397 results
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152. Being an Inclusive Researcher in a National Consultation Exercise—A Case Study
- Author
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Greta Westermann, Erin Louise Whittle, Susan Adrian, Suzanne Jessep, Melanie Nolan, Bruce O’Brien, Jasamit Pannu, Elizabeth Young, and Mary-Ann O’Donovan
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inclusive research ,intellectual disability ,disability studies ,qualitative research ,COVID-19 ,lived experience ,Social Sciences - Abstract
This paper presents a case study of the Inclusive Research Network (IRN), an inclusive research group founded by the Centre for Disability Studies, contributing to a National Disability Research Agenda (NDRA) setting project. IRN members with ID carried out their own consultations with disability stakeholders. This paper sets out the experiences of the IRN members in facilitating focus groups as part of phase 2 of the NDRA project. As this project took place during the COVID-19 pandemic and state lockdowns, this paper also provides a reflection on new ways of carrying out research and provides an insight into the process for other groups seeking to engage in inclusive research of this nature in a challenging and changing environment. IRN members showed great interest in being involved in the project, and their motivations aligned with the project’s objectives. Facilitating the focus groups on Zoom took some preparation and posed accessibility challenges but enabled a more diverse group of people to attend. IRN members with ID improved their online facilitation skills and confidence but concluded that they preferred working face to face. IRN members overcame the challenges presented by online focus groups, and their involvement added value to the NDRA project. Researchers are encouraged to continue practicing inclusive research in times of remote working and virtual interaction and to share their experiences for mutual learning.
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- 2022
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153. 'It Is Like a Feeling': Theorizing Emotion in Mathematics through Complex Embodiment
- Author
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Rachel Lambert, David Hernández-Saca, Rebeca Mireles-Rios, and Marilyn Monroy Castro
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embodiment ,mathematics education ,disability studies ,emotion ,Mathematics ,QA1-939 - Abstract
Conversations of educational equity in mathematics necessitate a more deliberate, nuanced look at the mathematical processes of learning for students of color from historically marginalized communities. This paper describes the theoretical work of a research collaborative that seeks to develop understanding of the experiences around mathematical identity of Latinas labeled with Learning Disabilities in mathematics classrooms. Expanding the theory of Complex Embodiment from Disability Studies, we explore new interdisciplinary theoretical and methodological tools to analyze the emotional, embodied experience of learning mathematics in the social worlds of mathematics classrooms, using emotional discourse. We take up theoretical and methodological practices around intersectionality through analysis of how power and positioning operate in mathematics identity development. We find that the young woman whose narratives we explore in this paper is positioned through deficit discourses around disability and multilingual learners, yet she understands herself through a positive mathematical affinity she shares with her mother. Over time, we see her narratives shift emotionally away from mathematics, as well as away from this connection with her mother. Her narratives help us develop a theoretical perspective that understands emotion in mathematics learning as both embodied and socially constructed.
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- 2022
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154. Polysemic Interpretations: Examining How Women with Visual Impairments Incorporate, Resist, and Subvert Advertising Content.
- Author
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Houston, Ella
- Subjects
VISION disorders ,BLIND people ,PEOPLE with visual disabilities ,GENDER identity ,DISABILITY studies ,SEMI-structured interviews ,ADVERTISING - Abstract
This article takes a feminist disability studies approach to the analysis of the responses of women with visual impairments to representations of blindness, disability, and gender in advertising. Empirical data gathered via semi-structured interviews with women who are visually impaired (N = 5) enhances existing understandings of oppressed audiences' polysemic interpretations of advertisements. The research findings reveal participants' subversion of stereotypical approaches to visual impairments, ocularcentrism, and gendered constructions of blindness, which are found in advertisements (N = 3) produced post-2000 in the United Kingdom and United States. Participants highlighted subtle stereotyping in advertisements through exploring the intersecting nature of disability and gender identities. Advertisements were used by participants as prompts for reasserting their affirmative senses of self and as a means of critiquing sociocultural attitudes toward women with visual impairments. Recommendations for future research and practice in relation to advertising polysemy and the representation of disabled women in advertising are provided. [ABSTRACT FROM AUTHOR]
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- 2022
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155. Disability in Narrative Inquiry: A Case of Methodologically Unusable Data from a Participant with Intellectual Disability.
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Flynn, Susan
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INTELLECTUAL disabilities ,DISABILITIES ,PEOPLE with disabilities ,INCLUSION (Disability rights) ,DISABILITY studies ,ABLEISM ,NARRATIVES - Abstract
This paper considers methodological and ethical implications of qualitative interview data deemed unusable for research analytic purposes because the interviewee had an intellectual disability. Critical disability studies theory is used to reimagine the utility of one case of so-called unusable qualitative data. Excerpts from this qualitative data that came from a pilot study interview of a PhD project are full of possibility for learning. Yet, among conclusions drawn, rhetoric about disability inclusion appears undermined by ableist normativity. Specifically, the problems associated with valuing abled ways of speaking within wider narrative research and scholarship will be the focus of this article. [ABSTRACT FROM AUTHOR]
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- 2024
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156. Coronavirus Disability Survey: Assessing The Impact of COVID-19 on Young Adults with Disabilities
- Author
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Rashid, Hena
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- Coronavirus, COVID-19, Disability, Disabled, College Students, Digital Divide, Technology, Accessibility, Survey, Pariticpants, Disability and Equity in Education, Disability Studies, Educational Technology, Gender Equity in Education, Maintenance Technology, Technology and Innovation
- Abstract
This paper seeks to inform individuals of the importance of digital inclusivity, diminish the digital divide, and accessibility to technological services of college students who experience a form of disability. The United States has conducted minimal research on the digital disability rhetoric, promoted minimal disability-inclusive measures to protect the rights and well-being of college students, and minimal assistance to mitigate Coronavirus (COVID-19) impacts to this population subgroup. This subject can have a big impact on individuals who suffer from disability stigma, low accessibility issues, and who have been disproportionately impacted by the pandemic. Furthermore, this subject will benefit college students who argue in the favor of digital inclusion to help improve online rhetoric and become better equipped with communication technologies. Using survey research, this paper explains the experiences and solutions provided by college students to help alleviate the serious implications resulting from the COVID-19 pandemic.
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- 2022
157. What about the 1%? Transforming Current Literacy Pedagogy for Students with Significant Support Needs.
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Kleekamp, Monica C.
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INCLUSIVE education ,SOCIAL norms ,ENVIRONMENTAL literacy ,TEACHING ,DISABILITY studies - Abstract
The article highlights the need to transform current literacy pedagogy for students with significant support needs (SSNs), addressing the challenges and discrepancies in inclusive education. Topics include the persistence of exclusionary practices, the importance of presuming competence, bending normalized social rules, and recognizing interdependence as pedagogy to create more inclusive literacy environments for students with SSNs.
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- 2024
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158. Çağdaş Televizyon Anlatılarında Deliliğin Sunumu: Kırmızı Oda Dizisi Örneği.
- Author
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ALÇAYIR, Merve
- Abstract
Copyright of Journal of Erciyes Communication / Erciyes İletişim Dergisi is the property of Erciyes University, Faculty of Communication / Erciyes Universitesi Iletism Fakultesi and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2024
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159. Who needs the social model of disability?
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Adam, Sofia and Koutsoklenis, Athanasios
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SOCIAL model of disability ,DIGNITY ,PEOPLE with disabilities ,DISABILITIES - Abstract
Over the past two decades, there has been a growing shift away from the Social Model of Disability (SMD) in both theory and practice. This article aims to substantiate the relevance of SMD by addressing the main arguments against it and by identifying why and for whom it is still relevant. In the introductory section, we focus on the recent production of multiple disability models in order to contextualize their emergence and elucidate the reasons behind their proliferation. In the main section of the article, we critically engage with three lines of criticism against SMD in order to explain why it remains relevant and for whom. Our main point is that, in the context of the neoliberal capitalist era, the SMD is indispensable for all disabled persons who have been denied their dignity, both in material and cultural terms. [ABSTRACT FROM AUTHOR]
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- 2023
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160. Job matching for Persons with Disabilities: An Exploratory Study.
- Author
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Suresh, Vasanthi and Dyaram, Lata
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PEOPLE with disabilities ,DISABILITY studies ,CAPACITY building ,JOB analysis ,THEMATIC analysis ,EMERGING markets - Abstract
The prominent role of job matching in enhancing workplace inclusion and integration of persons with disabilities has drawn scholarly and practitioner attention. Matching the abilities of persons with disabilities to suitable jobs is crucial for sustainable employment and capacity development. However, an integrated view of the job matching process for persons with disabilities, especially in the context of emerging economies like India, remains elusive. The present study aims to explore how the process of matching persons with disabilities to suitable jobs unfolds in contemporary organizations in India. Participants for this study included management representatives of seventeen organizations that employ persons with disabilities. Thematic analysis of interview transcripts highlighted the following: the job matching process (a) consists of three overarching phases (pre-matching, matching, and post-matching) that encompassed five stages (job analysis, ability profiling, gap analysis, gap resolution and evaluation) (b) is continuous and ongoing, requiring employers' conscious and voluntary efforts with dynamic strategies (c) entails strategies that span across organization, group and individual levels (d) involves adjustment to various dimensions of the job such as process, duration, schedule, task, resources, location and equipment and (e) can be executed in a formal or informal manner. The findings serve to highlight the inherent complexities in the job matching process that require an individual-centric approach for optimal results. We present implications for theory and practice. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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161. A case study approach to understanding the pathway to individualised funded supports under the National Disability Insurance Scheme for community-dwelling individuals with acquired brain injury.
- Author
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Skinner, Michael, Quinn, Ray, Nance, Judith, Wright, Suzanne, and Kendall, Melissa
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BRAIN injuries ,INSURANCE ,DISABILITY studies ,SOCIOLOGY of disability - Abstract
Background: The National Disability Insurance Scheme (NDIS) offers opportunity against a historical background of underfunded and fragmented services for people with disability. For people with acquired brain injury (ABI), concerns have been raised about how they access NDIS individualised funded supports. The aim of this research was to explore how community-dwelling individuals with ABI in Queensland navigate the NDIS participant pathway to individualised funded supports. Methods: This study used a multiple case study design within a policy implementation framework. Twelve people with ABI, nine family members and eight NDIS funded and mainstream service providers participated. Data was collected from relevant NDIS documentation, health records and semi-structured interviews with individuals with ABI, family members, and service providers. Results: The current study highlighted the complexity of navigating the NDIS participant pathway of access, planning, implementation and review for people with ABI, their family and service providers. The NDIS pathway was impacted by the insurance and market based NDIS model itself, time, communication, and the requirement for external supports. Equally, the process was affected by environmental factors, individual person and injury factors as well as service providers, with a range of outcomes evident at the individual, family and system level. Conclusions: Findings suggest that the NDIS has struggled to make specific allowance for people with ABI and the complexity of their disabilities. Providing people with ABI access to the NDIS Complex Support Needs Pathway may redress many of the difficulties people with ABI experience accessing and using NDIS funded supports. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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162. Enabling Crip Time With Digital Tools in Qualitative Inquiry.
- Author
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Furlong, Darcy E.
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DIGITAL technology ,DIGITAL divide ,VIDEOCONFERENCING ,PEOPLE with disabilities ,JUSTICE ,DATA analysis - Abstract
Grounded in the intersectional principles of disability justice, this article attends to the integration of digital tools in qualitative inquiry. With a focus on the unique temporal landscapes of Disabled people, I suggest ways that digital tools can foster a more equitable, accessible, and just inquiry experience. Using personal accounts from two digital tools, I highlight the relationship between crip time and digital tools at the sites of (a) video conferencing platforms, and (b) qualitative data analysis software. This is balanced alongside scholarly debates about access friction (i.e., accommodations are not universal or stagnant) and the digital divide. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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163. The health of mothers caring for a child with a disability: a longitudinal study.
- Author
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Brekke, Idunn and Alecu, Andreea
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CHILDREN with disabilities ,CARE of children with disabilities ,MEDICAL care ,DISABILITY studies ,LONGITUDINAL method ,MUSCULOSKELETAL system diseases ,DISABILITY retirement - Abstract
Background: Raising a child with disabilities requires a significant parental investment that is greater than that required by typically developing children. Previous studies have shown that parents caring for a child with a disability experience a range of health problems, particularly the mothers. However, few of these studies have controlled for maternal health prior to birth. Methods: This study used a sample from the Norwegian administrative register that comprised all children born between 2009 and 2015. We followed the mothers and their children for 11 years, between 2009 and 2019. The outcome variable was the mothers' physical and mental health, which was assessed using specific ICD-10 diagnoses recorded in the Norwegian Patient Register (NPR). The data included information on the mothers' health before and after the birth of their first child, enabling us to control for maternal health prior to birth in our analysis, in addition to socio-demographic characteristics. The analyses of maternal health were performed using multiple logistic regression, and the results are presented on both a relative scale (odds ratio [OR]) and an absolute scale (average marginal effect [AME]), both with 95% confidence intervals. Results: Mothers caring for a child with a disability have higher odds of having a diagnosis of a musculoskeletal disorder, depression, anxiety, sleeping disorder or migraines than mothers of children without a disability. The differences between the two groups of mothers decrease after adjusting for the characteristics of the children, mothers and families, but remain significant for musculoskeletal disorder, depression, anxiety and sleeping disorder, although the absolute differences are modest. Conclusion: The findings suggest that mothers caring for a child with a disability are more likely to have health problems than mothers of children without a disability after controlling for maternal health prior to birth. Providing more support for mothers of children with a disability might help to improve their health. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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164. Evaluation of Qualitative Data Analysis Software by a Visually Impaired Researcher: An Autoethnographic Study.
- Author
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Emara, Ibrahim
- Subjects
RESEARCH personnel ,DATA analysis ,VISION disorders ,INTEGRATED software ,DISABILITY studies - Abstract
Although computational methods facilitate research studies greatly, academics with visual impairment cannot utilize these tools to their maximum potential. Not only do computational research methods themselves have many shortcomings, but the needs and problems encountered by researchers with visual impairment in using these tools are not identified. In particular, the use of qualitative data analysis software (Q-DAS) by researchers with visual impairment has not been thoroughly examined. Thus, the current article addresses the benefits that visually impaired researchers can gain from employing commercial Q-DAS software packages in analyzing qualitative data. Further, Q-DAS problems that researchers with visual impairments experience are discussed. In addition, the article proposes solutions by which Q-DAS utilization in studies performed by/for the visual impairment community could improve. The article has many significant contributions, not only for scholars with visual impairment but also for elderly scientists whose vision declines over time. The article addresses this topic through critical disability studies. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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165. Building community or perpetuating inclusionism? The representation of "inclusion" on fitness facility websites.
- Author
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Aly Bailey, K., Griffin, Meridith, Habib, Serena, Fayyaz, Nosaiba, Lopez, Kimberly J., and Fudge Schormans, Ann
- Abstract
Copyright of Leisure/Loisir: Journal of the Canadian Association for Leisure Studies is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2023
- Full Text
- View/download PDF
166. The Bionic Body: Disability, Technology and Posthumanism
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Magda Romanska
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Posthumanism ,Disability Studies ,Biomimicry ,Prosthetics ,Bionic Body ,Transhumanism. ,Fine Arts - Abstract
This paper looks at the new field of the critical posthuman disability studies and its potential to provide theoretical framework for critical theory’s engagement with modern technologies. How the concept of the bionic body affects representation of the disabled in contemporary culture and, in turn, how representation of the disabled body affects the changing boundaries of what is and what isn’t considered ‘human.’ Historically, the human body, as represented and defined on stage and in art, has maintained a strictly defined visual integrity. Anything not shaped as ‘human’ was typically deemed monstrous (from hybrid mythological creatures to severely disabled ‘elephant men’). Simultaneously, the category of ‘human’ was used to circumscribe the boundaries of belonging and the categories of valuation: some groups, including the disabled were deemed ‘sub-human’ and designated to either be disposed of (as the carrier of ‘life unworthy of life’) or, if possible, to approximate the ‘human’ body. (Romanska 2019: 92-93). Until very recently, the goal of the prosthetics industry was to create limbs that would serve as visual stand-ins for missing limbs. Similarly, the technological capacities of prosthetic limbs were delineated by human capacities: the disabled were to be given as much ‘abilities’ as the non-disabled, but no more. However, this perception of what the disabled body can and should do has changed with technological progress: not only do the newest prosthetics often look as ‘unhuman’ as possible, but their capacities put into question the capacities and limits of the non-disabled body. All of these and other issues that have emerged in recent years at the crossroads of posthumanism, disability, and biomimicry have led to the development of posthuman disability studies, which tries to untangle and reconceptualize the ethical, legal and philosophical boundaries of human enhancement, species belonging, life and death, and human rights. The posthuman biomimicry, and the prosthetic aspects of digital and AI technologies presupposes a form of disabling of the human body: body without any connection to some type of machine is an inferior body. In this context, understanding the historical dynamics, critical, philosophical, and ethical debates that have dominated disability studies can provide a framework to how we reconceptualize our posthuman, hybrid future in which our existence with the machines that redefine previous hierarchies is inevitable.
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- 2024
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167. Accessibility Research and Users with Multiple Disabilities or Complex Needs.
- Author
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Theil, Arthur, Anderton, Craig, Creed, Chris, Olson, Nasrine, Holt, Raymond John, and Sarcar, Sayan
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DISABILITIES ,ASSISTIVE technology ,ACCESSIBLE design ,INCLUSION (Disability rights) ,COMMUNITY centers - Abstract
Conventionally, the accessibility research community centers most of its efforts on designing assistive technologies and systems related to single categories of impairments. Although this approach has contributed to valuable progress and advancements in the field, there is a growing consensus among accessibility researchers that focusing on designing technologies for single impairments oversimplifies disability since this approach may fail to adequately address the real-world experiences of a significant population of users with complex needs. Despite challenges related to conducting research with users living with multiple, profound, or complex disabilities, it is essential in terms of future work that the accessibility research community adopts a more inclusive approach where users with lived experience of multiple disabilities are directly informing and shaping the design of assistive systems and accessible technologies. Therefore, we propose the 2nd International Workshop on Accessibility Research and Users with Multiple Disabilities or Complex Needs. The workshop will act as a forum for participants to share their perspectives related to challenges and opportunities in designing accessible systems that consider the multidimensional needs of users living with multiple disabilities. This workshop intends to challenge current paradigms in the accessibility field, share latest work and foster future collaborations. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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168. Calculating Route: Functional Trajectories and Long-Term Outcomes in Survivors of Severe COVID-19
- Author
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Taniguchi, Leandro Utino, Aliberti, M. J. R., Dias, M. B., Jacob-Filho, W., and Avelino-Silva, T. J.
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- 2023
- Full Text
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169. „Dysconcious ableism“ und hochschuldidaktische Exklusionspotenziale: Kritisches Essay zur universitären Sportlehrkräfteausbildung in den USA und Deutschland im Kontext der schulischen Inklusion
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Grenier, Michelle and Giese, Martin
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- 2023
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170. Paths to Equity: Parents in partnership with UCEDDs fostering Black family advocacy for children on the autism spectrum
- Author
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Morgan, Elizabeth H., Shaw, Benita D, Winters, Ida, King, Chiffon, Burns, Jazmin, Stahmer, Aubyn, and Chodron, Gail
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Intersectionality ,Partnerships ,Social Work ,Race ,Disability and Equity in Education ,Autism ,African American Studies ,Family and Consumer Sciences ,Social Policy ,Disability Law ,Women's Studies ,Social Justice ,UCEDDs ,Child Psychology ,Disability Studies ,advocacy ,Disability ,Community Psychology ,Educational Leadership ,Accessibility ,Speech Pathology and Audiology ,Black mothers ,School Psychology ,Special Education and Teaching ,Interprofessional Education ,Cultural Competence - Abstract
Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black children with developmental and mental health disabilities are examples of systemic oppressions. However, there is evidence to support that attitudes and biases that providers hold about Black children, and their families hold a part in the blame as well. This paper will explore the efforts of two University Centers for Excellence in Developmental Disabilities (UCEDDs) to address disparities in access to diagnostic and higher quality services for Black neurodiverse children in Northern California and Wisconsin. This paper will: (1) Describe programs and projects within each center that support advocacy and peer networking for Black families; (2) Provide first-person accounts from family members that document the UCEDDs’ impact on their respective advocacy journeys; (3) Delineate how each UCEDD partnered with Black families and community stakeholders to develop and plan programs that meet the unique interests and needs of the groups of Black families of autistic children within the cultural contexts of the communities in which they live; (4) Discuss the processes that each UCEDD underwent to evaluate the efficacy of their programs to ensure that they were uplifting principles of cultural and linguistic competence such as community and family engagement; and (5) Offer recommendations to improve current practice and create culturally competent and family-centered supports and services for disability systems and providers across the DD Network and beyond.
- Published
- 2023
171. Considering Compensation and Disabilities: A Summary of Current Research.
- Author
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Zhu, Julie and Sanchez, Diana R.
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JOB applications ,DISABILITIES ,INDUSTRIAL psychology ,EMPLOYMENT discrimination ,ECONOMIC impact ,DISABILITY studies - Abstract
This article summarizes three studies conducted by Speach and colleagues (2023) on the compensation of disabled employees. The first study found that initial salary rates offered to job applicants with disabilities were statistically similar to those without disabilities. However, the second study revealed that job candidates with disabilities negotiated lower final salaries than those without, and this was influenced by participants' perceptions of disability-related stereotypes. The third study showed that hiring managers were more likely to offer lower negotiated salaries to job applicants with disabilities, and this was mediated by their expectations of negotiation likelihood. The findings suggest that the salary disparity between job applicants with and without disabilities persists beyond the initial salary proposal and highlights the need for organizations to address biases and promote fair negotiations to combat salary disparities. [Extracted from the article]
- Published
- 2024
172. Disability, Social Inequalities, and Intersectionality in India
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Gulyani, Ritika, Mehrotra, Nilika, Nagla, B. K., editor, and Choudhary, Kameshwar, editor
- Published
- 2023
- Full Text
- View/download PDF
173. Reuniting Speech-Impaired People with Their Voices: Sound Technologies for Disability and Why They Matter for Organisation Studies
- Author
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Domenico Napolitano and Napolitano, Domenico
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geography ,disability studie ,geography.geographical_feature_category ,voice cloning ,Speech synthesis ,organization studies ,General Medicine ,computer.software_genre ,Disability studies ,Organization studies ,speech synthesi ,media studie ,Psychology ,computer ,Sound (geography) ,Cognitive psychology - Abstract
This paper intends to provide an analysis of sound and voice technologies for speech-impaired people regarded as sites of knowledge production about disability. The study will focus on the case of Google’s project to reunite speech-impaired users with their voices using voice cloning technology, an evolution of speech synthesis that allows the reconstruction of the sonic and timbral characteristics of a person’s voice. Addressing both the narratives and representations – which reveal a medical model of disability as an external flaw to be cured through technology – and the material practices and operations enacted by those technologies – which highlight epistemologies of human variation, embodiment and accessibility built into the software –, the paper shows that disability as a social construct is co-constituted in the interaction of these levels. In this regard, the following research proposes a socio-technical model of disability theorisation that combines techno-scientific knowledge, cultural values, images of the user, material operations and organisational practices. From this perspective, the paper argues that the study of disabilities would benefit from the contribution of organisation studies and media studies in order to reveal the ‘constructedness’ of disability and able-bodiedness, and the role of media technologies, institutions, and representations in producing and upholding – as well as potentially challenging – such constructions.
- Published
- 2022
174. Narratives of 'SHOGAI': the process of its emergence and change through the lens of a person with disabilities
- Author
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Tanaka, Yusuke
- Subjects
障害学 ,Narrative ,語り ,Disability studies ,Study of party ,中動態 ,沈黙 ,当事者研究 ,Middle voice ,Silence - Abstract
障害当事者が自身の障害を語ろうとするときには何をいかに語ればよいのか、語り手と聞き手の相互作用という観点から「障害」の語りを実験的に検討し、考察した。先行研究では、当事者性の不確かな人が自分を語るときには、何をいかに語ればよいか、という知見が不在であった。そこで本稿では、自身が納得できるような「障害」の語りとはどのような場で何をいかに語ることか、そこでは「障害」はどのように語られていくのかを検討した。その結果、「障害」を語る際には、語り手が一方的に語るのではなく、語り手と聴き手が共に応答し合う必要性が明らかになった。また、引責から免責や主体の解体へ、因果論から現象や状況へと移行するように語り紡ぐことの重要性も示唆された。 なお、本研究では、筆者が医学的診断を受けた脳性麻痺や広汎性発達障害、それらの語義や症状を鍵括弧のつけない障害と定義する。それ以外の語られた物事をすべて「障害」として捉える。, This study experimentally examined and discussed the narrative of “SHOGAI” from the perspective of the interaction between the narrator and the listener, to find out what and how people with disabilities should talk about their own disabilities to others. In the previous papers or research, there was a lack of knowledge about what and how to talk about oneself when a person with an uncertain sense of involvement of party. This paper is focused on what and how to talk to others about “SHOGAI” in a place where people can be satisfied with their own narratives, and what and how “SHOGAI” is talked about there. It was found that when talking about “SHOGAI”, it is necessary for both the narrator and the listener to respond to each other instead of the narrator being the only speaker. It also important to shift from blame to exoneration or deconstruction of the subject, and from causality to phenomenon or situation when they talk their “SHOGAI”. In this paper, the patients with cerebral palsy, and pervasive developmental disorder, their meanings of words and symptoms are defined as disabilities without key brackets. All other things mentioned on talking are considered as “SHOGAI” with key brackets.
- Published
- 2022
175. Crip Life Amidst Debilitation: Medicalization, Survival, and the Bhopal Gas Leak.
- Author
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Pandya, Jiya S.
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PEOPLE with disabilities ,DEVELOPING countries ,LABOR organizing ,INDUSTRIAL sites ,MEDICALIZATION ,DISABILITY studies - Abstract
In a textbook horror-story of global capitalism, on December 3, 1984, the U.S owned Union Carbide pesticide factory spewed forty tons of lethal toxic methyl isocyanate (MIC) on the city of Bhopal in India. Nearly 10,000 people died and 30,000 people were disabled overnight. Continued exposure to MIC at the factory site has disabled many more in the decades since. Yet, few disability scholars have considered the histories of the survivors of the leak as a key site of crip politics. Drawing on work by Nirmala Erevelles, Jina Kim, Jasbir Puar, and Alison Kafer, this paper explores how the long history of debilitation, disablement, and survivorship since the Bhopal Gas Leak provides essential ground for re-zoning disability studies in the Global South. Braiding the theory of debility with the methodology of critical disability studies, this article posits that it is insufficient to say that the most marginalized in the Global South experience debility. Rather, it is also necessary to focus on their modes of survival in the face of the constant material and intellectual reproduction of said debilitation. The article demonstrates how poor lower-caste and Muslim workers and city-dwellers in Bhopal were subject to the debilitating logics of transnational corporate negotiations, racialized environmental de-regulation, and governmental profit-seeking in the years leading up to the leak. Through crip readings of medical research published between 1985 and 2000, I argue that this debility has been compounded through knowledge production which did not pay heed to the ways in which its victims contended with their vulnerability. In contrast to these sources, this article further examines testimonies and organizational pamphlets to contend that survivors in Bhopal offer their own model of disability justice and crip survival in the face of debilitation. In an era of vibrant disability rights organizing in the United States, the survivors of the leak emerged in global media primarily as victims of a tragedy caught in an endless cycle of injustice. Moving past the stance of pity often deployed in discussions of Bhopal, I highlight efforts of survivance that center disabled futurity, even as these activists use a different vocabulary and thereby strive to channel attention and resources to the myriad forms of crip survival in postcolonial India. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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176. Taking Care of ADA Business in the Public School District: The Americans with Disabilities Act affects myriad elements of district operations.
- Author
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Fortney, Cathy
- Subjects
AMERICANS with Disabilities Act of 1990 ,PUBLIC schools ,BUSINESSPEOPLE ,DISABILITY laws ,FACILITY management ,GRIEVANCE procedures ,CIVIL rights of people with disabilities ,DISABILITY studies - Published
- 2023
177. Acceptability of a head-mounted assistive mouse controller for people with upper limb disability: An empirical study using the technology acceptance model.
- Author
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Kabir, Mohammad Ridwan, Mahmud, Hasan, and Hasan, Md. Kamrul
- Subjects
TECHNOLOGY Acceptance Model ,TECHNOLOGICAL innovations ,CONFIRMATORY factor analysis ,STRUCTURAL equation modeling ,DISABILITY studies ,ARM - Abstract
Due to limited motor capabilities, people with upper limb disabilities have trouble utilizing a typical mouse while operating a computer. Different wearable Assistive Mouse Controllers (AMCs) have been developed to overcome their challenges. However, these people may not be able to realize the importance, ease of use, and social approval of these AMCs due to their fear of new technology, lack of confidence, and lack of ingenuity. These may negatively affect their attitude and intention toward accepting AMCs for equitable human-computer interaction. This study presents the development of a sensor-based head-mounted AMC, followed by an empirical analysis of its acceptance using the Technology Acceptance Model (TAM) from the socioeconomic perspective of Bangladesh. In a similar vein, we examined the effects of three additional psychological constructs—technology anxiety, confidence, and innovation, on its acceptance along with the original components of the TAM. A total of 150 individuals with stroke-induced upper limb disability participated in an online survey, and their responses were analyzed using confirmatory factor analysis and structural equation modeling, following the general least square method. Analysis revealed, about 96.44% of the participants had positive attitude towards the AMC, and almost 88.56% of them had positive intentions to accept it. Furthermore, about 68.61% of them expressed signs of anxiety, 96.35% were confident, and 94.16% of them had an innovative mindset in terms of device usage. The findings imply that individuals with an innovative mentality are more capable of comprehending the practical implications of a new technology than those without one. It is also feasible to reduce technological anxiety and boost a user's confidence while using an AMC by combining an innovative mentality with straightforward device interaction techniques. Additionally, peer encouragement and motivation can significantly enhance their positive attitude towards accepting the AMC for facilitating their interaction with a computer. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
178. Making the Shift in Theoretical Orientation and Teaching Practices to Disability Studies: Two Educators' Narrative Journey.
- Author
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Kim, Hyun Uk and Ballin, Amy
- Subjects
DISABILITY studies ,EDUCATORS ,TEACHER educators - Abstract
In this study, two teacher educators share their educational journey using narrative inquiry. Specifically, the authors share how they learned to ground their teaching and research in disability studies, what they have learned in the field to become better teachers for their students in (special) education, and why the shift in their theoretical framework and teaching might be relevant to other educators. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
179. Professionals' Understanding of Accessibility Regarding Business Communication Materials.
- Author
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Drye, Sherrie L., Kelly, Stephanie, and Woodard, Thelma
- Subjects
CORPORATE communications ,BUSINESS communication ,DISABILITY studies ,COMMUNICATION education ,PROFESSIONAL employees - Abstract
The purpose of this study was to gauge the understanding of accessibility related to business communication material among individuals working in corporate America. Participants were asked to define accessibility, then given a definition of accessibility, and then asked to identify how to make a report and a visual accessible. A substantial number of participants were not able to define accessibility, nor identify how to make accessible changes to a report or visual. Those who could define accessibility considered accessibility goals in terms of general access to resources, usability, audience analysis, or disability-related accessibility. Business majors were less likely than other majors to be able to identify disability-related methods of making a report or visual accessible. Implications for business communication education are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
180. Spaced Apart: Autoethnographies of Access Throughout the COVID 19 Pandemic.
- Author
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Dokumaci, Arseli, Bessette-Viens, Raphaelle, Goberdhan, Nicholas, Lucas, Simone, Mazowita, Amy, and Stainton, Jessie
- Subjects
COVID-19 pandemic ,SCHOLARLY method ,DISABILITY studies ,PEOPLE with disabilities - Abstract
In this article, we present six autoethnographies of lives marked by crisis that reflect on the issues of access, very broadly defined, that the COVID 19 pandemic has raised or redefined for each of us. As the time of crisis has made access concerns more and more evident it also exposes how access is not an issue just for disabled people, but for all lives. Drawing on recent scholarship in disability studies that critically interrogates access through an intersectional lens, we take this unexpected unveiling as an occasion to further tease out the complexities, ambiguities, and messiness of access. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
181. Toward a Conceptual Understanding of Inclusion as Intersubjective Experiences.
- Author
-
Haegele, Justin A. and Maher, Anthony J.
- Subjects
YOUNG adults ,CHILDREN with disabilities ,SOCIAL forces ,EDUCATION policy ,SCHOOL rules & regulations - Abstract
Inclusion has become a global buzzword relating to education policy and practice. Mostly, it is tied to discussions about access and opportunities in education spaces as well as school policies and the curriculum decisions and pedagogical actions of teachers. As part of this critique, we propose defining inclusion as intersubjective experiences associated with feelings of belonging, acceptance, and value that are dynamic, ephemeral, spatial, and in flux. Here, we advocate for centering the experiences and amplifying the voices of disabled children and young people in and about education spaces, while acknowledging the wider social forces that structure those spaces, as only disabled young people can explain how they feel in the educational spaces where they find themselves. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
182. Portraying Teacher Education for Inclusion: An Analysis of the Institutional Discourse of Dual Certification Programs.
- Author
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Gomez-Najarro, Joyce, Pugach, Marleen C., and Blanton, Linda P.
- Subjects
INCLUSIVE education ,TEACHER educators ,DISCOURSE analysis ,TEACHER education ,CERTIFICATION ,INTERSECTIONALITY - Abstract
Dual certification programs are proliferating as the principal means of preparing teachers for inclusive practice. Drawing on the 1,408 university-based teacher education programs on the 2019 Title II database, we examined the institutional website discourse for every program offering prospective teachers the opportunity to earn a general and special education license. One-quarter of these websites reflected discourse conveying inclusion as a reform, transformational, and equity strategy for teaching; three-quarters limited discourse to the practical benefit of earning two licenses, absent any elaboration regarding inclusive teaching. This raises questions regarding whether these programs serve a robust reform function in orienting prospective teachers to inclusive practice or instead a transactional function that maintains the traditional binary relationship between general and special education. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
183. Facades of Ingress
- Author
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Berardi, Kristopher
- Subjects
Disability studies ,Accessibility ,accommodations ,chronic illness ,game studies ,Interactive experience ,Monster - Abstract
Facades of Ingress is an interactive puzzle-based experience revealing the monster that lies at the center of the institution. It holds the power to grant accommodations that make crip lives easier inside institutions. Instead, it is greedy. It creates complex systems of paperwork, deeply intrusive medical exams, and copious layers of bureaucracy to hold hostage the resources it hoards.This paper looks at the theoretical concepts that helped shape Facades of Ingress. Using disability and monster theory, it examines the societal structures and systems that have failed crips, preventing them from gaining accommodations inside institutions. It looks at work by disability scholars and artists, such as Mimi Khúc’s Open in Emergency and Johanna Hedva’s “Sick Woman Theory.” It also examines how disability is seen as monstrosity through an analysis of Matt Fraser’s Born Freak and uses the social model of disability studies to prove that the real monster is the societal systems that affect disabled bodyminds’ abilities to exist.
- Published
- 2024
184. Integrating disability and developmental theories for an equitable inclusive education: towards transformative educational praxes
- Author
-
Dušana Podlucká
- Subjects
Reductionism ,Individualism ,Transformative learning ,Higher education ,Developmental stage theories ,business.industry ,Pedagogy ,Context (language use) ,General Medicine ,Sociology ,business ,Disability studies - Abstract
The US higher education institutions are legally bound to provide equal educational opportunities for diverse learners. This paper contends that despite the growing interest in implementing more inclusive pedagogy, those efforts still fall short of systematically addressing intersecting, oppressive, and anti-ableist practices in the classroom. I call for a theory that frames disability in the context of learning and development and overcomes dichotomized, reductionist and individualistic notions of disability and learning. Drawing on Critical Disability Studies, Vygotsky’s theory of defectology and the Transformative Activist Stance, this paper outlines a transformative pedagogy framework for inclusive, equitable, and anti-ableist education for all learners.
- Published
- 2021
185. Critically engaging vulnerability: Rethinking oral health with vulnerabilized populations
- Author
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Ruth Freeman, Vanessa Muirhead, Janine Doughty, and Mary Ellen Macdonald
- Subjects
medicine.medical_specialty ,education.field_of_study ,Inclusion (disability rights) ,business.industry ,Public health ,Population ,Public Health, Environmental and Occupational Health ,Agency (philosophy) ,Vulnerability ,Oral Health ,Health Status Disparities ,Public relations ,Vulnerable Populations ,Disability studies ,Health equity ,Harm ,medicine ,Humans ,Public Health ,business ,education ,General Dentistry - Abstract
This paper is the third in a series of narrative reviews challenging core concepts in oral health research and practice. Our series started with a framework for Inclusion Oral Health. Our second review explored one component of this framework, looking at how intersectionality adds important complexity to oral public health. This current manuscript drills into a second component of Inclusion Oral Health, exploring how labels can lead to 'othering' thereby misrepresenting populations and (re)producing harms. Specifically, we address a common oral public health label: vulnerable populations. This term is commonly used descriptively: an adjective (vulnerable) is used to modify a noun (population). What this descriptor conceals is the 'how,' 'why,' and 'therefore' that leads to and from vulnerability: How and why is a population made vulnerable; to what are they vulnerable; what makes them 'at risk,' and to what are they 'at risk'? In concealing these questions, we argue our conventional approach unwittingly does harm. Vulnerability is a term that implies a population has inherent characteristics that make them vulnerable; further, it casts populations as discrete, homogenous entities, thereby misrepresenting the complexities that people live. In so doing, this label can eclipse the strengths, agency and power of individuals and populations to care for themselves and each other. Regarding oral public health, the convention of vulnerability averts our research gaze away from social processes that produce vulnerability to instead focus on the downstream product, the vulnerable population. This paper theorizes vulnerability for oral public health, critically engaging its production and reproduction. Drawing from critical public health literature and disability studies, we advance a critique of vulnerability to make explicit hidden assumptions and their harmful outcomes. We propose solutions for research and practice, including co-engagement and co-production with peoples who have been vulnerabilized. In so doing, this paper moves forward the potential for oral public health to advance research and practice that engages complexity in our work with vulnerabilized populations.
- Published
- 2021
186. Analysis of Accessible Digital Musical Instruments through the lens of disability models: a case study with instruments targeting d/Deaf people
- Author
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Erivan Gonçalves Duarte, Isabelle Cossette, and Marcelo M. Wanderley
- Subjects
Accessible Digital Musical Instruments ,disability studies ,music and disability ,participatory design ,Deaf culture ,deafness ,Electronic computers. Computer science ,QA75.5-76.95 - Abstract
Music educators and researchers have grown increasingly aware of the need for traditional musical practices to promote inclusive music for disabled people. Inclusive music participation has been addressed by Accessible Digital Musical Instruments (ADMIs), which welcome different ways of playing and perceiving music, with considerable impact on music-making for disabled people. ADMIs offer exciting possibilities for instrument design to consider and incorporate individual constraints (e.g., missing arm, low vision, hearing loss, etc.) more than traditional acoustic instruments, whose generally fixed design allows little room for disabled musicians inclusivity. Relatively few works discuss ADMIs in the context of disability studies, and no work has investigated the impact of different disability models in the process of designing inclusive music technology. This paper proposes criteria to classify ADMIs according to the medical, social, and cultural models of disability, then applies these criteria to evaluate eleven ADMIs targeting d/Deaf people. This analysis allows us to reflect on the design of ADMIs from different perspectives of disability, giving insights for future projects and deepening our understanding of medical, social, and cultural aspects of accessible music technology.
- Published
- 2023
- Full Text
- View/download PDF
187. Expressivist objections to prenatal screening and testing: Perceptions of people living with disability.
- Author
-
Boardman, Felicity and Thomas, Gareth
- Subjects
HUMAN reproduction ,PRENATAL diagnosis ,SOCIOLOGY ,ATTITUDE (Psychology) ,DOWN syndrome ,GROUP identity ,GENETIC disorders ,PATIENTS' attitudes ,PEOPLE with disabilities ,GENETIC techniques - Abstract
The 'expressivist objection' (EO) refers to the notion that using reproductive (genetic) technologies to prevent the birth of future would‐be disabled people contain, and express, a negative valuation of life with disability. Whilst the EO has received increased attention in recent years in line with rapid technological and genomic developments, there remains scant research on how EO concerns are experienced and expressed by disabled people and their families, especially within and between impairment groups. Bringing together two studies—one with adults and family members living with genetic conditions (n = 62) and one with parents of children with Down's syndrome (n = 22)—we argue that disabled people and their families variously embrace, reject or rework the EO across contexts, and yet also frequently situate it within broad support for reproductive technologies. We present three key factors that mediate responses to the EO: (1) the nature of impairment and its integration within identity; (2) social and cultural contexts relating to disability and (3) the (individual and collective) imagined futures of disabled people. In so doing, we blend the conceptual architecture of medical sociology and disability studies, arguing that this allows us to accurately illuminate the nuanced responses of disabled people and their families. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
188. Technocare, the Elderly and Disability: a Study of Transformations in Models of Care.
- Author
-
Zambrano Álvarez, Inmaculada, Pia Venturiello, María, and Muyor Rodríguez, Jesús
- Subjects
CIVIL society ,SOCIAL model of disability ,DIGITAL literacy ,DISABILITY studies ,OLDER people ,POPULATION aging - Abstract
The increasing care needs of an ageing disabled population and older people who become disabled due to the ageing process itself raises the issue of insufficient care and the need for a social reorganisation of care between the State, families, the market and civil society. Current research on care focuses on perspectives where technology can play an important role. Technology designed to enhance care and self-care helps to promote the participation of older people in society. The authors participated and present a line of research developed in Spain that analyses whether technology is being used as a model that reproduces care practices with a welfare approach or as a phenomenon that facilitates a social model of disability that contributes to greater autonomy of the elderly in carrying out daily activities, self-determination, and where the community context plays a more critical role, as has been recommended by supranational organisations. Educating seniors about digital literacy is important, as is advancing research by collaborating with seniors to co-design technology for care and self-care. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
189. Injury, Affirmation, and the Disability Masquerade in Ye's "Through the Wire".
- Author
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Tatar, Jeremy
- Subjects
PLASTIC surgery - Abstract
Ye's song "Through the Wire" exists in two versions. The first was recorded in late 2002 after a near-fatal car crash and features Ye rapping through a jaw wired shut as he recovered from reconstructive surgery. After he healed, a second version was recorded in 2003 and released as the lead single from his debut album. Although Ye raps unimpeded in this later version, it was still marketed as the authentic product of physical disablement. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
190. Car as extension of whiteness: Not everyone's skin is extended equal.
- Author
-
Bowen, Bernadette 'bird'
- Subjects
WHITE flight ,RACIAL identity of white people ,PUBLIC transit ,COVID-19 pandemic ,SOCIAL distancing - Abstract
The US White flight left historically and intentionally targeted marginalized groups in cityscapes in the impoverished dust of public transport. These racialized phenomena restructured urban environments and deadened surrounding landscapes, engendering deliberately barren space too far to traverse by no- and low-income feet. Now, in the present-COVID-19 envirusment, Midwest landscapes are an eyesore, which perpetually disable and dehumanize, further denying working folks from safe social distancing and PPE in areas already plagued with socio-historical and economic disenfranchisements. Meanwhile, redlined and/or gentrified affluent spaces remain composed of mostly Whites of a certain status. This project explored present-COVID-19 human implications of cars in a nation founded upon ecological devastations. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
191. From Reporting to Removing Barriers: Toward Transforming Accommodation Culture into Equity Culture.
- Author
-
Cook-Sather, Alison and Cook-Sather, Morgan
- Subjects
MOTHER-daughter relationship ,COLLEGE curriculum ,FLIPPED classrooms ,CULTURE ,STUDENTS with disabilities ,DISABILITY studies ,ACCESSIBLE design - Abstract
This reflective case study is situated at the intersection of the literature on pedagogical partnership, child-parent research, and Critical Disability Studies. It presents a mother/daughter, faculty/student exploration of the daughter's lived experiences of navigating, as a legally blind person, the campus and courses of a college designed for fully sighted students. After presenting our conceptual frameworks and describing, using text and a video, the daughter's lived experience of navigating the accommodation culture on her campus, we describe the semester-long partnership process through which the video was created with the goal of moving faculty, staff, and students toward equity culture. To support others in developing such video projects on their own campuses, we draw on details of this partnership to offer guidelines for co-creating representations of the lived experiences of other students with disabilities. By synthesizing learnings from this experience and the literature noted above, we offer recommendations for transforming accommodation culture into equity culture. These recommendations include: establishing diversity as the norm in every learning context; intentionally inviting a revision of differences from deficits to resources; going beyond providing accommodations to understand students' lived experiences; and sharing the active taking of responsibility for shifting from accommodation to equity culture. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
192. "In Honor, as in Limb, Unmarred": Obsession with the "Whole" Body in Herman Melville's Battle-Pieces and Aspects of the War.
- Author
-
Schulman, Vanessa Meikle
- Subjects
WAR ,DISABILITY studies ,POETRY collections ,CIVIL war ,NATIONAL emblems ,JOB stress ,AUTONOMY (Psychology) - Abstract
This article examines Herman Melville's poetry collection Battle-Pieces and Aspects of the War (1866) using theories and concepts from the sphere of disability studies. Mobilizing evidence from Melville's letters as well as close readings of the poems, I argue that Melville presented a complicated relationship to questions of bodily wholeness and autonomy in his written work, particularly in response to the political and existential stresses of the U.S. Civil War. Melville conceptualized Battle-Pieces as a chronological archive intended to redeem a narrative of wholeness and overcome a perceived weakness or deficiency in the body politic. However, the book's fractured arc serves rather to highlight a lack of healing, both political and corporeal. Melville's obsession with the "whole" body is apparent both in his unpublished, private writing and through close readings of the poems "Donelson," "The College Colonel," and others. Reading Battle-Pieces through the lens of disability studies makes visible the author's conflicted responses to wounded bodies. Melville's obsession with wholeness and healing was part of a larger national obsession--that of mending the rift between North and South by tending to the physical wounds of individual veterans--a historico-medical context that Melville scholars have largely ignored. Placing Melville's poems within a larger conversation about medical intervention and the limits of the 'disabled' body as a symbol for national regeneration, in this article I show how Melville overtly engaged in ongoing debates about healing and nation-building in the aftermath of the Civil War. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
193. A Selective Review of Rehabilitation Services and Disabilities Studies Syllabi.
- Author
-
Herbert, James T.
- Subjects
TEACHING methods ,CURRICULUM ,COLLEGE teacher attitudes ,UNDERGRADUATE programs ,UNDERGRADUATES ,BEHAVIORAL objectives (Education) ,DESCRIPTIVE statistics ,REHABILITATION ,STUDENT attitudes ,SCHOOL administration ,SCHOOL orientation ,PROFESSIONAL licensure examinations - Abstract
Background: This investigation examined what information is typically included in an undergraduate rehabilitation syllabus and how this information is presented in written form to students. Method: Syllabi (n = 117) from six undergraduate programs, each of which reflected a different program emphasis, were reviewed in terms of their framework (traditional, instructor-centered, student-centered, and enhanced) as well as categorical information contained in their narratives. Findings: An analysis of stylistic features indicate that undergraduate faculty tend to produce syllabi that are instructor-centered and support a pedagogical rather than an andragogical way of learning. The "typical" undergraduate course is a 3-credit offering with an enrollment of about 30 students that meets once or twice per week and is more likely taught by an adjunct faculty (nontenure track) member. While most faculty post information regarding instructor contact information, course description, learning objectives, grading system, and support services, greater variation was noted regarding posting office hours, expected student behavior (e.g., attendance, missing class, and participation), class policies (e.g., late/missing assignments and extra credit), and a description of teaching methods. Conclusion: Given the importance of how syllabi serve as an outline of course content and class policies, it is recommended that rehabilitation educators develop syllabi that are more student-centered and support adult learners. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
194. Beyond Making a Statement: An Intersectional Framing of the Power and Possibilities of Positioning.
- Author
-
Boveda, Mildred and Annamma, Subini Ancy
- Subjects
BLACK feminism ,INTERSECTIONALITY ,RACE ,COMMUNITIES ,FEMINIST theory ,FEMINISM ,OPPRESSION - Abstract
In this essay, two women of Color researchers examine the intersections of race and disability and ask, "What is the power and purpose of positioning and positionality statements?" Informed by Black feminist theory, and drawing from the DisCrit tenets of intersectional oppressions, historicity, and whiteness and ability as property, the authors focus on researchers' positioning in relation to how they engage and communicate knowledge about multiply marginalized people. Positionality statements, they argue, must be more than a listing of identities or a claim on authority through the naming of professional proximity to marginalized communities. Recognizing the increasing expectations for education scholars to articulate positionality in their scholarship, the authors offer a three-pronged intersectional framework, with provocations about the onto-epistemic, sociohistoric, and sociocultural elements of positioning. Education researchers interested in conveying how intersectional oppressions effect knowledge production will find this framework useful for crafting positionality statements that consider the multidimensional nature of power, oppression, and research in relation to their field, the literature, and multiply marginalized participants. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
195. "Your double-blind RCT needs feminism": an argument for engaging critical theory in quantitative rehabilitation research.
- Author
-
Slade, Teri, Duebel, Erin, and Ryan, Jacalyn
- Subjects
DIVERSITY & inclusion policies ,EXPERIMENTAL design ,FEMINISM ,MATHEMATICAL models ,RESEARCH methodology ,QUANTITATIVE research ,CRITICAL theory ,THEORY of knowledge ,HEALTH outcome assessment ,RANDOMIZED controlled trials ,TREATMENT effectiveness ,THEORY ,DECISION making ,PHYSICAL therapy research ,OPTIMISM ,PAIN management - Abstract
Rehabilitation science has, for years, endorsed a connection between quantitative research and the philosophical assumptions of positivism. These assumptions can limit the scope of rehabilitation research, particularly in relation to matters of equity, diversity, and inclusivity. As our field moves toward a greater focus on inclusivity in research design and patient-centred care, it is imperative that we reconsider the theoretical foundations of rehabilitation research and practice. We provide an analysis of positivism on equity, diversity, and inclusivity within quantitative rehabilitation research, using the Participant Intervention Comparison Outcome (PICO) model to provide structure for the resultant discussion and recommendations. Our analysis reveals that there are significant limitations and ethical concerns to engaging in positivism as the primary paradigm for quantitative rehabilitation research. We argue that decoupling of positivism and quantitative research methods may be warranted. Equitable and inclusive rehabilitation research requires the researcher to consider variables which are neglected in the positivist paradigm. We argue that critical theory can equip researchers with a lens to better address injustices within rehabilitation research. We provide a series of recommendations for researchers to engage critical theory at each stage of the PICO model of clinical trials. Common assumptions in quantitative rehabilitation research (i.e., positivism) can limit the utility of research findings to rehabilitation patients. Equitable, diverse, and inclusive participant samples in research better reflect the diversity of real world rehabilitation patients, helping us better serve these populations. Critical theory can help researchers and clinicians identify and avoid interventions that may cause harm to rehabilitation patients. Research and practice that prioritize concepts of "normalcy" (i.e., "normal gait," "normal behaviours") may perpetuate negative concepts of disability and further marginalize the individuals that our interventions aim to serve. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
196. Citizenship, Pain, and Disability in Samuel Beckett’s Waiting for Godot
- Author
-
Mitchell Gauvin
- Subjects
Samuel Beckett ,citizenship ,disability ,disability studies ,cultural studies ,drama ,Literature (General) ,PN1-6790 - Abstract
Citizenship is popularly associated with able-bodiedness, both physically and cognitively. However, disability studies over the last few decades has revealed the extent to which the idea of the nation as composed of able-bodied constituents is little more than fantasy, one that can create or galvanize barriers to full political and social participation. Part of this task has involved re-evaluating key works of canonical literature through the lens of disability. In the following paper, I apply this approach to Samuel Beckett’s Waiting for Godot and argue that Beckett’s play disrupts not just the fantasy of a nation composed of able-bodied citizens but the language of able-bodiedness itself, which has implications for how we conceive of citizenship and participatory politics. While impairment has been critiqued in Beckett before, the extensive examples of pained and impaired characters in his works have often been subsumed under broader philosophical themes, such as existentialism, nihilism, or Cartesian dualism, and rarely linked to issues of citizenship, politics, or the social and built environment. I explore how Beckett’s approach to theatrical and linguistic performativity contributes to how he staged the experience of pain and disability that has implications for how we conceive of and practice citizenship.
- Published
- 2022
- Full Text
- View/download PDF
197. A School Story, Not a Student Story: The Dyslexic Diagnosis Paradigm in Children’s and Young Adult Literature
- Author
-
Leung, Elizabeth
- Published
- 2023
- Full Text
- View/download PDF
198. “It Is Like a Feeling”: Theorizing Emotion in Mathematics through Complex Embodiment
- Author
-
Castro, Rachel Lambert, David Hernández-Saca, Rebeca Mireles-Rios, and Marilyn Monroy
- Subjects
embodiment ,mathematics education ,disability studies ,emotion - Abstract
Conversations of educational equity in mathematics necessitate a more deliberate, nuanced look at the mathematical processes of learning for students of color from historically marginalized communities. This paper describes the theoretical work of a research collaborative that seeks to develop understanding of the experiences around mathematical identity of Latinas labeled with Learning Disabilities in mathematics classrooms. Expanding the theory of Complex Embodiment from Disability Studies, we explore new interdisciplinary theoretical and methodological tools to analyze the emotional, embodied experience of learning mathematics in the social worlds of mathematics classrooms, using emotional discourse. We take up theoretical and methodological practices around intersectionality through analysis of how power and positioning operate in mathematics identity development. We find that the young woman whose narratives we explore in this paper is positioned through deficit discourses around disability and multilingual learners, yet she understands herself through a positive mathematical affinity she shares with her mother. Over time, we see her narratives shift emotionally away from mathematics, as well as away from this connection with her mother. Her narratives help us develop a theoretical perspective that understands emotion in mathematics learning as both embodied and socially constructed.
- Published
- 2022
- Full Text
- View/download PDF
199. A Theoretical Model for the Implementation of Social Sustainability in the Synthesis of Tourism, Disability Studies, and Special-Needs Education
- Author
-
Eva Happ and Veronika Bolla
- Subjects
special-needs education ,Environmental effects of industries and plants ,Renewable Energy, Sustainability and the Environment ,social sustainability ,tourism ,theoretical model ,disability studies ,psychology of special needs ,sustainable development goals ,Geography, Planning and Development ,TJ807-830 ,Management, Monitoring, Policy and Law ,TD194-195 ,Renewable energy sources ,Environmental sciences ,GE1-350 - Abstract
This paper deals with the study of disability science, special-needs education, and psychology of special needs in the context of tourism. It is rare to find a link between these research areas in the literature. Accessible tourism has attracted widespread research interest in recent decades, but the number of studies focusing on tourism in the fields of disability studies, special-needs education, and psychology of special needs is very limited. Although there is growing literature on accessible tourism and related topics, the development of the research field is uneven, as most research focuses on specific subareas without considering the context of the whole spectrum of the topic. The interdisciplinary research aims to explore the situations of people with disabilities in terms of their participation in tourism. The data collected will be used to analyse the supply and demand side of tourism from a specific perspective. Among the external environmental impacts, the issue of sustainability will be highlighted, which will be addressed from a societal perspective by analysing the sustainable development goals (SDGs) related to the topic. The study includes a theoretical analysis through the processing of secondary sources, linking the fields of tourism, disability studies, special-needs education, and psychology of special needs, with the potential of social sustainability and the achievement of the SDGs. The paper presents a new model that illustrates the potential for achieving social sustainability from the supply and demand side of tourism. The model can be valuable, not only for those who want to extend their research into this new field, but also for tourism policy makers. The study also identifies key research questions on this topic that merit theoretical and empirical exploration in the future.
- Published
- 2022
200. The Blind Side of Art: Visual Impairment as a Resource in the Work of Mexican Artists
- Author
-
Monika Dubiel
- Subjects
disability studies ,art ,mexico ,resource ,visual impairment ,Ethnology. Social and cultural anthropology ,GN301-674 ,Sociology (General) ,HM401-1281 - Abstract
Disability studies is a dynamically developing discipline; however, it usually focuses on the Anglophone world. Scholars representing this field often concentrate on deconstructing popular stereotypes and revealing hidden systemic discrimination. Although more and more initiatives are taken up – such as disability pride – it seems that an affirmative approach to disability remains in the minority. This article is a proposal for going beyond the mentioned schemes. Entering the area of the Latin American culture, I try to verify whether the findings of disability studies can be confirmed there. Proposing the interpretation of dis-ability in terms of resource, I want to broaden the affirmative perspective on disability. This paper aims at a critical reflection on the creative potential of visual impairment used by blind and low-vision Mexican artists in the creative process. Driving upon the research conducted between 2020 and 2022, I argue that they use their visual impairment as a resource in their artistic activity. I distinguish four aspects of the functioning of visual impairment as a resource in artistic work: inspiration, representation, non-ocularcentric imagination, and accessibility.
- Published
- 2022
- Full Text
- View/download PDF
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