2,086 results
Search Results
2. Opportunities for Nurses to Increase Parental Health Literacy: A Discussion Paper.
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Johnston, Robyn, Fowler, Cathrine, Wilson, Valerie, and Kelly, Michelle
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CHILD health services , *CHILDREN'S health , *DECISION making , *FAMILIES , *EVALUATION of medical care , *NURSES , *INFORMATION resources , *OCCUPATIONAL roles , *HEALTH literacy , *PARENTING education - Abstract
Most families can access a range of health information and advice. Information and advice sources often include nurses, the Internet, social media, books, as well as family and friends. While the immediate aim may be to find information, it can also be to assist with parenting skills, solve parenting problems or as part of decision-making processes about their child’s health. These processes are strongly influenced by the parent’s level of health literacy. Health literacy describes a person’s capacity to obtain and utilize health related information. Although there are numerous health literacy definitions all have clearly defined steps. These steps are: obtaining relevant information; then understanding this information; and finally being able to use the information to achieve the expected outcome. Previous research has linked low levels of parental health literacy with poorer child health outcomes. Given this link, increasing health literacy levels would be advantageous for both families and health services. Nurses working with families are in a position to support the family to increase their health literacy through the use of a variety of strategies. This article outlines how health literacy can influence the way parents seek help when they are concerned about child health issues, the relevance of parental health literacy for nurses and suggests some tools that could be used to support the increase of health literacy. [ABSTRACT FROM PUBLISHER]
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- 2015
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3. Health Literacy and the Millennium Development Goals: United Nations Economic and Social Council (ECOSOC) Regional Meeting Background Paper (Abstracted).
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United Nations Economic and Social Council (ECOSOC)
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PUBLIC health , *PUBLIC health communication , *HEALTH planning , *HEALTH literacy , *MEDICAL communication , *HEALTH education , *HEALTH promotion - Abstract
This paper uses a health literacy “lens” to look at key global health challenges, including the achievement of health-related Millennium Development Goals (MDGs) and the reduction of disease burden due to non-communicable diseases (NCDs). Available global evidence is summarized related to: assessment of the impact of health literacy on health and development; identification of measures for reporting progress; exploring ways to strengthen multisectoral collaboration at the national, regional, and international levels to undertake joint actions for increasing health literacy; finding ways to promote better access and use of information through information and communication technology and empowerment; and building capacity for sustained action to increase health literacy. Key action messages are identified. Findings presented informed the 2009 ECOSOC Ministerial Declaration on Health Literacy. [ABSTRACT FROM AUTHOR]
- Published
- 2010
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4. Barriers affecting the green transformation process in healthcare organizations.
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Thomas, Albi and Suresh, M.
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INNOVATION adoption ,SUSTAINABILITY ,HIGH technology ,STRUCTURAL models ,MEDICAL care ,HEALTH literacy - Abstract
This paper aims to 'identify', 'analyse', and 'categorise' the barriers affecting the green transformation process in healthcare using Total Interpretive Structural Modelling (TISM) and MICMAC analysis. The TISM technique was utilized to determine how the components interacted and the green transformation process barriers criteria were ranked and categorized using the MICMAC method. This study identified 11 barriers to green transformation process in healthcare organizations. The key factors identified in this study are inadequate strategic planning, financial barriers, and high technology adoption cost, information barriers, international issues in healthcare environmental sustainability, lack of supportive atmosphere. The TISM technique for healthcare is proposed in this paper as a novel attempt to address the subject of green transformation process barriers. This research will aid key stakeholders and academics in the better understanding the barriers affecting the green transformation process in healthcare organizations. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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5. Measurement properties of self-report instruments to assess health literacy in older adults: a systematic review.
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Slatyer, Susan, Toye, Christine, Burton, Elissa, Jacinto, Alessandro Ferrari, and Hill, Keith D.
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CAREGIVER attitudes ,MEDICAL databases ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,RESEARCH evaluation ,MEDICAL information storage & retrieval systems ,SELF-evaluation ,SYSTEMATIC reviews ,CONSUMER attitudes ,HEALTH literacy ,MEDLINE ,OLD age - Abstract
High health literacy (HL) is important to optimise health outcomes, particularly for older people (who are substantial consumers of health services) and their adult caregivers. The aim of this systematic review was to evaluate measurement properties of HL instruments tested with these population groups. Six databases (MEDLINE (OVID); CINAHL; EMBASE (OVID); PsycInfo; Scopus; Cochrane Library) were searched for studies evaluating eight measurement properties of HL tools administered to older people or their caregivers. Only studies evaluating multi-domain self-report HL tools were included in analyses, using the COSMIN methodology. From 4261 unique papers located, 11 met inclusion criteria; six reported measurement properties of three HL self-report tools administered to older people (HLQ, eHEALS, and HeLMS) so are reported in this review, none involved caregiver samples. The HLQ and HeLMS were rated "moderate," and eHEALS "low" for tool development. The HLQ, examined in four included studies, had the highest ratings and quality of evidence across the three measurement properties investigated in included papers. The HLQ was the most highly rated self-report HL tool of just three tested with older people. Further studies evaluating measurement properties of self-report HL tools used with older people and/or their caregivers are needed. Health literacy is important to optimise health outcomes of interventions for older people and their adult caregivers. Few studies have evaluated measurement properties of self-report / multi-domain health literacy tools for this population. The Health Literacy Questionnaire (HLQ) had the highest ratings and quality of evidence across the three measurement properties investigated in included studies, and is recommended for use in rehabilitation settings. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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6. Call for papers: special issue on health communication.
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Simpson, Mary, McAllum, Kirstie, and Fox, Stephanie
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MEDICAL care ,HEALTH literacy ,SOCIAL forces ,INTERPERSONAL communication ,COVID-19 pandemic ,HEALTH self-care ,DIGITAL communications - Published
- 2020
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7. Learning letters, not language: The nature and quality of language and literacy apps used during remote learning with preschool children in the United States.
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Hadley, Elizabeth Burke, McKenna, Meaghan, and Hull, Katharine
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DISTANCE education ,PRESCHOOL children ,LANGUAGE acquisition ,HEALTH literacy ,HEALTH websites ,COVID-19 pandemic ,EARLY childhood educators ,READING comprehension - Abstract
During the COVID-19 pandemic, early childhood educators (ECEs) made a rapid pivot to remote instruction. Much of this instruction was facilitated by digital learning resources, but the nature and quality of these resources for children's language and literacy learning is an open question. This paper draws on a national U.S. survey of ECEs during the second pandemic school year (2020–2021), which asked them to report on the apps and websites they asked children to use during remote learning. We then engaged in a content analysis of the apps/websites used most frequently, evaluating their quality along several dimensions, including support for a full range of literacy competencies, equity, and accessibility. Survey results indicated that preschool children were asked to use a wide range of apps, but six were used most frequently: YouTube, Seesaw, Starfall, Epic, Boom Cards, and ABC Mouse. The content analysis indicated that most apps supported code-focused literacy skills, but had less capacity to foster oral language and comprehension. Apps also presented few opportunities to approximate the active, hands-on learning characteristic of in-person preschool. Our analysis points to the pressing need for teacher guidance in the selection and use of apps that provide comprehensive support for language and literacy. Prior State of Knowledge: Prior studies have investigated the quality of apps for young children's literacy learning, and several studies have investigated the nature and frequency of remote instruction for children attending preschool during COVID-19. Novel Contributions: The present study reports valuable information about which language and literacy apps early childhood educators asked children to use during remote learning and provides a comprehensive evaluation of those apps, including dimensions such as equity and accessibility that have been previously under-researched. Practical Implications: One important implication for administrators is that teachers need support in finding and learning to use apps that align more closely with early learning standards. Teachers can use the QuELLA rubric in this paper as a tool for evaluating apps. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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8. Health literacy continuing education courses and tools for healthcare professionals: A scoping review.
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Efthymiou, Areti, Kalaitzaki, Argyroula, Kondilis, Barbara, and Rovithis, Michael
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HEALTH literacy ,MEDICAL education ,HUMAN services programs ,MEDICAL fellowships ,GREY literature ,RESEARCH funding ,CINAHL database ,SYSTEMATIC reviews ,MEDLINE ,PROFESSIONS ,LITERATURE reviews ,CONTINUING education ,ONLINE information services ,PSYCHOLOGY information storage & retrieval systems ,PROFESSIONAL competence - Abstract
Strengthening the health literacy (HL) skills of the healthcare users is a multicomponent process involving the users, the healthcare professionals, the stakeholders, and the environment. Health organizations, universities, private initiatives, and funded projects focused on developing and implementing continuing education courses target at increasing healthcare professionals' HL. This scoping review aimed at reporting the HL continuing education courses for healthcare professionals to enhance their knowledge and skills in identifying and supporting healthcare users with limited HL, and particularly, older people. This review followed the five stages by Arksey and O'Malley framework and the guidelines by Joanna Briggs Institute for scoping reviews. Peer-reviewed papers and gray literature published between years 2000 to 2020 were included in this bibliometric search utilizing four electronic databases (PUBMED, MEDLINE, CINAHL, PSYCHINFO, and Opengrey). Twenty-seven (27) papers met the criteria, including twenty-one (21) full-texts and six (6) other records (website contents, eLearning, and funded projects). There is a lack of HL tools that address the training needs of healthcare professionals working with older adults. Tailored HL tools could benefit healthcare professionals' clinical work by improving their communication with older adults. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Accessibility, Readability, and Document Complexity of Medicaid Enrollment Materials and Resources.
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An, Bryan, Prabu, Varsha, and Wallace, Lorraine S.
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READABILITY (Literary style) ,ENGLISH language ,INTERNET ,PUBLIC administration ,HEALTH literacy ,HELPLINES ,SPANISH language ,INFORMATION resources ,MEDICAID ,DATA analysis software ,INSURANCE - Abstract
Medicaid enrollment and retention among eligible populations remains a challenge. We assessed health literacy-related features and content of Internet-based state Medicaid enrollment materials and resources. In February 2021, using established tools, we evaluated paper Medicaid enrollment applications and scope of enrollment resources (on-line enrollment option, toll-free telephone assistance, live chat function, instructional and/or informational audiovisuals). Forty (78.4%) English- and 28 (54.9%) Spanish-language paper Medicaid enrollment applications were available. Overall, document complexity was high as a large volume of information is required to apply for Medicaid coverage. An on-line Medicaid enrollment option was nearly universal. Medicaid government platforms were more likely to provide toll-free telephone assistance (n = 34; 66.7%) than a live chat function (n = 10; 19.6%). Eleven (n = 11; 21.6%) government platforms provided an instructional and/or informational Medicaid enrollment audiovisual resource. Our work suggests the need for states to leverage technology in creation of resources to match language and cultural needs of the diverse US population. Translation to Health Education Practice: Access to continuous health insurance coverage, comprehensive clinical care services, and evidence-based health education programming combined are essential in promoting both individual and community health. [ABSTRACT FROM AUTHOR]
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- 2022
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10. ‘We all have to do our bit': literacy practice, perceptions and policy in Irish primary and post-primary schools.
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Burke, Patrick
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YOUNG adults , *DIGITAL literacy , *PRIMARY schools , *LITERACY , *HEALTH literacy , *GRAND strategy (Political science) - Abstract
Over a decade has passed since the publication and enactment of the first National Literacy and Numeracy Strategy (NLNS; Department of Education and Skills. 2011.
Literacy and Numeracy for Learning and Life: The National Strategy to Improve Literacy and Numeracy among Children and Young People 2011–2020 . Dublin: Department of Education and Skills). This paper provides insights into the reality of its enactment across a range of primary and post-primary settings. Drawing on qualitative data from interviews (n = 30) and quantitative data from a survey (n = 455) of primary and post-primary teachers, the paper charts commonalities and differences across these two sectors. Qualitative data indicated that the NLNS was successful in putting literacy on the agenda, with a range of consequent policy and practices reported by teachers. The teaching of literacy tended to be grounded in largely traditional conceptualisations of print-based reading and writing, with limited reference to digital or multimodal practices. Quantitative data highlighted the divergence of opinions between teachers from both sectors, particularly in relation to students’ literacy skills on entry to post-primary school and in DEIS settings. As policymakers prepare for the enactment of a successor strategy (Government of Ireland. 2024a.Ireland’s Literacy, Numeracy and Digital Literacy Strategy 2024–2033: Every Learner from Birth to Young Adulthood . Dublin: Government of Ireland), the paper concludes by addressing implications for the next decade of literacy-focussed policy in Irish schools. [ABSTRACT FROM AUTHOR]- Published
- 2024
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11. Sustainable or Pseudo Development—Looking at Natural Resource Management in a Developing State, Kerala, India.
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Nikhil Raj, P. P. and Azeez, P. A.
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NATURAL resources management ,SUSTAINABLE development ,ENVIRONMENTAL protection ,ENVIRONMENTAL security ,ENVIRONMENTALISM ,HEALTH literacy - Abstract
India's mainstream political discourse is yet to grant genuine space to environmental issues or sustainable development; their priority being economic development. This is despite noteworthy environmental conservation movements and civil society organizations committed to the cause of the environment. Although the country has an array of competent environmental regulations, the environmental sustainability of the development programmes remains the least addressed. The case is not different for the Kerala state, despite its high literacy and human development matching many developed countries. The "Kerala Development Model" has been highly praised for its high-level social development. The apparently well-informed population of the state also outscores most states regarding environmental identity. In this context, this paper explores the Athirappilly hydroelectric Project pursued by the Kerala State Electricity Board Limited and other interest groups. It appears that the contemporary socio-economic-political scenario is urging the state's highly literate and politicized public to a post-nature or post-truth society increasingly engrossed in a consumerist lifestyle at the cost of the unique environmental setup. The present study also highlights how the Kerala population, once dominated by socialistic/liberal ideologies with egalitarian values, has been riding the neoliberal development wave giving little importance to nature and long-term ecological security. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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12. Going Paperless? Issues in Converting a Surgical Assessment Tool to an Electronic Version.
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Dudek, Nancy L., Papp, Steven, and Gofton, Wade T.
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ACADEMIC medical centers ,STUDY & teaching of medicine ,OPERATIVE surgery ,WASTE products ,NATIONAL competency-based educational tests ,HEALTH literacy ,ELECTRONIC health records - Abstract
Construct: The competence of a trainee to perform a surgical procedure was assessed using an electronic tool.Background: “Going paperless” in healthcare has received significant attention over the past decades given the numerous potential benefits of converting to electronic health records. Not surprisingly, medical educators have also considered the potential benefits of electronic assessments for their trainees. What literature exists on the transition from paper-based to electronic-based assessments suggests a positive outcome. In contrast, work done examining the transition to and implementation of electronic health records has noted that hospitals who have implemented these systems have not gone paperless despite the benefits of doing so.Approach: This study sought to transition a paper-based assessment tool, the Ottawa Surgical Competency Operating Room Evaluation (which has strong evidence for validity) to an electronic version, in three surgical specialties (Orthopedic Surgery, Urology, General Surgery). However, as the project progressed, it became necessary to change the focus of the study to explore the issues of transitioning to a paperless assessment tool as we identified an extremely low participation rate.Results: Over the first 3 months 440 assessment cases were logged. However, only a small portion of these cases were assessed using the electronic tool (Orthopedic Surgery = 16%, Urology = 5%, General Surgery = 0%). Participants identified several barriers in using the electronic assessment tool such as increased time compared to the paper version and technological issues related to the log-in procedure.Conclusions: Essentially, users want the tool to be as convenient as paper. This is consistent with research on electronic health records implementation but different from previous work in medical education. Thus, we believe our study highlights an important finding. Transitioning from a paper-based assessment tool to an electronic one is not necessarily a neutral process. Consideration of potential barriers and finding solutions to these barriers will be necessary in order to realize the many benefits of electronic assessments. [ABSTRACT FROM PUBLISHER]
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- 2015
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13. Parents' understandings of social media algorithms in children's lives in England: Misunderstandings, parked understandings, transactional understandings and proactive understandings amidst datafication.
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Das, Ranjana
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PARENT attitudes ,SOCIAL media ,PARENTS ,FAMILY communication ,PROTOCOL analysis (Cognition) ,ALGORITHMS ,AGING parents ,HEALTH literacy - Abstract
In this paper, I ask how parents understand and make sense of their children's relationships with social media algorithms. Drawing upon 30 think-aloud interviews with parents raising children aged 0 to 18 in England, in this paper, I pay attention to parents' understandings of and consequent approaches to platform algorithms in relation to their children's lives. I locate this work within user-centric research on people's understandings of algorithms, and research about parents' perspectives on data and datafication in relation to sharenting. Through my data, I draw out four modes – misunderstandings, parked understandings, transactional understandings and pro-active understandings. I suggest that parents' often flawed understandings of their children's myriad interfaces with algorithms deserve scrutiny not through a lens of blame or individualised parental (ir) responsibility but within cross-cutting contexts of parenting cultures and families' diverse contextual resources and restraints. I conclude by highlighting attention to parents' approaches to algorithms in children's lives as critical to parents' data and algorithm literacies. Prior State of Knowledge: Parents in diverse contexts try to understand and support their children's digital lives, and also often share content about their children on a variety of platforms. Prior research has shed significant light on the datafication of childhood. Novel Contributions: This study investigates parents' diverse understandings of algorithms underlying social media platforms and the ways in which they approach algorithms in their children's lives. Practical Implications: Parents' knowledge about algorithms and datafication is uneven. Policymakers need to better support adult media literacies, including data and algorithm literacies. Schools' communication to families and carers could also become key vehicles to raise awareness about datafication. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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14. Accounting for value-based management of healthcare services: challenging neoliberal government from within?
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Triantafillou, Peter
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VALUE-based management ,VALUE-based healthcare ,NEOLIBERALISM ,HEALTH literacy ,HOSPITAL administration - Abstract
Copyright of Public Money & Management is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2022
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15. Un(ac)countable no-bodies: the politics of ignorance in global health policymaking.
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Lee, Po-Han
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HEALTH policy ,SOCIOLOGY ,SOCIAL determinants of health ,PRACTICAL politics ,WORLD health ,HEALTH literacy ,SEXUAL minorities ,HEALTH attitudes ,POLICY sciences ,HEALTH equity ,HEALTH promotion - Abstract
By analysing debates between member states of the World Health Organisation (WHO) over health inequities experienced by sexual and gender minorities (SGMs) from 2013 through to 2015 and 2016, this paper interrogates a WHO decision to 'do nothing', and the relationship between this decision and the production of ignorance and non-knowledge. This paper problematises state representatives' discursive practices regarding the lack of evidence on SGM health inequalities, drawing on the sociology of ignorance. Informed by the sociology of nothing, two analytical categories – non-recognition (omissive) and mis-recognition (commissive) of SGM communities – are proposed to critically understand the production of 'no-bodies' and the tolerance of the lack of evidence. The lack of evidence, rather than prompting WHO action, was used as a rationale for intentionally neglecting the health concerns of particular social groups due to their invisibility in health research. Therefore, the paper argues that the lack of evidence in itself is symptomatic of the existence of SGM health inequities, which require the WHO to take action such as formally expressing concerns about and endorsing research on the topic. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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16. Retrospective review of the efficacy for sublingual ketamine in the treatment of chronic low back pain defined by a cause and central functional pain symptom focused clinical model.
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Johnson, David, Feng, Lanxuan, and Johnson, Charlotte
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HEALTH literacy , *MEDICAL logic , *LIFESTYLES , *CHRONIC pain , *KETAMINE , *SUBLINGUAL drug administration , *OUTPATIENT services in hospitals , *PATIENT safety , *QUALITATIVE research , *DISEASE management , *EXERCISE therapy , *REHABILITATION , *MOVEMENT disorders , *RETROSPECTIVE studies , *TERTIARY care , *DESCRIPTIVE statistics , *TREATMENT duration , *FUNCTIONAL status , *LONGITUDINAL method , *DRUG efficacy , *MATHEMATICAL models , *CONCEPTUAL structures , *MEDICAL records , *ACQUISITION of data , *PAIN management , *THEORY , *LUMBAR pain , *EVALUATION - Abstract
Chronic low back pain is a leading cause of disability worldwide. A clinical model for its cause is lacking. Defining a cause based clinical model and a framework of understanding back pain in terms of peripheral structural and central functional pain is essential for optimal management. We describe the results of the largest published audit of 41 chronic low back pain patients, receiving outpatient sublingual ketamine therapy for defined central functional pain along with conventional peripheral structural pain management. Our clinical model assigns Movement Dysfunction as the primary cause for low back pain symptoms and restores it with Movement Therapy focused rehabilitation which is also defined. Patients were derived from a tertiary single neurosurgical specialist practice in Brisbane Australia over a three year period. Severe pain and disability measurements more than halved and only 13% of patients ceased ketamine prematurely due to predominantly non-sinister side effects common to all pharmaceutical therapies. All other surveyed metrics of utility were highly favourable in this challenging cohort of chronic back pain patients biased to poor outcomes. Outpatient ketamine maintains high efficacy and safety used in conjunction with a unique clinical model that describes chronic low back pain. This paper builds on our previous publications that describe the disease of movement dysfunction as an integral factor to the development of a cause based clinical model for the condition of chronic low back pain symptoms. Our clinical application of this model, applying the necessary dual approach of controlling symptoms arising from peripheral structural pain and central functional pain in conjunction with elimination of root causation has shown favourable outcomes in patients with high levels of pain and disability based on their tertiary referral origin and high Oswestry Disability Scores. Removing chronic low back pain from its position as one of the world's leading causes of pain and disability is more likely if the rehabilitation industry can replicate and test treatment algorithms based around established clinical models of disease which is the important subject of this paper. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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17. Readability of patient education material in stroke: a systematic literature review.
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Ahn, Aaron B., Kulhari, Sajal, Karimi, Amir, Sundararajan, Sophia, and Sajatovic, Martha
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PATIENT education ,HEALTH literacy ,INTERNET searching ,TEACHING aids ,READABILITY (Literary style) ,HEALTH ,INFORMATION resources ,TREATMENT effectiveness ,MEDLINE ,STROKE rehabilitation ,CONVALESCENCE ,ONLINE information services ,ACCESS to information - Abstract
Stroke education materials are crucial for the recovery of stroke patients, but their effectiveness depends on their readability. The American Medical Association (AMA) recommends patient education materials be written at a sixth-grade level. Studies show existing paper and online materials exceed patients' reading levels and undermine their health literacy. Low health literacy among stroke patients is associated with worse health outcomes and decreased efficacy of stroke rehabilitation. We reviewed the readability of paper (i.e brochures, factsheets, posters) and online (i.e American Stroke Association, Google, Yahoo!) stroke patient education materials, reading level of stroke patients, accessibility of online health information, patients' perceptions on gaps in stroke information, and provided recommendations for improving readability. A PRISMA-guided systematic literature review was conducted using PUBMED, Google Scholar, and EbscoHost databases and "stroke", "readability of stroke patient education", and "stroke readability" search terms to discover English-language articles. A total of 12 articles were reviewed. SMOG scores for paper and online material ranged from 11.0 - 12.0 grade level and 7.8 - 13.95 grade level respectively. Reading level of stroke patients ranged from 3rd grade to 9th grade level or above. Accessibility of online stroke information was high. Structured patient interviews illustrated gaps in patient education materials and difficulty with comprehension. Paper and online patient education materials exceed the reading level of stroke patients and the AMA recommended 6th grade level. Due to limitations in readability, stroke patients are not being adequately educated about their condition. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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18. Erasure and agency in sexuality and relationships education and knowledge among trans young people in Australia.
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Riggs, Damien W., Bellamy, Roz, and Wiggins, Jeremy
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SAFETY , *INTIMACY (Psychology) , *GENITALIA , *TASK performance , *PUBERTY , *INTERVIEWING , *SEX education , *HEALTH literacy , *EXPERIENCE , *PSYCHOSOCIAL factors , *INTERPERSONAL relations , *RESEARCH funding , *HEALTH , *INFORMATION resources , *ACCESS to information , *NEEDS assessment , *RESPECT , *DATA analysis software , *CONTENT analysis , *TRANSGENDER people , *STORYTELLING - Abstract
Sexuality and relationship education (SRE) for trans young people is fraught with ongoing institutional and informational erasure, even as trans young people display considerable agency in navigating their SRE needs. This paper reports on a survey of 112 Australian trans young people, who shared their experiences of SRE (in terms of delivery and content), and their views on three story completion tasks where they were asked to respond to prompts about three fictional stories focused on trans young people (and for some their cisgender partners) and intimacy. Participants reported that SRE was delivered in class and focused on puberty and anatomy, although many participants accessed SRE information informally. Participants overwhelmingly reported the erasure of trans-specific SRE content and suggested that SRE content should include a trans focus. Responses to the story completion task emphasised the agency of the fictional trans young people in asserting their boundaries, deserving respect, being knowledgeable about their bodies and ensuring their safety. Fictional cisgender young people in the story completion tasks were expected to be respectful, and to be guided by trans people (but also to educate themselves). The paper concludes with recommendations for harnessing trans young people's agency in the context of SRE. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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19. The use of e-& mHealth technology-based interventions to improve modifiable lifestyle risk factors amongst individuals with severe mental illness (SMI): a scoping review.
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Gill, Parveen, King, Kylie, and Flego, Anna
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MENTAL illness treatment ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,MEDICAL technology ,HEALTH status indicators ,SEVERITY of illness index ,HEALTH literacy ,HEALTH behavior ,DESCRIPTIVE statistics ,LITERATURE reviews ,MEDLINE ,TELEMEDICINE ,BEHAVIOR modification - Abstract
The physical health of individuals with severe mental illness (SMI) is generally far worse than the general population. Emerging electronic and mobile health (e-& mHealth) technology may provide new ways to offer interventions in order to reduce modifiable lifestyle risk factors in this vulnerable population. This scoping review aimed to assess the state of knowledge about the use of e-& mHealth technology-based interventions to address modifiable lifestyle risk factors amongst individuals with SMI. EMBASE, Medline (Ovid) and PsycINFO were searched to identify papers published up to July 2021. Extended PRISMA guidelines for scoping reviews were followed to report the results. A total of 85 papers were identified, of which 10 met the inclusion criteria. These interventions were effective in bringing about positive and clinically significant impacts in weight loss, diet, smoking cessation, and physical activity for some participants. However, many participants did not experience these benefits. Overall, participants indicated that they were satisfied with, and receptive to e-& mHealth interventions. The evidence base for the use of technology-based interventions to improve modifiable lifestyle risk factors for people with SMI is very limited. More rigorous research on the use of technological tools is needed to determine how more users could benefit from them. Further research and intervention development should be undertaken in collaboration with people with SMI to ensure that unique requirements and preferences are included. What is already known about this topic: The rates of mortality for individuals with SMI are several times those of the general population. Reducing the major modifiable lifestyle risk factors for noncommunicable diseases (NCDs) among those with SMI is crucial. The use of emerging e-& mHealth technologies could expand the reach of services to improve modifiable lifestyle risk factors among this population. What this paper adds: More studies are currently required to build on the current evidence base regarding the feasibility and effectiveness of e-& mHealth technology to improve the modifiable lifestyle risk factors of those with SMI. Emerging research on the use of e-& mHealth technology to improve modifiable lifestyle risk factors of those with SMI looks promising. Findings from research can inform the design of future health interventions targeting this vulnerable patient population. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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20. Estimating the effect of physical exercise on juveniles' health status and subjective well-being in China.
- Author
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Guan, Jing and Tena, J.D.
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SUBJECTIVE well-being (Psychology) ,PROPENSITY score matching ,ADULTS ,STUDENT health ,TEENAGERS ,HEALTH literacy - Abstract
Despite the increasing interest in analysing determinants of health status and subjective well-being, existing research has been mainly confined to developed countries' adult population. This paper estimates the effect of physical exercise on the health and happiness of Chinese adolescent. Using a comprehensive database from the China Education Panel Survey (number of observations: 5975), different methodologies, including instrumental variable and propensity score matching approaches, are applied. We find that physical exercise has a significantly positive effect on health. Our results also suggest some evidence of a positive impact of exercise on well-being. This effect is robust to different econometric approaches, exercise participation measurements, and characteristics of students and schools and families. However, exercise benefits become evident even when it is practised with low frequency, i.e. one day per week. Moreover, physical exercise exerts a higher impact on students with poorer health and higher levels of unhappiness. Our results highlight the beneficial impact of political decisions aiming to incentivize physical exercise to improve adolescents' health status in developing countries. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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21. Development and evaluation of a web-based assent for adolescents considering an HIV vaccine trial.
- Author
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Blake, Diane R., Lemay, Celeste A., Maranda, Louise S., Fortenberry, J. Dennis, Kearney, Margaret H., and Mazor, Kathleen M.
- Subjects
HIV prevention ,CHI-squared test ,INFORMED consent (Medical law) ,MEDICAL research ,PSYCHOLOGICAL tests ,QUESTIONNAIRES ,REGRESSION analysis ,RESEARCH funding ,T-test (Statistics) ,VIRAL vaccines ,WORLD Wide Web ,RANDOMIZED controlled trials ,HEALTH literacy ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
HIV vaccine trials with minors will likely require parental permission and informed assent from adolescents. For this to be a valid process, the information needs to be presented in a manner that promotes adolescent comprehension. Previous studies suggest that adolescent comprehension of assent is often insufficient. We developed an interactive web-based assent that included interspersed quiz questions for a hypothetical HIV vaccine trial. Efficacy of the web-based assent was compared to a standard paper assent with and without interspersed questions. One hundred twenty teen participants, ages 15–17 years, from five community organizations were randomized to self-administered web-based assent (n= 60) or investigator-administered paper assent with (n= 29) or without (n= 31) interspersed quiz questions. After reviewing the assent, participants completed a 27-item comprehension test. Comprehension scores were compared between groups. The mean number of correctly answered questions were 21.2 for the full paper group and 21.1 for the web-based group (t118= –0.08,p= 0.94). Scores were 20.2 for the paper without interspersed questions sub-group and 22.1 for the paper with interspersed questions sub-group (t58= 1.96,p= 0.055). Participants in the web-based group performed as well on the comprehension test as those in the paper group, and those in the paper with questions sub-group performed better than those in the paper without questions sub-group, suggesting that interspersed quiz questions may improve understanding of a traditional paper assent. The minimal investigator time and standardized administration of the web-based assent as well as ability to tailor the assent discussion to topics identified by incorrect comprehension test responses are advantages worthy of further investigation. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
22. The paradox of play: How Dutch children develop digital literacy via offline engagement with digital media.
- Author
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Swart, Joëlle, Stegeman, Hanne, Frowijn, Lucy, and Broersma, Marcel
- Subjects
DIGITAL literacy ,DIGITAL technology ,DIGITAL media ,DUTCH people ,CHILD development ,SOCIOCULTURAL theory ,HEALTH literacy ,VIRTUAL communities ,SOCIAL norms - Abstract
This paper considers how children develop digital literacy through offline practices of play. By inventing games, children rehearse and build up the competences, knowledge, and skills necessary to engage with online technologies in later life. While prior studies on digital literacy and play have explored children's digital interactions with media, children's play around media is increasingly traversing online-offline boundaries. Consequently, we argue that to fully comprehend how children build up understandings of the digital, paradoxically, we should also consider how they engage with digital media in offline settings. Drawing upon participants observations of 8–12-year-old children attending afterschool childcare (N = 77) and in-depth interviews with children, their parents, and pedagogical staff in The Netherlands, we develop a typology of practices of converged play through which children replicate, remix, and re-enact digital media in everyday life. Our findings emphasize that children's digital literacy is foremost a social practice developed primarily in relation with others, within and beyond the digital realm. Thus, we argue that taking a sociocultural and non-media centric approach to play is vital for understanding children's development of digital literacy, in a way that does justice to children's continuous exposure to and immersion in digital media in everyday life. Prior state of knowledge: Play is instrumental for how children develop the ability to deal with digital media. Existing research finds that by inventing games, children practice and build up the digital literacy necessary to navigate an increasingly digital society in their later life. Novel contributions: Prior research has primarily focused on how children's online interactions with media foster their digital competencies, knowledge, and skills. We find that children's engagement with the digital in offline settings is equally essential for understanding how children build digital literacy. Practical implications: This study has practical implications for pedagogical staff, parents, and teachers aiming to facilitate children's digital literacy, indicating that facilitating offline play around digital media can help children learn informational skills, knowledge about media production and social norms around technology. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
23. Patient Experience of Physical Restraint in the Acute Setting: A Systematic Review of the Qualitative Research Evidence.
- Author
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Douglas, Lisa, Donohue, Gráinne, and Morrissey, Jean
- Subjects
PATIENT experience ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,ONLINE information services ,HOSPITAL patients ,SYSTEMATIC reviews ,PATIENTS' attitudes ,COMPASSION ,HEALTH literacy ,RESTRAINT of patients ,CRITICAL care medicine ,MEDLINE ,HEALTH equity ,MENTAL health services ,THERAPEUTIC alliance ,PATIENT safety - Abstract
The use of physical restraint is a contentious practice in the acute mental health setting. There are a plethora of guidelines surrounding the safe use of restraint. However, there is a scarcity of literature dedicated specifically from the perspective of the patient. The existing literature suggests that there are serious physical and psychological implications associated with the use of physical restraint for both mental health patients and nurses alike. The debate surrounding this practice has been intensified by the compelling evidence suggesting that the application of restraint is not compatible with the values of recovery in mental health care. To influence clinical practice that governs the use of restraint, it is essential to explore patient experiences of its use. Therefore, this review aims to explore patient experiences of physical restraint in the acute setting. PubMed, CINAHL and PsycINFO were systematically searched using keywords; "physical restraint" and "patient experience" and "acute setting". The search yielded n = 482 papers in total. Following the application of rigorous inclusion and exclusion criteria and data extraction, a total of n = 9 papers were considered suitable for the systematic review. Quality was assessed using the MMAT instrument. Following analysis, three themes were identified: 'the bio-psychosocial impact of restraint on patients', 'the impact of restraint on the therapeutic relationship' and 'patient needs concerning the use of restraint'. Future research opportunities have been identified that will add to the body of evidence in developing appropriate health interventions and supports for this population. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
24. Situational expectations and surveillance in families affected by dementia: organising uncertainties of ageing and cognition.
- Author
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Fletcher, James Rupert
- Subjects
DEMENTIA risk factors ,PUBLIC health surveillance ,AGE distribution ,COGNITION ,INTERVIEWING ,DEMENTIA patients ,PATIENTS' attitudes ,FAMILY attitudes ,HEALTH literacy ,AGING ,DEMENTIA ,SYMPTOMS - Abstract
Recent political processes have rendered people with dementia an increasingly surveilled population. Surveillance is a contentious issue within dementia research, spanning technological monitoring, biomarker research and epidemiological data gathering. This paper explores surveillance in the relationships of people affected by dementia, how older relatives both with and without diagnoses are surveilled in everyday interactions, and the importance of expectations in guiding surveillance. This paper presents data from 41 in-depth interviews with people affected by dementia living in the community in the United Kingdom. Agedness was a key contributor to expectations that a person may have dementia, based on previous experiences, media accounts and wider awareness. Expectations provoked surveillance in interactions, with participants looking for signs of dementia when interacting with older relatives. Older people also enacted self-surveillance, monitoring their own behaviour. Various actions could be attributed to dementia because interpretation is malleable, partly vindicating expectations while leaving some uncertainties. Expectant surveillance transformed people's experiences because they organised their own actions, and interpreted those of others, in line with pre-existing meanings. The ability to interpret behaviours to fit expectations can bring coherence to uncertainties of ageing, cognition and dementia, but risks ascribing dementia to many older people who straddle those uncertainties. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
25. Meanings and functions of different types of heart images in the communication of doctors and patients.
- Author
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Karlsson, Anna-Malin and Bellander, Theres
- Subjects
CARDIAC imaging ,PHYSICIANS ,MEDICAL communication ,HEART abnormalities ,DIAGNOSTIC imaging - Abstract
Images in medical communication are appreciated by both professionals and patients, but we know little about how they are actually used in clinical practice and in the learning processes of patients. This qualitative study investigates the use and the meaning potential of two different types of heart images: the hand-drawn doctor's sketch and the digital illustration from the web. The analysis starts with how these are recontextualised in social media, tracks them back to their original contexts and finally explores their material resources. The analytical perspective is that of social semiotics and multimodal discourse and interaction analysis. While the hand-drawn sketch is recontextualised as a witness of the specific consultation, the digital illustration is used to focus on the heart defect as such. It is also shown how the act of drawing works as a means for framing and structuring the consultation, slowing down the pace and reducing context and detail and thus focussing on what is uniquely relevant. While the digital and more realistic illustration is technically neutral and objective and is free from unique context, the drawing on paper is physically tied to its context of origin, which is also its main resource. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
26. Development of usable applications featuring QR codes for enhancing interaction and acceptance: a case study.
- Author
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Hernando, Rubén and Macías, José A.
- Subjects
TEACHER-student relationships ,USER-centered system design ,MULTIMEDIA systems ,CONFIDENCE intervals ,USER interfaces ,MOBILE apps ,COLLEGE teacher attitudes ,SOFTWARE architecture ,SURVEYS ,UNDERGRADUATES ,HEALTH literacy ,INFORMATION resources ,RESEARCH funding ,DESCRIPTIVE statistics ,INFORMATION retrieval ,QUESTIONNAIRES ,SCALE analysis (Psychology) ,TECHNOLOGY ,STUDENT attitudes - Abstract
QR codes provide potential opportunities to improve interaction in different areas of application. Even so, this technology has been utilised in punctual and specific standalone applications, being barely applied to broader contexts, such as the educational one, where different scenarios can be considered to take advantage of the same QR-code approach. In this paper, key issues for the development of applications that utilise QR codes to improve sharing and availability of resources are presented, specifically focusing on improving interaction and acceptance. In this way, a holistic approach has been developed where the system is aimed at improving the interaction between educators and students. On the one hand, educators use a web interface to manage educational resources and announcements and automatically generate QR codes. On the other hand, students scan those QR codes using a mobile device, obtaining updated information related to their lectures. This scenario has been evaluated by educators and students, obtaining good results in terms of acceptance, cognitive burden, and overall usability. The approach provides development clues and the evaluation method that can be applied to different contexts, thus representing a generalisable solution. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
27. Workers perception of and coping with the health risks of informal electronic waste recycling in Ghana.
- Author
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Asibey, Michael Osei, King, Rudith Sylvana, Lykke, Anne Mette, Inkoom, Daniel K.B., and Darko, Godfred
- Subjects
WASTE recycling ,ELECTRONIC waste ,ELECTRONICS recycling ,RISK perception ,HEALTH literacy ,EMPLOYEE attitudes ,PERSONAL protective equipment ,HEALTH attitudes - Abstract
Electronic waste (e-waste) contains heavy metals, which pose enormous human health risks if not properly handled. Evidence shows that the unsafe and crude practices at recycling sites expose workers to several short – and long-term health risks. Considering that different activities pose different risks, this paper examined the health perceptions and attitudes of workers along the e-waste treatment continuum in two informal recycling sites in Ghana; Agbogbloshie (Accra) and Dagomba Line (Kumasi). Using semi-structured interviews with 255 workers, the findings show that workers generally are aware of the "physical" risks associated with their practices but perceived the associated health risks as a normal incident, which required no intervention. Cases of cuts, headache, burns, dizziness, fatigue and muscle pains were the most reported ailments. Knowledge of health risks was obtained by chance and was not activity-dependent. Few of the workers generally use of personal protective equipment (PPE) and adopted safe recycling methods. The use of PPE was influenced by several factors but most importantly awareness of health risks and the type of activity a worker undertakes. This paper therefore calls for continuous training and risk communication on associated risks of unsafe practices and the need to use appropriate PPE. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
28. Editorial.
- Author
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Baybutt, Michelle
- Subjects
HEALTH education ,AWARDS ,SERIAL publications ,HEALTH literacy ,HEALTH promotion - Published
- 2022
- Full Text
- View/download PDF
29. Data Visualization and Advocacy for Sexual and Gender Minority Health.
- Author
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Mueller, Janina
- Subjects
SEXUAL minorities ,HEALTH of minorities ,DATA visualization ,SOCIAL advocacy ,HEALTH literacy ,SEXUAL health ,NEEDS assessment - Abstract
Data visualizations can be a powerful way to educate and advocate for diversity, equity and inclusion (DEI). Teaching data visualization concepts and data literacy skills around a specific topic can be particularly impactful. This paper presents an approach to data visualization and advocacy centered around the issue of sexual and gender minority health. Not only are we witnessing continuous attacks on LGBTQIA + rights in the United States, in the healthcare setting, the needs of LGBTQIA + patients are often not met due to the insufficient training of healthcare providers. There is a need to better understand the health challenges and barriers that sexual gender minority patients face, and to advocate for these patients both inside and outside of the healthcare setting. This paper explains some of these health challenges and barriers and offers a pedagogical approach for DEI advocacy that is based in critical map and data librarianship, and social justice advocacy. The article presents a lesson plan that combines data literacy and data visualization concepts with community needs assessments—such as walking and windshield surveys – thereby proposing a way for educators to advocate for marginalized people. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
30. 'Hawa' and 'resistensiya': local health knowledge and the COVID-19 pandemic in the Philippines.
- Author
-
Tan, Michael Lim and Lasco, Gideon
- Subjects
COMMUNICABLE disease treatment ,VITAMIN therapy ,PREVENTION of communicable diseases ,HEALTH policy ,CULTURE ,COMMUNICABLE diseases ,CONVERSATION ,INTERVIEWING ,ANTHROPOLOGY ,PUBLIC health ,HEALTH literacy ,ETHNOLOGY research ,ATTITUDES toward illness ,HEALTH attitudes ,IMMUNITY ,PARTICIPANT observation ,SOCIAL distancing ,COVID-19 pandemic - Abstract
Understanding people's concepts of illness and health is key to crafting policies and communications campaigns to address a particular medical concern. This paper gathers cultural knowledge on infectious disease causation, prevention, and treatment the Philippines that are particularly relevant for the COVID-19 pandemic, and analyzes their implications for public health. This paper draws from ethnographic work (e.g. participant observation, interviews, conversations, virtual ethnography) carried out individually by each of the two authors from February to September 2020. The data was analyzed in relation to the anthropological literature on local health knowledge in the Philippines. We find that notions of hawa (contagion) and resistensiya (immunity) inform people's views of illness causation as well as their preventive practices - including the use of face masks and 'vitamins' and other pharmaceuticals, as well as the ways in which they negotiate prescriptions of face mask use and physical distancing. These perceptions and practices go beyond biomedical knowledge and are continuously being shaped by people's everyday experiences and circulations of knowledge in traditional and social media. Our study reveals that people's novel practices reflect recurrent, familiar, and long-held concepts - such as the moral undertones of hawa and experimentation inherent in resistensiya. Policies and communications efforts should acknowledge and anticipate how these notions may serve as either barriers or facilitators to participatory care and improved health outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
31. A comprehensive approach to optimizing malaria prevention in pregnant women: evaluating the efficacy, cost-effectiveness, and resistance of IPTp-SP and IPTp-DP.
- Author
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Eisenberg, Sarah-Leah and Krieger, Adam E.
- Subjects
MALARIA prevention ,DRUG efficacy ,HIV-positive persons ,HEALTH education ,HEALTH services accessibility ,MEDICAL care costs ,DRUG resistance ,MALARIA ,HEALTH literacy ,ANEMIA ,ANTIMALARIALS ,PATIENT compliance ,DISEASE complications ,PREGNANCY - Abstract
Malaria during pregnancy is a major global health concern, with approximately 10,000 pregnant women dying from malaria-related anaemia each year. The World Health Organization has suggested intermittent preventive treatment with sulphadoxine-pyrimethamine (IPTp-SP) to avert malaria infection in pregnant women in malaria-endemic areas, but this intermittent preventive (IP) treatment is at risk of becoming ineffective due to parasite resistance and the contraindication in HIV-infected women. This paper argues that alternative IP treatments such as dihydroartemisinin-piperaquine (DP) should be explored, alongside the urgent need to investigate antimalarial cycling strategies. Additionally, the cost-effectiveness of IPTp-DP should be evaluated, as well as potential barriers to IP treatment such as medication stockouts, late attendance at antenatal clinics, lack of autonomy and freedom among women, and lack of knowledge about malaria prevention. Health education focusing on malaria prevention should be incorporated into routine antenatal care programmes to improve patient compliance. A comprehensive approach that includes the administration of IPTp-DP alone along with other measures such as insecticide-treated nets and medical education is the key to addressing the devastating effects of malaria infection in pregnant women. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
32. Multidimensional Nature of Substance Use Disorder: Explorations in Gangtok.
- Author
-
Namgyal Bhutia, Yeshey
- Subjects
SUBSTANCE abuse prevention ,OCCUPATIONAL roles ,CAUSES of death ,SUBSTANCE abuse ,DRUG overdose ,HEALTH literacy ,QUESTIONNAIRES ,DESCRIPTIVE statistics - Abstract
The study investigates the prevalence of substance use disorder and role of institutions in preventing it in Gangtok, a capital city of the northern Indian state of Sikkim. A survey of 816 respondents was undertaken using a short and easy-to-understand questionnaire. Results reveal that 64% of respondents identified persons with harmful drug use in their immediate families or in their neighborhoods and nearly same percentage of people conceal the actual cause of death in cases where death occurred due to drug overuse. The paper uncovers that cases of substance use disorder have increased and a considerable number of people are reported dying due to it, but families often hide the actual cause of death. The role of institutions is found to be limited in preventing it, as the process of knowledge transmission among families and patients with heavy drug use is abysmally slow. The study argues to empowering society with a potential tool, that is, knowledge transmission, and enabling them to devise meaningful tools to tackle rising cases of substance use disorder. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
33. Queering the 'resourcing' of LGBTQ+ young people in the Asia Pacific.
- Author
-
Cheong, Niki, Johns, Amelia, and Byron, Paul
- Subjects
YOUNG adults ,LGBTQ+ people ,QUEER theory ,DEVELOPING countries ,HEALTH literacy ,ORGANIZATIONAL citizenship behavior ,LOCAL knowledge - Abstract
Scholars have long been critical of development agendas where Global North organisations develop aid programmes and resources to address inequalities in the Global South, which tend to reflect Western values, frameworks, and identity. Critical response can be seen in current calls for decolonising the 'resourcing' of LGBTQ+ young people in the Global South. Drawing from the postcolonial lenses of 'Asia as Method' and a reorienting of that paradigm through 'queer Asia as method', we argue for 'queering' approaches to digitally resourcing LGBTQ+ young people in the region by centring the knowledge of local communities. This paper is informed by findings from two research projects involving digital resources on young people's digital citizenship, safety, literacy and participation, and the lived experiences of respondents from 10 countries across the Asia Pacific. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
34. The unhomed data subject: negotiating datafication in Latin America.
- Author
-
Morales, Esteban and Reilly, Katherine
- Subjects
DIGITAL transformation ,DIGITAL literacy ,INFORMATION storage & retrieval systems ,INFORMATION sharing ,SOCIAL processes ,HEALTH literacy - Abstract
Critical scholarship about datafication reveals the implications of algorithmically driven digital transformations for both social processes and human experiences of subjectivity. Digital transformations embed ontological beliefs in the information systems that drive new organizational processes and are accompanied by techno-positivist discourses that promote the benefits of these schemes. The dual power of new information systems plus strong discursive influences has led to fears that data subjects will come to be defined by data and information systems – that their subjectivity will be subordinated by the algorithm. However, in this paper, we argue that real experiences of data sharing offer a means to reveal actual experiences with subjectification, and that often these experiences are multiple and complex. Drawing on the results of five digital literacy interventions carried out by partner organizations in Chile, Colombia, Paraguay, Peru, and Uruguay in 2021, we consider participants' lived experiences with datafication. Our work reveals how people experience, negotiate, reject, and accept data power's multiple manifestations in ways that strategically mobilize data resources, constituting a fractured data subjectivity that overlaps the bounds of any one information system. This leads us to suggest the idea of the 'unhomed' as a useful concept for understanding data subjectification in the contemporary moment. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
35. Design for health: a holistic approach.
- Author
-
Craig, Claire
- Subjects
HOLISTIC medicine ,YOUNG adults ,PSYCHOTHERAPY ,LONELINESS ,HEALTH literacy ,PATIENTS' attitudes - Abstract
The foreword of I The World Mental Health Report: transforming mental health for all i (World Health Organization 2022) draws attention to the scale of the mental health crisis that the world is currently facing. The focus of this work is on a Visualizing Mental Health project, a mental health literacy education and training collaboration delivered as part of a design education programme at the University of South Australia. Mental health literacy recognizes the importance of preventative approaches that improve population understanding of mental health and ways that good mental health can be fostered. [Extracted from the article]
- Published
- 2022
- Full Text
- View/download PDF
36. Mis/Disinformation About COVID-19 and the Position of Information Professionals in Infodemic Management.
- Author
-
Khan, Amjid, Khan, Muhammad Kamal, and Hussain, Abid
- Subjects
OCCUPATIONAL roles ,LIBRARY orientation ,COVID-19 ,MASS media ,ATTITUDES of medical personnel ,RESEARCH methodology ,INFORMATION overload ,EXECUTIVES ,INFORMATION professionals ,HOSPITAL libraries ,ARTIFICIAL intelligence ,HEALTH literacy ,INFORMATION literacy ,HEALTH ,INFORMATION resources ,INFORMATION science ,HEALTH attitudes ,MISINFORMATION ,COVID-19 pandemic ,HEALTH promotion - Abstract
This paper explores the concept of mis/mal/dis-information (MMDI) and studies how information managers/professionals can manage the phenomenon of infodemic during the COVID-19 pandemic. We review existing literature to explore the current concepts, models, associations, and gaps in MMDI to highlight the critical role of information managers/professionals. The findings focus on defining MMDI/fake news and evaluating ongoing and emerging information literacy frameworks. Next, we highlight the existing initiatives and efforts made by Library and Information Science (LIS) professionals, LIS associations, and libraries to contradict the diffusion of MMDI and fake news and educate the public on how to navigate through an era of MMDI. Finally, the study summaries effective strategies designed by those within the LIS profession while suggesting recommendations as to how the information managers/LIS professionals can continue to improve their keys position in the digital age and contribute effectively to managing the phenomenon of infodemic. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
37. Awareness and knowledge of HPV and cervical cancer in female students: A survey (with a cautionary note).
- Author
-
Sherman, S. M., Nailer, E., Minshall, C., Coombes, R., Cooper, J., and Redman, C. W. E.
- Subjects
HUMAN papillomavirus vaccines ,CERVICAL cancer ,ACQUISITION of data ,DISEASES in women ,HEALTH literacy ,CANCER risk factors - Abstract
We conducted a survey to explore levels of awareness and knowledge of human papillomavirus (HPV) and cervical cancer in 170 female students and whether mode of data collection (online vs. paper) affected the results. 27% of women named HPV as a cause of cervical cancer with online respondents more likely to do so. 75% of women had heard of HPV. More online respondents had heard of HPV than paper respondents. 127 women reported having heard of HPV, with a mean knowledge score of 2.989 (standard deviation [SD] = 1.599). Online respondents scored higher (3.57, SD = 1.316) than paper respondents (2.688, SD = 1.591). Knowledge and awareness of HPV and its link to cervical cancer appear to have increased which may be related to the HPV vaccination programme. However, there is still a considerable number of women with little to no knowledge of HPV. Online surveys may result in an inflated estimation of awareness and knowledge. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
- View/download PDF
38. InfecBlock: Investigating the Effects of a Tower-Defense Serious Game for Increasing Epidemic-Related Health Literacy.
- Author
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Sun, Xiaoqing, Li, Tianyi, Miao, Kexin, Zhang, Mengchi, and Ren, Xipei
- Subjects
- *
HEALTH literacy , *STRATEGY games , *COVID-19 pandemic , *COVID-19 , *EDUCATIONAL outcomes , *GAMES - Abstract
AbstractSerious game can potentially improve social awareness and health literacy related to the epidemic, where interactivity, such as strategic game elements, could play a crucial role in increasing learning engagement and motivation. In this paper, we present the user study of InfecBlock, a tower-defense game designed to facilitate individual users to acquire public health knowledge related to coronavirus disease and epidemic prevention. We employed a between-subject experiment design and collected a variety of quantitative data to examine players’ learning outcomes, engagement, and emotional responses. Our results confirmed the effectiveness of InfecBlock in improving learning performance and highlighted its potential to facilitate a more engaged and enjoyable learning experience. We discussed a set of implications for designing tower-defense serious games for supporting the improvements of public health literacy. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
39. Health Narratives as a Therapeutic Tool for Health Care Access for People with Intellectual and Developmental Disabilities.
- Author
-
Caudill, Allison, Hladik, Libby, Gray, Megan, Dulaney, Natalie, Barton, Kayte, Rogers, John, Noblet, Nicole, and Ausderau, Karla K.
- Subjects
- *
HEALTH services accessibility , *MEDICAL care use , *HEALTH literacy , *INTERPROFESSIONAL relations , *PATIENT advocacy , *PHYSICIANS' attitudes , *INTELLECTUAL disabilities , *DEVELOPMENTAL disabilities , *COMMUNICATION , *HEALTH promotion , *QUALITY assurance , *CASE studies - Abstract
Individuals with intellectual and developmental disabilities (IDD) have unique and complex health care needs that require health care access. Barriers, such as decreased health literacy and a lack of experienced physicians working with this population, make access to inclusive health care increasingly difficult. Therefore, it is important for occupational therapists to intentionally create opportunities to improve healthcare access and utilization for this population. This paper describes the collaborative health narrative development process as well as the inclusion of three examples created by co-authors with intellectual or developmental disability. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
40. Developing critical HIV health literacy: insights from interviews with priority migrant communities in Queensland, Australia.
- Author
-
Istiko, Satrio Nindyo, Remata, Simeon, Ndayizeye, Aimable, Moreno, Miguel Eduardo Valencia, Kirunda, Vanessa, Hollingdrake, Olivia, Osborne, Richard, Hou, Jenny Zhengye, Abell, Bridget, Mullens, Amy B., Gu, Zhihong, Debattista, Joseph, Vujcich, Daniel, Lobo, Roanna, Parma, Gianna, Howard, Chris, and Durham, Jo
- Subjects
- *
HEALTH literacy , *HIV , *REPRODUCTIVE health services , *HIV infection transmission , *BISEXUAL men , *DELAYED diagnosis - Abstract
In Australia, surveillance data establish that there are higher rates of late HIV diagnoses among heterosexual migrants from Sub-Saharan Africa and new HIV diagnoses among gay and bisexual men (GBM) from Southeast and Northeast Asia and Latin America. Together, these groups are identified as priority migrant communities in current efforts to eliminate HIV transmissions. HIV health literacy is recognised as a key means of improving access to services and health outcomes. This qualitative paper explores critical HIV health literacy among priority migrant communities in Queensland, Australia. To foreground community voices, peer researchers from priority migrant communities participated in the project design, data collection and analysis, with 20 interviews completed. The findings demonstrate how participants' engagement with HIV health information and services is highly relational and situated within the framework of sexual health and wellbeing. Participants strategically selected where to seek information and who they trusted to help them appraise this information. They further demonstrated reflective capacities in identifying the contextual barriers that inhibit the development of their HIV health literacy. The findings highlight the need for HIV health promotion strategies that embrace a sex positive approach, promote cultural change, and involve collaboration with general practitioners (GPs). [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
41. Bridging the Analog-Digital divide: critical literacies and procedural design in young people's game-making practices.
- Author
-
Gee, Elisabeth R. and Aguilera, Earl
- Subjects
CRITICAL literacy ,DIGITAL storytelling ,DISCOURSE analysis ,DRAWING techniques ,PARTICIPATION ,HEALTH literacy ,FAN fiction ,SEMIOTICS - Abstract
Over the past several decades, the concept of critical literacy has been applied to an increasing range of multimodal texts mediated by digital technologies. Expressive forms such as fan-fiction, digital storytelling, and gaming have presented unique opportunities forunderstanding critical literacy practices. Within the more specific field of game studies, a growing body of scholarship demonstrates how issues of ideology, politics, and power are woven into and expressed through the medium of games – whether digital or analog. This paper builds on this tradition by offering a critical analysis of a semiotic resource that digital and analog games share – the designed processes that shape experiences of meaning-making through acts of play. Examining data from a study of teens' participation in a library-based board game-making workshop, this paper highlights the ways participants engaged in critical literacy practices when asked to address a social issue through game design. The paper draws on techniques of discourse analysis to demonstrate how participants engaged with ideological dimensions of procedural literacy through design-centered discourse. Findings suggest that viewing game-making through the lens of procedurality can be a generative way to explore critical literacy practices in relation to contemporary social issues. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
42. Mediating Discourses of Displacement in the Literacy Practices of Refugees and Humanitarian Actors in Jordan, Kurdistan Region of Iraq, Lebanon and Turkey.
- Author
-
Capstick, Tony
- Subjects
REFUGEES ,LITERACY ,DISCOURSE analysis ,PHILANTHROPISTS ,DISCOURSE ,POWER (Social sciences) ,HEALTH literacy - Abstract
Much has been written about the prevalence and politicization of public discourses on migration. Less prevalent are analyses of the role of literacy mediators in making texts, and the discourses they invoke, accessible to displaced people. With this in mind, this paper takes a discourse-ethnographic approach to the analysis of discourses of displacement. Literacy mediation in humanitarian settings is explored as a means by which refugees and humanitarian actors negotiate the unequal power dynamics of humanitarian interactions. Findings suggest that the institutional complexities of humanitarian efforts are reduced when mediators translate discourses in their literacy practices. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
43. Empowering sex workers? Critical reflections on peer-led risk-reduction workshops in Soweto, South Africa.
- Author
-
Huschke, Susann
- Subjects
HIV prevention ,CONCEPTUAL structures ,DISCRIMINATION (Sociology) ,FOCUS groups ,INDUSTRIAL hygiene ,INTERVIEWING ,SEX work ,RISK-taking behavior ,SELF-efficacy ,WOMEN employees ,ADULT education workshops ,ETHNOLOGY research ,AFFINITY groups ,SOCIOECONOMIC factors ,THEMATIC analysis ,HEALTH literacy - Abstract
Background: Sex workers in South Africa face various forms of structural and interpersonal violence, including police violence, exclusion from health services, and stigmatization and marginalization within their communities. In an attempt to counteract the harmful health effects of criminalization and exclusion, risk-reduction workshops are a key component of HIV prevention programs globally. This paper offers a critical investigation of Creative Space workshops – a South African model of risk-reduction workshops for sex workers – taking place in Soweto, Johannesburg. Drawing on Paulo Freire's work, the paper explores the potential of these workshops to contribute to the empowerment, health and well-being of sex workers. Objectives: The aim of this paper is to investigate the social and psychological effects of peer-led risk-reduction workshops for sex workers in Soweto, South Africa, with a particular focus on the ways in which they might contribute to community empowerment. Methods: This paper is based on in-depth interviews and focus group discussions with 32 sex workers conducted as part of a 20-month ethnographic study (December 2015 to July 2017). Data was analyzed combining inductive thematic analysis with a theoretical frame based on Freire's theory of community empowerment. Results: Peer-led risk-reduction workshops can serve as a 'safe space' for sex workers and distribute empowering forms of knowledge, particularly regarding health issues and rights. However, divisions between different groups of sex workers and between sex workers and non-sex workers counteract the potential benefits of the workshops. Conclusions: Peer-led sex worker programs are likely to be more empowering when they are committed to raising critical consciousness and creating solidarity, and embedded in community action, focusing on common issues such as institutionalized racism, livelihood insecurity, and lack of access to safe and secure housing. Such actions would have positive outcomes on health and well-being. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
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44. Indigenous student literacy outcomes in Australia: a systematic review of literacy programmes.
- Author
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Gutierrez, Amanda, Lowe, Kevin, and Guenther, John
- Subjects
LITERACY ,CRITICAL literacy ,READING ability testing ,TEACHER leadership ,TEACHERS ,HEALTH literacy ,COMMUNITY-school relationships - Abstract
Improving Indigenous students' literacy is a major priority area for the Australian Government, receiving significant funding to address below benchmark English literacy standardised test results. Despite this, recent benchmark tests suggest Indigenous students continue to achieve well below the national average. This systematic review discusses peer-reviewed and evidence-based publications that report on significant literacy programmes to investigate which aspects of literacy are their focus, which are identified as successful, conditions needed for success, barriers to success and measures of success. While most programs reported significant literacy improvements, all identified barriers to success and/or sustainability as outlined in this paper. This review also utilises the four resources literacy model and multiliteracies theories to map literacy gaps. When considering decades of literacy research, there were significant gaps in the represented literacy skills, with the dominant focus on codebreaking, and very few programs addressing critical literacies, multiliteracies or creativity skills. The review of the papers highlighted the need for consideration of ways to design balanced and place-based literacy programs; school-community literacy partnerships; access to training and resources for schools and communities around literacy and school/community research projects and agency for teacher and school leaders to be professional context-based decision-makers. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
45. Swept under the rug and forgotten... A qualitative study exploring the lived experiences of four Black/African American men living with depression.
- Author
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Allen, Junior Lloyd, Szechy, Kathryn A., Campbell, Rosalyn Denise, Nobile, Jessica, and Huggins-Hoyt, Kimberly Yvette
- Subjects
ATTITUDES toward mental illness ,MEN'S health ,DISCUSSION ,SUBSTANCE abuse ,RESEARCH methodology ,SOCIAL stigma ,HELP-seeking behavior ,INTERVIEWING ,EXPERIENCE ,HEALTH literacy ,QUALITATIVE research ,SLEEP ,MENTAL depression ,SCALE analysis (Psychology) ,CONTENT analysis ,THEMATIC analysis ,PSYCHOLOGICAL adaptation ,CLASSIFICATION of mental disorders ,AFRICAN Americans ,MENTAL health services ,SECONDARY analysis - Abstract
Research on Black/African American males' depressive experiences and expressions is still developing. While research has shown that men are less likely to be diagnosed with depression when compared to women, the experiences of Black/African Americans are often ignored at a far greater level. This study aimed to highlight how Black/African American men understood, discussed, and dealt with their depression. Interviews of N = 4 Black/African American men were analyzed from a larger qualitative study that examined depression among Blacks/African Americans. Qualitative content analysis techniques, which included open coding, were used to identify themes within the interviews that identified similarities across participant's experiences. The themes highlighted within this report included: (a) depressive episodes as responses to traumatic life events; (b) family and paternal significance for Black/African American men; (c) substance use and sleeping as coping/treatment; and (d) stigma as the greatest impediment to help-seeking and service use. Blacks/African Americans experienced depression within the classical contextualization of the DSM-V. However, they quickly learned to adapt to their experiences, push through the pain, and identify their experiences as normal parts of everyday living. The paper ends with some recommended practice implications for service providers who are interested in working with Black/African American men. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
46. Co-creating an assistive technology peer-support community: learnings from AT Chat.
- Author
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Layton, Natasha, Harper, Kristy, Martinez, Kathleen, Berrick, Neil, and Naseri, Chiara
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AFFINITY groups ,FOCUS groups ,PATIENT decision making ,LEADERSHIP ,MENTORING ,EXPERIENCE ,HUMAN services programs ,HEALTH literacy ,ASSISTIVE technology ,SUPPORT groups ,INSTANT messaging ,ONLINE social networks ,INTERSECTIONALITY ,QUESTIONNAIRES ,ACCESS to information ,INTERPROFESSIONAL relations ,PEOPLE with disabilities - Abstract
Inclusion is a core philosophy for health practitioners and human service users, and co-production is a way to achieve inclusion. Australia's assistive technology (AT) community seeks to include and amplify the voices of service and product users at multiple levels. Implementation of genuine partnerships for inclusion is however challenging. This paper describes the iterative co-design process undertaken to structure and deliver a peer-led information and support program, enabling AT users and supporters to build their AT decision making capability and share their expertise with each other and the broader community. A living labs approach was grounded in co-design principles and drew on the peer education, AT competency and capability-building knowledge base. Methods included embedding intersectional capabilities within the service, and the engagement of over 600 people in design thinking and program iterations through surveys, focus groups, journey mapping and think tanks. A national, peer-led, co-designed online community for AT users was established and has been running since 2017. The community of 5000 users contribute to a peer-led information and support initiative geared to share expertise and build AT decision making capability. Service delivery by the AT user community and for the AT user community requires a commitment to co-design, and an engagement with concepts of risk, competency, scope of practice and capability. The learnings from AT Chat have implications for AT services on this journey everywhere. Active co-design of AT services meets human rights and good practice benchmarks required by contemporary services. Foregrounding AT users within program design and delivery, brings a range of positive outcomes and possibilities for the way services are delivered. AT users have substantial untapped potential which brings tangible outcomes for other AT users, health professionals, service provider organizations and for society. Development of paid roles and pathways to recognize the skills of AT users, and indeed AT communities has potential to improve AT user self-efficacy as well as to contribute to the AT workforce. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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47. Relationships between Reading Identities and Dialogue: Perspectives from Fifth-grade Multilingual Learners.
- Author
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Collett, Jennifer
- Subjects
OBSERVATION (Educational method) ,READING ,LITERACY ,READING comprehension ,HEALTH literacy - Abstract
Drawing upon a theoretical framework that acknowledges the bidirectional relationship between local discursive acts and institutional structures, this paper analyzes classroom observations with student interviews to understand how fifth-grade multilingual learners are making sense of dialogic literacy instruction to support their reading development. Findings reveal a relationship between how a learner's identity with reading informs how they understand the utility of classroom dialogue to support reading development, and subsequently the degree to which they exert agency to engage in classroom literacy practices. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
48. Digital implementation of originally school-based stroke educational programme in Greece due to the COVID-19 pandemic.
- Author
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Tsakpounidou, Kalliopi, Tsitiroki, Aliki, Keramydas, Christos, and Proios, Hariklia
- Subjects
EDUCATION of parents ,ONLINE education ,HEALTH education ,RESEARCH ,STATISTICS ,STROKE ,TEACHING methods ,SELF-evaluation ,MANN Whitney U Test ,HEALTH literacy ,HUMAN services programs ,PRE-tests & post-tests ,COMPARATIVE studies ,CHILD psychopathology ,RESEARCH funding ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,CHI-squared test ,SCALE analysis (Psychology) ,EDUCATIONAL technology ,DATA analysis software ,DATA analysis ,COVID-19 pandemic ,PROMPTS (Psychology) ,VIDEO recording ,SYMPTOMS ,CHILDREN - Abstract
This paper describes the digitalization process of an originally school-based educational programme to an online version and confirms its efficacy on teaching young children as well as their parents about stroke symptoms and the necessary actions needed to be taken in the event of a stroke. Forty children (20 children with neurodevelopmental disorders (NDDs) and 20 without NDDs), aged 4–9 years, as well as 35 of these children's parents (30–50 years old) participated in the study in Greece. All individuals watched 5 educational videos, designed and produced by the Super Grand League Team. Each video had a mean duration of 15 minutes. Most children had no prior knowledge neither in stroke symptoms nor to the appropriate actions after a stroke. Children's knowledge of stroke symptoms (except the symptom of speech disturbance) and the appropriate actions following stroke improved significantly immediately post training (p < 0.05). Children with NDDs demonstrated no significant differences when compared to their peers without NDDs in regards to the knowledge gains. In the same line, parents showed a significant increase in their knowledge as regards the stroke symptoms (p < 0.001). Only 2 parents (5.7%) knew the correct emergency number before participating in the online programme, while all of them (100%) responded correctly after the programme. The current work using multimodal remote education demonstrates significant improvement in learning about stroke symptomatology and the necessary steps that need to follow. Future work should evaluate the impact of digital interventions in respect of onset-to-door times and stroke outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
49. Sharing health information across online platforms: A systematic review.
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Le, Long Hoang, Hoang, Phuong Ai, and Pham, Hiep Cong
- Subjects
ONLINE information services ,SOCIAL support ,SOCIAL media ,INTERNET ,SYSTEMATIC reviews ,HEALTH literacy ,HEALTH ,INFORMATION resources ,COMMUNICATION ,ACCESS to information ,INFORMATION-seeking behavior ,MEDLINE - Abstract
Advanced Web 2.0 communication technologies have facilitated health-related information (HRI) sharing on the Internet. Especially, the COVID-19 pandemic and lockdowns around the world have forced more people to turn to the Internet for HRI. A better understanding of users' sharing content and sharing behavior can help communicators improve health literacy, raise community awareness, and facilitate social support exchanges. This paper reports the results of a systematic review of online HRI sharing literature, including key research topics, theories and methods used in past studies, and key factors of sharing behavior across online platforms. Following the PRISMA procedure for a systematic review, 58 articles were identified and analyzed using keyword matching, thematic analysis, and expert review. Guided by the platform theory, our findings differentiated five types of online platforms that differently influenced online users' sharing content and sharing purposes, including micro-blogs, social network sites, online health communities, social question and answer sites, and Wikis. The findings also clarify five main research topics and applicable theories used in each topic, including personal health sharing, health-related knowledge sharing, general health message diffusion, outcomes of HRI sharing, and exploratory research. Key factors of sharing behavior and potential sharing outcomes are also reviewed and summarized in the research framework developed from the motivation theory. Our study contributes to the understanding of online sharing behavior and provides implications for health communicators to develop effective health campaigns. Potential research directions are also identified and discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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50. LGBT+ People's Approaches to the Psy Disciplines: A Case Study of A Mental Health Collective in Mumbai, India.
- Author
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Tenneti, Suchaita
- Subjects
HELP-seeking behavior ,MENTAL health ,HEALTH literacy ,LGBTQ+ identity ,PSYCHIATRIC diagnosis ,LGBTQ+ people - Abstract
The paper presents the case study of a mental health collective run by queer people in Mumbai that aims to promote mental health literacy and help-seeking behavior that are anchored in the psy disciplines although the founders are not psy professionals themselves. The study analyses the delicate balance between valorizing personal experience and trusting psy authority that is evident in the functioning of the collective and in the founders' own negotiations of their psychiatric diagnoses with their queer identities and other experiences. The analysis is anchored in a broader pattern in India of privileging the psy disciplines over other medical systems although psy authority remains contested and diffused owing to several factors. The limitations of the informal nature of the collective and their acceptance of psy authority are also explored. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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