118 results
Search Results
2. Inequities in access to palliative and end-of-life care in the black population in Canada: a scoping review.
- Author
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Bassah, Nahyeni, Beranek, Julia, Kennedy, Megan, Onabadejo, Juliet, and Santos Salas, Anna
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HEALTH services accessibility ,HEALTH literacy ,PSYCHOLOGY of the terminally ill ,MEDICAL information storage & retrieval systems ,PALLIATIVE treatment ,HEALTH attitudes ,RESEARCH funding ,CINAHL database ,SYSTEMATIC reviews ,MEDLINE ,CAREGIVERS ,LITERATURE reviews ,MEDICAL databases ,HEALTH equity ,TERMINAL care ,BLACK Canadians ,PATIENTS' attitudes ,PSYCHOLOGY information storage & retrieval systems ,HOSPICE care ,RELIGIOUS leaders - Abstract
Background: Improving equity and early access to palliative care for underserved populations in Canada is a priority. Little is known regarding access to palliative and end-of-life care in the Black population. Methods: We undertook a scoping review using the framework by Arksey and O'Malley to identify knowledge, access gaps, and experiences of palliative and end-of-life care among Blacks living with life-limiting illnesses in Canada. Primary studies, discussion papers, books, and reports were considered eligible. We followed a comprehensive search strategy developed by an information scientist. Searches were performed in the following bibliographic databases: Medline, EMBASE, PsycINFO via OVID, CINAHL via EBSCOhost, Scopus and Cochrane Library via Wiley. The search strategy was derived from three main concepts: (1) Black people; (2) Canada and Canadian provinces; (3) Palliative, hospice, or end-of-life care. No publication date or language limits were applied. Titles and abstracts were screened for eligibility by one reviewer and full text by two independent reviewers. Results: The search yielded 233 articles. Nineteen articles were selected for full-text review, and 7 articles met the inclusion criteria. These studies were published between 2010 and 2021, and conducted in the provinces of Ontario and Nova Scotia only. Studies used both quantitative and qualitative methods and included cancer decedents, next of kin, family caregivers and religious leaders. Sample sizes in various studies ranged from 6 − 2,606 participants. Included studies reported a general lack of understanding about palliative and end-of-life care, positive and negative experiences, and limited access to palliative and end-of-life care for Blacks, across all care settings. Conclusion: Findings suggest limited knowledge of palliative care and inequities in access to palliative and end-of-life care for Blacks living with life-limiting illnesses in 2 Canadian provinces. There is an urgent need for research to inform tailored and culturally acceptable strategies to improve understanding and access to palliative care and end-of-life care among Blacks in Canada. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Leveraging built environment interventions to equitably promote health during and after COVID-19 in Toronto, Canada.
- Author
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Hassen, Nadha
- Subjects
SOCIALIZATION ,COVID-19 ,BUILT environment ,SOCIAL determinants of health ,MENTAL health ,SOCIAL classes ,ACCESSIBLE design ,STAY-at-home orders ,SOCIAL distancing ,HEALTH equity ,METROPOLITAN areas ,HOUSING ,HEALTH promotion ,TRANSPORTATION - Abstract
A key public health response to the COVID-19 pandemic is the mandate to stay home and practice physical distancing. In Canada, with essential activities such as grocery shopping, outdoor exercise and transportation, people need to be able to safely navigate dense, urban spaces while staying at least two metres or six feet apart. This pandemic has exacerbated the health inequities across neighbourhoods in cities like Toronto, Canada which are often segregated along racial and income lines. These inequities impact who has access to urban infrastructure that promotes health and quality of life. Safety in a time of COVID-19 goes beyond just exposure to the virus, it is complicated by notions of who belongs where, and who has access to what resources. The built environment has a role in maintaining and promoting physical and mental health during this pandemic and beyond it. This paper puts forwards three considerations for built environment interventions to promote health equitably: (i) addressing structural determinants of health and embedding anti-racist intersectional principles, (ii) revisiting tactical urbanism as a health promotion tool and (iii) rethinking community engagement processes through equity-based placemaking. This paper outlines four built environment interventions in Toronto, Canada that seek to address the challenges in navigating urban space safely in the short term, including street design that prioritizes pedestrians, protected cycling infrastructure, access to inclusive green space and safe, affordable housing. Longer-term strategies to create health-promoting urban environments that are equitable are discussed and may be valuable to other cities with similar urban equity concerns. [ABSTRACT FROM AUTHOR]
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- 2022
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4. Health equity related challenges and experiences during the rapid implementation of virtual care during COVID-19: a multiple case study.
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Shahid, Simone, Hogeveen, Sophie, Sky, Philina, Chandra, Shivani, Budhwani, Suman, de Silva, Ryan, Bhatia, R. Sacha, Seto, Emily, and Shaw, James
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HEALTH services accessibility ,HEALTH literacy ,HUMAN services programs ,QUALITATIVE research ,RESEARCH funding ,PRIMARY health care ,MEDICAL care ,DIGITAL health ,INTERVIEWING ,TELEMEDICINE ,THEMATIC analysis ,RESEARCH ,RESEARCH methodology ,CONCEPTUAL structures ,HEALTH equity ,CASE studies ,COVID-19 pandemic ,COMMUNITY-based social services ,PATIENT participation - Abstract
Background: Virtual care quickly became of crucial importance to health systems around the world during the COVID-19 pandemic. Despite the potential of virtual care to enhance access for some communities, the scale and pace at which services were virtualized did not leave many organizations with sufficient time and resources to ensure optimal and equitable delivery of care for everyone. The objective of this paper is to outline the experiences of health care organizations rapidly implementing virtual care during the first wave of the COVID-19 pandemic and examine whether and how health equity was considered. Methods: We used an exploratory, multiple case study approach involving four health and social service organizations providing virtual care services to structurally marginalized communities in the province of Ontario, Canada. We conducted semi-structured qualitative interviews with providers, managers, and patients to understand the challenges experienced by organizations and the strategies put in place to support health equity during the rapid virtualization of care. Thirty-eight interviews were thematically analyzed using rapid analytic techniques. Results: Organizations experienced challenges related to infrastructure availability, digital health literacy, culturally appropriate approaches, capacity for health equity, and virtual care suitability. Strategies to support health equity included the provision of blended models of care, creation of volunteer and staff support teams, participation in community engagement and outreach, and securement of infrastructure for clients. We put our findings into the context of an existing framework conceptualizing access to health care and expand on what this means for equitable access to virtual care for structurally marginalized communities. Conclusion: This paper highlights the need to pay greater attention to the role of health equity in virtual care delivery and situate that conversation around existing inequitable structures in the health care system that are perpetuated when delivering care virtually. An equitable and sustainable approach to virtual care delivery will require applying an intersectionality lens on the strategies and solutions needed to address existing inequities in the system. [ABSTRACT FROM AUTHOR]
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- 2023
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5. Understanding how and why upskilling programmes for unregulated care providers can support health equity in underserved communities: a realist review protocol.
- Author
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Hassan S, Rac VE, Hodges BD, Leake P, Cobbing S, Gray CM, Bartley N, Etherington A, Abdulwasi M, Cheung HK, Anderson M, and Woods NN
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- Humans, Foot, Amputation, Surgical, Canada, Review Literature as Topic, Health Equity, Diabetic Foot prevention & control
- Abstract
Introduction: Foot ulcers are one of the most devastating complications of diabetes mellitus leading to leg amputations. In Canada, systematically marginalised and racialised populations are more prone to developing foot ulcers and at higher risk of limb amputations. Shortages of regulated healthcare have hindered efforts to provide foot care. Upskilling unregulated care providers (UCPs) to deliver foot screening seems a reasonable solution to reduce limb loss. UCPs can advocate for health equity and deliver appropriate care. There is a need, however, to understand how and why an educational intervention for UCPs providing foot screening for these high-risk groups may or may not work., Methods and Analysis: This realist review will follow the Realist And Meta-narrative Evidence Syntheses: Evolving Standards standards. First, we will develop an initial programme theory (PrT) based on exploratory searches and discussions with experts and stakeholders. Then, we will search MEDLINE, Embase, PsycINFO, ERIC, CINAHL and Scopus databases along with relevant sources of grey literature. The retrieved articles will be screened for studies focusing on planned educational interventions for UCPs related to diabetic foot assessment. Data regarding contexts, mechanisms and outcomes will be extracted and analysed using a realist analysis through an iterative process that includes data reviewing and consultation with our team. Finally, we will use these results to modify the initial PrT., Ethics and Dissemination: Ethical approval is not required for this review. The main output of this research will be an evidence-based PrT for upskilling programmes for UCPs. We will share our final PrT using text, tables and infographics to summarise our results and draw insights across papers/reports. For academic, clinical, social care and educational audiences, we will produce peer-reviewed journal articles, including those detailing the process and findings of the realist review and establishing our suggestions for effective upskilling programmes., Prospero Registration Number: CRD42022369208., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2023
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6. Improving access to primary health care: a cross-case comparison based on an a priori program theory.
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Spooner, Catherine, Lewis, Virginia, Scott, Cathie, Dahrouge, Simone, Haggerty, Jeannie, Russell, Grant, Levesque, Jean-Frederic, Dionne, Emilie, Stocks, Nigel, and Harris, Mark F.
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ACCESS to primary care ,PROFESSIONAL practice ,EVALUATION of human services programs ,RESEARCH methodology ,THEORY-practice relationship ,HUMAN services programs ,AT-risk people ,HEALTH equity ,LOGIC ,MEDICAL needs assessment - Abstract
Background: Inequitable access to primary health care (PHC) remains a problem for most western countries. Failure to scale up effective interventions has been due, in part, to a failure to share the logic and essential elements of successful programs. The aim of this paper is to describe what we learned about improving access to PHC for vulnerable groups across multiple sites through use of a common theory-based program logic model and a common evaluation approach. This was the IMPACT initiative. Methods: IMPACT's evaluation used a mixed methods design with longitudinal (pre and post) analysis of six interventions. The analysis for this paper included four of the six sites that met study criteria. These sites were located in Canada (Alberta, Quebec and Ontario) and Australia (New South Wales). Using the overarching logic model, unexpected findings were reviewed, and alternative explanations were considered to understand how the mechanisms of each intervention may have contributed to results. Results: Each site addressed their local access problem with different strategies and from different starting points. All sites observed changes in patient abilities to access PHC and provider access capabilities. The combination of intended and observed consequences for consumers and providers was different at each site, but all sites achieved change in both consumer ability and provider capability, even in interventions where there was no activity targeting provider behaviors. Discussion: The model helped to identify, explore and synthesize intended and unintended consequences of four interventions that appeared to have more differences than similarities. Similar outcomes for different interventions and multiple impacts of each intervention on abilities were observed, implying complex causal pathways. Conclusions: All the interventions were a low-cost incremental attempt to address unmet health care needs of vulnerable populations. Change is possible; sustaining change may be more challenging. Access to PHC requires attention to both patient abilities and provider characteristics. The logic model proved to be a valuable heuristic tool for defining the objectives of the interventions, evaluating their impacts, and learning from the comparison of 'cases'. [ABSTRACT FROM AUTHOR]
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- 2021
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7. Medical Assistance in Dying: A Review of Related Canadian News Media Texts.
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Brassolotto, Julia, Manduca-Barone, Alessandro, and Zurbrigg, Paige
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ASSISTED suicide ,PUBLIC opinion ,FEDERAL legislation ,HEALTH equity - Abstract
Medical assistance in dying (MAiD) was legalized in Canada in 2016. Canadians' opinions on the service are nuanced, particularly as the legislation changes over time. In this paper, we outline findings from our review of representations of MAiD in Canadian news media texts since its legalization. These stories reflect the concerns, priorities, and experiences of key stakeholders and function pedagogically, shaping public opinion about MAiD. We discuss this review of Canadian news media on MAiD, provide examples of four key themes we identified (vulnerability, autonomy, dignity, and human rights), and discuss their implications for health policy and equity. Though key stakeholders share the values of autonomy, dignity, and human rights, they appeal to them in diverse ways, sometimes with conflicting policy demands. These representations offer a useful gauge of how views about MAiD continue to shift alongside changes in federal legislation. These stories can influence related policies, respond to the powerful voices that shape MAiD legislation, and have the potential to change national conversations. Our analysis adds to the existing body of scholarship on MAiD by examining post-Bill C-7 news media, identifying related health equity issues and tensions, and discussing potential impacts of MAiD's representations in news media. [ABSTRACT FROM AUTHOR]
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- 2023
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8. Toward equity-oriented cancer care: a Strategy for Patient-Oriented Research (SPOR) protocol to promote equitable access to lung cancer screening.
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Sayani, Ambreen, Manthorne, Jackie, Nicholson, Erika, Bloch, Gary, Parsons, Janet A., Hwang, Stephen W., Amenu, Bikila, Freedman, Howard, Rathbone, Marlene, Jeji, Tara, Wathen, Nadine, Browne, Annette J., Varcoe, Colleen, and Lofters, Aisha
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LUNG cancer ,EARLY detection of cancer ,MEDICAL personnel ,CANCER treatment ,PATIENT participation ,TELEMEDICINE - Abstract
Background: Screening for lung cancer with low dose CT can facilitate the detection of early-stage lung cancers that are amenable to treatment, reducing mortality related to lung cancer. Individuals are considered eligible for lung cancer screening if they meet specific high-risk criteria, such as age and smoking history. Population groups that are at highest risk of lung cancer, and therefore, the target of lung cancer screening interventions, are also the least likely to participate in lung cancer screening. This can lead to a widening of health inequities. Deliberate effort is needed to both reduce lung cancer risk (through upstream interventions that promote smoking cessation) as well as midstream interventions that promote equitable access to lung cancer screening. Methods: This protocol paper describes an equity-informed patient-oriented research study. Our study aims to promote equitable access to lung cancer screening by partnering with patients to co-design an e-learning module for healthcare providers. The learning module will describe the social context of lung cancer risk and promote access to lung cancer screening by increasing equity at the point of care. We have applied the Generative Co-Design Framework for Healthcare Innovation and detail our study processes in three phases and six steps: Pre-design (establishing a study governance structure); Co-design (identifying research priorities, gathering and interpreting data, co-developing module content); and Post-design (pilot testing the module and developing an implementation plan). Discussion: Patient engagement in research can promote the design and delivery of healthcare services that are accessible and acceptable to patients. This is particularly important for lung cancer screening as those at highest risk of developing lung cancer are also those who are least likely to participate in lung cancer screening. By detailing the steps of our participatory co-design journey, we are making visible the processes of our work so that they can be linked to future outcomes and related impact, and inform a wide range of patient co-led processes. Plain English summary: Lung cancer is the most commonly diagnosed cancer in Canada and is responsible for a quarter of all cancer-related deaths in the country. Screening for lung cancer using tools such as a CT scan can allow us to find lung cancers when they are still small and curable. People can receive a lung CT scan depending on how old they are and for how long they have smoked cigarettes. Certain groups of people, particularly those who have fewer resources such as time and money, and those who experience injustice because of who they are and how they look are less likely to participate in lung cancer screening. We can increase participation in lung cancer screening by educating healthcare providers on appropriate and timely ways to talk to patients about lung cancer screening. In this paper, we outline the steps of a patient-partnered study in which many different stakeholders such as patients, providers and policy-makers have come together with a goal to improve equity in access to lung cancer screening. We will do this by jointly creating an online learning module that will educate healthcare providers on how life experiences shape smoking behaviour and lung cancer risk. The module will also impart key skills on how to deliver care which is timely, appropriate and safe. Once the module is ready it will be freely available to all healthcare providers to support the fair and just delivery of lung cancer screening in the province of Ontario and elsewhere. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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9. Determinants of HIV vulnerability among heterosexual ACB men in Ottawa, Canada.
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Etowa, Josephine, Etowa, Egbe, Mbagwu, Ikenna, Habre, Ahmed, Addison, Hector, Essien, Eno A., and Inoua, Haoua
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HIV infection epidemiology ,RACISM ,UNEMPLOYMENT ,FOCUS groups ,HEALTH services accessibility ,PSYCHOLOGICAL vulnerability ,BLACK people ,SOCIAL stigma ,INTERVIEWING ,QUALITATIVE research ,STEREOTYPES ,HEALTH equity ,THEMATIC analysis ,AFRICAN Americans ,PSYCHOLOGICAL resilience - Abstract
Introduction: Although significant progress has been made in the fight against HIV/AIDS, structural factors continue to undermine this progress, especially among racialized populations in many countries. For instance, African, Caribbean and Black (ACB) men in Canada face barriers - such as unemployment, stigma, and racism - that increase their vulnerability to health-related events including HIV/AIDS. However, there is a paucity of culturally appropriate responses to address these factors within the ACB population in Canada. Hence, this paper sought to identify the structural barriers that increase the vulnerability of ACB heterosexual men to HIV, and the strategies for building resilience in response to HIV. Material and methods: This paper is based on the qualitative findings from the weSpeak project, which was a mixed-methods study informed by community-based participatory research (CBPR). Qualitative data were collected from 63 participants in Ottawa, Canada through focus group discussions (FGD) and in-depth interviews (IDI). The participants included ACB heterosexual men, service providers, and policy/decision-makers. All interviews were recorded, transcribed verbatim and analysed using NVivo Version 11. Results: The themes were: 1) systemic barriers to employment and income, 2) healthcare access and uptake, 3) stigma, discrimination and racism, 4) strategies for responding to HIV vulnerabilities. The participants highlighted the difficulties that new immigrants faced with recognition of their academic credentials, which then limits their income and job opportunities. Healthcare services were underutilized because of privacy issues, insufficient physicians and long waiting periods. Also, HIV-related stigma, anti-Black racism and stereotypes were factors that limited health and economic options for the participants. However, the participants acknowledged that health education, collaboration and engagement with faith-based leaders can reduce HIV vulnerabilities. Conclusions: The study highlights the role of structural factors in increasing HIV vulnerability among ACB heterosexual men, and the need for multilevel interventions to foster better a HIV response within the ACB community. [ABSTRACT FROM AUTHOR]
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- 2022
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10. Climate change and its impact on the mental health well‐being of Indigenous women in Western cities, Canada.
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Chapola, Jebunnessa, Datta, Ranjan, and Waucaush‐Warn, Jaime
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- *
MENTAL health , *INTERPROFESSIONAL relations , *MENTAL health services , *CLIMATE change , *INDIGENOUS women , *AT-risk people , *COMMUNITIES , *CRISIS intervention (Mental health services) , *EXPERIENCE , *INTERSECTIONALITY , *CONCEPTUAL structures , *HEALTH equity , *SOCIAL support , *WELL-being - Abstract
This collaborative paper explores the interconnections between climate change and the mental health and well‐being of Indigenous women in Western Canada. As the impacts of climate change intensify globally, vulnerable populations, particularly Indigenous communities, face disproportionate and multifaceted challenges. Centering on Indigenous women in Western Canada, this study explores how the climate crisis magnifies Indigenous communities' mental health disparities. Drawing from the Indigenist feminist research approach, the investigation focuses on Indigenous women's lived experiences, perceptions, and land‐based coping strategies amidst climate challenges, while simultaneously addressing the unique social, cultural, and historical factors influencing their mental health vulnerabilities within the context of climate change. The findings shed light on the complex relationships between environmental degradation, ongoing colonial impacts on traditional practices, and the mental well‐being of Indigenous women. Concluding with implications for policy and community‐led interventions, this research contributes to the discourse on the intersectionality of climate change impacts and mental health, particularly focusing on Indigenous women in Western Canada. [ABSTRACT FROM AUTHOR]
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- 2024
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11. A bibliometric analysis of Community Dentistry and Oral Epidemiology: Fifty years of publications.
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Nath, Sonia, Thomson, William Murray, Baker, Sarah R., and Jamieson, Lisa M.
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- *
DATABASES , *INTELLECT , *DENTAL public health , *COMPUTER software , *INTERPROFESSIONAL relations , *CITATION analysis , *POPULATION geography , *SPECIAL days , *BIBLIOMETRICS , *PUBLISHING , *MEDICAL research , *AUTHORS , *HEALTH equity , *ORAL health - Abstract
Objectives: In celebration of the journal's 50th anniversary, the aim of the study was to review the whole collection of Community Dentistry and Oral Epidemiology (CDOE) publications from 1973 to 2022 and provide a complete overview of the main publication characteristics. Methods: The study used bibliometric techniques such as performance and science mapping analysis of 3428 articles extracted from the Scopus database. The data were analysed using the 'Bibliometrix' package in R. The journal's scientific production was examined, along with the yearly citation count, the distribution of publications based on authors, the corresponding author's country and affiliation and citation count, citing source and keywords. Bibliometric network maps were constructed to determine the conceptual, intellectual and social collaborative structure over the past 50 years. The trending research topics and themes were identified. Results: The total number of articles and average citations has increased over the years. D Locker, AJ Spencer, A Sheiham and WM Thomson were the most frequently published authors, and PE Petersen, GD Slade and AI Ismail published papers with the highest citations. The most published countries were the United States, United Kingdom, Brazil and Canada, frequently engaging in collaborative efforts. The most common keywords used were 'dental caries', 'oral epidemiology' and 'oral health'. The trending topics were healthcare and health disparities, social determinants of health, systematic review and health inequalities. Epidemiology, oral health and disparities were highly researched areas. Conclusion: This bibliometric study reviews CDOE's significant contribution to dental public health by identifying key research trends, themes, influential authors and collaborations. The findings provide insights into the need to increase publications from developing countries, improve gender diversity in authorship and broaden the scope of research themes. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Collecting Race-Based Data in Health Research: A Critical Analysis of the Ongoing Challenges and Next Steps for Canada.
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Sheikh, Fatima, Fox-Robichaud, Alison E., and Schwartz, Lisa
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ACQUISITION of data ,PUBLIC health research ,CRITICAL analysis ,COMMUNITIES ,INDIGENOUS peoples - Abstract
Copyright of Canadian Journal of Bioethics / Revue canadienne de bioéthique is the property of Ecole de Sante Publique de l'Universite de Montreal and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2023
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13. Accelerating Health System Transformation through Research to Achieve the Quadruple Aim and Health Equity.
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McMahon M, Nadigel J, Thompson E, Shahid N, Kasaai B, Richard J, and Glazier RH
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- Canada, Delivery of Health Care, Government Programs, Humans, Health Equity
- Abstract
The Canadian Institutes of Health Research - Institute of Health Services and Policy Research's (IHSPR's) Strategic Plan 2021-2026: Accelerate Health Care System Transformation through Research to Achieve the Quadruple Aim and Health Equity for All (CIHR IHSPR 2021) outlines the Institute's key priority areas for investment and activity over the next five years. IHSPR used an evidence-informed strategic planning process that was pan-Canadian in scope and designed to elicit the health services and policy research priorities of decision makers, providers, researchers, patients, communities and the public. This paper outlines IHSPR's four key strategic priorities for supporting and optimizing research in transforming Canada's healthcare delivery systems over the next five years., (Copyright © 2022 Longwoods Publishing.)
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- 2022
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14. Inequity in Digital Health Planning in Canada.
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Affleck E
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- United States, Humans, Canada, Health Planning, Health Equity
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An evaluation of the paper by Falk (2022) in this issue using a word count method found that it omits consideration of substantial efforts, inherent data rights and experiences with virtual care from certain jurisdictions, professions and Indigenous groups. Although equity is positioned as a core policy pillar of virtual care, it is not defined, nor are factors underlying digital health inequity described. Deficits in health informatics training, regulation, pedagogy and research in Canada likely contribute to an inequitable approach to health informatics planning. A commitment to definitional rigour, taxonomic clarity and evidence-informed informatics will help promote digital health equity., (Copyright © 2022 Longwoods Publishing.)
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- 2022
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15. Frontiers of Bio-Decolonization: Indigenous Data Sovereignty as a Possible Model for Community-Based Participatory Genomic Health Research for Racialized Peoples in Postgenomic Canada.
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Valiani, Arafaat Amin
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INDIGENOUS peoples ,GENOMES ,RACIALIZATION ,HEALTH equity ,SOCIAL sciences - Abstract
This paper explores the manners in which Indigenous and allied non-Indigenous researchers, medical directors, and knowledge-keepers (among others) extend the ethical precepts and social justice commitments that are inherent in community-based participatory research (CBPR) approaches to genomics. By means of a genealogical analysis of bioethical discourses, I examine the problem in which genomic science claims to offer potentially beneficial genetic screening tools to Indigenous and racialized peoples who have and continue to struggle with historical health inequity, exploitation, and exclusion by the very biomedical institutions which would be charged with the task of ethically introducing these biomedical tools. This investigation focuses on Indigenous data sovereignty (IDS) as an approach established by Indigenous communities and scientists to gain access to the benefits of genomic health which, if the field's promises are true, aims to counter the historical neglect or exploitation by biomedical researchers and institutions. I chart the role of CBPR principals as it pertains to collective efforts by both Indigenous communities and non-Indigenous allies to create the social, biomedical, and institutional conditions to improve Indigenous health equity in the context of genomic science in two specific studies: the Silent Genome initiative (British Columbia) and the Aotearoa Variome (Aotearoa/New Zealand). This investigation contributes insights to social science literatures in health equity for racialized communities, biomedical ethics, Indigenous Science and Technology Studies, and decolonial biomedical and technoscience histories. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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16. Access to health care among racialised immigrants to Canada in later life: a theoretical and empirical synthesis.
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Lin, Shen
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RACISM ,IMMIGRANTS ,ONLINE information services ,HEALTH services accessibility ,SOCIAL determinants of health ,MINORITIES ,MEDICAL information storage & retrieval systems ,AGE distribution ,SYSTEMATIC reviews ,BLACK people ,ACCULTURATION ,ECOLOGICAL research ,CONCEPTUAL structures ,MEDICAL care use ,SOCIOECONOMIC factors ,HEALTH behavior ,HEALTH equity ,EMPIRICAL research ,WHITE people ,MEDLINE - Abstract
Evidence that immigrants tend to be underserved by the health-care system in the hosting country is well documented. While the impacts of im/migration on health-care utilisation patterns have been addressed to some extent in the existing literature, the conventional approach tends to homogenise the experience of racialised and White immigrants, and the intersecting power axes of racialisation, immigration and old age have been largely overlooked. This paper aims to consolidate three macro theories of health/behaviours, including Bronfenbrenner's ecological theory, the World Health Organization's paradigm of social determinants of health and Andersen's Behavioral Model of Health Service Use, to develop and validate an integrated multilevel framework of health-care access tailored for racialised older immigrants. Guided by this framework, a narrative review of 35 Canadian studies was conducted. Findings reveal that racial minority immigrants' vulnerability in accessing health services are intrinsically linked to a complex interplay between racial-nativity status with numerous markers of power differences. These multilevel parameters range from socio-economic challenges, cross-cultural differences, labour and capital adequacy in the health sector, organisational accessibility and sensitivity, inter-sectoral policies, to societal values and ideology as forms of oppression. This review suggests that, counteracting a prevailing discourse of personal and cultural barriers to care, the multilevel framework is useful to inform upstream structural solutions to address power imbalances and to empower racialised immigrants in later life. [ABSTRACT FROM AUTHOR]
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- 2022
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17. 'It's not just to treat everybody the same': A social justice framework for caring for larger patients in healthcare practice.
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Kanagasingam, Deana, Norman, Moss, and Hurd, Laura
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OBESITY ,BODY weight ,HEALTH services accessibility ,RESEARCH methodology ,ATTITUDES of medical personnel ,SOCIAL justice ,PREJUDICES ,INTERVIEWING ,PATIENTS' attitudes ,INTERSECTIONALITY ,PATIENT care ,MEDICAL practice ,HEALTH equity ,PATIENT-professional relations ,THEMATIC analysis ,ATTITUDES toward obesity ,CONSCIOUSNESS - Abstract
Drawing on semi‐structured interviews with larger bodied patients (n = 20) and their healthcare practitioners (n = 22) in Canada, this paper combines micro and macro approaches in outlining a social justice approach to caring for larger patients in healthcare practice. Theoretically, we draw upon structural competency and critical consciousness to address the question of how social justice is enacted, experienced, and understood in interactions between clinicians and larger patients. Our findings highlight four key themes that provide a framework for integrating social justice into healthcare practice: (1) an awareness of one's simultaneous experience of marginalisation and privilege in the clinical interaction; (2) navigating between additive and interactive understandings of intersectionality; (3) micro and macro approaches to change; and (4) straddling the line between equity and equality. The synergies in participants' perspectives across social identities suggests that the cultivation of social justice awareness potentially mitigates some blinders of privilege. Furthermore, practitioners' social justice orientation positively impacted patient experience, with most patients expressing appreciation for having their various histories of trauma and social challenges handled compassionately during appointments. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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18. Disparities in the prevalence of ADHD diagnoses, suspicion, and medication use between Flanders and Québec from the lens of the medicalization process.
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Brault, Marie-Christine, Degroote, Emma, and Van Houtte, Mieke
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- *
SOCIOLOGY , *PSYCHOLOGY of parents , *RESEARCH methodology , *PSYCHOLOGY of teachers , *ATTENTION-deficit hyperactivity disorder , *COMPARATIVE studies , *SCHOOLS , *DISEASE prevalence , *RESEARCH funding , *HEALTH equity - Abstract
The prevalence of Attention-Deficit/Hyperactivity Disorder (ADHD) diagnoses and medication use has increased over time around the world, but significant regional differences remain. This paper aims to determine and explain disparities in ADHD prevalence and medication use among school-aged children in two distinct school systems, in Flanders (Belgium) and Québec (Canada). We present detailed descriptive and comparative analyses of data from 35 schools, 114 teachers, and 1046 parents (children) that were collected as part of a comparative international project. The data concern teacher and parent suspicions, teachers' ratings of ADHD-related behaviors in children, teachers' views of medication use, and teachers' beliefs about ADHD. The results show that, compared with Flanders, Québec had significantly more children diagnosed with ADHD and more frequent suspicions of ADHD in children by teachers and parents. We refer to the conceptual, institutional, and interactional levels of medicalization to interpret our findings and conclude that social and cultural readings of children's behaviors differ greatly between regions. Medicalization of children's behaviors is more common in Québec than in Flanders. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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19. Decolonizing Digital Citizen Science: Applying the Bridge Framework for Climate Change Preparedness and Adaptation.
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Bhawra, Jasmin
- Subjects
CLIMATE change ,CITIZEN science ,CLIMATE change & health ,DECOLONIZATION ,PREPAREDNESS ,CLIMATE change denial - Abstract
Research has historically exploited Indigenous communities, particularly in the medical and health sciences, due to the dominance of discriminatory colonial systems. In many regions across Canada and worldwide, historical and continued injustices have worsened health among Indigenous Peoples. Global health crises such as climate change are most adversely impacting Indigenous communities, as their strong connection to the land means that even subtle changes in the environment can disproportionately affect local food and health systems. As we explore strategies for climate change preparedness and adaptation, Indigenous Peoples have a wealth of Traditional Knowledge to tackle specific climate and related health issues. If combined with digital citizen science, data collection by citizens within a community could provide relevant and timely information about specific jurisdictions. Digital devices such as smartphones, which have widespread ownership, can enable equitable participation in citizen science projects to obtain big data for mitigating and managing climate change impacts. Informed by a Two-Eyed Seeing approach, a decolonized lens to digital citizen science can advance climate change adaptation and preparedness efforts. This paper describes the 'Bridge Framework' for decolonizing digital citizen science using a case study with a subarctic Indigenous community in Saskatchewan, Canada. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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20. 'Doing' or 'using' intersectionality? Opportunities and challenges in incorporating intersectionality into knowledge translation theory and practice.
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Kelly, Christine, Kasperavicius, Danielle, Duncan, Diane, Etherington, Cole, Giangregorio, Lora, Presseau, Justin, Sibley, Kathryn M., and Straus, Sharon
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SOCIAL problems ,RACISM ,LABELING theory ,INTERDISCIPLINARY research ,SEXISM ,HEALTH services accessibility ,FEMINISM ,DEBATE ,BLACK people ,EVIDENCE-based medicine ,PUBLIC health ,SOCIAL justice - Abstract
Intersectionality is a widely adopted theoretical orientation in the field of women and gender studies. Intersectionality comes from the work of black feminist scholars and activists. Intersectionality argues identities such as gender, race, sexuality, and other markers of difference intersect and reflect large social structures of oppression and privilege, such as sexism, racism, and heteronormativity. The reach of intersectionality now extends to the fields of public health and knowledge translation. Knowledge translation (KT) is a field of study and practice that aims to synthesize and evaluate research into an evidence base and move that evidence into health care practice. There have been increasing calls to bring gender and other social issues into the field of KT. Yet, as scholars outline, there are few guidelines for incorporating the principles of intersectionality into empirical research. An interdisciplinary, team-based, national health research project in Canada aimed to bring an intersectional lens to the field of knowledge translation. This paper reports on key moments and resulting tensions we experienced through the project, which reflect debates in intersectionality: discomfort with social justice, disciplinary divides, and tokenism. We consider how our project advances intersectionality practice and suggests recommendations for using intersectionality in health research contexts. We argue that while we encountered many challenges, our process and the resulting co-created tools can serve as a valuable starting point and example of how intersectionality can transform fields and practices. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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21. Describing the characteristics and symptom profile of a group of urban patients experiencing socioeconomic inequity and receiving palliative care: a descriptive exploratory analysis.
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Moore, Harrison, Bablitz, Cara, Santos Salas, Anna, Morris, Heather, Sinnarajah, Aynharan, and Watanabe, Sharon M.
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HEALTH services accessibility ,PALLIATIVE treatment ,SECONDARY analysis ,RESEARCH funding ,SOCIOECONOMIC disparities in health ,SOCIOECONOMIC factors ,PILOT projects ,QUESTIONNAIRES ,SEX distribution ,DESCRIPTIVE statistics ,AGE distribution ,CHRONIC diseases ,RESEARCH methodology ,RESEARCH ,ECONOMIC impact ,TERMINAL care ,TERMINALLY ill ,HOUSING ,LENGTH of stay in hospitals ,HEALTH equity ,HOMELESSNESS ,COMMUNITY-based social services - Abstract
Background: Individuals experiencing socioeconomic inequity have worse health outcomes and face barriers to palliative and end-of-life care. There is a need to develop palliative care programs tailored to this underserved population. Objectives: To understand the characteristics and symptom profiles of a group of urban patients experiencing socioeconomic inequity and receiving palliative care. Design: Descriptive exploratory analysis of a patient dataset. The patient dataset was generated through a pilot research study with patients experiencing socioeconomic inequity and life-limiting illness who received a community-based palliative care intervention. Methods: The intervention took place over 1 year in the Palliative Care Outreach and Advocacy Team, a community-based urban palliative care clinic in Edmonton, Alberta, Canada, serving persons experiencing socioeconomic inequity. Participants had to be at least 18 years of age, be able to communicate in English, require palliative care for a life-limiting illness, and be able to consent to inclusion in the study. Results: Twenty-five participants were enrolled. Participants predominantly identified as male and Indigenous, experienced poverty and housing instability, and had metastatic cancer. Our participants rated their pain, shortness of breath, and anxiety as more severe than the broader community-based palliative care population in the same city. Most patients died in inpatient hospices (73%). Conclusion: Our analysis provides an in-depth picture of an understudied, underserved population requiring palliative care. Given the higher symptom severity experienced by participants, our analysis highlights the importance of person-centered palliative care. We suggest that socioeconomic inequity should be considered in patients with life-limiting illnesses. Further research is needed to explore palliative care delivery to those facing socioeconomic inequity. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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22. Using community-based participatory research methods to build the foundation for an equitable integrated health data system within a Canadian urban context.
- Author
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Fierheller, Dianne, Chu, Casey, D'Silva, Chelsea, Krishendeholl, Arvind, Arham, Abdul, Carter, Angela, Dias, Keddone, Francis, Isaac, Glasgow, Marcia, Malhotra, Gurpreet, Zenlea, Ian, and Rosella, Laura C.
- Subjects
MEDICAL care research ,HEALTH services accessibility ,SOCIAL determinants of health ,RESEARCH funding ,INTERPROFESSIONAL relations ,CONTENT analysis ,SURVEYS ,ELECTRONIC data interchange ,ACQUISITION of data ,ADULT education workshops ,HEALTH information systems ,SOCIODEMOGRAPHIC factors ,HEALTH equity ,DATA quality ,COVID-19 pandemic ,INTEGRATED health care delivery - Abstract
Health inequalities amplified by the COVID-19 pandemic have disproportionately affected racialized and equity-deserving communities across Canada. In the Municipality of Peel, existing data, while limited, illustrates that individuals from racialized and equity-deserving communities continue to suffer, receive delayed care, and die prematurely. In response to these troubling statistics, grassroots community advocacy has called on health systems leaders in Peel to work with community and non-profit organizations to address the critical data and infrastructure gaps that hinder addressing the social determinants of health in the region. To support these advocacy efforts, we used a community-based participatory research approach to understand how we might build a data collection ecosystem across sectors, alongside community residents and service providers, to accurately capture the data about the social determinants of health. This approach involved developing a community engagement council, defining the problem with the community, mapping what data is actively collected and what is excluded, and understanding experiences of sociodemographic data collection from community members and service providers. Guided by community voices, our study focused on sociodemographic data collection in the primary care context and identified which service providers use and collect these data, how data are used in their work, the facilitators and barriers to data use and collection. Additionally, we gained insight into how sociodemographic data collection could be respectful, safe, and properly governed from the perspectives of community members. From this study, we identify a set of eight recommendations for sociodemographic data collection and highlight limitations. This foundational community-based work will inform future research in establishing data governance in partnership with diverse and equity-deserving communities. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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23. Exploring the pharmacist's role in supporting newcomer international students and their families with the transition to the Canadian healthcare system including medication use: Protocol for a qualitative study.
- Author
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Aboelzahab, Yasmin H., Pinto, Andrew D., McCarthy, Lisa, and Dolovich, Lisa
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FOREIGN students ,TRANSITIONAL care ,PHARMACISTS ,MEDICAL personnel ,HEALTH equity - Abstract
Canada welcomes a large number of newcomers every year including international students and their families. The over 800,000 international students who arrived in Canada in 2022, are twice as likely to face difficulties in accessing healthcare services compared to those who were born in Canada. Lack of access to healthcare services may jeopardize their full participation in Canadian society. Pharmacists are highly accessible healthcare providers due to their regular contact with the public, extended working hours, and wide distribution of pharmacies. Given the expanding role of pharmacists in Canada, pharmacists can be a great resource for international newcomers to address their healthcare needs when transitioning to the Canadian healthcare system and exploring available services. In this study, we will explore how international students and their families, who make up a significant segment of newcomers to Canada each year, transition to Canada's healthcare system and identify their main challenges related to developing coping skills for managing diseases and navigating the complexities of prescription and nonprescription medication use. To do so, we will conduct virtual interviews with newcomer international students who have lived experience with transitioning to the Canadian healthcare system. This study will help understand the international student experience and identify how pharmacists can deliver a tailored package of pharmaceutical services to this population to best address their healthcare needs when transitioning to the Canadian healthcare system with the goal of reducing healthcare gaps and inequities. By exploring the healthcare challenges faced by these students, our findings will help pinpoint precise areas where pharmacists can practice to their full scope including medication management, patient education, and transitional care. Consequently, the study will offer detailed recommendations on how pharmacists can better support this population and thereby help alleviate the overall strain on the primary healthcare system. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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24. Distance between institutions of incarceration and procedural abortion facilities in Canada.
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Paynter, Martha and Heggie, Clare
- Subjects
- *
REPRODUCTIVE health services , *PREGNANT women , *IMPRISONMENT , *ABORTION clinics , *HEALTH equity , *HEALTH services accessibility - Abstract
People incarcerated in facilities for women and girls face barriers to accessing abortion, including unclear legislation, operational procedures, and distance. While medication abortion could mitigate distance barriers, prison is not a hospitable environment for medication abortion. Considering this limitation, this paper aimed to identify the distance from institutions of incarceration designated for women and girls to procedural abortion facilities in Canada. This study builds on an inventory of the 67 institutions of incarceration designated for women and girls across 13 provinces and territories in Canada, previously created by the authors. Procedural abortion facilities were identified using publicly available directories. Distances were calculated using Google Maps. The closest procedural abortion facility was identified for each institution, as well as the gestational age limit of each facility. Of the 67 institutions, 23 (34%) were located 0 to 10 km from a procedural abortion facility. Fourteen (21%) were located 10.1 to 20 km away. Ten (15%) were located 20.1 to 100 km away. Eleven were located 100.1 to 300 km away (16%). The remaining 9 (13%) were located between 300.1 and 738 km away. Distances ranged from 0.1 to 738 km. The greatest distances were among institutions in northern Canada. This paper identified a large range of distances between institutions of incarceration and procedural abortion facilities in Canada. Physical distance is only one measure of accessibility of abortion services. For incarcerated people, contextual factors including carceral policies and procedures present barriers to care, with significant impact on health equity. Distance between carceral institutions and procedural abortion facilities reduces equitable access to reproductive health services for incarcerated populations. Pregnant people should be protected from imprisonment to ensure reproductive autonomy. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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25. Examining global Indigenous community wellness worker models: a rapid review.
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Fitzpatrick, Kayla M., Sjoblom, Erynne, Puinean, Giulia, Robson, Heath, Campbell, Sandra M., Fayant, Bryan, and Montesanti, Stephanie
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SUCCESS ,HEALTH services accessibility ,MEDICAL care of indigenous peoples ,HUMAN services programs ,OCCUPATIONAL roles ,HEALTH ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,MATHEMATICAL models ,COMMUNITY health workers ,THEORY ,HEALTH equity ,PSYCHOSOCIAL factors - Abstract
Background: There is a growing interest in employing community wellness worker models in Indigenous populations to address inequities in healthcare access and outcomes, concerns about shortage in health and mental health human resources, and escalating burden of chronic and complex diseases driving significant increase in health services demand and costs. A thorough review of Indigenous community wellness worker models has yet to be conducted. This rapid review sought to outline the characteristics of a community wellness worker model in Indigenous contexts across the globe, detailing factors shaping implementation challenges and success. Methods: A rapid review of the international peer-reviewed and grey literature of OVID Medline, Global Index Medicus, Google, and Google Scholar was conducted from January to June 2022 for Indigenous community wellness/mental health worker models and comparative models. Articles were screened and assessed for eligibility. From eligible articles, data pertaining to study design and sample; description of the program, service, or intervention; model development and implementation; terminology used to describe workers; training features; job roles; funding considerations; facilitators and barriers to success; key findings; outcomes measured; and models or frameworks utilized were extracted. Data were synthesized by descriptive and pattern coding. Results: Twenty academic and eight grey literature articles were examined. Our findings resulted in four overarching and interconnected themes: (1) worker roles and responsibilities; (2) worker training, education, and experience; (3) decolonized approaches; and (4) structural supports. Conclusion: Community wellness worker models present a promising means to begin to address the disproportionately elevated demand for mental wellness support in Indigenous communities worldwide. This model of care acts as a critical link between Indigenous communities and mainstream health and social service providers and workers fulfill distinctive roles in delivering heightened mental wellness supports to community members by leveraging strong ties to community and knowledge of Indigenous culture. They employ innovative structural solutions to bolster their efficacy and cultivate positive outcomes for service delivery and mental wellness. Barriers to the success of community wellness worker models endure, including power imbalances, lack of role clarity, lack of recognition, mental wellness needs of workers and Indigenous communities, and more. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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26. Advancing health equity for Indigenous peoples in Canada: development of a patient complexity assessment framework.
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Sehgal, Anika, Henderson, Rita, Murry, Adam, Crowshoe, Lynden, and Barnabe, Cheryl
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PREVENTION of racism ,CONSENSUS (Social sciences) ,HEALTH literacy ,HEALTH services accessibility ,PSYCHOLOGICAL resilience ,VIOLENCE ,COMPUTER software ,MEDICAL care ,INTERVIEWING ,CULTURE ,JUDGMENT sampling ,EXPERIENCE ,PSYCHOLOGY ,SURVEYS ,EMAIL ,CONCEPTUAL structures ,LOGIC ,ABORIGINAL Canadians ,DELPHI method ,HEALTH of indigenous peoples - Abstract
Background: Indigenous patients often present with complex health needs in clinical settings due to factors rooted in a legacy of colonization. Healthcare systems and providers are not equipped to identify the underlying causes nor enact solutions for this complexity. This study aimed to develop an Indigenous-centered patient complexity assessment framework for urban Indigenous patients in Canada. Methods: A multi-phased approach was used which was initiated with a review of literature surrounding complexity, followed by interviews with Indigenous patients to embed their lived experiences of complexity, and concluded with a modified e-Delphi consensus building process with a panel of 14 healthcare experts within the field of Indigenous health to identify the domains and concepts contributing to health complexity for inclusion in an Indigenous-centered patient complexity assessment framework. This study details the final phase of the research. Results: A total of 27 concepts spanning 9 domains, including those from biological, social, health literacy, psychological, functioning, healthcare access, adverse life experiences, resilience and culture, and healthcare violence domains were included in the final version of the Indigenous-centered patient complexity assessment framework. Conclusions: The proposed framework outlines critical components that indicate the presence of health complexity among Indigenous patients. The framework serves as a source of reference for healthcare providers to inform their delivery of care with Indigenous patients. This framework will advance scholarship in patient complexity assessment tools through the addition of domains not commonly seen, as well as extending the application of these tools to potentially mitigate racism experienced by underserved populations such as Indigenous peoples. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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27. Sex Workers in Canada Face Unequal Access to Healthcare: A Systems Thinking Approach.
- Author
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Squires, Kaitlyn
- Subjects
SEX work ,HEALTH services accessibility ,GREY literature ,SOCIAL determinants of health ,INTERPROFESSIONAL relations ,HEALTH policy ,SYSTEMS theory ,DESCRIPTIVE statistics ,HEALTH equity ,MEDICAL needs assessment ,SOCIAL stigma ,MEDICAL care costs - Abstract
Objectives: Despite Canada's universal health system, sex workers across the country face an alarmingly high number of barriers when they seek to healthcare services. This has resulted in unmet healthcare needs and substantially poorer health outcomes than the general Canadian population. The objective of this study was to use a systems thinking approach to gain an in-depth understanding of the barriers sex workers face and how access could be improved. Methods: The analysis was conducted using a systems thinking methodology, which incorporates systems tools and inquiry processes. The methodology comprised 2 domains of inquiry: (1) Problem Landscape, (2) Solutions Landscape. Systems tools and methods, such as causal loop diagrams, iceberg diagram, and systems mapping, investigated the problem landscape for understanding the interconnected nature of the issue, alongside review of both published and gray literature. An environmental scan explored the current solutions landscape. These methods connected through systemic inquiry processes, including ongoing review and application of diverse perspectives, boundary judgments, interrelationships; enabled gaps and levers of change to be determined. Results: The main barriers sex workers face are stigma, criminalization, accessibility, and cost of healthcare. The stigma of sex work stems from otherization, paternalism, and moralistic, faith-based beliefs. The barriers unique to sex work are stigma and criminalization; both of which surface as avoidance, dislike, and/or fear of medical professionals. Five gaps each with a lever of change to improve access were identified: (1) Stigma – Collectivization and external collaboration, (2) Criminal status of sex work – Decriminalization, (3) Lack of adequate education - Improved healthcare professional training and anti-discriminatory health policies, (4) Lack of support – Increased community-based healthcare services, (5) Cost of healthcare – Universal coverage of "secondary" healthcare components. Conclusion: Through reducing the stigma surrounding sex work, making changes that improve the healthcare services that sex workers receive, and collaboration between involved parties, sex workers can be prevented from falling through the cracks of the Canadian healthcare system; lessening the health inequities sex workers face and improving their health outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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28. Assembling social determinants of health: COVID-19 vaccination inequities for international students in Canada.
- Author
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Zhao, Kedi and Bhuyan, Rupaleem
- Subjects
HEALTH services accessibility ,SOCIAL determinants of health ,SOCIAL workers ,GOVERNMENT policy ,SOCIAL justice ,COVID-19 vaccines ,FOREIGN students ,QUALITY of life ,HEALTH equity ,PUBLIC health ,PSYCHOSOCIAL factors ,WELL-being ,COVID-19 pandemic - Abstract
In this article, we apply theories of non-citizenship assemblage to conceptualise the dynamic relationship of social determinants of health for international students in Canada who face barriers to accessing COVID-19 vaccines and verifying their vaccination status. Social workers' roles in responding to and reducing these inequities are also discussed with attention to micro practice, meso service integration, and macro public policy advocacy. Through theorising assembled inequities emerging from Canada's COVID-19 vaccination policies, this article offers guidance for future social work research and practice towards promoting justice and equity for transnational populations who are often excluded from domestic social welfare programmes. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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29. Highlighting models of Indigenous leadership and self-governance for COVID-19 vaccination programmes.
- Author
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Clark, Katrina, Crooks, Kristy, Jeyanathan, Bavatharane, Ahmed, Fatima, Kataquapit, Gisele, Sutherland, Celine, Tsuji, Leonard J.S., Moriarity, Robert J., Spence, Nicholas D., Sekercioglu, Fatih, Liberda, Eric N., and Charania, Nadia A.
- Subjects
COVID-19 vaccines ,INDIGENOUS peoples ,VACCINE hesitancy ,VACCINATION status ,COVID-19 pandemic ,HEALTH equity ,INDIGENOUS children - Abstract
The COVID-19 pandemic has disproportionately impacted Indigenous populations worldwide placing much importance on rapid and equitable vaccination. Nevertheless, many Indigenous communities have reported high vaccine hesitancy and low COVID-19 vaccine uptake. This may be attributed to various factors, including a lack of support for Indigenous leadership efforts to protect their communities and the pervasive infodemic targeting First Nations Peoples. In August 2022, we hosted an international symposium to bring together Indigenous and non-Indigenous community leaders, clinicians, and researchers to discuss pandemic experiences and lessons learnt. This commentary highlights examples of harnessing Indigenous leadership and self-governance to design and deliver tailored community-based and culturally appropriate COVID-19 vaccination programmes that improved vaccine uptake in Australia and Canada. These case studies demonstrate that Indigenous social-governance systems need to be valued, respected, and upheld if we are to make meaningful efforts to address health inequities among Indigenous communities during future pandemics. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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30. Social prescribing in Canada: health promotion in action, 50 years after the Lalonde report.
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Mulligan, Kate, Card, Kiffer G., and Allison, Sandra
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HEALTH promotion ,MEDICAL care ,MEDICAL personnel ,NURSE prescribing ,HEALTH equity ,HEALTH ministers - Abstract
The Lalonde report, published in 1974 by the Canadian Minister of National Health and Welfare, broke ground for public health in Canada by acknowledging that the determinants of health are much broader than health care services. Fifty years later, this special issue of Health Promotion and Chronic Disease Prevention in Canada charts a clear path towards addressing upstream determinants of health through an emerging intervention called "social prescribing." Social prescribing connects patients with community resources tailored to their individual priorities, fostering a paradigm shift from a deficitbased to a strengths-based approach in health promotion. Part 1 of this issue covers the rapid growth and diverse applications of social prescribing across Canada, with targeted initiatives for various populations and interventions ranging from nature and arts to physical activity and social connectivity. Contributions from a wide range of partners, including researchers, health professionals and community members, explore the adaptability of social prescribing for different groups, underscore the role of community and lived experiences in research, and call for more studies on social prescribing's effectiveness and outcomes. Highlighted case studies demonstrate tangible benefits in health equity and access to social services. This issue not only reflects the current scope and impact of social prescribing in Canada but also sets the stage for its future development and integration into broader health practices. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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31. Defining the role of digital public health in the evolving digital health landscape: policy and practice implications in Canada.
- Author
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Iyamu, Ihoghosa, McKee, Geoffrey, Haag, Devon, and Gilbert, Mark
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DIGITAL health ,HEALTH policy ,DIGITAL transformation ,PUBLIC health ,HEALTH behavior ,SOCIAL determinants of health - Abstract
In this article, we argue that current digital health strategies across Canada do not appropriately consider the implications of digital technologies (DTs) for public health functions because they adopt a primarily clinical focus. We highlight differences between clinical medicine and public health, suggesting that conceptualizing digital public health (DPH) as a field distinct from, but related to, digital health is essential for the development of DTs in public health. Focussing on DPH may allow for DTs that deeply consider fundamental public health principles of health equity, social justice and action on the social and ecological determinants of health. Moreover, the digital transformation of health services catalyzed by the COVID-19 pandemic and changing public expectations about the speed and convenience of public health services necessitate a specific DPH focus. This imperative is reinforced by the need to address the growing role of DTs as determinants of health that influence health behaviours and outcomes. Making the distinction between DPH and digital health will require more specific DPH strategies that are aligned with emergent digital strategies across Canada, development of intersectoral transdisciplinary partnerships and updated competencies of the public health workforce to ensure that DTs in public health can improve health outcomes for all Canadians. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
32. Food budget ratio as an equitable metric for food affordability and insecurity: a population-based cohort study of 121 remote Indigenous communities in Canada.
- Author
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Guan, Jennifer and Wang, Jeremy C.-H.
- Subjects
BUDGET ,FOOD security ,FOOD prices ,PUBLIC health ,PRICES - Abstract
Background: Food insecurity is a public health issue for many regions globally, and especially Indigenous communities. We propose food budget ratio (FBR)—the ratio of food spending to after-tax income—as an affordability metric that better aligns with health equity over traditional price-focused metrics. Existing census and inflation monitoring programs render FBR an accessible tool for future affordability research. Methods: Public census and food pricing datasets from 2011 to 2021 were analyzed to evaluate food affordability for a cohort of 121 remote Indigenous communities in Canada (n = 80,354 persons as of March 2021). Trends in population-weighted versus community-weighted averages, inflation-adjusted mean price of the Revised Northern Food Basket (RNFB), and distributions of FBR, per-capita price of food, and per-capita after-tax income were calculated and compared to Canada at large. Results: Population-weighted versus community-weighted mean price of the RNFB differed by < 5% for most points in time, peaking at 17%. Mean raw price of the RNFB was relatively stable, while mean inflation-adjusted price of the RNFB decreased 19%. Mean and standard deviation in FBR trended downwards from (0.40; 0.21) in 2011 to (0.25; 0.10) in 2021, while the mean for Canada held stable at 0.10 ± 0.01. Mean and standard deviation in inflation-adjusted per-capita price of food fell from ($5,621; $493) to ($4,510; $243), while the Canada-wide mean rose from $2,189 to $2,567; values for per-capita after-tax income increased from ($17,384; $7,816) to ($21,661; $9,707), while the Canada-wide mean remained between $24,443 and $26,006. Current Nutrition North Canada (NNC) subsidy rates correlate closely with distance to nearest transportation hub (σ
XY = 0.68 to 0.70) whereas food pricing, after-tax income, and FBR correlate poorly with distance (σXY = -0.22 to 0.03). Conclusions: The FBR approach yields greater insights on food affordability compared to price-based results, while using readily available public datasets. Whereas 19% reductions in RNFB per-capita food price were observed, FBR decreased 63% yet remained 2.5 times the Canada-wide FBR. The reduction in FBR was driven both by the reduced price of food and a 25% increase in after-tax income. It is recommended that NNC consider FBR for performance measurement and setting subsidy rates. [ABSTRACT FROM AUTHOR]- Published
- 2024
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33. The Use of Patient Engagement as a Means to Improve Equitable Care for Patients with Chronic Obstructive Pulmonary Disease (COPD): A Literature Review.
- Author
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Martin, Jalesa and Sibbald, Shannon L.
- Subjects
PATIENT participation ,CHRONIC obstructive pulmonary disease ,LITERATURE reviews ,MEDICAL care ,MEDICAL personnel - Abstract
Chronic Obstructive Pulmonary Disease (COPD) is one of North America's most preventable non-communicable diseases and is the fifth leading cause of death in Canada. It is important that the care that is delivered to these patients is equitable, to help ensure that external social factors are not hindering their ability to receive adequate health care and successfully self-manage their disease. Patient engagement addresses the practitioner-patient relationship with the aim of increasing patient involvement in making decisions about their health care. This review was conducted to determine how patient engagement has been used in the delivery of equitable care for patients with COPD, including identifying best practices in the delivery of care to improve health outcomes. A search was conducted on Scopus, PubMed, and the Nursing and Allied Health database. Title and abstract results were briefly scanned, and articles that mentioned one to three of the main concepts--"COPD," "patient engagement," and "equitable healthcare"--were selected for full-text screening. Twenty-five articles were selected. Data extraction was done using a matrix, and data analysis was done thematically. Four main themes were identified and reported on. The impact of health inequities on patients with COPD is quite significant. Socioeconomic and environmental inequities appear to be the most significant contributors, highlighting the need for an approach that facilitates equitable healthcare delivery for these patients. Engagement strategies should consider whether enough perspectives are represented and ensure that patients are supported in sharing their stories. In addition, healthcare professionals should consider the perspective and experiences of their patients, while considering that they receive better care when clinicians listen to patients and acknowledge social determinants of health. Approaches to the delivery of equitable care should not focus on self-management and personal factors but take a social determinants of health approach. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
34. How initial policy responses to COVID-19 contributed to shaping dying at home preferences and care provision: key informant perspectives from Canada.
- Author
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Cherba, Maria, Funk, Laura, Scott, Erin, Salman, Bora, Rounce, Andrea, Mackenzie, Corey, Stajduhar, Kelli, Dujela, Carren, Krawczyk, Marian, and Cohen, S. Robin
- Subjects
COVID-19 pandemic ,HOME care services ,PUBLIC opinion ,NURSING home care ,HEALTH equity ,TERMINAL care - Abstract
Objectives: In response to COVID-19's first wave, provincial governments rapidly implemented several public health directives, including isolation measures and care facility visitor restrictions, which profoundly affected healthcare delivery at the end of life and dying experiences and perceptions. The objective of this study was to identify implications of early policy changes for dying at home. Methods: Analysis of interviews with 29 key informants with expertise in the policy and practice context of dying at home and care for those dying at home was conducted as part of a larger mixed-methods study on dying at home in Canada. Results: Initial pandemic policy responses, especially visitor restrictions and limitations to home care services, shaped dying at home in relation to three themes: (1) increasing preferences and demand for, yet constrained system ability to support dying at home; (2) reinforcing and illuminating systemic reliance on and need for family/friend caregivers and community organizations, while constraining their abilities to help people die at home; and (3) illuminating challenges in developing and implementing policy changes during a pandemic, including equity-related implications. Conclusion: This study contributes to broader understanding of the multifaceted impacts of COVID-19 policy responses in various areas within Canadian healthcare systems. Implications for healthcare delivery and policy development include (1) recognizing the role of family/friend caregivers and community organizations in end-of-life care, (2) recognizing health inequities at the end of life, and (3) considering possible changes in future end-of-life preferences and public attitudes about dying at home and responsibility for end-of-life care. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
35. Screening for poverty and related social determinants to improve knowledge of and links to resources (SPARK): development and cognitive testing of a tool for primary care.
- Author
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Adekoya, Itunuoluwa, Delahunty-Pike, Alannah, Howse, Dana, Kosowan, Leanne, Seshie, Zita, Abaga, Eunice, Cooney, Jane, Robinson, Marjeiry, Senior, Dorothy, Zsager, Alexander, Aubrey-Bassler, Kris, Irwin, Mandi, Jackson, Lois, Katz, Alan, Marshall, Emily, Muhajarine, Nazeem, Neudorf, Cory, and Pinto, Andrew D.
- Subjects
EXPERIMENTAL design ,SOCIAL determinants of health ,RESEARCH methodology ,RESEARCH methodology evaluation ,INTERVIEWING ,PRIMARY health care ,INTELLECT ,POVERTY ,COGNITIVE testing ,THEMATIC analysis - Abstract
Background: Healthcare organizations are increasingly exploring ways to address the social determinants of health. Accurate data on social determinants is essential to identify opportunities for action to improve health outcomes, to identify patterns of inequity, and to help evaluate the impact of interventions. The objective of this study was to refine a standardized tool for the collection of social determinants data through cognitive testing. Methods: An initial set of questions on social determinants for use in healthcare settings was developed by a collaboration of hospitals and a local public health organization in Toronto, Canada during 2011–2012. Subsequent research on how patients interpreted the questions, and how they performed in primary care and other settings led to revisions. We administered these questions and conducted in-depth cognitive interviews with all the participants, who were from Saskatchewan, Manitoba, Ontario, and Newfoundland and Labrador. Cognitive interviewing was used, with participants invited to verbalize thoughts and feelings as they read the questions. Interview notes were grouped thematically, and high frequency themes were addressed. Results: Three hundred and seventy-five individuals responded to the study advertisements and 195 ultimately participated in the study. Although all interviews were conducted in English, participants were diverse. For many, the value of this information being collected in typical healthcare settings was unclear, and hence, we included descriptors for each question. In general, the questions were understood, but participants highlighted a number of ways the questions could be changed to be even clearer and more inclusive. For example, more response options were added to the question of sexual orientation and the "making ends meet" question was completely reworded in light of challenges to understand the informal phrasing cited by English as a Second Language (ESL) users of the tool. Conclusion: In this work we have refined an initial set of 16 sociodemographic and social needs questions into a simple yet comprehensive 18-question tool. The changes were largely related to wording, rather than content. These questions require validation against accepted, standardized tools. Further work is required to enable community data governance, and to ensure implementation of the tool as well as the use of its data is successful in a range of organizations. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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36. Developing a Health Equity Impact Assessment 'Indigenous Lens Tool' to address challenges in providing equitable cancer screening for indigenous peoples.
- Author
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Jumah, Naana Afua, Kewayosh, Alethea, Downey, Bernice, Campbell Senese, Laura, and Tinmouth, Jill
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HEALTH impact assessment ,INDIGENOUS peoples ,ABORIGINAL Canadians ,EARLY detection of cancer ,TRUTH commissions ,MEDICAL screening - Abstract
Background: In spite of past efforts to increase screening uptake, the rates of screening-detectable cancers including breast, cervical, colorectal and lung are rising among Indigenous persons in Ontario compared to other Ontarians. The Ontario Ministry of Health has an equity framework, the Health Equity Impact Assessment (HEIA) Tool, that was developed to guide organizations in the provision of more equitable health and social services. Although the HEIA Tool identifies that the health of Indigenous persons may benefit from more equitable provision of health and social services, it provides very little specific guidance on how to apply the HEIA Tool in a culturally relevant way to policies and programs that may impact Indigenous peoples. Discussion: Guided by the Calls to Action from the Truth and Reconciliation Commission of Canada and the United Nations Declaration on the Rights of Indigenous Peoples, an Indigenous Lens Tool was developed through a collaborative and iterative process with stakeholders at Cancer Care Ontario and with representatives from Indigenous community-based organizations. The Indigenous Lens Tool consists of four scenarios, with supporting documentation that provide context for each step of the HEIA Tool and thereby facilitate application of the equity framework to programs and policies. The document is in no way meant to be comprehensive or representative of the diverse health care experiences of Indigenous peoples living in Canada nor the social determinants that surround health and well-being of Indigenous peoples living in Canada. Rather, this document provides a first step to support development of policies and programs that recognize and uphold the rights to health and well-being of Indigenous peoples living in Canada. Conclusions: The Indigenous Lens Tool was created to facilitate implementation of an existing health equity framework within Cancer Care Ontario (now Ontario Health). Even though the Indigenous Lens Tool was created for this purpose, the principles contained within it are translatable to other health and social service policy applications. [ABSTRACT FROM AUTHOR]
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- 2023
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37. Challenges in diagnosis and health care in polycystic ovary syndrome in Canada: a patient view to improve health care.
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Sydora, Beate C., Wilke, Michaelann S., McPherson, Maggie, Chambers, Sarah, Ghosh, Mahua, and Vine, Donna F.
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POLYCYSTIC ovary syndrome ,MEDICAL care ,DISEASE management ,MEDICAL consultation ,CARDIOVASCULAR diseases ,HEALTH equity ,MENSTRUATION disorders - Abstract
Background: Polycystic Ovary Syndrome (PCOS) is the most common endocrine-metabolic disorder affecting health and quality of life of those affected across the lifespan. We currently have limited evidence-based data on the experience of those living with PCOS in the health care system including diagnosis, health concerns and disease management. The aim of this study was to assess the perceptions of health status, health care experience and disease management support in those affected by PCOS in Alberta, Canada. Methods: An online questionnaire was completed via REDCap by individuals self-reporting a diagnosis of PCOS. Question categories included demographics, symptoms of PCOS and time to confirm a diagnosis, follow-up care, health concerns, and information resources. Descriptive statistics were used and thematic analyses was applied to open-response questions. Results: Responses from 194 participants living in Canada (93% in Alberta) were included. The average age was 34 ± 8 years and BMI was 35 ± 9. Menstrual irregularity was identified in 84% of respondents as the first symptom noticed and the primary reason for seeking a medical consultation. A PCOS diagnosis occurred on average 4.3 years following awareness of first symptoms and required consultation with more than one primary care provider for 57% of respondents. Half (53%) of respondents reported not receiving a referral to specialists for follow-up care and 70% were not informed about long-term health morbidity such as diabetes or cardiovascular disease. Most respondents (82%) did their own research about PCOS using on-line sources, academic literature and advice from peer support. The participant themes from open questions for improving health care included more resources and support, increased and reliable information, better education and training for clinicians, timely diagnosis, prompt referrals to specialists, and generally more compassion and empathy to the challenges faced by those managing their disease. Conclusion: Our findings highlight the health concerns and challenges in health care for those with PCOS. In Alberta, Canada we have identified major gaps in health care including a timely diagnosis, follow up care and supports, and multidisciplinary care. This evidence-based data can be used to inform development of pathways to improve the health care experience in those affected by PCOS. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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38. "We Make It Work Because We Must": Narrating the Creation of an Urban Indigenous Food Bank in London, Ontario, Canada.
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Richmond, Chantelle and Dokis, Brian
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FOOD banks ,NONPROFIT organizations ,HEALTH equity - Abstract
This research draws from a community-engaged methodology and qualitative interviews to narrate the creation and daily operations of an Indigenous food bank in London, Ontario, Canada. In-depth interviews (n = 10) with program leaders, volunteers, and recipients detailed the day-to-day operations, including where and how foods were collected and distributed, and a preliminary analysis of the meanings and challenges of the food bank. The key strengths of the food bank are its focus on cultural safety, provision of traditional foods, and its community-led approach. The limitations of the food bank relate to the structure of the workload and sustainability of program funding. Community-led research with Indigenous non-profit organizations, such as that presented here, offer approaches that are critically important for creating culturally relevant and inclusive data that can both explain and address Indigenous health inequities, and provide the evidence needed to advocate for change. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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39. Informing efforts beyond tailored promotional campaigns by understanding contextual factors shaping vaccine hesitancy among equity-deserving populations in Canada: an exploratory qualitative study.
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Nascimento, Lena G., Dubé, Ève, Burns, Kathleen E., Brown, Patrick, Calnan, Michael, Ward, Paul R., Filice, Eric, Herati, Hoda, Ike, Nnenna A. U., Rotolo, Bobbi, and Meyer, Samantha B.
- Subjects
RESEARCH ,COVID-19 ,IMMUNIZATION ,VACCINES ,COVID-19 vaccines ,RESEARCH methodology ,BLACK Canadians ,PUBLIC administration ,MEDICAL care ,FEAR ,INTERVIEWING ,QUALITATIVE research ,VACCINE hesitancy ,LGBTQ+ people ,DESCRIPTIVE statistics ,RESEARCH funding ,HEALTH equity ,POVERTY - Abstract
Background: Vaccine hesitancy exists on a continuum ranging between complete adherence and complete refusal due to doubts or concerns within a heterogeneous group of individuals. Despite widespread acknowledgement of the contextual factors influencing attitudes and beliefs shaping COVID-19 vaccine hesitancy, qualitative research with equity-deserving groups, accounting for unique lived experiences, remains a gap in the literature. We aim to identify and begin to understand and document the unique contextual factors shaping hesitancy by equity-deserving groups as it relates to relationships with government and health authorities. Methods: Participants were recruited and interviewed between Aug-Dec 2021. Semi-structured interviews using a convergent interviewing technique were conducted with individuals from the general population, as well as individuals who identify as First Nations, Métis, or Inuit, members of the LGBT2SQ + community, low-income Canadians, Black Canadians, and newcomers. Interviews were audio recorded and transcribed by a team of researchers. Memos were written following interviews and used to complement the thematic analysis of the interview data. Themes are presented in the results section. Results: The rationale for hesitancy among equity-deserving groups is consistent with literature documenting hesitancy in the general population. Contextual factors surrounding equity-deserving groups' attitudes and beliefs, however, are unique and relate to a history of oppression, discrimination, and genocide. We identified factors unique to subgroups; for example, religious or fatalistic beliefs among participant who identify as FNMI, fear associated with lack of testing and speed of vaccines' production among participants who identify as FNMI, Black, and LGBT2SQ + , distrust of the healthcare system for LGBT2SQ + and Black Canadians, and distrust of the government and opposition to vaccine mandates for participating who identify as LGBT2SQ + , low-income, FNMI, or Black Canadian. Newcomers stood out as very trusting of the government and accepting of COVID-19 vaccination. Conclusions: While our data on vaccine hesitancy largely mirror concerns reported in the vast body of literature citing rationale for COVID-19 hesitancy in high-income countries, the contextual factors identified in our work point to the need for wider systemic change. Our results may be used to support efforts, beyond tailored promotion campaigns, to support the confident acceptance of vaccines for COVID-19 and the acceptance of novel vaccines as future infectious diseases emerge. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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40. Multi-level strategies to improve equitable timely person-centred osteoarthritis care for diverse women: qualitative interviews with women and healthcare professionals.
- Author
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Gagliardi, Anna R., Abbaticchio, Angelina, Theodorlis, Madeline, Marshall, Deborah, MacKay, Crystal, Borkhoff, Cornelia M., Hazlewood, Glen Stewart, Battistella, Marisa, Lofters, Aisha, and Ahluwalia, Vandana
- Subjects
MEDICAL quality control ,HEALTH services accessibility ,PATIENT-centered care ,QUALITATIVE research ,OSTEOARTHRITIS ,RESEARCH funding ,HEALTH equity ,CONTENT analysis ,THEMATIC analysis ,EMOTIONS ,WOMEN'S health ,HEALTH self-care - Abstract
Background: Women are more likely to develop osteoarthritis (OA), and have greater OA pain and disability compared with men, but are less likely to receive guideline-recommended management, particularly racialized women. OA care of diverse women, and strategies to improve the quality of their OA care is understudied. The purpose of this study was to explore strategies to overcome barriers of access to OA care for diverse women. Methods: We conducted qualitative interviews with key informants and used content analysis to identify themes regarding what constitutes person-centred OA care, barriers of OA care, and strategies to support equitable timely access to person-centred OA care. Results: We interviewed 27 women who varied by ethno-cultural group (e.g. African or Caribbean Black, Chinese, Filipino, Indian, Pakistani, Caucasian), age, region of Canada, level of education, location of OA and years with OA; and 31 healthcare professionals who varied by profession (e.g. family physician, nurse practitioner, community pharmacist, physio- and occupational therapists, chiropractors, healthcare executives, policy-makers), career stage, region of Canada and type of organization. Participants within and across groups largely agreed on approaches for person-centred OA care across six domains: foster a healing relationship, exchange information, address emotions, manage uncertainty, share decisions and enable self-management. Participants identified 22 barriers of access and 18 strategies to overcome barriers at the patient- (e.g. educational sessions and materials that accommodate cultural norms offered in different languages and formats for persons affected by OA), healthcare professional- (e.g. medical and continuing education on OA and on providing OA care tailored to intersectional factors) and system- (e.g. public health campaigns to raise awareness of OA, and how to prevent and manage it; self-referral to and public funding for therapy, greater number and ethno-cultural diversity of healthcare professionals, healthcare policies that address the needs of diverse women, dedicated inter-professional OA clinics, and a national strategy to coordinate OA care) levels. Conclusions: This research contributes to a gap in knowledge of how to optimize OA care for disadvantaged groups including diverse women. Ongoing efforts are needed to examine how best to implement these strategies, which will require multi-sector collaboration and must engage diverse women. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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41. A systematic literature review of health disparities among rural people with epilepsy (RPWE) in the United States and Canada.
- Author
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Duke, Sean M., González Otárula, Karina A., Canales, Thomas, Lu, Elaine, Stout, Amber, Ghearing, Gena R., and Sajatovic, Martha
- Subjects
- *
HEALTH equity , *PEOPLE with epilepsy , *CITY dwellers , *SOCIOECONOMIC status - Abstract
• Epilepsy can be burdensome for patients, families, health systems, and society. • Health disparities of people with epilepsy can be worsened by living in rural areas. • Demographics and socioeconomic status drive the poor outcomes, not rurality per se. • Prospective studies with standard definitions of rural are needed. Epilepsy is a leading cause of global disease burden, with people with epilepsy (PWE) experiencing adverse health outcomes related to the psychiatric comorbidities and socioeconomic consequences of the disorder. Rural populations are more likely to be impoverished or uninsured, which could impact health outcomes for rural-dwelling PWE (RPWE). This systematic literature review identified original research studying health disparities and outcomes among RPWE in the United States and Canada to (1) characterize the disparities faced by RPWE and (2) elucidate the effects of these disparities upon clinical outcomes. We performed a systematic search of six electronic databases: Pubmed, Cochrane, PsychInfo, Web of Science, Scopus, and Ovid. Articles considered were original research reports conducted in Canada or the United States before August 2020. A modified Newcastle Ottawa Scale was used to assess the quality of the included studies. Our search returned 2093 articles that examined the health disparities of RPWE, of which six met criteria for this review. Outcome measures of health disparity included in these papers were mortality (2; 33%), use of health resources (2; 33%), and epilepsy prevalence (2; 33%). Only one paper (16%) concluded that RPWE experienced worse health outcomes relative to urban-dwelling PWE, while 5 (84%) found no difference. Our study did not find sufficient evidence that RPWE in the US and Canada experience significant health disparities compared to similar urban populations of PWE. More research using prospective studies and datasets allowing better characterization of rurality is required. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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42. Diabetic foot complications among Indigenous peoples in Canada: a scoping review through the PROGRESS-PLUS equity lens.
- Author
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Blanchette, Virginie, Patry, Jérôme, Brousseau-Foley, Magali, Todkar, Shweta, Libier, Solène, Leclerc, Anne-Marie, Armstrong, David G., and Tremblay, Marie-Claude
- Subjects
ABORIGINAL Canadians ,INDIGENOUS children ,FOOT ,DIABETIC foot ,LEG amputation ,CANADIAN Inuit ,PERIPHERAL vascular diseases - Abstract
Introduction: Indigenous peoples in Canada face a disproportionate burden of diabetes-related foot complications (DRFC), such as foot ulcers, lower extremity amputations (LEA), and peripheral arterial disease. This scoping review aimed to provide a comprehensive understanding of DRFC among First Nations, Métis, and Inuit peoples in Canada, incorporating an equity lens. Methods: A scoping review was conducted based on Arksey and O'Malley refined by the Joanna Briggs Institute. The PROGRESS-Plus framework was utilized to extract data and incorporate an equity lens. A critical appraisal was performed, and Indigenous stakeholders were consulted for feedback. We identified the incorporation of patient-oriented/centered research (POR). Results: Of 5,323 records identified, 40 studies were included in the review. The majority of studies focused on First Nations (92%), while representation of the Inuit population was very limited populations (< 3% of studies). LEA was the most studied outcome (76%). Age, gender, ethnicity, and place of residence were the most commonly included variables. Patient-oriented/centered research was mainly included in recent studies (16%). The overall quality of the studies was average. Data synthesis showed a high burden of DRFC among Indigenous populations compared to non-Indigenous populations. Indigenous identity and rural/remote communities were associated with the worse outcomes, particularly major LEA. Discussion: This study provides a comprehensive understanding of DRFC in Indigenous peoples in Canada of published studies in database. It not only incorporates an equity lens and patient-oriented/centered research but also demonstrates that we need to change our approach. More data is needed to fully understand the burden of DRFC among Indigenous peoples, particularly in the Northern region in Canada where no data are previously available. Western research methods are insufficient to understand the unique situation of Indigenous peoples and it is essential to promote culturally safe and quality healthcare. Conclusion: Efforts have been made to manage DRFC, but continued attention and support are necessary to address this population's needs and ensure equitable prevention, access and care that embraces their ways of knowing, being and acting. Systematic review registration: Open Science Framework https://osf.io/j9pu7, identifier j9pu7. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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43. Development of an individual index of social vulnerability that predicts negative healthcare events: a proposed tool to address healthcare equity in primary care research and practice.
- Author
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Haggerty, Jeannie, Minotti, Simona C., and Bouharaoui, Fatima
- Subjects
EXPERIMENTAL design ,STRUCTURAL equation modeling ,SOCIAL determinants of health ,SOCIAL support ,RESEARCH methodology ,PSYCHOLOGICAL vulnerability ,COMMUNICATIVE competence ,MEDICAL care ,PRIMARY health care ,ACADEMIC achievement ,SOCIOECONOMIC factors ,SOCIAL status ,RESEARCH funding ,PREDICTION models ,ADVERSE health care events ,HEALTH equity ,LOGISTIC regression analysis ,MEDICAL research - Abstract
Purpose: Socially disadvantaged patients may lack self-efficacy to navigate a complex health system making them vulnerable to healthcare inequity. We aimed to develop an Index of social vulnerability that predicts increased risk of negative healthcare events (e.g. emergency hospitalization), independent of chronic disease burden. The analysis illustrates the conceptual and practical steps leading to the development of a pragmatic Index of social vulnerability to limited healthcare self-efficacy. Methods: Using data from a 3-year cohort of 2507 adult primary care patients in Québec (Canada), we applied two complementary structural equation modelling approaches—Partial Least Squares Path Modelling (PLS-PM) and Multiple indicators and Multiple Causes (MIMIC) modelling—to identify a minimal set of social characteristics that could be summed into an Index related to limited healthcare self-efficacy. We then used logistic regression to determine if the Index predicted: hospital emergency department use; hospital admissions; unmet need for care, and others. We privileged parsimony over explanatory capacity in our analytic decisions to make the Index pragmatic for epidemiologic and clinical use. Results: The Individual Social Vulnerability Index is the weighted sum of five indicators: two indicators of social support; educational achievement; financial status; limited language proficiency. The Index predicts increased likelihood of all negative healthcare outcomes except unmet need, with a clear threshold at Index ≥ 2. The effect is independent of chronic disease burden. Conclusion: When social deficits outweigh social assets by two or more (Index ≥ 2), there is an increased risk of negative healthcare events beyond the risk attributable to poor health. The Index is a pragmatic tool to identify a minority of patients who will require additional support to receive equitable healthcare. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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44. Feasibility of a Virtual-Reality-Enabled At-Home Telerehabilitation Program for Stroke Survivors: A Case Study.
- Author
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Choukou, Mohamed-Amine, He, Elizabeth, and Moslenko, Kelly
- Subjects
STROKE patients ,TELEREHABILITATION ,RURAL development ,STROKE rehabilitation ,HEALTH equity - Abstract
Stroke rehabilitation is a lengthy procedure that is necessary for stroke recovery. However, stroke rehabilitation may not be readily available for patients who live rurally due to barriers such as transportation and expenses. This shortage in wearable technology, in turn, causes health disparity among the rural population, which was exacerbated by the COVID-19 pandemic restrictions. Telerehabilitation (TR) is a potential solution for stroke rehabilitation in rural areas. This one-case study aimed to examine the feasibility and safety of a technology-enabled at-home TR program for stroke survivors living in a rural area in Canada. A VR setup was installed successfully in the home of our participant. A tablet was also supplied for the TR program. Each program consisted of 24 sessions to be completed over a 12-week period. Our participant was assessed on day one using the Fugl-Meyer assessment, the Modified Ashworth Scale, the 10 m walk test, and the Mini-Mental State Exam. Three questionnaires were also completed, including the Motor Activity Log (MAL), the Stroke Index Scale (SIS), and the Treatment Self-Regulation Questionnaire. These assessments were completed thrice, on day 1, at week 6, and at week 12. The participant found the tablet and its accompanying exercises easy to use, with a few limitations. The participant found the VR system more challenging to manage independently as a lack of comfortability, the visual contrast during the first trials, and certain technical aspects of the technology created several functional barriers. Although some limitations with the technology were noted, this case study indicates that telerehabilitation is feasible under certain circumstances when used in conjunction with traditional rehabilitation services. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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45. Current Challenges and Disparities in the Delivery of Equitable Breast Cancer Care in Canada.
- Author
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Jackson, Emily B., Simmons, Christine E., and Chia, Stephen K.
- Subjects
CANCER treatment ,BREAST cancer ,PATIENT experience ,CANCER diagnosis ,HEALTH equity - Abstract
Recent exciting advances in the diagnosis and management of breast cancer have improved outcomes for Canadians diagnosed and living with breast cancer. However, the reach of this progress has been uneven; disparities in accessing care across Canada are increasingly being recognized and are at risk of broadening. Members of racial minority groups, economically disadvantaged individuals, or those who live in rural or remote communities have consistently been shown to experience greater challenges in accessing 'state of the art' cancer care. The Canadian context also presents unique challenges—vast geography and provincial jurisdiction of the delivery of cancer care and drug funding create significant interprovincial differences in the patient experience. In this commentary, we review the core concepts of health equity, barriers to equitable delivery of breast cancer care, populations at risk, and recommendations for the advancement of health equity in the Canadian cancer system. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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46. Beyond Mortality: The Social and Health Impacts of COVID-19 among Older (55+) BIPOC and LGBT Respondents in a Canada-Wide Survey.
- Author
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Beringer, Robert, de Vries, Brian, Gill, Paneet, and Gutman, Gloria
- Subjects
WELL-being ,SOCIAL determinants of health ,MINORITIES ,SOCIAL support ,PSYCHOLOGY of LGBTQ+ people ,RACE ,FAMILIES ,MENTAL health ,COMPARATIVE studies ,SURVEYS ,INCOME ,ABORIGINAL Canadians ,HEALTH behavior ,DESCRIPTIVE statistics ,RESEARCH funding ,INTERSECTIONALITY ,HEALTH impact assessment ,HEALTH equity ,COVID-19 pandemic ,BEHAVIOR modification ,CISGENDER people ,OLD age - Abstract
This study focused on the effects of the COVID-19 pandemic on the marginalized populations—specifically Black and Indigenous people as well as People of Color (BIPOC) compared to White older adults and LGBT individuals compared to heterosexual older adults. Data were derived from our national online survey of Canadians aged 55+, conducted from 10 August to 10 October 2020. The survey explored the influence of COVID-19 on lifestyle changes, well-being, and planning for the future. Our sample comprised 4292 respondents. We compared sets of dichotomous variables with White vs. BIPOC, LGBT vs. heterosexual, and LGBT White vs. LGBT BIPOC respondents. Significantly more BIPOC than White individuals reported changes in accessing food (44.3% vs. 33.2%) and in family income (53.9% vs. 38.9%) and fewer reported feeling accepted and happy, and more felt isolated and judged. Significantly more LGBT than heterosexual respondents reported changes in routines and in accessing social support, medical and mental health care and more feeling depressed, lonely, anxious, and sad. More LGBT–BIPOC than LGBT–White respondents reported changes in access to food (66.7 vs. 30.6, p < 0.001); in family income (66.7 vs. 41.5, p < 0.005); and in access to mental health care (38.5 vs. 24.0, p < 0.05). The only difference in emotional response to COVID-19 was that more BIPOC–LGBT than White–LGBT respondents reported feeling judged (25.9 vs. 14.5, p < 0.05). These findings reflect a complex mix of the effects of marginalization upon BIPOC and LGBT older adults, revealing both hardship and hardiness and warranting further research. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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47. Impact of safer supply programs on injection practices: client and provider experiences in Ontario, Canada.
- Author
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Gagnon, Marilou, Rudzinski, Katherine, Guta, Adrian, Schmidt, Rose A., Kryszajtys, David T., Kolla, Gillian, and Strike, Carol
- Subjects
INJECTIONS ,NEEDLE exchange programs ,HARM reduction ,DRUG toxicity ,HEALTH equity ,FENTANYL ,TREATMENT programs - Abstract
Objectives: Fentanyl has contributed to a sharp rise in the toxicity of the unregulated drug supply and fatal overdoses in Canada. It has also changed injection practices. Injection frequency has increased as a result and so has equipment sharing and health-related risks. The aim of this analysis was to explore the impact of safer supply programs on injection practices from the perspective of clients and providers in Ontario, Canada. Methods: The data set included qualitative interviews with 52 clients and 21 providers that were conducted between February and October 2021 across four safer supply programs. Interview excerpts discussing injection practices were extracted, screened, coded and then grouped into themes. Results: We identified three themes, each theme corresponding to a change in injection practices. The first change was a decrease in the amount of fentanyl used and a decrease in injection frequency. The second change involved switching to injecting hydromorphone tablets instead of fentanyl. Finally, the third change was stopping injecting altogether and taking safer supply medications orally. Conclusion: Safer supply programs can contribute to reducing injection-related health risks in addition to overdose risks. More specifically, they have the potential to address disease prevention and health promotion gaps that stand-alone downstream harm reduction interventions cannot address, by working upstream and providing a safer alternative to fentanyl. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
48. Immigrants' Experience of Health Care Access in Canada: A Recent Scoping Review.
- Author
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Tsai, Pei-Ling and Ghahari, Setareh
- Subjects
IMMIGRANTS ,CINAHL database ,CULTURE ,HEALTH services accessibility ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,COMMUNICATION barriers ,PATIENTS' attitudes ,SOCIOECONOMIC factors ,HEALTH literacy ,HEALTH equity ,LITERATURE reviews ,MEDLINE ,THEMATIC analysis ,MEDICAL needs assessment - Abstract
Existing literature has reported inequities in access to Canadian health care services among immigrants. The aim of this scoping review was (a) to explore research regarding Canadian immigrants' unique experiences in accessing healthcare, and (b) to provide suggestions for future research and programming considering the identified immigrant-specific service gaps in health care. We searched MEDLINE, CINAHL, EMBASE, and Google Scholar, following the Arksey and O'Malley (2005) framework. The review's findings suggest unmet health care access needs specific to immigrants in Canada, with the most common access barriers including communication, socioeconomic, and cultural barriers. The scoping review expands on the immigrant health care experiences and accessibility factors through a thematic analysis. Findings suggest that developing community-based programming, improving training for health care providers in culturally competent care, and policies that address the social determinants of health can improve health care accessibility among immigrants. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
49. Dental health status, dentist visiting, and dental insurance of Asian immigrants in Canada.
- Author
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Li, Qianqian, Wang, Yu, Knight, John C., Yi, Yanqing, Ozbek, Sara, Shariati, Matin, Wang, Peizhong Peter, and Zhu, Yun
- Subjects
IMMIGRANTS ,DENTAL insurance ,ORAL health ,MULTIPLE regression analysis ,HEALTH status indicators ,DENTAL care ,MEDICAL care use ,DESCRIPTIVE statistics ,RESEARCH funding ,ODDS ratio ,HEALTH equity - Abstract
Objective: This study examined the dental care utilization and self-preserved dental health of Asian immigrants relative to non-immigrants in Canada. Factors associated with oral health-related disparities between Asian immigrants and other Canadians were further examined. Methods: We analyzed 37,935 Canadian residents aged 12 years and older in the Canadian Community Health Survey 2012–2014 microdata file. Factors (e.g., demographics, socioeconomic status, lifestyles, dental insurance coverage, and year of immigration) associated with disparities in dental health (e.g., self-perceived teeth health, dental symptoms during past one month, and teeth removed due to decay in past one year) and service utilization (e.g., visiting dentist within the last three years, visiting dentist more than once per year) between Asian immigrants and other Canadians were examined using multi-variable logistic regression models. Results: The frequency of dental care utilization was significantly lower in Asian immigrants than their non-immigrant counterparts. Asian immigrants had lower self-perceived dental health, were less likely to be aware of recent dental symptoms, and more likely to report tooth extractions due to tooth decay. Low education (OR = 0.42), male gender(OR = 1.51), low household income(OR = 1.60), non-diabetes(OR = 1.87), no dental insurance(OR = 0.24), short immigration length (OR = 1.75) may discourage Asian immigrants from dental care utilization. Additionally, a perceived lack of necessity to dentist-visiting was a crucial factor accounting for the disparities in dental care uptake between Asian immigrants and non-immigrants. Conclusion: Asian immigrants showed lower dental care utilization and oral health than native-born Canadians. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
50. An action-oriented public health framework to reduce financial strain and promote financial wellbeing in high-income countries.
- Author
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Nykiforuk, Candace I. J., Belon, Ana Paula, de Leeuw, Evelyne, Harris, Patrick, Allen-Scott, Lisa, Atkey, Kayla, Glenn, Nicole M., Hyshka, Elaine, Jaques, Karla, Kongats, Krystyna, Montesanti, Stephanie, Nieuwendyk, Laura M., Pabayo, Roman, Springett, Jane, and Yashadhana, Aryati
- Subjects
WELL-being ,CULTURE ,DEVELOPED countries ,NONPROFIT organizations ,EVALUATION of human services programs ,PUBLIC health ,CONCEPTUAL structures ,HUMAN services programs ,OFFICE politics ,SOCIOECONOMIC factors ,FINANCIAL stress ,INTELLECT ,GOVERNMENT agencies ,INTERPROFESSIONAL relations ,QUESTIONNAIRES ,INTERSECTIONALITY ,DESCRIPTIVE statistics ,RESEARCH funding ,QUALITY of life ,FINANCIAL management ,HEALTH equity ,ADULT education workshops ,CORPORATE culture - Abstract
Background: Perceived financial security impacts physical, mental, and social health and overall wellbeing at community and population levels. Public health action on this dynamic is even more critical now that the COVID-19 pandemic has exacerbated financial strain and reduced financial wellbeing. Yet, public health literature on this topic is limited. Initiatives targeting financial strain and financial wellbeing and their deterministic effects on equity in health and living conditions are missing. Our research-practice collaborative project addresses this gap in knowledge and intervention through an action-oriented public health framework for initiatives targeting financial strain and wellbeing. Methods: The Framework was developed using a multi-step methodology that involved review of theoretical and empirical evidence alongside input from a panel of experts from Australia and Canada. In an integrated knowledge translation approach, academics (n = 14) and a diverse group of experts from government and non-profit sectors (n = 22) were engaged throughout the project via workshops, one-on-one dialogues, and questionnaires. Results: The validated Framework provides organizations and governments with guidance for the design, implementation, and assessment of diverse financial wellbeing- and financial strain-related initiatives. It presents 17 priority actionable areas (i.e., entry points for action) likely to have long-lasting, positive effects on people's financial circumstances, contributing to improved financial wellbeing and health. The 17 entry points relate to five domains: Government (All Levels), Organizational & Political Culture, Socioeconomic & Political Context, Social & Cultural Circumstances, and Life Circumstances. Conclusions: The Framework reveals the intersectionality of root causes and consequences of financial strain and poor financial wellbeing, while also reinforcing the need for tailored actions to promote socioeconomic and health equity for all people. The dynamic, systemic interplay of the entry points illustrated in the Framework suggest opportunities for multi-sectoral, collaborative action across government and organizations towards systems change and the prevention of unintended negative impacts of initiatives. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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