1. Improving Retention of Diverse Samples in Longitudinal Research on Developmental Disabilities
- Author
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Song, Jieun, Dembo, Robert S., DaWalt, Leann Smith, Ryff, Carol D., and Mailick, Marsha R.
- Abstract
Developmental disabilities (DD) research has depended on volunteer and clinical samples, with limited racial/ethnic diversity. This study focused on improving diversity and retention in DD research. The sample included 225 parents with a child with DD and 4,002 parents without children with DD from diverse racial/ethnic groups, drawn from Midlife in the United States, a national longitudinal study. Unexpectedly, parents of children with DD from diverse racial/ethnic groups were "more likely" to participate longitudinally than other groups. Relative participant payment was a factor that enhanced their likelihood of retention. This research illustrates how large national studies can be leveraged to increase representativeness and ongoing participation of diverse racial/ethnic groups, especially in combination with other factors, such as parenting a child with DD.
- Published
- 2023
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