings in relation to grief, and to inform bereaved people, bereavement service providers, and the general public about both helpful aspects and some cautionary considerations about humor. [ABSTRACT FROM AUTHOR]
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- 2024
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5. 'Then I Met This Lovely Police Woman' Young People's Experiences of Engagement with the Criminal Justice System.
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McElvaney, Rosaleen, Collin‐Vezina, Delphine, Alaggia, Ramona, and Simpson, Megan
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QUALITATIVE research , *VIOLENCE , *RESEARCH funding , *LEGAL liability , *INTERVIEWING , *CHILD sexual abuse , *EXPERIENCE , *THEMATIC analysis , *EMOTIONAL trauma , *RESEARCH methodology , *CRIMINAL justice system , *POLICE , *SOCIAL support , *SELF-disclosure - Abstract
Young people's voices detailing how they experienced engagement with the criminal justice system following child sexual abuse, what was helpful or unhelpful and how services can be improved to minimise secondary victimisation and maximise the potential for healing are largely absent from the research literature. This paper draws on semi‐structured interviews with a culturally diverse sample (n = 47) of young people aged 14 to 25 across Ireland and Canada about their experiences of disclosure and engagement with systems. Data were collected pertaining to experiences engaging with law enforcement personnel using thematic analysis with a trauma‐informed lens. The research identified three key themes: the importance of feeling safe through kindness, transparency and being believed; the importance of having a say; and the importance of timely court processes. The study builds on the small body of qualitative research illustrating young people's lived experiences of engaging with the criminal justice system and provides empirical support for promoting a trauma‐informed approach in how police engage with young people. Guidance is offered for police professionals on how to engage with adolescents following sexual abuse. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Tracking activity-based therapy for people living with spinal cord injury or disease: insights gained through focus group interviews with key stakeholders.
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Kaiser, Anita, Sessford, James, Chan, Katherine, Martin, Samantha, McCullum, Shane, Athanasopoulos, Peter, Rice, Chris, Leo, Jennifer, Forrester, Scott, MacRitchie, Iona, Zariffa, José, and Musselman, Kristin E.
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PHYSICAL therapy , *FOCUS groups , *RESEARCH funding , *QUALITATIVE research , *INTERVIEWING , *QUESTIONNAIRES , *CONTENT analysis , *SPINAL cord injuries , *DECISION making , *THEMATIC analysis , *RESEARCH methodology , *QUALITY of life , *RESEARCH , *STAKEHOLDER analysis , *PHYSICAL activity , *WELL-being - Abstract
The development of a tool to track participation in activity-based therapy (ABT) for people with spinal cord injury or disease (SCI/D) was identified as a priority of the Canadian ABT Community of Practice. The objective of this study was to understand multi-stakeholder perspectives on tracking ABT participation across the continuum of care. Forty-eight individuals from six stakeholder groups (persons living with SCI/D; hospital therapists; community trainers; administrators; researchers; and funders, advocates and policy experts) were recruited to participate in focus group interviews. Participants were asked open-ended questions concerning the importance of and parameters around tracking ABT. Transcripts were analyzed using conventional content analysis. Themes reflected the Who, What, Where, When, Why and How of tracking ABT. Participants described the importance of involving hospital therapists, community trainers and individuals with SCI/D in tracking ABT to capture both subjective and objective parameters across the continuum of care and injury trajectory. Digital tracking tools were favoured, although paper-based versions were regarded as a necessity in some circumstances. Findings highlighted the importance of tracking ABT participation for individuals with SCI/D. The information may guide the development of ABT practice guidelines and support the implementation of ABT in Canada. Tracking the details of activity-based therapy (ABT) sessions and programs across the continuum of care and injury trajectory may provide important information to support the development of ABT practice guidelines and implementation strategies. Tracking objective and subjective parameters are needed to provide a comprehensive description of an ABT session and program. Clinicians and individuals with spinal cord injury or disease (SCI/D) should both be able to track ABT to accommodate all settings and types of data. Digital tracking tools, such as an app, may provide an accessible, versatile and efficient way of tracking ABT. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Lived Experience of the Dyad and Their Relationships Following a Fetal Death: A Hermeneutic Phenomenological Study.
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McDonough, Mary Rose and Leone-Sheehan, Danielle
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MEMORY , *GRIEF , *SOCIAL support , *RESEARCH methodology , *SOCIAL media , *MEDICAL personnel , *INTERVIEWING , *PERINATAL death , *SPOUSES , *PATIENTS' families , *EXPERIENCE , *PHENOMENOLOGY , *QUALITATIVE research , *INTERPERSONAL relations , *SOUND recordings - Abstract
Little is known about the lived experience of the dyad following a fetal death and the impact on relationships. The purpose of this paper is to explore the dyadic relationship between partners, with health care providers, and with the baby's memory after birth. This qualitative study utilized hermeneutic phenomenology. The sample included 10 heterosexual dyads from the United States and Canada. All experienced a fetal death between 6 months and 7 years prior to their interviews. The data revealed three themes: (a) The Dyad Relationship: Moving Through the Experience Together; (b) Keeping the Memory Alive: Memorializing the Baby; and (c) Relationships With Health Care Providers: A Spectrum of Caring. The findings from this study provide the beginning knowledge needed to improve the care of dyads who have experienced a fetal death and for future studies to improve care delivery for dyads as their relationships change after fetal death. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Enhancing critical social work practice: Using text-based vignettes in qualitative research.
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Kia, Hannah
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PROFESSIONAL practice , *HIV infections , *FOCUS groups , *GROUNDED theory , *RESEARCH methodology , *ATTITUDE (Psychology) , *CHANGE , *TRANSPHOBIA , *GENDER-nonconforming people , *INTERVIEWING , *SOCIAL stigma , *EXPERIENCE , *QUALITATIVE research , *CONCEPTUAL structures , *ORGANIZATIONAL change , *SOCIAL worker attitudes , *PSYCHOSOCIAL factors , *RESEARCH funding , *CASE studies , *CHILD welfare , *SOCIAL services , *TRANSGENDER people , *SECONDARY analysis , *CISGENDER people - Abstract
There exist ongoing calls among social work scholars and practitioners to cultivate applied knowledge of critical and emancipatory practice. In this paper, I explore the utility of text-based vignettes as instruments that can be used to elicit insight from marginalized service users on critical social work practice. To do this work, I draw on data from interviews with 20 transgender and gender diverse (TGD) social service users, along with 10 social workers, whose responses to a text-based vignette were originally used to build an understanding of the constituents of equitable social work practice with TGD people. Incorporating critical pragmatism as a conceptual framework and constructivist grounded theory as a methodological orientation, I analyze data from this study as an exemplar that substantiates the promise of using text-based vignettes in qualitative social work research to generate knowledge of critical social work practice. Specifically, I demonstrate how text-based vignettes in this study (1) contextualized the meaning, significance, and impact of oppression for service users, (2) built insight on practice that reflects solidarity and allyship, and (3) identified opportunities for social workers' reflexive use of professional power to effect change. Accounting for the tensions between empiricism and critical praxis in social work, I consider the promise of incorporating text-based vignettes to develop empirical social work literature that is rooted in the voices of marginalized service users. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Evaluation of the Special Olympics Canada Coaching Young Athletes Training: Part B How's it Going? A Study of Active Start and FUNdamentals Program Implementation.
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Temple, Viviene A. and Field, Stephanie C.
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SPORTS participation , *EVALUATION of human services programs , *SPORTS for people with disabilities , *RESEARCH methodology , *CHILD development , *PHYSICAL training & conditioning , *MENTORING , *INTERVIEWING , *ATHLETES , *SPORTS , *PUBLIC health , *QUALITATIVE research , *PHENOMENOLOGY , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *RESEARCH funding , *SPORTS events , *ATHLETIC ability , *INTELLECTUAL disabilities , *PHYSICAL education , *ADULT education workshops , *CHILDREN - Abstract
Training staff and volunteers is an important aspect of successful program implementation. This paper follows Part A of an evaluation of the Special Olympics Canada (SOC) Coaching Young Athletes Training course. Consistent with Kirkpatrick's four-level model of training evaluation, Part A evaluated program leaders' reactions to (level 1) and immediate learning from (level 2) the training. This Part B paper covers "on the job" behavior (level 3). In-depth semi-structured interviews were conducted with youth program leaders (n = 11) from eight provinces. Overall, participants felt that more training related to working with children with autism and promoting positive athlete behavior was needed. The findings also lead us to suggest that program leaders need to develop a more fulsome understanding of how to foster skill mastery, including how to practice the same skill in many and varied ways. [ABSTRACT FROM AUTHOR]
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- 2023
10. Implications of time and space factors related with youth substance use prevention: a conceptual review and case study of the Icelandic Prevention Model being implemented in the context of the COVID-19 pandemic.
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Halsall, Tanya, Mahmoud, Kianna, Iyer, Srividya N., Orpana, Heather, Zeni, Megan, and Matheson, Kimberly
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SUBSTANCE abuse prevention , *RISK-taking behavior , *LEISURE , *COVID-19 , *HEALTH services accessibility , *TIME , *RESEARCH methodology , *MEDICAL care , *COMMUNITIES , *INTERVIEWING , *FAMILIES , *TRANSPORTATION of patients , *ACTIVITIES of daily living , *SOCIAL cohesion , *QUALITATIVE research , *RESEARCH funding , *HEALTH , *CASE studies , *THEMATIC analysis , *DATA analysis software , *SUPERVISION of employees , *SPACE perception , *COVID-19 pandemic - Abstract
Purpose: This research examines the implementation of the Icelandic Prevention Model (IPM) in Canada to identify opportunities revealed by the COVID-19 pandemic to re-design our social eco-system to promote wellbeing. This paper has two objectives: 1) to provide a conceptual review of research that applies the bioecological model to youth substance use prevention with a focus on the concepts of time and physical space use and 2) to describe a case study that examines the implementation of the IPM in Canada within the context of the COVID-19 pandemic. Method: Study data were collected through semistructured qualitative interviews with key stakeholders involved in implementing the IPM. Results: Findings are organized within three over-arching themes derived from a thematic analysis: 1) Issues that influence time and space use patterns and youth substance use, 2) Family and community cohesion and influences on developmental context and time use and 3) Opportunities presented by the pandemic that can promote youth wellbeing. Conclusion: We apply the findings to research on the IPM as well as the pandemic to examine opportunities that may support primary prevention and overall youth wellbeing. We use the concepts of time and space as a foundation to discuss implications for policy and practice going forward. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Mental Health of Canadian Military-Connected Children: A Qualitative Study Exploring the Perspectives of Service Providers.
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Hill, Shannon, Williams, Ashley, Khalid-Khan, Sarosh, Reddy, Pappu, Groll, Dianne, Rühland, Lucia, and Cramm, Heidi
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LIFESTYLES , *HEALTH services accessibility , *MILITARY medicine , *ATTITUDES of medical personnel , *PHYSICIAN-patient relations , *RESEARCH methodology , *MENTAL health , *INTERVIEWING , *FAMILIES of military personnel , *QUALITATIVE research , *RESEARCH funding , *PARENT-child relationships , *CONTENT analysis , *PSYCHOLOGICAL stress , *MENTAL health services - Abstract
The military lifestyle can be defined by a triad of unique stressors: frequent relocation, parental absence, and risk of injury, illness and/or death of a serving member. Research has suggested that this unique triad of stressors can impact the mental health of children and youth living in military families. However, research focusing on the mental health of children and youth living in military families overwhelmingly focuses on the American context. Due to key contextual differences, it is unclear to what extent the American findings are representative of military-connected children and youth living in other geographical contexts, such as Canada. A large qualitative study was conducted to explore the mental health of military-connected children in Canada from three perspectives: child, parent, and service provider. This paper reports on the service provider findings. Using individual semi-structured interviews, data were collected from 11 service providers. Data analysis was guided by qualitative content analysis. Two main themes emerged: (1) the mental health of children living in military families may be impacted by the military lifestyle stressors, and (2) the mental health of children living in military families can be impacted by the accessibility and availability of mental health services. While this qualitative study builds upon recent Canadian work that has considered the service provider perspective, additional research is needed to better understand the experiences of service providers who support military-connected children and youth. Highlights: American research shows that the military lifestyle factors can impact the mental health of military-connected children. The mental health of military-connected children has yet to be extensively explored in Canada. The mental health of children living in Canadian military families may be impacted by the military lifestyle stressors. The mental health of Canadian military-connected children can be impacted by the accessibility and availability of mental health services. Our findings can help build capacity and knowledge for service providers who support Canadian military-connected children. [ABSTRACT FROM AUTHOR]
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- 2023
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12. Health equity related challenges and experiences during the rapid implementation of virtual care during COVID-19: a multiple case study.
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Shahid, Simone, Hogeveen, Sophie, Sky, Philina, Chandra, Shivani, Budhwani, Suman, de Silva, Ryan, Bhatia, R. Sacha, Seto, Emily, and Shaw, James
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HEALTH services accessibility , *HEALTH literacy , *HUMAN services programs , *QUALITATIVE research , *RESEARCH funding , *PRIMARY health care , *MEDICAL care , *DIGITAL health , *INTERVIEWING , *TELEMEDICINE , *THEMATIC analysis , *RESEARCH , *RESEARCH methodology , *CONCEPTUAL structures , *HEALTH equity , *CASE studies , *COVID-19 pandemic , *COMMUNITY-based social services , *PATIENT participation - Abstract
Background: Virtual care quickly became of crucial importance to health systems around the world during the COVID-19 pandemic. Despite the potential of virtual care to enhance access for some communities, the scale and pace at which services were virtualized did not leave many organizations with sufficient time and resources to ensure optimal and equitable delivery of care for everyone. The objective of this paper is to outline the experiences of health care organizations rapidly implementing virtual care during the first wave of the COVID-19 pandemic and examine whether and how health equity was considered. Methods: We used an exploratory, multiple case study approach involving four health and social service organizations providing virtual care services to structurally marginalized communities in the province of Ontario, Canada. We conducted semi-structured qualitative interviews with providers, managers, and patients to understand the challenges experienced by organizations and the strategies put in place to support health equity during the rapid virtualization of care. Thirty-eight interviews were thematically analyzed using rapid analytic techniques. Results: Organizations experienced challenges related to infrastructure availability, digital health literacy, culturally appropriate approaches, capacity for health equity, and virtual care suitability. Strategies to support health equity included the provision of blended models of care, creation of volunteer and staff support teams, participation in community engagement and outreach, and securement of infrastructure for clients. We put our findings into the context of an existing framework conceptualizing access to health care and expand on what this means for equitable access to virtual care for structurally marginalized communities. Conclusion: This paper highlights the need to pay greater attention to the role of health equity in virtual care delivery and situate that conversation around existing inequitable structures in the health care system that are perpetuated when delivering care virtually. An equitable and sustainable approach to virtual care delivery will require applying an intersectionality lens on the strategies and solutions needed to address existing inequities in the system. [ABSTRACT FROM AUTHOR]
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- 2023
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13. Doing primary care integration: a qualitative study of meso-level collaborative practices.
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Leslie, Myles, Fadaak, Raad, and Pinto, Nicole
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GENETIC mutation , *COVID-19 , *RESEARCH methodology , *INTERVIEWING , *PRIMARY health care , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *MEDICAL practice , *INTEGRATED health care delivery , *STATISTICAL sampling - Abstract
Background: The integration of Primary Care (PC) into broader health systems has been a goal in jurisdictions around the world. Efforts to achieve integration at the meso-level have drawn particular attention, but there are few actionable recommendations for how to enact a 'pro-integration culture' amongst government and PC governance bodies. This paper describes pragmatic integration activity undertaken by meso-level participants in Alberta, Canada, and suggests ways this activity may be generalizable to other health systems. Methods: 11 semi-structured interviews with nine key informants from meso-level organizations were selected from a larger qualitative study examining healthcare policy development and implementation during the COVID-19 pandemic. Selected interviews focused on participants' experiences and efforts to 'do' integration as they responded to Alberta's first wave of the Omicron variant in September 2021. An interpretive descriptive approach was used to identify repeating cycles in the integration context, and pragmatic integration activities. Results: As Omicron arrived in Alberta, integration and relations between meso-level PC and central health system participants were tense, but efforts to improve the situation were successfully made. In this context of cycling relationships, staffing changes made in reaction to exogenous shocks and political pressures were clear influences on integration. However, participants also engaged in specific behaviours that advanced a pro-integration culture. They did so by: signaling value through staffing and resource choices; speaking and enacting personal and group commitments to collaboration; persevering; and practicing bi-directional communication through formal and informal channels. Conclusions: Achieving PC integration involves not just the reactive work of responding to exogenous factors, but also the proactive work of enacting cultural, relationship, and communication behaviors. These behaviors may support integration regardless of the shocks, staff turnover, and relational freeze-thaw cycles experienced by any health system. [ABSTRACT FROM AUTHOR]
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- 2023
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14. 'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom‐heard communities in big data research.
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Teodorowski, Piotr, Rodgers, Sarah E., Fleming, Kate, Tahir, Naheed, Ahmed, Saiqa, and Frith, Lucy
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EXPERIMENTAL design , *PATIENT participation , *RESEARCH methodology , *SOCIAL media , *SOCIAL constructionism , *COMMUNITIES , *INTERVIEWING , *QUALITATIVE research , *SOUND recordings , *RESEARCH funding , *INTERPROFESSIONAL relations , *DESCRIPTIVE statistics , *SOFTWARE analytics , *THEMATIC analysis , *DATA analysis software , *PUBLIC opinion - Abstract
Background: Big data research requires public support. It has been argued that this can be achieved by public involvement and engagement to ensure that public views are at the centre of research projects. Researchers should aim to include diverse communities, including seldom‐heard voices, to ensure that a range of voices are heard and that research is meaningful to them. Objective: We explored how researchers involve and engage seldom‐heard communities around big data research. Methods: This is a qualitative study. Researchers who had experience of involving or engaging seldom‐heard communities in big data research were recruited. They were based in England (n = 5), Scotland (n = 4), Belgium (n = 2) and Canada (n = 1). Twelve semistructured interviews were conducted on Zoom. All interviews were audio‐recorded and transcribed, and we used reflexive thematic analysis to analyse participants' experiences. Results: The analysis highlighted the complexity of involving and engaging seldom‐heard communities around big data research. Four themes were developed to represent participants' experiences: (1) abstraction and complexity of big data, (2) one size does not fit all, (3) working in partnership and (4) empowering the public contribution. Conclusion: The study offers researchers a better understanding of how to involve and engage seldom‐heard communities in a meaningful way around big data research. There is no one right approach, with involvement and engagement activities required to be project‐specific and dependent on the public contributors, researchers' needs, resources and time available. Patient and Public Involvement: Two public contributors are authors of the paper and they were involved in the study design, analysis and writing. [ABSTRACT FROM AUTHOR]
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- 2023
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15. Understanding how Canadian healthcare providers have learned to identify co‐occurring PTSD symptoms and dementia in Veterans.
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Ritchie, Kim, Cramm, Heidi, Aiken, Alice, Donnelly, Catherine, and Goldie, Catherine
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DIAGNOSIS of post-traumatic stress disorder , *DIAGNOSIS of dementia , *RESEARCH methodology , *INTERVIEWING , *AGITATION (Psychology) , *LEARNING strategies , *QUALITATIVE research , *HEALTH , *INFORMATION resources , *VETERANS , *JUDGMENT sampling , *THEMATIC analysis , *ANGER , *PATIENT care , *REFLECTION (Philosophy) - Abstract
Accessible Summary: What is known on the subject?: Little is known about how PTSD and dementia in Veterans is identified by health care providers. What the paper adds to existing knowledge?: Healthcare providers identify those behavioural symptoms experienced by older people living with dementia that represent an unmet need associated with PTSD secondary to military service. Once healthcare providers recognize the presence of symptoms relevant to PTSD, they modify their care approach to include focused/tailored non‐pharmacological care interventions that address environmental and situational variables that reflect military action. What are the implications for practice?: Specialized education and training is needed to improve the identification of PTSD when existent with other co‐occurring neurocognitive conditions such as delirium, dementia and depression. Introduction: Co‐occurring PTSD and dementia in Veterans can be difficult to distinguish from dementia‐related responsive behaviours, which may result in inappropriate care management. Improved identification of PTSD and dementia is necessary to inform more appropriate and effective care for Veterans. Aim/Question: The purpose of this study was to understand how Canadian healthcare providers have learned to identify the co‐occurrence of PTSD symptoms in Veterans with dementia. Methods: Eight semi‐structured interviews employing the Critical Incident Technique were conducted with key informant healthcare providers who treat Veterans from across Canada. Framework analysis was used to code, sort and develop themes. Results: Observed differences in Veterans with PTSD and dementia cued healthcare providers to seek our more information, leading to a new understanding of past trauma underlying the symptoms they observed. Healthcare providers then altered their usual care approaches to utilize trust‐based and validation‐oriented strategies resulting in more effective care management. Discussion: Improvement in the identification of co‐occurring PTSD and dementia in Veterans requires specialized education and training for healthcare providers. Implications for Practice: Recognizing the complex needs of older Veterans with co‐occurring PTSD and dementia is necessary for healthcare providers to implement more effective care for this population. Relevance Statement: This paper provides mental health nurses with new understanding of co‐occurring PTSD and dementia in Veterans. With an ageing Veteran population in Canada, mental health nurses need to be knowledgeable about the care for Veteran specific mental health needs. [ABSTRACT FROM AUTHOR]
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- 2022
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16. "Food engages people, as we know": health care and service providers' experiences of using food as an incentive in HIV care and support in British Columbia, Canada.
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Gagnon, Marilou, Payne, Alayna, Guta, Adrian, and Bungay, Vicky
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HIV-positive persons , *HEALTH services accessibility , *SOCIAL support , *FOOD security , *ATTITUDES of medical personnel , *MOTIVATION (Psychology) , *RESEARCH methodology , *FOOD consumption , *INTERVIEWING , *MEDICAL screening , *QUALITATIVE research , *CASE studies , *DESCRIPTIVE statistics , *RESEARCH funding , *THEMATIC analysis - Abstract
Food insecurity is widely documented among people living with HIV (PLWH) worldwide, and it presents significant challenges across the spectrum of HIV care and support. In North America, the prevalence of food insecurity among PLWH exceeds 50%. In the province of British Columbia (BC), it exceeds 65%. It comes as no surprise that food has become an essential tool in supporting and engaging with PLWH. Over the past decade, however, a shift has taken place, and food has become an incentive to boost uptake and outcomes of prevention, testing, treatment, and support. To explore this practice, we drew on a qualitative case study of incentives in the care and support of PLWH. This paper presents the findings of a targeted analysis of interviews (N = 25) that discuss food incentives and explores two main themes that shed light on this practice: (1) Using food to engage versus to incentivize and (2) Food is more beneficial and more ethical. Providers perceived food more positively than other incentives, despite the goal remaining somewhat the same. Incentives, such as cash or gift cards, were considered ethically problematic and less helpful (and potentially harmful), whereas food addressed a basic need and felt more ethical. [ABSTRACT FROM AUTHOR]
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- 2023
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17. Implementation of strengths model case management in seven mental health agencies in Canada: Direct‐service practitioners' implementation experience.
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Briand, Catherine, Roebuck, Maryann, Vallée, Catherine, Bergeron‐Leclerc, Christiane, Krupa, Terry, Durbin, Janet, Aubry, Tim, Goscha, Rick, and Latimer, Eric
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RESEARCH methodology , *INTERVIEWING , *HUMAN services programs , *QUALITATIVE research , *SUPERVISION of employees , *MENTAL health services , *PSYCHIATRIC hospitals - Abstract
Rationale: Implementation of strengths model case management is increasing internationally. However, few studies have focused on its implementation process, and none have specifically addressed the implementation experience of direct‐service practitioners. Objective: This paper presents factors that facilitate and impede the successful implementation of the strengths model, with a specific focus on practitioners who deliver the intervention directly to service recipients. Method: To address this objective, a qualitative study of seven mental health agencies that implemented the model was conducted, involving a combination of participant observations and qualitative semistructured interviews with case managers, team supervisors, and senior managers. Qualitative data were analyzed using open coding followed by axial coding. Finally, the findings were aligned with an adapted Consolidated Framework for Implementation Research. Results: Implementation of the strengths model involved a significant change in practice for case management practitioners. The results confirm that at the beginning of implementation, the strengths model was perceived as complex and not always adaptable to on‐the‐ground realities. With time, and with support from management, ongoing training and supervision sessions, and reflection and discussion, practitioners regained feelings of competence and resistance to the model diminished. The use of the model's structured team‐based supervision tools was fundamental to supporting the implementation process by enabling an interactive and concrete training approach. Conclusions: The more an approach leads to changes in daily practice and is perceived as complex, the more concrete support is needed during implementation. This article highlights the importance of attending to a practitioner's sense of personal effectiveness and competence in the adoption of new practices. [ABSTRACT FROM AUTHOR]
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- 2022
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18. "If You Can Just Break the Stigma Around It": LGBTQI+ Migrants' Experiences of Stigma and Mental Health.
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Haghiri-Vijeh, Roya and Clark, Nancy
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SAFETY , *CULTURE , *IMMIGRANTS , *HEALTH services accessibility , *PSYCHOLOGY of LGBTQ+ people , *RESEARCH methodology , *DISCRIMINATION (Sociology) , *MENTAL health , *SOCIAL stigma , *INTERVIEWING , *FEAR , *QUALITATIVE research , *MENTAL illness - Abstract
Migrants, that is people who experience forced displacement or move based on being lesbian, gay, bisexual, trans, two-spirit, queer, and intersex (LGBTQI+), experience increased trauma and stigma when compared to heterosexual and cisgender people. The aim of this paper is to highlight LGBTQI+ migrants' experiences of health and social care encounters in Canada. Gadamerian hermeneutics and an intersectionality lens was used to understand LGBTQI+ migrants' experiences. A total of 16 semi-structured individual interviews were conducted with LGBTQI+ migrants. Themes of stigma and discrimination were identified as (1) "I never went back": Stigma as an exclusionary experience, (2) "Is [your country of birth] really that bad": Fear, safety, and cultural stigma, and (3) "The circle ... is not going to fix my life": LGBTQI+ migrants' call for affirming care. Results suggest that health and social care practices are stigmatizing and discriminatory which negatively impacts LGBTQI+ migrant mental health. Salient practices for promoting mental health included affirming LGBTQI+ identities and orientations through health and social care practices that are culturally safe as well as trauma and violence informed. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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19. 'I felt a sense of panic, disorientation and frustration all at the same time': the important role of emotions in reflective practice.
- Author
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Farrell, Thomas S. C.
- Subjects
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COGNITION disorders , *RESEARCH , *FRUSTRATION , *DISCUSSION , *WORK , *RESEARCH methodology , *PANIC disorders , *COLLEGE teacher attitudes , *DIARY (Literary form) , *QUALITATIVE research , *OCCUPATIONS , *ENGLISH as a foreign language , *EXPERIENTIAL learning , *UNIVERSITIES & colleges , *DESCRIPTIVE statistics , *CASE studies , *EMOTIONS , *ANGER , *REFLECTION (Philosophy) - Abstract
For many novice teachers, their first year on the job can be a roller coaster experience of 'ups' and 'downs' as they transition from their teacher education programs to teaching in real classrooms. While to 'ups' are always good to experience, the 'downs' can be so traumatic that novice teachers can feel so stressed that their teaching is adversely impacted and burned out to the point that they consider resigning for the profession. For the most part, however, the language teaching profession has not addressed this aspect of a novice ESL (English as a second language) teacher well-being in terms of their personal and emotional investment as they transition from trainee to novice teacher in their first year. This paper attempts to shed light on the emotional experiences of three female novice ESL teachers in a university language school in Canada as they reflected during regular group discussions and journal writing during their first semester (12 weeks) as novice ESL teachers. The results reveal that the group discussions and journal writing provided a platform for the teachers to articulate their mostly negative emotions with three most frequently expressed: frustration, anger and boredom. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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20. The therapeutic relationship in the context of involuntary treatment orders: The perspective of nurses and patients.
- Author
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Lessard‐Deschênes, Clara and Goulet, Marie‐Hélène
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- *
MENTAL illness treatment , *THERAPEUTICS , *OCCUPATIONAL roles , *NURSES' attitudes , *STAKEHOLDER analysis , *RESEARCH methodology , *TIME , *INTERVIEWING , *NURSE-patient relationships , *INVOLUNTARY hospitalization , *MEDICAL protocols , *PATIENTS' attitudes , *QUALITATIVE research , *CONFLICT management , *NURSES , *DESCRIPTIVE statistics , *CONTENT analysis , *LEGAL procedure , *STATISTICAL sampling , *THEMATIC analysis , *RISK management in business , *THERAPEUTIC alliance , *SECONDARY analysis - Abstract
Accessible Summary: What is known on the subject?: Involuntary treatment orders are increasingly being used around the world to allow the treatment of individuals living with a mental illness deemed incapable of giving consent and who are actively refusing treatment.The use of involuntary treatment orders can impact the nurse–patient therapeutic relationship, which is essential to offer quality care and promote recovery. What the paper adds to existing knowledge?: Nurses and patients do not agree on the possibility to develop a therapeutic relationship, with nurses believing they can build a bond with the patients despite the challenges imposed by the involuntary treatment order, and patients rejecting this possibility.Nurses caring for patients on involuntary treatment orders feel obligated to apply the conditions of this measure, even if it damages the relationship with their patients. This difficult aspect of their work leads them to question their role in relation to the management of involuntary treatment orders. What are the implications for practice?: Nurses need to be aware of the reasons why patients on involuntary treatment orders do not believe in the possibility of building a therapeutic relationship.Nurses need to reflect on and express their concerns about the damaging effects that managing involuntary treatment orders conditions can have on the nurse–patient therapeutic relationship. Introduction: Involuntary treatment orders (ITO) can impact the nurse–patient therapeutic relationship (TR) negatively. Despite the increasing use of ITOs around the world, few studies have explored their influence on the TR from the perspectives of nurses and patients. Aim: To describe the TR in the context of ITOs as reported by nurses and individuals living with a mental illness. Method: Secondary data analysis of qualitative interviews with nurses (n = 9) and patients (n = 6) was performed using content analysis. Results: Participants described the TR as fundamentally embedded in a power imbalance amplified by the ITO, which was discussed through the conflicting roles of nurses, the legal constraints imposed on patients and nurses, the complex relation between the ITO and the TR, and the influence of mental healthcare settings' context. Discussion: Nurses and patients' views were opposed, questioning the authenticity of the relationship. Implications for Practice: Nurses should be aware of the patients' lack of faith in the TR to ensure that they are sensitive to patients' behaviours that may falsely suggest that a relationship is established. Further studies should explore ways to alleviate the burden of the management of ITOs on nurses and allow for a trusting relationship to be build. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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21. Expert Users' Perceptions of Racing Wheelchair Design and Setup: The Knowns, Unknowns, and Next Steps.
- Author
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Bundon, Andrea, Mason, Barry S., and Goosey-Tolfrey, Victoria L.
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- *
ATHLETIC ability , *ATHLETIC equipment , *COACHES (Athletics) , *INTERVIEWING , *THEORY of knowledge , *RESEARCH methodology , *ATHLETES with disabilities , *STATISTICAL sampling , *SPORTS for people with disabilities , *WHEELCHAIR sports , *WHEELCHAIRS , *QUALITATIVE research , *PRODUCT design , *THEMATIC analysis , *EQUIPMENT maintenance & repair , *ELITE athletes , *DATA analysis software - Abstract
This paper demonstrates how a qualitative methodology can be used to gain novel insights into the demands of wheelchair racing and the impact of particular racing chair configurations on optimal sport performance via engagement with expert users (wheelchair racers, coaches, and manufacturers). We specifically explore how expert users understand how wheels, tires, and bearings impact sport performance and how they engage, implement, or reject evidence-based research pertaining to these components. We identify areas where participants perceive there to be an immediate need for more research especially pertaining to the ability to make individualized recommendations for athletes. The findings from this project speak to the value of a qualitative research design for capturing the embodied knowledge of expert users and also make suggestions for "next step" projects pertaining to wheels, tires, and bearings drawn directly from the comments of participants. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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22. Navigating interprofessional boundaries: Midwifery students in Canada.
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Neiterman, Elena, HakemZadeh, Farimah, Zeytinoglu, Isik U., Kaminska, Karolina, Oltean, Irina, Plenderleith, Jennifer, and Lobb, Derek
- Subjects
- *
MIDWIVES , *PROFESSIONAL ethics , *OCCUPATIONAL roles , *SOCIALIZATION , *HEALTH occupations students , *GROUNDED theory , *RESEARCH methodology , *INTERVIEWING , *SOCIAL boundaries , *QUALITATIVE research , *INTERNSHIP programs , *INTERPROFESSIONAL relations , *PROFESSIONAL identity , *COMMUNICATION , *STUDENT attitudes - Abstract
The literature on professional socialization focuses on how students adopt and internalize professional identities and values, and assumes that boundary work is essential to learning how best to practice their profession. However, a focus on boundary work in the context of midwifery training - which is embedded in the gendered and hierarchical landscape of maternity care - is lacking. Thus, this article examines how Canadian student-midwives learn to navigate and negotiate interprofessional boundaries. Grounded in a symbolic interactionist approach, it draws on 31 semi-structured qualitative interviews from a mixed-methods national study on midwifery retention, explores how midwifery students make sense of the tensions among midwives, physicians, and nurses, and describes what strategies they utilize when navigating boundaries. Our analysis, based in constructivist grounded theory, revealed that participants learned about interprofessional tensions in clinical placement encounters via direct or indirect interactions with other healthcare professionals, and that strategies to navigate these tensions included educating others about midwifery training and adopting a learner identity. This article proposes that the process of professional socialization enables to reshape professional boundaries and that students are not only learners but also agents of change. These findings may yield practical applications in health education by highlighting opportunities for improving interprofessional collaborations. • Boundary work is part of professional socialization process. • Professional boundaries are ambiguous in midwifery but they are understudied. • This paper examines boundary work among 31 Canadian midwifery students. • The boundaries were clear with physicians but blurred in communication with nurses. • Learning about boundaries, students recreated them but also became agents of change. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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23. What's suffering got to do with it? A qualitative study of suffering in the context of Medical Assistance in Dying (MAID).
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Pesut, Barbara, Wright, David Kenneth, Thorne, Sally, Hall, Margaret I., Puurveen, Gloria, Storch, Janet, and Huggins, Madison
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- *
TERMINAL care , *NURSES' attitudes , *ASSISTED suicide , *RESEARCH methodology , *INTERVIEWING , *QUALITATIVE research , *DECISION making , *THEMATIC analysis , *PALLIATIVE treatment - Abstract
Background: Intolerable suffering is a common eligibility requirement for persons requesting assisted death, and although suffering has received philosophic attention for millennia, only recently has it been the focus of empirical inquiry. Robust theoretical knowledge about suffering is critically important as modern healthcare provides persons with different options at end-of-life to relieve suffering. The purpose of this paper is to present findings specific to the understanding and application of suffering in the context of MAID from nurses' perspectives. Methods: A longitudinal qualitative descriptive study using semi-structured telephone interviews. Inductive analysis was used to construct a thematic account. The study received ethical approval and all participants provided written consent. Results: Fifty nurses and nurse practitioners from across Canada were interviewed. Participants described the suffering of dying and provided insights into the difficulties of treating existential suffering and the iatrogenic suffering patients experienced from long contact with the healthcare system. They shared perceptions of the suffering that leads to a request for MAID that included the unknown of dying, a desire for predictability, and the loss of dignity. Eliciting the suffering story was an essential part of nursing practice. Knowledge of the story allowed participants to find the balance between believing that suffering is whatever the persons says it is, while making sure that the MAID procedure was for the right person, for the right reason, at the right time. Participants perceived that the MAID process itself caused suffering that resulted from the complexity of decision-making, the chances of being deemed ineligible, and the heighted work of the tasks of dying. Conclusions: Healthcare providers involved in MAID must be critically reflective about the suffering histories they bring to the clinical encounter, particularly iatrogenic suffering. Further, eliciting the suffering stories of persons requesting MAID requires a high degree of skill; those involved in the assessment process must have the time and competency to do this important role well. The nature of suffering that patients and family encounter as they enter the contemplation, assessment, and provision of MAID requires further research to understand it better and develop best practices. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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24. Students and instructors perspective on blended synchronous learning in a Canadian graduate program.
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Lakhal, Sawsen, Mukamurera, Joséphine, Bédard, Marie‐Eve, Heilporn, Géraldine, and Chauret, Mélodie
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- *
ONLINE education , *SCHOOL environment , *TEACHING methods , *VIRTUAL reality , *RESEARCH methodology , *COLLEGE teacher attitudes , *VIDEOCONFERENCING , *INTERVIEWING , *CURRICULUM , *LEARNING strategies , *EXPERIENCE , *QUALITATIVE research , *CONCEPTUAL structures , *GRADUATE education , *STUDENTS , *UNIVERSITIES & colleges , *ACCESS to information , *RESEARCH funding , *STUDENT attitudes , *TECHNOLOGY , *CORPORATE culture - Abstract
Blended synchronous learning (BSL) represents several contexts that enable to bring remote students into the classroom, in real time, by the means of videoconferencing, web conferencing and virtual world. As BSL seems to be more and more implemented in many higher education institutions, especially in the current context of the COVID‐19 pandemic, and given the recent interest and scarce published research in BSL, more studies are needed on this kind of learning. The purpose of this research was to explore students and instructors perspective regarding their experience in BSL, according to three dimensions: pedagogy, technology and organization/logistics. To meet the study objective, a qualitative methodology was adopted. The study participants were remote students (n = 4) and face‐to‐face students (n = 4) enrolled in a graduate program in education offering only blended synchronous courses, and instructors (n = 5) in this program. Semi‐structured interviews were selected as the data collection method. Nine sub‐themes in reference to the three dimensions emerged from the study participants. They have also highlighted some challenges associated with BSL. The results reported in this study should provide faculties and higher education administrators with additional information and guidance, based on empirical data, on the use of BSL if they wish to implement it in academic programs. Moreover, in regard to the challenges revealed by the study participants, the results will permit to surpass the obstacles when implementing BSL successfully. Lay Description: What is already known about this topic: Blended synchronous Learning (BSL) is more and more used in higher education.BSL may be a good alternative for higher education institutions in the context of the COVID‐19 pandemic, as it permits to reduce the number of involved students in face‐to‐face activities, by offloading some students to online from their home or a remote site.Despite its gain in popularity, little research has been performed on BSL and this research is somewhat sparse.Further research and recommendations are needed for faculties and higher education administrators to assist them in ascertaining what works and what does not in BSL. What this paper adds: The purpose of this study was to report on students and instructors experience on BSL, with remote students participating from multiple sites and face‐to‐face students from a single site.Students and instructors perspectives were explored using three dimensions: pedagogy, technology and organisation/logistics.Challenges associated with BSL were highlighted by the study participants Implications for practice and/or policy: The results of this study will guide faculties in designing and implementing BSL for their students.The challenges highlighted in the study results should be taken into account when implementing BSL. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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25. Admissions experiences of aspiring physicians from low‐income backgrounds.
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De Freitas, Chanté, Buckley, Rya, Klimo, Rebecca, Daniel, Juliet M., Mountjoy, Margo, and Vanstone, Meredith
- Subjects
- *
SCHOOL admission , *PSYCHOLOGY of medical students , *CONFIDENCE , *VOCATIONAL guidance , *RESEARCH methodology , *ATTITUDE (Psychology) , *MOTIVATION (Psychology) , *INTERVIEWING , *GROUP identity , *SOCIOECONOMIC factors , *INCOME , *QUALITATIVE research , *CONCEPTUAL structures , *MEDICAL schools , *STUDENT attitudes , *INFORMATION-seeking behavior - Abstract
Introduction: Students from low‐income backgrounds (LIB) have been under‐represented in Canadian medical schools for over fifty years. Despite our awareness of this problem, little is known about the experiences of aspiring physicians from LIB in Canada who are working towards medical school admission. Consequently, we have little insight into the barriers and facilitators that may be used to increase the representation of students from LIB in Canadian medical schools. Methods: This paper describes a qualitative description interview study aimed at understanding the experiences of aspiring physicians from LIB as they attempt to gain entry to medical school. We conducted semi‐structured interviews with 21 participants at different stages of their undergraduate, master's, and non‐medical professional education, and used the theories of intersectionality and identity capital as a theoretical framework for identifying barriers and facilitators to a career in medicine. Results: Participants experienced social, identity‐related, economic, structural and informational barriers to a career in medicine. Intrinsic facilitators included motivation, self‐confidence, attitude, strategy, information‐seeking and sorting, and financial literacy and increasing income. Extrinsic facilitators were social, informational, financial and institutional in nature. Conclusion: This study fills existing knowledge gaps in the literature by identifying the pre‐admissions barriers and facilitators encountered by aspiring physicians from LIB in Canada. The barriers and facilitators outlined in this study offer a framework for identifying target areas in developing support for admitting medical students from LIB. Given that medical students from LIB are more likely to serve underserved populations, our study is relevant to Canadian medical schools' social accountability commitment to producing physicians that meet the health needs of marginalised and vulnerable patients. Out of concern for socioeconomic diversity, the authors apply an intersectional approach to examine the barriers and facilitators faced by aspiring physicians from low‐income backgrounds. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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26. Organizational Workplace Mental Health: An Emerging Role for Occupational Therapy.
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Thompson, Alexandra N., Fugard, Madison I., and Kirsh, Bonnie
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WORK environment , *OCCUPATIONAL roles , *WELL-being , *HUMAN research subjects , *ATTITUDES of medical personnel , *RESEARCH methodology , *MENTAL health , *INTERVIEWING , *OCCUPATIONAL therapy , *QUALITATIVE research , *INFORMED consent (Medical law) , *JUDGMENT sampling , *STATISTICAL sampling , *THEMATIC analysis , *OCCUPATIONAL therapists , *HEALTH promotion - Abstract
The purpose of this paper is threefold: firstly, to provide a brief overview of current practice in workplace mental health and introduce an emerging role for occupational therapy in this field (i.e., practicing at the organizational level where "clients" are workplaces or organizations, and not individual workers); secondly, to present the findings from a small qualitative study which describes this emerging role from the perspectives of occupational therapists who have worked in this area; and thirdly, to provide suggestions for future work which could advance this emerging role for occupational therapy world-wide. Previous research suggests that there is an increasing interest among employers to address workplace mental health through organizational initiatives and that occupational therapists are beginning to consult on the topic. Occupational therapists in our small qualitative study described their role in organizational workplace mental health as one which involves adopting a business lens, practicing in an organization-centred manner, and focusing on population health promotion. Suggestions for future work to advance this emerging role include identifying the fundamental elements of the business lens, investigating models and frameworks to guide organization-centred practice, evaluating the short-, medium-, and long-term outcomes of interventions, exploring the fit between an occupational perspective and workplace mental health, and examining the impact of COVID-19 on current practice. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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27. A Meaningful Focus: Investigating the Impact of Involvement in a Participatory Video Program on the Recovery of Participants With Severe Mental Illness.
- Author
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Whitley, Rob, Sitter, Kathleen C., Adamson, Gavin, and Carmichael, Victoria
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- *
PATIENT participation , *EVALUATION of human services programs , *INDIVIDUAL development , *CONVALESCENCE , *SELF-evaluation , *RESEARCH methodology , *AUDIOVISUAL materials , *INTERVIEWING , *SOCIAL stigma , *EXPERIENCE , *PATIENTS' attitudes , *QUALITATIVE research , *ABILITY , *TRAINING , *REHABILITATION of people with mental illness , *LIFE , *DISABILITIES , *RESEARCH funding , *PEOPLE with disabilities , *PATIENT education , *THEMATIC analysis , *METROPOLITAN areas , *MENTAL illness , *GROUP process - Abstract
Objective: The overall aim of the present paper is to elicit the subjective perceptions and experiences of people with Severe Mental Illness (SMI) involved in a Participatory Video project, with a focus on self-reported impact on recovery. There are 2 subobjectives, namely (a) to document which specific aspects (if any) of Participatory Video project participation are reported to positively influence recovery; and (b) to assess the impact of project involvement on specific dimensions of recovery. Method: In this project, 3 workgroups of people with Severe Mental Illness met approximately twice per week over a 2-year period to make and disseminate educational videos about mental illness. Workgroup participants (n = 20) took part in an in-depth semistructured qualitative interview at project end to understand their experience in the project, especially impact on recovery. Data was analyzed using thematic analysis techniques. Results: At completion, participants had made 26 videos and organized 49 community screenings reaching over 1,500 people. Participants reported that regular involvement in this project fostered their recovery in a variety of ways, imparting multiple psychosocial benefits, which are summarized in 5 themes: (a) skill-acquisition, (b) platform and voice, (c) connectedness, (d) a meaningful focus, and (e) personal development. Conclusions and Implications for Practice: Participatory Video is a powerful group intervention which positively benefits workgroup participants. Importantly, results overlap with other research indicating that grassroots-produced mental health themed videos can educate viewers and reduce public stigma. As such, psychiatric rehabilitation organizations should consider initiating similar projects in their own locales. Impact and Implications: Participatory Video is an innovative group program where marginalized people get together to produce documentary-type videos about their lives, which are then screened at community venues. This study found that regular involvement in a successful Participatory Video program helped foster the recovery of participants with severe mental illness. This suggests that Participatory Video is a recovery-oriented intervention, which could be initiated by mental health services and peer support organizations elsewhere. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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- View/download PDF
28. Managing everyday life: Self-management strategies people use to live well with neurological conditions.
- Author
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Audulv, Åsa, Hutchinson, Susan, Warner, Grace, Kephart, George, Versnel, Joan, and Packer, Tanya L
- Subjects
- *
NEUROLOGICAL disorders , *EVERYDAY life , *LIVING alone , *DISEASE progression , *TELEPHONE interviewing , *RESEARCH , *RESEARCH methodology , *MEDICAL cooperation , *EVALUATION research , *QUALITATIVE research , *COMPARATIVE studies , *INTERPERSONAL relations - Abstract
Objective: This paper uses the Taxonomy of Everyday Self-management Strategies (TEDSS) to provide insight and understanding into the complex and interdependent self-management strategies people with neurological conditions use to manage everyday life.Methods: As part of a national Canadian study, structured telephone interviews were conducted monthly for eleven months, with 117 people living with one or more neurological conditions. Answers to five open-ended questions were analyzed using qualitative content analysis. A total of 7236 statements were analyzed.Results: Findings are presented in two overarching patterns: 1) self-management pervades all aspects of life, and 2) self-management is a chain of decisions and behaviours. Participants emphasized management of daily activities and social relationships as important to maintaining meaning in their lives.Conclusion: Managing everyday life with a neurological condition includes a wide range of diverse strategies that often interact and complement each other. Some people need to intentionally manage every aspect of everyday life.Practice Implications: For people living with neurological conditions, there is a need for health providers and systems to go beyond standard advice for self-management. Self-management support is best tailored to each individual, their life context and the realities of their illness trajectory. [ABSTRACT FROM AUTHOR]- Published
- 2021
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29. An implementation history of primary health care transformation: Alberta's primary care networks and the people, time and culture of change.
- Author
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Leslie, Myles, Khayatzadeh-Mahani, Akram, Birdsell, Judy, Forest, P. G., Henderson, Rita, Gray, Robin Patricia, Schraeder, Kyleigh, Seidel, Judy, Zwicker, Jennifer, and Green, Lee A.
- Subjects
- *
CULTURE , *HEALTH care reform , *INTERVIEWING , *RESEARCH methodology , *HEALTH policy , *PRIMARY health care , *QUALITY assurance , *TIME , *QUALITATIVE research , *HUMAN services programs , *FEE for service (Medical fees) - Abstract
Background: Primary care, and its transformation into Primary Health Care (PHC), has become an area of intense policy interest around the world. As part of this trend Alberta, Canada, has implemented Primary Care Networks (PCNs). These are decentralized organizations, mandated with supporting the delivery of PHC, funded through capitation, and operating as partnerships between the province's healthcare administration system and family physicians. This paper provides an implementation history of the PCNs, giving a detailed account of how people, time, and culture have interacted to implement bottom up, incremental change in a predominantly Fee-For-Service (FFS) environment. Methods: Our implementation history is built out of an analysis of policy documents and qualitative interviews. We conducted an interpretive analysis of relevant policy documents (n = 20) published since the first PCN was established. We then grounded 12 semi-structured interviews in that initial policy analysis. These interviews explored 11 key stakeholders' perceptions of PHC transformation in Alberta generally, and the formation and evolution of the PCNs specifically. The data from the policy review and the interviews were coded inductively, with participants checking our emerging analyses. Results: Over time, the PCNs have shifted from an initial Frontier Era that emphasized local solutions to local problems and featured few rules, to a present Era of Accountability that features central demands for standardized measures, governance, and co-planning with other elements of the health system. Across both eras, the PCNs have been first and foremost instruments and supporters of family physician authority and autonomy. A core group of people emerged to create the PCNs and, over time, to develop a long-term Quality Improvement (QI) vision and governance plan for them as organizations. The continuing willingness of both these groups to work at understanding and aligning one another's cultures to achieve the transformation towards PHC has been central to the PCNs' survival and success. Conclusions: Generalizable lessons from the implementation history of this emerging policy experiment include: The need for flexibility within a broad commitment to improving quality. The importance of time for individuals and organizations to learn about: quality improvement; one another's cultures; and how best to support the transformation of a system while delivering care locally. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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30. "A life-saving issue": the great commission as institutional policy in evangelical faith-based organizations in southern Ontario, Canada.
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Gokani, Ravi and Caragata, Lea
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- *
CHRISTIANITY , *DECISION making , *FOCUS groups , *INTERVIEWING , *MANAGEMENT , *RESEARCH methodology , *PROFESSIONAL ethics , *RELIGIOUS institutions , *SOCIAL services , *QUALITATIVE research , *JUDGMENT sampling , *QUANTITATIVE research - Abstract
This article presents data from a mixed-method study on evangelical faith-based organizations in Southern Ontario, Canada. The authors sought to explore the nature and extent of faith-sharing in these organizations by using the Convergent Triangulation Design, which permitted the use of semi-structured interviews, focus groups, surveys, and document review. First, The Great Commission acts as a de facto institutional policy in the evangelical faith-based organizations sampled; The Great Commission is a Biblical injunction, strongly observed by evangelicals, which states that evangelicals are commissioned by Jesus to share and ultimately convert others to their faith. The second theme is that in seeking to realize The Great Commission these organizations tried not to be coercive in sharing their faith. In the discussion, the paper explores briefly some of the potential ethical issues that emerge from faith-sharing in social service settings. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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31. The hopelessness effect: Counsellors' perceptions of their female clients involved in sex work in Canada.
- Author
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Magnan‐Tremblay, Laurence, Lanctôt, Nadine, and Couvrette, Amélie
- Subjects
- *
DESPAIR , *FEAR , *HEALTH , *HOPE , *INTERVIEWING , *RESEARCH methodology , *SEX work , *SAFETY , *HUMAN sexuality , *SOCIAL stigma , *CRIME victims , *WORK environment , *QUALITATIVE research , *CLIENT relations , *SOCIAL support , *PSYCHOTHERAPIST attitudes , *DESCRIPTIVE statistics - Abstract
This qualitative study explored how counsellors who work with women currently or formerly involved in sex work perceive these women's future. From May to July 2016, we conducted semi‐structured interviews with 21 counsellors providing psychosocial services in Canadian agencies with recognized mandates to support such women. The interview protocol was based on the Possible Selves Mapping Interview, adapted to explore the counsellors' hopes and fears for these clients. We subjected the interview transcripts to an interpretive descriptive analysis. Our findings centred on three themes: the counsellors' hopes for their clients' future, in light of their personal and social resources; the counsellors' fears about the cumulative devastating effects that their clients' work environment might have on them; and the counsellors' fears that these women would lose hope for the future. This study clearly demonstrates the importance of addressing the safety and well‐being of women involved in sex work and of recognizing the impacts of social inequalities and structural barriers on these women's life paths. The implications of these findings for policies and practices are discussed at the end of this paper. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
32. Keeping secrets, disclosing health information: an institutional ethnography of the social organisation of perinatal care for women living with HIV in Canada.
- Author
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Ion, Allyson
- Subjects
- *
HIV-positive women , *INSTITUTIONAL care , *MATERNITY nursing , *MEDICAL personnel , *ETHNOLOGY , *HIV infection transmission , *DISCLOSURE , *MATERNAL health services , *RESEARCH , *SOCIAL participation , *HEALTH facilities , *RESEARCH methodology , *SOCIAL stigma , *MEDICAL cooperation , *EVALUATION research , *QUALITATIVE research , *COMPARATIVE studies , *PSYCHOLOGICAL tests , *PSYCHOSOCIAL factors ,PERINATAL care ,HIV infections & psychology - Abstract
This paper describes findings from an institutional ethnography that arose out of the concerns of women living with HIV in Ontario, Canada, regarding the disclosure of their HIV status while accessing perinatal care. The enquiry traces the connections between women's experiences of perinatal care, the activities of healthcare providers delivering such care and the ruling relations that organise women's experiences and healthcare providers' activities. Focusing on HIV disclosure as a concern expressed by women, the findings make visible the day-to-day, routinised practices of healthcare providers working in perinatal care for women living with HIV, as well as the ideological discourses of 'fear of contagion' and 'AIDS hysteria' that contributed to producing the kinds of care experiences that were articulated by women. Opportunities to strengthen perinatal care policies and practices for women living with HIV are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
33. Influences on mental health and health services accessibility in immigrant women with post‐partum depression: An interpretive descriptive study.
- Author
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Ganann, Rebecca, Sword, Wendy, Newbold, K. Bruce, Thabane, Lehana, Armour, Leigh, and Kint, Bernadette
- Subjects
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IMMIGRANTS , *CONCEPTUAL structures , *CONTENT analysis , *EMOTIONS , *HEALTH services accessibility , *INTERVIEWING , *RESEARCH methodology , *MEDICAL needs assessment , *MENTAL health , *MENTAL health services , *MOTHERS , *NURSES , *POSTPARTUM depression , *PSYCHIATRIC nursing , *QUALITATIVE research , *OCCUPATIONAL roles , *THEMATIC analysis , *CULTURAL competence , *ATTITUDES of mothers , *HEALTH & social status , *DESCRIPTIVE statistics - Abstract
Accessible Summary: What is known about the subject?: Immigrant women in Canada are at greater risk for post‐partum depression (PPD) than native‐born women.Immigrant women are less likely to have their care needs met as they face multiple barriers to care at both individual and system levels.To date, most PPD research has focused on individual barriers to care, with limited research examining organizational and system level barriers and the uniqueness of immigrant women's post‐partum health experiences. What this paper adds to existing knowledge?: This study provides unique insights into immigrant women's perceptions of what influences their post‐partum mental health and ability to access services for PPD.Factors contributing to immigrant women's PPD included several social determinants of health, particularly a lack of social support and limited knowledge about PPD and available services.Most helpful services acknowledge women's concerns, build trust, enact cultural competence and help with system navigation.Assessment approaches and organizational wait times created barriers to accessing care. What are the implications for practice?: Relationship building by providers is foundational to effective care for immigrant women with PPD.Findings highlight the need for mental health practitioners to improve cultural competence when working with diverse ethno‐cultural communities and for more effective assistance with system navigation, service integration and timely, flexible and accessible services.Findings have implications for the development of healthy public policy to address perinatal mental health issues amongst immigrant women. Introduction: Immigrant women in Canada are at greater risk for post‐partum depression (PPD) than native‐born women yet face multiple barriers to care at individual and system levels. Aim: To explore factors that contribute to PPD and health service accessibility, and the role of health services in supporting immigrant women with PPD. Methods: A qualitative interpretive descriptive design was used. Individual interviews were conducted with 11 immigrant women who had delivered a baby within the previous year and had experienced PPD. Inductive thematic content analysis was conducted. Results: Factors contributing to immigrant women's PPD included several social health determinants. Services were most helpful and accessible when providers acknowledged women's concerns, allowed time to build trust, provided culturally competent care and helped with navigating services. Assessment approaches and organizational wait times created barriers to care. Discussion: Immigrant women with PPD see relationship building by providers as foundational to providing effective support, enhancing coping and facilitating access to services. Improved communication with diverse ethno‐cultural communities and assistance with system navigation, service integration and timely, accessible services are needed. Implications for Practice: Findings can inform health service delivery models and the development of healthy public policy to address perinatal mental health issues amongst immigrant women. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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34. A research plan to define Canada's first low-risk gambling guidelines.
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Currie, Shawn R and Group, the Low Risk Gambling Guidelines Scientific Working
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DECISION making , *GAMBLING , *HEALTH promotion , *INTERVIEWING , *RESEARCH methodology , *MEDICAL protocols , *PRIORITY (Philosophy) , *PUBLIC health , *RESEARCH funding , *QUALITATIVE research , *LOGISTIC regression analysis , *QUANTITATIVE research , *SECONDARY analysis , *RECEIVER operating characteristic curves , *ODDS ratio ,RESEARCH evaluation - Abstract
From a public health perspective, gambling shares many of the same characteristics as alcohol. Notably, excessive gambling is associated with many physical and emotional health harms, including depression, suicidal ideation, substance use and addiction and greater utilization of health care resources. Gambling also demonstrates a similar 'dose-response' relationship as alcohol—the more one gambles, the greater the likelihood of harm. Using the same collaborative, evidence-informed approach that produced Canada's Low-Risk Alcohol Drinking and Lower Risk Cannabis Use Guidelines, a research team is leading the development of the first national Low-Risk Gambling Guidelines (LRGGs) that will include quantitative thresholds for safe gambling. This paper describes the research methodology and the decision-making process for the project. The guidelines will be derived through secondary analyses of several large population datasets from Canada and other countries, including both cross-sectional and longitudinal data on over 50 000 adults. A scientific committee will pool the results and put forward recommendations for LRGGs to a nationally representative, multi-agency advisory committee for endorsement. To our knowledge, this is the first systematic attempt to generate a workable set of LRGGs from population data. Once validated, the guidelines inform public health policy and prevention initiatives and will be disseminated to addiction professionals, policy makers, regulators, communication experts and the gambling industry. The availability of the LRGGs will help the general public make well-informed decisions about their gambling activities and reduce the harms associated with gambling. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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35. HEIA tools: inclusion of migrants in health policy in Canada.
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Pottie, Kevin, Agic, Branka, Archibald, Douglas, Ratnayake, Ayesha, Tapia, Marcela, and Thanos, Joanne
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HEALTH policy , *ANALYSIS of variance , *DECISION making , *INTERVIEWING , *RESEARCH methodology , *MIGRANT labor , *NOMADS , *QUESTIONNAIRES , *SCALE analysis (Psychology) , *SELF-evaluation , *STATISTICAL hypothesis testing , *STATISTICS , *WORLD health , *INFORMATION resources , *QUALITATIVE research , *DATA analysis , *QUANTITATIVE research , *HUMAN services programs , *PRE-tests & post-tests , *RETROSPECTIVE studies , *HEALTH & social status , *DESCRIPTIVE statistics - Abstract
This paper introduces the Migrant Populations Equity Extension for Ontario's Health Equity Impact Assessment (HEIA) initiatives. It provides a mechanism to address the needs of migrant populations, within a program and policy framework. Validation of an equity extension framework using community leaders and health practitioners engaged in HEIA workshops across Ontario. Participants assessed migrants' health needs and discussed how to integrate these needs into health policy. The Migrant Populations Equity Extension's framework assists decision makers assess relevant populations, collaborate with immigrant communities, improve policy development and mitigate unintended negative impacts of policy initiatives. The tool framework aims to build stakeholder capacity and improve their ability to conduct HEIAs while including migrant populations. The workshops engaged participants in equity discussions, enhanced their knowledge of migrant policy development and promoted HEIA tools in health decision-making. Prior to these workshops, many participants were unaware of the HEIA tool. The workshops informed the validation of the equity extension and support materials for training staff in government and public health. Ongoing research on policy implementation would be valuable. Public health practitioners and migrant communities can use the equity extension's framework to support decision-making processes and address health inequities. This framework may improve policy development and reduce health inequities for Ontario's diverse migrant populations. Many countries are now using health impact assessment and health equity frameworks. This migration population equity extension is an internationally unique framework that engages migrant communities. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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36. Connected for health: Examining the use of a health‐related social media platform for children with chronic medical conditions.
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Cate‐Carter, Tasha D., Schnurr, Katherine, Stinson, Jennifer, and McPherson, Amy C.
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CHRONIC diseases & psychology , *SOCIAL isolation , *INTERPERSONAL relations , *INTERVIEWING , *RESEARCH methodology , *PEDIATRICS , *TECHNOLOGY , *QUALITATIVE research , *OCCUPATIONAL roles , *SOCIAL support , *THEMATIC analysis , *SOCIAL media , *ONLINE social networks , *CHILDREN , *PREVENTION - Abstract
Background: Children with chronic medical conditions often experience limited opportunities for social experiences due to frequent hospitalizations and medical appointments. Computer technology can provide valuable opportunities for social inclusion through online communities. However, moderation has been shown to be an important component of safe and successful use. This paper explores the potential of a social media platform technology, Upopolis, to promote social connection and health‐related management for children with chronic medical conditions, as well as the role of the coordinators who support children's use. Methods: This study conducted qualitative in‐depth, semi‐structured telephone interviews with hospital‐based child life specialists across Canada who acted as coordinators for Upopolis. Thematic analysis was employed on verbatim interview transcripts. Results: Seven Upopolis coordinators (n = 7 female) from across Canada participated in six telephone interviews. Four themes were identified: First, Upopolis offered opportunities for connection (social and emotional) through receiving and giving support to others in similar situations. Second, Upopolis was considered safe and reliable for younger children (under 12) within the broader social media landscape. Third, Upopolis was a helpful resource for children to learn about medical diagnoses and procedures, as well as for expressing their experiences and reducing isolation. Fourth, participants identified that time, misuse of technology, and technical problems were challenges to the successful coordination of Upopolis. Conclusions: Children with chronic medical conditions were reported to use Upopolis to develop a greater social community. Specialized websites such as Upopolis have the potential to offer a safe online social networking opportunity where children can discuss what is happening to them, compared with other mainstream social media platforms. Given the increase in technology use in health and high usage of social media among children generally, these data can potentially inform the development and implementation of other specialist health‐related online platforms for children with chronic medical conditions. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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37. Beyond the responsibility binary: analysing maternal responsibility in the human papillomavirus vaccination decision.
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Albert, Katelin
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- *
ATTITUDE (Psychology) , *DECISION making , *SEXUAL health , *INTERVIEWING , *RESEARCH methodology , *PUBLIC health , *RESPONSIBILITY , *SELF-perception , *HUMAN sexuality , *SOCIAL norms , *ADOLESCENT health , *VACCINATION , *HUMAN papillomavirus vaccines , *QUALITATIVE research , *ATTITUDES of mothers ,CERVIX uteri tumors ,TUMOR prevention - Abstract
With the human papillomavirus (HPV) vaccine positioned as the "right tool" to protect girls' health and sexual health, public discourse positions parents as "responsible" if they vaccinate, "irresponsible" if they do not. The problem with this binary, however, is that it cannot account for the full spectrum of responsibilities and social norms that parents enact in vaccine decisions. In this paper, and in the context of low HPV vaccination rates, I confront this binary and encourage a fuller view of adolescent health and sexual health. Using data from qualitative semi‐structured interviews with 28 Canadian mothers tasked with consenting to the HPV vaccine, I examine the complexity of this responsibility. I find HPV vaccine‐consenting mothers have normative conceptualisations of responsibility aligned with dominant interpretations of public health. Rather than expressing irresponsibility, some non‐HPV vaccine‐consenting mothers articulated alternate responsibilities, aligned with broad efforts to manage their teens' sexual health and sexuality. They extend responsibility beyond cancer protection vis‐à‐vis vaccines to a general responsibility for daughters' sexual health and self‐esteem. In conclusion, I recommend the need for a broader public health approach to HPV, which includes, and goes beyond vaccination. Moreover, I suggest that some of these alternate responsibilities be viewed as complementary to vaccination. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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38. Canadian newcomer children's bone health and vitamin D status.
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Lane, Ginny, Nisbet, Christine, Whiting, Susan J., and Vatanparast, Hassan
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REFUGEES , *BODY composition , *DIETARY calcium , *COMPARATIVE studies , *FOOD habits , *HEALTH behavior , *IMMIGRANTS , *RESEARCH methodology , *MEDICAL screening , *MINORITIES , *VITAMIN D , *VITAMIN D deficiency , *QUALITATIVE research , *SOCIOECONOMIC factors , *BONE density , *BODY mass index , *CROSS-sectional method , *HEALTH literacy , *EARLY medical intervention , *DESCRIPTIVE statistics , *NUTRITIONAL status , *CHILDREN - Abstract
Adequate calcium intake and supply of vitamin D during childhood play important roles in ensuring adequate bone mass gain to achieve optimal peak bone mass. The Healthy Immigrant Children study employed a mixed-method cross-sectional study design to characterize the health and nutritional status of 300 immigrant and refugee children aged 3–13 years who had been in Canada for less than 5 years. This paper presents bone mineral content and vitamin D status data along with qualitative data that deepen the understanding of newcomer bone health status. A significantly higher percentage of refugee children (72.3%) had insufficient (<50 nmol/L) or deficient (<30 nmol/L) serum vitamin D compared with immigrants (53.2%). Vitamin D deficiency was most common among ethnic minority girls. Newcomer children with higher intakes of vitamin D, younger newcomer children, and those from western Europe or the United States had higher serum vitamin D levels. Immigrants had significantly higher mean total body bone mineral content compared with refugees. Total body fat, serum vitamin D, calcium intake, height, height by calcium intake, total body fat by calcium intake, and total body fat by height predicted total body bone mineral content levels. Vitamin D deficiency among newcomer children may be related to lack of knowledge regarding children's vitamin D requirements in the Canadian environment, dietary habits established in country of origin, low income that limits healthy dietary choices, and lifestyle habits that limit exposure to sunlight. Results suggest a need to screen newcomer children and pregnant women for vitamin D deficiency and support early intervention. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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39. "What's the Difference?" Women's Wheelchair Basketball, Reverse Integration, and the Question(ing) of Disability.
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Spencer-Cavaliere, Nancy and Peers, Danielle
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- *
ATHLETES , *BASKETBALL , *CONTENT analysis , *INTERVIEWING , *RESEARCH methodology , *ATHLETES with disabilities , *RESEARCH funding , *SCALE analysis (Psychology) , *SELF-perception , *QUALITATIVE research , *JUDGMENT sampling , *REFLEXIVITY - Abstract
The inclusion of able-bodied athletes within disability sport, a phenomenon known as reverse integration, has sparked significant debate within adapted physical activity. Although researchers and practitioners have taken up positions for or against reverse integration, there is a lack of supporting research on the experiences of athletes who already play in such settings. In this study, we explore how competitive female athletes who have a disability experience reverse integration in Canadian wheelchair basketball. Athletic identity was used as the initial conceptual framework to guide semistructured interviews with nine participants. The results suggest that participation in this context contributed to positive athletic identities. Interviews also pointed to the unexpected theme of "what's the difference?" that this sporting context provided a space for the questioning and creative negotiation of the categories of disability and able-bodiedness. Methodologically, this paper also explores the possibilities and challenges of inter- worldview and insider-outsider research collaboration. [ABSTRACT FROM AUTHOR]
- Published
- 2011
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40. Sandwich Generation Caregiving: A Complex and Dynamic Role.
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Steiner, Allison and Fletcher, Paula
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PSYCHOLOGY of caregivers , *INTERVIEWING , *PHENOMENOLOGY , *RESEARCH methodology , *MOTHERS , *QUESTIONNAIRES , *SOCIAL role , *QUALITATIVE research , *THEMATIC analysis - Abstract
The overall purpose of this study was to explore the lived experiences of sandwich generation (SG) women and the influence multigenerational caregiving had on their health behaviors. The specific purpose of this paper was to examine the roles of SG women, whom are individuals providing care to both their aging parents/in-laws and children (Sinha, Spotlight on Canadians: Results from the General Social Survey: Portrait of caregivers, 2012. Statistics Canada catalogue no. 89-652-X - No. 001, Social and Aboriginal Statistics Division, Ottawa, Ontario, 2013). This study was qualitative in nature and utilized the theoretical orientation of phenomenology. Nine SG women completed a background questionnaire and a semi-structured one-on-one interview. After critically analyzing the data, four salient themes emerged, however, this paper only focused on the theme the role of the caregiver. Five subthemes were developed from this theme: (1) Physical care; (2) 'Sounding board': Emotional aspects of caregiving; (3) Never enough time in the day; (4) Am I a caregiver to my children?; and (5) Transitions and variations in caregiving. These findings provide an in-depth understanding of the role of SG women and the complexities that occur when faced with caregiving. This study hopes to provide more knowledge to support government legislation, sandwich generation caregivers, and healthcare providers. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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41. Supporting ethics educators in Canadian occupational therapy and physical therapy programs: A national interprofessional knowledge exchange project.
- Author
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Hudon, Anne, Blackburn, Émilie, Laliberté, Maude, Perreault, Kadija, Mazer, Barbara, Ehrmann Feldman, Debbie, Williams-Jones, Bryn, and Hunt, Matthew
- Subjects
- *
BUSINESS networks , *CONSUMER attitudes , *GOAL (Psychology) , *INTERPROFESSIONAL relations , *INTERVIEWING , *RESEARCH methodology , *MEDICAL school faculty , *MEDICAL ethics , *OCCUPATIONAL therapy , *SENSORY perception , *PHYSICAL therapy , *PROFESSIONS , *REWARD (Psychology) , *TEACHING , *ADULT education workshops , *QUALITATIVE research , *EVALUATION of human services programs - Abstract
Ethics education is the cornerstone of professional practice, fostering knowledge and respect for core ethical values among healthcare professionals. Ethics is also a subject well-suited for interprofessional education and collaboration. However, there are few initiatives to gather experiences and share resources among ethics educators in rehabilitation. We thus undertook a knowledge exchange project to: 1) share knowledge about ethics training across Canadian occupational and physical therapy programs, and 2) build a community of educators dedicated to improving ethics education. The objectives of this paper are to describe this interprofessional knowledge exchange project involving ethics educators (with a diversity of professional and disciplinary backgrounds) from Canadian occupational and physical therapy programs as well as analyze its outcomes based on participants’ experiences/perceptions. Two knowledge exchange strategies were employed: an interactive one-day workshop and a wiki platform. An immediate post-workshop questionnaire evaluated the degree to which participants’ expectations were met. Structured telephone interviews 9-10 months after the workshop collected participants’ perceptions on whether (and if so, how) the project influenced their teaching or led to further interprofessional collaborations. Open-ended questions from the post-workshop questionnaires and individual interviews were analyzed using qualitative methods. Of 40 ethics educators contacted, 23 participated in the workshop and 17 in the follow-up interview. Only 6 participants logged into the wiki from its launch to the end of data collection. Five themes emerged from the qualitative analysis: 1) belonging and networking; 2) sharing and collaborating; 3) changing (or not) ways of teaching ethics; 4) sustaining the network; and 5) envisioning the future of ethics education. The project attained many of its goals, despite encountering some challenges. While the wiki platform proved to be of limited benefit in advancing the project goals, the interactive format and collaborative nature of the one-day workshop were described as rewarding and effective in bringing together occupational therapy and physical therapy educators to meet, network, and share knowledge. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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42. Advice to mothers about managing children's behaviours in Canada's premier woman's magazine: a comparison of 1945-1956 with 1990-2010.
- Author
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Clarke, Juanne N.
- Subjects
- *
MOTHERS , *CHILD behavior , *COMPARATIVE studies , *CONTENT analysis , *RESEARCH methodology , *MENTAL health , *MOTHERHOOD , *PARENTING , *RESEARCH , *RESEARCH funding , *RESPONSIBILITY , *SERIAL publications , *TIME , *QUALITATIVE research , *THEMATIC analysis , *DESCRIPTIVE statistics - Abstract
Recent research and theorizing has characterized contemporary mothering as medicalized, intensive and risky. The rate of diagnosis of children's mental health issues has grown rapidly, particularly since the 90s. This paper examines the construction of mothering in regard to children's behaviours and mental health through an exploratory and qualitative content analysis of the portrayal of advice to mothers in Chatelaine Magazine, the premier women's magazine published in Canada. The time periods chosen for comparison were 1945-1956 and 1990-2010. The first period was selected because it was a time of dramatic changes that occurred in family, occupational and domestic life for women immediately after World War II. The second represents the modern period. The findings of the paper suggest that mothering was intensive, medicalized and risky in both periods although the conceptualizations of problems differed. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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43. What does meaningful look like? A qualitative study of patient engagement at the Pan-Canadian Oncology Drug Review: perspectives of reviewers and payers.
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Rozmovits, Linda, Mai, Helen, Chambers, Alexandra, and Chan, Kelvin
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PATIENT advocacy , *ANTINEOPLASTIC agents , *INTERVIEWING , *RESEARCH methodology , *QUALITY assurance , *QUALITATIVE research , *HEALTH insurance reimbursement , *THEMATIC analysis , *PATIENTS' attitudes , *ECONOMICS , *SOCIETIES - Abstract
Objectives While there is wide support for patient engagement in health technology assessment, determining what constitutes meaningful (as opposed to tokenistic) engagement is complex. This paper explores reviewer and payer perceptions of what constitutes meaningful patient engagement in the Pan-Canadian Oncology Drug Review process. Methods Qualitative interview study comprising 24 semi-structured telephone interviews. A qualitative descriptive approach, employing the technique of constant comparison, was used to produce a thematic analysis. Results Submissions from patient advocacy groups were seen as meaningful when they provided information unavailable from other sources. This included information not collected in clinical trials, information relevant to clinical trade-offs and information about aspects of lived experience such as geographic differences and patient and carer priorities. In contrast, patient submissions that relied on emotional appeals or lacked transparency about their own methods were seen as detracting from the meaningfulness of patient engagement by conflating health technology assessment with other functions of patient advocacy groups such as fundraising or public awareness campaigns, and by failing to provide credible information relevant to deliberations. Conclusions This study suggests that misalignment of stakeholder expectations remains an issue even for a well-regarded health technology assessment process that has promoted patient engagement since its inception. Support for the technical capacity of patient groups to participate in health technology assessment is necessary but not sufficient to address this issue fully. There is a fundamental tension between the evidence-based nature of health technology assessment and the experientially oriented culture of patient advocacy. Divergent notions of what constitutes evidence and how it should be used must also be addressed. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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44. 'This is. That was.' Examining a Family's Lived Experiences After a Cancer Diagnosis.
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Molinaro, Monica, Fletcher, Paula, and Bryden, Pamela
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PSYCHOLOGICAL adaptation , *BEREAVEMENT , *BREAST tumors , *DEATH , *FAMILIES , *FAMILY assessment , *GRIEF , *INTERVIEWING , *LIFE change events , *RESEARCH methodology , *SPIRITUALITY , *SOCIAL support , *FAMILY attitudes - Abstract
In 2015, 231,840 American women were diagnosed with invasive breast cancer. This figure represents mothers, wives, or sisters diagnosed with cancer, a diagnosis which has the potential to affect those closest to them, especially their immediate family. This research aimed to examine the lived experience of a family unit that lost their spouse/mother/sister-in-law to invasive breast cancer. A phenomenological case study was utilized to guide this research. One family unit, consisting of a spouse, daughter, son, and sister-in-law to the deceased were recruited from Southern Ontario, Canada. Background questionnaires and one-on-one semi-structured interviews were conducted. The following themes emerged: (1) negatives, describing struggles with balancing care, faith, and living after a death in the family and (2) silver linings, depicting the strength that Nancy, the deceased, maintained during her illness, and the family's hope and optimism for the future. This paper only addresses the theme 'Negatives,' while the last theme is addressed in Part II of this research. Within the theme 'Negatives,' there were four sub-themes: (1) What About the Kids? (2) The Balancing Act, (3) Why Would He Do This? and (4) Life After Mom. Each will be discussed in turn. This research study provides valuable information regarding the lived experiences of families coping with a parental/spousal cancer diagnosis. It may assist other individuals in similar situations by providing comfort knowing that they are not the only ones encountering this journey. The participants' voices may also allow others to develop strength by understanding the effect of cancer on a family. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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45. Staff perspectives: What is the function of adult mental health day hospital programs?
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Taube‐Schiff, Marlene, Ruhig, Megan, Mehak, Adrienne, Deathe van Dyk, Melanie, Cassin, Stephanie E., Ungar, Thomas, Koczerginski, David, and Sockalingam, Sanjeev
- Subjects
- *
ATTITUDE (Psychology) , *CONCEPTUAL structures , *CONTENT analysis , *CONTINUUM of care , *HEALTH care teams , *INTERVIEWING , *RESEARCH methodology , *MEDICAL personnel , *MENTAL health services , *PSYCHIATRIC hospitals , *QUALITATIVE research , *THEMATIC analysis , *ATTITUDES toward mental illness - Abstract
Accessible summary What Is Known on the Subject? Psychiatric day hospital (DH) treatment has been offered since the 1930s and is appropriate for individuals experiencing intense psychiatric symptoms without requiring 24-hour inpatient care., No empirical research has examined the specific purpose of DH treatment from the perspectives of healthcare providers within these programs., What This Paper Adds To Existing Knowledge? This study was the first to address the question of the purpose and function of DH treatment from the outlook of frontline workers within this setting, and confirmed anecdotal observations that DH treatment provides an alternative to intensive psychiatric care, and also operates as 'bridge' between these intensive services and purely outpatient treatment., Additional information emerged, such as the importance of the name of DH programs avoiding connotations of illness, the benefits and skills that draw patients to these programs, and challenges that staff and patients experience within DH programs (e.g. short length of treatment, barriers to treatment access)., What Are the Implications for Practice? This information can enhance curriculum development within these settings. For example, given the importance of skill building, it is essential to integrate the provision of skill building and coping strategies within these settings., In addition, given that the name of the setting can impact staff (and perhaps service users as well), ensuring that the name of such program highlight wellness and recovery may enable a different type of therapeutic community to develop within these settings., Abstract Introduction Despite the benefits of psychiatric day hospitals ( DH), research has not addressed staff perspectives of these programs' effectiveness and barriers. Aim To elucidate staff perceptions of Adult Mental Health DH programs at two hospitals in Canada, allowing for improved programming, enhanced structure and increased understanding of DH settings within the continuum of care. Method Twenty-five DH staff members completed semi-structured qualitative interviews. Two independent coders applied content analysis to achieve data saturation. Results Four major themes emerged: (1) program purpose and function, (2) what is in a name, (3) perceived patient motivation, and (4) room for improvement. Discussion Findings highlighted the importance of a multidisciplinary team delivering education and skill-focused interventions. Services were cited as 'bridging' different mental health settings. Challenges included barriers to treatment access and inadequate length of treatment. Implications for Practice Understanding the function and purpose of this treatment service may enhance service delivery by enabling programs to integrate identified key ingredients. Providers can also note treatment duration and consider how to best use that time. Finally, language used within a DH setting appears to impact staff delivering services, and may also alter patients' understanding of the services they will receive and purpose of the program. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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46. 'I Just Miss Her. I Just Need Her Here.' Life After a Mother's Cancer.
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Molinaro, Monica, Bryden, Pamela, and Fletcher, Paula
- Subjects
- *
PARENTAL death , *WIDOWHOOD , *HOPE , *INTERVIEWING , *PHENOMENOLOGY , *RESEARCH methodology , *PATIENT-family relations , *QUESTIONNAIRES , *QUALITATIVE research , *THEMATIC analysis , *EXTENDED families , *FAMILY attitudes , *PSYCHOLOGY ,TUMORS & psychology - Abstract
The purpose of this research was to examine the lived experience of a family unit that lost their spouse/mother/sister-in-law to cancer. A phenomenological case study was used to guide this research. Four participants, or one family unit consisting of one spouse, one daughter, one son, and one sister-in-law to the deceased, were recruited from Southern Ontario. Background questionnaires and one-on-one semi-structured interviews were conducted with each family member. The following themes emerged: (1) Negatives and (2) Silver Linings. This paper only addresses the theme 'Silver Linings'; the first theme was addressed in Part I of this research. Within the theme 'Silver Linings,' there were two sub-themes: (1) '...She was remarkable' and (2) Hope for the future. Each will be discussed in turn. Overall, the research study revealed some silver linings that may come from a diagnosis of cancer in a family unit. The family found it difficult to find positives in the loss of their loved one; however, they were able to acknowledge that they have a heightened appreciation for others. This research study provides insight regarding the lived experiences of families coping with the cancer journey of a loved one. It may allow readers to develop a greater sense of appreciation for their health and family members. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
47. Factors Influencing the Uptake of Research Evidence in Child Welfare: A Synthesis of Findings from Australia, Canada and Ireland.
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Buckley, Helen, Tonmyr, Lil, Lewig, Kerry, and Jack, Susan
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CHILD abuse , *CHILD welfare , *INTERVIEWING , *RESEARCH methodology , *MEDICAL care research , *QUESTIONNAIRES , *EVIDENCE-based medicine , *DECISION making in clinical medicine , *QUALITATIVE research , *GOVERNMENT policy , *DATA analysis software - Abstract
This paper draws on three studies conducted in Australia, Canada and Ireland which explore the factors influencing research utilisation in the child protection sector in each country. The paper recognises that research uptake is complicated by a number of factors. It also acknowledges critiques which cite the equally significant influence of ideologies, context, unpredictability, time constraints and political expediency. However, all three studies recognised the increasing importance of evidence-based practice. The methods used in the three studies were not identical but the frameworks used were sufficiently similar to enable the classification of both common and dissimilar barriers and facilitators to research use. Those which they identified were categorised into four types: individual, organisational, environmental and characteristics relating to the nature of research material. Implications were identified for policy makers, service providers and research producers. The point was made that we now live in a period where unprecedented means of knowledge transfer and exchange provide unique opportunities to improve the lives of children and families. Copyright © 2013 John Wiley & Sons, Ltd. Key Practitioner Messages Avail of opportunities to attend learning events., Draw on research findings when conducting assessments, writing reports, devising intervention plans, evaluating programmes and tendering for funding., Establish links with research centres., Become involved in the conduct of research., Support colleagues (champions) who display particular interest and motivation in the use of research evidence by recognising and/or rewarding effort., Avail of opportunities to undertake further study that includes a research component. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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48. Young bisexual women’s perspectives on the relationship between bisexual stigma, mental health, and sexual health: a qualitative study.
- Author
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Flanders, Corey E., Dobinson, Cheryl, and Logie, Carmen
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LGBTQ+ people , *BISEXUALITY , *FOCUS groups , *GENDER identity , *GROUNDED theory , *SEXUAL health , *INTERPERSONAL relations , *INTERVIEWING , *RESEARCH methodology , *MENTAL health , *QUESTIONNAIRES , *RESEARCH funding , *STATISTICAL sampling , *STEREOTYPES , *SOCIAL stigma , *WOMEN'S health , *REPRODUCTIVE health , *QUALITATIVE research , *JUDGMENT sampling , *DATA analysis , *SIGNIFICANT others , *THEMATIC analysis , *HEALTH equity , *DATA analysis software , *MEDICAL coding , *ATTITUDES toward sex , *DESCRIPTIVE statistics , *SOCIETIES - Abstract
Young bisexual women experience worse mental and sexual health outcomes in comparison to their heterosexual and lesbian peers. These disparities are associated with stigma and devaluation of bisexual identities. The current paper addresses a community-based focus group project in which participants discussed bisexual stigma in regard to bisexual erasure and other stereotypes. Specifically, participants detailed experiences of feeling pressured to provide evidence of their bisexual identity, modifying their relationship or sexual behavior to conform to these expectations, as well as feeling excluded from queer community. Further, participants discussed how these experiences were related to decreased mental and sexual health. Future research should further investigate the relationship between bisexual stigma, pressure to provide evidence of bisexual identity, and negative mental and sexual health outcomes. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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49. Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life.
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Woodgate, R. L., Edwards, M., Ripat, J. D., Rempel, G., and Johnson, S. F.
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ATTITUDE (Psychology) , *SIBLINGS , *CHRONIC diseases in children , *EXPERIENCE , *INTERVIEWING , *RESEARCH methodology , *RESEARCH funding , *ETHNOLOGY research , *QUALITATIVE research , *THEMATIC analysis - Abstract
Background Participating in everyday life is essential to the healthy development and emotional well-being of children. However, little is known about siblings of children with complex care needs (CCN), and their perspectives and experiences of participating in everyday life. The aim of this paper is to present research findings that add to our understanding of how siblings of children with CCN view and experience participation in everyday life. Methods To arrive at a detailed and accurate understanding of the siblings' perspectives and experiences, we used the qualitative research design of ethnography. Sixteen siblings (seven brothers, nine sisters) of children with CCN were recruited. The siblings ranged in age between 7 and 25 years, with a mean age of 14 years. All siblings took part in opened-ended interviews and completed ecomaps to describe how they participate. Five siblings also took part in the photovoice method. Analysis involved several iterative steps, congruent with ethnography. Results Four main themes emerged as follows: (1) participation is about being part of a group; (2) it feels good; (3) I love my sibling but...; and (4) promoting participation. Siblings of children with CCN identified challenges to participation and also described ways that they participate that relate to the care of their sibling. Conclusions Siblings prioritized the relationship with their sisters and brothers with CCN in their life, and a great deal of their participation was chosen with their sibling in mind. Sibling-to-sibling relationships were distinct and meaningful and, as a result, participation was always done mindfully and with the family needs at the forefront. Nonetheless, clinicians caring for children with CCN must keep in mind the challenges that siblings of children with CCN experience and provide strategies to siblings that will help to promote their participation in everyday life. [ABSTRACT FROM AUTHOR]
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- 2016
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50. Older people's views in relation to risk of falling and need for intervention: a meta-ethnography.
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McInnes, Elizabeth, Seers, Kate, and Tutton, Liz
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ACCIDENTAL fall prevention , *RISK factors of falling down , *PSYCHOLOGICAL adaptation , *ELDER care , *AGING , *ANALYSIS of variance , *ATTITUDE (Psychology) , *BEHAVIOR modification , *CINAHL database , *HEALTH behavior , *MEDICAL information storage & retrieval systems , *PSYCHOLOGY information storage & retrieval systems , *LIFE skills , *RESEARCH methodology , *MEDLINE , *META-analysis , *PATIENTS , *HEALTH self-care , *SELF-efficacy , *ETHNOLOGY research , *SYSTEMATIC reviews , *QUALITATIVE research , *ACTIVITIES of daily living , *THEMATIC analysis , *OLD age - Abstract
mcinnes e., seers k. & tutton l. (2011) Older people's views in relation to risk of falling and need for intervention: a meta-ethnography. Journal of Advanced Nursing 67(12), 2525-2536. Abstract Aim. This paper is a report of a meta-ethnography of qualitative studies of older peoples' views on risk of falling and need for intervention. Background. Falls and falls-related injuries in older people are worldwide problems. A conceptual understanding of older people's views about falls risk and need for intervention is useful for understanding factors likely to impact on acceptance of risk and recommended interventions. Data Sources. Seven electronic databases were searched 1999-2009. Reference lists of included articles were screened for eligible papers. Review Methods. Assessment of quality was carried out. Themes and concepts were extracted using a meta-ethnographic approach to compare similarities and differences across the retrieved studies. A line of argument was developed to produce an explanatory framework of the extracted themes and concepts. Results. Eleven relevant qualitative research articles of reasonable quality were identified. Six key concepts were identified: beyond personal control; rationalizing; salience; life-change and identity; taking control and self-management. A line of argument synthesis describes how older people approach self-appraisal of falls risk and intervention need, and how they cope and adapt to falls risk and intervention need. Conclusion. In response to having an elevated risk status and perceived associations with frailty and impact on an independent life-style, some prefer to adapt to this reality by taking control and implementing self-management strategies. Healthcare professionals should take into account beliefs about risk and negotiate choices for intervention, recognizing that some individuals prefer to drive the decision-making process to preserve identity as a competent and independent person. [ABSTRACT FROM AUTHOR]
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- 2011
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