422 results
Search Results
2. The impact of the Health and Social Care Act, 2012 on the health and wellbeing of rough sleepers.
- Author
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Fuller, James Sebastian
- Subjects
HEALTH care reform ,MEDICAL economics ,LEGAL status of social workers ,CHARITIES ,CORRECTIONAL institutions ,HEALTH services accessibility ,HEALTH services administration ,HEALTH status indicators ,HOMELESS persons ,HOMELESSNESS ,INTERPROFESSIONAL relations ,MEDICAL care ,NATIONAL health services ,MENTAL health services ,PUBLIC health administration ,PUBLIC housing ,SOCIAL workers ,PATIENT participation ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to explore the impact of the Health and Social Care Act, 2012 on London’s rough sleepers as seen from the perspective of one former homeless service user (currently working as a support worker in a day centre providing outreach and “drop in” facilities for people who are street homeless and other vulnerable adults including female sex workers). The discussion centres on some of the unintended impacts of changes to healthcare commissioning; the new arrangements for patient, public representation; and the enhanced role of local councils.Design/methodology/approach This paper is grounded in front line practitioner reflection/opinion and draws on practical experience and observation at Spires, as well as research and government papers published by other service providers. The aspirations of the Health and Social Care Act, 2012 are set out before its practical application are examined from the rough sleeper’s dimension.Findings Putting clinicians and GPs centre stage in the commissioning and purchasing of healthcare may have some benefits for individual patient choice, but it can also dilute patient public involvement in health and social care with negative effects for vulnerable and excluded groups, including rough sleepers. The terms of reference ascribed to Local Healthwatch Organisations, the official representatives of the people, are narrower than previously and limit their ability to influence official policy. The Act centralises control whilst devolving operational responsibility, especially for public health provision on which rough sleepers often rely. It is suggested that local voluntary organisations and specialist “inclusion” health groups are increasingly being expected to take over responsibility for delivering health and social care and that mainstream collaboration is much reduced rather than enhanced by this fragmentation.Research limitations/implications This review is based on the opinion of an “expert by experience” which may not be representative.Originality/value This is one of few papers which present a front line service user/practitioner perspective on the impact of clinical commissioning on services for marginalised groups. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
3. Qualitative Methods in Psychology (QMiP) Conference 2022, taking place on 13-15 July at De Montfort University, Leicester.
- Author
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Blundell, Peter and Oakley, Lisa
- Subjects
WORK ,CONFERENCES & conventions ,PSYCHOLOGY ,EXPERIENTIAL learning ,PROFESSIONAL associations - Abstract
The article informs about the Qualitative Methods in Psychology (QMiP) conference at Leicester's De Montfort University on July 13–15, 2022, in Leicester. Topics include workshop facilitated by Michael Larkin exploring interpretative phenomenological analysis (IPA); and provides a unique opportunity for qualitative researchers to come together and share innovation.
- Published
- 2022
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4. Confidentiality and cultural competence? The realities of engaging young British Pakistanis and Bangladeshis into substance use services.
- Author
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Gray, Paul and Ralphs, Rob
- Subjects
SUBSTANCE abuse treatment ,CONFIDENCE ,INTERVIEWING ,RESEARCH methodology ,MEDICAL ethics ,PRIVACY ,TRUST ,PATIENT participation ,ETHNOLOGY research ,ASIANS ,QUANTITATIVE research ,CULTURAL competence ,PSYCHOLOGY of drug abusers ,ODDS ratio ,STAKEHOLDER analysis ,PSYCHOLOGY - Abstract
Aims: This paper focuses on the reasons for the under-representation of British South Asians in substance use services. Based on a small-scale evaluation of a substance use service that delivers targeted outreach support within two predominantly Pakistani and Bangladeshi communities in the north west of England, this paper contributes to the debate around how substance use services can best engage with young British Pakistani and Bangladeshi substance users. Methods: Semi-structured interviews (with six staff members, 18 young Pakistani and Bangladeshi service users, and 18 stakeholders and partner agencies), a detailed ethnographic observation of the service, and an analysis of routinely collected quantitative monitoring data. Findings: The paper highlights the importance of what Fountain terms low threshold/open access services. Alongside this, the paper argues that the building of trust and confidence in a substance use service is a key when it comes to engaging with young Pakistani and Bangladeshi substance users. Yet this necessary process takes time: something that is at odds with the current trend towards short-term funding regimes and 'quick wins'. Conclusions: The paper concludes by advocating the need for, not only a diverse range of engagement strategies, but also a longer term approach when it comes to developing and delivering substance use services aimed at successfully engaging with this particular group of substance users. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
5. Building Recovery Capital through Community Engagement: A Hub and Spoke Model for Peer-based Recovery Support Services in England.
- Author
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Best, David, Higham, David, Pickersgill, Ged, Higham, Kerrie, Hancock, Richard, and Critchlow, Theresa
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PSYCHOLOGICAL adaptation ,CONVALESCENCE ,INTERPERSONAL relations ,MATHEMATICAL models ,CASE studies ,PSYCHOLOGY ,PSYCHOLOGICAL resilience ,SOCIAL participation ,TRUST ,SUBSTANCE abuse treatment ,AFFINITY groups ,SOCIAL support ,INDEPENDENT living - Abstract
There is a growing evidence base that recovery is contagious and its primary mechanism of spread is through peer champions and groups. This paper examines a model of peer-based recovery support services from Cumbria, England, that uses a hub and spoke method to create visible recovery while actively engaging with and supporting community growth. Three case studies are used to illustrate how peer engagement, using the principles of community connection and assertive linkage, can offer core resources to a local community. The key conclusion is that sustainability of recovery communities rests on effective community engagement and meeting the needs of those communities. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
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6. Collaboration between housing, health and social care.
- Author
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Brown, Tim
- Subjects
INTERPROFESSIONAL relations ,LABOR supply ,MEDICAL care ,HEALTH policy ,NATIONAL health services ,MENTAL health ,PUBLIC health ,PUBLIC welfare ,TEAMS in the workplace ,GOVERNMENT programs ,HUMAN services programs ,SENIOR housing ,PSYCHOLOGY - Abstract
Purpose Comment on the contribution that housing can make to delivering better health and wellbeing outcomes. More specifically, the purpose of this paper is threefold: summarise recent evidence that makes the case for housing in helping to address health and social care issues; comment on the challenges and opportunities of partnership working; and describe examples of interesting and innovative local joint provision.Design/methodology/approach Draws on the author's briefing papers on housing, health and social care for housing quality network, which is a national housing consultancy organisation as well as the author's role as Chairperson of East Midlands Housing Care and Support, which is a regional housing association.Findings Collaboration between housing, health and social care is making slow progress at the national level in England. This is despite an ever-increasing evidence base highlighting that good housing can help to address issues, such as delayed discharges. Nevertheless, there are an increasing number of interesting examples of successful local initiatives on housing, health and adult social care. The way forward is to facilitate joint working at a local level.Originality/value Focusses on the success of examples of local joint working between housing, health and social care to achieve better outcomes for vulnerable people. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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7. Contemporary young motherhood: experiences of hostility.
- Author
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Fearnley, Barry
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MOTHERHOOD & psychology ,AGGRESSION (Psychology) ,FOCUS groups ,INTERVIEWING ,RESEARCH methodology ,PARENTING ,PARTICIPANT observation ,HUMAN sexuality ,TEENAGE mothers ,TEENAGE pregnancy ,QUALITATIVE research ,SOCIOECONOMIC factors ,NARRATIVES ,THEMATIC analysis ,ATTITUDES of mothers ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to illustrate the hostility many young women who are also mothers experience within their everyday lives.Design/methodology/approach The paper will draw on qualitative research, incorporating a narrative approach, to illustrate the hostility many young mothers experience on a daily basis. The research design included a focus group, semi-structure interviews and participant observations.Findings The paper reports the findings of a study that explored the experiences of young women who are also mothers. The author presents the findings that indicate that many young women, who are also young mothers, experience hostile reactions and interactions as part of their everyday lives.Research limitations/implications The small sample size means that this study cannot be generalised, but it does contribute to the growing body of qualitative evidence in relation to young mothers.Practical implications The findings suggest that there needs to be more recognition and acknowledgement of the hostility young women experience. Such hostility could have deleterious consequences on the young women, their parenting ability and also on the children.Originality/value This paper documents the experiences of young women who are also mothers and how they experience hostility as a daily occurrence. The hostility ranged from verbal to non-verbal and how they felt they were being treated, inferences about their sexuality to stereotyping. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
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8. Examining the utility of the Stages of Change model for working with offenders with learning disabilities.
- Author
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Panting, Holly, Swift, Charlotte, Goodman, Wendy, and Davis, Cara
- Subjects
PEOPLE with intellectual disabilities ,FORENSIC psychiatry ,MOTIVATION (Psychology) ,MOTIVATIONAL interviewing ,TRANSTHEORETICAL model of change ,CRIMINALS with mental illness ,THERAPEUTICS ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to investigate whether the Stages of Change (SOC) model can be applied to working with offenders with learning disabilities (LD), and furthermore, to determine if it might be efficacious for this approach to be incorporated into a wider service model for this population.Design/methodology/approach This paper reports on the results of a consultation to a specialist forensic LD service in the South West of England. A two-pronged approach was taken to consult to the service in relation to the research questions. First, a comprehensive literature review was undertaken, and second, other forensic LD teams and experts in the field were consulted.Findings There is a dearth of research that has examined the application of the SOC model to working with offenders with LD, and as such, firm conclusions cannot be drawn as to its efficacy in this population. The evidence base for the SOC model in itself is lacking, and has been widely critiqued. However, there are currently no other evidence-based models for understanding motivation to change in offenders with LD.Research limitations/implications There is a clear clinical need for more robust theory and research around motivation to change, which can then be applied to clinical work with offenders with LD.Originality/value There has been a historical narrative in offender rehabilitation that “nothing works” (Burrowes and Needs, 2009). As such, it is more important than ever for the evidence base to enhance the understanding of motivation to change in offending populations. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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9. Forgotten victims: students’ attitudes towards and responses to male sexual victimisation.
- Author
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Javaid, Aliraza
- Subjects
SEX crimes ,HOMOSEXUALITY ,QUESTIONNAIRES ,STUDENT attitudes ,VICTIM psychology ,QUALITATIVE research ,PSYCHOLOGY - Abstract
This paper will examine students’ attitudes and responses to male sexual victimisation in England. In particular, it focuses on their thoughts, beliefs, views, and understandings of male rape. It does this by empirically researching male rape with the use of qualitative questionnaires, from 100 students of a university in West Yorkshire, England. There are some serious concerns that were highlighted by the findings. For example, the myths that “male rape is not a serious issue” and “male rape is solely a homosexual issue” (and more) emerge from the findings. This warrants close attention and analysis, given that students are a part of the community in which male rape often occurs. This paper outlines the implications of the findings. It argues that, in certain contexts, students’ attitudes and discourses about male rape are being shaped and re-shaped; this suggests that their thought patterns are fluid with regard to male rape, shaped by the contexts in which they are situated. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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10. Mentally disordered young offenders in transition from child and adolescent to adult mental health services across England and Wales.
- Author
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Livanou, Maria I., Furtado, Vivek, and Singh, Swaran P.
- Subjects
COMPETENCY assessment (Law) ,CONTINUUM of care ,FORENSIC psychiatry ,MEDICAL care ,PATIENT-professional relations ,MEDICAL protocols ,MENTAL health services ,LITERATURE reviews ,WELL-being ,INSTITUTIONAL cooperation ,CRIMINALS with mental illness ,ADOLESCENCE ,PSYCHOLOGY - Abstract
Purpose This paper provides an overview of transitions across forensic child and adolescent mental health services in England and Wales. The purpose of this paper is to delineate the national secure services system for young people in contact with the youth justice system.Design/methodology/approach This paper reviews findings from the existing literature of transitions across forensic child and adolescent mental health services, drawing attention to present facilitators and barriers to optimal transition. The authors examine the infrastructure of current services and highlight gaps between child and adult service continuity and evaluate the impact of poor transitions on young offenders’ mental health and wellbeing.Findings Young offenders experience a broad range of difficulties, from the multiple interfaces with the legal system, untreated mental health problems, and poor transition to adult services. Barriers such as long waiting lists, lack of coordination between services and lack of transition preparation impede significantly smooth transitions.Research limitations/implications The authors need to develop, test and evaluate models of transitional care that improve mental health and wellbeing of this group.Practical implications Mapping young offenders’ care pathway will help to understand their needs and also to impact current policy and practice. Key workers in forensic services should facilitate the transition process by developing sustainable relationships with the young person and creating a safe clinical environment.Originality/value Transition of care from forensic child and adolescent mental health services is a neglected area. This paper attempts to highlight the nature and magnitude of the problems at the transition interface in a forensic context. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
11. Recovering the body in grief: Physical absence and embodied presence.
- Author
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Pearce, Caroline and Komaromy, Carol
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DEATH & psychology ,GRIEF ,CONVALESCENCE ,PSYCHOLOGY ,INTERVIEWING ,HUMANITY ,THEORY ,EMPIRICAL research ,PSYCHOLOGICAL adaptation ,BEREAVEMENT - Abstract
This paper addresses the complex issue of the embodiment of grief. It explores how a theoretical shift to the body has influenced scholarly literature about grief and bereavement. Despite this shift, we argue that bodily interpretations and experiences are undertheorised in western psychological literature on bereavement. Specifically, we argue that linear stage models of grief have encouraged the view that grief needs 'working through' in the mind, and not necessarily the body. We draw on empirical data from interviews with bereaved people undertaken in England to illustrate aspects of the embodied experience of grief that differ from how psychological grief theories conceive of the bereaved person's body. Findings highlight the role of the bereaved person's body in managing grief and how the absence and continuing presence of the deceased person is managed through embodied practices. We conclude that understanding grief as an embodied experience can enable the development of grief theories that better capture the complex negotiation between the psychological processes of grief and the materiality of bodies. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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12. Health promotion viewed in a critical perspective.
- Author
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Mik-Meyer, Nanna
- Subjects
HEALTH promotion ,OBESITY & psychology ,CONTROL (Psychology) ,ETHICS ,CULTURAL values ,PSYCHOLOGY - Abstract
The aim of this paper is to reflect critically on the current health promotion initiatives targeting overweight individuals in Western countries. The paper’s methodological approach is to draw on analytical findings from my and other sociologists’ empirical work on how the problems of overweight people are being defined in various settings in Denmark, England, Australia and the US. I try to illustrate how health promotion targeting overweight individuals can not only be seen as a project aimed at securing longer lives and fewer illnesses for people carrying excess fat but also a moral project that, in a more general sense, aims to tell people how they ought to live their lives. I link this moral aspect of health promotion to a) the medicalization tendency in current Western society (e.g. a growing pharmaceutical industry and its economic interest in transforming the human condition of being overweight into a treatable disorder) and b) the strong focus on individual risk today. One of the main arguments in the paper is that health in relation to overweight is primarily defined from a biomedical perspective that praises certain physical measurements of the body, as well as dominant societal values such as self-responsibility and self-control, and that a combination of biomedicine and these dominating values can lead to health promotion becoming a problematic moral endeavour. [ABSTRACT FROM PUBLISHER]
- Published
- 2014
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13. Living in Fear: Rejected Asylum Seekers Living as Irregular Migrants in England.
- Author
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Bloch, Alice
- Subjects
POLITICAL refugees ,SOCIAL networks ,RIGHT of asylum ,IMMIGRANTS ,ZIMBABWEANS ,KURDS ,ADULTS ,SOCIAL history ,PSYCHOLOGY - Abstract
Drawing on data from in-depth interviews with refused asylum seekers from Zimbabwe and Kurds from Turkey, who have stayed in Britain as irregular migrants, this paper examines everyday lives, strategies and fears. The paper focuses on four main areas: individual experiences of the asylum system leading to irregularity; living as an irregular migrant with the constraints on economic participation and limited housing options; social lives, relationships and community activities alongside the ways in which decisions about social interactions intersect with irregularity and subsistence support; the fears and everyday struggles faced by irregular migrant's living in England, and the ways in which this translates into relationships with place and space. The paper draws out both the commonalities and the diversity of experiences among refused asylum seekers living in England. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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14. Defining the problem and sourcing the solution: a reflection on some of the organisational, professional and emotional complexities of accessing post-adoption support.
- Author
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Harlow, Elizabeth
- Subjects
ADOPTIVE parents ,PSYCHOLOGY ,SOCIAL case work ,UNCERTAINTY ,THEORY ,GOVERNMENT policy ,SOCIAL support - Abstract
In the United Kingdom as elsewhere, children across the age range are now being adopted from care. Some of these children, by no means all, are expressing additional physical, emotional, behavioural and educational needs. In consequence, the government has introduced legislation and attendant policies aimed at providing adoptive families with support. In 2013, in the northwest of England, a specialist post-adoption support service was established, and an illuminative evaluation of its organisation and provision was conducted. A key theme emerging from the qualitative data concerned the difficulties parents had encountered in accessing appropriate support prior to the creation of the service. These difficulties have been interpreted as: uncertainty in defining the problems encountered and knowing which agencies and professionals to approach; ambivalence about seeking help; professionals' uncertainty in knowing how to respond; and the scarcity of resources. This paper illustrates these difficulties, then draws attention to some of the ways in which they are being addressed. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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15. 'I can see what's going on without being nosey...': What matters to people living with dementia about home as revealed through visual home tours.
- Author
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Campbell, Sarah, Clark, Andrew, Keady, John, Manji, Kainde, Odzakovic, Elzana, Rummery, Kirstein, and Ward, Richard
- Subjects
- *
DEMENTIA , *HOME environment , *INTERVIEWING , *PATIENTS' attitudes , *EXPERIENCE , *CONGREGATE housing , *DEMENTIA patients , *RESEARCH funding , *THEMATIC analysis , *FAMILY relations , *NEIGHBORHOOD characteristics , *VIDEO recording , *SOCIAL integration , *PSYCHOLOGY - Abstract
Objectives: This paper considers home from the perspective of people living with dementia supporting ongoing discourse around ageing in place and the significance of creating more inclusive communities. Methods: Forty‐six home tour interviews led by people living with dementia were conducted in England and Scotland to better understand the connectivity between home and neighbourhood for people living with dementia. These interviews used a range of participatory and creative approaches including video, photographic images and in situ interviews. Data were analysed via reflexive thematic analysis. Results: Three themes were identified in data analysis. 1. Connected home and neighbourhood, where participants revealed the dynamic relationship between home and neighbourhood; 2. Practices of home, where participants discussed the everyday nature of their homes and routines; and 3. Displaying home and family, which reflected participant's biographical homes in the context of living with dementia. Discussion: The findings show that home holds multiple meanings for people living with dementia. For example, home is understood as a part of the neighbourhood and an extension of the home space into gardens and backyards, thus extending existing discourses that solely focus on the inside of people's homes. For people living with dementia, homes are also sites of negotiation and renegotiation where new meanings are created to reflect the changing nature and context of the home. There is not one fixed solution to these issues. Support and understanding for people living with dementia will need to evolve to adapt to the shifting dynamics and multiple meanings of home. Key points: Neighbourhoods begin within homes and are interconnected. This relationship has important implications for the discourse of ageing in place.'Home' for people living with dementia holds the same meanings for those without dementia, but with some notable differences. It is important to recognise the shifting dynamics of home and to recognise the complexity of home in the context of dementia. There is not a fixed solution to the challenges of ageing at home with dementia, but support and understanding need to evolve alongside people with lived experience.Homes are a site of renegotiation where new meanings are created to reflect the changing nature of home and the lived experience of home for those with dementia.The study has provided findings through innovation in the research design. The employment of creative methods enabled people living with dementia to participate in sharing their own narratives of home.The work provides evidence where there is a current gap in understanding 'what matters' about home for people living with dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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16. The end of false choices.
- Author
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MacAlister, Josh
- Subjects
SOCIAL services ,SOCIAL case work ,CHARITIES ,DEBATE ,LEADERSHIP ,SOCIAL work education ,PROFESSIONAL practice ,OCCUPATIONAL roles ,SOCIAL worker attitudes ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to expose and dispel some outdated dilemmas and straw men that have drawn attention away from debates of substance in social work. The paper presents what Frontline believes to be the substantive dilemmas facing the social work profession, as it looks into the future.Design/methodology/approach The paper draws on the insights and experiences of the past four years during which Frontline has been innovating in the field of social work education and leadership development.Findings Building a better social work system requires addressing several important questions, namely, whether social work; first, is a practical or intellectual task; second, is a generic or specialist profession; third, focuses on social or therapeutic change; fourth, requires bureaucrats or change agents; and fifth, involves measuring inspections or measuring outcomes.Originality/value The paper sets out the key dilemmas facing the social work profession, which must be debated and addressed in order to build a better social work system. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
17. Child protection in England: an emerging inequalities perspective.
- Author
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Bywaters, Paul and Sparks, Tim
- Subjects
CHILD welfare ,ETHNIC groups ,HEALTH services accessibility ,HEALTH status indicators ,EVALUATION of medical care ,POLICY sciences ,GOVERNMENT policy ,SOCIOECONOMIC factors ,HEALTH equity ,PSYCHOLOGY - Abstract
Purpose In the past 40 years, both health policy and educational policy in England have adopted commitments to reducing socially created inequalities. However, an inequalities perspective has only begun to emerge in relation to child protection, and child welfare services more widely. The purpose of this paper is to chart evidence of these green shoots of a new policy direction which focusses on two aspects: equalising service provision and outcomes for looked after children.Design/methodology/approach The paper provides an analysis of trends in policies as expressed in official documents, research studies and policy statements.Findings The paper outlines the argument for a more comprehensive approach to addressing inequalities in child protection and child welfare services, and concludes by suggesting some implications for policy and practice.Originality/value The paper develops the concept of an inequalities perspective in child protection and outlines key implications. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
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18. In defence of a university social work education.
- Author
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Thoburn, June
- Subjects
SOCIAL work education ,SOCIAL workers ,UNIVERSITIES & colleges ,ALTERNATIVE education ,COLLEGE graduates ,SOCIAL services ,STUDENTS ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to identify the particular characteristics and strengths of mainstream undergraduate and postgraduate university education for social workers.Design/methodology/approach A brief summary of the establishment of the honours degree or M-level qualification as the requirement for registration as a social worker in England is followed by a summary of the main aspects of “mainstream” social work courses. The values underpinning a “student” rather than a “trainee” route into social work are explored and some limited comparisons made with recently introduced fast-track specialist programmes. Where relevant, the student experience is contrasted with that of fast-track specialist trainees.Findings The paper concludes with a discussion of the potential impact on the social work profession and on agencies providing social work services of the cuts over the past few years in the numbers of students on “generalist” mainstream social work programmes.Research limitations/implications This is a conceptual paper. It recognises that more information is available on long-established university programmes than on the more recently available fast-track routes into social work and cites relevant research.Practical implications The paper points to the changing balance between numbers entering social work in England via mainstream and fast-track specialist programmes and argues for a fuller debate amongst all stakeholders as to whether this change is in the interest of the profession and those who need social work services.Social implications The author argues that the unequal level of funding between the different entry routes into social work is distorting choice (for students and future employers) between fast-track specialist and mainstream social work education. It is hypothesised that differences between the curricula and learning experiences of the two routes may have an impact on the social work service available to vulnerable people across age and needs groups. It also points to a potentially negative impact on social work education and the knowledge base of the reduction in numbers of academics with both social work practice experiences and research qualifications.Originality/value This is an original paper that draws on the author’s experience and the published research and grey literature cited. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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19. The potential value of priority-setting methods in public health investment decisions: qualitative findings from three English local authorities.
- Author
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Hunter, D. J., Marks, L., Brown, J., Scalabrini, S., Salway, S., Vale, L., Gray, J., and Payne, N.
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PUBLIC health & economics ,POLICY sciences ,CELEBRITIES ,DECISION making ,INTERVIEWING ,RESEARCH funding ,PSYCHOLOGY - Abstract
This paper reports on an action-oriented research study providing decision support to three local authorities in England on the prioritisation of public health investment and disinvestment decisions. We adopted a political science perspective, using the multiple streams framework to investigate the use of prioritisation tools in public health spending decisions at a time of severe financial constraints. The challenges and implications of their potential use in everyday practice were explored. Twenty-nine interviews were conducted before the targeted decision support occurred and 19 interviews after the decision support had been delivered. Interviews were held with locally elected politicians, officers and public health professionals based within local government, NHS commissioners and the local independent consumer watchdog for health and social care. Targeted workshops with local stakeholders were facilitated in each site by health economist members of the project team. Structured observational notes were recorded during these workshops and integrated with the interview data. Many respondents expressed an interest in prioritisation tools although some scepticism was expressed about their value and impact on decision-making. This paper analyses the enablers and barriers to adopting priority-setting tools in a local government environment that by definition is political. The findings suggest that the adoption of priority-setting tools in decision-making processes in public health poses some significant challenges within local government and that certain enabling factors have to be present. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
20. Hospital discharge: lost opportunities to promote or maintain older people’s mental health.
- Author
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Macmillan, Tarran Haskey
- Subjects
MEDICAL care laws ,MEDICAL care for older people ,LIFE skills ,ANXIETY ,DEMENTIA ,MENTAL health ,DISCHARGE planning ,PATIENT aftercare ,PSYCHOLOGICAL adaptation ,FOCUS groups ,INTERVIEWING ,PUBLIC welfare ,SELF-perception in old age ,SURVEYS ,QUALITATIVE research ,WELL-being ,THEMATIC analysis ,BURDEN of care ,FAMILY attitudes ,PATIENT decision making ,PSYCHOLOGICAL factors ,OLD age ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to explore the impact of hospital discharge on the wider wellbeing of older people, drawing out implications this can have on mental health.Design/methodology/approach This paper is based on research from the Healthwatch England Special Inquiry into hospital discharge. The paper focuses on the experiences of 1,300 older people, with the majority of the research being undertaken by the local Healthwatch network. The 58 local Healthwatch who submitted evidence on the experiences of older people as part of the inquiry were autonomous in how they were able to carry out the research, with results being analysed through use of a qualitative framework.Findings Older people often felt they were not ready for discharge due to not feeling involved in planning of their discharge, being discharged without the information they need and having difficulties accessing aftercare support. This paper examines the impact these issues can have on the mental health and wellbeing of older people, their carers and specifically patients with dementia both during and after discharge from hospital. Through examination of these issues the discharge process can be viewed from the perspective of the individual, and start to conceptualise where the hospital discharge process could further support older people’s mental health and wellbeing.Research limitations/implications This paper examines these issues in detail through case studies collected regarding older people, and exposes the impact poor discharge can have on physical and mental wellbeing for older patients. The paper presents a number of issues which have implications for policy and practice in both health and social care, and the integration of the two services.Originality/value This is the first Special Inquiry conducted by Healthwatch England in conjunction with the local Healthwatch network and presents a large scale piece of research led by the experiences of older people. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
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21. Moral dilemmas and abortion decision-making: Lessons learnt from abortion research in England and Wales.
- Author
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Hoggart, Lesley
- Subjects
ABORTION & psychology ,TEENAGE pregnancy ,EMOTIONS ,ETHICS ,INTERVIEWING ,TEENAGERS' conduct of life ,WOMEN'S health ,REPRODUCTIVE health ,QUALITATIVE research ,ETHICAL decision making ,SECONDARY analysis ,THEMATIC analysis ,DATA analysis software ,PSYCHOLOGY - Abstract
This paper scrutinises the concepts of moral reasoning and personal reasoning, problematising the binary model by looking at young women’s pregnancy decision-making. Data from two UK empirical studies are subjected to theoretically driven qualitative secondary analysis, and illustrative cases show how complex decision-making is characterised by an intertwining of the personal and the moral, and is thus best understood by drawing on moral relativism. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
22. Implementing quality improvement through knowledge brokering: a Dutch case study.
- Author
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Quartz-Topp, Julia
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CORPORATE culture ,HEALTH facility administration ,HEALTH services administrators ,INTERVIEWING ,LEADERSHIP ,RESEARCH methodology ,CASE studies ,MEDICAL personnel ,PARTICIPANT observation ,QUALITY assurance ,STRATEGIC planning ,KNOWLEDGE management ,QUALITATIVE research ,MANAGEMENT styles ,PSYCHOLOGY - Abstract
Purpose Managerial quality improvement (QI) in terms of accountability management has become central to healthcare institutions. Yet, managerial QI is largely considered irrelevant by healthcare professionals. In consequence, the implementation of managerial QI implementation is hampered. Knowledge brokering is discussed as a means to foster the implementation of (QI) knowledge in healthcare. Yet, the benefit of knowledge brokering for managerial QI has so far been neglected. Therefore, this research asks how knowledge brokering can support the implementation of managerial QI.Design/methodology/approach This article builds on a single case study approach as a unit of analysis. Qualitative data collection comprises 21 semi-structured interviews at the managerial and clinical levels, 220 h of participant observation and document analysis.Findings This paper identifies three strategies of how brokers implement managerial QI into a hospital by means of knowledge brokering: prioritizing, obscuring and redefining. The strategies help to transform multiple external QI demands into one managerial QI strategy. Yet the strategies also reduce non-managerial perspectives on QI, which generates frustration among healthcare professionals.Practical implications The paper works out the benefits and costs of managerial knowledge brokering. This allows to spell out practical implications for managers, nurses and clinicians who have to deal with managerial QI in healthcare organizations.Originality/value This paper fulfils an identified need to study managerial knowledge brokering practices as a means to implement managerial QI into healthcare organizations. By doing that, the article adds to the body of research on knowledge translation in healthcare. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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23. Logics of marginalisation in health and social care reform: Integration, choice, and provider-blind provision.
- Author
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Glynos, Jason, Speed, Ewen, and West, Karen
- Subjects
MEDICAL care ,HEALTH care rationing ,HEALTH care reform ,INTEGRATED health care delivery ,LOGIC ,NATIONAL health services ,PUBLIC opinion ,SOCIAL services ,GOVERNMENT policy ,PSYCHOLOGY - Abstract
The period 2010–2013 was a time of far-reaching structural reforms of the National Health Service in England. Of particular interest in this paper is the way in which radical critiques of the reform process were marginalised by pragmatic concerns about how to maintain the market-competition thrust of the reforms while avoiding potential fragmentation. We draw on the Essex school of political discourse theory and develop a ‘nodal’ analytical framework to argue that widespread and repeated appeals to a narrative of choice-based integrated care served to take the fragmentation ‘sting’ out of radical critiques of the pro-competition reform process. This served to marginalise alternative visions of health and social care, and to pre-empt the contestation of a key norm in the provision of health care that is closely associated with the notions of ‘any willing provider’ and ‘any qualified provider’: provider-blind provision. [ABSTRACT FROM PUBLISHER]
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- 2015
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24. Supporting the social networks of homeless people.
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Joly, Louise, Cornes, Michelle, and Manthorpe, Jill
- Subjects
SUBSTANCE abuse prevention ,FOCUS groups ,HOMELESS persons ,HOMELESSNESS ,INTERPERSONAL relations ,INTERVIEWING ,CASE studies ,SOCIAL networks ,SOCIAL support ,PSYCHOLOGY - Abstract
Purpose – Homelessness often results from the loss of social networks and individuals are tested in being able to sustain or develop new positive social networks necessary to rebuild lives. The purpose of this paper is to present findings from an exploratory study which investigated how different agencies and professionals support people experiencing multiple exclusion homelessness (MEH) to develop and maintain their social networks amid other competing priorities, such as reducing substance misuse and re-offending. Design/methodology/approach – The study was undertaken in England 2010-2011 in three case study sites. Data were collected in 76 interviews with practitioners and managers, from disciplines including housing support, social work, criminal justice, mental health and substance misuse services. Totally, 56 interviews and five focus groups were also undertaken with people with experiences of MEH. Data were analysed thematically. Data from one site in particular permitted a focus on personal relationships and social networks which were seen as beneficial but also potentially problematic. These data are drawn upon to reflect on the implications for housing providers and practitioners. Findings – While multiple factors had often led to the loss of social networks among homeless people, findings revealed that practitioners working with homeless people may be able to promote existing social networks, such as partnerships, help develop new ones, and support people withdrawing from less positive relationships. The authors conclude that practitioners should be alert to structural changes that threaten social networks and may need to enhance skills in creating opportunities to foster existing positive relationships in direct work with their clients and in collaboration with other professionals. The need to be careful of blurring professional boundaries is also observed. Practical implications – This paper suggests approaches that may encourage practitioner reflection and commissioning practice in achieving good outcomes for people with experiences of MEH by highlighting the importance of social networks and the potential for practitioners to foster supportive relationships. Originality/value – This paper considers the often under-researched area of day-to-day engagement with social networks and the implications of working to support these as part of the role of homelessness services. While drawing primarily on recent research in England the themes raised will have wider relevance to housing and care services generally. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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25. Recovery Colleges; how effective are they?
- Author
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Ebrahim, Selma, Glascott, Angela, Mayer, Heidi, and Gair, Elodie
- Subjects
CONFIDENCE ,NATIONAL health services ,PROFESSIONAL employee training ,SATISFACTION ,STUDENTS ,T-test (Statistics) ,MENTAL health personnel ,WELL-being ,THEMATIC analysis ,EDUCATIONAL outcomes ,CROSS-sectional method ,DATA analysis software ,DESCRIPTIVE statistics ,KRUSKAL-Wallis Test ,PSYCHOLOGY - Abstract
Purpose Recovery Colleges are education-based mental health resources, utilising practitioner and lived experience expertise, promoting skills to enhance student independence. The purpose of this paper is to evaluate the impact of engagement with a Recovery College in Northern England on student wellbeing.Design/methodology/approach Feedback questionnaires were analysed from 89 students attending the Recovery College. Short Warwick-Edinburgh Mental Wellbeing Scale (SWEMBS) and “Empower Flower” (a measure of personal resources) data for 56 students were compared pre- and post-attendance at courses.Findings The SWEMBS and Empower Flower indicated improvements in wellbeing and personal resources pre- to post-attendance at Recovery College courses. Satisfaction with the service was high. Students saw the service as unique, accepting and enabling. Students noted they developed a sense of hope, confidence and aspirations. They related this to practical changes, e.g. increasing work-related activity and decreasing service use.Research limitations/implications This research suggests that there is a need for further evaluation of the unique contribution that Recovery Colleges can make to mental wellbeing, and the mechanisms involved in promoting the process of recovery.Practical implications The Recovery College may be a cost-effective way to provide a supportive recovery-orientated environment which promotes students’ ability to build self-confidence and skills, enabling them to connect with others and progress towards independence and valued goals. This complements more traditional mental health services.Originality/value This paper reports on an area of mental health development where there is very limited research, adding valuable data to the literature. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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- View/download PDF
26. An exploratory study into therapeutic alliance, defeat, entrapment and suicidality on mental health wards.
- Author
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Dunster‐Page, C. A., Berry, K., Wainwright, L., and Haddock, G.
- Subjects
STATISTICAL correlation ,NURSE-patient relationships ,NURSES ,PSYCHIATRIC hospitals ,PSYCHIATRIC nursing ,PSYCHOTHERAPY patients ,QUESTIONNAIRES ,RESEARCH ,SCALE analysis (Psychology) ,STATISTICS ,T-test (Statistics) ,DATA analysis ,EFFECT sizes (Statistics) ,SUICIDAL ideation ,CROSS-sectional method ,PSYCHOLOGY - Abstract
Accessible summary: What is known on the subject?: The strength of a relationship between people with mental health difficulties and professionals has been linked to patients feeling suicidal. A relationship has been found between how defeated and trapped people with mental health difficulties feel and how suicidal they feel. What this paper adds to existing knowledge?: This study explored the relationship between alliance, suicidality, defeat and entrapment in people admitted to mental health wards as previous research has focused on people in the community. Patient‐rated defeat, entrapment and suicidality are related in this sample of people admitted to mental health wards. A relationship was found between how well nurses said they bonded with their named patient and how trapped the patients felt by their environment. What are the implications for practice?: Nurses should consider if patients are feeling defeated or trapped when helping people with mental health difficulties to feel less suicidal. Abstract: Introduction: Suicidality is prevalent worldwide, particularly in people who access mental health services. The quality of therapeutic alliance between people with mental health difficulties and staff has been associated with suicidality but only in community settings. Defeat and entrapment are correlated with suicidality and may mediate any relationship between alliance and suicidality. Therefore, this exploratory study explored these relationships in people admitted to mental health wards. Aim: To explore defeat, entrapment, suicidality and alliance between nurses and people admitted to mental health wards. Method: Fifty inpatient nurse–patient dyads completed questionnaires regarding demographics, defeat, entrapment, suicidality and alliance with their named nurse. Nurses completed questionnaires on demographics, alliance with their patient and the patients’ suicidality. Results: Defeat, entrapment and suicidality were correlated. A correlation between nurse‐rated bond and external entrapment was found, but no other correlations between alliance, defeat, entrapment and suicidality were statistically significant. Discussion and clinical implications: Ward‐based nurses should consider the relationship between defeat, entrapment and suicidality when developing interventions to improve suicidality. Although there was no evidence of a relationship between total alliance and suicidality, developing closer bonds with patients may reduce patients’ feelings of being trapped by their environment. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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27. Poverty, exclusion and child protection practice: the contribution of ‘the politics of recognition&respect’.
- Author
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Gupta, Anna and Blumhardt, Hannah
- Subjects
POVERTY & psychology ,POLICY sciences ,CHILD welfare ,HUMAN rights ,PROFESSIONAL employee training ,RESPECT ,SOCIAL services ,ADULT education workshops ,PROFESSIONAL practice ,JOB performance ,CLIENT relations ,THEMATIC analysis ,PSYCHOLOGY - Abstract
Copyright of European Journal of Social Work is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2018
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28. A Tale of Two Towns: A Comparative Study Exploring the Possibilities and Pitfalls of Social Capital among People Seeking Recovery from Substance Misuse.
- Author
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Weston, Samantha, Honor, Stuart, and Best, David
- Subjects
CONVALESCENCE ,COMPARATIVE studies ,INTERVIEWING ,RESEARCH methodology ,SOCIAL isolation ,SOCIAL networks ,TRUST ,SUBSTANCE abuse treatment ,SOCIAL capital ,SAMPLE size (Statistics) ,SOCIAL support ,PSYCHOLOGY - Abstract
Background: Social capital has becomean influential concept in debating and understanding the modernworld. Within the drug and alcohol sector, the concept of 'recovery capital'has gained tractionwith researchers suggesting that people who have access to such capital are better placed to overcome their substance use-related problems than those who do not (Cloud and Granfield, 2008), leading to requests for interventions that focus on building social capital networks (Neale & Stevenson, 2015). While accepting that the concept of social capital has enormous potential for addressing the problems associated with drug use, this paper also considers its 'dark side'. Methods: Data were drawn from semi-structured interviews with 180 participants including 135 people who use drugs and 45 people who formerly used drugs. Results: High levels of trust, acquired through the establishment of dense social networks, are required to initiate recovery. However, these 'strong bonds'may also lead to the emergence of what is perceived by others as an exclusive social network that limits membership to those who qualify and abide by the 'rules'of the recovery community, particularly around continuous abstinence. Conclusions: Depending on the nature of the networks and the types of links participants have into them being socially connected can both inhibit and encourage recovery. Therefore, the successful application of social capital within the drugs and alcohol field requires a consideration of not only the presence or absence of social connections but their nature, the value they produce, and the social contexts within which they are developed. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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29. Don't ask me what's the matter, ask me what matters: Acute mental health facility experiences of people living with autism spectrum conditions.
- Author
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Maloret, P. and Scott, T.
- Subjects
AUTISM ,HOSPITAL care ,PSYCHOLOGICAL adaptation ,ANXIETY ,FEAR ,INTERVIEWING ,PHENOMENOLOGY ,RESEARCH methodology ,PSYCHIATRIC hospitals ,PSYCHIATRIC nursing ,RESEARCH ,STATISTICAL sampling ,SELF-injurious behavior ,SOCIAL isolation ,PSYCHOLOGICAL stress ,QUALITATIVE research ,JUDGMENT sampling ,WELL-being ,CROSS-sectional method ,PSYCHOLOGY - Abstract
Accessible summary What is known on the subject? There is a growing body of evidence that many people with an autism spectrum condition suffer anxiety in their daily life and a realization among practitioners that admission to a mental health unit for this population is usually a negative anxiety-inducing experience., Anxiety is driven by the intolerance of uncertainty that is being unsure of what is going to happen, how long the uncertainty will exist and the insistence of sameness which, when compromised, can be anxiety provoking. Equally, confusion in understanding personal emotional responses and those of others is a source of anxiety., What this paper adds to existing knowledge? This paper builds upon existing understanding of anxiety as a causative factor of mental ill-health for people with an autism spectrum condition., Specifically, this paper explores the potentially anxiety-inducing experience of mental health unit admission; how anxiety is felt, triggered, expressed and managed., What are the implications for practice? As many different anxiety responses could be exhibited during hospitalization, including violent acts and self-harming, for mental health practitioners working in the inpatient units, it is essential that the thoughts, feelings and responses of the patient with an autistic spectrum condition (ASC) are better understood and that support offered during their stay in a mental health facility is from an informed position., Abstract Background This qualitative study explored how mental health inpatients with autistic spectrum conditions (ASCs) experience and cope with anxiety when admitted to an acute mental health inpatient facility in the United Kingdom. Anxiety is a common characteristic for people who live with ASCs and whilst a plethora of studies on anxiety in this population is published which correlate anxiety with mental health service experience, little is known about the actual triggers of anxiety and its manifestations. This study adds to a body of evidence which considers anxiety experienced by people with autism. The rationale for this study includes the need to heighten mental health practitioners' understanding, of the responses, motivations to engage and support required to overcome fears and anxieties when admitted to a mental health inpatient unit. Method The study used a qualitative naturalistic research design, to explore the emotional and psychological experiences of being a mental health inpatient living with an ASC. During 2015-2017. audio-recorded semistructured interviews captured the experiences of 20 adults from the east of England who were former psychiatric inpatients with an established diagnosis of ASC. Interpretative phenomenological analysis enabled the identification of broad themes which explained in rich detail, participant reflections regarding the situations and events within the acute care mental health facility that triggered their anxiety, manifestations of anxiety and responses to their anxiety. Findings Broad response patterns were identified that could be associated with their anxiety that is isolating themselves from others, including patients and staff, ceasing to eat and sleep adequately and all too often self-harming or exhibiting aggressive and violent responses. Conclusions The anxiety caused by the physical environment appears to be overlooked by mental health practitioners so attention to anxiety-inducing encounters is needed when planning acute care mental health service improvement and research is required to clearly understand the experiences of this vulnerable group. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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30. Research and recovery: Can patient participation in research promote recovery for people with complex post‐traumatic stress disorder, CPTSD?
- Author
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Matheson, Catherine and Weightman, Elizabeth
- Subjects
MEETINGS ,PATIENT participation ,PSYCHOTHERAPY patients ,CHRONIC diseases ,CONVALESCENCE ,SELF-perception ,SELF-evaluation ,POST-traumatic stress disorder ,MENTAL health ,PSYCHOLOGY ,PATIENTS' attitudes ,SELF-efficacy ,QUALITATIVE research ,EXPERIENCE ,NATIONAL health services ,RESEARCH ethics ,ACTION research ,INTERPERSONAL relations ,PSYCHOSOCIAL factors ,REFUGEES ,SEX crimes ,QUESTIONNAIRES ,EMOTIONS ,PSYCHOTHERAPIST attitudes ,DATA analysis software ,MEDICAL research ,HEALTH promotion ,OUTPATIENT services in hospitals ,SOCIAL integration - Abstract
Background: A new diagnosis of complex post‐traumatic stress disorder, CPTSD, has been agreed by the World Health Organization, WHO, and evidence is needed for what psychological treatment might be effective, particularly from those with experience of the disorder. We used a novel participatory approach to explore patient views and simultaneously studied the impact on the patient researchers of the research process itself. In this paper, we report on the latter section of the study how the involvement in research of patients with CPTSD affected their mental health. Symptoms of CPTSD may include emotional dysregulation, feelings of self‐worthlessness and difficulties in relationships. Objective: The aim of this study section was to explore whether patients' mental health could be promoted through empowering them to participate in research on CPTSD. Design: The study had a qualitative, participatory design. The clinician who led the research (first author) held group meetings with patient researchers to explore the impact of the research process. The clinician also kept notes on the process in a reflective log. Setting and participants: Six patient researchers participated in research with other patients with lived experience of CPTSD in an NHS outpatient unit in a London hospital. Intervention studied: The research process itself was analysed in group meetings with researchers which the clinician recorded and transcribed. Findings: Participation in research may promote increased self‐confidence and social inclusion for those with CPTSD. Conclusion: Involvement in research may be seen as an empowering intervention because patients felt it contributed to recovery. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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31. The PARALLEL Study (imPAct of expeRiencing Another’s seLf harm and suicidaL bEhaviour in hospitaL).
- Author
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Hargate, Rebecca, Howden, Sharon, Tarpey, Emma, and Walker, Tammi
- Subjects
DESENSITIZATION (Psychotherapy) ,EMOTIONS ,INTERVIEWING ,PHENOMENOLOGY ,RESEARCH methodology ,FORENSIC medicine ,PSYCHIATRIC hospitals ,SELF-mutilation ,SOCIAL support ,SUICIDAL ideation ,HEALTH facility employees ,PATIENTS' attitudes ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to explore the experiences of both staff and patients in a medium-secure mental health unit of the self-harm and/or suicidal behaviour of others. Suicide and self-harm is highly prevalent in forensic settings and evidence suggests that experiencing other people’s self-harm and suicidal behaviour can lead to negative outcomes, both for staff and patients. This is particularly important in hospitals where patients are highly dependent on staff for support.Design/methodology/approach Semi-structured interviews were conducted with five staff members and six patients in a medium-secure male mental health unit in the North of England. Data were analysed following interpretative phenomenological analysis guidelines.Findings Three dominant themes were identified during analysis: the impact of suicide and self-harm; the role of others; and the importance of understanding and experience. Various impacts were discussed including desensitization, negative emotions and the desire to help. Other people played an important role in protecting against negative impacts, with shared experiences and peer support reported as the biggest benefits. Experiences of self-harm and suicide were found to increase understanding resulting in more positive attitudes. Additionally, the importance of training and education was highlighted.Originality/value This paper provides an insight into the experiences of staff and patients in medium-secure male mental health unit, which has benefits to practitioners when considering support mechanisms. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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32. Paul Ricoeur's theory of interpretation adapted as a method for narrative analysis to capture the existential realities expressed in stories from people living with Multiple Sclerosis.
- Author
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Hardwick, Louise
- Subjects
MULTIPLE sclerosis ,PSYCHOLOGY ,THEORY ,NARRATIVES ,PATIENTS' attitudes - Abstract
This paper draws on Paul Ricoeur's theory of interpretation to highlight aspects of the existential realities that emerge woven within the narratives of people living with Multiple Sclerosis (MS). It aims to give social workers and other professionals involved in inter-disciplinary care insight into the meaning-making process and the existential realities interwoven in accounts of lived experience, thereby validating this aspect of experience. To support this approach it also aims to make explicit the method used and interpretation applied to elicit these features. Ten adults with MS from across the North of England were recruited to tell their story related to the onset of, and adjustment to MS. Two of the narratives are presented, and through these, the method used for interpretation derived from the theory of Paul Ricoeur is demonstrated. What emerge, threaded within the events told in a triptych of past, present and future life envisaged, are glimpses of existential realities that evoke universal recognition such as abandonment, loss, acceptance; solidarity, aloneness, suffering and finally calm. The paper concludes that, given chronic conditions like MS often predispose existential deliberation, it is important that these dimensions of lived experience are acknowledged in professional encounters that seek to manage the condition and support people living well with it. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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33. Creating a whole school ethos of care.
- Author
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Warin, Jo
- Subjects
EDUCATION ethics ,CARING ,SCHOOL children ,PRIMARY education ,ELEMENTARY schools ,LEADERSHIP ,NURTURING behavior ,SCHOOL environment ,TEACHER-student relationships ,PSYCHOLOGY - Abstract
This paper raises questions about schools as positive models of caring societies. Against a background of growing concern for the mental health of children it addresses the centrality of ‘nurture’ and its close cousin ‘care’ as a whole school value, theorised as both a means and an end of schooling. How might school leaders communicate a principle of mutual care and inspire whole school commitment from staff, pupils and parents? Discussion is informed by qualitative data (interviews, focus groups and observations) from a comparative study of seven schools in the NW of England which use the principles and practices of nurture groups. Three demonstrated strong leadership based on ‘deep care’ and an emphasis on ongoing relationships with children. The paper concludes that leadership, as evidenced in the good practice reported here, can go some way towards bringing about the ideal of a whole school ethos of care. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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34. Social worker or social administrator? Findings from a qualitative case study of a child protection social work team.
- Author
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Gibson, Matthew
- Subjects
SOCIAL services ,POLICY sciences ,CHILD welfare ,CORPORATE culture ,GROUNDED theory ,INTERVIEWING ,CASE studies ,ROLE conflict ,ETHNOLOGY research ,PROFESSIONAL practice ,DATA analysis ,OCCUPATIONAL roles ,SOCIAL worker attitudes ,MEDICAL coding ,PSYCHOLOGY - Abstract
This paper reports on data from a qualitative case study of child protection social work in one local authority. Ethnographic methods were used and constructionist grounded theory employed to collect and analyse 329 pages of historical documents about the local authority child protection service, 246.5 hours of observations of social work practice and 19 interviews of social workers and their team managers. By interpreting the experiences of the social workers through the conceptual debates about the changes in the field of social administration, the social workers could be seen to want to perform a traditional form of social work but were required to perform a contemporary form of social administration. The aims and purposes of this form of practice could be considered to be distinct from those of social work as understood by the social workers, and as such, the social workers experienced the practice environment as constraining and often felt disillusioned. This paper conceptualizes these forms of practice, contributing to the debates about what practice is and how we are to analyse and categorize it for the purposes of influencing the institutions that create and maintain contemporary practice. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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35. Future proofing child protection social work.
- Author
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Shemmings, David
- Subjects
CHILD welfare ,SOCIAL case work ,HEALTH promotion ,MEDICAL care ,OCCUPATIONAL roles ,CLIENT relations ,SOCIAL support ,SOCIAL worker attitudes ,PSYCHOLOGY - Abstract
Purpose How might the profession of child protection social work be “future proofed”, i.e. remain intact and of value beyond its present existence? The paper aims to discuss this issue.Design/methodology/approach This is a discussion/“think piece” paper, in which the author argues that foregrounding the art and science of helping relationships is a way forward. Recognising and promoting the centrality of helping relationships is the direction in which the author believes (or is it hopes?) social work should head, because “more of the same” is not, in the author’s view, possible to sustain for much longer. Treading the well-worn but pot-holed path of box-ticking, endless risk assessment and perfunctory statutory visiting is likely to lead to continuing problems retaining social workers and, for those who do stay, increased burnout, compassion fatigue and secondary trauma, each of which interrupts or delays the development of working alliances with family members.Findings Growing reliance on thresholds and checklists to assess risk has served to increase referrals. As a result, social workers spend much of their time on triaging and filtering rather than working with the children and families that most need help and protection. Further, it is not what is in the practitioner’s toolkit that matters: rather, it is a defined set of personal skills and qualities that tips the balance to achieve lasting change. Thus, in order to “future proof” social work, we would do well to deepen our understanding of how helping relationships can lead to lasting change. Supporting social workers in this work is not just the responsibility of individual practitioners and their professional bodies, action also needs to be taken at governmental and managerial levels.Originality/value This is a discussion/“think piece”. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
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36. The contemporary refocusing of children’s services in England.
- Author
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Parton, Nigel and Williams, Sasha
- Subjects
ADOPTION laws ,PREVENTION of child abuse ,LEGAL status of children ,CHILD welfare ,CHILDREN'S accident prevention ,POLICY sciences ,SOCIAL workers ,PSYCHOLOGY of social workers ,GOVERNMENT policy ,OCCUPATIONAL roles ,PSYCHOLOGY ,LAW - Abstract
Purpose The purpose of this paper is to provide an analysis of the changes in child protection policy and practice in England over the last 30 years, in particular to critically analyse the nature and impact of the “refocusing” initiative of the mid-1990s.Design/methodology/approach Policy analysis.Findings While the period from the mid-1990s until 2008 can be seen to show how policy and practice attempted to build on a number of the central principles of the “refocusing” initiative, the period since 2008 has been very different. Following the huge social reaction to the death of Peter Connelly, policy and practice moved in directions quite contra to the “refocusing” initiative’s aims and aspirations such that we can identify a refocusing of “refocusing”. Such developments were given a major impetus with the election of the Coalition government in 2010 and have been reinforced further following the election of the Conservative government in May 2015.Originality/value The paper places the changes in child protection policy and practice in England in their political and economic contexts and makes explicit how the changes impact on the role and responsibilities of professionals, particularly social workers. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
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37. A place to call our own: perspectives on the geographical and social marginalisation of homeless people.
- Author
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Hughes, Caroline, Madoc-Jones, Iolo, Parry, Odette, and Dubberley, Sarah
- Subjects
ATTITUDE (Psychology) ,HOMELESS persons ,HOMELESSNESS ,INTERVIEWING ,RESEARCH methodology ,PUBLIC spaces ,SOCIAL isolation ,JUDGMENT sampling ,PSYCHOLOGY - Abstract
Purpose Notwithstanding heightened awareness of the issues faced by homeless people, the notion that homelessness is the result of individual failings and weaknesses persists. The purpose of this paper is to challenge that perception by giving voice to this marginalised group and exploring the mechanisms through which they made and remade as homeless and may be protected.Design/methodology/approach Semi-structured interviews (n=23) were carried out with a sample of homeless people who had accessed a range of homelessness services in the study area.Findings It is argued that largely deprived of the private sphere, which arguably renders them in most need of public space, homeless people find themselves most subject to scrutiny, surveillance, social disapprobation and exclusion.Research limitations/implications The authors reiterate that rather than simply being associated with rooflessness, homelessness is as a function of ongoing geographical marginalisation and social alienation.Practical implications The authors suggest that dedicated spaces for homeless people to occupy during the day continue to be in need of development because, whilst not unproblematic, they can disrupt processes associated with homelessness.Social implications Further resources should be directed towards homelessness and the issues that arise during daytime for homeless people.Originality/value The paper supports the literature which highlights the spatial practices by which stigmatised groups come to be separated from mainstream society. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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38. Why are relatives of care home residents reluctant to “rock the boat”? Is there a culture of acceptance?
- Author
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Welch, Elizabeth, Palmer, Sinead, Towers, Ann-Marie, and Smith, Nick
- Subjects
PSYCHOLOGY of caregivers ,EMOTIONS ,HOME care services ,INTERVIEWING ,MEDICAL care ,PATIENT advocacy ,THEMATIC analysis ,DATA analysis software ,EXTENDED families ,OLD age ,PSYCHOLOGY - Abstract
Purpose The purpose of this paper is to explore whether relatives of care home residents are best placed to act as “champions” or advocates for their family members, as is often the expectation.Design/methodology/approach Focus groups and interviews were conducted with 25 relatives of residents in four care homes for older people in the South East of England. Two rounds of focus groups were held in each participating care home: the first was to discuss any issues arising from the care received, or concerns about the home itself; the second was to enable a deeper exploration of the key themes that arose from the first round and explore why relatives, in this case, failed to complain.Findings Thematic analysis revealed a complex range of emotions experienced by relatives that contributed to a conflict between what they believed to be the correct response and how they behaved in reality, which led to a culture of acceptance. Analysis revealed some relatives were reluctant to “interfere” for fear of possible negative repercussions, thus they downplayed issues in an attempt not to “rock the boat”.Originality/value This paper discusses the flaws in the policy emphasis on personalisation and the reliance on family members as advocates, and concludes with suggestions on how care homes may foster an environment where relatives, and indeed residents, feel comfortable to raise issues and concerns. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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39. Extra care: viable for couples living with dementia?
- Author
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Poyner, Christopher, Innes, Anthea, and Dekker, Francesca
- Subjects
PSYCHOLOGY of caregivers ,DEMENTIA ,FIELDWORK (Educational method) ,FOCUS groups ,HEALTH services accessibility ,HOUSING ,INTERPERSONAL relations ,INTERVIEWING ,SERVICES for caregivers ,PATIENT-family relations ,PSYCHOTHERAPY patients ,RESEARCH funding ,QUALITATIVE research ,THEMATIC analysis ,RESIDENTIAL care ,COMMUNITY services ,CROSS-sectional method ,PSYCHOLOGY - Abstract
Purpose The perspectives of people with dementia and their care partners regarding “extra care” housing are currently unknown. The purpose of this paper is to report findings of a consultation study exploring the perceived barriers and facilitators of a relocation to extra care housing, from the perspective of people living with dementia, and their care partners.Design/methodology/approach Fieldwork consisted of paired or 1-1 interviews and small focus groups with potential users of an alternative model of extra care support for people living with dementia in the South of England. The consultation took place between June and August 2013. The interviews and focus groups were audio recorded, transcribed verbatim. The transcripts were analysed thematically.Findings Benefits of extra care were identified as the opportunity for couples to remain living together for longer, creating a supportive, dementia-friendly community, and a reduction in the strain experienced by the care partners. Barriers centred on a sense of loss, stress and uncertainty. Living and caring at home was perceived as preferable to shared care.Research limitations/implications The findings presented here have limited generalisability for two reasons. First, the shared care approach consulted on was very specific. Second, the participants form a purposive sample and as such are not representative of a wider population. Despite best intentions, the voice of people with dementia, are underreported in this consultation. Only one person with early on-set dementia was interviewed and the remaining two people with dementia were interviewed alongside their care partner.Practical implications The findings cast doubt on the viability of extra care facilities, designed for couples living with dementia, if extra care continues to be conceptualised and marketed as a preventative lifestyle choice. The findings indicate the value of consulting with people with dementia, and their care partners, when designing new forms of housing with care specifically for people living with dementia.Social implications The findings of this consultation exemplify the wish of couples living with dementia to remain together, in what they perceive to be “home”, for as long as possible. Couples living with dementia are therefore unlikely to wish to move into an extra care facility as a lifestyle choice option, early into their journey with dementia. This raises questions about the suitability of extra care, as a form of housing with care, for couples living with dementia.Originality/value This paper contributes to the body of literature, exploring the feasibility of new and innovative alternative care and housing options, for people with dementia. This paper is one of the first to explore extra care as a housing and social care option for couples with dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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40. “Are you going to come and see us again soon?” An intergenerational event between stroke survivors and school-children.
- Author
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Lane, Kathleen
- Subjects
APHASIA ,COGNITION ,COMMUNICATION ,CONFIDENCE ,EXPERIENCE ,INTERGENERATIONAL relations ,PEOPLE with disabilities ,RESEARCH funding ,SCHOOL children ,SOCIAL isolation ,STROKE ,EVALUATION of human services programs ,STROKE patients ,DISEASE complications ,PSYCHOLOGY - Abstract
Purpose A one-hour intergenerational event held at an infant school in Norfolk, England, aimed to increase the citizenship experience of young children and their awareness of what it means to live with stroke, and to address social isolation or self-confidence in communicating among stroke survivors with aphasia. It was also intended to gauge whether this activity might provide a basis for future research. The paper aims to discuss these issues.Design/methodology/approach Four community-dwelling stroke survivors with aphasia were recruited. In total, 12 pupils aged six and seven were selected by their Year 2 teacher and head-teacher. At the event, participants sat in groups of one adult and three pupils and engaged in writing, hand-tracing and talking about pictures. The author circulated among the groups to facilitate engagement.Findings All participants enjoyed interacting together in the activities. The pupils gained insights into the stroke survivors’ lived experience and wanted them to return to “see us again soon”; the adults valued being in the “real world” and practising their conversation in activities different from their usual routines. Feedback indicated the value of the engagement and that participants welcomed similar intergenerational opportunities. The author will develop a research application exploring enablers, barriers and benefits of this type of engagement.Originality/value The event gave a rare opportunity for stroke survivors with aphasia to participate in intergenerational activities and for children to engage with vulnerable older adults. It demonstrated the value of interactions in which learning and insights are obtained on both sides. It also provided evidence that pursuing research in this field is feasible. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
41. Evaluation of a psychology graduate internship programme.
- Author
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Moulton-Perkins, Alesia, Wressle, Alexandra, Grey, Nick, and Sired, Rebecca
- Subjects
CLINICAL psychology ,EMPLOYMENT ,HOSPITAL medical staff ,INTERNSHIP programs ,MEDICAL protocols ,NATIONAL health services ,HEALTH outcome assessment ,SUPERVISION of employees ,SURVEYS ,GRADUATE education ,VOCATIONAL guidance ,FINANCIAL management ,SOCIOECONOMIC factors ,EDUCATIONAL attainment ,COURSE evaluation (Education) ,DESCRIPTIVE statistics ,CLINICAL governance ,STANDARDS - Abstract
Purpose: Applications for clinical psychology training far outstrip places and relevant work experience is key. Paid opportunities are limited and therefore many choose volunteering, with well-connected graduates faring best. To promote equal opportunities a coordinated psychology graduate voluntary internship programme was established in a National Health Service Trust in the South of England. The purpose of this paper is to evaluate intern and supervisor outcomes, equality of access and adherence to governance standards. Design/methodology/approach: Three cohorts of interns, unappointed applicants and supervisors were surveyed. Between 2013 and 2016, 270 psychology graduates applied, 119 were recruited and 151 either refused a place or were unsuccessful. In total, 91 supervisors provided service-level feedback. Findings: Interns and applicants were predominantly young, able-bodied white British heterosexual females. Demographic profiles were similar and broadly representative of psychology graduates nationally. While fewer were from Black and Ethnic Minority backgrounds, proportions were greater than the local population. Participants were more socioeconomically privileged than undergraduates nationally. The scheme was popular and well governed according to interns and supervisors. Post-internship employment prospects were improved, with most interns gaining paid mental health roles like assistant psychologist. Most supervisors commented on the positive contribution made by interns to service outcomes. Originality/value: This study makes a significant contribution to the literature on voluntary psychology graduate posts, an area under-researched until now. Our results suggest that a coordinated, transparent approach can benefit both interns and services by minimising exploitation and maximising developmental opportunities for the new graduate. The programme makes an important contribution to addressing inequalities experienced by psychology graduates attempting to enter mental health careers. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
42. Biomedical practices from a patient perspective. Experiences of Polish female migrants in Barcelona, Berlin and London.
- Author
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Main, Izabella
- Subjects
MEDICAL care ,CHILDBIRTH ,COMMUNICATION ,PSYCHOLOGY of immigrants ,INTERVIEWING ,RESEARCH methodology ,SCIENTIFIC observation ,PEDIATRICS ,PHYSICIAN-patient relations ,CULTURAL pluralism ,RESEARCH funding ,WOMEN ,ETHNOLOGY research ,FIELD research ,PATIENTS' attitudes ,PSYCHOLOGY - Abstract
This paper focuses on the diversity in patients' experience of biomedicine and contrasts it with the normative view characteristic of health professionals. Ethnographic fieldwork among Polish migrant women in London, Barcelona and Berlin included interviews about their experiences with local healthcare and health professionals. Themes drawn from the narratives are differences between the cities in terms of communication between patients and health professionals, respect for patients' choices and dignity, attitudes to pregnancy and birth (different levels of medicalization), and paediatric care. It is argued that patients continuously negotiate among their own views and expectations based on previous experiences and knowledge from personal communication; internet forums and publications; and the offer of medical services in the countries of their settlement. Patients experience pluralism of therapeutic traditions within and outside bio-medicine. In turn, representatives of bio-medicine are rarely aware of other medical practices and beliefs and this leads to various misunderstandings. By highlighting the pluralism of medical practices in European countries and the increasing mobility of patients, this case study has useful implications for medical anthropologists and health professionals in a broader Western context, such as raising sensitivity to different communication strategies and a diversity of curing traditions and expectations. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
43. "Finding my voice again"- women's experiences of psychological therapy in perinatal secondary care settings: a qualitative study.
- Author
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O'Brien, Jayne, Gregg, Lynsey, and Wittkowski, Anja
- Subjects
PSYCHOTHERAPY ,PERINATAL care ,SECONDARY care (Medicine) ,MOTHER-infant relationship ,PERINATAL period ,MATERNITY nursing ,GROUP psychotherapy - Abstract
Introduction: Although women often experience mental health comorbidities in the perinatal period, the evidence-base for psychological therapy across diagnostic boundaries in the perinatal period remains limited. As there is a need to understand experiences of therapy, irrespective of diagnosis, to inform intervention provision, the aims of this study were to explore women's experiences of psychological therapy for perinatal mental health difficulties and to identify the mechanisms that women attributed to the most significant therapeutic change for themselves and/or the mother-infant relationship. Method: Semi-structured interviews were conducted with 16 women who received therapy within specialist perinatal community mental health settings in the Northwest of England, the UK. Interview data were analysed using reflexive thematic analysis. Results: One overarching theme entitled participant life stories were at the heart of therapy was identified alongside three other main themes: 1.) We're in this together - therapeutic bond and establishing a coherent sense of self, 2.) Surfing the urge to 'fix' feelings - Sitting with emotions improved regulation and 3.) Seeing myself in a new light - Shifting self-blame to self-compassion enhanced self-efficacy. Theme 1 consisted of three subthemes. Participants described the quality of the therapeutic relationship as the fundamental foundation to (re) connecting with their needs, values and boundaries, which improved their sense of agency, self-esteem, therapeutic engagement and self-understanding. Shifting emotional avoidance to emotional engagement improved their selfregulation. Considering alternative factors that could have contributed to their experiences helped them to defuse self-blame and enhance self-compassion. Finally, changes in their mental health led to positive relational changes in their relationship with their infant and improved communication with partners. Discussion: Sensitivity, engagement and responsivity experienced in the therapist-woman relationship was reported to be mirrored in the motherinfant relationship. Developing a coherent sense of self and self-regulation skills both appeared to heighten women's self-compassion and empathy for their infants, which also seemed to improve their ability to tolerate uncertainty and mixed emotions within themselves and their infants. The mechanisms of change in the perinatal period are important to consider at a stakeholder, therapist and service management level to parsimoniously and best meet the needs of women and the mother-infant relationship. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
44. Making Heredity Matter: Samuel Butler's Idea of Unconscious Memory.
- Author
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Turbil C
- Subjects
- England, History, 19th Century, Humans, Biological Evolution, Memory, Psychology history, Selection, Genetic
- Abstract
Butler's idea of evolution was developed over the publication of four books, several articles and essays between 1863 and 1890. These publications, although never achieving the success expected by Butler, proposed a psychological elaboration of evolution (robustly enforced by Lamarck's philosophy), called 'unconscious memory'. This was strongly in contrast with the materialistic approach suggested by Darwin's natural selection. Starting with a historical introduction, this paper aspires to ascertain the logic, meaning and significance of Butler's idea of 'unconscious memory' in the post-Darwinian physiological and psychological Pan-European discussion. Particular attention is devoted to demonstrating that Butler was not only a populariser of science but also an active protagonist in the late Victorian psychological debate.
- Published
- 2018
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45. "I don't stress about it like I used to": Perceptions of non-problematic sleep amongst people in residential treatment for substance use disorders.
- Author
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Neale, Joanne, Diana Strekalova, Ksenija, Meadows, Robert, and Nettleton, Sarah
- Subjects
SLEEP disorders ,BEHAVIOR therapy ,COGNITION ,COGNITIVE therapy ,INTERVIEWING ,NURSING home patients ,RESEARCH funding ,SUBSTANCE abuse ,SUBSTANCE abuse treatment ,QUALITATIVE research ,PSYCHOSOCIAL factors ,TREATMENT programs ,RESIDENTIAL care ,DATA analysis software ,DESCRIPTIVE statistics ,PSYCHOLOGY - Abstract
Background: Sleep problems are common amongst people who use alcohol and other drugs, but treatment options are limited. This paper explores how people in residential treatment for alcohol and other drug problems perceived and described 'non-problematic' sleep to provide insights that might inform sleep interventions for this population. Methods: Qualitative interviews were conducted with 28 residents (19 women, 9 men; ages 24–83 years) in two residential drug and alcohol treatment centres in England during 2014/15. Interviews were audio-recorded, transcribed, and coded. Accounts of non-problematic sleep were then analysed inductively. Results: Non-problematic sleep comprised three linked components: i. personal sleep patterns and routines; ii. sleep perceptions; and iii. sleep metacognitions. Some participants reported they slept well; others described their sleep as problematic but improving. Participants believed that sleep improved naturally with residential treatment and abstinence, but perceptions of 'good' sleep varied greatly. Participants used a range of metacognitive strategies (e.g. downgrading the importance of sleep; adapting their sleeping patterns; and focusing on sleep quality alongside sleep quantity) to manage sleep problems and render them non-problematic. Conclusions: Metacognitive strategies that focus on changing perceptions of sleep can potentially inform sleep interventions for people with a history of alcohol and other drug use. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
46. Exploring the impact of mental capacity on breast screening for women with intellectual disabilities.
- Author
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Bates, Claire and Triantafyllopoulou, Paraskevi
- Subjects
BREAST tumor prevention ,BREAST tumor risk factors ,EARLY detection of cancer ,CHI-squared test ,COMMUNICATION ,DECISION making ,PEOPLE with intellectual disabilities ,OBESITY ,PEOPLE with disabilities ,QUESTIONNAIRES ,PSYCHOLOGY of women ,PSYCHOSOCIAL factors ,CROSS-sectional method ,SEDENTARY lifestyles ,DATA analysis software ,DESCRIPTIVE statistics ,PSYCHOLOGY - Abstract
This study explores the impact of mental capacity in relation to breast screening for women with intellectual disabilities in the UK. Participation in breast screening is considerably lower for women with intellectual disabilities compared to the general population. Barriers to screening include poor mobility and behavioural difficulties. There is currently no research which primarily explores the relationship between mental capacity and breast screening for this group of individuals. This paper presents the results of a cross‐sectional survey of 131 women with intellectual disabilities supported by eight Social Care Providers within England and Wales. The data were collected between January 2017 and July 2017. The current research explores the decision‐making process surrounding breast screening, considering the impact of associated risk factors during this process. Participants completed a specifically created survey addressing the aforementioned issues. The results indicated that women who lacked capacity, were less likely to engage in breast screening. It was also demonstrated that the process outlined in the Mental Capacity Act (MCA; 2005) was not always followed; women were not routinely assessed if there were doubts regarding their decision‐making ability around breast screening and best interest meetings (BIM) were not always held if the person lacked capacity. In order to be able to generalise the current findings, further research is needed to gain a broader understanding of how professionals make decisions around breast screening for women with intellectual disabilities in case the individuals are unable to decide this independently. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
47. ‘We’re passengers sailing in the same ship, but we have our own berths to sleep in’: Evaluating patient and public involvement within a regional research programme: An action research project informed by Normalisation Process Theory.
- Author
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Keenan, Julia, Poland, Fiona, Boote, Jonathan, Howe, Amanda, Wythe, Helena, Varley, Anna, Vicary, Penny, Irvine, Lisa, and Wellings, Amander
- Subjects
ACTION research ,SOCIAL science research ,SAILING ships ,THEORY ,PUBLIC health research ,MARINE terminals - Abstract
Background: Patient and public involvement (PPI) is a requirement for UK health and social care research funding. Evidence for how best to implement PPI in research programmes, such as National Institute for Health Research (NIHR) Collaborations for Applied Health Research and Care (CLAHRCs), remains limited. This paper reports findings from an action research (AR) project called IMPRESS, which aims to strengthen PPI within CLAHRC East of England (EoE). IMPRESS combines AR with Normalisation Process Theory (NPT) to explore PPI within diverse case study projects, identifying actions to implement, test and refine to further embed PPI. Methods: We purposively selected CLAHRC EoE case study projects for in-depth analysis of PPI using NPT. Data were generated from project PPI documentation, semi-structured qualitative interviews with researchers and PPI contributors and focus groups. Transcripts and documents were subjected to abductive thematic analysis and triangulation within case. Systematic across case comparison of themes was undertaken with findings and implications refined through stakeholder consultation. Results: We interviewed 24 researchers and 13 PPI contributors and analysed 28 documents from 10 case studies. Three focus groups were held: two with researchers (n = 4 and n = 6) and one with PPI contributors (n = 5). Findings detail to what extent projects made sense of PPI, bought in to PPI, operationalised PPI and appraised it, thus identifying barriers and enablers to fully embedded PPI. Conclusion: Combining NPT with AR allows us to assess the embeddedness of PPI within projects and programme, to inform specific local action and report broader conceptual lessons for PPI knowledge and practice informing the development of an action framework for embedding PPI in research programmes. To embed PPI within similar programmes teams, professionals, disciplines and institutions should be recognised as variably networked into existing PPI support. Further focus and research is needed on sharing PPI learning and supporting innovation in PPI. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
48. A qualitative analysis of migrant social workers' work experiences and perceived prejudice from an empowering acculturative integration approach.
- Author
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Hatzidimitriadou, Eleni and Psoinos, Maria
- Subjects
ACCULTURATION ,CONCEPTUAL structures ,EMPLOYMENT ,EXPERIENTIAL learning ,INTERVIEWING ,MATHEMATICAL models ,RESEARCH methodology ,PREJUDICES ,PROFESSIONAL employee training ,RESEARCH funding ,SELF-efficacy ,WORK ,QUALITATIVE research ,THEORY ,JUDGMENT sampling ,WELL-being ,NARRATIVES ,THEMATIC analysis ,DATA analysis software ,NOMADS ,SOCIAL worker attitudes ,PSYCHOLOGY - Abstract
An increasing number of migrant social workers are employed in the UK social work sector. This article explores the acculturative integration experiences of a small group of migrant social workers. We critically observe that research on migrant professionals' trajectories should adopt theories that emphasise people's empowerment and potential for agency. We use a framework drawing on liberation psychology for analysing the autobiographical narratives of a sample of migrant social workers employed in England. Findings indicate that the participants perceived prejudice on a number of occasions and circumstances. Even though in their narrative of survival they talked about activating several psychosocial resources, they were skeptical about their professional development and dissatisfied at work. The paper discusses the emerging findings while highlighting the framework's relevance for understanding these experiences from an empowering acculturation perspective and suggesting ways of improving migrant social workers' acculturative integration by addressing systemic barriers. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
49. Cancer worries and uptake of breast, cervical, and colorectal cancer screening: A population-based survey in England.
- Author
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Quaife, Samantha L., Waller, Jo, von Wagner, Christian, and Vrinten, Charlotte
- Subjects
CERVIX uteri tumors ,PATIENT participation ,BREAST tumors ,RECTUM tumors ,COLON tumors ,EARLY detection of cancer ,CONFIDENCE intervals ,SURVEYS ,LOGISTIC regression analysis ,CROSS-sectional method ,DESCRIPTIVE statistics ,ODDS ratio ,PSYCHOLOGY ,CANCER & psychology - Abstract
Objective Some degree of general worry about cancer may facilitate screening participation, but specific worries about the potential consequences (e.g. treatment, death) may act as deterrents. No studies have examined these associations in the same sample. We assessed associations between general versus specific cancer worries and cancer screening participation. Methods In 2016, a population-based cross-sectional survey of adults living in England was carried out. This paper reports analyses of a subsample (n = 1694). Measures included (i) frequency of general cancer worry, (ii) specific worries about the emotional and physical consequences of a cancer diagnosis, and (iii) specific worries about the social consequences of a cancer diagnosis. Logistic regression analyses examined their association with self-reported screening uptake among participants eligible for cervical (n = 671), breast (n = 323), and colorectal (n = 368) cancer screening. Results Frequency of general cancer worry was not associated with screening participation. Specific worry about the emotional and physical consequences increased the odds of participants reporting regular uptake of colorectal screening (OR 1.41, 95% CI 1.04–1.90). Specific worry about the social consequences of diagnosis was negatively associated with regular attendance for cervical and breast screening in unadjusted analyses only. In adjusted models, the associations were no longer statistically significant for cervical (OR 0.82, 95% CI 0.65–1.03) or breast (OR 0.69, 95% CI 0.45–1.04) screening. Conclusions Specific worries about cancer may be differentially associated with participation across screening programmes. Further research is needed, as interventions to optimise informed participation may be improved if the specific worries associated with low participation in each programme are understood. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
50. Studying Children's Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose.
- Author
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Bryan, Gemma, Bluebond-Langner, Myra, Kelly, Daniel, Kumpunen, Stephanie, Oulton, Kate, and Gibson, Faith
- Subjects
LEUKEMIA treatment ,HOSPITAL care of children ,COMMUNICATION ,DRAWING ,INTERVIEWING ,PHYSICIAN-patient relations ,WRITING ,ETHNOLOGY research ,JUDGMENT sampling ,PARTICIPANT-researcher relationships ,PATIENTS' attitudes ,TERTIARY care ,CHILDREN ,PSYCHOLOGY - Abstract
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, including the "Draw and Write" technique, a sticker activity, a paper–person exercise, informal interviews, and participant observation. Each of these methods was examined with regard to ease of use, data generation, and utility of data for accessing children's perspectives and development of initial clinical guidance. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
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