637 results
Search Results
2. The AI cycle of health inequity and digital ageism: mitigating biases through the EU regulatory framework on medical devices.
- Author
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Kolfschooten, Hannah van
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HEALTH equity ,MEDICAL equipment ,AGEISM ,ARTIFICIAL intelligence ,ELECTRONIC paper ,HEALTH of older people - Abstract
The use of Artificial Intelligence (AI) medical devices is rapidly growing. Although AI may benefit the quality and safety of healthcare for older adults, it simultaneously introduces new ethical and legal issues. Many AI medical devices exhibit age-related biases. The first part of this paper explains how 'digital ageism' is produced throughout the entire lifecycle of medical AI and may lead to health inequity for older people: systemic, avoidable differences in the health status of different population groups. This paper takes digital ageism as a use case to show the potential inequitable effects of AI, conceptualized as the 'AI cycle of health inequity'. The second part of this paper explores how the European Union (EU) regulatory framework addresses the issue of digital ageism. It argues that the negative effects of age-related bias in AI medical devices are insufficiently recognized within the regulatory framework of the EU Medical Devices Regulation and the new AI Act. It concludes that while the EU framework does address some of the key issues related to technical biases in AI medical devices by stipulating rules for performance and data quality, it does not account for contextual biases, therefore neglecting part of the AI cycle of health inequity. [ABSTRACT FROM AUTHOR]
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- 2023
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3. Advancing Digital Health Equity: A Policy Paper of the Infectious Diseases Society of America and the HIV Medicine Association.
- Author
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Wood, Brian R, Young, Jeremy D, Abdel-Massih, Rima C, McCurdy, Lewis, Vento, Todd J, Dhanireddy, Shireesha, Moyer, Kay J, Siddiqui, Javeed, and Scott, John D
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COMMUNICABLE diseases , *MEDICAL informatics , *SOCIAL determinants of health , *MEDICAL quality control , *HEALTH policy , *OUTPATIENT medical care , *HIV infections , *TELEMEDICINE , *HEALTH equity , *COVID-19 pandemic - Abstract
The severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic has revolutionized the practice of ambulatory medicine, triggering rapid dissemination of digital healthcare modalities, including synchronous video visits. However, social determinants of health, such as age, race, income, and others, predict readiness for telemedicine and individuals who are not able to connect virtually may become lost to care. This is particularly relevant to the practice of infectious diseases (ID) and human immunodeficiency virus (HIV) medicine, as we care for high proportions of individuals whose health outcomes are affected by such factors. Furthermore, delivering high-quality clinical care in ID and HIV practice necessitates discussion of sensitive topics, which is challenging over video without proper preparation. We describe the "digital divide," emphasize the relevance to ID and HIV practice, underscore the need to study the issue and develop interventions to mitigate its impact, and provide suggestions for optimizing telemedicine in ID and HIV clinics. [ABSTRACT FROM AUTHOR]
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- 2021
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4. Epigenetic clocks and research implications of the lack of data on whom they have been developed: a review of reported and missing sociodemographic characteristics.
- Author
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Watkins, Sarah Holmes, Testa, Christian, Chen, Jarvis T, Vivo, Immaculata De, Simpkin, Andrew J, Tilling, Kate, Roux, Ana V Diez, Smith, George Davey, Waterman, Pamela D, Suderman, Matthew, Relton, Caroline, and Krieger, Nancy
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EPIGENETICS ,SOCIAL determinants of health ,PHENOTYPES - Abstract
Epigenetic clocks are increasingly being used as a tool to assess the impact of a wide variety of phenotypes and exposures on healthy ageing, with a recent focus on social determinants of health. However, little attention has been paid to the sociodemographic characteristics of participants on whom these clocks have been based. Participant characteristics are important because sociodemographic and socioeconomic factors are known to be associated with both DNA methylation variation and healthy ageing. It is also well known that machine learning algorithms have the potential to exacerbate health inequities through the use of unrepresentative samples – prediction models may underperform in social groups that were poorly represented in the training data used to construct the model. To address this gap in the literature, we conducted a review of the sociodemographic characteristics of the participants whose data were used to construct 13 commonly used epigenetic clocks. We found that although some of the epigenetic clocks were created utilizing data provided by individuals from different ages, sexes/genders, and racialized groups, sociodemographic characteristics are generally poorly reported. Reported information is limited by inadequate conceptualization of the social dimensions and exposure implications of gender and racialized inequality, and socioeconomic data are infrequently reported. It is important for future work to ensure clear reporting of tangible data on the sociodemographic and socioeconomic characteristics of all the participants in the study to ensure that other researchers can make informed judgements about the appropriateness of the model for their study population. [ABSTRACT FROM AUTHOR]
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- 2023
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5. Addressing health inequalities in the United Kingdom: a case study*A previous draft of this paper was presented at a workshop entitled ‘Health Equity Research: Beyond the Sound of One Hand Clapping’, held at the Rockefeller Conference Center, ...
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Oliver, Adam and Nutbeam, Don
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HEALTH , *HEALTH equity , *GOVERNMENT policy - Abstract
Health inequalities research has a long history in the United Kingdom, and the development of government policies that are intended to explicitly address the existing health inequalities has been gathering pace since the Labour Party returned to power in 1997. In this paper, using the influential Acheson Report as a reference point, one of us (D.N.) describes how health inequalities policies have been developed, and the other (A.O.) assesses how, ideally, such policies ought to be developed. Although progress in the development of health inequalities policies has been made, the policies, and the evidence that has informed them, have been less than ideal. [ABSTRACT FROM PUBLISHER]
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- 2003
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6. Session 4340 (Paper): BLACK CAREGIVERS' HEALTH.
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AFRICAN American caregivers ,CARE of dementia patients ,SOCIAL networks ,AFRICAN American churches ,HEALTH outcome assessment ,HEALTH equity ,WORSHIP ,AFRICAN American families - Published
- 2021
7. Session 4450 (Paper): SOCIAL AND HEALTH EQUITY.
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HEALTH equity ,GERIATRICS ,PALLIATIVE treatment ,OLDER people ,CORONAVIRUS diseases ,HEALTH services accessibility ,PATIENT-centered care - Published
- 2021
8. Aiming for transformations in power: lessons from intersectoral CBPR with public housing tenants (Québec, Canada).
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Radziszewski, Stephanie, Houle, Janie, Montiel, Corentin, Fontan, Jean-Marc, Torres, Juan, Frolich, Kate, Boivin, Antoine, Coulombe, Simon, and Gaudreau, Hélène
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PUBLIC housing , *POWER (Social sciences) , *QUALITATIVE research , *SELF-efficacy , *RESEARCH funding , *FIELDWORK (Educational method) , *INTERVIEWING , *FIELD notes (Science) , *SCIENTIFIC observation , *CONTENT analysis , *REFLECTION (Philosophy) , *INSTITUTIONAL cooperation , *EXPERIENCE , *ACTION research , *CONCEPTUAL structures , *FIELD research , *RESEARCH methodology , *COMMUNICATION , *HEALTH equity , *COMMUNITY services , *CASE studies , *COMMUNITY health workers , *HEALTH promotion , *COMPARATIVE studies , *INTERPERSONAL relations , *POVERTY , *PSYCHOSOCIAL factors , *COVID-19 pandemic - Abstract
Intersectoral collaborations are recommended as effective strategies to reduce health inequalities. People most affected by health inequalities, as are people living in poverty, remain generally absent from such intersectoral collaborations. Community-based participatory research (CBPR) projects can be leveraged to better understand how to involve people with lived experience to support both individual and community empowerment. In this paper, we offer a critical reflection on a CBPR project conducted in public housing in Québec, Canada, that aimed to develop intersectoral collaboration between tenants and senior executives from four sectors (housing, health, city and community organizations). This single qualitative case study design consisted of fieldwork documents, observations and semi-structured interviews. Using the Emancipatory Power Framework (EPF) and the Limiting Power Framework (LPF), we describe examples of types of power and resistance shown by the tenants, the intersectoral partners and the research team. The discussion presents lessons learned through the study, including the importance for research teams to reflect on their own power, especially when aiming to reduce health inequalities. The paper concludes by describing the limitations of the analyses conducted through the EPF–LPF frameworks and suggestions to increase the transformative power of future studies. [ABSTRACT FROM AUTHOR]
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- 2024
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9. How to do (or not to do)...how to embed equity in the conduct of health research: lessons from piloting the 8Quity tool.
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Kakoti, Misimi, Nambiar, Devaki, Bestman, Amy, Garozzo-Vaglio, Damian, and Buse, Kent
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HEALTH equity ,PUBLIC health research ,ATTITUDE change (Psychology) ,COMMUNITIES ,POWER (Social sciences) - Abstract
Global health research reflects and can either perpetuate or challenge the complex power hierarchies and inequities that characterize our health systems and the societies in which they are situated. The imperative to embed equity in health research aligns with broader efforts globally to promote equitable partnerships among researchers, and between researchers and the communities potentially impacted by their research, or with whom knowledge is co-produced. We describe lessons learnt from piloting a heuristic and diagnostic tool for researchers to assess integration of equity considerations into their research practices. The '8Quity' tool comprises eight domains of equity we developed which roughly correspond to the typical stages in the research process—from team formation to capacity strengthening, research ethics and governance to relationships with research partners, participants and stakeholders beyond the project period. Resources that detail how this can be done on a practical level are also shared, corresponding to each of the eight domains. We acknowledge that tools like 8Quity may be helpful, even necessary, but are insufficient for the broader societal changes required to ensure equity in the research enterprise. However, by firmly setting intentions and accountabilities within our research practices, we (as researchers) can play a role, however modest, in turning the tide of the injustices that leave some communities behind. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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10. Influence of factors commonly known to be associated with health inequalities on antibiotic use in high-income countries: a systematic scoping review.
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Harvey, Eleanor J, Brún, Caroline De, Casale, Ella, Finistrella, Viviana, and Ashiru-Oredope, Diane
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ETHNICITY ,HIGH-income countries ,MIDDLE-income countries ,HEALTH equity ,INAPPROPRIATE prescribing (Medicine) ,MEDICAL personnel ,ANTIBIOTICS ,RACE - Abstract
Introduction Inappropriate antibiotic use contributes to antimicrobial resistance. High-income countries have high rates of antibiotic use, with a prevalence of health inequalities amongst populations. Objectives To understand the influence of factors commonly known to be associated with health inequalities on antibiotic use in high-income countries. Methods Factors commonly known to be associated with health inequalities were defined as protected characteristics under UK's Equality Act (age, disability, gender reassignment, marriage and civil partnership, pregnancy and maternity, race/ethnicity, religion or belief, sex, sexual orientation), socioeconomic characteristics (income, insurance, employment status, deprivation, education), geography (urban versus rural, region) and vulnerable groups. The study followed PRISMA-ScR and, PRISMA-E statements. Results Fifty-eight of 402 identified studies met inclusion criteria. Fifty of those papers (86%) included one or more protected characteristics, 37 (64%) socioeconomic characteristics, 21 (36%) geography and 6 (10%) vulnerable groups. Adults in older age groups, especially those in residential care, had the highest antibiotic use. The influence of race or ethnicity and antibiotic use was particular to country context. Areas of high deprivation had higher antibiotic use compared with areas of no or low deprivation, and geographical variation existed within countries. When faced with health system barriers, migrants relied on alternative routes of antibiotic supply other than prescription. Recommendations for future research To investigate how factors and wider social determinants of health interplay and impact antibiotic use, using frameworks/approaches to reduce health inequalities such as England's Core20PLUS approach. Antimicrobial stewardship initiatives should equip healthcare professionals to review patients at the highest risk of antibiotic use. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Financing vaccine equity: funding for day-zero of the next pandemic.
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Agarwal, Ruchir and Reed, Tristan
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COVID-19 pandemic ,PANDEMICS ,PURCHASING contracts ,MIDDLE-income countries ,VACCINES ,LINES of credit ,COST effectiveness - Abstract
A lack of timely financing for purchases of vaccines and other health products impeded the global response to the Covid-19 pandemic. Based on analysis of contract signature and delivery dates in Covid-19 vaccine advance purchase agreements, this paper finds that 60–75 per cent of the delay in vaccine deliveries to low- and middle-income countries is attributable to their signing purchase agreements later than high-income countries, which placed them further behind in the delivery line. A pandemic Advance Commitment Facility with access to a credit line on day-zero of the next pandemic could allow low- and middle-income countries to secure orders earlier, ensuring a much faster and equitable global response than during Covid-19. The paper outlines four options for a financier to absorb some or all of the risk associated with the credit line and discusses how the credit would complement other proposals to strengthen the financing architecture for pandemic preparedness, prevention, and response. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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12. Explaining socioeconomic disparities and gaps in the use of antenatal care services in 36 countries in sub-Saharan Africa.
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Obse, Amarech G and Ataguba, John E
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PRENATAL care ,SOCIAL determinants of health ,DEMOGRAPHIC surveys ,HEALTH equity ,CHILD death ,INFANT health - Abstract
Significant maternal and child deaths occur in sub-Saharan Africa (SSA) even with existing effective interventions. Antenatal care (ANC), for example, is an intervention that improves the health of pregnant women and their babies, but only 52% of pregnant women in SSA had the recommended minimum of four ANC visits between 2011 and 2016. While significant socioeconomic inequalities in ANC visits have been reported to the disadvantage of the poor, little is known about the depth of ANC coverage and associated inequalities. This paper introduces 'deficits' (i.e. the number of ANC visits that are needed to reach the recommended minimum of four ANC visits) and 'surpluses' (i.e. the number of ANC visits over and above the recommended minimum of four ANC visits) to assess socioeconomic inequalities in the indicator and depth of the 'deficits' and 'surpluses' in ANC visits. Using the latest available Demographic and Health Survey data for 36 SSA countries and concentration indices, the paper found that 'deficits' in ANC visits are more prevalent among poorer women compared to 'surpluses' that are concentrated among the rich. On average, women with 'deficits' in ANC visits require about two more ANC visits to reach the recommended four ANC visits, and women with 'surpluses' exceeded the recommended minimum by about two ANC visits. The factors that explain a substantial share of the socioeconomic inequalities in ANC 'deficits' and 'surpluses' in SSA include wealth, education and area of residency, which are essentially the social determinants of health inequalities. For policy response, it is suggested that education is a significant channel to affect the other social determinants of inequalities in ANC coverage reported in the paper. Thus, countries must prioritize quality education as addressing education, especially among women in SSA, will significantly reduce disparities in ANC service utilization and accelerate progress towards universal health coverage. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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13. Implementation of pharmacist-led services for sexual and gender minorities: A multisite descriptive report.
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Phan, Tam, Astle, Kevin N, Mills, Alex R, Medlin, Christopher G, and Herman, David
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PREVENTION of drug side effects , *HEALTH services accessibility , *PATIENT compliance , *SUBSTANCE abuse , *HUMAN services programs , *OCCUPATIONAL roles , *ANTIRETROVIRAL agents , *MENTAL health , *GENDER affirming care , *PRIMARY health care , *HIV infections , *CHRONIC diseases , *HORMONE therapy , *SEXUAL minorities , *HEALTH equity , *DRUGS , *HOSPITAL pharmacies - Abstract
Purpose This paper compares and contrasts the implementation of pharmacist-led services for 3 different sexual and gender minority populations across California, Mississippi, and Florida. Summary Implementation of pharmacist-led services tailored to sexual and gender minorities may be a potential mechanism to address health disparities in these populations. Clinical pharmacists have the potential to provide care with cultural humility and improve health outcomes by optimizing medication regimens, reducing adverse drug events, enhancing medication acquisition, and improving medication adherence. Conclusion The services provided by clinical pharmacists varied across sites and included management of gender-affirming hormone therapy, HIV antiretroviral medication adherence programming, primary care and chronic disease state management, and involvement in care related to mental health, psychiatry, and substance use as well as sexual health. Various legislative and regulatory barriers and differences in scope of practice for pharmacists were also identified. This paper advocates for the expansion of pharmacy-led services and the adoption of a culturally humble approach to patient care. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Effective Access to Laboratory Test Results: A Health Equity Issue that Enhances Diagnostic Excellence.
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Madison, Bereneice M, Lazaro, Gerardo R, Scott, Marranda S, Greene, Dina N, Lorey, Thomas S, and De Jesús, Víctor R
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HEALTH equity ,HEALTH facility translating services ,PATIENT portals ,MEDICAL personnel - Abstract
Access to laboratory test results through patient portals is a health equity issue for patients with limited English proficiency (LEP), particularly for Spanish-speaking patients, the largest minority group in the USA. Gaps ranging from linguistic, cultural, and socioeconomic disparities to lack of systematic approaches (e.g., implementation of specific support protocols, policies) are among the identified factors that limit LEP patients' access to patient portals. This paper summarizes initiatives healthcare providers, laboratory professionals, and portal developers can use to address disparities that affect >26 million LEPs while improving their health equity. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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15. Leveraging built environment interventions to equitably promote health during and after COVID-19 in Toronto, Canada.
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Hassen, Nadha
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SOCIALIZATION ,COVID-19 ,BUILT environment ,SOCIAL determinants of health ,MENTAL health ,SOCIAL classes ,ACCESSIBLE design ,STAY-at-home orders ,SOCIAL distancing ,HEALTH equity ,METROPOLITAN areas ,HOUSING ,HEALTH promotion ,TRANSPORTATION - Abstract
A key public health response to the COVID-19 pandemic is the mandate to stay home and practice physical distancing. In Canada, with essential activities such as grocery shopping, outdoor exercise and transportation, people need to be able to safely navigate dense, urban spaces while staying at least two metres or six feet apart. This pandemic has exacerbated the health inequities across neighbourhoods in cities like Toronto, Canada which are often segregated along racial and income lines. These inequities impact who has access to urban infrastructure that promotes health and quality of life. Safety in a time of COVID-19 goes beyond just exposure to the virus, it is complicated by notions of who belongs where, and who has access to what resources. The built environment has a role in maintaining and promoting physical and mental health during this pandemic and beyond it. This paper puts forwards three considerations for built environment interventions to promote health equitably: (i) addressing structural determinants of health and embedding anti-racist intersectional principles, (ii) revisiting tactical urbanism as a health promotion tool and (iii) rethinking community engagement processes through equity-based placemaking. This paper outlines four built environment interventions in Toronto, Canada that seek to address the challenges in navigating urban space safely in the short term, including street design that prioritizes pedestrians, protected cycling infrastructure, access to inclusive green space and safe, affordable housing. Longer-term strategies to create health-promoting urban environments that are equitable are discussed and may be valuable to other cities with similar urban equity concerns. [ABSTRACT FROM AUTHOR]
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- 2022
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16. Considerations of gender-affirming care for transgender and gender-diverse youth.
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Mills, Alex R, Astle, Kevin N, and Aragon, Kelsea Gallegos
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GENDER-nonconforming people , *FERTILITY , *MENTAL health , *REPRODUCTIVE health , *GENDER affirming care , *TRANSGENDER people , *GENDER dysphoria , *HORMONE therapy , *SEXUAL minorities , *HEALTH equity , *PSYCHOSOCIAL factors , *ADOLESCENCE ,MEDICAL care for teenagers - Abstract
The article comments on a research paper on puberty suppression with gonadotropin-releasing hormone agonists in transgender and gender-diverse (TGD) youth. Topics discussed include a background on mental health in TGD youth, the use of language for medical professionals in an affirming practice setting, and suppression of puberty in TGD youth.
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- 2024
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17. National Institute on Aging's 50th Anniversary: Advancing Cognitive Aging Research and the Cognitive Health of Older Adults.
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Harrell, Erin R, King, Jonathan W, Stoeckel, Luke E, and Treviño, Melissa
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COGNITION disorders treatment , *COGNITION in old age , *ALZHEIMER'S disease , *DIVERSITY & inclusion policies , *DIFFUSION of innovations , *MEDICAL societies , *SPECIAL days , *MEDICAL research , *COGNITION disorders , *HEALTH promotion , *DEMENTIA , *MINORITIES , *HEALTH equity , *COGNITIVE aging , *ACTIVE aging , *BIOMARKERS , *WELL-being , *OLD age - Abstract
In celebration of the National Institute on Aging's (NIA) 50th anniversary, this paper highlights the significant advances in cognitive aging research and the promotion of cognitive health among older adults. Since its inception in 1974, the NIA has played a pivotal role in understanding cognitive aging, including cognitive epidemiology, interventions, and methods, for measuring cognitive change. Key milestones include the shift toward understanding cognitive impairment and Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD), the development of large-scale longitudinal studies, and the incorporation of AD/ADRD-related biomarkers in cognitive aging cohorts. Additionally, NIA has championed diversifying the scientific workforce through initiatives, such as the Resource Centers for Minority Aging Research and the Butler-Williams Scholars Program. The next 50 years will continue to emphasize the importance of inclusion, innovation, and impactful research to enhance the cognitive health and well-being of older adults. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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18. COVID-19 Stress and Cognitive Disparities in Black, MENA, and White Older Adults.
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Ajrouch, Kristine J, Zahodne, Laura B, Brauer, Simon, Tarraf, Wassim, and Antonucci, Toni C
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COGNITION in old age , *AFRICAN Americans , *RESEARCH funding , *MINORITY stress , *WHITE people , *DISEASE prevalence , *STRUCTURAL equation modeling , *RACE , *PSYCHOLOGICAL stress , *ARAB Americans , *HEALTH equity , *COMPARATIVE studies , *COVID-19 , *MIDDLE Easterners , *REGRESSION analysis , *PSYCHOSOCIAL factors , *OLD age - Abstract
Background and Objectives Population aging has led to an increased interest in cognitive health and, in particular, the role that stress plays in cognitive disparities. This paper extends previous work by characterizing coronavirus disease 2019 (COVID-19) stress type prevalence and its association with cognitive health in metro-Detroit among Black, Middle Eastern/Arab (MENA), and White older adults. Research Design and Methods Data come from a regionally representative sample of adults aged 65+ in metro-Detroit (N = 600; MENA n = 199; Black n = 205; White n = 196). We used generalized linear models to compare groups on sociodemographic, objective stress, and social stress indicators. Multiple group structural equation models evaluated whether COVID-19 stress predicted cognitive health and whether that association varied across racial/ethnic groups. Results MENA and Black older adults reported higher levels of objective stress than Whites. There were no racial/ethnic group differences in social stress. More objective stress was associated with better cognitive health, and more social stress was associated with worse cognitive health. The positive effect of objective stress was especially apparent for White older adults. Discussion and Implications Though it appears that minority stress was not exacerbated in the context of pandemic stress, links between greater objective stress and better cognitive health apparent among White older adults were not evident among MENA or Black older adults. Broadening health disparities research by including underrepresented populations allows us to elevate scientific knowledge by clarifying what is universal and what is unique about the stress process. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Invited Commentary: Toward a Better Understanding of Disparities in Overdose Mortality.
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Abdalla, Salma M and Galea, Sandro
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CENTRAL nervous system stimulants ,DRUG overdose ,POPULATION geography ,ETHNIC groups ,HEALTH equity - Abstract
The United States has been in the grip of an epidemic of drug overdose mortality for the past few decades, and deaths from drug overdose increased dramatically during the coronavirus disease 2019 pandemic. Townsend et al. (Am J Epidemiol. 2022;191(4):599–612) add to the growing literature highlighting the steep rise of drug overdose mortality among racial and ethnic minorities in the country. Using data from National Center for Health Statistics death certificates and employing principles of small-area estimation and a Bayesian hierarchical model to stabilize the estimates of smaller racial/ethnic groups and states, the authors found that combinations of opioid/stimulant drug overdose deaths saw a steep increase among racial and ethnic minorities, particularly Black Americans, between 2007 and 2019. The results from their analysis highlight the need to change the narrative around opioid deaths, to invest in targeted policies that address the growing burden of drug overdose faced by racial/ethnic minorities, and the importance of using innovative methods to address limitations to data disaggregation. The paper also demonstrates the importance of a holistic view of the challenges to the health of the American public. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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20. Is research on patient portals attuned to health equity? A scoping review.
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Antonio, Marcy G, Petrovskaya, Olga, and Lau, Francis
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Objective: Our scoping review examined how research on patient portals addresses health equity. Questions guiding our review were: 1) What health equity concepts are addressed in patient portal research-both explicitly and implicitly? 2) What are the gaps? 3) Is the potential for ehealth-related health inequities explicitly acknowledged in studies on patient portals? 4) What novel approaches and interventions to reduce health inequities are tested in patient portal research?Materials and Methods: We searched 4 databases. Search terms included "patient portal" in combination with a comprehensive list of health equity terms relevant in ehealth context. Authors independently reviewed the papers during initial screening and full-text review. We applied the eHealth Equity Framework to develop search terms and analyze the included studies.Results: Based on eHealth Equity Framework categories, the main findings generated from 65 reviewed papers were governance structures, ehealth policies, and cultural and societal values may further inequities; social position of providers and patients introduces differential preferences in portal use; equitable portal implementation can be supported through diverse user-centered design; and intermediary strategies are typically recommended to encourage portal use across populations.Discussion: The predominant focus on barriers in portal use may be inadvertently placing individual responsibility in addressing these barriers on patients already experiencing the greatest health disparities. This approach may mask the impact of the socio-technical-economic-political context on outcomes for different populations.Conclusion: To support equitable health outcomes related to patient portals we need to look beyond intermediary initiatives and develop equitable strategies across policy, practice, research, and implementation. [ABSTRACT FROM AUTHOR]- Published
- 2019
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21. Commentary to 'Social Health Disparities in Clinical Care: A New Approach to Medical Fairness' by Puschel, Furlan and Dekkers.
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Bringedal, Berit and Bærøe, Kristine
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HEALTH equity ,SOCIOECONOMIC factors ,MEDICAL care ,MEDICAL ethics ,SOCIAL justice - Abstract
The commentary brings up two topics. The first concerns whether and how a patient's socioeconomic status (SES) should count in clinical care. We provide a brief summary of Puschel and colleagues' view and discuss it in relation to other accounts. We share their conclusion; considering SES in clinical care can be justified from a fairness perspective. Yet, we question the claim that this is a new perspective, and argue that the reason for the claim of novelty is an insufficient use of references. This leads to the second topic, which is a discussion of citation practices in philosophical/ethics papers. We describe common deviations from academic standards, and suggest how unfortunate practices can be reduced. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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22. Embedding community development approaches in local systems to address health inequalities: a scoping review.
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Walters, Elizabeth, Findlay, Gail, Curtis-Tyler, Katherine, and Harden, Angela
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COMMUNITY development ,CORPORATE culture ,HEALTH equity ,TRUST ,PRIMARY research - Abstract
Background There is a growing evidence base which shows that community development can make an important contribution to reducing health inequalities, but embedding community development as a mainstream approach into local systems is challenging. The literature relevant to the question of how to embed community development approaches is reviewed in this paper. Methods Using guidance from the Joanna Briggs Institute, a scoping review was carried out to identify relevant literature. Systematic searches were carried out across multiple databases, experts in the field were contacted and references of included studies were screened. Search results were screened against exclusion criteria. The Consolidated Framework for Implementation Research was used as a framework to identify factors hindering or supporting embedding. Findings The review identified thirty-five documents which described embedded, or attempts to embed, community development approaches in fourteen different countries. The most common community development approaches were strength-based or co-production. Four studies reported primary research on the embedding process or systems change. Several barriers and facilitators to embedding were identified including those related to funding arrangements, organizational and system culture, building trust with communities and the need for training and support for staff. Conclusion Using an implementation science framework, this scoping review has assessed the nature of the evidence base on how to embed community development. While the evidence base uncovered is currently limited, barriers and facilitators to embedding identified in the review can be used to both inform future attempts to embed community development and provide the building blocks for future primary research. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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23. Traveling Together: A Road Map for Researching Neighborhood Effects on Population Health and Health Inequities.
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Gao, Xing, Berkowitz, Rachel L, Michaels, Eli K, and Mujahid, Mahasin S
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EPIDEMIOLOGISTS ,RESEARCH methodology ,GROUNDED theory ,MEDICAL care research ,CONCEPTUAL structures ,SOCIAL context ,HEALTH equity ,POPULATION health ,DATA analytics ,NEIGHBORHOOD characteristics - Abstract
As evidence of the relationship between place and health mounts, more epidemiologists and clinical science researchers are becoming interested in incorporating place-based measures and analyses into their examination of population health and health inequities. Given the extensive literature on place and health, it can be challenging for researchers new to this area to develop neighborhood-effects research questions and apply the appropriate measures and methods. This paper provides a road map for guiding health researchers through the conceptual and methodological stages of incorporating various dimensions of place into their quantitative health research. Synthesizing across reviews, commentaries, and empirical investigations, the road map consists of 4 broad stages for considering place and health: 1) why? : articulating the motivation for assessing place and health and grounding the motivation in theory; 2) what? : identifying the relevant place-based characteristics and specifying their link to health to build a conceptual framework; 3) how? : determining how to operationalize the conceptual framework by defining, measuring, and assessing place-based characteristics and quantifying their effect on health; and 4) now what? : discussing the implications of neighborhood research findings for future research, policy, and practice. This road map supports efforts to develop conceptually and analytically rigorous neighborhood research projects. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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24. Contributions of declining mortality, overall and from HIV, TB and malaria, to reduced health inequality and inequity across countries.
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Haacker, Markus
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HEALTH equity ,MALARIA ,TUBERCULOSIS ,HIV ,COVID-19 - Abstract
The objective to reduce global health inequalities and inequities is integral to the global development agenda, from the Universal Declaration of Human Rights to the sustainable development goals and the ongoing response to coronavirus disease. Yet, summary measures of global health gains or of the cost-effectiveness of global health programmes barely capture how well they improve the lives of the most disadvantaged populations. This paper instead explores the distribution of global health gains across countries and the implications for health inequality and inequity (here referring to health disadvantages that reinforce economic disadvantage, and vice versa) across countries. Specifically, it studies the distribution of gains in life expectancy across countries (overall and owing to reduced mortality from HIV, TB and malaria), using the Gini index and a concentration index ranking countries by gross domestic product (GDP) per capita as indicators of health inequality and inequity. By these counts, global inequality in life expectancy across countries declined by one-third between 2002 and 2019. Reduced mortality from HIV, TB and malaria accounted for one‐half of this decline. Fifteen countries in sub‐Saharan Africa, containing 5% of the global population, accounted for 40% of the global decline in inequality, with nearly six‐tenth of this contribution coming from HIV, TB and malaria. Inequity in life expectancy across countries declined by nearly 37%, with a contribution from HIV, TB and malaria of 39% of this gain. Our findings show how simple indicators on the distribution of health gains across countries usefully complement aggregate measures of global health gains and underscore their positive contribution to the global development agenda. [ABSTRACT FROM AUTHOR]
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- 2023
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25. Socioeconomic deprivation, medical services accessibility, and income-related health inequality among older Chinese adults: evidence from a national longitudinal survey from 2011 to 2018.
- Author
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Yang, Jing, Zhong, Qiao, Liao, Zangyi, Pan, Changjian, and Fan, Qiuyan
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HEALTH equity ,OLDER people ,SOCIOECONOMIC disparities in health ,HEALTH policy ,HEALTH care reform ,QUALITY of life - Abstract
Background Health inequality poses a challenge to improving the quality of life of older adults as well as the service system. The literature rarely explores the moderating role of medical services accessibility in the association between socioeconomic deprivation and health inequality. Objective This study examines the socioeconomic deprivation and medical services accessibility associated with health inequality among older Chinese adults, which will contribute to the medical policy reform. Methods Using data from the 2011, 2014, and 2018 waves of the Chinese Longitudinal Healthy Longevity Survey (CLHLS), we analyse 14,232 older adults. This paper uses a concentration index (CI) to measure the income-related health inequality among the target population and employs a recentered influence function–concentration index–ordinary least squares (RIF-CI-OLS) model to empirically analyse the correlation between socioeconomic deprivation and health inequality among older Chinese adults. Based on the correlation analysis, we discuss the moderating effect of medical services accessibility. Results We find that health inequality exists among older Chinese adults and that the relative deprivation in socioeconomic status (SES) is significantly associated with health inequality ( β ∈ [ 0.1109 , 0.1909 ] , P < 0.01). The correlation between socioeconomic deprivation and health inequality is moderated by medical services accessibility, which means that an increase in medical services accessibility can weaken the correlation between socioeconomic deprivation and health inequality. Conclusion China needs an in-depth reform of its medical services accessibility system to promote the equitable distribution of medical services resources, strengthen medical costs and quality management, and ultimately mitigate the SES reason for health inequality among older Chinese adults. [ABSTRACT FROM AUTHOR]
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- 2023
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26. Delivering spatially comparable inference on the risks of multiple severities of respiratory disease from spatially misaligned disease count data.
- Author
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Lee, Duncan and Anderson, Craig
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RESPIRATORY diseases ,MEDICAL personnel ,SPATIAL variation ,HEALTH equity ,AUTOREGRESSIVE models ,INFERENCE (Logic) ,PUBLIC health - Abstract
Population‐level disease risk varies between communities, and public health professionals are interested in mapping this spatial variation to monitor the locations of high‐risk areas and the magnitudes of health inequalities. Almost all of these risk maps relate to a single severity of disease outcome, such as hospitalization, which thus ignores any cases of disease of a different severity, such as a mild case treated in a primary care setting. These spatially‐varying risk maps are estimated from spatially aggregated disease count data, but the set of areal units to which these disease counts relate often varies by severity. Thus, the statistical challenge is to provide spatially comparable inference from multiple sets of spatially misaligned disease count data, and an additional complexity is that the spatial extents of the areal units for some severities are partially unknown. This paper thus proposes a novel spatial realignment approach for multivariate misaligned count data, and applies it to the first study delivering spatially comparable inference for multiple severities of the same disease. Inference is via a novel spatially smoothed data augmented MCMC algorithm, and the methods are motivated by a new study of respiratory disease risk in Scotland in 2017. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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27. Editors' Introduction.
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COVID-19 ,INCOME inequality ,INFLUENZA pandemic, 1918-1919 ,COVID-19 pandemic ,HEALTH equity ,WELFARE state ,SARS-CoV-2 - Abstract
COVID AND INCOME INEQUALITY The large economic crisis that accompanied the pandemic affected workers in various ways. The Covid outbreak in 2019 marked the start of the biggest epidemic since the Spanish Flu exactly one century prior. POLICIES IN THE MIDDLE RUN The Covid crisis is so sudden and novel that it is by nature impossible to evaluate any policy measures apart in the very short-run. [Extracted from the article]
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- 2022
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28. Thiemo Fetzer Discussion of: COVID and Income Inequality.
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Fetzer, Thiemo
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HEALTH equity ,INCOME inequality ,INCENTIVE (Psychology) ,INSTITUTIONAL environment ,ECONOMIC policy ,HUMAN capital - Abstract
Much of this data is increasingly controlled by private firms, which raises important questions about whether the underlying data resources are under-utilized resulting in inefficiently low levels of production of knowledge public goods. Such knowledge public goods could have broad societal benefit, but may yield little monetary benefit to the respective data owners, which may also simply lack the human capital required to carry out basic research. Such knowledge public goods could have broad societal benefit, but may yield little monetary benefit to the respective data owners, who may simply lack the human capital required to carry out basic research. [Extracted from the article]
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- 2022
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29. Agents of Change: Geriatrics Workforce Programs Addressing Systemic Racism and Health Equity.
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Gordon, Barbara A, Azer, Lilian, Bennett, Katherine, Edelman, Linda S, Long, Monica, Goroncy, Anna, Alexander, Charles, Lee, Jung-Ah, Rosich, Rosellen, and Severance, Jennifer J
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- *
HEALTH services accessibility , *INSTITUTIONAL racism , *RESEARCH funding , *GERIATRICS , *ORGANIZATIONAL change , *PROFESSIONAL employee training , *HEALTH equity , *SOCIAL support , *COMMITMENT (Psychology) , *LABOR supply - Abstract
Many factors affect how individuals and populations age, including race, ethnicity, and diversity, which can contribute to increased disease risk, less access to quality healthcare, and increased morbidity and mortality. Systemic racism—a set of institutional policies and practices within a society or organization that perpetuate racial inequalities and discrimination—contributes to health inequities of vulnerable populations, particularly older adults. The National Association for Geriatrics Education (NAGE) recognizes the need to address and eliminate racial disparities in healthcare access and outcomes for older adults who are marginalized due to the intersection of race and age. In this paper, we discuss an anti-racist framework that can be used to identify where an organization is on a continuum to becoming anti-racist and to address organizational change. Examples of NAGE member Geriatric Workforce Enhancement Programs (GWEPs) and Geriatrics Academic Career Awards (GACAs) activities to become anti-racist are provided to illustrate the framework and to guide other workforce development programs and healthcare institutions as they embark on the continuum to become anti-racist and improve the care and health of vulnerable older adults. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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30. The importance of gender analysis in research for health systems strengthening.
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Theobald, Sally, Morgan, Rosemary, Hawkins, Kate, Ssali, Sarah, George, Asha, and Molyneux, Sassy
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GENDERISM in mental health services ,HEALTH policy ,HEALTH equity ,HEALTH ,PUBLIC health ,FINANCE ,EXPERIMENTAL design ,HEALTH services accessibility ,HEALTH status indicators ,MEDICAL care ,POVERTY ,SEX distribution - Abstract
This editorial discusses a collection of papers examining gender across a range of health policy and systems contexts, from access to services, governance, health financing, and human resources for health. The papers interrogate differing health issues and core health systems functions using a gender lens. Together they produce new knowledge on the multiple impacts of gender on health experiences and demonstrate the importance of gender analyses and gender sensitive interventions for promoting well-being and health systems strengthening. The findings from these papers collectively show how gender intersects with other axes of inequity within specific contexts to shape experiences of health and health seeking within households, communities and health systems; illustrate how gender power relations affect access to important resources; and demonstrate that gender norms, poverty and patriarchy interplay to limit women's choices and chances both within household interactions and within the health sector. Health systems researchers have a responsibility to promote the incorporation of gender analyses into their studies in order to inform more strategic, effective and equitable health systems interventions, programmes, and policies. Responding to gender inequitable systems, institutions, and services in this sector requires an 'all hands-on deck' approach. We cannot claim to take a 'people-centred approach' to health systems if the status quo continues. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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31. Review of treatments for pseudofolliculitis barbae.
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Dalia, Yoseph, Khatib, Jude, Odens, Herman, and Patel, Tejesh
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LITERATURE reviews ,HAIR removal ,HEALTH equity ,CHRONIC diseases ,CASE-control method - Abstract
Pseudofolliculitis barbae (PFB) is a chronic inflammatory condition characterized by follicular and perifollicular papules and pustules primarily affecting the beard and neck area. PFB is a condition that predominantly affects patients with skin of colour. The objective of this paper is to review the epidemiology, pathogenesis and presentation of PFB, and assess the most recent evidence-based treatment options and recommendations for PFB. This is important to increase the quality of care given to target patient populations and to address the prominent disparity in healthcare management of patients with skin of colour. A literature review was conducted utilizing PubMed and Cochrane Library. The key term 'pseudofolliculitis barbae' was used. Search parameters were set to search from 1987 to the present. Results were further narrowed by limiting the literature review to published observational studies, case studies, case series, randomized control trials and case–control studies. Effective treatment for PFB requires a multifaceted approach that targets various aspects of the pathogenesis. Current treatments include preventive measures, antibiotics, corticosteroids, keratolytics, chemical depilatories and/or laser treatments. Topical therapies are currently the mainstay treatment. However, laser hair removal has become a potential long-term treatment option, and additional studies are warranted to understand its long-term efficacy and permanency. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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32. Rapid-cycle designs to adapt interventions for COVID-19 in safety-net healthcare systems.
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Schlechter, Chelsey R, Reese, Thomas J, Wirth, Jennifer, Gibson, Bryan, Kawamoto, Kensaku, Siaperas, Tracey, Pruhs, Alan, Dinkins, Courtney Pariera, Zhang, Yue, Friedrichs, Michael, George, Stephanie, Lam, Cho Y, Pierce, Joni H, Borsato, Emerson P, Cornia, Ryan C, Stevens, Leticia, Martinez, Anna, Bradshaw, Richard L, Kaphingst, Kimberly A, and Hess, Rachel
- Abstract
Racial/ethnic minority, low socioeconomic status, and rural populations are disproportionately affected by COVID-19. Developing and evaluating interventions to address COVID-19 testing and vaccination among these populations are crucial to improving health inequities. The purpose of this paper is to describe the application of a rapid-cycle design and adaptation process from an ongoing trial to address COVID-19 among safety-net healthcare system patients. The rapid-cycle design and adaptation process included: (a) assessing context and determining relevant models/frameworks; (b) determining core and modifiable components of interventions; and (c) conducting iterative adaptations using Plan-Do-Study-Act (PDSA) cycles. PDSA cycles included: Plan. Gather information from potential adopters/implementers (e.g. Community Health Center [CHC] staff/patients) and design initial interventions; Do. Implement interventions in single CHC or patient cohort; Study. Examine process, outcome, and context data (e.g. infection rates); and, Act. If necessary, refine interventions based on process and outcome data, then disseminate interventions to other CHCs and patient cohorts. Seven CHC systems with 26 clinics participated in the trial. Rapid-cycle, PDSA-based adaptations were made to adapt to evolving COVID-19-related needs. Near real-time data used for adaptation included data on infection hot spots, CHC capacity, stakeholder priorities, local/national policies, and testing/vaccine availability. Adaptations included those to study design, intervention content, and intervention cohorts. Decision-making included multiple stakeholders (e.g. State Department of Health, Primary Care Association, CHCs, patients, researchers). Rapid-cycle designs may improve the relevance and timeliness of interventions for CHCs and other settings that provide care to populations experiencing health inequities, and for rapidly evolving healthcare challenges such as COVID-19. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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33. Conceptual foundations of a gender equality index.
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Crammond, Bradley R, Maheen, Humaira, and King, Tania
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LEISURE ,SOCIAL theory ,SOCIAL norms ,DISCRIMINATION (Sociology) ,RACE ,CONCEPTUAL structures ,FEMINIST criticism ,SOCIOECONOMIC factors ,INTERSECTIONALITY ,HEALTH equity ,GENDER inequality - Abstract
Gender equality indexes (GEIs) have become a popular tool for the quantification of unequal resource distribution between males and females. Creating such an index implies an understanding of what gender inequality is, though this question has remained the province of theoretical feminism with little explicit treatment in the methodologically focussed literature. This paper presents an empirically minded, theoretical account of gender inequality, which can be used broadly to inform the development of GEIs. The account proceeds in three steps. First, we argue for a broad understanding of the types of resources that structure gender inequality. Drawing on the work of Bourdieu, we highlight the importance of including symbolic capitals (and indeed viewing gender itself as a symbolic capital). By considering gender as a symbolic capital, we are drawn to the ways that normative maleness hides some types of gender inequality. Thus, caregiving norms and leisure time inequality are brought to the foreground. Finally, in recognizing that there is no single unifying female experience, we describe the ways that gender inequality intersect with other forms of disadvantage, motivating the incorporation of (particularly) race into the index. The result is a comprehensive—and theoretically defensible—set of indicators for the measurement of gender inequality. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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34. Barriers and Facilitators to Home- and Community-Based Services Access for Persons With Dementia and Their Caregivers.
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Waymouth, Molly, Siconolfi, Daniel, Friedman, Esther M, Saliba, Debra, Ahluwalia, Sangeeta C, and Shih, Regina A
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SERVICES for caregivers ,HEALTH services accessibility ,CAREGIVERS ,MINORITIES ,HOME care services ,RURAL conditions ,COMMUNITY health services ,INTERVIEWING ,HEALTH status indicators ,DEMENTIA patients ,QUALITATIVE research ,QUALITY of life ,CULTURAL competence ,INDEPENDENT living ,RESEARCH funding ,HEALTH equity ,MEDICAID ,REHABILITATION ,LONG-term health care ,MEDICARE - Abstract
Objectives The United States has seen increasing shifts toward home- and community-based services (HCBS) in place of institutional care for long-term services and supports. However, research has neglected to assess whether these shifts have improved access to HCBS for persons with dementia. This paper identifies HCBS access barriers and facilitators, and discusses how barriers contribute to disparities for persons with dementia living in rural areas and exacerbate disparities for minoritized populations. Methods We analyzed qualitative data from 35 in-depth interviews. Interviews were held with stakeholders in the HCBS ecosystem, including Medicaid administrators, advocates for persons with dementia and caregivers, and HCBS providers. Results Barriers to HCBS access for persons with dementia range from community and infrastructure barriers (e.g. clinicians and cultural differences), to interpersonal and individual-level barriers (e.g. caregivers, awareness, and attitudes). These barriers affect the health and quality of life for persons with dementia and may affect whether individuals can remain in their home or community. Facilitators included a range of more comprehensive and dementia-attuned practices and services in health care, technology, recognition and support for family caregivers, and culturally competent and linguistically accessible education and services. Discussion System refinements, such as incentivizing cognitive screening, can improve detection and increase access to HCBS. Disparities in HCBS access experienced by minoritized persons with dementia may be addressed through culturally competent awareness campaigns and policies that recognize the necessity of familial caregivers in supporting persons with dementia. These findings can inform efforts to ensure more equitable access to HCBS, improve dementia competence, and reduce disparities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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35. Re-Engaging Individuals & Societies for Structural Evolution: A Brain Health Equity Neuropsychology Research Framework.
- Author
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Díaz-Santos, Mirella, González, David Andrés, Henry, Samantha K, Vuong, Kevin Dat, and Strutt, Adriana Macias
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HEALTH equity ,NEUROPSYCHOLOGY ,COMMUNITIES ,CONCEPTUAL structures ,SOCIAL determinants of health - Abstract
Objective A brain health equity neuropsychology research framework (NRF) is crucial to the anti-racist movement in cognitive assessments. Universalist interpretation of neuropsychological tools contributes to systemic disparities, and there is a need for a clear conceptual framework for disentangling the direct and indirect impact of social determinants of health (SDH) on brain-behavior relationships and neuropsychological performance. The aim of this paper is to present a NRF anchored in the principles of brain health and health equity that is inclusive, and can be implemented across racially and ethnically diverse communities. Methods The Re-engaging Individuals and societies for Structural Evolution (RISE) NRF aims to address this via a two-pronged approach: 1. Focusing on community engagement and recruitment and retention of individuals and societies typically not equitably represented in brain health studies, and 2. Integrating the conceptual structure of individual, community, and SDH, while considering the broader historical and current structures that differentially shape these. Results The proposed RISE NRF is dynamic and multidirectional. It identifies barriers and proposes strategies to engage communities and diversify recruitment. It identifies evidence-based guidance on non-cognitive determinants of health to include, consider or explore in brain health research. Conclusion The RISE NRF can guide the development of culturally and linguistically responsive methodologies and assist with clearly conceptualized and contextualized interpretation of neuropsychological tools to foment a transformative science that benefits the brain health of marginalized communities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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36. Modified scoping review of the enablers and barriers to implementing primary health care in the COVID-19 context.
- Author
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Edelman, Alexandra, Marten, Robert, Montenegro, Hernán, Sheikh, Kabir, Barkley, Shannon, Ghaffar, Abdul, Dalil, Suraya, and Topp, Stephanie M
- Subjects
PRIMARY care ,COVID-19 ,HEALTH equity ,KNOWLEDGE gap theory ,MEDICAL care accountability ,COMMUNITY organization ,CLINICAL governance ,ABORTIFACIENTS - Abstract
Since the Alma Ata Declaration of 1978, countries have varied in their progress towards establishing and sustaining comprehensive primary health care (PHC) and realizing its associated vision of 'Health for All'. International health emergencies such as the coronavirus-19 (COVID-19) pandemic underscore the importance of PHC in underpinning health equity, including via access to routine essential services and emergency responsiveness. This review synthesizes the current state of knowledge about PHC impacts, implementation enablers and barriers, and knowledge gaps across the three main PHC components as conceptualized in the 2018 Astana Framework. A scoping review design was adopted to summarize evidence from a diverse body of literature with a modification to accommodate four discrete phases of searching, screening and eligibility assessment: a database search in PubMed for PHC-related literature reviews and multi-country analyses (Phase 1); a website search for key global PHC synthesis reports (Phase 2); targeted searches for peer-reviewed literature relating to specific components of PHC (Phase 3) and searches for emerging insights relating to PHC in the COVID-19 context (Phase 4). Evidence from 96 included papers were analysed across deductive themes corresponding to the three main components of PHC. Findings affirm that investments in PHC improve equity and access, healthcare performance, accountability of health systems and health outcomes. Key enablers of PHC implementation include equity-informed financing models, health system and governance frameworks that differentiate multi-sectoral PHC from more discrete service-focussed primary care, and governance mechanisms that strengthen linkages between policymakers, civil society, non-governmental organizations, community-based organizations and private sector entities. Although knowledge about, and experience in, PHC implementation continues to grow, critical knowledge gaps are evident, particularly relating to country-level, context-specific governance, financing, workforce, accountability and service coordination mechanisms. An agenda to guide future country-specific PHC research is outlined. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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37. Exposure, Susceptibility, and Recovery: A Framework for Examining the Intersection of the Social and Physical Environments and Infectious Disease Risk.
- Author
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Noppert, Grace A, Hegde, Sonia T, and Kubale, John T
- Subjects
RACISM ,COMMUNICABLE diseases ,SEXISM ,CONVALESCENCE ,CONCEPTUAL structures ,SOCIAL context ,RISK assessment ,SOCIOECONOMIC factors ,DISEASE susceptibility ,VECTOR-borne diseases ,INFECTIOUS disease transmission ,HEALTH equity ,DISEASE risk factors - Abstract
Despite well-documented evidence that structurally disadvantaged populations are disproportionately affected by infectious diseases, our understanding of the pathways that connect structural disadvantage to the burden of infectious diseases is limited. We propose a conceptual framework to facilitate more rigorous examination and testing of hypothesized mechanisms through which social and environmental factors shape the burden of infectious diseases and lead to persistent inequities. Drawing upon the principles laid out by Link and Phelan in their landmark paper on social conditions (J Health Soc Behav. 1995;(spec no.):80–94), we offer an explication of potential pathways through which structural disadvantage (e.g. racism, sexism, and economic deprivation) operates to produce infectious disease inequities. Specifically, we describe how the social environment affects an individual's risk of infectious disease by 1) increasing exposure to infectious pathogens and 2) increasing susceptibility to infection. This framework will facilitate both the systematic examination of the ways in which structural disadvantage shapes the burden of infectious disease and the design of interventions that can disrupt these pathways. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
38. Digital health, gender and health equity: invisible imperatives.
- Author
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Specialist, Chaitali Sinha Senior Program and Consultant, Anne-Marie Schryer-Roy Independent
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HEALTH services accessibility ,POWER (Social sciences) ,RESPONSIBILITY ,SEXISM ,TELEMEDICINE ,ACCESS to information - Abstract
Copyright of Journal of Public Health is the property of Oxford University Press / USA and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2018
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39. Tele-Neuropsychology: From Science to Policy to Practice.
- Author
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Sperling, Scott A, Acheson, Shawn K, Fox-Fuller, Joshua, Colvin, Mary K, Harder, Lana, Cullum, C Munro, Randolph, John J, Carter, Kirstine R, Espe-Pfeifer, Patricia, Lacritz, Laura H, Arnett, Peter A, and Gillaspy, Stephen R
- Subjects
- *
POLICY sciences , *HEALTH services accessibility , *HEALTH equity , *MEDICAID , *COVID-19 pandemic , *SINGLE-payer health care , *TELEMEDICINE - Abstract
Objective The primary aim of this paper is to accelerate the number of randomized experimental studies of the reliability and validity in-home tele-neuropsychological testing (tele-np-t). Method We conducted a critical review of the tele-neuropsychology literature. We discuss this research in the context of the United States' public and private healthcare payer systems, including the Centers for Medicare & Medicaid Services (CMS) and Current Procedural Terminology (CPT) coding system's telehealth lists, and existing disparities in healthcare access. Results The number of tele-np publications has been stagnant since the onset of the COVID-19 pandemic. There are less published experimental studies of tele-neuropsychology (tele-np), and particularly in-home tele-np-t, than other tele-np publications. There is strong foundational evidence of the acceptability, feasibility, and reliability of tele-np-t, but relatively few studies of the reliability and validity of in-home tele-np-t using randomization methodology. Conclusions More studies of the reliability and validity of in-home tele-np-t using randomization methodology are necessary to support inclusion of tele-np-t codes on the CMS and CPT telehealth lists, and subsequently, the integration and delivery of in-home tele-np-t services across providers and institutions. These actions are needed to maintain equitable reimbursement of in-home tele-np-t services and address the widespread disparities in healthcare access. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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40. Evaluating health policies with subnational disparities: a text-mining analysis of the Urban Employee Basic Medical Insurance Scheme in China.
- Author
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Liu, Kai, Liu, Wenting, and He, Alex Jingwei
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HEALTH insurance ,HEALTH policy ,GOVERNMENT policy ,HEALTH equity ,POLICY analysis - Abstract
Subnational disparities in most health systems often defy 'one-size-fits-all' approach in policy implementation. When local authorities implement a national policy in a decentralized context, they behave as a strategic policy actor in specifying the central mandates, selecting appropriate tools and setting key implementation parameters. Local policy discretion leads to diverse policy mixes across regions, thus complicating evidence-based evaluations of policy impacts. When measuring complex policy reforms, mainstream policy evaluation methodologies have tended to adopt simplified policy proxies that often disguise distinct policy choices across localities, leaving the heterogeneous effects of the same generic policy largely unknown. Using the emerging 'text-as-data' methodology and drawing from subnational policy documents, this study developed a novel approach to policy measurement through analysing policy big data. We applied this approach to examine the impacts of China's Urban Employee Basic Medical Insurance (UEBMI) on individuals' out-of-pocket (OOP) spending. We found substantial disparities in policy choices across prefectures when categorizing the UEBMI policy framework into benefit-expansion and cost-containment reforms. Overall, the UEBMI policies lowered enrollees' OOP spending in prefectures that embraced both benefit-expansion and cost-containment reforms. In contrast, the policies produced ill effects on OOP spending of UEBMI enrollees and uninsured workers in prefectures that carried out only benefit-expansion or cost-containment reforms. The micro-level impacts of UEBMI enrolment on OOP spending were conditional on whether prefectural benefit-expansion and cost-containment reforms were undertaken in concert. Only in prefectures that promulgated both types of reforms did UEBMI enrolment reduce OOP spending. These findings contribute to a comprehensive text-mining measurement approach to locally diverse policy efforts and an integration of macro-level policy analysis and micro-level individual analysis. Contextualizing policy measurements would improve the methodological rigour of health policy evaluations. This paper concludes with implications for health policymakers in China and beyond. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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41. impact of primary school nutrition policy on the school food environment: a systematic review.
- Author
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Grigsby-Duffy, Lily, Brooks, Ruby, Boelsen-Robinson, Tara, Blake, Miranda R, Backholer, Kathryn, Palermo, Claire, and Peeters, Anna
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MEDICAL databases ,CINAHL database ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,QUALITY assurance ,DESCRIPTIVE statistics ,ELEMENTARY schools ,MEDLINE ,NUTRITION policy ,FOOD service ,ERIC (Information retrieval system) - Abstract
School nutrition policies that aim to address unhealthy diets have been introduced in many countries. This systematic review aimed to synthesize the international literature to determine the impact (overall and by socioeconomic position [SEP]) of primary school nutrition policies on the availability of foods and beverages in schools. Seven databases were searched using keywords and medical subject headings related to nutrition policies and schools. Studies that reported on the impact of implemented school nutrition policies on food and beverage availability within primary schools were included. Eighteen studies (reported across 20 papers) were included. Fifteen of the included studies reported some positive impacts of policies, including increased availability of healthier foods and decreased availability of less healthy foods. Five studies focused specifically on schools in low-income communities and a further three specifically compared schools by SEP, with mixed findings. Two studies reported on factors influencing policy implementation, reporting a lack of financial resources as a barrier to schools offering a wider selection of healthy foods and additional school resources as increasing the likelihood of offering healthy foods. School nutrition policies appear to be effective at improving the healthiness of foods and beverages available at schools. Furthermore, the results suggest that well-implemented school nutrition policies that improve the healthiness of foods available are unlikely to exacerbate the socioeconomic gradient of poor nutrition. However, the number of studies that reported results by SEP limits drawing strong conclusions regarding equity impacts and we strongly recommend further studies analyze their findings according to SEP. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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42. Averting a public health crisis in England's coastal communities: a call for public health research and policy.
- Author
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Asthana, Sheena and Gibson, Alex
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HEALTH policy ,NON-communicable diseases ,SOCIAL determinants of health ,SUBSTANCE abuse ,PUBLIC health ,CHILDREN'S health ,HEALTH equity ,RURAL population ,MEDICAL research ,EDUCATIONAL attainment - Abstract
Coastal communities have received little attention in the public health literature, perhaps because our mental maps tend to associate socio-economic deprivation and health inequalities with inner cities. Mapping a range of key health indicators at small area level, this paper reveals a distinct core-periphery pattern in disease prevalence, with coastal communities experiencing a high burden of ill health across almost all conditions included in the Quality and Outcomes Framework dataset. Other sources suggest poor outcomes for children and young people living in coastal areas. Low rates of participation in higher education contrast with high rates of hospitalisation for self-harm, alcohol and substance use. Reflecting a shift in the distribution of children living in poverty since the 1990s, this may be an early indicator of a future public health crisis in these communities. Exploring reasons for the health challenges facing the periphery, this perspective piece calls for more public health research that can accommodate the complex and interlinked problems facing coastal communities and a more concerted effort to align public health with economic, education, local government and transport policies at the national level. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
43. Critical health literacy: reflection and action for health.
- Author
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Abel, Thomas and Benkert, Richard
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CULTURE ,SOCIAL determinants of health ,PUBLIC health ,HEALTH literacy ,CONCEPTUAL structures ,SELF-efficacy ,HEALTH equity ,REFLECTION (Philosophy) ,HEALTH promotion - Abstract
Health literacy research is growing rapidly and broadly; however, conceptual advances in critical health literacy (CHL) seem hampered by a lack of a clear definition. In this paper, we refer to key features of the concept as identified in earlier works, offer a new definition of CHL and briefly discuss its theoretical roots. Reflection and action are suggested as the two constituent components of CHL. Consequences for future research are also discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
44. A case study of new approaches to address health inequalities: Due North five years on.
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Johnstone, Paul W
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ECONOMIC policy ,HEALTH equity ,POPULATION policy ,LOCAL government ,HEALTH policy - Abstract
Introduction When local councils took on responsibility for public health in England in 2013, leaders from across the north of England met to consider the scale of the challenge. As a result, Public Health England commissioned the Due North Report which outlined new approaches in tackling health inequalities. This second paper outlines what has been learnt in five years as a case study. This includes influencing devolution deals and new elected city mayors, planning for economic growth in deprived areas and developing community asset-based approaches. The paper outlines a new framework for place-based planning to reduce health inequalities. Sources of data Data was gathered from annual reports from north of England directors of public health, Office for National Statistics, Public Health England's fingertips database and regional and national publications and strategies such as the Northern Powerhouse. Areas of agreement Devolution to English cities and councils as 'places' is a new opportunity to address local needs and inequalities. Due North has supported a new public health narrative which locates health action in the most fundamental determinants—how local economies are planned, jobs created and power is to be transferred to communities and connects reducing years of premature ill health to increased economic productivity. Community asset approaches to empower local leaders and entrepreneurs can be effective ways to achieve change. Areas of controversy The north–south divide in health is not closing and may be worsening. Different ways of working between local government, health and business sectors can inhibit in working together and with communities. Growing points Place-based working with devolved powers can help move away from top down and silo working, empower local government and support communities. Linking policies on health inequalities to economic planning can address upstream determinants such as poverty, homelessness and unsafe environments. Areas timely for developing research More research is needed on; (i) addressing inequalities at scale for interventions to influence community-led change and prosperity in deprived areas, and (ii) the impact of devolution policy on population health particularly for deprived areas and marginalised group. Discussion and conclusions Commissioning high profile reports like Due North is influential in supporting new approaches in reducing inequality of health through local government, elected mayors; and working with deprived communities. This second paper describes progress and lessons. [ABSTRACT FROM AUTHOR]
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- 2019
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45. Examining multiple funding flows to public healthcare providers in low- and middle-income countries — results from case studies in Burkina Faso, Kenya, Morocco, Nigeria, Tunisia and Vietnam.
- Author
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Dkhimi, Fahdi, Honda, Ayako, Hanson, Kara, Mbau, Rahab, Onwujekwe, Obinna, Phuong, Hoang Thi, Mathauer, Inke, Akhnif, El Houcine, Jaouadi, Imen, Kiendrébéogo, Joël Arthur, Ezumah, Nkoli, Kabia, Evelyn, and Barasa, Edwine
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MEDICAL personnel ,MIDDLE-income countries ,HEALTH equity ,COST shifting ,QUALITY of service - Abstract
Provider payment methods are traditionally examined by appraising the incentive signals inherent in individual payment mechanisms. However, mixed payment arrangements, which result in multiple funding flows from purchasers to providers, could be better understood by applying a systems approach that assesses the combined effects of multiple payment streams on healthcare providers. Guided by the framework developed by Barasa et al. (2021) (Barasa E, Mathauer I, Kabia E et al. 2021. How do healthcare providers respond to multiple funding flows? A conceptual framework and options to align them. Health Policy and Planning 36 : 861–8.), this paper synthesizes the findings from six country case studies that examined multiple funding flows and describes the potential effect of multiple payment streams on healthcare provider behaviour in low- and middle-income countries. The qualitative findings from this study reveal the extent of undesirable provider behaviour occurring due to the receipt of multiple funding flows and explain how certain characteristics of funding flows can drive the occurrence of undesirable behaviours. Service and resource shifting occurred in most of the study countries; however, the occurrence of cost shifting was less evident. The perceived adequacy of payment rates was found to be the strongest driver of provider behaviour in the countries examined. The study results indicate that undesirable provider behaviours can have negative impacts on efficiency, equity and quality in healthcare service provision. Further empirical studies are required to add to the evidence on this link. In addition, future research could explore how governance arrangements can be used to coordinate multiple funding flows, mitigate unfavourable consequences and identify issues associated with the implementation of relevant governance measures. [ABSTRACT FROM AUTHOR]
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- 2023
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46. Racial and Ethnic Inequities in Health: Examining the Contributions of the American Journal of Epidemiology to Advancing the Science.
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Borrell, Luisa N and Crawford, Natalie D
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SERIAL publications , *RACE , *SPECIAL days , *HEALTH equity , *MEDICAL research - Abstract
The perverseness of racial and ethnic inequities in the United States continues to implore the investigation of their causes. While there have been improvements in the health of the US population, these improvements have not been equally distributed. To commemorate the 100th anniversary of the American Journal of Epidemiology , in this commentary, we aim to highlight the Journal 's contributions to: 1) the definition and use of race and ethnicity in research, and 2) understanding racial and ethnic inequities, both empirically and methodologically, over the past decade. We commend the Journal for its contributions and for spearheading many of the challenges related to measuring and interpreting racial and ethnic data for the past 20 years. We identify 3 additional areas in which the Journal could make further impact to address racial and ethnic inequities: 1) devote a section in every issue of the Journal to scientific papers that make substantive epidemiologic or methodological contributions to racial and ethnic inequities in health; 2) update the Journal 's guidelines for authors to include justifying the use of race and ethnicity; and 3) diversify the field of epidemiology by bringing a new cadre of scholars from minoritized racial and ethnic groups who represent the most affected communities into the research process. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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47. Research on Health Disparities: Strategies and Findings From the Black Women's Health Study.
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Palmer, Julie R, Cozier, Yvette C, and Rosenberg, Lynn
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RACISM , *SERIAL publications , *HEALTH equity , *MEDICAL research , *AFRICAN Americans , *WOMEN'S health , *GENETIC research - Abstract
The American Journal of Epidemiology has been a platform for findings from the Black Women's Health Study (BWHS) that are relevant to health disparities. Topics addressed have included methods of follow-up of a large cohort of Black women, disparities in health-care delivery, modifiable risk factors for health conditions that disproportionately affect Black women, associations with exposures that are highly prevalent in Black women, and methods for genetic research. BWHS papers have also highlighted the importance of considering social context, including perceived experiences of racism, in understanding health disparities. In the future, BWHS investigators will contribute to documentation of the role that structural racism plays in health disparities. [ABSTRACT FROM AUTHOR]
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- 2023
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48. Interrupting pathways to health inequities in citizen science health research.
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Pierce, Robin L
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EXPERIMENTAL design ,HUMAN research subjects ,SOCIAL determinants of health ,PATIENT selection ,RESEARCH methodology ,PUBLIC health ,RACE ,MEDICAL care research ,SOCIOECONOMIC factors ,HEALTH equity ,MEDICAL research ,GOAL (Psychology) - Abstract
Participatory research in multiple forms is rapidly gaining ground and stands to provide valuable benefits in the area of health research. Citizen science, an increasingly popular form of participatory research, aims to involve laypersons in knowledge production and, as such, can offer new insights that may not be readily accessible by the traditional scientific research enterprise. Heralded as an advance in the democratization of science, citizen science stands as a potential player in evidence generation. Yet, while citizen science offers advantages through its emphasis on lay participation in uncovering information likely to be pertinent to improving health outcomes, without deliberate attention to pathways to inequity and oversight, some aspects can operate to perpetuate or exacerbate health inequities. Drawing on health disparities literature to assist in identifying possible pathways, this work aims to provide support for greater attention to 'process', which would include active engagement with intersecting inequities as a way of interrupting pathways to health inequity. If citizen science is to be true to its moniker, it cannot be 'equity-neutral' in a society where structural or systemic inequities are present. It must be equity-promoting. In the health context, the concerns of justice evolve into concerns of differential health impacts. To accomplish this, equity and justice, as well as representation and fair process, become critically important. Accordingly, this paper foregrounds proactive commitment to equity by confronting the reality of social inequalities present in a given society and adapting the project accordingly to minimize downstream health inequities. [ABSTRACT FROM AUTHOR]
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- 2022
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49. Early Exposure to County Income Mobility and Adult Individual Health in the United States.
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Daza, Sebastian and Palloni, Alberto
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SOCIAL mobility ,LIFE expectancy ,HEALTH status indicators ,INCOME ,SOCIOECONOMIC factors ,SURVEYS ,SMOKING ,HEALTH equity ,LONGITUDINAL method ,ADULTS ,CHILDREN ,ADOLESCENCE - Abstract
Objectives Previous research in the United States suggests contextual income mobility may play a role in explaining the disparities between life expectancy in the United States and peer countries. This article aims to extend previous research by estimating the consequences of average individual exposure to mobility regimes during childhood and adolescence on adult health. Methods This study draws its data from two longitudinal datasets that track the county of residence of respondents during childhood and adolescence, the Panel Study of Income Dynamics and the National Longitudinal Survey of Youth 1997. We implement marginal structural models to assess the association of the average exposure to county income mobility on five health outcomes and behaviors. Results The results are only partially consistent with a systematic association between exposure to income mobility and health outcomes. Evidence obtained from the National Longitudinal Survey of Youth suggests less income mobility might increase the probability of smoking by age 30. Discussion The paper provides a precise assessment of the hypothesis that childhood exposure to income mobility regimes may influence health status through behavior later in life and contribute to longevity gaps. Only partial evidence on smoking suggests an association between income mobility and health, so we discuss potential reasons for the disparities in results with previous research. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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50. Regional inequalities in self-reported conditions and non-communicable diseases in European countries: Findings from the European Social Survey (2014) special module on the social determinants of health.
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Thomson, Katie H., Renneberg, Ann-Christin, McNamara, Courtney L., Akhter, Nasima, Reibling, Nadine, and Bambra, Clare
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HYPERTENSION epidemiology ,CARDIOVASCULAR diseases ,CONFIDENCE intervals ,DIABETES ,DISEASES ,HEALTH status indicators ,OBESITY ,PAIN ,POPULATION geography ,PROBABILITY theory ,RESEARCH funding ,STATISTICAL sampling ,SELF-evaluation ,SEX distribution ,SURVEYS ,TUMORS ,PSYCHOSOCIAL factors ,SOCIOECONOMIC factors ,HEALTH equity ,DISEASE prevalence ,HEALTH & social status ,DESCRIPTIVE statistics - Abstract
Background: Within the European Union (EU), substantial efforts are being made to achieve economic and social cohesion, and the reduction of health inequalities between EU regions is integral to this process. This paper is the first to examine how self-reported conditions and non-communicable diseases (NCDs) vary spatially between and within countries. Methods: Using 2014 European Social Survey (ESS) data from 20 countries, this paper examines how regional inequalities in self-reported conditions and NCDs vary for men and women in 174 regions (levels 1 and 2 Nomenclature of Statistical Territorial Units, 'NUTS'). We document absolute and relative inequalities across Europe in the prevalence of eight conditions: general health, overweight/obesity, mental health, heart or circulation problems, high blood pressure, back, neck, muscular or joint pain, diabetes and cancer. Results: There is considerable inequality in self-reported conditions and NCDs between the regions of Europe, with rates highest in the regions of continental Europe, some Scandinavian regions and parts of the UK and lowest around regions bordering the Alps, in Ireland and France. However, for mental health and cancer, rates are highest in regions of Eastern European and lowest in some Nordic regions, Ireland and isolated regions in continental Europe. There are also widespread and consistent absolute and relative regional inequalities in all conditions within countries. These are largest in France, Germany and the UK, and smallest in Denmark, Sweden and Norway. There were higher inequalities amongst women. Conclusion: Using newly available harmonized morbidity data from across Europe, this paper shows that there are considerable regional inequalities within and between European countries in the distribution of self-reported conditions and NCDs. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
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