1. The Psychological Effects of Mesothelioma in the UK Military Context From the Carer's Perspective: A Qualitative Study.
- Author
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Sherborne, Virginia, Tod, Angela, and Taylor, Bethany
- Subjects
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NATIONAL health services , *QUALITATIVE research , *RESEARCH funding , *SECONDARY analysis , *HEALTH of military personnel , *INTERVIEWING , *FAMILY attitudes , *THEMATIC analysis , *RESEARCH methodology , *VETERANS , *MESOTHELIOMA , *PSYCHOLOGY of caregivers , *PHENOMENOLOGY , *CAREGIVER attitudes , *PSYCHOLOGY of the sick - Abstract
Mesothelioma is an incurable asbestos-related cancer with a high symptom burden. Its long lead time means cases in the military context tend to be amongst veterans. Research into the lived experience of mesothelioma is sparse. Research shows British veterans and their families are likely to have particular needs accessing health services and support. This study explored the psychological effects of mesothelioma in the UK military context from the carer's perspective. It comprised a secondary data analysis of interview data plus semi-structured interviews with family carers of UK veterans with a mesothelioma diagnosis. Themes developed included ' Going the extra mile'; 'Shifts in previously robust characteristics and roles'; and 'Needing to know'. Military culture impacted both patients and carers, with participants reporting a reluctance to show weakness. Carers experienced guilt and traumatic stress symptoms. Moral injury was reported relating to carers' interactions with the Ministry of Defence (MOD) and the National Health Service (NHS). [ABSTRACT FROM AUTHOR]
- Published
- 2024
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