1. A shared journey: evaluating a patient-assessed measure of self-management of chronic conditions in an Australian setting.
- Author
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Davis, Phillip, Bradbury, Joanne, Shrubsole, Kirstine, and Parke, John
- Subjects
CHRONIC diseases & psychology ,SELF-evaluation ,PEARSON correlation (Statistics) ,SELF-management (Psychology) ,SELF-efficacy ,CRONBACH'S alpha ,DATA analysis ,RESEARCH methodology evaluation ,RESEARCH evaluation ,PRIMARY health care ,DESCRIPTIVE statistics ,CONFIDENCE ,LONGITUDINAL method ,SURVEYS ,STATISTICAL reliability ,ANALYSIS of variance ,PSYCHOMETRICS ,STATISTICS ,MEDICAL needs assessment ,FACTOR analysis ,CONFIDENCE intervals ,COMPARATIVE studies ,WELL-being ,MEDICAL care costs - Abstract
Background: Patient Assessment of Care in Chronic Conditions (PACIC+), included in some Australian guidelines, has been shown reliable for measuring patient engagement and perception of their care in primary care settings. Various studies have focussed on PACIC+ use in specific conditions. This study aims to expand PACIC+ to measure patient empowerment to self-manage their chronic condition and validate it in the broader Australian primary care population. This study aims to evaluate internal consistency and reliability of PACIC+ and six new supplementary items proposed to assess patient wellbeing and empowerment to self-manage their chronic condition. Methods: A repeated-measures correlation design study assessed the expanded PACIC+ over three time-points. Particpants were patients with at least one chronic disease, referred by consultant physician, or recruited by advertisement posters in hospital clinic areas. Results: PACIC+ (26-item) had acceptable internal consitency (Cronbach's alpha 0.96). Test–retest reliability (Time-1 and 2, P < 0.01) was acceptable: Total score r (48) = 0.43; and New supplementary items: Confidence r (48) = 0.54; Understanding r (48) = 0.62; Support r (48) = 0.43; Overall Health r (48) = 0.42; Overall Health Change r (48) = −0.31, P = 0.03; and Acute Episodes of Care in 1-month r (48) = 0.42, P < 0.01. Four factors from the original PACIC+ accounted for 66.5% of the variance. Conclusions: The expanded PACIC+ is an improved psychometric tool providing for the patient's voice in a shared health journey. It is a valid, reliable tool to monitor and measure self-management of chronic conditions in Australian population clinic and primary healthcare settings. Six new supplementary patient empowerment and health status measures proved reliable and, in combination with the PACIC+ psychometric tool, could offer a method to monitor and measure the self-management of chronic conditions in the Australian clinic setting and for future research. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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