1. To donate, or not to donate, that is the question: Latino insights into brain donation
- Author
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Paredes, Alejandra Morlett, Guareña, Lesley A, Stickel, Ariana M, Schairer, Cynthia E, and González, Hector M
- Subjects
Biomedical and Clinical Sciences ,Biological Psychology ,Clinical Sciences ,Neurosciences ,Psychology ,Clinical Research ,Acquired Cognitive Impairment ,Dementia ,Neurodegenerative ,Brain Disorders ,Aging ,Behavioral and Social Science ,Alzheimer's Disease ,Minority Health ,Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD) ,8.3 Policy ,ethics ,and research governance ,Neurological ,Humans ,Middle Aged ,Brain ,Health Knowledge ,Attitudes ,Practice ,Hispanic or Latino ,Surveys and Questionnaires ,Tissue and Organ Procurement ,Alzheimer's disease ,autopsy ,brain donation ,Latinos ,Hispanic ,qualitative analyses ,Latinos/Hispanic ,Geriatrics ,Clinical sciences ,Biological psychology - Abstract
IntroductionLatinos are underrepresented in brain autopsy research on Alzheimer's disease and related dementias (ADRD). The study's purpose is to identify Latinos' attitudes about brain donation (BD) to inform methods by which researchers can increase autopsy consent.MethodsForty Latinos (mean age: 59.4 years) completed a semi-structured interview and were presented with educational information about BD. Participants completed a questionnaire assessing their understanding of BD and willingness to donate their brain for research.ResultsAmong participants, there was near unanimous support for BD to study ADRD after hearing educational information. However, prior to the information presented, participants reported a lack of knowledge about BD and demonstrated a possibility that misunderstandings about BD may affect participation.DiscussionWhile nearly all study participants agree that donating is beneficial for research and for future generations, the lack of BD information must be addressed to help support positive attitudes and willingness for participation.
- Published
- 2023